Travelling With A Rare Disease: Europe Episode 3 #iih #chronicillness #mentalhealth
Channel: Life with iih
Date: 01/08/2023

#idiopathicintracranialhypertension #chronicillness #split #dubrovnik #interrail 

I have a rare disease that can severely effect the quality of life. It is not visible. It is a very rare neurological disease. I decided to focus on travelling this summer even though I sometimes have very difficult days.
In this episode I briefly visited Copenhagen and then stayed a couple of days in Hamburg and Vienna. More episodes to come.

I have a rare chronic illness called idiopathic intracranial hypertension. This can cause panicattacks, fatigue, tinnitus, nausea, chronic headaches and vision problem or visual loss. It is a neurological disease that and is considered a rare illness. It is treated with #diamox, but can also be treated with neurosurgical intervention. I vlog about my idiopathic intracranial hypertension from my perspective as a patient.

I travel around Europe with my rare illness that can not be seen physically. In this vlog I traveled to #split  for a short stay and then continued down the coast to #dubrovnik. However, things did not go as planned in Dubrovnik and I had to  abandon my plans.