Sjögren's Solutions - Module 8) Family & Friends... get out & be normal
Channel: The Australian Sjögren's Syndrome Association
Date: 2014-10-03

http://www.sjogrens.org.au/solutions
'Sjögren's Solutions' is a collection of 12 video modules about living with Sjögren's Syndrome. Sjögren's is an auto-immune disease that affects the moisture producing glands -- meaning no tears, no saliva and no internal lubrication. The Sjögren's Solutions videos are presented by Beverly Norton who is the founder of The Australian Sjögren's Syndrome Association (TASSA).

At the time of her diagnosis in 2000, Bev was the only survivor in Australia of Sjögren's Neuropathy -- 3rd stage Sjögren's -- and she runs TASSA on her own with no government assistance. In many cases Bev and TASSA are the only source of information for patients and also for doctors in Australia who regularly call her for advice. This takes a great toll on Bev who only has limited energy but her quest is to support as many other people as possible.

That's where the Sjögren's Solutions video series comes into play. The modules are designed to answer as many preliminary, general questions as possible and take the initial load off Bev. Then, once the modules have been watched, sufferers can choose to contact Bev personally over the phone or via Skype and Join for one-time TASSA membership fee (A$60) and discuss each case in detail and create a unique, tailored approach.

Sjögren's is a lifetime disease and by joining TASSA, Bev can continue to offer further personal advice as the disease progresses and symptoms change. But the Sjögren's Solutions modules are TASSA's new first line of information and support, so whether you are new to Sjögren's or moving through the stages, please watch all the videos and explore as many of those solutions as possible and then Join TASSA.