Rising Our Voices - Julie Flygare + Elizabeth Terry
Channel: Hypersomnia Foundation
Date: 2023-06-30

Julie Flygare, President & CEO of Project Sleep highlights the Rising Voices program that empowers people with rare sleep disorders to share their story.  Elizabeth Terry, an alumni of the Rising Voices program shares her story of diagnosis and adapting to life living with narcolepsy. 

Julie Flygare, JD, serves as President & CEO of Project Sleep. Flygare is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. On March 22, 2022, she delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer?“

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Elizabeth Terry is a Recreation Therapist and person living with narcolepsy. She has a B.S. in Recreation Therapy from Indiana University Bloomington.

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