Wearing Two Hats at Bath
Channel: Miss V Martin
Date: 09/05/2021

An introduction to Patient and Public Involvement in research (PPI) and the work of Dr Vuokko Wallace (University of Bath) together with the medical support group TOFS (Tracheo-Oesophageal Fistula Support).

Dr Wallace is an adult survivor of Oesophageal Atresia - a congenital birth defect which means a baby is born unable to swallow due to faulty development of the oesophagus, and which requires surgical repair at a specialist paediatric surgical centre.

The video describes how she and her students have worked with the patient community at TOFS to develop and carry out research into the mental health of parents and adult survivors, and families' experiences of the transition from paediatric to adult health care.

Narration by Judy Riley (mother of a TOF child - now adult).
Animation by Vicki Martin www.vickimartin.co.uk using VideoScribe.