RareBut not Alone

Terms and Conditions
1. Acceptance
The www.fondation-ipsen.org Website has been developed and is supplied by Fondation IPSEN / Fondationde France, 65 quai George Gorse, 92650 Boulogne Billancourt. Your access to and use of the Website issubject to the following Terms and Conditions and all applicable laws. By accessing the Website you accept,
without limitation or qualification, these Terms and Conditions.
2. Use of information
This website aimed to inform general public on the most suitable advances in Science to improve health andwell-being. Fondation IPSEN is also aimed to raise awareness on key issues like child maltreatment, climate
crisis or the respect of gender parity in society.
You may not distribute, modify, transmit, reuse, repost, or use any of the information on the Website forcommercial purposes, and should assume that everything you see or read on this Website is protected bycopyright unless otherwise noted, and may not be used except as provided in these Terms and Conditions.
Except as otherwise permitted in this paragraph, Fondation IPSEN / Fondation de France neither warrants
nor represents that your use of materials displayed on the Website will not infringe rights of third parties notowned by or affiliated with Fondation IPSEN / Fondation de France. With the exception of the foregoing
limited authorization, no license to or right in the information, or any copyright of Fondation IPSEN /Fondation de France or of any other party is granted or conferred to you.
This Website may contain or reference proprietary information, technologies, products, processes or otherproprietary rights of Fondation IPSEN / Fondation de France and/or other parties. No license to or right in any
such trademarks, patents, trade secrets, technologies, products, processes and other proprietary rights ofFondation IPSEN / Fondation de France and/or other parties is granted to or conferred upon you.
3. Disclaimer of warranties
While Fondation IPSEN / Fondation de France use reasonable efforts to ensure that the information
contained in the Website is accurate and up to date, such information may contain inaccuracies or
typographical errors. Fondation IPSEN / Fondation de France reserve the right to make changes, corrections
and/or improvements to the information at any time without notice. Fondation IPSEN / Fondation de France
make no warranties or representations as to the accuracy of any of the information and assumes no liabilityor responsibility for any errors or omissions in the content of the Website.
ALL INFORMATION IS PROVIDED "AS IS." FONDATION IPSEN / FONDATION DE FRANCE PROVIDE NO
WARRANTIES ABOUT THE COMPLETENESS OR ACCURACY OF THE INFORMATION ON THISWEBSITE OR ITS POSSIBLE USES. CONSEQUENTLY, THE INFORMATION SHOULD BE CAREFULLYEVALUATED BY USERS BEFORE USE. YOU MAY USE THIS INFORMATION AT YOUR OWNDISCRETION AND RISK. TO THE MAXIMUM EXTENT PERMITTED BY LAW, FONDATIONIPSEN/FONDATION DE FRANCE AND ANY OTHER PARTY INVOLVED IN CREATING, PRODUCING ORDELIVERING THIS WEBSITE TO YOU DISCLAIM ANY WARRANTIES OR LIABILITY FOR ANY DIRECT,INCIDENTAL, CONSEQUENTIAL, INDIRECT OR PUNITIVE DAMAGES ARISING OUT OF ACCESS TO,USE OF OR INABILITY TO USE THIS WEBSITE, OR ANY ERRORS OR OMISSIONS IN THE CONTENTOF THE WEBSITE.
Fondation IPSEN / Fondation de France also assume no responsibility, and shall not be liable for, anydamages to, or viruses that may infect, your equipment or other property inflicted by your access to, or use ofthe information.

4. Information you supply
Except for information covered by the Privacy Policy, if such a policy is applicable, any communication ormaterial you transmit to the Website, including any data, questions, comments, suggestions or the like is, andwill be treated as, non-confidential and non-proprietary.
5. Consequences
If Fondation IPSEN / Fondation de France become aware that you have violated any of the Terms andConditions contained herein, it may immediately take corrective action, including preventing the user fromusing the Website, at any moment and without notice. If Fondation IPSEN / Fondation de France have been
affected or injured by your violation it may, in its sole discretion, seek to recover damages from you.
6. Revisions
Fondation IPSEN / Fondation de France may at any time revise these Terms and Conditions by updating thisposting and notifying the user by sufficient means (such as an email or a pop-up window in the Website, bywhich you will be asked to give your consent to the amended version). The revised Terms and Conditions
enter into effect within 30 calendar days after such an update. If you disagree with the new Terms andConditions, you should indicate so through the mechanism provided by the relevant email or pop-up, andsubsequently stop accessing and using the Website. You should periodically visit this page to review thecurrent Terms and Conditions to which you are bound.
Fondation IPSEN / Fondation de France reserve the right to discontinue this Website at any time without
liability to you or anyone else. You will receive prior notice of such a discontinuation.

7. Intellectual Property
The content of this Website is fully protected by the applicable intellectual property rights. All materials
contained in this Website may not be reproduced, displayed or further used in any manner whatsoever
without the prior written permission of Fondation IPSEN / Fondation de France.
8. Severability
The invalidity or unenforceability of any provision of these Terms and Conditions shall not affect the validity orenforceability of any other provision, which shall remain in full force and effect, except where the invalidity orunenforceability relates to an essential term of these Terms and Conditions.
9. Governing laws and dispute resolution
These Terms and Conditions and your use of the Website shall be governed by the laws of French republic,
except for the provisions of international private law.
Disputes that cannot be resolved amicably, will be submitted to the courts and tribunals of Paris.

Last updated September 2022.