RareBut not Alone

Privacy Policy
This Privacy Policy describes the ways in which Personal Information about individuals (“Users”) who use thiswebsite (www.fondationipsen.org) may be collected, stored and used by Fondation IPSEN / Fondation deFrance, 65 quai George Gorse, 92650 Boulogne-Billancourt, France, the data controller.
THIS PRIVACY POLICY MAY PERIODICALLY CHANGE, BE MODIFIED, OR OTHERWISE UPDATEDWITHOUT PRIOR NOTIFICATION. However, your Personal Information (as defined below) will always behandled in accordance with the Privacy Policy that was in effect at the time of collection.
1. Personal Information collected:
Fondation IPSEN / Fondation de France may collect Personal Information when you register to become aUser, including your name, e-mail address, position, working address. If you wish to receive information from
Fondation IPSEN / Fondation de France, these categories of Personal Information are mandatory.
When you register as a User, we clearly label which information is required for registration, and which
information is optional and may be given at your discretion.

2. Use of Personal Information:
Your Personal Information will only be processed for the purposes of the legitimate interests pursued byFondation IPSEN / Fondation de France, namely having a better interaction with you and making your accessto science easier.
Your Personal Information will not be sold, shared or otherwise distributed to third parties without yourconsent, except where we are required to do so because of an applicable law, court order or governmental
regulation, or if such disclosure is otherwise necessary in support of any criminal or other legal investigationor proceeding here or abroad.
3. Term of retention of Personal Information
Your Personal Information is processed and kept for no more than three years from the latter: (i) its collectionor (ii) the latest contact we have with you.
4. Security
Your Personal Information will be stored on secure servers and maintained strictly confidential.You areresponsible for maintaining the secrecy of your unique password and account information.
. Right of access, correction and objection
You have a right of access, correction, deletion, restriction and objection to the use of your PersonalInformation. If you wish to contact us regarding our use of your Personal Information or exercise any of yourrights regarding your Personal Information, please email us at fondation@ipsen.com. If you contact us,
please indicate the specific reason why you are contacting us and include a copy of a piece of identification(e.g., ID card, passport, driver’s license), subject to applicable legal requirements. Requests to delete
personal data will be subject to any applicable legal and ethical reporting or document filing or retention
obligations imposed on us. In this case, you will be informed about this and your Personal Information will
only be retained to meet those purposes.

You can contact us at fondation@ipsen.com to exercise your rights.
6. Unsubscribing
You can unsubscribe at any time by sending an email to fondation@ipsen.com.
7.Cookies
This Website uses anonymous analytics, including cookies generated by Google Analytics. Cookies are small
data files which are placed on your computer, smartphone or other device. Cookies are stored on the harddisk of your device without any risk of damaging it.
Cookies allow us to collect automatically certain user data during your use of the Website, such as:• The IP address of the User (this address, which allows access to the Internet, is assigned to the device ofthe User by the Internet service provider and the information, which changes according to the session of theUser, is not directly personally identifiable);• The date and time of the visit of the User on the Website;• The operating system of the User’s device as well as its browser;• How the User accesses the Website.
The Website uses several types of cookies:
Strictly necessary cookies: These cookies are essential in order to enable you to move around the Website
securely and use its features.
Performance cookies: These cookies collect information analytics about how visitors use the Website, forinstance which pages visitors go to most often, and if they get error messages from the Website. Thisincludes analytics cookies generated by Google Analytics.
These types of cookies do not collect information that directly identifies Users, but instead make use ofnumbers and codes. This information is solely used to administer the Website and improve the User
experience. The information is not used to create profiles on Users or to provide targeted advertising.
Fondation IPSEN / Fondation de France will not retain the personal data collected (the cookie identifier) for
longer than thirteen months.
By visiting this Website you agree to the use of performance cookies on your device.
You can prevent the registration of cookies by clicking [here]. [ST1]This Privacy Policy was last modified on September 2022.