The Asian National Stop TB Partnership Forum 2016
Date ：

14 and 15, March, 2016

Venue ：

United Nations University, Shibuya, Tokyo (14, March)
Research Institute of Tuberculosis, JATA, Kiyose, Tokyo (15, March)Participants： 18 participants representing non-governmental organizations of 8 countries
Observers:

26 observers from various governmental and non-governmental institutionsgroups, including Ministry of Foreign Affairs and JICA.

1

Background
Millennium Development Goals(2000-2015）

Medical Issue
Sustainable Development Goals（2016-2030）

Socio-Economic Issue
More Engagement ofCivil Society andCommunities

WHO End TB StrategyIntegrated,
PatientCentered
TB careandprevention

Boldpolicies andsupportivesystem

Intensified
researchandinnovation

Government stewardship and accountability, with monitoring and evaluations
Building a strong coalition with civil society and community
Adaptation of the strategy and target at country level, with global collaboration2

Mission of the Forum
1. To enhance people’s awareness of the importance of their ownership for andcommitment to tuberculosis control activities.
2. To promote the effective collaboration between governmental and nongovernmental sectors in the fight against tuberculosis, with special reference
to the potentiality of women’s roles.
3. To clarify the problems and challenges of tuberculosis control of each target
area or community to be addressed in their action plans .
4. To advance cooperation between partners of different groups beyond
country borders.

3Participants
Country/Territory
Cambodia
Indonesia
Korea
Myanmar
Nepal
Philippines
TaiwanThailandName

Affiliation

Khloeung Phally

Deputy Director of National Center for Tuberculosis and Leprosy Control (CENAT)

Monyrath Chry

Program manager of Cambodia Anti-Tuberculosis Association (CENAT)

Chharvy Ringsey KEOCambodia Anti-Tuberculosis Association (CENAT)

Mariani Reksoprodjo

Head Quarter/ Executive Secretary of Forum Stop TB Partnership Indonesia

Fitriani Manan

Board member of Stop TB Partnership Cimahi City

Seungjoon Chang

Executive Director of Stop TB Partnership Korea , Korean National Tuberculosis Association (CENAT)

Hong Jo Choi
Tha Zin Nwe

Chief of Stop TB Partnership Korea,
Korean National Tuberculosis Association (KNTA)
Korean Institute of Tuberculosis (KIT)
Chairperson of Myanmar Maternal Welfare Association(MMWA)Ei Ei Chaw

State TB Officer of National Tuberculosis Program, Kachin State, Myitkyinar

Ram Sharan Gopali

Country Representative of Japan-Nepal Health & TB Research Association RIT(JANTRA)／JATA Nepal Office

Jamuna Panthi
Aurora G. Querri

Board member of JANTRA
Deputy Executive Director of RIT/JATA, Philippines, Inc.(RJPI)

Leonardo G. Parungo Jr

Administrative Officer of RIT/JATA, Philippines, Inc.(RJPI)

Chih-Yun Lin

Research Assistant of Tuberculosis MDR Department, Chang-Hua Hospital/Anti-TB Association(TATA)

Wei-Wen Chen

Chang-Hua Hospital MDR TB Department/Anti-TB Association(TATA)

Luangjina Sarmwai

Secretary of THRF, Member of the Chiang Rai Volunteer Ladies against TBJintana Ngamvitayapong-Yanai

President of TB/HIV Research Foundation (THRF)

Kanghee Kim

4

The Roles of NGOs/CSOs
1） Cooperation with the government in implementing NTP
1.Supporting TB case detection through urging symptomatic subjects to visit health facilities.
2.Encouraging patients to take medications regularly.
3.Increasing the knowledge of TB among community people on various occasions to reduce the stigma and to take proper action against illnesses.

2）Social support of patients and families
1.Supporting, educating, and empowering patients and their family facing financial barriers through forging UHC.
2.Providing patients with food, transport, housing, etc., as important areas of patient support.
3.Reducing stigma, discrimination, and superstition.

3） Advocacy
1.Advocating voices of patients and vulnerable people.
2.Increasing awareness of TB among the community.
3.Creating patients’ groups, so that they have a stronger voice for claiming better service and protection, and also enhancing community awareness of TB.
4.Creating peer support groups with high capacity to support vulnerable groups (e.g., the very poor, women, children, HIV-infected or elderly persons, etc.).

5.Advocating research for TB control, especially operational research and research involving community activities.

4）Women’s roles and potentials
1.Gender equity should be addressed in TB care, including access to health services and knowledge of TB.
2.Women’s potential in community activities should be fully recognized.

5The Challenges of NGOs/CSOs
Fund raising issues• Schemes
Many groups suffer from inadequate budgets, but few of them use specific schemes of
their own for fund raising, e.g., Christmas-seal campaign, Calendar sales, donation box (inshops, etc.), and charity events, in addition to donations from individuals (groupmembers and others) and companies.
Other funding sources include government programs, the Global Fund, WHO, Union, StopTB Partnership, UNICEF, other bilateral plans (e.g., JATA, USAID, TBREACH), and charitablefoundations.
• Donations from pharmaceutical industries
possible concern may exist for receiving research fund and donations for charity from pharmaceuticalindustries, including health-related businesses. Refusing any type of donation from tobacco andalcohol industries is consensus among all NGO/CSOs.

678

The Challenges of NGOs/CSOs
1. The high turn-over rate of volunteers is common, possibly due to inadequate
incentives and lack of community recognition, or volunteers’ dignity.
2. Incentives for volunteers may include privileged free access to health services,periodic meetings for reporting volunteers’ activities, opportunities of training andexchange with other groups, awarding for outstanding performance, and provisionof travel allowances.
3. Addressing patient’s confidentiality or privacy.
4. In some cases, consensus between government and NGOs is not enough, andsome care providers have difficulty in implementing International Standards of TB
Care.
5. Low capacity of research activities, when NGO’s operational research is expected
as very significant, especially in UHC and social protection schemes.
6. Documentation of success stories of community activities may be important insharing recognition of bases of TB control such as UHC and patient-centered care.
9Outcomes - Forum Slogan

Women are creators of community
health through family health.

10Special Thanks to• Women's Anti-Tuberculosis Association,• Japan Anti-Tuberculosis Association (JATA)• Research Institute of Tuberculosis, JATA
• Council of Japanese Western Pacific Regional Office ofWorld Health Organization

11