Retina International General Assembly 2018 - Auckland, New ZealandThursday, February 8th, 2018
Location: University of Auckland Business SchoolOwen G Glenn Building, 12 Grafton Road, Auckland, 1010
Room:Decima Glenn Room, Level 3
Start:
09.00 a.m. end: 05.00 p.m.

Appendix 03-2
3.2 Financial reports 2016 – 2017
The accounts 2016 were audited and recommended by the auditors to beapproved. Due to the short time between end of financial year 2017 and theGeneral Assembly of Retina International it was impossible to have theaccounts 2017 audited before the General Assembly early February 2018. TheMC presents the accounts as they are to be presented to the auditors in theaudit meeting end of February 2018. This document can be sent to themembership due to obvious reasons only by January 31st, 2018.
Motion: The MC moves to accept the accounts 2016 as recommended by
the auditors in 2017.
Motion: The MC moves to accept the accounts 2017 provided that theauditors accept them end of February 2018.

Christina Fasser, President

Abdullah Yusuf, Treasurer

ga18-app-03-2-financial-reports-2016-2017.doc
Retina International, GA 2018, Auckland, New Zealandappendix 03-2, Financial reports 2016/2017 - 18.02.08

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Retina International
Balance Sheet per 31.12.2016 in CHF
Assets (Active)
1001
1002
1003
1003A
1004
1005

2001
2004
2003

2100
2101

3001
3002
3003
3005
3007
3008
3009
3010
3012

Balance 31.12.16

Bank accountCash account
Accounts receivable
Doubtful Accounts receivable
Post
Prepaid expenses and otherassets
Total assets
Liabilities and net assets(Passive)
Accounts payable (Creditors)
Deferred revenue
Accrued cost
Total Liabilities

79649.16
167.6041232.35
2881.00
3281.60
1529.70-68753.71

Expenditure31.12.2016
200.001151.404185.60
13504.32
181.950.00
567.35121767.53
5058.00

3006
3011

3014
3015

TravelTravelManagement Committee
SMAB Meeting
Travel grantTravel expenses
IT – Information
TechnologyRI Newsletter
Internet
IT – Information
Technology expenses
White book Project
Genotyping Project
Limited Project expenses

Total Expenditure

Retina International, GA 2018, Auckland, New Zealandappendix 03-2, Financial reports 2016/2017 - 18.02.08

204491.34-59987.70-12836.90-38173.85
0.00-51010.75-153480.59-68753.71-128741.41

Office and administrative
expenses

3004-13004-23004-33004-4128741.41-930.60-56557.10-2500.00

Net assets (Capital)
Profit & loss current period
Total Net Assets
Total Liabilities and net
Assets (passive)

Photocopies
Postage
Telephone, fax
SundryExchange rate loss
Surplus Income
Bank fees
Staff salary
Unrecoverable Fees

Opening
01.01.16
162085.94
461.4029202.05
9091.00
3413.60
237.35153480.59-204491.34

146616.15

32692.13
553.206403.101166.9040815.33

14000.00
17901.95
31901.95
20330.90
449.0020779.90
240113.33

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Income
4001
4002
4003
4004
4007
4009
4010

4011
4012
4014
4015

Membership fee
InterestDonations
Undedicated Industrial Grants
Exchange rate gain
Surplus expenditure
Staff
Income fees and donations
Limited Projects
EU ProjectWebsite
White book Project
Genotyping Project
Total Limited Projects
Income-85356.00
0.00-6800.00-10813.95
0.00-84726.88
0.00-187696.83

0.00-17378.20-24589.30-10449.00-52416.50-240113.33

Total Income
Expenditure/Income
balance
IncomeExpenditure240113.33

Capital per 01.01.2016
Surplus Expenditure
Capital per 01.01.2017153480.59-84726.88
68753.71

155386.45

Final accounting per 31.12.2016
Capital-Surplus Expenditure CHF 84726.88
2100 - 4009

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Trifina FINANZ
Giovanni G. Trivellalic.oec. HSG
dipl. Wirtschaftsprüfer
Letzigraben 89
CH 8040 Zürich
Tel +41(1) 404 56 99
Fax +41(1) 404 56 66
E-mail gtrivella@trifina.ch

Auditor's report to the General Assembly of Retina International
As auditors, we have audited the accompanying financial Statements ofRetina International which comprise the balance sheet as of31
December2016, and the related income Statement.
Our responsibility is to express an opinion or> the financial Statements
based on our audit. We conducted our audit in accordance with Swisslaw and Swiss Auditing Standards. Those Standards require that we planand perform the audit to obtain reasonable assurance about whether thefinancial Statements are free from material misstatement.
An audit involves performing procedures to obtain audit evidence about
the amounts and disclosures in the financial Statements. The procedures
selected depend on the auditor's judgement, including the assessment of
the risks of material misstatement of the financial Statements, whetherdue to fraud or error. In making those risk assessments, the auditor
considers the internal control system relevant to the Organisation'spreparation and fair presentation of the financial Statements in order todesign audit procedures that are appropriate in the circumstances, but
not for the purpose of expressing an opinion on the effectiveness of theOrganisation's internal control System.
An audit also includes evaluating the appropriateness of accounting
policies used and the reasonableness of significant accounting estimates
made, as well as evaluating the over-all presentation of the consolidatedfinancial Statements. We believe that the audit evidence we haveobtained is sufficient and appropriate to provide a basis for our audit
opinion.

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Opinion In our opinion, the financial Statements referred to above
present fairly, in all material respects, the financial position of Retina
International at 31 December 2016 and the results of their operations forthe year then ended in accordance with accounting principles generally
accepted and comply with Swiss law.
We recommend that the financial Statements submitted to you beapproved.
Trifina Finanz
Giovanni Trivella
Audit Expert
Zürich, 28 February 2017
(The original document can be requested from the secretariat of RetinaInternational)

1. General information
1.1. Organisation of Retina International
1.1.1 Objective
Retina International (formerly known as the International Retinitis Pigmentosa
Assoc. - IRPA) is a voluntary charitable umbrella association of 34 nationalsocieties each of which is created and run by people with Retinitis Pigmentosa(RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies,
their families and friends.
The main objective is to promote the search for a treatment for Retinitis
Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal
dystrophies. Main emphasis should be given to inherited forms of retinal
dystrophies.
Under the terms of this objective, the following are the functions of Retina
International:- To promote and stimulate research into Retinitis Pigmentosa (RP), Usher
Syndrome, Macular Degeneration and allied retinal dystrophies, especially bykeeping in touch with scientific developments around the world and doing all in
its power to foster co-operation and co-ordination among scientists with a viewto expediting the development of treatments for Retinitis Pigmentosa (RP),Usher Syndrome, Macular Degeneration and allied retinal dystrophies.

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- To promote on an international and inter-Foundation basis, what the NationalFoundations provide on a national and inter-member basis; i.e. mutual supportand encouragement in the struggle against Retinitis Pigmentosa (RP), Usher
Syndrome, Macular Degeneration and allied retinal dystrophies.
- To promote public awareness and provide information on Retinitis Pigmentosa(RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies
through maintenance of a high degree of international contact and exchange ofliterature and other useful material.
- To promote the establishment of societies of persons with retinaldegenerations in countries in which such societies do not already exist.
Retina International was created by the member societies to help them achieve
their purposes. The main method of doing so is the exchange of ideas andinformation, both lay and scientific, and the encouragement of co-operation
among member societies. Retina International also represents the membersocieties collectively to supranational organisations.
Retina International employed per 31.12.2016 3 persons as paid staff with a
total working capacity of 130 %, of which 1 person (100 %) is based in Dublin(Ireland). Otherwise Retina International is run fully on a voluntary basis.
1.1.2 Finances
Retina International is a charitable, not for profit organisation and financed bymembership fees that are allocated at the bi-annual General Assembly, lasttime in Taipei in July 2016. Retina International may seek additional funding
from other sources for projects such as relaunch of the website or the whitebook on clinical endpoints. Funds of the pharma industry are only accepted as
unrestricted educational grants.
1.1.3 Legal basis
Legal basis is the constitution of Retina International and the business rules.
Retina International's activities are overseen by the host organisation, Retina
Suisse. Accounting and management has to be in accordance with Swiss law.
Retina International is hosted by Retina Suisse, Ausstellungsstrasse 36, 8005
Zurich (Switzerland)

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1.1.4 GovernanceThe day to day business of Retina International is run by the president and themanagement committee, both duly elected by the General Assembly Taipei in
July 2016 for the term of office 2016-2018.
President: Christina Fasser (Switzerland)Management committee: Claudette Medefindt, deputy president (South Africa)
Fraser Alexander (New Zealand)
Caisa Ramshage (Sweden)
K.P. Tsang (Hong Kong)
Abdullah Yusuf, treasurer (Pakistan)
Michael Laengsfeld (Germany)
Auditors (appointed by the MC of Retina International: Giovanni Trivella, Trifina,
8006 Zurich)
1.2 Bookkeeping
The accounts and books are kept according to the laws of Switzerland.

2. Comments
2.1 Securities
Retina International has no securities and all funds are in the bank, post andcash accounts.
2.2 Funds from the pharma industry in 2015/2017
Retina International accepts funds from the pharma industry only as
unrestricted educational grants.
In 2016 Retina international received three major grants, covering activities in2016 and 2017 for the relaunch of the website, genotyping project and theestablishing of a white book for meaningful clinical endpoints in retinaldegenerative diseases.

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Date Pharma

Amount
CHF

2015

2016

15.09.16

Novartis
Investments SARL

32396.45

15018.25

17378.20

15.11.05

Novartis
Investments SARL

25000.00

4204.35

20795.65

16.12.18

Novartis
Investments SARL

36988.35

0.00

1988.35

7569.750.00

7569.75

3244.200.00

3244.20200.000.00

200.0032006.10

0.0010449.00

137404.85

19222.60

61625.15

Retina Implant
16.04.17 GmbH
16.04.17

Okuvision GmbH

Novartis16.03.14
Investments SARL
Sparks
Therapeutics
16.12.31 Total

2017Remarks

Project grant
relaunch0.00
website2015/2016
Project grant
whitebook on0.00
clinical
endpoints
2015/2016
Project grant
whitebook on
35000.00
clinical
endpoints
2016-2017
unrestricted
0.00
grant
unrestricted
0.00
grant
Travel Cost
EPIS
0.00
Steering
committee
advocacy21557.10 project
genotyping
2017 in56557.10 deferred
revenue 2016

2.3. Risk management
The Management committee is regularly assessing the risks.
Events after the 31.12.16 that could influence the future of Retina
InternationalThe General Assembly 2016 decided to register Retina International as an
association according to Art. 64 of the Swiss Law and to register it in the Swiss
Registry of Commerce. The process is ongoing.
Zurich, 12th February 2017

Christina Fasser, President
Retina International, GA 2018, Auckland, New Zealandappendix 03-2, Financial reports 2016/2017 - 18.02.08

Abdullah Yusuf, Treasurer
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