Form

990

Extended to November 16, 2015

Return of Organization Exempt From Income Tax

OMB No. 1545-0047| Do not enter social security numbers on this form as it may be made public.

Open to Public
Inspection

2014

Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)

Department of the Treasury
Internal Revenue Service| Information about Form 990 and its instructions is at www.irs.gov/form990.
A For the 2014 calendar year, or tax year beginningand ending
C Name of organization

B Check if

applicable:

X AddresschangeD Employer identification number

Foundation for Prader-Willi Research,Inc

NamechangeInitialreturnFinalreturn/terminated
AmendedreturnApplication
pending

Doing business as
Number and street (or P.O. box if mail is not delivered to street address)

340 S Lemon Avenue
91789

F Name and address of principal officer:Jessica

Net Assets orFund Balances

Howard) § (insert no.)
Association

4947(a)(1) or
Other |

760-536-3027
3,163,338.

G
H(a) Is this a group return
Gross receipts $Yes X No
Yes
No
527
If "No," attach a list. (see instructions)
H(c) Group exemption number |Yearofformation: 2003 M State of legal domicile: CALfor subordinates? ~~H(b) Are all subordinates included?

Briefly describe the organization's mission or most significant activities: Supports

research to advance theunderstanding and treatment of Prader-Willi Syndrome.

Part IIPY

2 Check this box |if the organization discontinued its operations or disposed of more than 25% of its net assets.
14
3 Number of voting members of the governing body (Part VI, line 1a) ~~~~~~~~~~~~~~~~~~~~
3
14
4 Number of independent voting members of the governing body (Part VI, line 1b) ~~~~~~~~~~~~~~
4
4
5 Total number of individuals employed in calendar year 2014 (Part V, line 2a) ~~~~~~~~~~~~~~~~
545
6 Total number of volunteers (estimate if necessary) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
60.
7 a Total unrelated business revenue from Part VIII, column (C), line 12 ~~~~~~~~~~~~~~~~~~~~ 7a0.
b Net unrelated business taxable income from Form 990-T, line 34 •••••••••••••••••••••• 7b
Prior Year
Current Year
1,244,294.
2,785,963.
8 Contributions and grants (Part VIII, line 1h) ~~~~~~~~~~~~~~~~~~~~~
0.
0.
9 Program service revenue (Part VIII, line 2g) ~~~~~~~~~~~~~~~~~~~~~
3,771.
5,657.
10 Investment income (Part VIII, column (A), lines 3, 4, and 7d) ~~~~~~~~~~~~~
156,300.
241,195.
11 Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) ~~~~~~~~
1,404,365.
3,032,815.
12 Total revenue - add lines 8 through 11 (must equal Part VIII, column (A), line 12) •••1,062,386.
1,177,360.
13 Grants and similar amounts paid (Part IX, column (A), lines 1-3) ~~~~~~~~~~~
0.
0.
14 Benefits paid to or for members (Part IX, column (A), line 4) ~~~~~~~~~~~~~
112,352.
204,490.
15 Salaries, other compensation, employee benefits (Part IX, column (A), lines 5-10) ~~~0.
0.
16a Professional fundraising fees (Part IX, column (A), line 11e)~~~~~~~~~~~~~~
134,128.
|b Total fundraising expenses (Part IX, column (D), line 25)242,645.
395,326.
17 Other expenses (Part IX, column (A), lines 11a-11d, 11f-24e) ~~~~~~~~~~~~~
1,417,383.
1,777,176.
18 Total expenses. Add lines 13-17 (must equal Part IX, column (A), line 25) ~~~~~~~-13,018.
1,255,639.
19 Revenue less expenses. Subtract line 18 from line 12 ••••••••••••••••
Beginning of Current YearEnd of Year2,336,935.
3,824,434.
20 Total assets (Part X, line 16) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~
650,556.
882,416.
21 Total liabilities (Part X, line 26) ~~~~~~~~~~~~~~~~~~~~~~~~~~~
1,686,379.
2,942,018.
22 Net assets or fund balances. Subtract line 21 from line 20 ••••••••••••••CO

Expenses

Revenue

Activities & Governancesame as C above
501(c) (I Tax-exempt status: X 501(c)(3)
HTTP://www.FPWR.org
J Website: |Trust
K Form of organization: X Corporation
Part I Summary
1

3620

City or town, state or province, country, and ZIP or foreign postal code

Walnut, CA

31-1763110

Room/suite E Telephone number

Signature Block

Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it istrue, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
Sign
Here

= Tom Compere, Treasurer=
Signature of officer

Type or print name and title

Print/Type preparer's namePaid
Preparer
Use Only

Date

Preparer's signature

J. Max Campbell, Jr.
Haynes Downard LLP
Firm's name2121 2nd Avenue North, Suite 400
Firm's address
Birmingham, AL 35203

9
9

Date

Check
if
self-employed

Firm's EIN

9

PTIN

P00743822
63-1133963

Phone no.205-254-3380

May the IRS discuss this return with the preparer shown above? (see instructions) •••••••••••••••••••••
432001 11-07-14
LHA For Paperwork Reduction Act Notice, see the separate instructions.

X

Yes
No
Form 990 (2014)

Foundation for Prader-Willi Research,Inc
Part III Statement of Program Service Accomplishments

Form 990 (2014)1

31-1763110

Page 2Check if Schedule O contains a response or note to any line in this Part III ••••••••••••••••••••••••••••
Briefly describe the organization's mission:

The Foundation for Prader-Willi Research is dedicated to supporting
research to advance the understanding and treatment of Prader-Willi
Syndrome.

4a

Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Yes X No
If "Yes," describe these new services on Schedule O.
Did the organization cease conducting, or make significant changes in how it conducts, any program services?~~~~~~Yes X No
If "Yes," describe these changes on Schedule O.
Describe the organization's program service accomplishments for each of its three largest program services, as measured by expenses.
Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, andrevenue, if any, for each program service reported.
1,455,788. including grants of $1,177,360. ) (Revenue $(Code:) (Expenses $)4b(Code:) (Expenses $4c(Code:) (Expenses $4d

Other program services (Describe in Schedule O.)
including grants of $(Expenses $1,455,788.
Total program service expenses |44eSupport of research designed to advance the understanding and treatmentof Prader-Willi Syndrome.

43200211-07-14PY

3

including grants of $) (Revenue $)including grants of $) (Revenue $

)

CO

2

) (Revenue $)Form 990 (2014)

2

Foundation for Prader-Willi Research,Inc
Part IV Checklist of Required Schedules

Form 990 (2014)31-1763110

Page 3
Yes

4
5
6
7
8
9

10
11
a
b
c
d
e
f
12a
b
13
14a
b

15
16

Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for
public office? If "Yes," complete Schedule C, Part I ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Section 501(c)(3) organizations. Did the organization engage in lobbying activities, or have a section 501(h) election in effectduring the tax year? If "Yes," complete Schedule C, Part II ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, orsimilar amounts as defined in Revenue Procedure 98-19? If "Yes," complete Schedule C, Part III ~~~~~~~~~~~~~~
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right toprovide advice on the distribution or investment of amounts in such funds or accounts? If "Yes," complete Schedule D, Part I
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures? If "Yes," complete Schedule D, Part II~~~~~~~~~~~~~~
Did the organization maintain collections of works of art, historical treasures, or other similar assets? If "Yes," complete
Schedule D, Part III ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report an amount in Part X, line 21, for escrow or custodial account liability; serve as a custodian for
amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services?
If "Yes," complete Schedule D, Part IV ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanentendowments, or quasi-endowments? If "Yes," complete Schedule D, Part V ~~~~~~~~~~~~~~~~~~~~~~~~
If the organization's answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X
as applicable.
Did the organization report an amount for land, buildings, and equipment in Part X, line 10? If "Yes," complete Schedule D,
Part VI ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report an amount for investments - other securities in Part X, line 12 that is 5% or more of its total
assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VII ~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report an amount for investments - program related in Part X, line 13 that is 5% or more of its total
assets reported in Part X, line 16? If "Yes," complete Schedule D, Part VIII ~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported inPart X, line 16? If "Yes," complete Schedule D, Part IX ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report an amount for other liabilities in Part X, line 25? If "Yes," complete Schedule D, Part X ~~~~~~
Did the organization's separate or consolidated financial statements for the tax year include a footnote that addresses
the organization's liability for uncertain tax positions under FIN 48 (ASC 740)? If "Yes," complete Schedule D, Part X ~~~~
Did the organization obtain separate, independent audited financial statements for the tax year? If "Yes," complete
Schedule D, Parts XI and XII ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Was the organization included in consolidated, independent audited financial statements for the tax year?
If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional ~~~~~Is the organization a school described in section 170(b)(1)(A)(ii)? If "Yes," complete Schedule E ~~~~~~~~~~~~~~
Did the organization maintain an office, employees, or agents outside of the United States? ~~~~~~~~~~~~~~~~
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business,investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000
or more? If "Yes," complete Schedule F, Parts I and IV ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any
foreign organization? If "Yes," complete Schedule F, Parts II and IV ~~~~~~~~~~~~~~~~~~~~~~~~~~~~

PY

2
3

Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)?
If "Yes," complete Schedule A ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Is the organization required to complete Schedule B, Schedule of Contributors? ~~~~~~~~~~~~~~~~~~~~~~CO1

Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance toor for foreign individuals? If "Yes," complete Schedule F, Parts III and IV ~~~~~~~~~~~~~~~~~~~~~~~~~~

Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX,
column (A), lines 6 and 11e? If "Yes," complete Schedule G, Part I ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
18 Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines
1c and 8a? If "Yes," complete Schedule G, Part II ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
19 Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a? If "Yes,"
complete Schedule G, Part III ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
20a Did the organization operate one or more hospital facilities? If "Yes," complete Schedule H ~~~~~~~~~~~~~~~~b If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return? ••••••••••

1
2

3

X
X

3

X

4

X

5

X

6

X

7

X

8

X

9

X

10

X

11a

X

11b

X

11c

X

11d
11e

X
X

11f

X

12a

X
X
X
X

12b
13
14a

14b

X

15

X
X

16

17

43200311-07-14

No

17

X

18

X

X
19
X
20a
20b
Form 990 (2014)

Foundation for Prader-Willi Research,Inc
Part IV Checklist of Required Schedules (continued)

Form 990 (2014)31-1763110

Page 4
Yes

23

24a

b
c
d
25a
b

26

27

28
a
b
c
29
30
31
32
33
34
35a
b
36
37
38

Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on
Part IX, column (A), line 2? If "Yes," complete Schedule I, Parts I and III ~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization's current
and former officers, directors, trustees, key employees, and highest compensated employees? If "Yes," complete
Schedule J ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of thelast day of the year, that was issued after December 31, 2002? If "Yes," answer lines 24b through 24d and complete
Schedule K. If "No", go to line 25a ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception? ~~~~~~~~~~~
Did the organization maintain an escrow account other than a refunding escrow at any time during the year to defease
any tax-exempt bonds? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year? ~~~~~~~~~~~
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations. Did the organization engage in an excess benefit
transaction with a disqualified person during the year? If "Yes," complete Schedule L, Part I ~~~~~~~~~~~~~~~~Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, andthat the transaction has not been reported on any of the organization's prior Forms 990 or 990-EZ? If "Yes," complete
Schedule L, Part I ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization report any amount on Part X, line 5, 6, or 22 for receivables from or payables to any current orformer officers, directors, trustees, key employees, highest compensated employees, or disqualified persons? If "Yes,"
complete Schedule L, Part II ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial
contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family memberof any of these persons? If "Yes," complete Schedule L, Part III ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV
instructions for applicable filing thresholds, conditions, and exceptions):
A current or former officer, director, trustee, or key employee? If "Yes," complete Schedule L, Part IV ~~~~~~~~~~~
A family member of a current or former officer, director, trustee, or key employee? If "Yes," complete Schedule L, Part IV ~~An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer,
director, trustee, or direct or indirect owner? If "Yes," complete Schedule L, Part IV~~~~~~~~~~~~~~~~~~~~~
Did the organization receive more than $25,000 in non-cash contributions? If "Yes," complete Schedule M ~~~~~~~~~
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation
contributions? If "Yes," complete Schedule M ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization liquidate, terminate, or dissolve and cease operations?
If "Yes," complete Schedule N, Part I ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets? If "Yes," complete
Schedule N, Part II ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations
sections 301.7701-2 and 301.7701-3? If "Yes," complete Schedule R, Part I ~~~~~~~~~~~~~~~~~~~~~~~~
Was the organization related to any tax-exempt or taxable entity? If "Yes," complete Schedule R, Part II, III, or IV, andPart V, line 1 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization have a controlled entity within the meaning of section 512(b)(13)? ~~~~~~~~~~~~~~~~~~
If "Yes" to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity
within the meaning of section 512(b)(13)? If "Yes," complete Schedule R, Part V, line 2 ~~~~~~~~~~~~~~~~~~~
Section 501(c)(3) organizations. Did the organization make any transfers to an exempt non-charitable related organization?
If "Yes," complete Schedule R, Part V, line 2 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Did the organization conduct more than 5% of its activities through an entity that is not a related organizationand that is treated as a partnership for federal income tax purposes? If "Yes," complete Schedule R, Part VI ~~~~~~~~
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19?
Note. All Form 990 filers are required to complete Schedule O •••••••••••••••••••••••••••••••

43200411-07-14

PY

22

Did the organization report more than $5,000 of grants or other assistance to any domestic organization ordomestic government on Part IX, column (A), line 1? If "Yes," complete Schedule I, Parts I and II ~~~~~~~~~~~~~~

CO

21

4

21

No

X

22

X

23

X

24a
24b

X

24c
24d
25a

X

25b

X

26

X

27

X

28a
28b

X
X

28c
29

X
X

30

X

31

X

32

X

33

X

34
35a

X
X

35b
36

X

37

X

X
38
Form 990 (2014)

Foundation for Prader-Willi Research,Inc
Statements Regarding Other IRS Filings and Tax Compliance

Form 990 (2014)

Part V

31-1763110

Page 5Check if Schedule O contains a response or note to any line in this Part V •••••••••••••••••••••••••••Yes
9
1a Enter the number reported in Box 3 of Form 1096. Enter -0- if not applicable ~~~~~~~~~~~
1a0b Enter the number of Forms W-2G included in line 1a. Enter -0- if not applicable ~~~~~~~~~~
1b
Did
the
organization
complywithbackupwithholding
rules
for
reportablepayments
tovendorsandreportable
gamingc
X(gambling) winnings to prize winners? •••••••••••••••••••••••••••••••••••••••••••
1c

No

CO

PY

2a Enter the number of employees reported on Form W-3, Transmittal of Wage and Tax Statements,
4
filed for the calendar year ending with or within the year covered by this return ~~~~~~~~~~
2aX
b If at least one is reported on line 2a, did the organization file all required federal employment tax returns?~~~~~~~~~~
2be-fileNote. If the sum of lines 1a and 2a is greater than 250, you may be required to(see instructions) ~~~~~~~~~~~
X
3a Did the organization have unrelated business gross income of $1,000 or more during the year? ~~~~~~~~~~~~~~
3a
If
"No,"
to
line
3b,
provideanexplanationin
ScheduleOb If "Yes," has it filed a Form 990-T for this year?
~~~~~~~~~~
3b
4a At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, aXfinancial account in a foreign country (such as a bank account, securities account, or other financial account)?~~~~~~~
4aJ
b If "Yes," enter the name of the foreign country:
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
X
5a Was the organization a party to a prohibited tax shelter transaction at any time during the tax year? ~~~~~~~~~~~~
5aX
b Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?~~~~~~~~~
5bc If "Yes," to line 5a or 5b, did the organization file Form 8886-T? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
5c
6a Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicitX
any contributions that were not tax deductible as charitable contributions? ~~~~~~~~~~~~~~~~~~~~~~~~
6ab If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts
were not tax deductible? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
6b
7 Organizations that may receive deductible contributions under section 170(c).
X
a Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor? 7ab If "Yes," did the organization notify the donor of the value of the goods or services provided? ~~~~~~~~~~~~~~~
7bc Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was requiredX
to file Form 8282? ••••••••••••••••••••••••••••••••••••••••••••••••••••
7c
d If "Yes," indicate the number of Forms 8282 filed during the year ~~~~~~~~~~~~~~~~
7d
X
e Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract? ~~~~~~~
7eX
f Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract? ~~~~~~~~~
7f
g If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?~7g
h If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C? 7h
8 Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained by thesponsoring organization have excess business holdings at any time during the year? ~~~~~~~~~~~~~~~~~~~
8
9 Sponsoring organizations maintaining donor advised funds.
a Did the sponsoring organization make any taxable distributions under section 4966? ~~~~~~~~~~~~~~~~~~~
9ab Did the sponsoring organization make a distribution to a donor, donor advisor, or related person? ~~~~~~~~~~~~~
9b
10 Section 501(c)(7) organizations. Enter:a Initiation fees and capital contributions included on Part VIII, line 12 ~~~~~~~~~~~~~~~ 10ab Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities ~~~~~~ 10b
11 Section 501(c)(12) organizations. Enter:a Gross income from members or shareholders ~~~~~~~~~~~~~~~~~~~~~~~~~~ 11ab Gross income from other sources (Do not net amounts due or paid to other sources against
amounts due or received from them.) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 11b
12a Section 4947(a)(1) non-exempt charitable trusts. Is the organization filing Form 990 in lieu of Form 1041?
12ab If "Yes," enter the amount of tax-exempt interest received or accrued during the year •••••• 12b
13 Section 501(c)(29) qualified nonprofit health insurance issuers.
a Is the organization licensed to issue qualified health plans in more than one state? ~~~~~~~~~~~~~~~~~~~~~ 13aNote. See the instructions for additional information the organization must report on Schedule O.
b Enter the amount of reserves the organization is required to maintain by the states in which theorganization is licensed to issue qualified health plans ~~~~~~~~~~~~~~~~~~~~~~ 13bc Enter the amount of reserves on hand ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 13cX
14a Did the organization receive any payments for indoor tanning services during the tax year? ~~~~~~~~~~~~~~~~ 14aIf"No,"
provideanexplanationin
ScheduleOb If "Yes," has it filed a Form 720 to report these payments?
•••••••••• 14b
Form 990 (2014)
43200511-07-14

5

Foundation for Prader-Willi Research,Inc
31-1763110
Page 6
Part VI Governance, Management, and Disclosure For each "Yes" response to lines 2 through 7b below, and for a "No" response

Form 990 (2014)

to line 8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI•••••••••••••••••••••••••••

X

Yes

No

Section A. Governing Body and Management
1a Enter the number of voting members of the governing body at the end of the tax year ~~~~~~
If there are material differences in voting rights among members of the governing body, or if the governing
body delegated broad authority to an executive committee or similar committee, explain in Schedule O.

1a

14

14
1b
b Enter the number of voting members included in line 1a, above, who are independent ~~~~~~
Did
any
officer,
director,trustee,orkey
employeehaveafamilyrelationshiporabusinessrelationship
with
any
other
2
officer, director, trustee, or key employee? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
2
Did
the
organizationdelegate
controlovermanagement
dutiescustomarily
performed
by
or
under
the
directsupervision
3of officers, directors, or trustees, or key employees to a management company or other person? ~~~~~~~~~~~~~~
3
Did
the
organization
makeanysignificant
changestoitsgoverning
documents
since
the
prior
Form
990
was
filed?
~~~~~
4
4
Did
the
organization
becomeaware
during
the
year
of
a
significant
diversionoftheorganization's
assets?
~~~~~~~~~
5
5
Did
the
organization
have
membersorstockholders?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
6
6
a
Did
the
organization
have
members,
stockholders,or
otherpersons
who
had
the
power
to
elect
or
appoint
one
or7
more members of the governing body? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
7ab Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or
persons other than the governing body? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
7b
Did
the
organization
contemporaneously
documentthemeetings
heldor
writtenactions
undertaken
during
the
year
by
the
following:
88a8bIs there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at theorganization's mailing address? If "Yes," provide the names and addresses in Schedule O •••••••••••••••••
Section B. Policies (This Section B requests information about policies not required by the Internal Revenue Code.)

9PY

a The governing body? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~b Each committee with authority to act on behalf of the governing body? ~~~~~~~~~~~~~~~~~~~~~~~~~~
9CO

10a Did the organization have local chapters, branches, or affiliates? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~b If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates,and branches to ensure their operations are consistent with the organization's exempt purposes? ~~~~~~~~~~~~~
11a Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form?
b Describe in Schedule O the process, if any, used by the organization to review this Form 990.
12a Did the organization have a written conflict of interest policy? If "No," go to line 13 ~~~~~~~~~~~~~~~~~~~~b Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts? ~~~~~~c Did the organization regularly and consistently monitor and enforce compliance with the policy? If "Yes," describe
in Schedule O how this was done ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
13 Did the organization have a written whistleblower policy? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
14 Did the organization have a written document retention and destruction policy? ~~~~~~~~~~~~~~~~~~~~~~
15 Did the process for determining compensation of the following persons include a review and approval by independent
persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a The organization's CEO, Executive Director, or top management official ~~~~~~~~~~~~~~~~~~~~~~~~~~b Other officers or key employees of the organization ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with ataxable entity during the year? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~b If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participationin joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization's
exempt status with respect to such arrangements? ••••••••••••••••••••••••••••••••••••

Section C. Disclosure
17
18

19
20

X
X
X
X
X
X
X
X
X
X
Yes

10a
10b
11a

X

12a
12b

X
X

12c
13
14

X
X
X

No

X

15a
15b

X
X

16a

X

16b

List the states with which a copy of this Form 990 is required to be filed JCA
Section 6104 requires an organization to make its Forms 1023 (or 1024 if applicable), 990, and 990-T (Section 501(c)(3)s only) available
for public inspection. Indicate how you made these available. Check all that apply.
X Another's website
X Upon request
Own website
Other (explain in Schedule O)
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial
statements available to the public during the tax year.
State the name, address, and telephone number of the person who possesses the organization's books and records: |Adam Jones - (323)782-9391
340 S Lemon Ave #3620, Walnut, CA

432006 11-07-14

91789
6

Form 990 (2014)

Foundation for Prader-Willi Research,Inc
31-1763110
Part VII Compensation of Officers, Directors, Trustees, Key Employees, Highest CompensatedEmployees, and Independent Contractors

Form 990 (2014)

Page 7Check if Schedule O contains a response or note to any line in this Part VII •••••••••••••••••••••••••••
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization's tax year.
¥ List all of the organization's current officers, directors, trustees (whether individuals or organizations), regardless of amount of compensation.
Enter -0- in columns (D), (E), and (F) if no compensation was paid.
¥ List all of the organization's current key employees, if any. See instructions for definition of "key employee."¥ List the organization's five current highest compensated employees (other than an officer, director, trustee, or key employee) who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the organization and any related organizations.
¥ List all of the organization's former officers, key employees, and highest compensated employees who received more than $100,000 ofreportable compensation from the organization and any related organizations.
¥ List all of the organization's former directors or trustees that received, in the capacity as a former director or trustee of the organization,
more than $10,000 of reportable compensation from the organization and any related organizations.
List persons in the following order: individual trustees or directors; institutional trustees; officers; key employees; highest compensated employees;
and former such persons.

432007 11-07-14

5.00

X

Highest compensatedemployee

Key employee

FormerOfficer

PY

5.00

Institutional trustee

5.00

5.00
5.00
5.00
5.00
5.00
5.00
5.00
5.00
5.00

20.00
5.00

(F)
Estimatedamount ofothercompensationfrom theorganization
and relatedorganizations

0.

0.

0.

0.

0.

0.

X

0.

0.

0.

X

0.

0.

0.

X

0.

0.

0.

X

0.

0.

0.

X

0.

0.

0.

X

CO

(1) Alice Viroslav
Board Member(2) Daniel Chorney
Board Member(3) Jeannine Kowal
Board Member(4) Keegan Johnson
Board Member(5) Lauren Schwartz RothBoard Member(6) Rachel Fernandez-Hansen
Board Member(7) Tanya Johnson
Board Member(8) Jessica Howard
President(9) Shawn Johnson
Vice President(10) Mark Greenberg
Vice President - Finance(11) Tom Compere
Treasurer(12) Jeff Porter
Secretary(13) Susan Hedstrom
Executive Director(14) Theresa Strong
Director of Research Programs

Individual trustee or director

Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
(B)
(C)
(D)
(E)
Position
Name and Title
Average
Reportable
Reportable(do not check more than one
hours per box, unless person is both ancompensationcompensation
officer and a director/trustee)
week
from
from related(list anytheorganizations
hours fororganization(W-2/1099-MISC)
related(W-2/1099-MISC)
organizations
below
line)

X

X

0.

0.

0.

X

X

0.

0.

0.

X

X

0.

0.

0.

X

X

0.

0.

0.

X

X

0.

0.

0.

X

X

75,000.

0.

0.

X

X

0.

0.

0.

7

Form 990 (2014)

Former

PY

Highest compensatedemployee

Key employee

Officer

75,000.
0.
Sub-total ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ |0.
0.
Total from continuation sheets to Part VII, Section A ~~~~~~~~~~ |75,000.
0.
Total (add lines 1b and 1c) •••••••••••••••••••••••• |Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportablecompensation from the organization |

CO

1b
c
d
2

Institutional trustee

Individual trustee or director

Foundation for Prader-Willi Research,Inc
31-1763110
Page 8Form 990 (2014)
Part VII Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued)
(B)
(C)
(A)
(D)
(E)
(F)
Position
Average
Name and title
Reportable
Reportable
Estimated(do not check more than one
hours per box, unless person is both ancompensationcompensation
amount ofofficer and a director/trustee)
week
from
from related
other(list anytheorganizations
compensation
hours fororganization(W-2/1099-MISC)
from therelated(W-2/1099-MISC)
organization
organizations
and related
below
organizations
line)

3

Did the organization list any former officer, director, or trustee, key employee, or highest compensated employee online 1a? If "Yes," complete Schedule J for such individual ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
4 For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization
and related organizations greater than $150,000? If "Yes," complete Schedule J for such individual~~~~~~~~~~~~~
5 Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services
rendered to the organization? If "Yes," complete Schedule J for such person ••••••••••••••••••••••••
Section B. Independent Contractors

0.
0.
0.
0
Yes
3

X

4

X

5

X

1

Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation fromthe organization. Report compensation for the calendar year ending with or within the organization's tax year.
(A)
(B)
(C)
Name and business address
Description of services
Compensation
NONE

2

Total number of independent contractors (including but not limited to those listed above) who received more than0$100,000 of compensation from the organization |43200811-07-14

No

Form 990 (2014)

8

Foundation for Prader-Willi Research,Inc
Statement of Revenue

Form 990 (2014)

Part VIII

31-1763110

Page 9

1 a
b
c
d
e
f

Federated campaigns ~~~~~~
Membership dues ~~~~~~~~
Fundraising events ~~~~~~~~
Related organizations ~~~~~~
Government grants (contributions)
All other contributions, gifts, grants, andsimilar amounts not included above ~~

1a
1b
1c
1d
1e
1f 2,785,963.

gh Total. Add lines 1a-1f ••••••••••••••••• | 2,785,963.
Business Code
2 a
b
c
d
e
f All other program service revenue ~~~~~
g Total. Add lines 2a-2f ••••••••••••••••• |3
Investment income (including dividends, interest, and5,657.
other similar amounts)~~~~~~~~~~~~~~~~~ |4
Income from investment of tax-exempt bond proceeds|
5Royalties ••••••••••••••••••••••• |(i) Real(ii) Personal
6 a Gross rents ~~~~~~~b Less: rental expenses ~~~c Rental income or (loss) ~~d Net rental income or (loss) •••••••••••••• |(i) Securities(ii) Other
7 a Gross amount from sales ofassets other than inventoryb Less: cost or other basis
and sales expenses ~~~c Gain or (loss) ~~~~~~~d Net gain or (loss) ••••••••••••••••••• |8 a Gross income from fundraising events (notincluding $ofcontributions reported on line 1c). See
Part IV, line 18 ~~~~~~~~~~~~~ a 371,718.
b Less: direct expenses~~~~~~~~~~ b 130,523.
241,195.
c Net income or (loss) from fundraising events ••••• |9 a Gross income from gaming activities. See
Part IV, line 19 ~~~~~~~~~~~~~ ab Less: direct expenses ~~~~~~~~~ bc Net income or (loss) from gaming activities •••••• |10 a Gross sales of inventory, less returns
and allowances ~~~~~~~~~~~~~ ab Less: cost of goods sold ~~~~~~~~ bc Net income or (loss) from sales of inventory •••••• |Miscellaneous Revenue
Business Code11 abcd All other revenue ~~~~~~~~~~~~~e Total. Add lines 11a-11d ~~~~~~~~~~~~~~~ |Total revenue. See instructions. ••••••••••••• | 3,032,815.
12
Noncash contributions included in lines 1a-1f: $PYProgram Service
Revenue

Contributions, Gifts, Grants
and Other Similar Amounts

Check if Schedule O contains a response or note to any line in this Part VIII •••••••••••••••••••••••••
(A)
(B)
(C)
(D)
Revenue excluded
Related or
Unrelated
Total revenue
from
tax
under
exempt function
business
sections
revenuerevenue
512 - 514

Other Revenue

CO

5,657.

43200911-07-149

241,195.

0.

0. 246,852.
Form 990 (2014)

Foundation for Prader-Willi Research,Inc
Part IX Statement of Functional Expenses

Form 990 (2014)31-1763110

Page 10

Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).
Check if Schedule O contains a response or note to any line in this Part IX ••••••••••••••••••••••••••
(A)
(B)
(C)
(D)
Total expenses
Program service
Management andFundraisingexpenses
general expenses
expenses
Grants and other assistance to domestic organizations
989,239.
989,239.
and domestic governments. See Part IV, line 21 ~Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII.
1
2
3

4
5
6

Grants and other assistance to domestic
individuals. See Part IV, line 22 ~~~~~~~
Grants and other assistance to foreignorganizations, foreign governments, and foreign
individuals. See Part IV, lines 15 and 16 ~~~Benefits paid to or for members ~~~~~~~
Compensation of current officers, directors,
trustees, and key employees ~~~~~~~~
Compensation not included above, to disqualified
persons (as defined under section 4958(f)(1)) andpersons described in section 4958(c)(3)(B) ~~~188,121.

188,121.

204,490.

127,375.

39,711.

Other salaries and wages ~~~~~~~~~~
Pension plan accruals and contributions (includesection 401(k) and 403(b) employer contributions)

9
10
11
a
b
c
d
e
f
g

Other employee benefits ~~~~~~~~~~
Payroll taxes ~~~~~~~~~~~~~~~~
Fees for services (non-employees):
Management ~~~~~~~~~~~~~~~~
Legal ~~~~~~~~~~~~~~~~~~~~
Accounting ~~~~~~~~~~~~~~~~~
Lobbying ~~~~~~~~~~~~~~~~~~
Professional fundraising services. See Part IV, line 17

12
13
14
15
16
17
18

Advertising and promotion ~~~~~~~~~
Office expenses~~~~~~~~~~~~~~~
Information technology ~~~~~~~~~~~
Royalties ~~~~~~~~~~~~~~~~~~

59,334.

37,059.

22,275.

Occupancy ~~~~~~~~~~~~~~~~~
Travel ~~~~~~~~~~~~~~~~~~~

17,158.

11,499.

5,659.

66,381.

66,381.

17,040.
6,489.

10,736.
682.

19
20
21
22
23
24

PY

7
8

11,973.

41,931.

41,931.

CO

11,973.

Investment management fees ~~~~~~~~
Other. (If line 11g amount exceeds 10% of line 25,column (A) amount, list line 11g expenses on Sch O.)

Payments of travel or entertainment expenses
for any federal, state, or local public officials
Conferences, conventions, and meetings ~~Interest ~~~~~~~~~~~~~~~~~~
Payments to affiliates ~~~~~~~~~~~~
Depreciation, depletion, and amortization ~~Insurance ~~~~~~~~~~~~~~~~~
Other expenses. Itemize expenses not covered
above. (List miscellaneous expenses in line 24e. If line
24e amount exceeds 10% of line 25, column (A)amount, list line 24e expenses on Schedule O.) ~~a Bank feesb Registry costs
c Postage and printing
d Taxes and licenses
e All other expenses
25 Total functional expenses. Add lines 1 through 24e
26 Joint costs. Complete this line only if the organization
reported in column (B) joint costs from a combined
educational campaign and fundraising solicitation.
Check here |432010 11-07-14

73,862.

37,936.
22,920.
22,876.
5,870.
11,556.
1,777,176.

37,404.

73,862.

22,920.
1,776.
1,455,788.

3,152.
5,606.

3,152.
201.

37,936.
3,367.
5,870.
9,780.
187,260.

19,509.
134,128.

if following SOP 98-2 (ASC 958-720)

10

Form 990 (2014)

Form 990 (2014)

Part X

Foundation for Prader-Willi Research,Inc

31-1763110

Balance Sheet

Page 11Check if Schedule O contains a response or note to any line in this Part X •••••••••••••••••••••••••••••(A)(B)
Beginning of year
End of year
Cash - non-interest-bearing ~~~~~~~~~~~~~~~~~~~~~~~~~
Savings and temporary cash investments ~~~~~~~~~~~~~~~~~~
Pledges and grants receivable, net ~~~~~~~~~~~~~~~~~~~~~
Accounts receivable, net ~~~~~~~~~~~~~~~~~~~~~~~~~~
Loans and other receivables from current and former officers, directors,
trustees, key employees, and highest compensated employees. Complete
Part II of Schedule L ~~~~~~~~~~~~~~~~~~~~~~~~~~~~
6 Loans and other receivables from other disqualified persons (as defined under
section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing
employers and sponsoring organizations of section 501(c)(9) voluntary
employees' beneficiary organizations (see instr). Complete Part II of Sch L ~~7 Notes and loans receivable, net ~~~~~~~~~~~~~~~~~~~~~~~
8 Inventories for sale or use ~~~~~~~~~~~~~~~~~~~~~~~~~~
9 Prepaid expenses and deferred charges ~~~~~~~~~~~~~~~~~~
10 a Land, buildings, and equipment: cost or other51,120.
basis. Complete Part VI of Schedule D ~~~ 10a35,500.
b Less: accumulated depreciation ~~~~~~ 10b
11 Investments - publicly traded securities ~~~~~~~~~~~~~~~~~~~
12 Investments - other securities. See Part IV, line 11 ~~~~~~~~~~~~~~
13 Investments - program-related. See Part IV, line 11 ~~~~~~~~~~~~~
14 Intangible assets ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
15 Other assets. See Part IV, line 11 ~~~~~~~~~~~~~~~~~~~~~~
16 Total assets. Add lines 1 through 15 (must equal line 34) ••••••••••
17 Accounts payable and accrued expenses ~~~~~~~~~~~~~~~~~~
18 Grants payable ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
19 Deferred revenue ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
20 Tax-exempt bond liabilities ~~~~~~~~~~~~~~~~~~~~~~~~~
21 Escrow or custodial account liability. Complete Part IV of Schedule D ~~~~
22 Loans and other payables to current and former officers, directors, trustees,
key employees, highest compensated employees, and disqualified persons.
Complete Part II of Schedule L ~~~~~~~~~~~~~~~~~~~~~~~

2,223,507.
77,666.

Net Assets or Fund Balances

26

27
28
29

30
31
32
33
34

43201111-07-14

COLiabilities

23
24
25

Secured mortgages and notes payable to unrelated third parties ~~~~~~
Unsecured notes and loans payable to unrelated third parties ~~~~~~~~
Other liabilities (including federal income tax, payables to related third
parties, and other liabilities not included on lines 17-24). Complete Part X of
Schedule D ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Total liabilities. Add lines 17 through 25 ••••••••••••••••••
X andOrganizations that follow SFAS 117 (ASC 958), check here |complete lines 27 through 29, and lines 33 and 34.
Unrestricted net assets ~~~~~~~~~~~~~~~~~~~~~~~~~~~
Temporarily restricted net assets ~~~~~~~~~~~~~~~~~~~~~~
Permanently restricted net assets ~~~~~~~~~~~~~~~~~~~~~
Organizations that do not follow SFAS 117 (ASC 958), check here |and complete lines 30 through 34.
Capital stock or trust principal, or current funds ~~~~~~~~~~~~~~~
Paid-in or capital surplus, or land, building, or equipment fund ~~~~~~~~
Retained earnings, endowment, accumulated income, or other funds ~~~~
Total net assets or fund balances ~~~~~~~~~~~~~~~~~~~~~~
Total liabilities and net assets/fund balances ••••••••••••••••

11

1
2
3
4

3,742,865.
63,108.

5

6
7
8
9

2,841.

32,660. 10c

15,620.

3,102.

PY

Assets123
4
52,336,935.
2,208.
648,348.

11
12
13
14
15
16
17
18
19
20
21

3,824,434.
58,301.
824,115.

22
23
24

25

650,556. 26

882,416.

1,394,868. 27
291,511. 28

2,942,018.
0.

29

1,686,379.
2,336,935.

30
31
32
33
34

2,942,018.
3,824,434.
Form 990 (2014)

Foundation for Prader-Willi Research,Inc
Part XI Reconciliation of Net Assets

Form 990 (2014)

Check if Schedule O contains a response or note to any line in this Part XI
1
2
3
4
5
6
7
8
9
10

31-1763110

Page 12•••••••••••••••••••••••••••

Total revenue (must equal Part VIII, column (A), line 12) ~~~~~~~~~~~~~~~~~~~~~~~~~~
Total expenses (must equal Part IX, column (A), line 25) ~~~~~~~~~~~~~~~~~~~~~~~~~~
Revenue less expenses. Subtract line 2 from line 1 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~Net assets or fund balances at beginning of year (must equal Part X, line 33, column (A)) ~~~~~~~~~~Net unrealized gains (losses) on investments ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Donated services and use of facilities ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Investment expenses ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Prior period adjustments ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Other changes in net assets or fund balances (explain in Schedule O) ~~~~~~~~~~~~~~~~~~~Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 33,
column (B)) •••••••••••••••••••••••••••••••••••••••••••••••Part XII Financial Statements and Reporting

1
2
3
4
5
6
7
8
9
10

3,032,815.
1,777,176.
1,255,639.
1,686,379.

0.
2,942,018.

Check if Schedule O contains a response or note to any line in this Part XII •••••••••••••••••••••••••••
Yes

b

c

3a
b

43201211-07-14

PY

2a

X Accrual
Accounting method used to prepare the Form 990:
Cash
Other
If the organization changed its method of accounting from a prior year or checked "Other," explain in Schedule O.
Were the organization's financial statements compiled or reviewed by an independent accountant? ~~~~~~~~~~~~
If "Yes," check a box below to indicate whether the financial statements for the year were compiled or reviewed on a
separate basis, consolidated basis, or both:
Separate basis
Consolidated basis
Both consolidated and separate basis
Were the organization's financial statements audited by an independent accountant? ~~~~~~~~~~~~~~~~~~~
If "Yes," check a box below to indicate whether the financial statements for the year were audited on a separate basis,consolidated basis, or both:
X Separate basis
Consolidated basis
Both consolidated and separate basis
If "Yes" to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight of the audit,
review, or compilation of its financial statements and selection of an independent accountant?~~~~~~~~~~~~~~~
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit
Act and OMB Circular A-133? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
If "Yes," did the organization undergo the required audit or audits? If the organization did not undergo the required audit
or audits, explain why in Schedule O and describe any steps taken to undergo such audits ••••••••••••••••

CO

1

12

X

2a

2b

X

2c

X

3a

X
No

X

3b
Form 990 (2014)

SCHEDULE A(Form 990 or 990-EZ)

OMB No. 1545-0047

Public Charity Status and Public Support

2014

Complete if the organization is a section 501(c)(3) organization or a section
4947(a)(1) nonexempt charitable trust.
Department of the Treasury
Open to Public| Attach to Form 990 or Form 990-EZ.
Internal Revenue Service
Inspection| Information about Schedule A (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
Name of the organization
Employer identification number

Part IFoundation for Prader-Willi Research,Inc
Reason for Public Charity Status (All organizations must complete this part.) See instructions.

31-1763110

The organization is not a private foundation because it is: (For lines 1 through 11, check only one box.)
1
A church, convention of churches, or association of churches described in section 170(b)(1)(A)(i).
2
A school described in section 170(b)(1)(A)(ii). (Attach Schedule E.)
3
A hospital or a cooperative hospital service organization described in section 170(b)(1)(A)(iii).
A medical research organization operated in conjunction with a hospital described in section 170(b)(1)(A)(iii). Enter the hospital's name,4city, and state:
An organization operated for the benefit of a college or university owned or operated by a governmental unit described in
5section 170(b)(1)(A)(iv). (Complete Part II.)

10
11

a

b

c
d

e
f
g

A federal, state, or local government or governmental unit described in section 170(b)(1)(A)(v).
An organization that normally receives a substantial part of its support from a governmental unit or from the general public described in
section 170(b)(1)(A)(vi). (Complete Part II.)
A community trust described in section 170(b)(1)(A)(vi). (Complete Part II.)

An organization that normally receives: (1) more than 33 1/3% of its support from contributions, membership fees, and gross receipts from
activities related to its exempt functions - subject to certain exceptions, and (2) no more than 33 1/3% of its support from gross investment
income and unrelated business taxable income (less section 511 tax) from businesses acquired by the organization after June 30, 1975.
See section 509(a)(2). (Complete Part III.)An organization organized and operated exclusively to test for public safety. See section 509(a)(4).
An organization organized and operated exclusively for the benefit of, to perform the functions of, or to carry out the purposes of one ormore publicly supported organizations described in section 509(a)(1) or section 509(a)(2). See section 509(a)(3). Check the box inlines 11a through 11d that describes the type of supporting organization and complete lines 11e, 11f, and 11g.
Type I. A supporting organization operated, supervised, or controlled by its supported organization(s), typically by giving
the supported organization(s) the power to regularly appoint or elect a majority of the directors or trustees of the supportingorganization. You must complete Part IV, Sections A and B.
Type II. A supporting organization supervised or controlled in connection with its supported organization(s), by having
control or management of the supporting organization vested in the same persons that control or manage the supported
organization(s). You must complete Part IV, Sections A and C.
Type III functionally integrated. A supporting organization operated in connection with, and functionally integrated with,
its supported organization(s) (see instructions). You must complete Part IV, Sections A, D, and E.
Type III non-functionally integrated. A supporting organization operated in connection with its supported organization(s)that is not functionally integrated. The organization generally must satisfy a distribution requirement and an attentivenessrequirement (see instructions). You must complete Part IV, Sections A and D, and Part V.
Check this box if the organization received a written determination from the IRS that it is a Type I, Type II, Type III
functionally integrated, or Type III non-functionally integrated supporting organization.
Enter the number of supported organizations ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Provide the following information about the supported organization(s).

PY

8
9

X

CO

6
7

(i) Name of supported
organization(ii) EIN(iii) Type of organization (iv) Is the organization
listed in your(described on lines 1-9
governing document?
above or IRC section
Yes
No(see instructions))

Total
LHA For Paperwork Reduction Act Notice, see the Instructions forForm 990 or 990-EZ. 432021 09-17-14(v) Amount of monetary
support (seeInstructions)(vi) Amount ofother support (seeInstructions)

Schedule A (Form 990 or 990-EZ) 201413

Schedule A (Form 990 or 990-EZ) 2014 Foundation

Part IIfor Prader-Willi Research,Inc31-1763110
Support Schedule for Organizations Described in Sections 170(b)(1)(A)(iv) and 170(b)(1)(A)(vi)

Page 2(Complete only if you checked the box on line 5, 7, or 8 of Part I or if the organization failed to qualify under Part III. If the organization
fails to qualify under the tests listed below, please complete Part III.)

Section A. Public Support
Calendar year (or fiscal year beginning in) |1 Gifts, grants, contributions, andmembership fees received. (Do notinclude any "unusual grants.") ~~(a) 2010(b) 2011(c) 2012(d) 2013(e) 2014(f) Total

509,961. 926,314.

1,308,900.

1,524,209.

3,157,681.

7,427,065.

509,961. 926,314.

1,308,900.

1,524,209.

3,157,681.

7,427,065.

3 The value of services or facilities
furnished by a governmental unit tothe organization without charge ~4 Total. Add lines 1 through 3 ~~~5 The portion of total contributions
by each person (other than agovernmental unit or publicly
supported organization) included
on line 1 that exceeds 2% of theamount shown on line 11,column (f) ~~~~~~~~~~~~
6 Public support. Subtract line 5 from line 4.

Section B. Total Support

Calendar year (or fiscal year beginning in) |PY

2 Tax revenues levied for the organization's benefit and either paid toor expended on its behalf ~~~~

7,427,065.

CO(a) 2010(b) 2011(c) 2012(d) 2013(e) 2014(f) Total
509,961. 926,314.
1,308,900.
1,524,209.
3,157,681.
7,427,065.
7 Amounts from line 4 ~~~~~~~
8 Gross income from interest,
dividends, payments received on
securities loans, rents, royalties
2,752.
3,197.
2,951.
3,771.
5,657. 18,328.
and income from similar sources ~9 Net income from unrelated businessactivities, whether or not thebusiness is regularly carried on ~10 Other income. Do not include gainor loss from the sale of capital
7,626. -1,623.
6,003.
assets (Explain in Part VI.) ~~~~
7,451,396.
Add
lines
7
through
1011 Total support.
625,334.
12 Gross receipts from related activities, etc. (see instructions) ~~~~~~~~~~~~~~~~~~~~~~~ 12
13 First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3)organization, check this box and stop here ••••••••••••••••••••••••••••••••••••••••••••• |Section C. Computation of Public Support Percentage

99.67 %
14 Public support percentage for 2014 (line 6, column (f) divided by line 11, column (f)) ~~~~~~~~~~~~ 14
99.36 %
15
15 Public support percentage from 2013 Schedule A, Part II, line 14 ~~~~~~~~~~~~~~~~~~~~~
16a 33 1/3% support test - 2014. If the organization did not check the box on line 13, and line 14 is 33 1/3% or more, check this box andstop here. The organization qualifies as a publicly supported organization ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ | X
b 33 1/3% support test - 2013. If the organization did not check a box on line 13 or 16a, and line 15 is 33 1/3% or more, check this box
and stop here. The organization qualifies as a publicly supported organization ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ |17a 10% -facts-and-circumstances test - 2014. If the organization did not check a box on line 13, 16a, or 16b, and line 14 is 10% or more,
and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how the organization
meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ~~~~~~~~~~~~~~~ |b 10% -facts-and-circumstances test - 2013. If the organization did not check a box on line 13, 16a, 16b, or 17a, and line 15 is 10% or
more, and if the organization meets the "facts-and-circumstances" test, check this box and stop here. Explain in Part VI how theorganization meets the "facts-and-circumstances" test. The organization qualifies as a publicly supported organization ~~~~~~~~ |18 Private foundation. If the organization did not check a box on line 13, 16a, 16b, 17a, or 17b, check this box and see instructions ••• |Schedule A (Form 990 or 990-EZ) 2014

432022
09-17-14

14

Schedule A (Form 990 or 990-EZ) 2014

Page 3

Part III Support Schedule for Organizations Described in Section 509(a)(2)(Complete only if you checked the box on line 9 of Part I or if the organization failed to qualify under Part II. If the organization fails toqualify under the tests listed below, please complete Part II.)

Section A. Public Support
Calendar year (or fiscal year beginning in) |(a) 2010(b) 2011(c) 2012(d) 2013(e) 2014(f) Total(e) 2014(f) Total

1 Gifts, grants, contributions, andmembership fees received. (Do notinclude any "unusual grants.") ~~2 Gross receipts from admissions,merchandise sold or services performed, or facilities furnished inany activity that is related to theorganization's tax-exempt purpose
3 Gross receipts from activities thatare not an unrelated trade or business under section 513 ~~~~~
4 Tax revenues levied for the organization's benefit and either paid toor expended on its behalf ~~~~
5 The value of services or facilities
furnished by a governmental unit tothe organization without charge ~PY

6 Total. Add lines 1 through 5 ~~~7 a Amounts included on lines 1, 2, and3 received from disqualified personsb Amounts included on lines 2 and 3 received
from other than disqualified persons thatexceed the greater of $5,000 or 1% of theamount on line 13 for the year ~~~~~~

8 Public support (Subtract line 7c from line 6.)

Section B. Total Support

Calendar year (or fiscal year beginning in) |9 Amounts from line 6 ~~~~~~~
10a Gross income from interest,
dividends, payments received on
securities loans, rents, royalties
and income from similar sources ~b Unrelated business taxable income(less section 511 taxes) from businesses
acquired after June 30, 1975 ~~~~COc Add lines 7a and 7b ~~~~~~~(a) 2010(b) 2011(c) 2012(d) 2013

c Add lines 10a and 10b ~~~~~~
11 Net income from unrelated businessactivities not included in line 10b,whether or not the business isregularly carried on ~~~~~~~
12 Other income. Do not include gainor loss from the sale of capital
assets (Explain in Part VI.) ~~~~
13 Total support. (Add lines 9, 10c, 11, and 12.)14 First five years. If the Form 990 is for the organization's first, second, third, fourth, or fifth tax year as a section 501(c)(3) organization,
check this box and stop here •••••••••••••••••••••••••••••••••••••••••••••••••••• |Section C. Computation of Public Support Percentage

15 Public support percentage for 2014 (line 8, column (f) divided by line 13, column (f)) ~~~~~~~~~~~~
16 Public support percentage from 2013 Schedule A, Part III, line 15 ••••••••••••••••••••

Section D. Computation of Investment Income Percentage

15
16

%
%

17 Investment income percentage for 2014 (line 10c, column (f) divided by line 13, column (f)) ~~~~~~~~ 17%
18 Investment income percentage from 2013 Schedule A, Part III, line 17 ~~~~~~~~~~~~~~~~~~ 18%
19 a 33 1/3% support tests - 2014. If the organization did not check the box on line 14, and line 15 is more than 33 1/3%, and line 17 is not
more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization ~~~~~~~~~~ |b 33 1/3% support tests - 2013. If the organization did not check a box on line 14 or line 19a, and line 16 is more than 33 1/3%, andline 18 is not more than 33 1/3%, check this box and stop here. The organization qualifies as a publicly supported organization~~~~ |20 Private foundation. If the organization did not check a box on line 14, 19a, or 19b, check this box and see instructions •••••••• |432023 09-17-14
Schedule A (Form 990 or 990-EZ) 201415

Schedule A (Form 990 or 990-EZ) 2014 Foundation

Part IV

for Prader-Willi Research,Inc31-1763110

Supporting Organizations

Page 4(Complete only if you checked a box on line 11 of Part I. If you checked 11a of Part I, complete Sections A
and B. If you checked 11b of Part I, complete Sections A and C. If you checked 11c of Part I, complete
Sections A, D, and E. If you checked 11d of Part I, complete Sections A and D, and complete Part V.)

Section A. All Supporting Organizations
Yes
1

Are all of the organization's supported organizations listed by name in the organization's governing
documents? If "No" describe in Part VI how the supported organizations are designated. If designated byclass or purpose, describe the designation. If historic and continuing relationship, explain.

No1

Did the organization have any supported organization that does not have an IRS determination of statusunder section 509(a)(1) or (2)? If "Yes," explain in Part VI how the organization determined that the supported
organization was described in section 509(a)(1) or (2).
3a Did the organization have a supported organization described in section 501(c)(4), (5), or (6)? If "Yes," answer(b) and (c) below.

3ab Did the organization confirm that each supported organization qualified under section 501(c)(4), (5), or (6) andsatisfied the public support tests under section 509(a)(2)? If "Yes," describe in Part VI when and how theorganization made the determination.

3b

2

c Did the organization ensure that all support to such organizations was used exclusively for section 170(c)(2)(B) purposes? If "Yes," explain in Part VI what controls the organization put in place to ensure such use.
4a Was any supported organization not organized in the United States ("foreign supported organization")? If"Yes" and if you checked 11a or 11b in Part I, answer (b) and (c) below.

PY

b Did the organization have ultimate control and discretion in deciding whether to make grants to the foreign
supported organization? If "Yes," describe in Part VI how the organization had such control and discretion
despite being controlled or supervised by or in connection with its supported organizations.

COc Did the organization support any foreign supported organization that does not have an IRS determination
under sections 501(c)(3) and 509(a)(1) or (2)? If "Yes," explain in Part VI what controls the organization used
to ensure that all support to the foreign supported organization was used exclusively for section 170(c)(2)(B)
purposes.
5a Did the organization add, substitute, or remove any supported organizations during the tax year? If "Yes,"
answer (b) and (c) below (if applicable). Also, provide detail in Part VI, including (i) the names and EIN
numbers of the supported organizations added, substituted, or removed, (ii) the reasons for each such action,(iii) the authority under the organization's organizing document authorizing such action, and (iv) how the action
was accomplished (such as by amendment to the organizing document).
b Type I or Type II only. Was any added or substituted supported organization part of a class alreadydesignated in the organization's organizing document?
c Substitutions only. Was the substitution the result of an event beyond the organization's control?
6 Did the organization provide support (whether in the form of grants or the provision of services or facilities) toanyone other than (a) its supported organizations; (b) individuals that are part of the charitable classbenefited by one or more of its supported organizations; or (c) other supporting organizations that also
support or benefit one or more of the filing organization's supported organizations? If "Yes," provide detail in
7

8Part VI.
Did the organization provide a grant, loan, compensation, or other similar payment to a substantial
contributor (defined in IRC 4958(c)(3)(C)), a family member of a substantial contributor, or a 35-percent
controlled entity with regard to a substantial contributor? If "Yes," complete Part I of Schedule L (Form 990).
Did the organization make a loan to a disqualified person (as defined in section 4958) not described in line 7?
If "Yes," complete Part I of Schedule L (Form 990).

9a Was the organization controlled directly or indirectly at any time during the tax year by one or moredisqualified persons as defined in section 4946 (other than foundation managers and organizations describedin section 509(a)(1) or (2))? If "Yes," provide detail in Part VI.
b Did one or more disqualified persons (as defined in line 9(a)) hold a controlling interest in any entity in which
the supporting organization had an interest? If "Yes," provide detail in Part VI.
c Did a disqualified person (as defined in line 9(a)) have an ownership interest in, or derive any personal benefit
from, assets in which the supporting organization also had an interest? If "Yes," provide detail in Part VI.
10a Was the organization subject to the excess business holdings rules of IRC 4943 because of IRC 4943(f)(regarding certain Type II supporting organizations, and all Type III non-functionally integrated supportingorganizations)? If "Yes," answer (b) below.
b Did the organization have any excess business holdings in the tax year? (Use Schedule C, Form 4720, to
determine whether the organization had excess business holdings.)
432024 09-17-14

16

2

3c
4a

4b

4c

5a
5b
5c

6

7
8

9a
9b
9c

10a

10b
Schedule A (Form 990 or 990-EZ) 2014

Schedule A (Form 990 or 990-EZ) 2014 Foundation

Part IV

for Prader-Willi Research,Inc31-1763110

Supporting Organizations (continued)

11 Has the organization accepted a gift or contribution from any of the following persons?
a A person who directly or indirectly controls, either alone or together with persons described in (b) and (c)below, the governing body of a supported organization?
b A family member of a person described in (a) above?
c A 35% controlled entity of a person described in (a) or (b) above? If "Yes" to a, b, or c, provide detail in Part VI.

Section B. Type I Supporting Organizations

Did the directors, trustees, or membership of one or more supported organizations have the power toregularly appoint or elect at least a majority of the organization's directors or trustees at all times during thetax year? If "No," describe in Part VI how the supported organization(s) effectively operated, supervised, or
controlled the organization's activities. If the organization had more than one supported organization,
describe how the powers to appoint and/or remove directors or trustees were allocated among the supported
organizations and what conditions or restrictions, if any, applied to such powers during the tax year.

1

2

Did the organization operate for the benefit of any supported organization other than the supported
organization(s) that operated, supervised, or controlled the supporting organization? If "Yes," explain inPart VI how providing such benefit carried out the purposes of the supported organization(s) that operated,supervised, or controlled the supporting organization.

2

Were a majority of the organization's directors or trustees during the tax year also a majority of the directors
or trustees of each of the organization's supported organization(s)? If "No," describe in Part VI how control
or management of the supporting organization was vested in the same persons that controlled or managed
the supported organization(s).

Section D. Type III Supporting Organizations

2

3

Did the organization provide to each of its supported organizations, by the last day of the fifth month of theorganization's tax year, (1) a written notice describing the type and amount of support provided during the prior tax
year, (2) a copy of the Form 990 that was most recently filed as of the date of notification, and (3) copies of theorganization's governing documents in effect on the date of notification, to the extent not previously provided?
Were any of the organization's officers, directors, or trustees either (i) appointed or elected by the supported
organization(s) or (ii) serving on the governing body of a supported organization? If "No," explain in Part VI how
the organization maintained a close and continuous working relationship with the supported organization(s).

CO

1

PY

1

By reason of the relationship described in (2), did the organization's supported organizations have asignificant voice in the organization's investment policies and in directing the use of the organization's
income or assets at all times during the tax year? If "Yes," describe in Part VI the role the organization's
supported organizations played in this regard.

Section E. Type III Functionally-Integrated Supporting Organizations

Yes

No

Yes

No

Yes

No

Yes

No

11a
11b
11c

1

Section C. Type II Supporting Organizations

Page 51

1

2

3

1 Check the box next to the method that the organization used to satisfy the Integral Part Test during the year(see instructions):a
The organization satisfied the Activities Test. Complete line 2 below.
b
The organization is the parent of each of its supported organizations. Complete line 3 below.
c
The organization supported a governmental entity. Describe in Part VI how you supported a government entity (see instructions).
2 Activities Test. Answer (a) and (b) below.
Yes
a Did substantially all of the organization's activities during the tax year directly further the exempt purposes ofthe supported organization(s) to which the organization was responsive? If "Yes," then in Part VI identify
how these activities directly furthered their exempt purposes,
those supported organizations and explain
how the organization was responsive to those supported organizations, and how the organization determinedthat these activities constituted substantially all of its activities.
2ab Did the activities described in (a) constitute activities that, but for the organization's involvement, one or moreof the organization's supported organization(s) would have been engaged in? If "Yes," explain in Part VI thereasons for the organization's position that its supported organization(s) would have engaged in these
activities but for the organization's involvement.

No

2b
3 Parent of Supported Organizations. Answer (a) and (b) below.
a Did the organization have the power to regularly appoint or elect a majority of the officers, directors, ortrustees of each of the supported organizations? Provide details in Part VI.
3ab Did the organization exercise a substantial degree of direction over the policies, programs, and activities of eachof its supported organizations? If "Yes," describe in Part VI the role played by the organization in this regard.
3b432025 09-17-14
Schedule A (Form 990 or 990-EZ) 201417

Schedule A (Form 990 or 990-EZ) 2014 Foundation

Part Vfor Prader-Willi Research,Inc31-1763110
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations

Page 6Check here if the organization satisfied the Integral Part Test as a qualifying trust on Nov. 20, 1970. See instructions. Allother Type III non-functionally integrated supporting organizations must complete Sections A through E.
(B) Current Year
Section A - Adjusted Net Income(A) Prior Year
(optional)
1 Net short-term capital gain
1
2 Recoveries of prior-year distributions
2
3 Other gross income (see instructions)3
4 Add lines 1 through 3
4
5 Depreciation and depletion
5
6 Portion of operating expenses paid or incurred for production orcollection of gross income or for management, conservation, or
maintenance of property held for production of income (see instructions)6
7 Other expenses (see instructions)
7
8 Adjusted Net Income (subtract lines 5, 6 and 7 from line 4)8(B) Current Year
Section B - Minimum Asset Amount(A) Prior Year
(optional)
1 Aggregate fair market value of all non-exempt-use assets (seeinstructions for short tax year or assets held for part of year):a Average monthly value of securities
1ab Average monthly cash balances
1bc Fair market value of other non-exempt-use assets
1cd Total (add lines 1a, 1b, and 1c)
1de Discount claimed for blockage or otherfactors (explain in detail in Part VI):
2 Acquisition indebtedness applicable to non-exempt-use assets
2
3 Subtract line 2 from line 1d
3
4 Cash deemed held for exempt use. Enter 1-1/2% of line 3 (for greater amount,
see instructions).
4
5 Net value of non-exempt-use assets (subtract line 4 from line 3)
5
6 Multiply line 5 by .035
6
7 Recoveries of prior-year distributions
7
8 Minimum Asset Amount (add line 7 to line 6)
8
Section C - Distributable Amount
1
2
3
4
5
6
7

CO

PY

1

Current Year

Adjusted net income for prior year (from Section A, line 8, Column A)
1
Enter 85% of line 1
2
Minimum asset amount for prior year (from Section B, line 8, Column A)
3Enter greater of line 2 or line 3
4
Income tax imposed in prior year
5
Distributable Amount. Subtract line 5 from line 4, unless subject toemergency temporary reduction (see instructions)6
Check here if the current year is the organization's first as a non-functionally-integrated Type III supporting organization (seeinstructions).
Schedule A (Form 990 or 990-EZ) 2014

432026
09-17-14

18

Schedule A (Form 990 or 990-EZ) 2014 Foundation

Part Vfor Prader-Willi Research,Inc31-1763110
Type III Non-Functionally Integrated 509(a)(3) Supporting Organizations (continued)

Section D - Distributions
1 Amounts paid to supported organizations to accomplish exempt purposes
2 Amounts paid to perform activity that directly furthers exempt purposes of supported
organizations, in excess of income from activity
3 Administrative expenses paid to accomplish exempt purposes of supported organizations
4 Amounts paid to acquire exempt-use assets
5 Qualified set-aside amounts (prior IRS approval required)
6 Other distributions (describe in Part VI). See instructions.
7 Total annual distributions. Add lines 1 through 6.
8 Distributions to attentive supported organizations to which the organization is responsive(provide details in Part VI). See instructions.
9 Distributable amount for 2014 from Section C, line 6
10 Line 8 amount divided by Line 9 amount(i)
Excess Distributions
Section E - Distribution Allocations (see instructions)

3
a
b
c
d
e
f
g
h
i
j
4

Current Year(ii)
Underdistributions
Pre-2014(iii)
Distributable
Amount for 2014

Distributable amount for 2014 from Section C, line 6
Underdistributions, if any, for years prior to 2014
(reasonable cause required-see instructions)
Excess distributions carryover, if any, to 2014:

CO

From 2013
Total of lines 3a through e
Applied to underdistributions of prior years
Applied to 2014 distributable amount
Carryover from 2009 not applied (see instructions)Remainder. Subtract lines 3g, 3h, and 3i from 3f.
Distributions for 2014 from Section D,
line 7:$a Applied to underdistributions of prior years
b Applied to 2014 distributable amountc Remainder. Subtract lines 4a and 4b from 4.
5 Remaining underdistributions for years prior to 2014, ifany. Subtract lines 3g and 4a from line 2 (if amountgreater than zero, see instructions).
6 Remaining underdistributions for 2014. Subtract lines 3h
and 4b from line 1 (if amount greater than zero, see
instructions).
7 Excess distributions carryover to 2015. Add lines 3j
and 4c.
8 Breakdown of line 7:abcd Excess from 2013
e Excess from 2014

PY

1
2

Page 7

Schedule A (Form 990 or 990-EZ) 2014

432027
09-17-14

19

CO

PY

Schedule A (Form 990 or 990-EZ) 2014 Foundation for Prader-Willi Research,Inc31-1763110 Page 8
Part VI Supplemental Information. Provide the explanations required by Part II, line 10; Part II, line 17a or 17b; and Part III, line 12.
Also complete this part for any additional information. (See instructions).

432028 09-17-14

20

Schedule A (Form 990 or 990-EZ) 2014

SCHEDULE D(Form 990)

OMB No. 1545-0047

Supplemental Financial Statements

2014| Complete if the organization answered "Yes" to Form 990,
Part IV, line 6, 7, 8, 9, 10, 11a, 11b, 11c, 11d, 11e, 11f, 12a, or 12b.
Open to Public| Attach to Form 990.
Department of the Treasury
Inspection
Internal Revenue Service| Information about Schedule D (Form 990) and its instructions is at www.irs.gov/form990.
Name of the organization
Employer identification number

Part IFoundation for Prader-Willi Research,Inc
31-1763110
Organizations Maintaining Donor Advised Funds or Other Similar Funds or Accounts.Complete if theorganization answered "Yes" to Form 990, Part IV, line 6.
(a) Donor advised funds(b) Funds and other accounts

Total number at end of year ~~~~~~~~~~~~~~~
Aggregate value of contributions to (during year) ~~~~
Aggregate value of grants from (during year) ~~~~~~
Aggregate value at end of year ~~~~~~~~~~~~~
Did the organization inform all donors and donor advisors in writing that the assets held in donor advised funds
are the organization's property, subject to the organization's exclusive legal control? ~~~~~~~~~~~~~~~~~~
6 Did the organization inform all grantees, donors, and donor advisors in writing that grant funds can be used only
for charitable purposes and not for the benefit of the donor or donor advisor, or for any other purpose conferring
impermissible private benefit? ••••••••••••••••••••••••••••••••••••••••••••Part II Conservation Easements. Complete if the organization answered "Yes" to Form 990, Part IV, line 7.
1
2
3
4
5

Yes

No

Yes

No

Purpose(s) of conservation easements held by the organization (check all that apply).
Preservation of land for public use (e.g., recreation or education)
Preservation of a historically important land area
Protection of natural habitat
Preservation of a certified historic structure
Preservation of open space2

Complete lines 2a through 2d if the organization held a qualified conservation contribution in the form of a conservation easement on the last
day of the tax year.
Held at the End of the Tax Year

a
b
c
d

Total number of conservation easements ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
2a
Total acreage restricted by conservation easements ~~~~~~~~~~~~~~~~~~~~~~~~~~
2b
Number of conservation easements on a certified historic structure included in (a) ~~~~~~~~~~~~
2c
Number of conservation easements included in (c) acquired after 8/17/06, and not on a historic structure
listed in the National Register ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
2d
Number of conservation easements modified, transferred, released, extinguished, or terminated by the organization during the tax
year |
Number of states where property subject to conservation easement is located |Does the organization have a written policy regarding the periodic monitoring, inspection, handling of
violations, and enforcement of the conservation easements it holds? ~~~~~~~~~~~~~~~~~~~~~~~~~
Yes
Staff and volunteer hours devoted to monitoring, inspecting, and enforcing conservation easements during the year |Amount of expenses incurred in monitoring, inspecting, and enforcing conservation easements during the year | $

4
5
6
7
8
9

CO

3

PY

1

Does each conservation easement reported on line 2(d) above satisfy the requirements of section 170(h)(4)(B)(i)and section 170(h)(4)(B)(ii)? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Yes
In Part XIII, describe how the organization reports conservation easements in its revenue and expense statement, and balance sheet, andinclude, if applicable, the text of the footnote to the organization's financial statements that describes the organization's accounting forconservation easements.

Part III

No

No

Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets.

Complete if the organization answered "Yes" to Form 990, Part IV, line 8.

1a If the organization elected, as permitted under SFAS 116 (ASC 958), not to report in its revenue statement and balance sheet works of art,
historical treasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide, in Part XIII,
the text of the footnote to its financial statements that describes these items.
b If the organization elected, as permitted under SFAS 116 (ASC 958), to report in its revenue statement and balance sheet works of art, historicaltreasures, or other similar assets held for public exhibition, education, or research in furtherance of public service, provide the following amounts
relating to these items:(i) Revenue included in Form 990, Part VIII, line 1 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ | $(ii) Assets included in Form 990, Part X ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ | $2 If the organization received or held works of art, historical treasures, or other similar assets for financial gain, provide
the following amounts required to be reported under SFAS 116 (ASC 958) relating to these items:
a Revenue included in Form 990, Part VIII, line 1 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ | $b Assets included in Form 990, Part X ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ | $LHA For Paperwork Reduction Act Notice, see the Instructions for Form 990.
43205110-01-14

26

Schedule D (Form 990) 2014

Foundation for Prader-Willi Research,Inc 31-1763110 Page 2
Organizations Maintaining Collections of Art, Historical Treasures, or Other Similar Assets(continued)

Schedule D (Form 990) 2014

Part III

Using the organization's acquisition, accession, and other records, check any of the following that are a significant use of its collection items(check all that apply):aPublic exhibitiondLoan or exchange programsb
Scholarly research
e
Other
c
Preservation for future generations
4 Provide a description of the organization's collections and explain how they further the organization's exempt purpose in Part XIII.
5 During the year, did the organization solicit or receive donations of art, historical treasures, or other similar assets
to be sold to raise funds rather than to be maintained as part of the organization's collection? ••••••••••••
Yes
No
Part IV Escrow and Custodial Arrangements. Complete if the organization answered "Yes" to Form 990, Part IV, line 9, orreported an amount on Form 990, Part X, line 21.
3

1a Is the organization an agent, trustee, custodian or other intermediary for contributions or other assets not included
on Form 990, Part X? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~b If "Yes," explain the arrangement in Part XIII and complete the following table:

Yes

No

AmountBeginning balance ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
1c
Additions during the year ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
1dDistributions during the year ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
1eEnding balance ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
1f
Did the organization include an amount on Form 990, Part X, line 21, for escrow or custodial account liability? ~~~~~Yes
If "Yes," explain the arrangement in Part XIII. Check here if the explanation has been provided in Part XIII •••••••••••••Part V Endowment Funds. Complete if the organization answered "Yes" to Form 990, Part IV, line 10.
c
d
e
f
2a
b

f
g
2
a
b
c
3a

b
4

(c) Two years back(d) Three years back

Beginning of year balance ~~~~~~~
Contributions ~~~~~~~~~~~~~~Net investment earnings, gains, and losses
Grants or scholarships ~~~~~~~~~
Other expenditures for facilities
and programs ~~~~~~~~~~~~~
Administrative expenses ~~~~~~~~End of year balance ~~~~~~~~~~
Provide the estimated percentage of the current year end balance (line 1g, column (a)) held as:
Board designated or quasi-endowment |%Permanent endowment |%Temporarily restricted endowment |%The percentages in lines 2a, 2b, and 2c should equal 100%.
Are there endowment funds not in the possession of the organization that are held and administered for the organizationby:(i) unrelated organizations ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~(ii) related organizations ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
If "Yes" to 3a(ii), are the related organizations listed as required on Schedule R? ~~~~~~~~~~~~~~~~~~~~~~
Describe in Part XIII the intended uses of the organization's endowment funds.

Part VI(e) Four years back

CO

1a
b
c
d
e

(b) Prior year

PY(a) Current year

No

Yes

No

3a(i)
3a(ii)
3b

Land, Buildings, and Equipment.
Complete if the organization answered "Yes" to Form 990, Part IV, line 11a. See Form 990, Part X, line 10.
Description of property(a) Cost or otherbasis (investment)(b) Cost or otherbasis (other)(c) Accumulated
depreciation(d) Book value

1a Land ~~~~~~~~~~~~~~~~~~~~b Buildings ~~~~~~~~~~~~~~~~~~
c Leasehold improvements ~~~~~~~~~~
51,120.
35,500.
15,620.
d Equipment ~~~~~~~~~~~~~~~~~e Other ••••••••••••••••••••
15,620.
Total. Add lines 1a through 1e. (Column (d) must equal Form 990, Part X, column (B), line 10c.) ••••••••••••• |Schedule D (Form 990) 2014

43205210-01-1427

Foundation for Prader-Willi Research,Inc
Part VII Investments - Other Securities.

Schedule D (Form 990) 201431-1763110

Page 3Complete if the organization answered "Yes" to Form 990, Part IV, line 11b. See Form 990, Part X, line 12.
(a) Description of security or category (including name of security)(b) Book value(c) Method of valuation: Cost or end-of-year market value(1) Financial derivatives ~~~~~~~~~~~~~~~(2) Closely-held equity interests ~~~~~~~~~~~(3) Other
(A)
(B)
(C)
(D)
(E)
(F)
(G)
(H)
Total. (Col. (b) must equal Form 990, Part X, col. (B) line 12.) |Part VIII Investments - Program Related.

Part IX

Other Assets.

CO

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Col. (b) must equal Form 990, Part X, col. (B) line 13.) |PYComplete if the organization answered "Yes" to Form 990, Part IV, line 11c. See Form 990, Part X, line 13.
(a) Description of investment(b) Book value(c) Method of valuation: Cost or end-of-year market value

Complete if the organization answered "Yes" to Form 990, Part IV, line 11d. See Form 990, Part X, line 15.
(a) Description(b) Book value

(1)
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 15.) •••••••••••••••••••••••••••• |Part XOther Liabilities.

1.

Complete if the organization answered "Yes" to Form 990, Part IV, line 11e or 11f. See Form 990, Part X, line 25.
(a) Description of liability(b) Book value(1) Federal income taxes
(2)
(3)
(4)
(5)
(6)
(7)
(8)
(9)
Total. (Column (b) must equal Form 990, Part X, col. (B) line 25.) ••••• |2. Liability for uncertain tax positions. In Part XIII, provide the text of the footnote to the organization's financial statements that reports theorganization's liability for uncertain tax positions under FIN 48 (ASC 740). Check here if the text of the footnote has been provided in Part XIII X
Schedule D (Form 990) 2014
43205310-01-1428

Foundation for Prader-Willi Research,Inc 31-1763110
Reconciliation of Revenue per Audited Financial Statements With Revenue per Return.

Schedule D (Form 990) 2014

Part XI

Complete if the organization answered "Yes" to Form 990, Part IV, line 12a.
1
2
a
b
c
d
e
3
4
a
b
c
5

Total revenue, gains, and other support per audited financial statements ~~~~~~~~~~~~~~~~~~~
Amounts included on line 1 but not on Form 990, Part VIII, line 12:
Net unrealized gains (losses) on investments ~~~~~~~~~~~~~~~~~~
2a
Donated services and use of facilities ~~~~~~~~~~~~~~~~~~~~~~
2b
Recoveries of prior year grants ~~~~~~~~~~~~~~~~~~~~~~~~~
2c
Other (Describe in Part XIII.) ~~~~~~~~~~~~~~~~~~~~~~~~~~
2d
Add lines 2a through 2d ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Subtract line 2e from line 1 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Amounts included on Form 990, Part VIII, line 12, but not on line 1:
Investment expenses not included on Form 990, Part VIII, line 7b ~~~~~~~~
4a
Other (Describe in Part XIII.) ~~~~~~~~~~~~~~~~~~~~~~~~~~
4b
Add lines 4a and 4b ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Total revenue. Add lines 3 and 4c. (This must equal Form 990, Part I, line 12.) •••••••••••••••••

Page 41

3,032,815.

2e
3

0.
3,032,815.

0.
3,032,815.
Part XII Reconciliation of Expenses per Audited Financial Statements With Expenses per Return.
4c5Complete if the organization answered "Yes" to Form 990, Part IV, line 12a.

Part XIII Supplemental Information.

PY

Total expenses and losses per audited financial statements ~~~~~~~~~~~~~~~~~~~~~~~~~~
Amounts included on line 1 but not on Form 990, Part IX, line 25:
Donated services and use of facilities ~~~~~~~~~~~~~~~~~~~~~~
2aPrior year adjustments ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
2b
Other losses ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
2c
Other (Describe in Part XIII.) ~~~~~~~~~~~~~~~~~~~~~~~~~~
2d
Add lines 2a through 2d ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Subtract line 2e from line 1 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Amounts included on Form 990, Part IX, line 25, but not on line 1:
Investment expenses not included on Form 990, Part VIII, line 7b ~~~~~~~~
4a
Other (Describe in Part XIII.) ~~~~~~~~~~~~~~~~~~~~~~~~~~
4b
Add lines 4a and 4b ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Total expenses. Add lines 3 and 4c. (This must equal Form 990, Part I, line 18.) ••••••••••••••••

CO

1
2
a
b
c
d
e
3
4
a
b
c
5

1

1,777,176.

2e
3

0.
1,777,176.

4c
5

0.
1,777,176.

Provide the descriptions required for Part II, lines 3, 5, and 9; Part III, lines 1a and 4; Part IV, lines 1b and 2b; Part V, line 4; Part X, line 2; Part XI,
lines 2d and 4b; and Part XII, lines 2d and 4b. Also complete this part to provide any additional information.

Part X, Line 2:

The Foundation has no uncertain tax positions that qualify for recognition
or disclosure in the financial statements.

43205410-01-14

29

Schedule D (Form 990) 2014

SCHEDULE F(Form 990)

Department of the Treasury
Internal Revenue Service

Statement of Activities Outside the United States

OMB No. 1545-0047

2014| Complete if the organization answered "Yes" on Form 990, Part IV, line 14b, 15, or 16.
| Attach to Form 990.
| Information about Schedule F (Form 990) and its instructions is at www.irs.gov/form990.

Name of the organization

Open to Public
Inspection

Employer identification number

Foundation for Prader-Willi Research,Inc
31-1763110
Part I
General Information on Activities Outside the United States. Complete if the organization answered "Yes" on1

2
3

Form 990, Part IV, line 14b.
For grantmakers. Does the organization maintain records to substantiate the amount of its grants and other assistance,
the grantees' eligibility for the grants or assistance, and the selection criteria used to award the grants or assistance? ~~

X

Yes

No

For grantmakers. Describe in Part V the organization's procedures for monitoring the use of its grants and other assistance outside theUnited States.
Activities per Region. (The following Part I, line 3 table can be duplicated if additional space is needed.)(a) Region(b) Number of (c) Number of(d) Activities conducted in region(e) If activity listed in (d)(f) Total
employees,
expenditures
offices(by type) (e.g., fundraising, programis a program service,agents, andfor andin the region
services, investments, grants todescribe specific typeindependent
investments
contractors
recipients located in the region)of service(s) in region
in regionin region

Australia

0

Grants to recipients in
0 region for research.

Belgium

0

Grants to recipients in
0 region for research.

Research.

75,600.

The Netherlands

0

Grants to recipients in
0 region for research.

Research.

105,257.

PY

CO

0
0
3 a Sub-total ~~~~~~b Total from continuation
00sheets to Part I ~~~c Totals (add lines 3a00
and 3b) ••••••LHA For Paperwork Reduction Act Notice, see the Instructions for Form 990.
432071
09-24-14

Research.

30

7,264.

188,121.
0.
188,121.
Schedule F (Form 990) 2014

Foundation for Prader-Willi Research,Inc
31-1763110
Schedule F (Form 990) 2014
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any
recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1(a) Name of organization

23(b) IRS code section
and EIN (if applicable)(c) Region(g) Amount of(e) Amount(f) Manner of
non-cashof cash grant cash disbursement assistance(d) Purpose of
grant

Australia

Research

7,264.Wire transfer

Belgium

Research

75,600.Wire transfer

0.

The Netherlands

Research

32,250.Wire transfer

0.

The Netherlands

Research

73,007.Wire transfer

0.

Y
P

O
C

(h) Descriptionof non-cashassistance

Page 2(i) Method ofvaluation (book, FMV,
appraisal, other)0.

Enter total number of recipient organizations listed above that are recognized as charities by the foreign country, recognized as tax-exempt by
the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter ~~~~~~~~~~~~~~~~~~~~~~~ |Enter total number of other organizations or entities ••••••••••••••••••••••••••••••••••••••••••••• |4
Schedule F (Form 990) 2014

432072
09-24-1431

Foundation for Prader-Willi Research,Inc
31-1763110
Schedule F (Form 990) 2014
Part III Grants and Other Assistance to Individuals Outside the United States. Complete if the organization answered "Yes" on Form 990, Part IV, line 16.
Part III can be duplicated if additional space is needed.
(c) Number of (d) Amount of(e) Manner of(f) Amount of(g) Description of(a) Type of grant or assistance(b) Region
recipients
cash grantcash disbursement
non-cashnon-cash assistanceassistance

Page 3(h) Method ofvaluation(book, FMV,
appraisal, other)

Y
P

O
C

Schedule F (Form 990) 2014
43207309-24-1432

Foundation for Prader-Willi Research,Inc
Foreign Forms

Schedule F (Form 990) 2014

Part IV

2

3

4

5

Yes

X

No

Did the organization have an interest in a foreign trust during the tax year? If "Yes," the organization
may be required to file Form 3520, Annual Return To Report Transactions With Foreign Trusts andReceipt of Certain Foreign Gifts, and/or Form 3520-A, Annual Information Return of Foreign Trust Witha U.S. Owner (see Instructions for Forms 3520 and 3520-A; do not file with Form 990) ~~~~~~~~~~~~~~~

Yes

X

No

Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes,"
the organization may be required to file Form 5471, Information Return of U.S. Persons With Respect To
Certain Foreign Corporations (see Instructions for Form 5471) ~~~~~~~~~~~~~~~~~~~~~~~~~~~

Yes

X

No

Was the organization a direct or indirect shareholder of a passive foreign investment company or aqualified electing fund during the tax year? If "Yes," the organization may be required to file Form 8621,
Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing Fund(see Instructions for Form 8621) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Yes

X

No

Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes,"
the organization may be required to file Form 8865, Return of U.S. Persons With Respect to Certain
Foreign Partnerships (see Instructions for Form 8865) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Yes

X

No

Did the organization have any operations in or related to any boycotting countries during the tax year? If"Yes," the organization may be required to file Form 5713, International Boycott Report (see Instructions
for Form 5713; do not file with Form 990) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Yes

X

No

CO

6

43207409-24-14

Page 4

Was the organization a U.S. transferor of property to a foreign corporation during the tax year? If "Yes," theorganization may be required to file Form 926, Return by a U.S. Transferor of Property to a Foreign
Corporation (see Instructions for Form 926) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

PY

1

31-1763110

33

Schedule F (Form 990) 2014

Foundation for Prader-Willi Research,Inc
Supplemental Information

Schedule F (Form 990) 2014

Part V

31-1763110

Page 5

Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts ofinvestments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c)(estimated number of recipients), as applicable. Also complete this part to provide any additional information.

Part I, Line 2:
The Foundation for Prader-Willi Research has a professionally managed
grant process that selects projects based on the collaborative input ofboth scientists and parents.

FPWR chooses projects that are bothscientifically sound and highly relevant for individuals with
Prader-Willi Syndrome ("PWS") and their families.

FPWR's grant process is managed by a Scientific Advisory Board that has

PYestablished the following objectives:

PWS

CO

-Stimulate research that will address the challenges faced by those with

-Support research that directly develops and evaluates new therapeutic
approaches to PWS-Support innovative research that will lead to significant advances inunderstanding PWS-Support early studies that allow investigators to obtain the necessary
data to support further investigation of PWS-Involve parents in the process of identifying relevant areas of researchand selecting the most deserving research proposals

To reach these objectives, FPWR targets the following groups forallocation of research grants, all with the goal of broadening the baseof research done on PWS:-New investigators: To help them establish careers in PWS research-Well-established, non-PWS investigators: To help them bring their
432075 09-24-14

34

Schedule F (Form 990) 2014

Foundation for Prader-Willi Research,Inc
Supplemental Information

Schedule F (Form 990) 2014

Part V

31-1763110

Page 5

Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts ofinvestments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c)(estimated number of recipients), as applicable. Also complete this part to provide any additional information.

expertise in relevant areas of research to address the problems
associated with PWS-Established PWS investigators: To help them initiate new lines of PWS
research

Part I, line 3:
The Foundation recognizes grant expense in the period in which theCO

PYcommitment is made.

432075 09-24-14

35

Schedule F (Form 990) 2014

SCHEDULE G(Form 990 or 990-EZ)

Supplemental Information Regarding Fundraising or Gaming Activities

OMB No. 1545-0047

2014

Complete if the organization answered "Yes" to Form 990, Part IV, lines 17, 18, or 19, or if theorganization entered more than $15,000 on Form 990-EZ, line 6a.
Department of the Treasury
Open to Public| Attach to Form 990 or Form 990-EZ.
Internal Revenue Service
Inspection| Information about Schedule G (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form 990.
Name of the organization
Employer identification number

Foundation for Prader-Willi Research,Inc

Part I

31-1763110

Fundraising Activities. Complete if the organization answered "Yes" to Form 990, Part IV, line 17. Form 990-EZ filers are notrequired to complete this part.

1 Indicate whether the organization raised funds through any of the following activities. Check all that apply.
a
Mail solicitationse X Solicitation of non-government grantsbInternet and email solicitations
fSolicitation of government grantscPhone solicitations
g X Special fundraising eventsdIn-person solicitations
2 a Did the organization have a written or oral agreement with any individual (including officers, directors, trustees or
key employees listed in Form 990, Part VII) or entity in connection with professional fundraising services?
Yesb If "Yes," list the ten highest paid individuals or entities (fundraisers) pursuant to agreements under which the fundraiser is to becompensated at least $5,000 by the organization.

Golf and tennis event

Yes(v) Amount paid(iv) Gross receipts to (or retained by)fundraiser
from activity
listed in col. (i)NoX

167,230.

25,000.

No(vi) Amount paidto (or retained by)organization

142,230.

CO

Epiphany Productions, Inc. 104 Hume Ave, Alexandria, VA(iii) Did
fundraiser
have custodyor control ofcontributions?

(ii) Activity

PY(i) Name and address of individual
or entity (fundraiser)X

167,230.
25,000.
142,230.
Total •••••••••••••••••••••••••••••••••••••• |3 List all states in which the organization is registered or licensed to solicit contributions or has been notified it is exempt from registration
or licensing.
CA,NY

LHA For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.

See Part IV for continuations

43208108-28-14

36

Schedule G (Form 990 or 990-EZ) 2014

Direct Expenses

Revenue

Schedule G (Form 990 or 990-EZ) 2014 Foundation for Prader-Willi Research,Inc31-1763110 Page 2
Part II Fundraising Events. Complete if the organization answered "Yes" to Form 990, Part IV, line 18, or reported more than $15,000of fundraising event contributions and gross income on Form 990-EZ, lines 1 and 6b. List events with gross receipts greater than $5,000.
(a) Event #1(b) Event #2(c) Other events(d) Total events
New York(add col. (a) throughGala
4col. (c))(event type)(event type)(total number)
1

Gross receipts ~~~~~~~~~~~~~~

77,875.

293,843.

2

Less: Contributions ~~~~~~~~~~~

0.

0.

3

Gross income (line 1 minus line 2) ••••

77,875.

293,843.

371,718.

4

Cash prizes ~~~~~~~~~~~~~~~

5

Noncash prizes ~~~~~~~~~~~~~

6

Rent/facility costs ~~~~~~~~~~~~

80,823.

49,700.

130,523.

7

Food and beverages~~~~~~~~~~

Entertainment ~~~~~~~~~~~~~~
Other direct expenses ~~~~~~~~~~
Direct expense summary. Add lines 4 through 9 in column (d) ~~~~~~~~~~~~~~~~~~~~~~~~ |Net income summary. Subtract line 10 from line 3, column (d) •••••••••••••••••••••••• |Part III Gaming. Complete if the organization answered "Yes" to Form 990, Part IV, line 19, or reported more than

PY

8
9
10
11

(b) Pull tabs/instantbingo/progressive bingo(a) Bingo

1

Gross revenue ••••••••••••••

2

Cash prizes ~~~~~~~~~~~~~~~

3

Noncash prizes ~~~~~~~~~~~~~

4

Rent/facility costs ~~~~~~~~~~~~

5

Other direct expenses ••••••••••

6

Volunteer labor ~~~~~~~~~~~~~

7

Direct expense summary. Add lines 2 through 5 in column (d) ~~~~~~~~~~~~~~~~~~~~~~~~ |8Net gaming income summary. Subtract line 7 from line 1, column (d) ••••••••••••••••••••• |

Yes
No

%

Yes
No

%

Yes
No

130,523.
241,195.

(d) Total gaming (addcol. (a) through col. (c))(c) Other gaming

CO

Revenue$15,000 on Form 990-EZ, line 6a.

Direct Expenses

371,718.

%

9 Enter the state(s) in which the organization conducts gaming activities:
a Is the organization licensed to conduct gaming activities in each of these states? ~~~~~~~~~~~~~~~~~~~~b If "No," explain:

10a Were any of the organization's gaming licenses revoked, suspended or terminated during the tax year? ~~~~~~~~~b If "Yes," explain:

Yes

No

Yes

No

Schedule G (Form 990 or 990-EZ) 2014

432082 08-28-14

37

Schedule G (Form 990 or 990-EZ) 2014 Foundation for Prader-Willi Research,Inc31-1763110 Page 3
11 Does the organization conduct gaming activities with nonmembers?~~~~~~~~~~~~~~~~~~~~~~~~~~~YesNo
12 Is the organization a grantor, beneficiary or trustee of a trust or a member of a partnership or other entity formed
to administer charitable gaming? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~YesNo
13 Indicate the percentage of gaming activity conducted in:
a The organization's facility ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 13a%b An outside facility ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 13b%
14 Enter the name and address of the person who prepares the organization's gaming/special events books and records:
Name |
Address |15a Does the organization have a contract with a third party from whom the organization receives gaming revenue? ~~~~~~b If "Yes," enter the amount of gaming revenue received by the organization | $of gaming revenue retained by the third party | $.
c If "Yes," enter name and address of the third party:

Yes

No

and the amount

Name |
Address |PY

16 Gaming manager information:
Name |

Description of services provided |Director/officer

CO

Gaming manager compensation | $Employee

Independent contractor

17 Mandatory distributions:a Is the organization required under state law to make charitable distributions from the gaming proceeds toYesNoretain the state gaming license? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~b Enter the amount of distributions required under state law to be distributed to other exempt organizations or spent in theorganization's own exempt activities during the tax year | $Part IV
Supplemental Information. Provide the explanations required by Part I, line 2b, columns (iii) and (v), and Part III, lines 9, 9b, 10b, 15b,
15c, 16, and 17b, as applicable. Also provide any additional information (see instructions).

Schedule G, Part I, Line 2b, List of Ten Highest Paid Fundraisers:(i) Name of Fundraiser: Epiphany Productions, Inc.
(i) Address of Fundraiser: 104 Hume Ave, Alexandria, VA

432083 08-28-14

38

22301

Schedule G (Form 990 or 990-EZ) 2014

Foundation for Prader-Willi Research,Inc31-1763110
Supplemental Information (continued)

Schedule G (Form 990 or 990-EZ)

Page 4CO

PY

Part IV

43208405-01-14

Schedule G (Form 990 or 990-EZ)

39

Grants and Other Assistance to Organizations,
Governments, and Individuals in the United States

SCHEDULE I(Form 990)

Part I2014

Complete if the organization answered "Yes" to Form 990, Part IV, line 21 or 22.
| Attach to Form 990.
| Information about Schedule I (Form 990) and its instructions is at www.irs.gov/form990.

Department of the Treasury
Internal Revenue Service

Name of the organizationOMB No. 1545-0047

Open to Public
Inspection
Employer identification number

Foundation for Prader-Willi Research,Inc

31-1763110

General Information on Grants and Assistance

Does the organization maintain records to substantiate the amount of the grants or assistance, the grantees' eligibility for the grants or assistance, and the selection
X Yes
criteria used to award the grants or assistance? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
2 Describe in Part IV the organization's procedures for monitoring the use of grant funds in the United States.
Part II
Grants and Other Assistance to Domestic Organizations and Domestic Governments. Complete if the organization answered "Yes" to Form 990, Part IV, line 21, for any
recipient that received more than $5,000. Part II can be duplicated if additional space is needed.
(f) Method of
1 (a) Name and address of organization(b) EIN(c) IRC section(d) Amount of(e) Amount of(g) Description of(h) Purpose of grantvaluation (book,or government
if applicable
cash grant
non-cashnon-cash assistanceor assistance
FMV, appraisal,
assistanceother)
1

Baylor College of Medicine
1 Baylor Plaza
Houston, TX 77030

501(c)(3)

Baylor College of Medicine
1 Baylor Plaza
Houston, TX 77030

501(c)(3)Children's Hospital Los Angeles
4650 Sunset Blvd
Los Angeles, CA 90027

501(c)(3)

Columbia University
116th Street and Broadway
New York, NY 10027
Duke University
2100 Erwin Rd
Durham, NC 27705
Essentialis, Inc.
7915 Corte Cardo
Carlsbad, CA 92009

Y
P

O
C
54,000.

0.

Research

0.

Research

75,600.

0.

Research

501(c)(3)75,600.

0.

Research

501(c)(3)75,600.

0.

Research

75,600.

0.

Research

65,921.

No

14.
2 Enter total number of section 501(c)(3) and government organizations listed in the line 1 table ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ |1.
3 Enter total number of other organizations listed in the line 1 table •••••••••••••••••••••••••••••••••••••••••••••••••• |For
Paperwork
Reduction
Act
Notice,seetheInstructions
for
Form
990.
LHA
Schedule I (Form 990) (2014)
432101
10-15-1440

Foundation for Prader-Willi Research,Inc
Schedule I (Form 990)
Part II Continuation of Grants and Other Assistance to Governments and Organizations in the United States (Schedule I (Form 990), Part II.)(a) Name and address oforganization or government(b) EIN(c) IRC section
if applicable(d) Amount ofcash grant(e) Amount of
non-cashassistance(f) Method ofvaluation(book, FMV,
appraisal, other)31-1763110(g) Description of
non-cash assistance(h) Purpose of grantor assistance

Seattle Children's Hospital
4800 Sand Point Way NE
Seattle, WA 98105

501(c)(3)75,600.

0.

Research

Syracuse University
900 S Crouse Ave
Syracuse, NY 13210

501(c)(3)6,000.

0.

Research

University of Alabama at
Birmingham - 510 20th St S #12 Birmingham, AL 35233

501(c)(3)53,558.

0.

Research

University of California, Davis
4610 X Street
Sacramento, CA 95817

501(c)(3)0.

Research

University of California, Irvine
252 Irvine Hall
Irvine, CA 92697

501(c)(3)75,600.

0.

Research

University of California, San
Francisco - 505 Parnassus Ave San Francisco, CA 94143

501(c)(3)75,600.

0.

Research

University of Florida
201 Criser Hall
Gainsville, FL 32611

501(c)(3)54,000.

0.

Research

University of Kansas Medical
Center - 3901 Rainbow Blvd Kansas City, KS 66103

501(c)(3)75,600.

0.

Research

University of North Carolina
321 S Columbia St
Chapel Hill, NC 27516

501(c)(3)75,600.

0.

ResearchOCYP

75,360.

Page 1

Schedule I (Form 990)
43224105-01-1441

Foundation for Prader-Willi Research,Inc
Schedule I (Form 990) (2014)
Part III
Grants and Other Assistance to Domestic Individuals. Complete if the organization answered "Yes" to Form 990, Part IV, line 22.
Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance(b) Number ofrecipients(c) Amount ofcash grant(d) Amount of noncash assistance(e) Method of valuation(book, FMV, appraisal, other)31-1763110

Page 2(f) Description of non-cash assistanceY
PPart IVOC

Supplemental Information. Provide the information required in Part I, line 2, Part III, column (b), and any other additional information.

432102 10-15-14

42

Schedule I (Form 990) (2014)

SCHEDULE O

Supplemental Information to Form 990 or 990-EZ

OMB No. 1545-0047

2014

Complete to provide information for responses to specific questions on
Form 990 or 990-EZ or to provide any additional information.
Open to Public| Attach to Form 990 or 990-EZ.
Department of the Treasury
Internal Revenue Service
Inspection| Information about Schedule O (Form 990 or 990-EZ) and its instructions is at www.irs.gov/form990.
Name of the organization
Employer identification number(Form 990 or 990-EZ)

Foundation for Prader-Willi Research,Inc

31-1763110

Form 990, Part VI, Section B, line 11:
The organization's board of directors review the 990 prior to filing.

Form 990, Part VI, Section B, Line 12c:
The board members review and discuss the conflict of interest policy
annually at a board meeting.

Each member is then required to sign thedisclosure form at the meeting noting conflicts.

PY

Form 990, Part VI, Section C, Line 19:

The organization's 990 is made public on the website GuideStar(www.guidestar.org).

All governing documents and financial information areCOmaintained by AFJ Consulting, and can be provided upon request.

Form 990, Page 12, Part 12, Line 2c

The organization has not changed its oversight process of the audit
from the prior year.

LHA For Paperwork Reduction Act Notice, see the Instructions for Form 990 or 990-EZ.
43221108-27-14

43

Schedule O (Form 990 or 990-EZ) (2014)

Form 8868 (Rev. 1-2014)¥ If you are filing for an Additional (Not Automatic) 3-Month Extension, complete only Part II and check this box ~~~~~~~~~~ |Note. Only complete Part II if you have already been granted an automatic 3-month extension on a previously filed Form 8868.
¥ If you are filing for an Automatic 3-Month Extension, complete only Part I (on page 1).

Part II

Type or
print
File by thedue date forfiling yourreturn. See
instructions.

Page 2

X

Additional (Not Automatic) 3-Month Extension of Time. Only file the original (no copies needed).

Enter filer's identifying number, see instructions
Employer identification number (EIN) or

Name of exempt organization or other filer, see instructions.

Foundation for Prader-Willi Research,Inc
Number, street, and room or suite no. If a P.O. box, see instructions.

340 S Lemon Avenue, No. 3620

31-1763110
Social security number (SSN)

City, town or post office, state, and ZIP code. For a foreign address, see instructions.

Walnut, CA

91789

0 1

Enter the Return code for the return that this application is for (file a separate application for each return) ~~~~~~~~~~~~~~~~~

ReturnCode

PY

Application
Return Application
Is ForCode Is For
Form 990 or Form 990-EZ
01
Form 990-BL
02
Form 1041-A
Form 4720 (individual)
03
Form 4720 (other than individual)
Form 990-PF
04
Form 5227
Form 990-T (sec. 401(a) or 408(a) trust)05
Form 6069
Form 990-T (trust other than above)
06
Form 8870
STOP! Do not complete Part II if you were not already granted an automatic 3-month extension on a previously filed Form 8868.

08
09
10
11
12

Adam Jones¥ The books are in the care of | 340 S Lemon Ave #3620 - Walnut, CA 91789
Telephone No. | (323)782-9391
Fax No. |CO¥ If the organization does not have an office or place of business in the United States, check this box ~~~~~~~~~~~~~~~~ |¥ If this is for a Group Return, enter the organization's four digit Group Exemption Number (GEN). If this is for the whole group, check thisbox |. If it is for part of the group, check this box |and attach a list with the names and EINs of all members the extension is for.
November 15, 2015.
4
I request an additional 3-month extension of time until
2014
5
For calendar year
, or other tax year beginning, and ending.
6
If the tax year entered in line 5 is for less than 12 months, check reason:
Initial return
Final return
Change in accounting period
7State in detail why you need the extension

Taxpayer requests additional time to gather financial inforamtion inorder to file a complete and accurate return.

If this application is for Forms 990-BL, 990-PF, 990-T, 4720, or 6069, enter the tentative tax, less any
nonrefundable credits. See instructions.
b If this application is for Forms 990-PF, 990-T, 4720, or 6069, enter any refundable credits and estimatedtax payments made. Include any prior year overpayment allowed as a credit and any amount paid
previously with Form 8868.
c Balance due. Subtract line 8b from line 8a. Include your payment with this form, if required, by using
EFTPS (Electronic Federal Tax Payment System). See instructions.

8a

Signature and Verification must be completed for Part II only.

8a

$

0.

8b

$

0.

8c

$

0.

Under penalties of perjury, I declare that I have examined this form, including accompanying schedules and statements, and to the best of my knowledge and belief,
it is true, correct, and complete, and that I am authorized to prepare this form.
Signature |Title | CPA

Date |
Form 8868 (Rev. 1-2014)

423842
09-15-1444428941 11-26-14

California Exempt Organization
Annual Information Return

TAXABLE YEAR

2014

FORM

199

, and ending (mm/dd/yyyy)

Calendar Year 2014 or fiscal year beginning (mm/dd/yyyy)
Corporation/Organization Name.

California corporation number

FOUNDATION FOR PRADER-WILLI RESEARCH,INC

3035979
FEIN

Additional Information. See instructions.

31-1763110
PMB no.

Street address (suite or room)

340 S LEMON AVENUE, NO. 3620City

WALNUT

A
B
C
D

E
F
G
H

Foreign province/state/county

First Return ~~~~~~~~~~~~~~~~~~~
Yes
Amended Return ~~~~~~~~~~~~~~~~ ¥Yes
Yes
IRC Section 4947(a)(1) trust ~~~~~~~~~~~~
Final Information Return?
¥
Dissolved¥
Surrendered (Withdrawn)¥
Merged/Reorganized Enter date: (mm/dd/yyyy) ¥Check accounting method:
X Accrual (3)
(1)
Cash
(2)
Other
Federal return filed?
(1) ¥
990T
(2) ¥
990-PF(3) ¥Sch H ( 990)
Is this a group filing? See instructions. ~~~~~~ ¥Yes
Is this organization in a group exemption? ~~~~~~Yes
If "Yes," what is the parent's name?
Did the organization have any changes to its guidelines ¥not reported to the FTB? See instructions.

Part I

91789

Yes

X
X
X

Foreign postal code

No J If exempt under R&TC Section 23701d, has the organization
No
engaged in political activities? See instructions. ~~~~ ¥No K Is the organization exempt under R&TC Section 23701g? ¥If "Yes," enter the gross receipts from nonmember
sources ~~~~~~~~~~~~~~~~~~~~~ $L If organization is exempt under R&TC Section 23701d
and meets the filing fee exception, check box. No filingfee is required. ~~~~~~~~~~~~~~~~~~ ¥M Is the organization a Limited Liability Company? ~~~~ ¥N Did the organization file Form 100 or Form 109 toNoreport taxable income? ~~~~~~~~~~~~~~~ ¥No O Is the organization under audit by the IRS or has the
IRS audited in a prior year? ~~~~~~~~~~~~~ ¥P Is an IRS Form 1023/1024 pending?
No
Date filed with IRS ~~~~~~~~~~~~~~~~

X
X
X

CO

I

ZIP codeCA

PY

Foreign country name

State

Yes
Yes

X
X

No
No

Yes

X

No

Yes

X

No

Yes
Yes

X
X

No
No

Complete Part I unless not required to file this form. See General Instructions B and C.

Receipts
andRevenues

Expenses

Filing
Fee

1
2
3
4
5
6
7
8
9
10
11
12
13
14
15

Gross sales or receipts from other sources. From Side 2, Part II, line 8 ~~~~~~~~~~~~~~~~ ¥Gross dues and assessments from members and affiliates ~~~~~~~~~~~~~~~~~~~~~ ¥Gross contributions, gifts, grants, and similar amounts received ~~~~~~~~~~~~~~~~~~ ¥Total gross receipts for filing requirement test. Add line 1 through line 3.
This line must be completed. If the result is less than $50,000, see General Instruction B •••••••••••••• ¥5
Cost of goods sold ~~~~~~~~~~~~~~~~~~~~~~ ¥00
6
Cost or other basis, and sales expenses of assets sold ~~~~~~~ ¥
00

1
2
3
4

Total costs. Add line 5 and line 6 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Total gross income. Subtract line 7 from line 4 •••••••••••••••••••••••••• ¥Total expenses and disbursements. From Side 2, Part II, line 18 ~~~~~~~~~~~~~~~~~~ ¥Excess of receipts over expenses and disbursements. Subtract line 9 from line 8 ••••••••••• ¥Filing fee $10 or $25. See General Instruction F ~~~~~~~~~~~~~~~~~~~~~~~~~~~
Total payments ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Penalties and Interest. See General Instruction J ~~~~~~~~~~~~~~~~~~~~~~~~~~
Use tax. See General Instruction K ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥Balance due. Add line 11, line 13, and line 14. Then subtract line 12 from the result •••••••••• j
¥

7
8
9
10
11
12
13
14
15

5,657. 00
00

3,027,158. 00
3,032,815. 00

00

3,032,815. 00
1,777,176. 00
1,255,639. 00
10. 00Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief,
it is true, correct, and complete. Declaration of preparer (other than taxpayer) is based on all information of which preparer has any knowledge.

Sign
Here

Title

TREASURER

Signatureof officer |DatePreparer's
signature |PaidPreparer's
Use Only

Firm's name(or yours,
if self|
employed)
and address

00
00
00
10. 00¥ Telephone

Date¥ PTIN

Check ifP00743822

self-employed |¥ FEINHAYNES DOWNARD LLP
2121 2ND AVENUE NORTH, SUITE 400
BIRMINGHAM, AL 35203

May the FTB discuss this return with the preparer shown above? See instructions •••••••••••• ¥For Privacy Notice, get FTB 1131 ENG/SP.

022

3651144

63-1133963¥ TelephoneX

205-254-3380
Yes

No

Form 199 C1 2014 Side 1

FOUNDATION FOR PRADER-WILLI RESEARCH,INC
Part II

31-1763110

Organizations with gross receipts of more than $50,000 and private foundations regardless ofamount of gross receipts - complete Part II or furnish substitute information.

428951 11-26-14

1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18

Gross sales or receipts from all business activities. See instructions ~~~~~~~~~~~~~~~~~~~ ¥100
5,657. 00
Interest ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥2
Dividends ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥300
Receipts
Gross rents ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥
4
00
from
Gross royalties ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥
5
00
Other
Gross amount received from sale of assets (See Instructions) ~~~~~~~~~~~~~~~~~~~~~ ¥600
Sources
Other income ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥700
5,657. 00
Total gross sales or receipts from other sources. Add line 1 through line 7. Enter here and on Side 1, Part I, line 1
8
STATEMENT 1 ¥1,177,360. 00
Contributions, gifts, grants, and similar amounts paid ~~~~~~~~~~~~~~~~~~~~~~~~~
9
Disbursements to or for members ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥1000
SEE STATEMENT 2 ¥ 11
0. 00
Compensation of officers, directors, and trustees ~~~~~~~~~~~~~~~~~~~~~~~~~~~
204,490. 00
Other salaries and wages ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥12Interest ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥Expenses
1300
andTaxes ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥1400
DisburseRents ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥
15
00
ments
Depreciation and depletion (See instructions) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥1600
395,326. 00
Other Expenses and Disbursements ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ¥17
1,777,176. 00
Total expenses and disbursements. Add line 9 through line 17. Enter here and on Side 1, Part I, line 9 •••••
18
End of taxable year
Beginning of taxable year
Schedule L Balance Sheets(a)

Assets
1 Cash ~~~~~~~~~~~~~~~~
2 Net accounts receivable ~~~~~~~~
3 Net notes receivable ~~~~~~~~~~
4 Inventories ~~~~~~~~~~~~~~
5 Federal and state government obligations
6 Investments in other bonds ~~~~~~
7 Investments in stock ~~~~~~~~~

(c)

PY
(

CO

8 Mortgage loans ~~~~~~~~~~~
9 Other investments ~~~~~~~~~~
10 a Depreciable assets ~~~~~~~~~b Less accumulated depreciation ~~~~(b)2,223,507.

51,120.
18,460. )32,660. (51,120.
35,500. )11 Land ~~~~~~~~~~~~~~~~
STMT 380,768.
12 Other assets ~~~~~~~~~~~~~
2,336,935.
13 Total assets ~~~~~~~~~~~~~
Liabilities and net worth
2,208.
14 Accounts payable ~~~~~~~~~~~
648,348.
15 Contributions, gifts, or grants payable ~~16 Bonds and notes payable ~~~~~~~
17 Mortgages payable ~~~~~~~~~~
18 Other liabilities ~~~~~~~~~~~~
19 Capital stock or principal fund ~~~~~
20 Paid-in or capital surplus. Attach reconciliation ~1,686,379.
21 Retained earnings or income fund ~~~~
2,336,935.
22 Total liabilities and net worth •••••
Reconciliationofincome
per
books
with
incomeper
returnSchedule M-1
Do not complete this schedule if the amount on Schedule L, line 13, column (d), is less than $50,000.
1 Net income per books ~~~~~~~~~~~~
2 Federal income tax ~~~~~~~~~~~~~
3 Excess of capital losses over capital gains ~~~4 Income not recorded on books this year ~~~~
5 Expenses recorded on books this year not
deducted in this return ~~~~~~~~~~~
6 Total. Add line 1 through line 5 ••••••••Side 2 Form 199 C1 2014

¥
¥
¥
¥
¥

(d)

¥
¥
¥
¥
¥
¥
¥
¥
¥

3,742,865.

15,620.
¥
¥

¥
¥
¥
¥
¥
¥
¥

65,949.
3,824,434.
58,301.
824,115.

2,942,018.
3,824,434.

1,255,639.

7 Income recorded on books this year
not included in this return. ~~~~~~~~
8 Deductions in this return not charged
against book income this year ~~~~~~~
9 Total. Add line 7 and line 8 ~~~~~~~~
10 Net income per return.
1,255,639.
Subtract line 9 from line 6 ••••••••

022

3652144¥¥

1,255,639.

Foundation for Prader-Willi Research,Inc
31-1763110}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Form 199
Cash Contributions, Gifts, Grants
Statement
1and Similar Amounts Paid}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
Activity Classification: Research Grants
Donees Address}}}}}}}}}}}}}}}
116th Street and Broadway New York, NY 10027

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Syracuse University

Donees Address}}}}}}}}}}}}}}}
900 S Crouse - Syracuse, NY
13210

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University of
FloridaDonees Address}}}}}}}}}}}}}}}
201 Criser Hall Gainesville, FL 32611

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Dutch Growth
Research Foundation

Donees Address}}}}}}}}}}}}}}}
Postbus 23068/3001 KB Rotterdam, NETHERLANDS

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University of Sydney

Donees Address}}}}}}}}}}}}}}}New South Wales 2006 - New
South Wales, AUSTRALIA

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Katholieke
Universiteit Leuven

Donees Address}}}}}}}}}}}}}}}
Oude Markt 13 3000 Leuven Leuven, BELGIUM

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Stichting Kind en
Groei

Donees Address}}}}}}}}}}}}}}}
Westzeedijk 106 - Rotterdam,
NETHERLANDS

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}CO

PY

Donees Name}}}}}}}}}}}}
Columbia University

75,600.

6,000.

54,000.

72,058.

8,213.

75,600.

32,250.

Statement(s) 1

Foundation for Prader-Willi Research,Inc}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

31-1763110}}}}}}}}}}

Donees Address}}}}}}}}}}}}}}}
1 Baylor Plaza - Houston, TX
77030

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Children's Hospital
Los Angeles

Donees Address}}}}}}}}}}}}}}}
4650 Sunset Blvd - Los
Angeles, CA 90027

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Duke University

Donees Address}}}}}}}}}}}}}}}
2100 Erwin Road - Durham, NC
27705

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
Essentialis, Inc.

Donees Address}}}}}}}}}}}}}}}
7915 Corte Cardo - Carlsbad,
CA 92009

Donees Name}}}}}}}}}}}}
Seattle Children's
Hospital

PY

Donees Name}}}}}}}}}}}}
Baylor College ofMedicine

119,921.

75,600.

75,600.

Amount}}}}}}}}}}

Donees Address}}}}}}}}}}}}}}}
4800 Sand Point Way NE Seattle, WA 98105

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University of
Alabama at
Birmingham

Donees Address}}}}}}}}}}}}}}}
510 20th Street S, Suite 12- Birmingham, AL 35233

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University ofCalifornia, Davis

Donees Address}}}}}}}}}}}}}}}
4610 X St - Sacramento, CA
95817

Relationship}}}}}}}}}}}}
None

CO

Relationship}}}}}}}}}}}}
None

75,600.

75,600.

53,558.

Amount}}}}}}}}}}
75,360.

Statement(s) 1

Foundation for Prader-Willi Research,Inc}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

31-1763110}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University ofCalifornia, Irvine

Donees Address}}}}}}}}}}}}}}}
252 Irvine Hall - Irvine, CA
92697

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University ofCalifornia, San
Francisco

Donees Address}}}}}}}}}}}}}}}
505 Parnassus Ave - San
Francisco, CA 94143

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}

Donees Name}}}}}}}}}}}}
University of North
Carolina

Donees Address}}}}}}}}}}}}}}}
321 Columbia Street - Chapel
Hill, NC 27516

Relationship}}}}}}}}}}}}
None

Donees Name}}}}}}}}}}}}
University of Kansas
Medical Center

Donees Address}}}}}}}}}}}}}}}
3901 Rainbow Blvd - Kansas
City, KS 66103

75,600.

PY

COTotal for this Activity
Total Included on Form 199, Part II, line 975,600.

Relationship}}}}}}}}}}}}
None

Amount}}}}}}}}}}
75,600.

Amount}}}}}}}}}}
75,600.

1,177,360.
}}}}}}}}}}}
1,177,360.
~~~~~~~~~~~

Statement(s) 1

Foundation for Prader-Willi Research,Inc
31-1763110}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Form 199
Compensation of Officers, Directors and Trustees
Statement2}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}Name and Address}}}}}}}}}}}}}}}}
Alice Viroslav
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Title andAverage Hrs Worked/Wk}}}}}}}}}}}}}}}}}}}}}
Board Member
5.00

Compensation}}}}}}}}}}}}
0.

Board Member
5.00

0.

Jeannine Kowal
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Board Member
5.00

0.

Keegan Johnson
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Board Member
5.00

0.

Lauren Schwartz Roth340 S Lemon Avenue, No. 3620
Walnut, CA 91789

PY

Daniel Chorney
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Board Member
5.00

0.

Board Member
5.00

0.

Tanya Johnson
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Board Member
5.00

0.

Jessica Howard
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

President
5.00

0.

Shawn Johnson
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Vice President
5.00

0.

Mark Greenberg
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Vice President - Finance
5.00

0.

Tom Compere
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Treasurer
5.00

0.

CO

Rachel Fernandez-Hansen
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Statement(s) 2Foundation for Prader-Willi Research,Inc}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
Jeff Porter
Secretary
340 S Lemon Avenue, No. 3620
5.00
Walnut, CA 91789

31-1763110}}}}}}}}}}
0.

Susan Hedstrom
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Executive Director
20.00

0.

Theresa Strong
340 S Lemon Avenue, No. 3620
Walnut, CA 91789

Director of Research Progr
5.00

0.

}}}}}}}}}}}}
0.
~~~~~~~~~~~~

Total to Form 199, Part II, line 11~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Form 199
Other Assets
Statement3}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
Beg. of YearEnd of Year}}}}}}}}}}}}}} }}}}}}}}}}}}}}
77,666.
63,108.
3,102.
2,841.
}}}}}}}}}}}}}} }}}}}}}}}}}}}}
80,768.
65,949.
~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~

PY

Description}}}}}}}}}}}
Pledges and Grants Receivable
Prepaid Expenses and Deferred Charges

CO

Total to Form 199, Schedule L, line 12

Statement(s) 2, 3

Voucher at bottom of page.
DO NOT MAIL A PAPER COPY OF THE CORPORATE OR EXEMPT ORGANIZATION TAX RETURN
WITH THE PAYMENT VOUCHER.
If the amount of payment is zero, do not mail this voucher.

WHERE TO FILE:

Using black or blue ink, make check or money order payable to the"Franchise Tax Board." Write the corporation number or FEIN and"2014 FTB 3586" on the check or money order. Detach voucher
below. Enclose, but do not staple, payment with voucher andmail to:FRANCHISE TAX BOARD
PO BOX 942857
SACRAMENTO CA 94257-0531

WHEN TO FILE:

PY

Make all checks or money orders payable in U.S. dollars and drawn against a U.S. financial institution.

Fiscal Year - See instructions.
Calendar Year - File and Pay by March 16, 2015.

ONLINE SERVICES:COWhen the due date falls on a weekend or holiday, the deadline to file and pay without penalty
is extended to the next business day.

Corporations can make payments online with Web Pay for Businesses.
After a one-time online registration, corporations can make an immediatepayment or schedule payments up to a year in advance. Go to ftb.ca.gov
for more information.

43903512-04-14!!! DETACH HERE!!!!!!! IF NO PAYMENT IS DUE OR PAID ELECTRONICALLY, DO NOT MAIL THIS VOUCHER !!!!!!! DETACH HERE !!!
CAUTION: You may be required to pay electronically, see instructions.
TAXABLE YEAR

2014

Payment Voucher for Corps andExempt Orgs e-filed Returns

CALIFORNIA FORM

3586 (e-file)3035979
FOUN 31-1763110
000000000000
TYB 01-01-2014
TYE 12-31-2014
FOUNDATION FOR PRADERWILLI RESEARCHINC

14

FORM

3

340 S LEMON AVENUE NO 3620
WALNUT
CA 91789(760) 536-3027

Total Payment Amt

022

6181146

10.

FTB 3586 2014

022
Date Accepted

DO NOT MAIL THIS FORM TO THE FTBTAXABLE YEAR

FORM

California e-file Return Authorization for
Exempt Organizations

20148453-EO

Exempt Organization nameIdentifying number

FOUNDATION FOR PRADER-WILLI RESEARCH,INC

31-1763110

Part IElectronic Return Information (whole dollars only)
1 Total gross receipts (Form 199, line 4) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 1
2 Total gross income (Form 199, line 8) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 2
3 Total expenses and disbursements (Form 199, line 9) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ 3

3,032,815. 00
3,032,815. 00
1,777,176. 00==TREASURER

CO

Sign
Here

PY

Part II
Settle Your Account Electronically for Taxable Year 2014
4
Electronic funds withdrawal
4a Amount
4b Withdrawal date (mm/dd/yyyy)
Part III Banking Information (Have you verified the exempt organization's banking information?)
5 Routing number
6 Account number
7 Type of account:
Checking
Savings
Part IV Declaration of Officer
I authorize the exempt organization's account to be settled as designated in Part II. If I check Part II, Box 4, I authorize an electronic funds withdrawal for the amount listed
on line 4a.
Under penalties of perjury, I declare that I am an officer of the above exempt organization and that the information I provided to my electronic return originator (ERO),
transmitter, or intermediate service provider and the amounts in Part I above agree with the amounts on the corresponding lines of the exempt organization's 2014
California electronic return. To the best of my knowledge and belief, the exempt organization's return is true, correct, and complete. If the exempt organization is filinga balance due return, I understand that if the Franchise Tax Board (FTB) does not receive full and timely payment of the exempt organization's fee liability, the exempt
organization will remain liable for the fee liability and all applicable interest and penalties. I authorize the exempt organization return and accompanying schedules andstatements be transmitted to the FTB by the ERO, transmitter, or intermediate service provider. If the processing of the exempt organization's return or refund isdelayed, I authorize the FTB to disclose to the ERO or intermediate service provider, the reason(s) for the delay.

Signature of Officer

Date

Title

Part V
Declaration of Electronic Return Originator (ERO) and Paid Preparer.
I declare that I have reviewed the above exempt organization's return and that the entries on form FTB 8453-EO are complete and correct to the best of my knowledge. (If I
am only an intermediate service provider, I understand that I am not responsible for reviewing the exempt organization's return. I declare, however, that form FTB 8453-EO
accurately reflects the data on the return.) I have obtained the organization officer's signature on form FTB 8453-EO before transmitting this return to the FTB; I haveprovided the organization officer with a copy of all forms and information that I will file with the FTB, and I have followed all other requirements described in FTB Pub.
1345, 2014 e-file Handbook for Authorized e-file Providers. I will keep form FTB 8453-EO on file for four years from the due date of the return or four years from the datethe exempt organization return is filed, whichever is later, and I will make a copy available to the FTB upon request. If I am also the paid preparer, under penalties of perjury,
I declare that I have examined the above exempt organization's return and accompanying schedules and statements, and to the best of my knowledge and belief, they aretrue, correct, and complete. I make this declaration based on all information of which I have knowledge.

ERO
Must
Sign

ERO'ssignature

=

Date

Check if
also paid
preparer= 2121 2ND AVENUE NORTH, SUITE 400

Firm's name (or yours
if self-employed)
and address

HAYNES DOWNARD LLPCheck
if selfemployed
FEIN

BIRMINGHAM, AL

ERO's PTIN

63-1133963

ZIP Code

35203

Under penalties of perjury, I declare that I have examined the above organization's return and accompanying schedules and statements, and to the best of my knowledge
and belief, they are true, correct, and complete. I make this declaration based on all information of which I have knowledge.

Paid
Preparer
Must
Sign

Paid
preparer's
signature=

Firm's name (or yours
if self-employed)
and address

Date

=

HAYNES DOWNARD LLP
2121 2ND AVENUE NORTH, SUITE 400
BIRMINGHAM, AL

Paid preparer's PTIN

FEIN

P00743822
63-1133963

ZIP Code

35203

FTB 8453-EO 2014

For Privacy Notice, get FTB 1131 ENG/SP.

429021
11-06-14

Check
if selfemployed

9

MAIL TO:
Registry of Charitable Trusts
P.O. Box 903447
Sacramento, CA 94203-4470
Telephone: (916) 445-2021
WEB SITE ADDRESS:
http://ag.ca.gov/charities/

ANNUALREGISTRATION RENEWAL FEE REPORTTO ATTORNEY GENERAL OF CALIFORNIA

Sections 12586 and 12587, California Government Code
11 Cal. Code Regs. sections 301-307, 311 and 312
Failure to submit this report annually no later than four months and fifteen days after theend of the organization's accounting period may result in the loss of tax exemption andthe assessment of a minimum tax of $800, plus interest, and/or fines or filing penalties
as defined in Government Code section 12586.1. IRS extensions will be honored.

State Charity Registration Number: CT

Check if:

125089X

Change of address

FOUNDATION FOR PRADER-WILLI RESEARCH,INC

Amended report

Name of Organization

340 S LEMON AVENUE, NO. 3620

Corporate or Organization No.

3035979

Address (Number and Street)

WALNUT, CA

91789

Federal Employer I.D. No.

31-1763110

City or Town, State and ZIP Code

ANNUAL REGISTRATION RENEWAL FEE SCHEDULE (11 Cal. Code Regs. sections 301-307, 311 and 312)
Make Check Payable to Attorney General's Registry of Charitable Trusts
Fee

Gross Annual Revenue

Fee

Gross Annual Revenue

Fee

Less than $25,000
Between $25,000 and $100,000

0$25

Between $100,001 and $250,000
Between $250,001 and $1 million

$50
$75

Between $1,000,001 and $10 million
Between $10,000,001 and $50 million
Greater than $50 million

$150
$225
$300

PY

Gross Annual Revenue

PART A - ACTIVITIESFor your most recent full accounting period (beginning 01/01/2014
3,032,815. Total assets $Gross annual revenue $12/31/2014
3,824,434.

ending) list:PART B - STATEMENTS REGARDING ORGANIZATION DURING THE PERIOD OF THIS REPORT

1.

If you answer "yes" to any of the questions below, you must attach a separate sheet providing an explanationand details for each "yes" response. Please review RRF-1 instructions for information required.

CO

Note:

Yes

During this reporting period, were there any contracts, loans, leases or other financial transactions between the organization
and any officer, director or trustee thereof either directly or with an entity in which any such officer, director or trustee had
any financial interest?

No

X

2.

During this reporting period, was there any theft, embezzlement, diversion or misuse of the organization's charitable property
or funds?

3.

During this reporting period, did non-program expenditures exceed 50% of gross revenues?

4.

During this reporting period, were any organization funds used to pay any penalty, fine or judgment? If you filed a Form 4720
with the Internal Revenue Service, attach a copy.

X

5.

During this reporting period, were the services of a commercial fundraiser or fundraising counsel for charitable purposes used?
If "yes," provide an attachment listing the name, address, and telephone number of the service provider.

X

6.

During this reporting period, did the organization receive any governmental funding? If so, provide an attachment listing thename of the agency, mailing address, contact person, and telephone number.

X

7.

During this reporting period, did the organization hold a raffle for charitable purposes? If "yes," provide an attachment indicating
the number of raffles and the date(s) they occurred.

X

8.

Does the organization conduct a vehicle donation program? If "yes," provide an attachment indicating whether the program isoperated by the charity or whether the organization contracts with a commercial fundraiser for charitable purposes.

X

9.

Did your organization have prepared an audited financial statement in accordance with generally accepted accounting
principles for this reporting period?

Organization's area code and telephone number
Organization's e-mail address

XX

X

760-536-3027

INFO@FPWR.ORG

I declare under penalty of perjury that I have examined this report, including accompanying documents, and to the best of my knowledge and belief, it is true,correct and complete.

TOM COMPERE
Signature of authorized officer

42929105-01-14

Printed Name

TREASURER
Title

Date

RRF-1 (3-05)