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Privacy Policy

Any person accessing, browsing, or otherwise using the CFTR2 Web site http://www.cftr2.org (http://www.cftr2.org) ("Site") either manually or via an automated device orprogram, to the extent permitted hereunder, shall be considered a "User" under this privacy policy. All Users are bound by the terms of this privacy policy. The CFTR2 team("CFTR2"), the Cystic Fibrosis Foundation ("CFF"), and Johns Hopkins Hospital ("Johns Hopkins") are committed to protecting the privacy of our Users.
This privacy policy
discloses the privacy practices governing the use of information submitted to CFTR2, CFF, or Johns Hopkins through this Site. Capitalized terms shall have the meaning
designated in this privacy policy.
The Information We CollectAnonymous Browsing Information
You can browse the Site without revealing personal information that can be used to identify you. CFTR2, CFF or Johns Hopkins may collect non-personal informationsuch as your Internet Protocol ("IP") address, the name of the domain you used to access the Internet, the Web site you came from and the site you visit next (see "How We
Use It," below). However, CFTR2, CFF and Johns Hopkins do not associate any non-personal information with records containing any personal information submitted to us,
so you remain anonymous when you browse the Site.
Personal Information
CFTR2, CFF, or Johns Hopkins may collect personal information such as names, company names, titles, addresses, telephone numbers, fax numbers, e-mail addresses,
and payment information (such as credit card numbers) from Users. For example, CFF may collect personal information submitted through online application and event
registration and donation forms.
By submitting personal information to this Site, the User acknowledges that he or she has read this privacy policy, understands it, agrees
to its terms and authorizes CFTR2, CFF, and Johns Hopkins to collect, use and disclose personal information pursuant to the terms of this privacy policy.
CookiesThis Site may use cookies. A cookie is a small ﬁle that your Web browser places on your computer's hard drive. It functions as an identiﬁcation card, recording yourpasswords, purchases and preferences. Most browsers are initially set to accept cookies. You can set your browser to notify you when you receive a cookie, giving you achance to decide whether or not to accept it.
While CFTR2, CFF, or Johns Hopkins may use cookies to track your visit to the Site and our servers automatically log the IP
address of your computer, this information does not identify you personally and you remain anonymous, even if you have previously submitted personal information toCFTR2, CFF, or Johns Hopkins through the Site or otherwise.
Third parties whose Web sites are accessible through links on the Site may also use their own cookies
when you link to their site or service. CFTR2, CFF, and Johns Hopkins do not control these third parties' use of cookies and cannot guarantee that they will uphold the same
privacy standards as CFTR2, CFF or Johns Hopkins.
CFTR2, CFF, and Johns Hopkins expressly disclaim any and all liability related to the collection, use or disclosure ofinformation by third parties. You should review the privacy policies of any third party sites that you visit through a link from the CFTR2 Site to understand how they use
cookies and the information they collect through cookies.

How We Use It
Anonymous browsing information, including your IP address, may be used to gather broad demographic information. This information may be aggregated to measure thenumber of visits, average time spent, page views and other statistics about Users of the Site. We also may use this data to monitor Site performance and to make the Site easierand more convenient to use.
CFTR2 uses personal information collected from Users, such as names and e-mail addresses, to respond to User inquiries. CFF uses personal
information collected from Users, such as names and e-mail addresses, to respond to User inquires, to process User applications for grants or participation in CFF programs, toprocess User donations, to help organize fund-raising events and to inform Users of new programs and services.
Who We Share It With
Unless we have your consent or except as required by law, CFTR2, CFF, and Johns Hopkins will not share your personal information with any person or entity other than thoseaﬃliated with CFTR2, CFF, or Johns Hopkins, entities acting on behalf of CFTR2, CFF, or Johns Hopkins and relevant third parties such as CFF program participants andsponsors.
By submitting personal information through the Site, you authorize CFTR2, CFF, or Johns Hopkins to share this personal information for the purposes identiﬁed, suchas determining qualiﬁcations for grants, organizing fund-raising events, responding to User inquiries, processing donations, or determining eligibility for CFF programs.
If you do
not want CFF to disclose your personal information to third parties, you may opt-out by submitting a written request to CFF at Cystic Fibrosis Foundation, 6931 Arlington Road,
Bethesda, MD 20872, Attn: Communications Department.
If you opt-out, you may not be able to participate in or qualify for CFF grants, or fund-raising events or programs, you
may not receive the information you requested, and CFF may not be able to inform you of new programs, events, developments, products and services. CFTR2, CFF, or Johns
Hopkins may share non-personal, non-individual information in aggregate form with third parties.
Notwithstanding other provisions of this privacy policy, we may disclose
personal information in special cases when we have found it necessary to identify, contact or bring legal action against someone who may be violating any user agreement or may
be causing injury to or interference with CFTR2, CFF, or Johns Hopkins or its Users, or anyone else that could be harmed by such activities.
CFTR2, CFF and Johns Hopkins
reserve the right to disclose your personal information as explicitly set forth in this privacy policy or any user agreement agreed to by you, or as otherwise required by governmentor law enforcement oﬃcials. CFTR2, CFF, or Johns Hopkins can, and you hereby authorize us to, disclose any information to law enforcement or other parties that CFTR2, CFF, orJohns Hopkins in their sole discretion, believes is required or appropriate in order to comply with the law.
CFTR2, CFF, or Johns Hopkins may assign, sell, license, or otherwisetransfer to a third party, your name, address, e-mail address, and any other personal information in connection with an assignment, sale, joint venture, or other transfer ordisposition of a portion or all of the assets or stock of CFTR2, CFF, or Johns Hopkins or its aﬃliated entities.
Applicable Law/International Issues
Because we are committed to protecting your privacy, personal information that is submitted to this Site will be collected, processed, stored, disclosed and disposed of inaccordance with applicable U.S. law. If you are a non-U.S. user, you acknowledge and agree that we may collect and use your personal data and disclose it to other entities, as
discussed above in "Who We Share It With," outside your resident jurisdiction.
In addition, such personal information may be stored on servers located outside your resident
jurisdiction. U.S. law may not provide the degree of protection for personal information that is available in other countries. By providing us with your personal information, youacknowledge that your have read this privacy policy, understand it, agree to its terms and consent to the transfer of such information outside your resident jurisdiction.
If you do
not consent to the terms of this privacy policy, please do not use this Site, but if you have already provided us with personal information, please send us a written request to Cystic
Fibrosis Foundation, 6931 Arlington Road, Bethesda, MD 20872, Attn: Communications Department, or send an e-mail to info@cﬀ.org (mailto:info@cﬀ.org) and let us know how
you would like us to handle such information.
Opt-Out Policy
You may request not to be contacted by the CFF in connection with any new services, updates, programs or promotions. Requests not to be contacted by the CFF should besent in writing to: Cystic Fibrosis Foundation, 6931 Arlington Road, Bethesda, MD 20872, Attn: Communications Department, or send an e-mail to info@cﬀ.org(mailto:info@cﬀ.org). You also may make your request verbally by calling (800) FIGHT CF (344-4823).
SecurityThis Site has security measures in place to protect against the loss, misuse and alteration of information under our control. The Foundation employs industry-standard SSL
encryption software that encrypts all personal information transmitted via its website. Furthermore, all transactional data collected is protected against unauthorized access withthe use of digital certiﬁcates that are issued by VeriSign, a leader in the ﬁeld of Internet security and digital certiﬁcates.
However, we cannot guarantee that such security
measures will be suﬃcient, will not be breached, and that your personal information may not be disclosed or otherwise accessed in an unauthorized manner. Certain information
may be transmitted to you by electronic mail. Although it is illegal to intercept or disclose these messages under Federal law, these transmissions are not secured.
Policy Changes
This privacy policy may be modiﬁed. Any changes to the CFTR2 privacy policy will be posted on the Site. All information submitted through this Site is subject to the terms andconditions of this privacy policy, as it may be amended from time to time.
How to Contact Us
If you have any questions about the Site, our privacy policy or the information we collect, please contact us cftr2@jhmi.edu (mailto:cftr2@jhmi.edu)

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Please use the following reference when citing this website: The Clinical and Functional TRanslation of CFTR (CFTR2); available at http://cftr2.org.
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