Data as Shared Goods:
How can we contribute to shared values
Professor of Health Policy and Management, Keio University
Professor of Healthcare Quality Assessment, The University of Tokyo

Hiroaki MIYATA
Department of Health Policy and Management

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SchoolClosure

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SchoolClosure

CherryBlossom

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COvid-19: Operation for Personalized Empowerment to Render smart prevention
And care seeking [COOPERA]
Project summary

identical with WhatsApp
83 million users in Japan

This project uses the social networking service "LINE" to efficiently screen andfollow up high-risk groups of new coronaviruses (COVID-19) and patients withpotential coronaviruses, as well as to support patients with mild symptoms.
The system specifically implements the following three points:● Support for personalized self-care and prevention of secondary infections● Real-time follow-up● Population-level feedback and rapid identification of actions(For more details, see the supplementary material)
Department of Health Policy and Management

5COvid-19: Operation for Personalized Empowerment to Render smart prevention
And care seeking [COOPERA]
Project design

Provision of expertise andoperational support

Data provision
Outsourcing

Individual information
provision, consultation
supportPrefecturesof Japan

Report on the results tothe citizens of the country,
the prefecture, andrelated organizations

Data storage
Report on the resultsof the data analysis
Provision of data
storage space

Data storage and management
oversight, and data access

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COvid-19: Operation for Personalized Empowerment to Render smart prevention
And care seeking [COOPERA]
Questionnaire summary
There are two main questions on LINE:● Basic questions: whether the user have a current fever (>37.5°C) or astrong feeling of weariness (fatigue) or shortness of breath (difficultybreathing), and their durations, those in the past month, gender, age,
medical history, and recent overseas travel history, etc.

● Detailed questions: body temperature, symptoms, medications, risk-avoide
behavior, history of medical consultations, diagnostic results, stressassessment with K6, information on contact with infected persons in thevicinity, etc.

Screenshot of getting
consent to the survey○ According to the results of the responses, we recommend that the usershould consult with the local government's counselors, based on theguidelines set by the Ministry of Health, Labour and Welfare (MHLW),and provide information such as Q&A on COVID-19 from the MHLW.

○ Follow up with detailed questions sent daily to those with symptoms
and periodically to those without

Screenshot of thesurvey response scene
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Results of emergent survey for 25,000,000 people

Risk of each job group

Office worker andRetail business

Doctor, nurse andcare worker

Sales worker andFood business
Teachers and students
Under school closure

Stay at home jobs

Region Risk (Rate of Fever in general publics)
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8Rt compare with google mobility report

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Second wave has come since July

NCGM忽那医師作成

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General Data Protection Regulation (2018.5-)

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The era of human co-being: Upgrade Our Society

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Sensitivity Level: 0: High - 4: Low
Weather,temperature,humidity, pressure

Level 1
Medicalrecord（EMR）

Prescriptio
n dataBio-bank
Bloodtissue

Subjective Level 2
symptoms
Dose record(fever, runnynose)

Data about the quality of diagnosis,
treatment, other services

Diet, calorie info.

Diagnosis/treatment
Support modules

Health-relatedinfo. delivery
pill search

Data on elderly
care, rehab.,medical check-up

GPS
Location info.
(watching forthe elder)sleep

Exercise,pedometer

Side-effect reportdelivery function

Other tailormadeinfo. delivery

Level 3Pollen,
Yellow sandLevel 4
Wearable, sensing,environmental sensing
technology

Smart phone applications (common OS)

Regional healthcare
alliance support
func.

Decision support,
Second opinion info.,
Pain control support

E-medicine notebook(w/ side-effect info.)
reminder functions

Healthy behavior
support application

Data transaction
among companies

Consent to participate
Linkage Platform

Individual

Basic info. registration
Sex, date of birth
Address, phone No. Level 0
Income, household info. Level 1

Building DBs for different purposes(analysis on disease mechanism, board ofcertification checking, new drug
development, safety management, etc.)

They can check a person’s sensitive dataaccording to disclosure levels
if s/he gives a permission key tothe professionals.

Healthcare providers(doctors, dentists,Pharmacist etc.)

CosteffectivenessanalysisUse of registered data
Setting disclosure level
To whom to show

IndividualAPI

Key for different disclosure levels

Extracting specific
DB (usuallyanonymous)

Registration procedure

For various
stakeholders

Use of data
Regional
healthcarealliance- Business use- Public health
Department of Health Policy and Management- Research Corporaions, government, academia

The Japanese Government's Commitment to PHRs
• Through Mynaportal, Japanese government-run online services, personal health data from birthto school, workplace... will be utilized by individual for prevention, health promotion, etc.

• Japanese government is considering environmental improvements, including rules making which
are necessary for private businesses to promote proper and effective utilization of PHRs.

Matters to consider for proper utilization

Lifelong health data

Mynaportal
Company Ａ

vaccinatedrecordDruginformation

Lifelog data

Surgery etc.

DataCompany ＢSecurity
Medical examination
MedicalInfantSpecial
medical checkup
Examinatio
medicalexamination n in school / Cancer screening

Utilization

Use it to improve yourown health while
consulting with medical
professionals

Appropriate handling of
personal information
Record, reading

With Covid-19
New normal

Recommendation
function・・・

Supports
selfmanagement
such asbehaviorchangeUtilize health data for health ・ prevention ・ prevention of aggravation
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Hospital A
Breast Surgery

2. Confirming recommended treatment
Sending alert on non-applicable treatment
Giving advice on effective post-op. treatment
With genotype and phenotype data added on,
the BEST treatment option is achieved for andonly for the patient in front of you

1. Data entryat Treatment

Central System
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Life as value with Pokémon and Niantic

1 billion users in world!

Sleeping got to be a fun!
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Re-invent our Lives
Not only disease management, but also wellbeing empowerment

Past

Hospital-enclosed

Communicable disease)Younger population

Present

Next generation

Community-based

Person-centered(Anytime, anywhere throughglobal alliance)

Non communicable disease

Re-invent our lives(Including pre-diagnosis phaseand healthy life

Older population

Leaving no one behind(Vulnerable and marginalizedpopulations)
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Independent Nonprofit Public Trust●

CommmonHealth is the Android platform that lets people
collect and store their personal health data and share it
securely with the health partners they trust●

Data is only shared with clear, informed consent

The CommonHealth model was recently featured in the New
England Journal of Medicine.

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