# GDPR-compliant sharing of human neuroimaging data using Shanoir

Camille Maumet

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## To cite this version:

Camille Maumet. GDPR-compliant sharing of human neuroimaging data using Shanoir. EOSC 2024 - France Tripartite Event, Sep 2024, Paris, France. 42, pp.1945 - 1951, 2021. [hal-04698499](https://hal-04698499v1)

HAL Id: hal-04698499

https://inria.hal.science/hal-04698499v1

Submitted on 16 Sep 2024

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Distributed under a Creative Commons Attribution 4.0 International License
# GDPR-compliant sharing of human neuroimaging data using Shanoir

shanoir

presented by Camille Maumet at EOSC France Tripartite Event (Sept. 2024)

## A web-platform for medical imaging data

With the impetus towards a more **open science**, researchers are looking for practical solutions to share more data in support of their findings. In the field of **brain imaging**, European researchers must comply with the General Data Protection Regulation (GDPR) when sharing human neuroimaging data.

We present **Shanoir**, a long-standing open source web-platform for medical imaging data that can be used to share neuroimaging data in compliance with GDPR.

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Open Source
Software

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Shared
governance

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Compliant with
GDPR

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https://project.inria.fr/neurinfo/

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OFSEP
Observatoire Français
de la Sclérose en Plaques

## Data sharing with Shanoir

Brain images

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Directly identifiable
information removed

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3D image

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Non anonymous (**Individualisation**)
Data sharing must comply with **GDPR**

(Open Brain Consent, HBM 2021)

### 3 steps

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1- List shared datasets

https://shanoir.irisa.fr/

Data User Agreement

Signed by researchers

"[...] I will **not** attempt to [...] retrieve the identity of the study participants."

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3- Access the data

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2- Sign the Data User Agreement

## Further resources

Shanoir is Open Source software: https://github.com/fli-iam/shanoir-ng

Developments are led by a community of members through the **Shanoir Consortium**: https://project.inria.fr/shanoir/consortium/

## References

Barillot, C., Bannier, E., Commowick, O., Corouge, I., Baire, A., Fakhfakh, I., Guillaumont, J., Yao, Y., & Kain, M. (2016). Shanoir: Applying the Software as a Service Distribution Model to Manage Brain Imaging Research Repositories. Frontiers in ICT, 3. https://doi.org/10.3389/fict.2016.00025

Commowick, O., Cervenansky, F., Cotton, F., & Dojat, M. (2021). MSSEG-2 challenge proceedings: Multiple sclerosis new lesions segmentation challenge using a data management and processing infrastructure.

Commowick, O., Istace, A., Kain, M., Laurent, B., Leray, F., Simon, M., Pop, S. C., Girard, P., Améli, R., Ferré, J.-C., Kerbrat, A., Tourdias, T., Cervenansky, F., Glatard, T., Beaumont, J., Doyle, S., Forbes, F., Knight, J., Khademi, A., ... Barillot, C. (2018). Objective Evaluation of Multiple Sclerosis Lesion Segmentation using a Data Management and Processing Infrastructure. Scientific Reports, 8(1), 13650. https://doi.org/10.1038/s41598-018-31911-7

Commowick, O., Kain, M., Casey, R., Ameli, R., Ferré, J.-C., Kerbrat, A., Tourdias, T., Cervenansky, F., Camarasu-Pop, S., Glatard, T., Vukusic, S., Edan, G., Barillot, C., Dojat, M., & Cotton, F. (2021). Multiple sclerosis lesions segmentation from multiple experts: The MICCAI 2016 challenge dataset. NeuroImage, 244, 118589. https://doi.org/10.1016/j.neuroimage.2021.118589

Open Brain Consent. (2021). The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data. Human Brain Mapping. https://doi.org/10.1002/hbm.25351

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RÉPUBLIQUE
FRANÇAISE
Liberté
Égalité
Fraternité

Inria

Shanoir core development is supported by
**Shanoir Consortium (InriaSoft)** and **FLI-IAM**

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France Life Imaging