# Flash Talks/Poster session: GDPR-compliant human neuroimaging data sharing using Shanoir

Camille Maumet

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## To cite this version:

Camille Maumet. Flash Talks/Poster session: GDPR-compliant human neuroimaging data sharing using Shanoir. EOSC 2024 - France Tripartite Event, Sep 2024, Paris, France. 2024. hal-04700527

HAL Id: hal-04700527

https://inria.hal.science/hal-04700527v1

Submitted on 17 Sep 2024

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Flash Talks/Poster session

GDPR-compliant human
neuroimaging data sharing
using Shanoir

Camille Maumet

Inria, Univ Rennes, Inserm, CNRS, IRISA

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# 10 years of brain data sharing...

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10 years of brain data sharing...

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2014

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2024

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## Why sharing neuroimaging data?

Power of neuroscience studies

<figure><img src="image_8.png" /><figcaption>(Button et. al, 2013)</figcaption></figure>

## Small samples and low statistical power

Sample sizes in neuroimaging

<figure><img src="image_9.png" /><figcaption>(Poldrack et. al, 2013)</figcaption></figure>

High rate of **false positives** in the literature
<figure><img src="image_10.png" /></figure>

## Why sharing neuroimaging data?

Power of neuroscience studies

<figure><img src="image_11.png" /></figure>

(Button et. al, 2013)

## Small samples and low statistical power

Sample sizes in neuroimaging

<figure><img src="image_12.png" /></figure>

(Poldrack et. al, 2013)

High rate of **false positives** in the literature

<figure><img src="image_13.png" /></figure>

**Solution:** Data sharing to get to larger samples
# Neuroimaging data sharing

Single study

30 sub.

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OpenNEURO

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NEUROVAULT

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NITRC

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OSF
# Neuroimaging data sharing

Single study

30 sub.

<figure><img src="image_19.png" /></figure>

OpenNEURO

<figure><img src="image_20.png" /></figure>

NEUROVAULT

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NITRC

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OSF

Consortium

1000 sub.

<figure><img src="image_23.png" /></figure>

ABIDE

Autism Brain Imaging
Data Exchange

1000 Functional

Connectomes Project

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CRR

CONSORTIUM FOR
RELIABILITY AND
REPRODUCIBILITY

<figure><img src="image_25.png" /></figure>
# Neuroimaging data sharing

Single study
30 sub.

<figure><img src="image_26.png" /></figure>

<figure><img src="image_27.png" /></figure>

NEUROVAULT

<figure><img src="image_28.png" /></figure>

<figure><img src="image_29.png" /></figure>

Consortium
1000 sub.

<figure><img src="image_30.png" /></figure>

ABIDE

Autism Brain Imaging
Data Exchange

<figure><img src="image_31.png" /></figure>

CRR

CONSORTIUM FOR
RELIABILITY AND
REPRODUCIBILITY

1000 Functional

Connectomes Project

<figure><img src="image_32.png" /></figure>

Cohort
100 000 sub.

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HUMAN
Connectome
PROJECT

biobank™
# 10 years of brain data sharing...

<figure><img src="image_34.png" /></figure>

Why sharing neuroimaging data?

<figure><img src="image_35.png" /></figure>
# 10 years of brain data sharing...

<figure><img src="image_36.png" /></figure>

<figure><img src="image_37.png" /></figure>

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Why sharing neuroimaging data?

Generalizability and fairness

<figure><img src="image_39.png" /><figcaption>X-ray: Lung opacity detection</figcaption></figure>

Model trained on male images, tested on female images

(Larrazabal et. al, 2020)

Biased models
# 10 years of brain data sharing...

<figure><img src="image_40.png" /></figure>

<figure><img src="image_41.png" /></figure>

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## Why sharing neuroimaging data?

### Generalizability and fairness

**X-ray: Lung opacity detection**

Model trained on male images, tested on female images

<figure><img src="image_44.png" /></figure>

(Larrazabal et. al, 2020)

Biased models

<figure><img src="image_45.png" /></figure>

**Solution:** Decentralized data sharing to get **more diverse samples**
# 10 years of brain data sharing...

<figure><img src="image_46.png" /></figure>

## Why sharing neuroimaging data?

<figure><img src="image_47.png" /></figure>

## Generalizability and fairness

<figure><img src="image_48.png" /><figcaption>X-ray: Lung opacity detection</figcaption></figure>

Model trained on male images, tested on female images

(Larrazabal et. al, 2020)

### Biased models

<figure><img src="image_49.png" /></figure>

**Solution:** Decentralized data sharing to get more diverse samples

<figure><img src="image_50.png" /></figure>

## Web-based application for **medical imaging storage** and

* Share data with a **Data user** agreement

* Open source software

* Shared governance
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MINISTÈRE
DE L'ENSEIGNEMENT
SUPÉRIEUR
ET DE LA RECHERCHE

Liberté
Égalité
Fraternité

Inria

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Institut
Henri
Poincaré

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Funded by
the European Union

Flash Talks/Poster session

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GDPR-compliant human
neuroimaging data sharing
using Shanoir

Camille Maumet

Shanoir core development is supported by:
Shanoir Consortium (InriaSoft) and FLI-IAM

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RÉPUBLIQUE
FRANÇAISE

Liberté
Égalité
Fraternité

Inria

FLi

France Life Imaging

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@cmaumet.bsky.social

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@cmaumet@fediscience.org

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@cmaumet