Lobbying registration dated 2026-03-25
Registrant: Nicola Worsfold
Client: The Jesse Davidson Foundation - Defeat Duchenne Canada
Targeted institutions:
Health Canada (HC)
Prime Minister's Office (PMO)
House of Commons
Patented Medicine Prices Review Board (PMPRB)
Accessibility Standards Canada
Government funding received:
Lobbying activity details:
Access to treatments for Duchenne muscular dystrophy
Develop an expedited and economical pathway to encourage industry to apply to Health Canada for approval of treatments for Duchenne muscular dystrophy.
Discuss partnership/cost sharing ideas to increase immediate access to Duchenne treatment abroad.