A bill to establish the National Alzheimer's Project.

SECTION 1. SHORT TITLE.
    This Act may be cited as the ``National Alzheimer's Project Act''.
SEC. 2. THE NATIONAL ALZHEIMER'S PROJECT.
    (a) Definition of Alzheimer's.--In this Act, the term 
``Alzheimer's'' means Alzheimer's disease and related dementias.
    (b) Establishment.--There is established in the Office of the 
Secretary of Health and Human Services the National Alzheimer's Project 
(referred to in this Act as the ``Project'').
    (c) Purpose of the Project.--The Secretary of Health and Human 
Services, or the Secretary's designee, shall--
        (1) be responsible for the creation and maintenance of an 
    integrated national plan to overcome Alzheimer's;
        (2) provide information and coordination of Alzheimer's 
    research and services across all Federal agencies;
        (3) accelerate the development of treatments that would 
    prevent, halt, or reverse the course of Alzheimer's;
        (4) improve the--
            (A) early diagnosis of Alzheimer's disease; and
            (B) coordination of the care and treatment of citizens with 
        Alzheimer's;
        (5) ensure the inclusion of ethnic and racial populations at 
    higher risk for Alzheimer's or least likely to receive care, in 
    clinical, research, and service efforts with the purpose of 
    decreasing health disparities in Alzheimer's; and
        (6) coordinate with international bodies to integrate and 
    inform the fight against Alzheimer's globally.
    (d) Duties of the Secretary.--
        (1) In general.--The Secretary of Health and Human Services, or 
    the Secretary's designee, shall--
            (A) oversee the creation and updating of the national plan 
        described in paragraph (2); and
            (B) use discretionary authority to evaluate all Federal 
        programs around Alzheimer's, including budget requests and 
        approvals.
        (2) National plan.--The Secretary of Health and Human Services, 
    or the Secretary's designee, shall carry out an annual assessment 
    of the Nation's progress in preparing for the escalating burden of 
    Alzheimer's, including both implementation steps and 
    recommendations for priority actions based on the assessment.
    (e) Advisory Council.--
        (1) In general.--There is established an Advisory Council on 
    Alzheimer's Research, Care, and Services (referred to in this Act 
    as the ``Advisory Council'').
        (2) Membership.--
            (A) Federal members.--The Advisory Council shall be 
        comprised of the following experts:
                (i) A designee of the Centers for Disease Control and 
            Prevention.
                (ii) A designee of the Administration on Aging.
                (iii) A designee of the Centers for Medicare & Medicaid 
            Services.
                (iv) A designee of the Indian Health Service.
                (v) A designee of the Office of the Director of the 
            National Institutes of Health.
                (vi) The Surgeon General.
                (vii) A designee of the National Science Foundation.
                (viii) A designee of the Department of Veterans 
            Affairs.
                (ix) A designee of the Food and Drug Administration.
                (x) A designee of the Agency for Healthcare Research 
            and Quality.
            (B) Non-federal members.--In addition to the members 
        outlined in subparagraph (A), the Advisory Council shall 
        include 12 expert members from outside the Federal Government, 
        which shall include--
                (i) 2 Alzheimer's patient advocates;
                (ii) 2 Alzheimer's caregivers;
                (iii) 2 health care providers;
                (iv) 2 representatives of State health departments;
                (v) 2 researchers with Alzheimer's-related expertise in 
            basic, translational, clinical, or drug development 
            science; and
                (vi) 2 voluntary health association representatives, 
            including a national Alzheimer's disease organization that 
            has demonstrated experience in research, care, and patient 
            services, and a State-based advocacy organization that 
            provides services to families and professionals, including 
            information and referral, support groups, care 
            consultation, education, and safety services.
        (3) Meetings.--The Advisory Council shall meet quarterly and 
    such meetings shall be open to the public.
        (4) Advice.--The Advisory Council shall advise the Secretary of 
    Health and Human Services, or the Secretary's designee.
        (5) Annual report.--The Advisory Council shall provide to the 
    Secretary of Health and Human Services, or the Secretary's designee 
    and Congress--
            (A) an initial evaluation of all federally funded 
        efforts in Alzheimer's research, clinical care, and 
        institutional-, home-, and community-based programs and their 
        outcomes;
            (B) initial recommendations for priority actions to expand, 
        eliminate, coordinate, or condense programs based on the 
        program's performance, mission, and purpose;
            (C) initial recommendations to--
                (i) reduce the financial impact of Alzheimer's on--

                    (I) Medicare and other federally funded programs; 
                and
                    (II) families living with Alzheimer's disease; and

                (ii) improve health outcomes; and
            (D) annually thereafter, an evaluation of the 
        implementation, including outcomes, of the recommendations, 
        including priorities if necessary, through an updated national 
        plan under subsection (d)(2).
        (6) Termination.--The Advisory Council shall terminate on 
    December 31, 2025.
    (f) Data Sharing.--Agencies both within the Department of Health 
and Human Services and outside of the Department that have data 
relating to Alzheimer's shall share such data with the Secretary of 
Health and Human Services, or the Secretary's designee, to enable the 
Secretary, or the Secretary's designee, to complete the report 
described in subsection (g).
    (g) Annual Report.--The Secretary of Health and Human Services, or 
the Secretary's designee, shall submit to Congress--
        (1) an annual report that includes an evaluation of all 
    federally funded efforts in Alzheimer's research, clinical care, 
    and institutional-, home-, and community-based programs and their 
    outcomes;
        (2) an evaluation of all federally funded programs based on 
    program performance, mission, and purpose related to Alzheimer's 
    disease;
        (3) recommendations for--
            (A) priority actions based on the evaluation conducted by 
        the Secretary and the Advisory Council to--
                (i) reduce the financial impact of Alzheimer's on--

                    (I) Medicare and other federally funded programs; 
                and
                    (II) families living with Alzheimer's disease; and

                (ii) improve health outcomes;
            (B) implementation steps; and
            (C) priority actions to improve the prevention, diagnosis, 
        treatment, care, institutional-, home-, and community-based 
        programs of Alzheimer's disease for individuals with 
        Alzheimer's disease and their caregivers; and
        (4) an annually updated national plan.
    (h) Sunset.--The Project shall expire on December 31, 2025.

                               Speaker of the House of Representatives.

                            Vice President of the United States and    
                                               President of the Senate.

Summary: National Alzheimer's Project Act - Establishes in the Office of the Secretary of Health and Human Services (HHS) the National Alzheimer's Project. Requires the Secretary to: (1) be responsible for the creation and maintenance of an integrated national plan to overcome Alzheimer's. (2) provide information and coordination of Alzheimer's research and services across all federal agencies. (3) accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer's. (4) improve the early diagnosis of Alzheimer's disease and coordination of the care and treatment of citizens with Alzheimer's. (5) ensure the inclusion of ethnic and racial populations at higher risk for Alzheimer's, or least likely to receive care for Alzheimer's, in clinical, research, and service efforts with the purpose of decreasing health disparities in Alzheimer's. And (6) coordinate with international bodies to integrate and inform the fight against Alzheimer's globally. Directs the Secretary to:(1) use discretionary authority to evaluate all federal programs around Alzheimer's, including budget requests and approvals. And (2) annually assess the nation's progress in preparing for the escalating burden of Alzheimer's. Establishes an Advisory Council on Alzheimer's Research, Care, and Services to advise the Secretary and provide the Secretary and Congress with: (1) an initial evaluation of all federally -funded efforts in Alzheimer's research, clinical care, and institutional-, home-, and community-based programs and their outcomes. (2) initial recommendations for priority actions to expand, eliminate, coordinate, or condense programs based on their performance, mission, and purpose. (3) initial recommendations to improve health outcomes and reduce the financial impact of Alzheimer's on Medicare and other federally-funded programs and on families living with Alzheimer's disease. And (4) an annual evaluation of the implementation and outcomes of the recommendations through an updated national plan. Terminates the Advisory Council on December 31, 2025. Directs federal agencies to share Alzheimer's data with the Secretary. Sets forth reporting requirements. Terminates the Project on December 31, 2025.