A bill to revise and extend the Birth Defects Prevention Act of 1998.

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Birth Defects and Developmental 
Disabilities Prevention Act of 2002''.

SEC. 2. NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL 
              DISABILITIES.

    Section 317C of the Public Health Service Act (42 U.S.C. 247b-4) is 
amended--
            (1) in subsection (a)(2)--
                    (A) in subparagraph (A)--
                            (i) by striking ``and developmental 
                        disabilities'' and inserting ``, developmental 
                        disabilities, and disabilities and health''; 
                        and
                            (ii) by striking ``subsection (d)(2)'' and 
                        inserting ``subsection (c)(2)'';
                    (B) in subparagraph (B), by striking ``and'' at the 
                end;
                    (C) in subparagraph (C), by striking the period; 
                and
                    (D) by adding at the end the following:
                    ``(D) to conduct research on and to promote the 
                prevention of such birth defects, disabilities, and the 
                prevention of secondary health conditions among 
                individuals with disabilities; and
                    ``(E) to support a National Spina Bifida Program to 
                prevent and reduce suffering from the nation's most 
                common permanently disabling birth defect.'';
            (2) by striking subsection (b);
            (3) in subsection (d)--
                    (A) in the matter preceding paragraph (1), by 
                striking ``1999'' and inserting ``2004'';
                    (B) by striking paragraph (1) and inserting the 
                following:
            ``(1) contains information regarding the incidence and 
        prevalence of birth defects, developmental disabilities, and 
        the health status of individuals with disabilities and the 
        extent to which these conditions have contributed to the 
        incidence and prevalence of infant mortality and affected 
        quality of life;'';
                    (C) in paragraph (3), by inserting ``, 
                developmental disabilities, and secondary health 
                conditions among individuals with disabilities'' after 
                ``defects'';
                    (D) in paragraph (4), by striking ``and'' at the 
                end;
                    (E) by redesignating paragraph (5) as paragraph 
                (7); and
                    (F) by inserting after paragraph (4), the 
                following:
            ``(5) contains information on the incidence and prevalence 
        of individuals living with birth defects and disabilities, 
        developmental disabilities, and the health status of 
        individuals with disabilities, any health disparities 
        experienced by such individuals, and recommendations for 
        improving the health and wellness and quality of life of such 
        individuals;
            ``(6) contains a summary of recommendations from all birth 
        defects research conferences sponsored by the agency including 
        conferences related to spina bifida; and'';
            (4) in subsection (e)--
                    (A) by inserting ``, including section 444 of the 
                General Education Provisions Act,'' after ``privacy of 
                information''; and
                    (B) by inserting before the period the following: 
                ``, except that the Centers for Disease Control and 
                Prevention shall have access to information under 
                section 444(b)(1)(F) of such Act solely for purposes of 
                carrying out subsection (a)(2) of this section and 
                shall otherwise comply with all other requirements of 
                such section 444'';
            (5) by redesignating subsections (c), (d), and (e) as 
        subsections (b), (c), and (d), respectively;
            (6) by inserting after subsection (d) (as so redesignated), 
        the following:
    ``(e) Advisory Committee.--Notwithstanding any other provision of 
law, the members of the advisory committee appointed by the Director of 
the National Center for Environmental Health that have expertise in 
birth defects, developmental disabilities, and disabilities and health 
shall be transferred to and shall advise the National Center on Birth 
Defects and Developmental Disabilities on the date of enactment of the 
Birth Defects and Developmental Disabilities Prevention Act of 2002.''; 
and
            (7) in subsection (f), by striking ``$30,000,000'' and all 
        that follows and inserting ``such sums as may be necessary for 
        each of fiscal yeas 2003 through 2007.''.

SEC. 3. TECHNICAL CORRECTIONS FOR STATE COUNCILS ON DEVELOPMENTAL 
              DISABILITIES

    Section 122(a) of the Developmental Disabilities Assistance and 
Bill of Rights Act of 2000 (42 3 U.S.C. 15022(a)) is amended--
            (1) in paragraph (3)(A)(ii), by inserting before the period 
        the following: ``, the amount received by the State for the 
        previous year, or the amount of Federal appropriations received 
        in fiscal years 2000, 2001, or 2002, whichever is greater''; 
        and
            (2) in paragraph (4)(A)(ii), by inserting before the period 
        the following: ``, the amount received by the State for the 
        previous year, or the amount of Federal appropriations received 
        in fiscal years 2000, 2001, or 2002, whichever is greater''.

            Passed the Senate October 2, 2002.

            Attest:

                                                  JERI THOMSON,

                                                             Secretary.

Summary: Birth Defects and Developmental Disabilities Prevention Act of 2002 - Amends Public Health Service Act provisions concerning the National Center on Birth Defects and Developmental Disabilities to add disabilities and health to categories of data with regard to which the Secretary of Heath and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect. Removes certain provisions regarding data collection, including one requiring the Secretary to collect and analyze data by gender and ethnic and racial group. Modifies reporting requirements, including to require the Secretary to report to Congress on the incidence and prevalence of individuals living with developmental disabilities and the health status of such individuals. Declares that certain data and information collected under the Act shall be subject to a specified provision of the General Education Provisions Act pertaining to privacy. Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health shall be transferred to and shall advise the National Center on Birth Defects on the date of the enactment of this Act. Authorizes appropriations through FY 2007. Amends the Developmental Disabilities Assistance and Bill of Rights Act of 2000 to revise provisions concerning allotments to State councils on developmental disabilities.