Health Care for People with Intellectual and Developmental Disabilities across the Lifespan [electronic resource] /
Rubin, I. Leslie.editor.
Merrick, Joav.editor.
Greydanus, Donald E.editor.
Patel, Dilip R.editor.
This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd, and much expanded edition, of a text that was first published by Rubin and Crocker in 1989 (Lea and Fibiger). The second edition was published by Rubin and Crocker in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out. .
Description based upon print version of record.
Includes bibliographical references at the end of each chapters.
Foreword; David Satcher -- Tribute to Allan Crocker; I. Leslie Rubin -- Introduction to the volume; I. Leslie Rubin -- Part I. Systems of Delivery Health Care -- Chapter 1. Introduction to Intellectual and Developmental Disabilities; Dilip R. Patel, Donald Greydanus, Joav Merrick and I. Leslie Rubin -- Chapter 2. Health is More Than Medicine; Donald J. Lollar and Randall A. Phelps -- Chapter 3. Health of Health Care for People with Intellectual and Developmental Disability; Wendy M. Nehring and Brandi Lindsey -- Chapter 4. Family Centered Care -- 4.1. Family Centered Care in a Health Care Setting; Catherine de Haas and Ruth Ryan -- 4.2. Siblings of Children and Adults with Intellectual and Developmental Disability; Monica McCaffrey -- 4.3. Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities; LaShawnDa Pittman, Janice Nodvin and Maeve Howett -- 4.4. Aging Parents; Nancy S. Jokinen -- 4.5. Rights of Individuals with Disability to Parenthood; Karen McKenzie, Laura Shewan and Suzanne Wilson -- 4.6. Foster Care; Julie Dini -- 4.7. Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach; Stacey Ramirez, Staeshe Collins and Brenda Liz Muñoz -- Chapter 5. Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities across the Lifespan; Georgina Peacock and Cheryl Rhodes -- Chapter 6. International Classification of Function; Margaret Kyrkou -- Chapter 7. Systems of Health Care Delivery -- 7.1. Clinical Settings for Health Care Delivery; Stephen B. Sulkes -- 7.2. Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings; Daniel Crimmins and Akilah Heggs -- 7.3. International Perspectives on the Delivery of Health Care; David O´Hara -- 7.4. Health Care Financing; David Ervin -- 7.5. Systems of Health Care Delivery: Community Setting; Rosemary M. Caron -- 7.6. Models for Care for Children with Medical Complexity; Melinda Morin, Justin Alvey, Nancy Murphy and Laurie Glader -- 7.7. School Settings; Jeffrey Okamoto -- 7.8. Health Care Transition; David Wood, Linda R. Edwards and Brian Hennen -- 7.9. Community Healthcare; David A. Ervin and Brian Hennen -- 7.10. Nursing Home Settings; Nursing Home Settings; Sandra Friedman -- 7.11. Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives; James Conroy, Steven J. Dale and Robert McCaffrey -- 7.12. Large Residential Facilities; Norberto Alvarez -- 7.13. Community Nursing; Joan Earle Hahn and Laura E. Fox. 7.14. Medical Home; Liz Grier -- Chapter 8. Principles of Care and Ethics; Peter J. Smith -- Chapter 9. Practicalities of Care. 9.1. Practicalities of Care for Adults with Ïntellectual and Developmental Disabilities; Peter Lindsay and Matt Hoghton.' 9.2. Electronic Medical Records; Stephen B. Sulkes -- Chapter 10. Intellectual Disability and the Environment -- 10.1. The Environment; J. Carolyn Graff and Jeffrey A. Foran -- 10.2. Fetal Environment and Risks for Intellectual and Developmental Disabilities; I. Leslie Rubin -- Chapter 11. Built Environments for Improving Human Development and Promoting Health and Quality of Life; Chris Kochtitzsky and Michele Crachiola -- Chapter 12. Public Health Perspectives on Intellectual and Developmental Disabilities; Gloria L. Krahn and Michael H. Fox -- Chapter 13. International Perspectives -- 13.11. Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium; Koen Hermans and Anja Declerq -- 13.2. Service for People with Intellectual Disability in the United Kingdom; Hardeep Uppal and Vee P. Prasher -- 13.3. People with Developmental Disabilities in the United States of America; Gloria L. Krahn and Lynda B. Bersani -- Chapter 13.4. Former Soviet Union; Naira Avetisyan -- 13.5. Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan; Kuo yu Wang -- 13.6. Intellectual Disability in India: Recent Trends in Care and Services; Satish C. Girimaji and John VS Kommu -- 13.7. Hong Kong, PRC; Ben MF Law and Daniel TL Shek -- 13.8. Israel; Joav Merrick and Mohammed Morad -- 13.9. Canada; Ian Casson, Theresa Broda, Jessica Jones, Alvin Loh, Bruce McCreary, Ullanda Niel and C. Ruth Wilson -- 13.10. Organization of Services and Life-Long Health Care: Japan; Shigeru Suemitsu and Susumu Uehara -- 13.11. Special-Needs Education, Special Care, and Education for Physicians in Finland; Markus Kaski -- 13.12. South America. A Service Example from Lima, Peru; Liliana Mayo and Judith M. LeBlanc -- 13.13. Status of Legislation and Services in Turkey across the Lifespan; Kerim M. Munir -- 13.14. Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands; Frans VPM Ewals and Sylvia A Huisman -- 13.15. International Perspectives: Chile; Rosario Moore, Patricia M Valenzuela, Maria A Paul and Macarena Lizama -- 13.16. Services for Persons with Intellectual and DEvelopmental Disabilities in Italy; Fabrizio Fea -- 13.17. Denmark. A Historic Journey; Joav Merrick, Peter Uldall and Jakob Volther -- 13.18. Service and Care in Australia; Robert W. Davis -- 13.19. Africa; I Leslie Rubin -- Part II. Clinical Care -- Chapter 14. Developmental and Functional Evaluation and Assessment; Dilip R. Patel and Cora M. Taylor -- Chapter 15. Communication with Patients, Parents and Other Caregivers; Sheridan Forster -- Chapter 16. Inborn Errors of Metabolism -- 16.1. Newborn Screening; Geoffrey R. DeTolve -- 16.2. The Mucopolysaccharoidoses; Robert Conway -- 16.3. The Sphingolipidoses; Robert Conway -- 16.4. Mitochondrial Disorders; Frances D. Kendall -- Chapter 17. Genetics and Genetic Syndromes.' 17.1. What is New in Genetics and Genomics?; Helga V. Toriello -- 17.2. Autism and Genetics; Helga V. Toriello -- 17.3. 22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder; Joseph F. Cubells -- 17.4. Genetic Counseling; Sarah L. Klemm and Jennifer Fulbright -- Chapter 18. Syndromes -- 18.1. Down Syndrome; Brian G. Skotko and Ariel Tenenbaum -- 18.2. Fragile X. Syndrome; Emma Hare, Reymundo Lozano, Lindsey Partington and Randi J. Hagerman -- 18.3. Rett Syndrome: Seeing the Way Forward; Alan K. Percy -- 18.4. Prader Willi Syndrome; Randell Alexander -- 18.5. Williams Syndrome; Elaine Pereira, Robert Marion and Barbara R. Pober -- 18.6. Angelman Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.7. Smith-Magenis Syndrome; Donald E. Greydanus and Joav Merrick -- 18.8. Noonan Syndrome; Jacqueline A. Noonan -- 18.9. Phakomatoses; Bruce Korf -- 18.10. Spina Bifida; Robert A. Jacobs, Alexis Deavonport, Kathryn Smith and Alex Van Speybroeck -- 18.11. Fetal Alcohol Syndrome; Ariel Tenenbaum, Isaiah Wexler and Joav Merrick -- 18.12. Other Syndromes -- 18.12.1. Lowe Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.12.2. Nager Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.12.3. Sturge-Weber Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson -- 18.12.4. Klinefelter Syndrome; Vandana Raman -- 18.12.5. Cornelia de Lange Syndrome; Elizabeth Poplawski -- Chapter 19. Prematurity and Ist Consequences; I. Leslie Rubin -- Chapter 20. Cerebral Palsy; Sarah Winter -- Chapter 21. Neurological Disorder -- 21.1. Congenital Anomalies of the Brain; Ayelet Halevy, Osnot Konen and Aviva Mimouni-Bloch -- 21.2. Epilepsy; Norberto Alvarez -- 21.3. Sleep disorders; Norberto Alvarez -- 21.4. Movement Disorders; Paula D. Ravin -- 21.5. Dementia and Alzheimer’s Disease; Norberto Alvarez -- 21.6. Peripheral Nerve Disorders; Norberto Alvarez -- Chapter 22. Physiatry and Function -- 22.1. Pediatric Aspects of Physiatry and Function; Joshua Vova and Maurice G. Sholas -- 22.2. Psychiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities; Dale C. Strasser, Laura Jones and Mitchel Leavitt -- Chapter 23. Developmental Therapies and Functional Assistance -- 23.1. Allied Health Professionals; Meir Lotan -- 23.2. Occupational Therapy; Sharon A. Cermak and Ann E. Borreson -- 23.3. Physical Therapy; Priscilla S. Osborne and Meir Lotan -- 23.4. Speech Language Pathology: Supports to Communication; John M. Costello and Howard C. Shane -- Chapter 24. Health Promotion; James H. Rimmer and Kelly Hsieh -- Chapter 25. Orthopaedic Considerations; Karen M. 
Bovid and Dilip R. Patel -- Chapter 26. Dermatology; Brian P. Pollack, Leslie P. Lawley, Jenna Streicher, Jason Hadley and Jack L. Arbiser -- Chapter 27. Eye and Vision Care; Laura Gwatkin -- Chapter 28. Dentistry; Ilan Feldberg and Joav Merrick -- Chapter 29. Otolaryngology -- 29.1 Hearing Impairment; Peter Chung, Shibani Kanungo and Dilip R. Patel -- 29.2 Otolaryngology; Michael McWay and Colleen Dodich -- Chapter 30. Gastrointestinal Issues; Orhan Atay -- Chapter 31. Nutrition; Dawna Torres Mughal and Patricia Novak -- Chapter 32. Feeding Aspects; Laura Minando and Elana M Bern -- Chapter 33. Endocrine Issues; Rachel-Marie A. Cazeau and Manmohan K. Kamboj -- Chapter 34. Urological Concerns; Julian Wan -- Chapter 35. Cardiology -- 35.1 Congenital Heart Disease and Down Syndrome; Kenneth J. Dooley -- 35.2 Congenital Heart Disease; Shiva Sharma -- Chapter 36. Pulmonology, Sleep Disordered Breathing and Sleep Apnea; Charles A. McCaslin and John Norman Schuen -- Chapter 37. Women’s Health; Stephanie J. Stockburger and Hatim A. Omar -- Chapter 38. Men’s Health; Joav Merrick and Mohammed Morad -- Chapter 39. Sexuality; Sorah Stein and Mitch Tepper -- Chapter 40. Cancer and Oncology; Walid Kaddan and Joav Merrick -- Chapter 41. Severe and Profound Intellectual Disability -- 41.1 Care; Margaret Kyrkou -- 41.2 Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities; Fleur-Michelle M Coiffait and Alexandra T Leedham -- Chap.
This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd, and much expanded edition, of a text that was first published by Rubin and Crocker in 1989 (Lea and Fibiger). The second edition was published by Rubin and Crocker in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out. .
Health promotion.
Quality of life.
Clinical psychology.
Families.
Families—Social aspects.
Health Promotion and Disease Prevention.
Quality of Life Research.
Clinical Psychology.
Family.