Parents of Children with Autism [electronic resource] : An Ethnography /
Wolfe, Juliette de.author.
In a readable and highly accessible ethnographic account that is shaped by the stories of families and the voices of parents, De Wolfe examines how parents of children with autism navigate the educational and medical systems, understand their own and their children's bodies, and support and educate one another.
Description based upon print version of record.
COVER; Parents of Children with Autism ; Contents; Acknowledgments; Introduction: Going to Holland Together; Chapter 1: Anthropologizing Experiences of Autism ; Does Autism Matter?; Starting the Journey; Framing the Work; Contemplating the Abstraction of Autism; Three Thematic Threads; Thread One: Reordering Activity; Thread Two: The Multiplicity of Experience; Thread Three: The Temporality of Experience; The Structure of This Ethnography; Chapter 2: Meet the Parents; When Leslie Met Sarah; Finding APSG; Getting to Know the Parents; Gendering the Parents; Locating the Parents; Conclusion
Chapter 3: Recharting Territories, Redefining Roles: The Issue of RelationshipsSarah's Diagnosis Story; The Diagnosis Moment; Early Intervention; Telling Others and Testing Relationships; Marriages and Partnerships Tried and Tested; Conclusion; Chapter 4: Peculiarities and Particularities: The Issue of Bodies; Getting Franklin Ready for School; Peculiarities and Particularities; Experiencing the World Through the Autistic Body; Using Topics of Concern to Interrogate Experiences of the Body; Activities of Daily Living (ADL); Gastrointestinal Issues; Child and Parent Safety
Sexuality and PubertyLong-term Caregiving; Conclusion; Chapter 5: Navigations and Limitations: The Issue of Institutions; Institutional Actants; Ordering Bodies Through Institutional Action; Discursive Authority; Discursive Authority at Work: Securing Educational Services; The Bureaucratization of Autism; Bureaucratic Practices at Work: Securing Healthcare Services; Conclusion; Chapter 6: Sharing and Fighting: The Issue of Communication and Education; Narratives: An Educational Methodology; Co-Constructing Narratives; Communicating with Strangers; Teaching Strangers about Autism
Support for Fellow ParentsPlanned Ignoring; Engaging Activism Through Media; Conclusion; Concluding Remarks; "Autism Parenthood" as Varied Experience; "Autism Parenthood" as Collectively Experienced; Reconciling the "Replication of Uniformity" and the "Organization of Diversity"; Notes; 1 Anthropologizing Experiences of Autism; 3 Recharting Territories, Redefining Roles: The Issue of Relationships; 4 Peculiarities and Particularities: The Issue of Bodies; 5 Navigations and Limitations: The Issue of Institutions; References; Films; Index
Includes bibliographical references and index.
In a readable and highly accessible ethnographic account that is shaped by the stories of families and the voices of parents, De Wolfe examines how parents of children with autism navigate the educational and medical systems, understand their own and their children's bodies, and support and educate one another.
Ethnography.
Anthropology.
Learning & Instruction.
Ethnography.
International and Comparative Education.
Anthropology.
Sociology, general.
Teaching and Teacher Education.