Creation and Governance of Human Genetic Research Databases [electronic resource] /
Organisation for Economic Co-operation and Development.
Organisation for Economic Co-operation and Development.
Organisation for Economic Co-operation and Development.Directorate for Science, Technology, and Industry.
Workshop on Human Genetic Research Databases--Issues of Privacy and Security(2004 :Tokyo, Japan)
Sampogna, Christina.
Paris : OECD Publishing,
2006.
Large-scale study of populations may contribute significantly to science's understanding of the complex multi-factorial basis of disease and to improvements in prevention, detection, diagnosis, treatment and cure. This book summarises the proceedings of a conference on human genetic research databases.  It examines what they are and provides a number of examples. It looks at how they have been established, governed, and funded. And it looks at how they are managed and commercialised, exploring what the policy implications are for governments. 
001.pdf; 002.pdf; 003_007.pdf; 009_017.pdf; 019_028.pdf; 029_033.pdf; 035_054.pdf; 055_081.pdf; 083_104.pdf; 105_121.pdf; 123_130.pdf; 131_139.pdf; 141_142.pdf; 143_146.pdf; 147_151.pdf; 153_159.pdf; 999.pdf
A report written by Christina Sampogna of the OECD Biotechnology Division, drawing upon papers presented at the Workshop on Human Genetic Research Databases--Issues of Privacy and Security, organized by the OECD Directorate for Science, Technology and Industry, and held in Tokyo, Feb. 26-27, 2004. The report includes additional research and is up to date as of August 2006.
Includes bibliographical references (p. 153-159).
Large-scale study of populations may contribute significantly to science's understanding of the complex multi-factorial basis of disease and to improvements in prevention, detection, diagnosis, treatment and cure. This book summarises the proceedings of a conference on human genetic research databases.  It examines what they are and provides a number of examples. It looks at how they have been established, governed, and funded. And it looks at how they are managed and commercialised, exploring what the policy implications are for governments. 
Human genetics
Human genetics