Healthcare and Big Data [electronic resource] : Digital Specters and Phantom Objects /
Ebeling, Mary F.E.author.
This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.
Description based upon print version of record.
Includes bibliographical references at the end of each chapters and index.
This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.
Dedication; Acknowledgments; Contents; List of Figures ; Chapter 1: Out of Death, a Birth; Phantom Data; A Curious Thing Comes a-Knockin'; My Marketing Baby, Born of Big Data; The Auto-ethnographic Noir; Chapter Descriptions; Notes; References; Chapter 2: The Rise of the Databased Society; An Industry You've Never Heard Of; Where Do the Data Come From?; Who Has Power over Our Data? Data Brokers Are Worse than the NSA; The Databased Society; Notes; References; Chapter 3: Privacy and Data Phantoms; The Biopolitics of Phantom Data; Lively Data and Vaporized Privacy Rights; Notes; References
Chapter 4: Coercive Consent and Digital Health InformationPatient Privacy and the Elimination of Informational Consent; Networks of Disclosure Under the Three Rules; Privacy and Consent from Below; Coercive Consent in Capitalist Healthcare; Notes; References; Chapter 5: The Biopolitics of Lively Data; The Privacy Promises and Market Values of Anonymization; On the Internet, Everybody Knows You're a Patient; Ownership Defines Us: The "Value-Add" of Anonymization and How Data Ownership Is Claimed; Possession Plus Innovation Equals Ownership; Notes; References
Chapter 6: The Uncanny Lives of Data CommoditiesComrades; My Body as Data Subject-Object of Biocapital; The Data Commodity Comes to Haunt Me; I Am Not a Baby; The Immaterial Gets "Real"; Notes; References; Chapter 7: The Body of Evidence; Data Paranoia; Experian Owns Us; Empathy and the Violence of "Dumb" Data; Notes; References; Chapter 8: Life After Death; The Uncanny Life of Data; From the Black Box to the Databased Society; The Noir Ending; References; Index
Sociology.
Big data.
Human body—Social aspects.
Gender Studies.
Big Data/Analytics.
Knowledge - Discourse.
Sociology of the Body.