Management of Prader-Willi Syndrome [electronic resource] /
Prader-Willi Syndrome Association.
Butler, Merlin.editor.
Lee, Phillip D.K.editor.
Whitman, Barbara Y.editor.
Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.
Foreword I by Pamela F. Eisen; Foreword II by Giorgio Fornasier; Preface by Janalee Heinemann; Acknowledgments; CONTENTS; Contributors; Introduction by Louise R. Greenswag and Randell C. Alexander; PART I. Diagnosis and Genetics; Chapter 1 Clinical Findings and Natural History of Prader-Willi Syndrome; Chapter 2 Diagnostic Criteria for Prader-Willi Syndrome; Chapter 3 Molecular Genetic Findings in Prader-Willi Syndrome; Chapter 4 Laboratory Testing for Prader-Willi Syndrome; PART II. Medical Physiology and Treatment; Chapter 5 Medical Considerations in Prader-Willi Syndrome
Chapter 6 Gastrointestinal System, Obesity, and Body CompositionChapter 7 Growth Hormone and Prader-Willi Syndrome; PART III. Multidisciplinary Management; Chapter 8 Neurodevelopmental and Neuropsychological Aspects of Prader-Willi Syndrome; Chapter 9 Speech and Language Disorders Associated with Prader-Willi Syndrome; Chapter 10 Motor and Developmental Interventions; Chapter 11 Educational Considerations for Children with Prader-Willi Syndrome; Chapter 12 Tools for Psychological and Behavioral Management; Chapter 13 Educational and Social Issues for Adolescents with Prader-Willi Syndrome
Chapter 14 Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi SyndromeChapter 15 Vocational Training for People with Prader-Willi Syndrome; Chapter 16 Residential Care for Adults with Prader-Willi Syndrome; Chapter 17 Inpatient Crisis Intervention for Persons with Prader-Willi Syndrome; Chapter 18 Social Work Interventions: Advocacy and Support for Families; Chapter 19 A National Approach to Crisis Intervention and Advocacy; Chapter 20 Advocacy Issues: School Discipline and Expulsion; Chapter 21 Advocacy Issues: Sexuality; Appendices
A First Published Report of Prader-Willi SyndromeB A Comprehensive Team Approach to the Management of Prader-Willi Syndrome; C Growth Charts of Individuals with Prader-Willi Syndrome; D Eligibility for U.S. Social Security and SSI Benefits for Individuals with Prader-Willi Syndrome; E The International Prader-Willi Syndrome Organization; F The Prader-Willi Syndrome Association (USA); Index
"Under the sponsorship of the Prader-Willi Syndrome Association."
Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.
Pediatrics.
Human genetics.
Endocrinology .
Clinical psychology.
Pediatrics.
Human Genetics.
Endocrinology.
Clinical Psychology.