The bleeding disease : hemophilia and the unintended consequences of medical progress /
Pemberton, Stephen Gregory.
Baltimore : Johns Hopkins University Press,
2011.
Includes bibliographical references and index.
Introduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age.
Hemophilia