Title: Developing and evaluating a patient-led, electronic incident reporting scheme for renal patients
Funder: Department of Health (England)

Abstract: Background Preliminary work through a series of patient focus groups in Renal Services in the Bradford Trust revealed that patients can and wish to discuss both positive or negative aspects of the safety and quality of their care and would value the opportunity of sharing this information with staff. We also established, however, that patients can feel uncertain about providing such information through a formal reporting scheme. Although the literature on patient involvement reflects this view, the results also demonstrate that patient reporting can be a reliable source of information. We will actively collaborate with patients and staff to co-design and evaluate a patient-led reporting scheme for quality and safety concerns embedded in a shared electronic health record (Renal Patient View, RPV) . Aims Determine the factors that affect quality and safety in renal services and how these are best reported to to staff Agree objectives for a RPV based reporting scheme and develop a taxonomy of contributory factors that impact on quality and safety Adapt existing RPV technology and local governance processes to accommodate a patient-led reporting scheme, pilot the scheme and collect a range of qualitative data from patients and staff to assess utilisation; corroborate the report data with existing forms of quality/safety data Following analysis of pilot data, implement scheme across the study settings and survey patients and staff on the implementation process, acceptability, feasibility, and sustainability; examine patient experience as a function of the scheme; and report a cost analysis Plan of Investigation Phase 1: Literature review of patient-inclusive reporting schemes. Collection of qualitative data from patients and staff to determine factors that affect quality/safety, related information flow, and vision for reporting Phase 2: Set and agree objectives for a RPV based reporting scheme from patient and staff data using an expert panel. Co-development of contributory factors affecting quality and safety. Phase 3: Adaptation of existing RPV; pilot reporting scheme in two local renal services using RPV, observational study of utilisation process, compare RPV data to existing quality/safety data Phase 4:Implement adapted scheme across participating services. Summative evaluation of implementation process and patient experience using survey measures. Cost analysis. Final report. Potential Impact We will develop a local patient-led electronic reporting scheme for quality and safety concerns for patients with a long term condition, and a taxonomy of factors affecting quality and safety in renal service provision. We will also possess a critical understanding of the barriers and facilitators to adoption, utilisation, and sustainability of RPV as a patient-led reporting tool, in the socio-technical context of patient care in renal services. The concurrent cost analysis will give information on affordability, service costs, and potential for national roll out. The knowledge generated will be shared with key stakeholders: the National Kidney Federation, NHS Diabetes & Kidney Care, the National Renal Information Exchange Group, DH/SHA Long Term Conditions Teams, Connecting for Health.


Research activity codes: 7.1 INDIVIDUAL CARE NEEDS;8.1 ORGANISATION AND DELIVERY OF SERVICES
Health categories: RENAL AND UROGENITAL