Title: Impact of visual impairment after stroke (IVIS-II): Measuring and exploring vision-related quality of life
Funder: Stroke Association

Abstract: BACKGROUND Nearly three-quarters of stroke survivors have a visual impairment. The 15-item Brain Injury-related Visual Impairment Quality of Life questionnaire (BIVI-QoL) co-developed with stroke survivors is the first questionnaire available to measure vision-related quality of life specifically for this population. Stroke-related visual impairment often results in reduced quality of life. Capturing this impact can help personalise patient care. AIM The aim is to evaluate the BIVI-QoL for use in clinical practice and research for measuring impact on quality of life among individuals with post-stroke visual impairment. METHODS Stroke survivors with visual impairment will complete the BIVI-QoL and other questionnaires to achieve 243 completed returns. Psychometric properties including construct validity, responsiveness, and reliability will be assessed using different sub-populations. Sixty semi-structured interviews with stroke survivors/carers will explore how visual impairment affects everyday life, to provide depth to the quantitative responses. We will widen accessibility through testing administration-by-proxy and developing/refining an aphasia-friendly version. Engaging with stakeholders we will explore clinical implementation of the BIVI-QoL, ensuring outputs are user-friendly, and facilitating its incorporation into care pathways. OUTCOMES When validated, BIVI-QoL will be utilised to track recovery/adaptation routinely, aid communication, incorporate quality of life into management decisions, and provide a robust measure for research.

Lay abstract: BACKGROUND Nearly three-quarters of stroke survivors have a visual impairment. The 15-item Brain Injury-related Visual Impairment Quality of Life questionnaire (BIVI-QoL) co-developed with stroke survivors is the first questionnaire available to measure vision-related quality of life specifically for this population. Stroke-related visual impairment often results in reduced quality of life. Capturing this impact can help personalise patient care. AIM The aim is to evaluate the BIVI-QoL for use in clinical practice and research for measuring impact on quality of life among individuals with post-stroke visual impairment. METHODS Stroke survivors with visual impairment will complete the BIVI-QoL and other questionnaires to achieve 243 completed returns. Psychometric properties including construct validity, responsiveness, and reliability will be assessed using different sub-populations. Sixty semi-structured interviews with stroke survivors/carers will explore how visual impairment affects everyday life, to provide depth to the quantitative responses. We will widen accessibility through testing administration-by-proxy and developing/refining an aphasia-friendly version. Engaging with stakeholders we will explore clinical implementation of the BIVI-QoL, ensuring outputs are user-friendly, and facilitating its incorporation into care pathways. OUTCOMES When validated, BIVI-QoL will be utilised to track recovery/adaptation routinely, aid communication, incorporate quality of life into management decisions, and provide a robust measure for research.

Research activity codes: 7.1 INDIVIDUAL CARE NEEDS
Health categories: STROKE;EYE