L'impact de la création littéraire, en contexte d'aide, sur la symptomatologie psychophysiologique d'adolescents atteints d'une maladie chronique : étude interdisciplinaire et exploratoire

The impact of creative writing, within a helping context, on the psychological and physiological symptoms of adolescents living with chronic disease. Interdisciplinary and exploratory study.- Background: Randomized, exploratory, quantitative, qualitative, and interdisciplinary (psychology, creative writing, remedial education) study which tested the hypothesis that literary writing (tales, short stories, poems) facilitates greater emotional expression and has a more positive impact on the physical and psychological well-being of adolescents living with chronic illness compared to “expressive” writing (first-person writing in which participants express their feelings about a painful event). Aims: The objectives of this study were to explore the facilitation of emotional expression through writing and to compare the impact of literary writing vs. expressive writing on the physical and psychological well-being of adolescents living with chronic disease. Methods: Thirty-four adolescents, aged 12-18 years, living with chronic illness (diabetes, Crohn’s disease, cystic fibrosis), were recruited in a university pediatric hospital and enrolled in eight weekly writing sessions of 30-50 minutes via a confidential Web site developed specifically for the study within a helping context. The thirty-four participants were randomized into two groups: an experimental group (literary writing), consisting of 20 participants with fifteen girls (70%), and a control group (expressive writing) consisting of 14 participants with eight girls (64%). Subjects were assessed at three times using five tests: the BDI-13 (depression), the STAI- Y (anxiety), the Health Canada ACS scale, the TAS-20 (alexithymia), and the KIDCOPE checklist (adaptive strategies). The tests were administered before writing began (T1), one week after sessions ended (T2), and four months after sessions ended (T3). Two hundred and seventy-two (272) texts were produced and analyzed qualitatively in a literary perspective emphasizing the production of discourse as an object of meaning and perception of the author’s relationship with the world through emotional expression. Quantitative results: Both types of writing were equally effective in decreasing anxiety and psychological symptoms. Expressive writing was more effective in decreasing depression. Literary writing was more effective in decreasing alexithymia. It was also noted that both types of writing increased the number of adaptive strategies with writing now part of the arsenal of coping strategies for both groups. Finally, more adolescents in the literary than in the expressive writing group continued writing. Conclusion: Literary writing, within a helping context, contributes to decreasing the various psychological symptoms of adolescents living with chronic illness and may provide them with an additional coping strategy in their stressful condition.

Keyphrases: psychiatrie, adolescent, literary writing, creative writing, expressive writing, psychology, special education, writing and chronic disease, writing emotional disclosure, psychiatry, depression, anxiety, pedagogy, literature, web-based interventions, alexithymia, family, school, hospitalization, adolescent