Les relations entre les intervenants et les parents d'adultes ayant une déficience intellectuelle en contexte d'hébergement

Dans le domaine de la déficience intellectuelle, des relations de nature partenariale entre les parents et les intervenants sont maintenant souhaitées. D’ailleurs, les avantages d’établir un partenariat dans les relations entre les parents et les intervenants ne sont plus à démontrer. Pourtant, les écrits portant sur ce sujet dressent un portrait où le partenariat est plutôt absent des relations entre les intervenants et les parents. En situation d’hébergement, le partenariat entre les parents et les intervenants est encore plus pertinent puisqu’il constitue un facteur influençant positivement l’implication des parents auprès de leur enfant ayant une déficience intellectuelle. Par contre, le sujet spécifique des relations entre les intervenants et les parents de personnes ayant une déficience intellectuelle en contexte d’hébergement a été peu exploré dans les écrits.  Dans le cadre du présent mémoire, une recherche qualitative a été menée afin de connaître la perception de parents d’adultes ayant une déficience intellectuelle de leurs relations avec les intervenants dans un contexte d’hébergement. Dix parents ont donc été rencontrés en entrevue. Les objectifs de cette recherche étaient de qualifier, à partir de la perception de parents, la nature des relations qu’ils entretiennent avec les intervenants et de cibler les facteurs qui influencent leurs relations. In the mental retardation field, partnership relationships between parents and caregivers are now a must.  In fact, the advantages of a partnership in the relationships between parents and caregivers no longer need to be validated.  Still, written documents on this subject usually depict a picture of a partnership that is somewhat lacking in the relationships between the caregivers and the parents.  This partnership between caregivers and parents is even more important in foster homes settings as it strongly influences the parents’ involvement in the life of their child with learning disabilities. However, the actual subject of relationships between caregivers and parents of adult children with mental retardation in foster homes settings has been seldom documented.  This thesis required a qualitative research be made to better understand the perception of parents of adult children with mental retardation with respect to their relationship with the caregivers in a foster home setting.  Ten parents were interviewed.  The purpose of this research was to better qualify, according to the parents’ perception, the type of relationships they have with the caregivers and to identify the factors that influence these relationships.  The results showed that most parents are satisfied with their relationships with their adult child’s caregivers.  The description they give of their relationships brings us to conclude that there is in fact a partnership.  From an ecological analysis, we have grouped these factors according to different systems.  The familial systemic model also enabled us to analyze the factors at a deeper level.  Amongst the identified factors, some are more important than others.  First, there is the factor that caregivers recognize the importance of the parents’ contribution.  Then, there is the factor that the parents notice a sense of well-being in their child.  Finally, there is the factor that the parents are able to voice their point of view and their expectations.

Keyphrases: Hébergement, Relations, Déficience intellectuelle, Partenariat, Parents, Famille, Intervenants, Personnal, Parents, Placement, Relations, Retard mental, Parents, Foster home, Staff, Family, Parents, Mental retardation, Out-come placement, Mental defiency, Relationships, Parternship