session and shared the twenty year journey he traveled to find out what was wrong with him today he will describe to us the whole family of a taxi a types that he has been able to discover and identify which of those he thinks he probably has he will also describe the one a taxi a impact that affects him the most so welcome to what your family would want to know about attacks you with and swartz and i'm tony  before before we start today at do you have any did you receive any questions from anyone after the first session that you think should be discussed immediately in this particular session pony as a matter of  attack is a family for all seasons and all people it shows no discrimination whatsoever so no matter whether you're male or female or you're a child or adult pull to a taxi and i think that's important to know particularly for families that have children and i want to warn families to be aware that's good to know from the get go yes so now i can't contain myself any longer because you're sitting here with me and we're kind of dressed differently today and are you trying to picture a a believable story here in a professional manner  of myself and i also have a pair of hip a head so like the football players wear but i don't have those on today that's all this is eyes when people see this if you see me around the house is not because i'm pra walker or a wheelchair perhaps like other people do is there a reason for that well i do and i use all those that some given time i use a cane probably more often than anything when i'm out of the house but i've started walking using the wheelchair or the walker like you see here on a regular basis i'm just more stable that way and i also have already been equipped with an electric wheelchair and if we're on a situation where we're going to have to walk a long distance or we're in a situation where there are a lot of crowds i take that w because if i'm a cane or if i'm with this walker i'll get knocked down people are not voyageur they're just they're doing your own thing in there in a hurry and they could not think about me at all so again it's a safe and it's a safety factor the good that it is so now i'd like you to share with us again what are the different types of attacks well you know there are quite a few types and the more i study the more i find that but i thought i'd start out with a couple that are are overly simple the first one is known as acquired a taxi and this is something that occurs to the person after they've had some other thing x journal happen to them so they might have full one and they might have gotten a hit on the head they might have had a stroke they might have a cancer or they might have had some kind of infection somehow and i know that comes the attacks the tax year being the lack of coordination and the falling type that kind of goes back to the first session when you talk about unrelated yet symptoms of a taxi a so these can be a precursor just something out of the ordinary nose and seemed to be related to this it all but it kind of sets it off well yeah it sets it off you said that there are different classifications one of these which is this something out of the ordinary that happens where do you get your information for this well two or three places the first  started was the national a taxi foundation and they have a wonderful library of technical papers that describe the different kinds of attacks here what happens to people what to do when they have a whole bunch of these i have a sense and mourned about pub med which is the website of the national institutes of health which is very good and also the  just the general way up you go in there yet to be careful sometimes because the truth the rationing you get is a little bit condensed it's a little bit it's not as in depth and not as good  all do they publish independently or you just not think very very rarely i know but i have found that through the texas society there are two or three or four people who are very very good read another book that is written specifically for the medical community you know i've said that it's sometimes hard to find a doctor that knows anything about this there's a special five dollar book written for when i started putting this stuff together i found it allegheny general had a very very good article on the web and if you want to see people who have a tax you go to you t code spirit or maybe my reputation will come back to haunt me in the sit room so you see that you're not an expert but you certainly know more than people like myself i mean this is all new to me and i just absorb so much from what you have been telling me but we want to know where should fortune one start you talk about classifications can you talk about acquired so how but the other one ok the next easy one that comes to mind quickly are the genetic or the hereditary types and these are caused by a family member who has a defective gene and they pass it on by already to to the child and there are two kinds of those and depending upon the nature of that type of gene a single parent can pass it on to the child and if that happens it's not uncommon for a family to have maybe more  children with just with attacks here and only the one parent have the gene the other type a call a recess of type and it takes each parent to have one copy of the gene before can be passed on now i've raised the issue of the children because i want anybody that has ever seen any hereditary issues in their family to be aware that they might also have that issue and they might pass it on to their children or they may choose not to have to address as the case may be and one of the things that you and i had that as they find more and more and more about this that they think that i have somebody like me has had taxi a for a long time and has not been able to figure it out is probably a defective gene and they have not found the gene yet so they haven't i haven't typed there and see their fine them all the time it seems to me that when i first started reading on attacks four or five years ago maybe that far back that they had only found about twenty genes today they've identified more than forty fourteen you not only learning a lot about a taxi of a year certain a lot of out other things in research that impacts not only your condition but other medical conditions  yes just through reading attending conferences etc so when you are looking at all of this information and you think about yourself what are some examples that you can think about in your own particular case when you're looking at what caused your attack well you know we never thought in terms of causal until just restart sentry sort of putting this program in there and i've increased my reading quite a bit in the last three weeks but we can think of two specific cases the first happened when i was maybe eight or ten years loose and i was out cold just instantaneously and then i came back and i knew my head my neck a been all jammed because i went like this i drew quite a long may be another one yes before you proceed to that we're going to take a brief commercial break and we'll let the audience take a look at the commercial and then they could be thinking about maybe what the second thing was that cause this together we can change the news find out how it's safe kids dot org  well welcome back we are ready now to hear what ed has to say about his presumed second reason that may have caused or led to the development of his condition of attacks you had already told us about his sandlot experience playing football and getting hit in the cerebellum area so now ed what is a second experience that you were as you think back in time what maybe could have been a cause this happened in  lifetime my daughter moved into a rental property in charlotte north carolina and needed some more and and we knew that the rental agent was going to do anything came down oh that attic i was loopy and i don't remember much of them coming down and sitting on the floor and my wife says i was out of it for a while i was just rambling and of no value whatsoever classic case of high post area i guess is that too much heat and hypothermia yeah yeah and as we were reading through stuff we saw that as a possible cause so that may have been it as well you know you never you never know and we in the last couple weeks we thought of another case on we had an indication we were playing tennis i was playing at the right now and numbers are wide shot from my right side i ran forward into the right to get it i dropped down like this then i just went absolutely flat on my face on tennis court that's the way i go down right now if i fall i go fast and hard wow and that made in the first time that we had an indication that is a daytime down it's now that was the cause right as i sent the matter symptomatic yes and that's one of the natures of this condition is you start looking for the symptoms of a variety of other conditions which individually aren't the cause but collectively they are indicative perhaps of attacks so as a result now as you progress to this condition i want to go back to what you're dressed up as today in your all your protective gear and everything so you're going to do it right i mean you're looking good you wear green well so you have the helmet in that pads and everything you mention in your chest area some padding could you show your audience that a little bit so we can see as an example what you have under here this particular padding of which i have one michel football player right where it is designed to help my balance it was it's manufactured by a company in down these are designed to help me stay within this tipping point so on the first shot around they had a bunch of the weights back here had bunch and here they had crushed ten pounds of these things in this oh my and i wore them around for a year and i went on my first diet for a year and i lost ten pounds combat and i think it went right there i had a second fitting of the vest by a different technician this technician was much more experienced did not use a computer generated things she just said walk she'd watch me and then kids around with the weights and  throat to help me go this way and i have lift inside my shoes just raise my heels a very little bit so you want to show us a little bit of like what it's like for you to stand up well i don't want you to fall no i just when i stand i've gotten so and this is exciting for me that after two years of therapy  practicing standing like this i can stand with my feet together with my eyes open for a minute and i stand with my feet spread about this far with my eyes after i fall ok and i hurt myself says a little but i push that button and it calls a call center someplace where an operator will come on and talk to me and i can talk i don't respond they will call my wife or one of my kids and say dad's down do you know what the problem is if they say yeah ok as far as they go if they don't respond they are very quick call the ambulance and send it to me now them elance know where i am because as a g p s as well that's awesome yeah it's kind of neat the only problem it that it's a new device that this is a second generation and this button is just a little bit above the surface and i have a tendency to wrap my arms like this so if i ever want to have i'm going to jump to one more topic here in the few remaining minutes we have and in session one you basically mentioned a little bit about gluten and its relationship to it tax is that a possible well i don't really know the only thing i can offer you is this that twenty percent in excess of twenty percent of the people like me who have sporadic attacks here  have a sensitivity to good and you find this out by writing food tests food allergy tests and i do i have a sense if you recall he said the first time that i talked to a physician and cincinnati without ever seeing me he says i don't know what's wrong with it so i went on a diet and that went away now the other preservative ration that is available and there are two that we've made a significant period increase in the obesity in this country and also through our diabetes and i will have that reference for us on our next talk ok and tell and i thank you so much for sharing with us your wardrobe and what you wear and how you protect yourself and keep yourself safe to as well as some of the suggested reasons why people get a taxi to you talked about that and share a little bit of that with us as well and so i guess we have some additional fundraisers that are going to be coming up with a taxi as well this year and they're going to be announced very soon the last fundraiser held a trainee united methodist was very successful successful cross vision the hobbs sisters and reverend mark stuart did a wonderful job there were a lot of people in attendance who were very supportive and so will be excited to learn a little bit more about the upcoming fundraisers this is tony so koski wishing you a well warm goodbye until our next time when ed schwartz and i are going to discuss other atta issues especially those that impact and his wife linda as well as what you should consider doing if you think you may have a tax so thank you for viewing this session of what every family needs to know about attack syria with