Canadian Inborn Errors of Immunity National Registry (CIEINR): A High-Quality Standardized Patient Data Platform to Support Patient Advocacy and Immune Deficiency Research
Year: 2025
Type: article
Language: en
Topic: Immunodeficiency and Autoimmune Disorders
Authors and affiliations:
raw_author_name: Tatiana Kalashnikova
raw_affiliation_strings: 1Alberta Children’s Hospital, University of Calgary, Alberta, Canada
raw_author_name: Adam S.L. Graefe
raw_affiliation_strings: 14Institute for Biomedical Informatics, University Hospital Cologne, Germany
2Berlin Institute of Health at Charité, Universitätsmedizin Berlin, Germany
raw_author_name: Taylor Mattinson
raw_affiliation_strings: 3IWK Health, Dalhousie University, Halifax, Nova Scotia, Canada
raw_author_name: Eyal Grunebaum
raw_affiliation_strings: 4The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada
raw_author_name: Sneha Suresh
raw_affiliation_strings: 5Stollery Children’s Hospital, University of Alberta, Edmonton, Alberta, Canada
raw_author_name: Bruce Ritchie
raw_affiliation_strings: 5Stollery Children’s Hospital, University of Alberta, Edmonton, Alberta, Canada
raw_author_name: Juthaporn Cowan
raw_affiliation_strings: 6The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
raw_author_name: Tamar Rubin
raw_affiliation_strings: 7Children’s Hospital of Winnipeg, University of Manitoba, Winnipeg, Manitoba, Canada
raw_author_name: Luis Murguía-Favela
raw_affiliation_strings: 1Alberta Children’s Hospital, University of Calgary, Alberta, Canada
raw_author_name: Alyssa Arger
raw_affiliation_strings: 8Collaborative Immunology Program Associates from Alberta Health Services, Calgary, Alberta
raw_author_name: Jennifer Grossman
raw_affiliation_strings: 1Alberta Children’s Hospital, University of Calgary, Alberta, Canada
8Collaborative Immunology Program Associates from Alberta Health Services, Calgary, Alberta
raw_author_name: Hugo Chapdelaine
raw_affiliation_strings: 9Montreal Clinical Research Institute, University of Montreal, Montreal, Quebec, Canada
raw_author_name: Catherine Biggs
raw_affiliation_strings: 10BC Children’s Hospital, University of British Columbia, Vancouver, British Columbia, Canada
raw_author_name: Rae Brager
raw_affiliation_strings: 11McMaster Children’s Hospital, McMaster University, Hamilton, Ontario, Canada
raw_author_name: Ashley V. Geerlinks
raw_affiliation_strings: 12Children’s Hospital of Western Ontario, Western University, London, Ontario, Canada
raw_author_name: Whitney Goulstone
raw_affiliation_strings: 13ImmUnity Canada, Vancouver, British Columbia, Canada
raw_author_name: Sylvia Thun
raw_affiliation_strings: 2Berlin Institute of Health at Charité, Universitätsmedizin Berlin, Germany
raw_author_name: Peter N. Robinson
raw_affiliation_strings: 2Berlin Institute of Health at Charité, Universitätsmedizin Berlin, Germany
raw_author_name: Oya Beyan
raw_affiliation_strings: 14Institute for Biomedical Informatics, University Hospital Cologne, Germany
raw_author_name: Brenda Turley
raw_affiliation_strings: 1Alberta Children’s Hospital, University of Calgary, Alberta, Canada
raw_author_name: Nicola A.M. Wright
raw_affiliation_strings: 1Alberta Children’s Hospital, University of Calgary, Alberta, Canada
raw_author_name: Beata Derfalvi
raw_affiliation_strings: 3IWK Health, Dalhousie University, Halifax, Nova Scotia, Canada