Counting the Cost: The Hidden Financial Realities of Neuromuscular Disease Through Patient and Family Perspectives
Year: 2025
Type: article
Language: en
Topic: Neurogenetic and Muscular Disorders Research
Authors and affiliations:
raw_author_name: Homira Osman
raw_affiliation_strings: Muscular Dystrophy Canada  Toronto Ontario Canada
Muscular Dystrophy Canada, Toronto, Ontario, Canada
raw_author_name: Zainab Adamji
raw_affiliation_strings: Muscular Dystrophy Canada  Toronto Ontario Canada
Muscular Dystrophy Canada, Toronto, Ontario, Canada
raw_author_name: Stacey Lintern
raw_affiliation_strings: Muscular Dystrophy Canada  Toronto Ontario Canada
Muscular Dystrophy Canada, Toronto, Ontario, Canada
raw_author_name: Ian C. Smith
raw_affiliation_strings: The Ottawa Hospital Research Institute  Ottawa Ontario Canada
The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
raw_author_name: Alyssa Grant
raw_affiliation_strings: The Ottawa Hospital Research Institute  Ottawa Ontario Canada
The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
raw_author_name: Lola E.R. Lessard
raw_affiliation_strings: Department of Medicine (Neurology) The Ottawa Hospital/University of Ottawa  Ottawa Ontario Canada
Faculty of Medicine University of Ottawa  Ottawa Ontario Canada
Department of Medicine (Neurology), The Ottawa Hospital/University of Ottawa, Ottawa, Ontario, Canada
Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
raw_author_name: Hanns Lochmuller
raw_affiliation_strings: Children's Hospital of Eastern Ontario  Ottawa Ontario Canada
Department of Medicine (Neurology) The Ottawa Hospital/University of Ottawa  Ottawa Ontario Canada
Faculty of Medicine University of Ottawa  Ottawa Ontario Canada
The Ottawa Hospital Research Institute  Ottawa Ontario Canada
The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada
Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
raw_author_name: Hugh McMillan
raw_affiliation_strings: Children's Hospital of Eastern Ontario  Ottawa Ontario Canada
Faculty of Medicine University of Ottawa  Ottawa Ontario Canada
Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada
Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
raw_author_name: Kathryn Selby
raw_affiliation_strings: British Columbia Children's Hospital  Vancouver British Columbia Canada
British Columbia Children's Hospital, Vancouver, British Columbia, Canada
raw_author_name: Gerald Pfeffer
raw_affiliation_strings: Department of Clinical Neurosciences Hotchkiss Brain Institute  Calgary Alberta Canada
Department of Medical Genetics Alberta Child Health Research Institute  Calgary Alberta Canada
Department of Clinical Neurosciences, Hotchkiss Brain Institute, Calgary, Alberta, Canada
Department of Medical Genetics, Alberta Child Health Research Institute, Calgary, Alberta, Canada
raw_author_name: Lawrence Korngut
raw_affiliation_strings: Department of Clinical Neurosciences Hotchkiss Brain Institute  Calgary Alberta Canada
Department of Clinical Neurosciences, Hotchkiss Brain Institute, Calgary, Alberta, Canada
raw_author_name: Cynthia Gagnon
raw_affiliation_strings: University of Sherbrooke  Sherbrooke Quebec Canada
University of Sherbrooke, Sherbrooke, Quebec, Canada
raw_author_name: Kednapa Thavorn
raw_affiliation_strings: School of Epidemiology and Public Health University of Ottawa  Ottawa Ontario Canada
The Ottawa Hospital Research Institute  Ottawa Ontario Canada
The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada
raw_author_name: Jodi Warman‐Chardon
raw_affiliation_strings: Children's Hospital of Eastern Ontario  Ottawa Ontario Canada
Department of Medicine (Neurology) The Ottawa Hospital/University of Ottawa  Ottawa Ontario Canada
Faculty of Medicine University of Ottawa  Ottawa Ontario Canada
The Ottawa Hospital Research Institute  Ottawa Ontario Canada
The Ottawa Hospital Research Institute, Ottawa, Ontario, Canada
Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada