Balancing protection of participants and other stakeholders with openness: African lessons from the MADIVA data sharing and access policy
Year: 2025
Type: article
Language: en
Topic: Chronic Disease Management Strategies
Authors and affiliations:
raw_author_name: Daphine Tinashe Nyachowe
raw_affiliation_strings: University of the Witwatersrand
Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Victoria Bronstein
raw_affiliation_strings: University of the Witwatersrand
School of Law, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Helen Robertson
raw_affiliation_strings: University of the Witwatersrand
School of Computer Science and Applied Mathematics, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Scott Hazelhurst
raw_affiliation_strings: University of the Witwatersrand
Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Jillian Gardner
raw_affiliation_strings: University of the Witwatersrand
Steve Biko Centre for Bioethics, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Michele Ramsay
raw_affiliation_strings: University of the Witwatersrand
Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Patrick Opiyo Owili
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Michael Klipin
raw_affiliation_strings: University of the Witwatersrand
Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Kerry Glover
raw_affiliation_strings: University of the Witwatersrand
Sydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Gershim Asiki
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Henry Owoko Odero
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Phyllis Mungai
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Diana Awuor
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Samuel Iddi
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Isaac Kisiangani
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Daniel Maina Nderitu
raw_affiliation_strings: African Population and Health Research Center (APHRC)
African Population and Health Research Center (APHRC), Nairobi, Kenya
raw_author_name: Nkosinathi Masilela
raw_affiliation_strings: University of the Witwatersrand
MRC/Wits Rural Public Health and Health Transitions Research Unit, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Daniel Ohene-Kwofie
raw_affiliation_strings: University of the Witwatersrand
School of Electrical and Information Engineering, Faculty of Engineering and the Built Environment, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: Faith Kimongo
raw_affiliation_strings: University of the Witwatersrand
MRC/Wits Rural Public Health and Health Transitions Research Unit, University of the Witwatersrand, Johannesburg, South Africa
raw_author_name: as members of the MADIVA Research Hub and the DS- I Africa Consortium