A Pathway to High Quality Clinical Trials in IgA Vasculitis Nephritis: Meeting Proceedings From a Multiprofessional International Collaborative Workshop
Year: 2025
Type: article
Language: en
Topic: Vasculitis and related conditions
Authors and affiliations:
raw_author_name: Louise Oni
raw_affiliation_strings: Department of Paediatric Nephrology, Great Ormond Street Hospital, London, UK
Department of Renal Medicine, University College London Centre for Kidney and Bladder Health, London, UK
Department of Women's and Children's Health, University of Liverpool, Liverpool, UK
raw_author_name: Rona Smith
raw_affiliation_strings: Department of Medicine, University of Cambridge, Cambridge, UK
Department of Renal Medicine, Cambridge University Hospital, Cambridge, UK
raw_author_name: Seza Ozen
raw_affiliation_strings: Department of Pediatrics, Hacettepe University, Ankara, Turkey
raw_author_name: Chloe Williams
raw_affiliation_strings: Department of Paediatrics, Northwest Deanery, Royal Manchester Children's Hospital, Manchester, UK
raw_author_name: Elin Davies
raw_affiliation_strings: Department of Nephrology, Liverpool University Hospitals NHS Foundation Trust, Liverpool, UK
Department of Women's and Children's Health, University of Liverpool, Liverpool, UK
raw_author_name: Charlotte King
raw_affiliation_strings: Department of Women's and Children's Health, University of Liverpool, Liverpool, UK
raw_author_name: Paul Brogan
raw_affiliation_strings: Department of Infection, Immunology, and Rheumatology, University College London Great Ormond Street Hospital, London, UK
raw_author_name: Mark Haas
raw_affiliation_strings: Department of Pathology and Laboratory Medicine, Cedars-Sinai Medical Center, Los Angeles, California, USA
raw_author_name: Jonathan Barratt
raw_affiliation_strings: Department of Nephrology, John Walls Renal Unit, University Hospitals of Leicester NHS Trust, Leicester, UK
Mayer IgA Nephropathy Laboratories, Department of Cardiovascular Sciences, University of Leicester, Leicester, UK
raw_author_name: Jeffrey Hafkin
raw_affiliation_strings: Otsuka Pharmaceutical Development and Commercialization, Princeton, New Jersey, USA
raw_author_name: Despina Eleftheriou
raw_affiliation_strings: Department of Infection, Immunology, and Rheumatology, University College London Great Ormond Street Hospital, London, UK
raw_author_name: Karuna Keat
raw_affiliation_strings: Australian and New Zealand Vasculitis Society, Melbourne, Victoria, Australia
Department of Clinical Immunology and Allergy, Campbelltown Public Hospital, New South Wales, Australia
raw_author_name: EMD Smith
raw_affiliation_strings: Centre for Immunobiology, School of Infection and Immunity, University of Glasgow, Glasgow, UK
Department of Paediatric Rheumatology, Royal Hospital for Children, Glasgow, UK
raw_author_name: Wen Ding
raw_affiliation_strings: Department of Paediatric Nephrology, Bristol Royal Hospital for Children, Bristol, UK
Department of Translational Health Sciences, Bristol Renal, University of Bristol, Bristol, UK
raw_author_name: Chee Cheung
raw_affiliation_strings: Department of Nephrology, John Walls Renal Unit, University Hospitals of Leicester NHS Trust, Leicester, UK
Mayer IgA Nephropathy Laboratories, Department of Cardiovascular Sciences, University of Leicester, Leicester, UK
raw_author_name: Caroline Platt
raw_affiliation_strings: Department of Paediatric Nephrology, Bristol Royal Hospital for Children, Bristol, UK
raw_author_name: Evangéline Pillebout
raw_affiliation_strings: Department of Nephrology, Nephrology Unit, St Louis Hospital, Paris, France
raw_author_name: Andrew Chetwynd
raw_affiliation_strings: Department of Biochemistry, Cell and Systems Biology, Centre for Proteome Research, Institute of Systems, Molecular and Integrative Biology, University of Liverpool, Liverpool, UK
raw_author_name: Areefa Alladin
raw_affiliation_strings: Department of Paediatric Nephrology, University of Calgary, Calgary, Alberta, Canada
raw_author_name: Augusto Vaglio
raw_affiliation_strings: Department of Biomedical, Experimental and Clinical Sciences "Mario Serio", University of Florence, Florence, Italy
Department of Nephrology, Nephrology and Dialysis Unit, Meyer Children's Hospital IRCCS, Florence, Italy
raw_author_name: Caroline Jones
raw_affiliation_strings: Department of Paediatric Nephrology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK
raw_author_name: Clare Pain
raw_affiliation_strings: Department of Paediatric Rheumatology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK
raw_author_name: Cord Sunderkötter
raw_affiliation_strings: Department of Dermatology, University Hospital Halle, Halle, Germany
MSB Medical School Berlin, Berlin, Germany
raw_author_name: John Peipert
raw_affiliation_strings: Department of Applied Health Sciences, Centre for Patient Reported Outcomes Research, University of Birmingham, Birmingham, UK
raw_author_name: Emily Barnes
raw_affiliation_strings: The University of the West of England, Bristol, UK
raw_author_name: Giorgio Trivioli
raw_affiliation_strings: Department of Medicine, University of Cambridge, Cambridge, UK
raw_author_name: Hayley Hardwick
raw_affiliation_strings: Department of Women's and Children's Health, University of Liverpool, Liverpool, UK
raw_author_name: Henry Morgan
raw_affiliation_strings: Department of Paediatric Nephrology, Alder Hey Children's NHS Foundation Trust, Liverpool, UK
raw_author_name: Ingeborg Bajema
raw_affiliation_strings: Department of Pathology and Medical Biology, University Medical Center, University of Groningen, Groningen, The Netherlands
raw_author_name: James Wason
raw_affiliation_strings: Department of Biostatistics, Population Health Sciences Institute, Newcastle University, Newcastle Upon Tyne, UK
raw_author_name: Joshua Wade
raw_affiliation_strings: Department of Medicine, University of Cambridge, Cambridge, UK
raw_author_name: Judith Sanchez-Manubens
raw_affiliation_strings: Centre for Women's and Children's Health, Parc Taulí Hospital Universitari, Institut d'Investigació i Innovació Parc TaulíI3PT-CERCA, Sabadell, Spain
Department of Pediatrics, Universitat Autònoma de Barcelona, Barcelona, Spain
raw_author_name: Kelly Vernon
raw_affiliation_strings: Department of Women's and Children's Health, University of Liverpool, Liverpool, UK
raw_author_name: Lisa Willcocks
raw_affiliation_strings: Department of Renal Medicine, Cambridge University Hospital, Cambridge, UK
raw_author_name: Lorraine Harper
raw_affiliation_strings: Department of Applied Health Sciences, University of Birmingham, Birmingham, UK
raw_author_name: Lowena Lindsay
raw_affiliation_strings: Department of Paediatrics, Whiston Hospital, Merseyside, UK
raw_author_name: Madalina Andreea Beldie
raw_affiliation_strings: Centre for Translational Medicine, Semmelweis University, Budapest, Hungary
Department of Paediatric Nephrology, "Sf. Maria" Clinical Emergency Hospital for Children, Iaşi, Romania
Department of Paediatrics, Grigore T. Popa University of Medicine and Pharmacy Iasi, Iaşi, Romania
raw_author_name: Matko Marlais
raw_affiliation_strings: Department of Paediatric Nephrology, Great Ormond Street Hospital, London, UK
Department of Renal Medicine, University College London Centre for Kidney and Bladder Health, London, UK
raw_author_name: Michelle O’Shaughnessy
raw_author_name: Panagoula Gkargkoula
raw_affiliation_strings: Department of Nephrology, Sussex Kidney Unit, University Hospitals of Sussex, Brighton, UK
raw_author_name: Patrick Hamilton
raw_affiliation_strings: Division of Cell Matrix Biology and Regenerative Medicine, University of Manchester, Manchester, UK
Renal, Haematology and Transplantation Unit, Manchester University NHS Foundation Trust, Manchester, UK
raw_author_name: Reima Bakry
raw_affiliation_strings: Department of Pediatrics, Maternity and Children Specialized Hospital, Jeddah, Saudi Arabia
raw_author_name: Roxana Bogos
raw_affiliation_strings: Department of Paediatrics, Grigore T. Popa University of Medicine and Pharmacy Iasi, Iaşi, Romania
raw_author_name: Selcan Demir
raw_affiliation_strings: Department of Pediatric Rheumatology, Eskişehir Osmangazi University, Eskişehir, Turkey
raw_author_name: Silke Brix
raw_affiliation_strings: Division of Cell Matrix Biology and Regenerative Medicine, University of Manchester, Manchester, UK
Renal, Haematology and Transplantation Unit, Manchester University NHS Foundation Trust, Manchester, UK
raw_author_name: Simone Appenzeller
raw_affiliation_strings: Department of Orthopaedics, Rheumatology and Traumatology, School of Medical Science, University of Campinas, Campinas, Brazil
raw_author_name: Tarun Bansal
raw_affiliation_strings: Department of Nephrology, Bradford Teaching Hospitals, Bradford, UK
raw_author_name: Zoi Anastasa
raw_affiliation_strings: Representative of Vasculitis UK Charity, Vasculitis International, and ERN RITA ePAG Groups, Maidstone, UK
raw_author_name: Stephen David Marks
raw_affiliation_strings: Department of Paediatric Nephrology, Great Ormond Street Hospital, London, UK
Department of Renal Medicine, University College London Centre for Kidney and Bladder Health, London, UK
NIHR GOSH Clinical Research Facility, Great Ormond Street Hospital, London, UK
raw_author_name: Alexandra Audemard-Verger
raw_affiliation_strings: Department of Internal Medicine, Tours University, Tours, France
raw_author_name: Thomas Renson
raw_affiliation_strings: Department of Pediatric Rheumatology and Nephrology, Ghent University Hospital, Ghent, Belgium
European Reference Network for Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases, Ghent University Hospital, Ghent, Belgium
European Reference Network for Rare Kidney Diseases, University Hospital, Ghent, Belgium
raw_author_name: Marija Jelusic
raw_affiliation_strings: Department of Paediatrics, University Hospital Centre Zagreb, University of Zagreb School of Medicine, Zagreb, Croatia
raw_author_name: David Jayne
raw_affiliation_strings: Department of Medicine, University of Cambridge, Cambridge, UK
raw_author_name: Alan Salama
raw_affiliation_strings: Department of Renal Medicine, University College London Centre for Kidney and Bladder Health, London, UK