International development and validation of a multilingual bank of items for the self-assessment of essential knowledge by systemic lupus erythematosus patients: the SLE Knowledge Assessment score (SLAKE)
Year: 2025
Type: article
Language: en
Topic: Systemic Lupus Erythematosus Research
Authors and affiliations:
raw_author_name: Antonin Satrin
raw_affiliation_strings: Strasbourg Academic Hospitals Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO, , Strasbourg, France)
Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO), Strasbourg Academic Hospitals , Strasbourg,
raw_author_name: Matteo Piga
raw_affiliation_strings: University Clinic AOU Cagliari, Department of Medical Science and Public Health, University of Cagliari Rheumatology Unity, , Cagliari,
Department of Medical Science and Public Health, Rheumatology Unity, University Clinic AOU Cagliari, University of Cagliari , Cagliari,
raw_author_name: Mariele Gatto
raw_affiliation_strings: University of Turin, Mauriziano Hospital Academic Rheumatology Centre, Department of Clinical and Biological Sciences, , Turin,
Department of Clinical and Biological Sciences, Academic Rheumatology Centre, University of Turin, Mauriziano Hospital , Turin,
raw_author_name: Yurilis Fuentes-Silva
raw_affiliation_strings: Universidad de Oriente Departamento de Medicina, , Ciudad Bolívar, Venezuela
Departamento de Medicina, Universidad de Oriente , Ciudad Bolívar,
raw_author_name: José A Gomez Puerta
raw_affiliation_strings: University of Barcelona and IDIBAPS Rheumatology Department, Hospital Clínic, , Barcelona,
Rheumatology Department, Hospital Clínic, University of Barcelona and IDIBAPS , Barcelona,
raw_author_name: Ivan Padjen
raw_affiliation_strings: Croatian Referral Centre for SLE and Related Diseases University of Zagreb, School of Medicine, Division of Clinical Immunology and Rheumatology, Department of Internal Medicine, , , Zagreb,
University Hospital Centre Zagreb University of Zagreb, School of Medicine, Division of Clinical Immunology and Rheumatology, Department of Internal Medicine, , , Zagreb,
Division of Clinical Immunology and Rheumatology, Department of Internal Medicine, School of Medicine, Croatian Referral Centre for SLE and Related Diseases, University Hospital Centre Zagreb, University of Zagreb , Zagreb,
raw_author_name: Guillermo Pons-Estel
raw_affiliation_strings: Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR) , Grupo Oroño, Rosario,
Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Grupo Oroño , Rosario,
raw_author_name: Manuel F Ugarte-Gil
raw_affiliation_strings: Universidad Científica del Sur. Lima. Peru and Rheumatology Department. Hospital Guillermo Almenara Irigoyen Grupo Peruano de Estudio de Enfermedades Autoinmunes Sistémicas, , EsSalud. Lima, Peru
Grupo Peruano de Estudio de Enfermedades Autoinmunes Sistémicas, Universidad Científica del Sur , Lima,
Rheumatology Department, Hospital Guillermo Almenara Irigoyen, EsSalud , Lima,
raw_author_name: Carlos Enrique Toro-GutiÉrrez
raw_affiliation_strings: Pontificia Javeriana University Reference Center of Osteoporosis and Rheumatology, , Cali,
Reference Center of Osteoporosis and Rheumatology, Pontificia Javeriana University , Cali,
raw_author_name: Alexandra Legge
raw_affiliation_strings: Dalhousie University Division of Rheumatology, Department of Medicine, , Halifax, Nova Scotia,
Division of Rheumatology, Department of Medicine, Dalhousie University , Halifax, NS,
raw_author_name: Ali Duarte-Garcia
raw_affiliation_strings: Mayo Clinic. Rochester Division of Rheumatology, , Minnesota,
Division of Rheumatology, Mayo Clinic. Rochester, Minnesota, USA
Division of Rheumatology, Mayo Clinic , Rochester, MN,
raw_author_name: François Chasset
raw_affiliation_strings: Sorbonne Université, faculté de médecine, service de dermatologie et allergologie, hôpital Tenon, INSERM U1135 CIMI , Paris,
Faculté de Médecine, Service de Dermatologie et Allergologie, Hôpital Tenon, INSERM U1135 CIMI, Sorbonne Université , Paris,
raw_author_name: Ioannis Parodis
raw_affiliation_strings: Karolinska Institutet Division of Rheumatology, Department of Medicine Solna, , , Örebro,
Karolinska University Hospital, and Center for Molecular Medicine (CMM), Stockholm, Sweden; Department of Rheumatology, Faculty of Medicine and Health, Örebro University Division of Rheumatology, Department of Medicine Solna, , , Örebro,
Division of Rheumatology, Department of Medicine, Solna, Center for Molecular Medicine (CMM), Karolinska University Hospital, Karolinska Institutet , Stockholm,
Department of Rheumatology, Faculty of Medicine and Health, Örebro University , Örebro,
raw_author_name: Katia Baumgaertner
raw_affiliation_strings: Strasbourg Academic Hospitals Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO, , Strasbourg, France)
Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO), Strasbourg Academic Hospitals , Strasbourg,
raw_author_name: Laurent Chiche
raw_affiliation_strings: Hôpital Européen Service de Médecine Interne, , Marseille,
Service de Médecine Interne, Hôpital Européen , Marseille,
raw_author_name: Odirlei A Monticielo
raw_affiliation_strings: Universidade Federal do Rio Grande do Sul Division of Rheumatology, Department of Internal Medicine, Hospital de Clínicas de Porto Alegre, , Porto Alegre,
Division of Rheumatology, Department of Internal Medicine, Hospital de Clínicas de Porto Alegre, Universidade Federal do Rio Grande do Sul , Porto Alegre,
raw_author_name: Omondi Oyoo
raw_affiliation_strings: University of Nairobi Rheumatology Unit, Department of Medicine, Faculty of health Sciences, , Nairobi,
Rheumatology Unit, Department of Medicine, Faculty of Health Sciences, University of Nairobi , Nairobi,
raw_author_name: Raquel Faria
raw_affiliation_strings: University of Porto; ITR—Laboratory for Integrative and Translational Research in Population Health Unidade de Imunologia Clínica—Unidade Local de Saúde Santo António; UMIB—Unit for Multidisciplinary Research in Biomedicine, ICBAS—School of Medicine and Biomedical Sciences, , Porto,
ITR—Laboratory for Integrative and Translational Research in Population Health , Porto,
Unidade de Imunologia Clínica, Unidade Local de Saúde Santo António , Porto,
UMIB—Unit for Multidisciplinary Research in Biomedicine, ICBAS—School of Medicine and Biomedical Sciences, University of Porto , Porto,
raw_author_name: Shinji Izuka
raw_affiliation_strings: The University of Tokyo Department of Allergy and Rheumatology, Graduate School of Medicine, , Tokyo,
Department of Allergy and Rheumatology, Graduate School of Medicine, The University of Tokyo , Tokyo,
raw_author_name: Sofia Silva-Ribeiro
raw_affiliation_strings: Iscte-University Institute of Lisbon Center for Research and Social Intervention (CIS-Iscte), , Portugal, Lisbon
Center for Research and Social Intervention (CIS-Iscte), Iscte-University Institute of Lisbon , Lisbon,
raw_author_name: Galymzhan Togizbayev
raw_affiliation_strings: Department of rheumatology, Khazakhstan , Almaty
Department of rheumatology, Khazakhstan, Almaty
Department of Rheumatology , Almaty,
raw_author_name: Daniela Opris-Belinski
raw_affiliation_strings: Spitalul Clinic Sfânta Maria, Universitatea de Medicină și Farmacie Carol Davila Bucharest ,
raw_author_name: Lina El Kibbi
raw_affiliation_strings: Arab Adult Arthritis Awareness Group (AAAA Group) Division of Rheumatology, Department of Internal Medicine, SMC Healthcare, , Riyadh,
Division of Rheumatology, Department of Internal Medicine, SMC Healthcare, Arab Adult Arthritis Awareness Group (AAAA Group) , Riyadh,
Division of Rheumatology, Department of Internal Medicine, SMC Healthcare, Arab Adult Arthritis Awareness Group (AAAA Group), Riyadh, Saudi Arabia
raw_author_name: Amita Aggarwal
raw_affiliation_strings: Sanjay Gandhi Postgraduate Institute of Medical Sciences Department of Clinical Immunology and Rheumatology, , Lucknow,
Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences , Lucknow,
raw_author_name: Mithu Maheswaranathan
raw_affiliation_strings: Duke University School of Medicine Division of Rheumatology and Immunology, , Durham, North Carolina,
Division of Rheumatology and Immunology, Duke University School of Medicine , Durham, NC,
raw_author_name: Tai-Ju Lee
raw_affiliation_strings: National Taiwan University Hospital Hsinchu Branch Revision of Rheumatology, Immunology, and Allergy, Department of Medicine, , Hsinchu,
Division of Rheumatology, Immunology, and Allergy, Department of Medicine, National Taiwan University Hospital Hsinchu Branch , Hsinchu,
raw_author_name: Sheilla Achieng
raw_affiliation_strings: The University of Manchester Centre for Musculoskeletal Research, Division of Musculoskeletal and Dermatology Sciences, ,
Division of Musculoskeletal and Dermatology Sciences, Centre for Musculoskeletal Research, The University of Manchester , Manchester,
raw_author_name: Anastasiia Shumilova
raw_affiliation_strings: V.A.Nasonova Research Institute of Rheumatology Laboratory of thromboinflammation, , Moscow,
Laboratory of thromboinflammation, V.A.Nasonova Research Institute of Rheumatology, Moscow, Russian Federation
Laboratory of Thromboinflammation, V.A. Nasonova Research Institute of Rheumatology , Moscow,
raw_author_name: Ricard Cervera
raw_affiliation_strings: University of Barcelona and IDIBAPS Department of Autoimmune Diseases, Hospital Clínic, , Barcelona, Catalonia,
Department of Autoimmune Diseases, Hospital Clínic, University of Barcelona and IDIBAPS , Barcelona, Catalonia,
raw_author_name: Gamal Chehab
raw_affiliation_strings: Heinrich-Heine-University Department of Rheumatology, University Hospital Düsseldorf, , Düsseldorf,
Department of Rheumatology, University Hospital Düsseldorf, Heinrich-Heine-University , Düsseldorf,
raw_author_name: Faisal Parlindungan
raw_affiliation_strings: Rumah Sakit Universitas Indonesia Rheumatology Division, Department of Internal Medicine, Faculty of Medicine, , , Depok,
Universitas Indonesia Rheumatology Division, Department of Internal Medicine, Faculty of Medicine, , , Depok,
Rheumatology Division, Department of Internal Medicine, Faculty of Medicine, Universitas Indonesia, Rumah Sakit Universitas Indonesia , Depok,
raw_author_name: Sander Van Leuven
raw_affiliation_strings: Radboud University Medical Center Department of Rheumatology, , Nijmegen, the
Department of Rheumatology, Radboud University Medical Center , Nijmegen,
raw_author_name: Karoline Lerang
raw_affiliation_strings: Rikshospitalet/Oslo University Hospital Department of Rheumatology, , Norway, -, Oslo
Department of Rheumatology, Rikshospitalet/Oslo University Hospital , Oslo,
raw_author_name: Jeanette Andersen
raw_affiliation_strings: Lupus Europe ,
Lupus Europe, Belgium
raw_author_name: Francesca Marchiori
raw_affiliation_strings: Lupus Europe ,
Lupus Europe, Belgium
raw_author_name: Zoe Karakikla-Mitsakou
raw_affiliation_strings: Lupus Europe ,
Lupus Europe, Belgium
raw_author_name: Christelle Sordet
raw_affiliation_strings: Strasbourg Academic Hospitals Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO, , Strasbourg, France)
Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO), Strasbourg Academic Hospitals , Strasbourg,
raw_author_name: Laurent Arnaud
raw_affiliation_strings: Strasbourg Academic Hospitals Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO, , Strasbourg, France)
Department of Rheumatology, National Reference Center for Autoimmune Diseases (RESO), Strasbourg Academic Hospitals , Strasbourg,
raw_author_name: international SLAKE development group