Navigating open data sharing and privacy in the age of clinical AI research: from reidentification to pseudo-reidentification
Year: 2025
Type: preprint
Language: en
Topic: Privacy-Preserving Technologies in Data
Authors and affiliations:
raw_author_name: Shahin Hallaj
raw_affiliation_strings: Division of Biomedical Informatics, Department of Medicine, University of California, San Diego, La Jolla, CA, USA
Division of Ophthalmology Informatics and Data Science, Hamilton Glaucoma Center, Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, CA, USA
raw_author_name: Anna Heinke
raw_affiliation_strings: Division of Biomedical Informatics, Department of Medicine, University of California, San Diego, La Jolla, CA, USA
Division of Ophthalmology Informatics and Data Science, Hamilton Glaucoma Center, Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, CA, USA
raw_author_name: Fritz Gerald P. Kalaw
raw_affiliation_strings: Division of Biomedical Informatics, Department of Medicine, University of California, San Diego, La Jolla, CA, USA
Division of Ophthalmology Informatics and Data Science, Hamilton Glaucoma Center, Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, CA, USA
raw_author_name: Nayoon Gim
raw_affiliation_strings: Department of Bioengineering, University of Washington, Seattle, WA, USA
Department of Ophthalmology, University of Washington, Seattle, WA, USA
Roger and Angie Karalis Johnson Retina Center, Seattle, WA, USA
raw_author_name: Marian Blazes
raw_affiliation_strings: Department of Ophthalmology, University of Washington, Seattle, WA, USA
Roger and Angie Karalis Johnson Retina Center, Seattle, WA, USA
raw_author_name: Julia Owen
raw_affiliation_strings: Department of Ophthalmology, University of Washington, Seattle, WA, USA
Roger and Angie Karalis Johnson Retina Center, Seattle, WA, USA
raw_author_name: Eamon Dysinger
raw_affiliation_strings: Oregon Health & Science University, Portland, OR, USA
raw_author_name: Erik S. Benton
raw_affiliation_strings: Oregon Clinical and Translational Research Institute, Oregon Health & Science University, Portland, OR, USA
raw_author_name: Benjamin A. Cordier
raw_affiliation_strings: Knight Cancer Institute, Oregon Health & Science University, Portland, OR, USA
raw_author_name: Nicholas G. Evans
raw_affiliation_strings: Department of Political Science, University of Massachusetts Lowell, Lowell, MA, USA
raw_author_name: Jennifer Li-Pook-Than
raw_affiliation_strings: Genetics Department, Stanford University, Stanford, CA, USA
raw_author_name: Michael P. Snyder
raw_affiliation_strings: Genetics Department, Stanford University, Stanford, CA, USA
raw_author_name: Camille Nebeker
raw_affiliation_strings: Herbert Wertheim School of Public Health and Human Longevity Science, University of California, San Diego, La Jolla, CA, USA
raw_author_name: Linda M. Zangwill
raw_affiliation_strings: Division of Ophthalmology Informatics and Data Science, Hamilton Glaucoma Center, Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, CA, USA
raw_author_name: Sally L. Baxter
raw_affiliation_strings: Division of Biomedical Informatics, Department of Medicine, University of California, San Diego, La Jolla, CA, USA
Division of Ophthalmology Informatics and Data Science, Hamilton Glaucoma Center, Viterbi Family Department of Ophthalmology and Shiley Eye Institute, University of California, San Diego, La Jolla, CA, USA
raw_author_name: Shannon McWeeney
raw_affiliation_strings: Knight Cancer Institute, Oregon Health & Science University, Portland, OR, USA
raw_author_name: Cecilia S. Lee
raw_affiliation_strings: Department of Ophthalmology, University of Washington, Seattle, WA, USA
Roger and Angie Karalis Johnson Retina Center, Seattle, WA, USA
raw_author_name: Aaron Y. Lee
raw_affiliation_strings: Department of Ophthalmology, University of Washington, Seattle, WA, USA
Roger and Angie Karalis Johnson Retina Center, Seattle, WA, USA
raw_author_name: Bhavesh Patel
raw_affiliation_strings: FAIR Data Innovations Hub, California Medical Innovations Institute, San Diego, CA, USA