Concept and feasibility of privacy-preserving record linkage of cancer registry data and claims data in Germany: results from the DigiNet study on stage IV non-small cell lung cancer
Year: 2025
Type: article
Language: en
Topic: Data Quality and Management
Authors and affiliations:
raw_author_name: Anika Kästner
raw_affiliation_strings: Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany. anika.kaestner@med.uni-greifswald.de
raw_author_name: Christopher Hampf
raw_affiliation_strings: Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany
raw_author_name: Pia Naumann
raw_affiliation_strings: University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany
raw_author_name: Lizon Fiedler-Lacombe
raw_affiliation_strings: University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany
raw_author_name: Anna Kron
raw_affiliation_strings: Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany
National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany
raw_author_name: Anna Spier
raw_affiliation_strings: Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany
raw_author_name: Dusan Simic
raw_affiliation_strings: Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany
raw_author_name: Leonie Eilers
raw_affiliation_strings: FOM University of Applied Sciences, Essen, Germany
raw_author_name: Aleksandra Graw
raw_affiliation_strings: Cancer Registry North-Rhine Westphalia, Bochum, Germany
raw_author_name: Sebastian Bartholomäus
raw_affiliation_strings: Cancer Registry North-Rhine Westphalia, Bochum, Germany
raw_author_name: Andreas Stang
raw_affiliation_strings: Cancer Registry North-Rhine Westphalia, Bochum, Germany
raw_author_name: Daniela Reil
raw_affiliation_strings: Clinical-Epidemiological Cancer Registry Brandenburg-Berlin, Cottbus, Germany
raw_author_name: Renate Kirschner-Schwabe
raw_affiliation_strings: Clinical-Epidemiological Cancer Registry Brandenburg-Berlin, Cottbus, Germany
raw_author_name: Jessica Isabel Selig
raw_affiliation_strings: Cancer Registry Saxony, Dresden, Germany
raw_author_name: Jörg Wulff
raw_affiliation_strings: Cancer Registry Saxony, Dresden, Germany
raw_author_name: Patrik Dröge
raw_affiliation_strings: AOK Research Institute, Berlin, Germany
raw_author_name: Thomas Ruhnke
raw_affiliation_strings: AOK Research Institute, Berlin, Germany
raw_author_name: Christian Günster
raw_affiliation_strings: AOK Research Institute, Berlin, Germany
raw_author_name: Uwe Nußbaum
raw_affiliation_strings: BARMER, Wuppertal, Germany
raw_author_name: Ursula Marschall
raw_affiliation_strings: BARMER, Wuppertal, Germany
raw_author_name: Juliane Mohnke
raw_affiliation_strings: IKK classic, Dresden, Germany
raw_author_name: Anja Hebbelmann
raw_affiliation_strings: Mobil Krankenkasse, Hamburg, Germany
raw_author_name: Uwe Lührig
raw_affiliation_strings: Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany
National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany
raw_author_name: Anna Rasokat
raw_affiliation_strings: Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany
National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany
raw_author_name: Vanessa Mildenberger
raw_affiliation_strings: Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany
raw_author_name: Stephanie Stock
raw_affiliation_strings: Institute of Health Economics and Clinical Epidemiology, Faculty of Medicine, University of Cologne, University Hospital of Cologne, Cologne, Germany
raw_author_name: Florian Kron
raw_affiliation_strings: FOM University of Applied Sciences, Essen, Germany
raw_author_name: Jürgen Wolf
raw_affiliation_strings: Department I of Internal Medicine, Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf, Lung Cancer Group Cologne, University Hospital of Cologne, Cologne, Germany
National Network Genomic Medicine Lung Cancer, University Hospital of Cologne, Cologne, Germany
raw_author_name: Martin Bialke
raw_affiliation_strings: Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany
raw_author_name: Dana Stahl
raw_affiliation_strings: University Medicine Greifswald - Independent Trusted Third Party, Greifswald, Germany
raw_author_name: Neeltje van den Berg
raw_affiliation_strings: Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany
raw_author_name: Wolfgang Hoffmann
raw_affiliation_strings: Institute for Community Medicine, Section Epidemiology of Health Care and Community Health, University Medicine Greifswald, Ellernholzstraße 1-2, 17487, Greifswald, Germany