HELIOS Action: Advancing research, education, and equity in hemoglobinopathies across Europe and beyond
Year: 2025
Type: article
Language: en
Topic: Hemoglobinopathies and Related Disorders
Authors and affiliations:
raw_author_name: Sotiroula Chatzimatthaiou
raw_affiliation_strings: Molecular Genetics Thalassaemia Department The Cyprus Institute of Neurology &amp; Genetics Nicosia Cyprus
raw_author_name: Fedele Bonifazi
raw_affiliation_strings: Fondazione per la ricerca farmacologica Gianni Benzi onlus Bari Italy
Fondazione per la ricerca farmacologica Gianni Benzi onlus, Bari, Italy
raw_author_name: Anna C. Gimbert
raw_affiliation_strings: Rare Anemia Disorders Research Laboratory, Group of Translational Research in Cancer and Blood Disorders in Children Vall d'Hebron Institut de Recerca Barcelona Spain
Rare Anemia Disorders Research Laboratory, Group of Translational Research in Cancer and Blood Disorders in Children, Vall d'Hebron Institut de Recerca, Barcelona, Spain
ERN-EuroBloodNet member
raw_author_name: Raffaella Colombatti
raw_affiliation_strings: Department of Women's and Children's Health University of Padua Padua Italy
ERN-EuroBloodNet member
Department of Women's and Children's Health, University of Padua, Padua, Italy
raw_author_name: Francesco Cremonesi
raw_affiliation_strings: EPIONE Research Group INRIA de l'Université de la Côte d'Azur Valbonne France
raw_author_name: Andreas Glenthøj
raw_affiliation_strings: Danish Red Blood Cell Center, Department of Hematology Copenhagen University Hospital – Rigshospitalet Copenhagen Denmark
ERN-EuroBloodNet member
raw_author_name: Elisabetta Mezzalira
raw_affiliation_strings: Department of Women's and Children's Health University of Padua Padua Italy
ERN-EuroBloodNet member
Department of Women's and Children's Health, University of Padua, Padua, Italy
raw_author_name: Coralea Stephanou
raw_affiliation_strings: Molecular Genetics Thalassaemia Department The Cyprus Institute of Neurology &amp; Genetics Nicosia Cyprus
raw_author_name: Jan Traeger‐Synodinos
raw_affiliation_strings: National and Kapodistrian University of Athens Athens Greece
National and Kapodistrian University of Athens, Athens, Greece
raw_author_name: Darko Antic
raw_affiliation_strings: Clinic for Hematology, University Clinical Center of Serbia, Faculty of Medicine University of Belgrade Belgrade Serbia
Clinic for Hematology, University Clinical Center of Serbia, Faculty of Medicine, University of Belgrade, Belgrade, Serbia
raw_author_name: Burak Durmaz
raw_affiliation_strings: Department of Medical Genetics Ege University, Faculty of Medicine Bornova Izmir Turkey
Department of Medical Genetics, Ege University, Faculty of Medicine, Bornova, Izmir, Turkey
raw_author_name: Eleni Gavriilaki
raw_affiliation_strings: Aristotle University of Thessaloniki Thessaloniki Greece
Aristotle University of Thessaloniki, Thessaloniki, Greece
raw_author_name: Baba Inusa
raw_affiliation_strings: Faculty of Life Sciences and Medicine King's College London London United Kingdom
Medical and Science, Rare Disease, Novo Nordisk, Novo Alle 1 Bagsvaerd Denmark
Faculty of Life Sciences and Medicine, King's College London, London, United Kingdom
Medical and Science, Rare Disease, Novo Nordisk, Novo Alle 1, Bagsvaerd, Denmark
raw_author_name: Annalisa Landi
raw_affiliation_strings: Fondazione per la ricerca farmacologica Gianni Benzi onlus Bari Italy
Fondazione per la ricerca farmacologica Gianni Benzi onlus, Bari, Italy
raw_author_name: Mariangela Pellegrini
raw_affiliation_strings: Département d'Hématologie et Immunologie, Hôpital St. Louis, Assistance Publique Hôpitaux de Paris Hôpital Saint‐Louis Paris France
ERN-EuroBloodNet member
raw_author_name: Francesca Basile
raw_affiliation_strings: Fondazione per la ricerca farmacologica Gianni Benzi onlus Bari Italy
Fondazione per la ricerca farmacologica Gianni Benzi onlus, Bari, Italy
raw_author_name: Stephanie Muth
raw_affiliation_strings: StoryRelator Ltd. London United Kingdom
StoryRelator Ltd., London, United Kingdom
raw_author_name: Holger Cario
raw_affiliation_strings: Department of Pediatrics and Adolescent Medicine and Center for Rare Hematopoietic Disorders and Immunodeficiencies (ZSHI Ulm) Ulm University Medical Center Ulm Germany
ERN-EuroBloodNet member
Department of Pediatrics and Adolescent Medicine and Center for Rare Hematopoietic Disorders and Immunodeficiencies (ZSHI Ulm), Ulm University Medical Center, Ulm, Germany
raw_author_name: Eleni Katsantoni
raw_affiliation_strings: Basic Research Center, Biomedical Research Foundation Academy of Athens Athens Greece
Basic Research Center, Biomedical Research Foundation, Academy of Athens, Athens, Greece
raw_author_name: Dilem Ruhluel
raw_affiliation_strings: Molecular Genetics Thalassaemia Department The Cyprus Institute of Neurology &amp; Genetics Nicosia Cyprus
raw_author_name: Carsten Werner Lederer
raw_affiliation_strings: Molecular Genetics Thalassaemia Department The Cyprus Institute of Neurology &amp; Genetics Nicosia Cyprus
raw_author_name: María del Mar Mañú‐Pereira
raw_affiliation_strings: Rare Anemia Disorders Research Laboratory, Group of Translational Research in Cancer and Blood Disorders in Children Vall d'Hebron Institut de Recerca Barcelona Spain
ERN-EuroBloodNet member
Rare Anemia Disorders Research Laboratory, Group of Translational Research in Cancer and Blood Disorders in Children, Vall d'Hebron Institut de Recerca, Barcelona, Spain
raw_author_name: Petros Kountouris
raw_affiliation_strings: Molecular Genetics Thalassaemia Department The Cyprus Institute of Neurology &amp; Genetics Nicosia Cyprus