in-home technology for dementia caregivers

Conditions: Dementia; Alzheimer's Disease; Frontotemporal Dementia

Summary: this study aims to develop and evaluate in-home assistive technology that is designed to alleviate anxiety, burden, and loneliness in spousal and familial caregivers of individuals with alzheimer's disease and frontotemporal dementia.

this study aims to develop, refine, and evaluate a hardware/software system designed to integrate in-home sensors and devices, social connection, and internet-of-things (i.e., devices that can be controlled and communicated with via the internet) technologies to create a more supportive and safe home environment for caregivers and people with dementia. the system monitors troublesome behaviors in people with dementia (e.g., wandering), and targets mechanisms (e.g., worry, social isolation) thought to link behavioral symptoms in people with dementia with adverse caregiver outcomes (declines in health and well-being). the system is designed to minimize demands on caregivers' limited time and energy and to provide a platform for data collection that can be used by researchers and care professionals. hypotheses: 1. caregivers in the full operation condition will have fewer negative effects of caregiving (lower burden, higher mental and physical health, higher well-being) than those in the limited home safety condition. 2. greater use of the social networking features of the system will be associated with fewer caregiver depressive symptoms. 3. greater utilization of the home safety features of the system will be associated with fewer caregiver anxiety symptoms.

Eligibility criteria:
inclusion criteria: * caregivers are fluent/literate in english * caregivers currently reside with spouse/family member with dementia * caregivers primarily use an iphone * caregiver has wireless internet in home exclusion criteria: * caregivers providing care for individuals with known non-neurodegenerative conditions affecting behavior and cognition * caregivers providing care for individuals with longstanding axis i psychiatric disorder * caregivers providing care for individuals with metabolic disorder or major organ dysfunction * caregivers providing care for individuals with alcohol abuse or dependence (within 5 years of dementia onset) * caregivers providing care for individuals with head trauma with loss of consciousness greater than 30 minutes * caregivers providing care for individuals with contraindications to mri imaging * caregivers providing care for individuals with large confluent white matter lesions * caregivers providing care for individuals with significant systemic medical illness * caregivers providing care for individuals who use a medication likely to affect central nervous system functions adversely if you live in the san francisco bay area, las vegas (clark county), orange county, los angeles county, or oregon, you may complete the following screening questionnaire to determine your eligibility for participation: https://bit.ly/ucbdc upon completion of the screening questionnaire, the uc berkeley research team will follow up soon after by email or phone to confirm your eligibility status.

Keywords: caregivers dementia in-home assistive technology