grand valley state university (gvsu) skills on wheels

Conditions: Spina Bifida; Cerebral Palsy; Genetic Disease; Spinal Cord Injuries; Gross Motor Development Delay; Motor Skills Disorders

Summary: manual wheelchairs (mwcs) are widely used by children with physical disabilities, yet many of these children are unable to use their wheelchair independently. instead, they depend on others to push them. this dependency results in limited opportunities to decide what they want to do and where they want to go, leading to learned helplessness, social isolation, decreased participation, and restricted involvement in physical activities. furthermore, unsafe mwc use increases the risk of injury, as highlighted by the 44,300 children treated each year in emergency departments for mwc-related injuries. while independent mwc mobility can positively influence quality of life, mwc skills training must also be provided to promote safe, independent mwc use. the effectiveness of mwc training programs for adults is well established, yet the current standard-of-care does not include mwc skills training for children and research regarding the efficacy of pediatric mwc skills training programs is limited. skills on wheels seeks to address these gaps and provide pilot data for a future large-scale, multi-site research project involving a randomized controlled trial. aim 1 is to explore the influence of skills on wheels on children's mwc skills and confidence in their mwc use. aim 2 is to investigate the influence of skills on wheels on children's psychosocial skills, social participation, and adaptive behavior.

manual wheelchairs (mwcs) are widely used by children with physical disabilities, yet many of these children are unable to use their wheelchair independently. instead, they depend on others to push them. this dependency results in limited opportunities to decide what they want to do and where they want to go, leading to learned helplessness, social isolation, decreased participation, and restricted involvement in physical activities. furthermore, unsafe mwc use increases the risk of injury, as highlighted by the 44,300 children treated each year in emergency departments for mwc-related injuries. while independent mwc mobility can positively influence quality of life, mwc skills training must also be provided to promote safe, independent mwc use. the effectiveness of mwc training programs for adults is well established, yet the current standard-of-care does not include mwc skills training for children and research regarding the efficacy of pediatric mwc skills training programs is limited. skills on wheels seeks to address these gaps and provide pilot data for a future large-scale, multi-site research project involving a randomized controlled trial. the final outcomes and significance of this project are as follows: aim 1 is to explore the influence of skills on wheels on children's mwc skills and confidence in their mwc use and aim 2 is to investigate the influence of skills on wheels on children's psychosocial skills, social participation, and adaptive behavior.

Eligibility criteria:
inclusion criteria: * 5-17 years of age. note: participants must be under 18 for the duration of the study. * have a condition resulting in difficulties walking. * use a manual wheelchair greater than or equal to 25% of the time * are able to follow simple instructions per parent report * has at least one parent/caregiver who is able to converse in english (as assessed by the pi during interactions over the phone and in person) due to safety concerns. * resides in michigan exclusion criteria: * any reason that it would not be safe for the child to participate in manual wheelchair training (as assessed by the pi, a licensed physical therapist) * the child's manual wheelchair is not safe (as assessed by the pi, a licensed physical therapist)