future patient - telerehabilitation of heart failure patients

Conditions: Heart Failure NYHA Class I; Heart Failure NYHA Class II; Heart Failure NYHA Class III; Heart Failure NYHA Class IV; Acute Decompensated Heart Failure

Summary: the idea behind the future patient research project is to develop a telerehabilitation program and tools for patients with heart failure. the hypothesis for this study is that participation in a telerehabilitation program for patients with heart failure will increase the patients' quality of life and multi-parametric (subjective and objective) individualized monitoring in a telerehabilitation program for patients with heart failure will increase detection of worsening of symptoms and avoid future hospitalization of the hf-patients.

the overall aim is to test, implement and evaluate a telerehabilitation program for patients with heart failure from clinical, psychosocial, health literacy and e-health literacy, inter-organizational, health economic and technical perspectives. furthermore, this study has sub aims: * to increase the quality of life for patients with heart failure (hf) * to optimize the medical treatment of patients with hf * to perform multi-parametric (subjective and objective) individualized monitoring in order to detect worsening of symptoms and avoid hospitalizations * to increase physical activities for patients with heart failure in everyday life in a telerehabilitation program * to facilitate patient-initiated self-care management actions upon the following early detection of changes in source data (steps taken, weight, blood pressure, pulse, sleep, illness perception, motivation, anxiety and depression) * to evaluate patients health literacy and e-health literacy participating in a telerehabilitation program and rehabilitation program * to test and evaluate the heart portal - a digital toolbox for improved self-management for patients with heart failure and their relatives * to explore the experiences and perspectives of the patients and their relatives when being part of a telerehabilitation program * to test and evaluate a cross sector communication platform from a patient and healthcare professional perspective * to perform a cost-effectiveness analysis of total costs of healthcare and rehabilitation services

Eligibility criteria:
inclusion criteria: * patients diagnosed with hf according to new york heart association (nyha) class i-iv with max 20 % in class i or who have a current hospitalization for acute decompensated hf within the past two weeks * adults (18 years or older); no upper age limit * patients living in viborg and skive municipality * living at home and capable of caring for him/herself * have basic computer skills or a relative who have basic computer skills * informed consent to participate in a telerehabilitation program * may have a pacemaker exclusion criteria: * pregnancy * drug addiction defined as the use of cannabis, opioids or other drugs * previous neurologic, musculoskeletal or cognitive disability or active psychiatric history (as noted in the medical record) other than depression or anxiety related to cardiac or other chronic illness * lack of ability to cooperate * does not speak danish

Keywords: quality of life telerehabilitation cardiac patients heart failure