Nutritional Status Assessment of Pediatric Cystic Fibrosis Patients and Effect of Nutrition Education on Nutritional Status
Phase: NA
Conditions: Cystic Fibrosis in Children
Sponsor: Medipol University

 
 
 
 
 
 
NUTRITIONAL STATUS ASSESSMENT OF PEDIATRIC CYSTIC 
FIBROSIS PATIENTS AND EFFECT OF NUTRITION EDUCATION ON 
NUTRITIONAL STATUS 
 
 
 
 
STUDY PROTOCOL DATE: 03.09.2021 

Follow-
up 
EDUCATION GROUP 
CONTROL GROUP 
Meet 
• Introduction, explanation of the purpose of the 
research, giving information about the practices 
and obtaining informed consent 
• Application of questionnaires and scales  
• Education for the family: How to keep a correct 
and proper record of food consumption? (Using 
Food & Food Photo Catalog) 
 
• 
Introduction, explanation of the 
purpose of the research, giving 
information about the practices and 
obtaining informed consent 
• 
Application of questionnaires and 
scales  
• 
Education for the family: How to 
keep a correct and proper record of 
food consumption? (Using Food & 
Food Photo Catalog) 
1st 
Week 
Cystic Fibrosis Nutrition Education-I: The 
Importance of Healthy Nutrition, Carbohydrate, 
Fat, Protein, Vitamin-Minerals, Water.  
 
• 
Definition of healthy eating, 
• 
The importance of adequate energy and 
macro-micronutrient intake for CF patients,  
• 
Foods containing macro and micronutrients 
such as carbohydrate-fat-protein-vitamin-mineral  
 
2nd 
Week 
Cystic Fibrosis Nutrition Education-II: Food 
Groups, Common Nutritional Problems by Age 
Groups and Solution Suggestions.  
• The four basic food groups and the nutrients they 
contain  
• Changelists in TÜBER  
• Common nutritional problems according to age 
groups and solution suggestions  
 
3rd 
Week 
Cystic Fibrosis Nutrition Education-III: General 
Review and Frequently Asked Questions and 
Answers 
• Summary information about the first two trainings,  
• Recommendations on how children diagnosed with 
CF can increase their energy and fat intake  
• Things to consider about PERT treatment  
• Frequently asked questions and answers 
• Document sharing 
 
1st 
month 
and 3rd 
month 
• 
Application of questionnaires and scales  
• 
Collection of food records 
• 
Application of questionnaires and 
scales  
• 
Collection of food records