Review for 10.1186/s12876-021-01916-0 (2021)

Reviewer’s report
Title: 
Ileostomy or ileal pouch-anal anastomosis for ulcerative colitis: Patient
participation and decisional needs.
Version: 
1 
Date: 
28 Apr 2021
Reviewer's report:
Shared decision making is a topic that will be of interest to the readers of the
journal. 
2.1 Participants: 
it would be interesting to know if the perception of SDM and/or
educational needs was affected by the interval between the operation and
structured interview (more time to develop complications or adapt), and if the
perception of patients who suffered postoperative complications follows a
similar trend to non complicated patients. 
Ideally the interview would have been
made right after the operation was agreed upon.
2.2 Interviews: 
With regards to piloting I would have liked to see a
complementary method to internal testing; given the relatively low volume of
patients external expert assessment seems to be an easier choice than field-
testing.
3.1 Participation in decision making: 
even though representative quotes faithfully
represent local patients feeling, they can be challenging to fully interpret for
international and/or non specialists readers. 
For example, page 8 line 13: "The
Humira didn`t work, they put me on the TPN...". 
I would suggest minimally
curating direct quotes to enhance universal applicability. 
4 Discussion: 
it would be interesting to discuss that patients could potentially
confuse Surgeon Led and Shared with Surgeon decision making with just patient
participation. 
I would also like a discussion about patient satisfaction with the
operation, given that it was an item on the interview but is not accounted for in
the results.
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