HDTenEightyP/NetNews huggingface dataset:
From: Paul.Nobrega@p0.f266.n163.z1.fidonet.org (Paul Nobrega)
Newsgroups: misc.handicap
Subject: from the president of syntha-voice 2 of 4
Date: 1 Sep 92 17:32:16 GMT
Reply-To: Paul.Nobrega@p0.f266.n163.z1.fidonet.org
Organization: FidoNet node 1:163/266.0 - Vision, Ottawa ON
X-Fidonet: Blink Talk Conference

Index Number: 24157

[This is from the Blink Talk Conference]

If we are not familiar with the Application used, our inability
to assist the user can be interpreted as unknowledgeable staff.
If we say that the use of this line is for registered users with
specific questions about our technology, it will offend others who
will say that we are not supporting our technology.  We find
ourselves in quite a dilemma here.  I am writing this note as a
method of opening communications with you.
We would like constructive input as to what you would find to be a
reasonable solution.  We have a BBS that has a Conference Area on
each of our products.  Unfortunately, I don't get the Blink Talk
Echo locally.  I have received extracts through some of our users.
I would like to keep on top of this situation, and find a suitable
solution.
For interest sake, it was the unanimous decision of the Beta Group
on this product that a Demo Disk not be released until these
questions are answered.
Therefore, we did not arbitrarily sit here, and say that it should
be purchased outright without any consideration to demo disks.
Do you realize that the use of Demo disks, although popular
in the general industry, was in place in the early 1980's.
However, adaptive technology manufacturers did not get involved
until many years later.
Although you may think that it was through "pressure on the
company" as one Blink Talk Message suggested; it was greatly due to
a conscious decision by adaptive designers who were concerned about
calls being made that were not related directly to their product.
I am not saying that this is good or bad; but we want to keep our
lines open and available to registered users who have a real
problem.
Ask yourself this...

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Internet: Paul.Nobrega@p0.f266.n163.z1.fidonet.org
From: Allison.Cozzi@f3216.n161.z1.fidonet.org (Allison Cozzi)
Newsgroups: misc.handicap
Subject: electroejaculation
Date: 1 Sep 92 21:14:03 GMT
Reply-To: Allison.Cozzi@f3216.n161.z1.fidonet.org
Organization: FidoNet node 1:161/3216 - Computer Communicat, Concord Ca
X-Fidonet: Spinal Injury Conference

Index Number: 24241

[This is from the Spinal Injury Conference]

->   "Its never too late to have a happy child......ELECTROEJACULATION
->   (tm)"

     A couple of days ago, in my local paper (Contra Costa Times), they
had a nice big article about electroejaculation. It pleased me to see
someone over there making an attempt to introduce disabilities and
associated  subjects to the able bodied. With enough education, we may
just get them to realize that we exist!
                                                  Allison

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From: graham@venus.iucf.indiana.edu (Jim Graham)
Newsgroups: misc.handicap
Subject: Re: RSDS
Date: 31 Aug 92 20:11:08 GMT
Reply-To: graham@venus.iucf.indiana.edu (Jim Graham)
X-Fidonet: Chronic Pain Conference

Index Number: 24078

In article <24045@handicap.news>, Bob.Eagly@f21.n3619.z1.fidonet.org
(Bob Eagly) writes...
>Index Number: 24045
>
>Wayne, I have RSD in my right arm and it goes up to my right ear
>and across half of my chest. I am in pain all the time, don't know
>any more what it's like not to be. I have just resently got a Tens
>Unit and I am one of those people that get good results from it.
>With it on I can tolerate most of the pain. I also try to keep a
>stiff upper lip if you know what I mean. I don't like getting
>crabby, allthough at times I can not help it. I am lucky my family
>is pretty understanding. Well hope this finds you in good spirits,
>and will write again            BOB

I too, have RSDS.  It is in my right foot and lower leg.

It began around March of 1992, and has grown progressively worse
since that time.

It took several physicians to finally come to a diagnosis, and
unfortunately, I am in the last stage of the syndrome.

In the last couple of weeks, the pain, swelling, discoloration,
and temperature changes have begun spreading up the leg toward the
knee.

Nerve blocks with Morphine infusion has killed the pain for about
a day at a time, so the blocks aren't as effective as they should
be.

I am now facing an epidural pump, or a sympathectomy, depending on
what I choose.

Unfortunately, the blocks don't seem to arrest the spread of the
syndrome, and even my therapists have hinted of amputation below
the knee, to stop it.

This is not a pleasant alternative to the pain, but if it's the only
one, I'll go for it, just to get my life back.

Jim Graham

        -> ->Disclaimer: I do not speak for my company. <- <-
                          Neither do they speak for me.
 ______________________________________________________________________
| Internet: graham@venus.iucf.indiana.edu                              |
|           dolmen!jgraham@moose.cs.indiana.edu                        |
| BBS:      The PORTAL DOLMEN BBS/ParaNet ALPHA-GAMMA (sm) (9:1012/13) |
|            (812) 334-0418, 24hrs.                                    |
|______________________________________________________________________|
From: Ruthie.Hoffman@f223.n260.z1.fidonet.org (Ruthie Hoffman)
Newsgroups: misc.handicap
Subject: PAIN
Date: 28 Aug 92 16:18:17 GMT
Reply-To: Ruthie.Hoffman@f223.n260.z1.fidonet.org
Organization: FidoNet node 1:260/223 - Interstellar System, Vine Valley NY

Index Number: 24038

[This is from the Chronic Pain Conference]

Hiya Bob....

I'm so sorry to hear about another person having to deal with lower
lumbar pain.  I too had surgery on L4-L5, (L5-S1 isn't healthy, but
they left it alone..thankfully), did well for 9 months and then
re-injured it.  My neurosurgeon and I felt that another surgery was
NOT in the picture.

That was almost 2 yrs ago (original surgery was almost 3 yrs ago).
Last fall I couldn't stand the pain anymore (lower back and mostly
down the left leg, like you...and some down the right leg), nor the
thought of living with it the rest of my life.  I'm just a few
years older than you (I'm now 35).  My family doc sent me to a
Physiatrist.  I was skeptical, but went. Went through some physical
theraphy for several months (mild stretching, deep heat and a TENS
unit). I came away from the PT experience with a TENS unit of my
own, good stretching exercises (very important) and the same pain I
had when I started.  Although that sounds discouraging, it isn't.
My whole approach and attitude towards the pain, the injury, and my
life to come changed.

The stretching is very mild, but done every day, to whatever degree
I can manage, it really helps. Also my TENS unit is my savior.  My
intake of painkillers has dropped overall, although I still need
them at times.  The muscle spasms I have I'm finally learning to
control a little more (via medication and particular types of
stretching) and live with too.  One thing I recently bought was one
of those Panasonic hand held back massagers. This thing really
helps!!!!!  I'm amazed.  What I'm doing with it is using it on the
trigger points where I usually place my TENS unit electrodes.  It's
a "quick relief" sorta thing, but oh so good while it lasts.

I am wondering why you take your TENS unit off when you get home???
Why not leave it on??  I used to leave mine on me 24 hrs at times.
THe dr. said it was OK.  Have you thought of a Physiatrist?????

I can't say enough good things about the one I went to...and I was
VERY skeptical when I went.  They have a "whole body" sorta
approach to it, and darned if it didn't help.  I know there are no
cures out there, but I've found that alot of little things I do and
don't do or changed, piled up to make a noticable difference.  This
didn't happen overnight tho. Good luck and keep writing!!

CULater, Ruthie

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From: Cindy.Hallenbeck@p0.f89.n129.z1.fidonet.org (Cindy Hallenbeck)
Newsgroups: misc.handicap
Subject: Re: braille and spelling
Date: 1 Sep 92 21:09:53 GMT
Reply-To: Cindy.Hallenbeck@p0.f89.n129.z1.fidonet.org
Organization: FidoNet node 1:129/89.0 - BlinkLink, Pittsburgh PA
X-Fidonet: Blink Talk Conference

Index Number: 24222

[This is from the Blink Talk Conference]

                            Hi,
Thanks for the "two cents."  That is a very interesting problem.  I
guess I figured that kids in public schools learned spelling much the
way I did.  As for those who think braille is no longer necessary, I
think we need to continually honk about that one.  People ought to have
proficiency in reading whether it is by braille or print, and tape
recorders and computers with speech don't cut it.  Also, the possibility
of having more braille becomes smaller, in spite of ADA, when places
that are trying to provide it come into contact with blind people who
don't know how to read it or, for that matter, don't want to be
bothered.  I have translated menus before for various restaurants, and
they don't come back for new ones because they aren't used.

Anyway, thanks for your input.

Cindy Hallenbeck

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From: Charles.Cafarelli@f104.n2240.z1.fidonet.org (Charles Cafarelli)
Newsgroups: misc.handicap
Subject: Re: purpose of this echo
Date: 2 Sep 92 16:30:11 GMT
Reply-To: Charles.Cafarelli@f104.n2240.z1.fidonet.org
Organization: FidoNet node 1:2240/104 - FoxFire, Flint MI
X-Fidonet: Silent Talk Conference

Index Number: 24294

[This is from the Silent Talk Conference]

 JO> Why should the hearing aid industry change, even then?
 JO> They've got a good racket going.  Taking about $20 worth of
 JO> electronic components - packaging them compactly - and selling
 JO> them for more than the price of pure gold!  Quite a racket,
 JO> as long as us "suckers" don't wise up ;-)

     I have been wearing an aid for 32 years and wised up long ago, 5
     to 8 hundred $ for something that breaks 3 days after the
     warrenty is up and funny thing is it can't be fixed, it's to old.

     Finally after much searching I found a hearing aid company that
     cares and has some of the best dealers I've ever met.  Been running
     a good 5 years an aid, coupla overhals with a 1 yr warrenty in
     between, just replace when they get something move powerful and
     they tell me it will help. I live in MI and was working in OH and
     my aid went out, went to one of the dealers down there for help.
     Well he tried to get me going and couldn't, ended up giving me a
     loaner and told me to have my dealer in MI send it back to him when
     I got back.

     I won't say the companys name because I'm new here, just started
     reciving this echo yesterday and don't want to break any rules just
     yet. :)

... Click ... click ... click ... damn, out of taglines!
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From: Patricia.Bregman@f24.n3602.z1.fidonet.org (Patricia Bregman)
Newsgroups: misc.handicap
Subject: Transportation
Date: 31 Aug 92 12:27:04 GMT
Reply-To: Patricia.Bregman@f24.n3602.z1.fidonet.org
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL

Index Number: 24072

  >for the railroads, subways and light rail and also for Boston. Also the
  >buses in downstate NY and NJ. Would like to set up a transportation
  >forum on DEN to coordinate the info perhaps
  >                                             BOB

        Although you seem to be collecting information on the US, if you
        are interested there is an coalition of disability groups in
        Ontario called Trans-Action which has been lobbying,
        succesfully, for increased accessibilty in urban transit and
        inter-city transit.

        You can get information from them at:

                180 Dundas St., Suite 1700
                Toronto, Ont. M5G 1Z8

        The inter-city transit company announced yesterday that 42
        trains would be modified to accommodate people with
        disabilities.  At the moment, there is no inter-city
        transportation on either buses or trains that is accessible,
        with the exception of one demonstration bus.

        There is wheel-trans in Toronto, along with wheel-chair
        accessible cabs.  Transactions would be able to give you more
        detailed information.

RS>--- GEcho 1.00/beta
  > * Origin: The Event Horizon BBS  Bay Ridge NY  (718)492-1699 (1:2603/3)
  >---
  > * QNet3 * <ADANET> Connection RBBS - Pinson, AL - (205) 854-9074
  >

 * OLX 2.1 TD * Don't vote - You're just ENCOURAGING them!
===
 * QNet3 * ADANET:41/62/19:Ability OnLine - Toronto Canada - 416/650-5411

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From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: Prosthetic & Limb Deficient Support
Date: 1 Sep 92 21:11:15 GMT
Reply-To: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX
X-Fidonet: Amputee Conference

Index Number: 24229

[This is from the Amputee Conference]

Some possible contacts for you are PALS, Prosthetic & Limb Deficient
Support, 2222 Welborn, Dallas, Tx 75219. 214/559-7430. Current President
is Brenda Staples ,1003 Stell Ave., Mansfield, Tx 76063, 817/477-2968.
This is primarily for kids, teens, college age & parents. A Scotish Rite
or Masonic Hospital O.T. & Scia Work Dept. might be another source.
PLEASE TRY PARACHUTING; BUT NOT HORSES! Another gal who also was born
without arms and was very active made a fatal mistake in trying the
dangerous sport of horseback ridding and was accidently killed. PALS
does have a video about her that you proably could borrow. ANOTHER
SOURCE MIGHT BE THE THILOMIDE (losy speeling) Association. Writing a
note to An Landers might pay off.
What kind of computer do you use ? I'm partial to Macintosh Classics
because they are easy to use. I heard that SPRINT has a special
handicape rate for those of us wh run up big bills networking.
Where are you from & where all have you lived ?  Do you have an
interests or hobbies besides computers? I'm from Michigan & my wife & I
plus 2 kids live about 180 miles West of Dallas. Got sht up n Viet-Nam
with bones thinned & then attack dog got me. Waiting for hospital
financial dept toOK shoulder amputation.
North Texas Amputee Support Group has a VHS by a gal attacked by bear
who lost bost arms at shoulders. Yes, she uses prosthesis some times but
often dosen't. Thought it was tape with useful techniques that you
proably know anyway. Inmy personal research I found that IF your
insurance willcover it, North Dallas Orthothics & Prosetics in
Lewisville (area 214) & Sabolich in Tulsa sometimes are able to give a
bit more functin with a Micha shoulder & myoelectric arm. This is based
not on sales stuff but from talkling with satisfied users.This is a
smsall option for a miniority of folks.
What kind of work d you do ?  Are you involved in any church stuff ?
Hope you make some contacts and also find several nice guys to choosew
from, if that's on your agenda. Good Luck! God Bless! Feel free to send
a message if you are bored or would like to do so.

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From: Rosemary.Kwaak@f21.n3619.z1.fidonet.org (Rosemary Kwaak)
Newsgroups: misc.handicap
Subject: LIGHTNING
Date: 28 Aug 92 15:35:37 GMT
Reply-To: Rosemary.Kwaak@f21.n3619.z1.fidonet.org
Organization: FidoNet node 1:3619/21 - Inner Sanctum, New Port Richey FL
X-Fidonet: Rare Disorder Conference

Index Number: 24006

[This is from the Rare Disorders Conference]

Hi, I am looking for answers. My husband was struck by lightning,
on the left side if his head, just behind his left ear. The
lightning travel throught his body and exited his right foot. That
was over a year ago, and still today he is suffering from his
injuries. The doctors he has been taken to do't seem to know, or
fully understand. Becuae when I ask them questions, their reply is
'mind over matter, orcannot fine a direct cause due to the
lightning'. Well I am sure of one thing,he was a very active,
healthy man before he was injury, and if the lightning didn7t do
it, then what did?. These are a few of his complaints, and if
anyone out there s of someone whocould help me,I would be very
greatful.

1). Double Vision, now wears prision in his glasses
2). hearing lost 40% in left ear 25% in right ear, ringing in both
ears all the tie, and now wears hearing aides in both ears
3). Vertigo dizzness all thetime, and will lose his balance
4). memory lost, both persent and things that happen in the past
5). unable to retain new learn information
6). tired ALL the time, no energy to do anything
7). pain that goes from the neck, spreads out to both shoulders, goes
down the spine to lower back and spreads out on the lower back and shoots
down both legs.
8). spasms in both legs.
9). he loses color and will start to sweat, and then the next minute he
will be cold and his feet will turn blue, even if it is 97% outside
and you are dying from the heat.
10). he loses his temper very easy, mood changes is an understatement
11). and several more things........but like I said, his docotrs have
made the statement it is mind over matter, and cannot fine a direct
cause due to the lightning, which DRIVES me crazy. If anyone can be
of help, please respond......

                 Rosemary

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From: Arthur.Saus@p160.f72.n376.z1.fidonet.org (Arthur Saus)
Newsgroups: misc.handicap
Subject: Chest/Rib Cage Pain
Date: 1 Sep 92 15:28:53 GMT
Reply-To: Arthur.Saus@p160.f72.n376.z1.fidonet.org
Organization: FidoNet node 1:376/72.160 - Windows of the Worl, Columbia SC

Index Number: 24148

[This is from the Chronic Pain Conference]

Hello Bob!

24 Aug 92, Bob Donovan writes to All:

(description of symptoms and complaints about hospitals deleted)

 BD> All I want to know Is how serious is this
 BD> and for how long will I be in this kind of pain and being
 BD> scared every night that I won't wake up ever again?

Although your request may seem simple enough, the answer to that
question will require a full medical examination by a physician.
Obviously this is impossible over FidoNet.  The real answer is to
find a physician you can trust, and whose advice you are willing to
take.  You may be describing something that is serious and requires
significant medical care, or you may be describing something that
is not a significant problem at all.  After taking your medical
history and performing a physical examination with any lab tests
which are needed, your physician will be able to help answer this
question.

Arthur

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From: Christopher.Baker@f14.n374.z1.fidonet.org (Christopher Baker)
Newsgroups: misc.handicap
Subject: Re: greets!
Date: 1 Sep 92 21:11:03 GMT
Reply-To: Christopher.Baker@f14.n374.z1.fidonet.org
Organization: FidoNet node 1:374/14 - Rights On!, Titusville FL
X-Fidonet: Amputee Conference

Index Number: 24228

[This is from the Amputee Conference]

> Hey if you wish you can call my bbs....Diabetes Discussion...in
Austin > Tx.  It  is PC pursuitable and as you know I carry the
echo.  Be gald to > have you.  Number is 512-451-9737.

speaking of diabetes, Raya Systems [medical software and video game
developer] under license from Nintendo has created a SuperNES game
called "Captain Nolovin" that is designed as an educational tool.
it is intended to teach people with diabetes how to control the
disease thru diet and medication.

10,000 free copies are being distributed to healthcare
institutions. the rest will be marketed thru pharmacies and
diabetes supply companies and educators throughout North America.

i have no info on Raya Systems. the notice appears in this month's
issue of "Game Players Nintendo Guide," magazine [Vol. 5, No. 9,
Sep 1992].

i've left inquiries at Walgreens and Rite Aid here in Titusville.
if i get more info, i'll let you know.

TTFN.
Chris

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From: Hugues.Blanchet@f136.n167.z1.fidonet.org (Hugues Blanchet)
Newsgroups: misc.handicap
Subject: Attagirl!!!!
Date: 1 Sep 92 04:05:44 GMT
Reply-To: Hugues.Blanchet@f136.n167.z1.fidonet.org
Organization: FidoNet node 1:167/136 - Ab.'s Place, Montreal PQ
X-Fidonet: Silent Talk Conference

Index Number: 24115

[This is from the Silent Talk Conference]

Hello Rex,

RF>        Personally I was/am interested in learning the sign in order to be
RF>able to COMMUNICATE with others.

Don't worry, I believe you now.  What I was saying is that I've
personnally met people that took sign classes and never went too far...
because the mystery of it (for them), wasn't soo much of a mystery after
a couple of months and they got very quickly tired of it.

They thought it was so "cool" but it took quite a toll after only a
couple of classes...

Like I said, the *mystery* of it is the only fact that they see people
(deaf) talking to each other using signs and they are thinking "they are
speaking to each other in english and we can't even understand them".
That's where all the *mystery* is for them. Nothing else!!!

Hugues

 * SLMR 2.1a * JUPETTE: Fille du jupon et de la jupe......
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From: Leti.Labell@f421.n109.z1.fidonet.org (Leti Labell)
Newsgroups: misc.handicap
Subject: Re: BRS: INVASION OF PRIV
Date: 2 Sep 92 16:28:13 GMT
Reply-To: Leti.Labell@f421.n109.z1.fidonet.org
Organization: FidoNet node 1:109/421 - Twilight Clone Mac, Rockville MD
X-Fidonet: Silent Talk Conference

Index Number: 24285

[This is from the Silent Talk Conference]

 > Sure they do, but what if the calls are monitored by BOSSES. WHO can
 > fire them if THEY decide to *make copies of the calls for research
 > reasons*...????

Hughes, if ANYONE breaches privacy, whether it's a boss or an
operator, they are gone, fired, kaput.  This goes for privacy on
company records, nonpublished numbers, etc. in addition to info on
monitored calls.

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