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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Fri, 28 Aug 1992 16:04:35 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2900
X-To:         LHCAP <l-hcap@VM1.NODAK.EDU>

                             THE HANDICAP DIGEST

                                 Issue # 2900

                           Friday, August 28, 1992

Today's Topics:


                                ******


                                   cancer
                              General Interest
                                  Re: RSDS
                                Re: LIGHTNING
                             Re: Tens units, etc
                                  Re: RSDS
                              General Interest
                                  More pain
                                  Lightning


                                ******


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Subject: cancer
From: Shelby.Sherman@f67.n123.z1.fidonet.org (Shelby Sherman)
Organization: FidoNet node 1:123/67 - Shelby's Swamp, Bartlett TN


[This is from the Chronic Pain Conference]

 > Hi.I joined this echo in hopes of getting info and possibly
 > support.I'm on the other side of the situation.My mother has
 > lieukemia and she has about 2 years to live.She's on cytoxin
 > right now,they've got her on it for life.Just recently they took
 > her off the meds that take away the pain.I couldn't bear with
 > it.There's got to be something else she can get for the
 > pain.It's really hard watching your own mother die.I remember
 > how I felt when my husbands mother died.It keeps getting
 > worse.The hardest part is I have to be her strength and take
 > care of her,who takes care of me?Well at least I'm strong in
 > front of her.
 >    There is a BBS # I need to find.It's for the National Library
 > of Medicine.

I find this very hard to understand.  Is your mother still in pain?
If she is, and if they have taken away the pain medicine then you
and your mother (if she is able) must very assertively demand that
the pain relief medications be reinstated.  This is a tragedy that
is so unnecessay in this day and time.  You must be very strong to
help your mother and to insure that she remains as comfortable as
possible. I am here to support you in any way that I can.  I am
very knowledgeable in the area of pain control and will be more
than glad to answer any questions or just chat if you wish.

Good luck!

--
Uucp: ..!uunet!bunker!hcap!hnews!123!67!Shelby.Sherman
Internet: Shelby.Sherman@f67.n123.z1.fidonet.org




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Subject: General Interest
From: Shelby.Sherman@f67.n123.z1.fidonet.org (Shelby Sherman)
Organization: FidoNet node 1:123/67 - Shelby's Swamp, Bartlett TN


[This is from the Chronic Pain Conference]

 > INHO, it would be better to have a functioning painfree addict
 > (who would NOT need to resort to violence, since a prescription
 > could be filled) than a non functioning, painful person forced
 > to be on welfare or some such because there is too much pain to
 > work.
 >
 > but the rest of the world doesnt seem to agree.

I am in favor of the full utilization of drugs for medical
purposes. I am not in favor of legalizing drugs for recreational
purposes.

--
Uucp: ..!uunet!bunker!hcap!hnews!123!67!Shelby.Sherman
Internet: Shelby.Sherman@f67.n123.z1.fidonet.org




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Subject: Re: RSDS
From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX


[This is from the Chronic Pain Conference]

Yes RSD 1 year with stelate gangillion blocks, surgery on stelate
gangillion w. partial loss of gag reflex. RSD is pain problem #2.
#1 is poor ciculation,lumphatic, requiring finger to shoulder Jobst &
Varney sling holding right hand above left breast some # per 15
surgeries to arm since Viet-Nam, etc. No longer able to work because of
pain. Bye & thanks.

--
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Internet: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org




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Subject: Re: LIGHTNING
From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX


[This is from the Chronic Pain Conference]

You may wantt o consider a whole (?) new approach - NEUROPSYCHOLOGY.
Suggest a neuro-psy exam ASAP with a qualified person. MOST STATE LIC.
LAWS ALLOW ANY psychologisat to call themselve a neuropsychologist.I
would want a competent person who Ph.D. is in "neuropsychology." For a
name, calll Dr, Samuel Brinkman Ph.D. 915/5590 day time hours CST.

--
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Internet: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org




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Subject: Re: Tens units, etc
From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX


[This is from the Chronic Pain Conference]

Type unit has made no difference for me. Pad MAKES big differences as
I'm allergiuc to bothg the tapes A& gels. I use the disposal kind with
flesh skin color on outside that don't need gel.

--
Uucp: ..!uunet!bunker!hcap!hnews!124!5109.0!Wayne.Briggs
Internet: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org




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Subject: Re: RSDS
From: Bob.Eagly@f21.n3619.z1.fidonet.org (Bob Eagly)
Organization: FidoNet node 1:3619/21 - Inner Sanctum, New Port Richey FL


[This is from the Chronic Pain Conference]

Wayne, I have RSD in my right arm and it goes up to my right ear
and across half of my chest. I am in pain all the time, don't know
any more what it's like not to be. I have just resently got a Tens
Unit and I am one of those people that get good results from it.
With it on I can tolerate most of the pain. I also try to keep a
stiff upper lip if you know what I mean. I don't like getting
crabby, allthough at times I can not help it. I am lucky my family
is pretty understanding. Well hope this finds you in good spirits,
and will write again            BOB

--
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Internet: Bob.Eagly@f21.n3619.z1.fidonet.org




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Subject: General Interest
From: Shelby.Sherman@f67.n123.z1.fidonet.org (Shelby Sherman)
Organization: FidoNet node 1:123/67 - Shelby's Swamp, Bartlett TN


[This is from the Chronic Pain Conference]

 > That sounds like really good advice.  Another thing that I did
 > was to change medications after my body had adjusted to the
 > level the level of dosage I was taking.  I would first increase
 > the dose for a week and then switch to another pain killer.
 > That seemed to work for me.

Hmmmmm.  Well, if it works, I sure cannot criticize but....it is
generally not a good idea to switch around due to possible
cross-tolerance between opiods.  A good technique is to stick with
one opiod ( controlled-released morphine is the best ) and titrate
the dose as needed.

--
Uucp: ..!uunet!bunker!hcap!hnews!123!67!Shelby.Sherman
Internet: Shelby.Sherman@f67.n123.z1.fidonet.org




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Subject: More pain
From: Bob.Officer@f408.n208.z1.fidonet.org (Bob Officer)
Organization: FidoNet node 1:208/408 - The Beemer Board, Manteca CA


[This is from the Chronic Pain Conference]

KM| I can't beleive all the response I've gotten to my question!  I
have an KM| appointment with my oncologist soon and will ask for a
refferal KM| to the pain clinic.  I feel more positively that
something can KM| be done for me.  I've only been suffering with
this for 20 years.

Katheen I wish you well. I'm new to this pain business and the
people on the conference have helped a lot. I get to talk to the
dr. tomorrow and hear what my MRI showed...  Linda posting from the
pain clinic were most helpful... If you can get the files you might
find they are helpful. Her board is down for maint. and shouild be
back up later.

Bob Officer

===
 * SLMR 2.1a * Eagles soar but weasels aren't sucked into jets

--
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Internet: Bob.Officer@f408.n208.z1.fidonet.org




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Subject: Lightning
From: Butch.Walker@f3.n157.z1.fidonet.org (Butch Walker)
Organization: FidoNet node 1:157/3 - Nerd's Nook, Rocky River OH


[This is from the Rare Disorders Conference]

RK>Hi, I am looking for answers. My husband was struck by lightning, on
RK>the left side if his head, just behind his left ear. The
RK>lightning travel throught his body and exited his right foot.
RK>That was over a year ago, and still today he is suffering from
RK>his injuries. The doctors he has been taken to do't seem to

Has an MRI or CT-Scan been done?  Have you seen any really good
Neurologists??

                -Butch

 * DeLuxe2 1.21 #573s * Qmail Deluxe2

--
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Internet: Butch.Walker@f3.n157.z1.fidonet.org




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                  End of Issue # 2900 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU