X-Mailer: ELM [version 2.3 PL11]
Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Thu, 3 Sep 1992 16:45:31 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2926

                             THE HANDICAP DIGEST

                                 Issue # 2926

                        Thursday, September 03, 1992

Today's Topics:


                                ******


                     Chronic Fatigue Syndr. Message # 4
                                Va riochmond
                               Transportation
                      Re: Wanted - Van with Chair lift
                             Re: Transportation
                            Oh No! He'S Back.....
                               Fried Death !!!
                                Hand Controls
                             Athlete Joints....
                               post nasal drip


                                ******


To subscribe to the Handicap Digest mailing list or have your
thoughts in the next issue, please send electronic mail to
Bill McGarry at any of the following addresses:


UUCP:       uunet!bunker!wtm
INTERNET:   wtm@bunker.shel.isc-br.com
BITNET:     l-hcap@ndsuvm1.bitnet
Fidonet:    The Handicap News BBS (141/420)   1-203-337-1607
	    (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064

                              Bill McGarry (Moderator)
                              (203) 337-1518



------



Subject: Chronic Fatigue Syndr. Message # 4
From: John.Kossowan@f140.n150.z1.fidonet.org (John Kossowan)
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE


[This is from the Rare Disorders Conference]

August 1992

Messgae # 4 (# 4 of 4)
Help for Chronic Fatigue Syndrome
Information available from the:
USA CFS/CFIDS BBS, 207-623-8486, on daily from noon to midnight
E.S.T., located in Augusta, Maine, USA.

The oldest running BBS totally dedicated to CFS patients.
Operated by Dr.John F.Kossowan,dentist, a CFS patient.

- - - - - - - -

To be sure to subscribe to :
The CFIDS Chronicle
PO Box 220398
Charlotte, NC 28222-0398

which comes out quarterly with the LASTEST developements in
research news and treatments for CFIDS.

And subscribe to:

"CFIDS Treatment News"
The CFIDS Foundation
965 Mission Street, Suite 425
San Francisco, California   94103
phone #: 415-882-9986
........

"The CFIDS Foundation is a non-profit organization founded in 1986
by a group of people with CFIDS. Funded in part by the San
Francisco Department of Public Health, the San Francisco
Foundation, and individual contributions, the CFIDS Foundation
provides comprehensive information packets for people with CFIDS;
daily telephone counseling and referral to knowledgeable
physicians, support groups, disability lawyers, and other
resources; periodic Treatment Newsletter with latest information on
treatments being tried throughout the country,; training and
materials for health professionals; patient advocacy and public
policy developemnt; media coordination; and support for research."

The CFIDS Foundation

- - - - -
Thank you for your attention !!!
There is other pertinent information in my BBS on CFIDS,
however I thought this is the essential immediate info you
should have.
Please call the USA CFS/CFIDS BBS, with over 300 files on CFS.

Best wishes !!
Dr.John F.Kossowan

-- end of message --

--
Uucp: ..!uunet!bunker!hcap!hnews!150!140!John.Kossowan
Internet: John.Kossowan@f140.n150.z1.fidonet.org




------



Subject: Va riochmond
From: John.Lynch@f1000.n261.z1.fidonet.org (John Lynch)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

 MM> Still not sure if your a para or a quad, but I know what your talking
 MM> about!  After my surgery, I was a one armed para in an electric chair.
 MM> Not aloud to transfer or anything else. So when I

I am a para, but had bad nerve damage to the left arm shoulder and
biceps.  I used a "one arm bandit" manual chair which had two rings
on the right side.  grabbed both rings and went forward, or just
the ring for the wheel I  needed to turn.  A drive shaft went under
the chair from the wheel to the push rim.

 MM> Keep in touch 72, I am a newby... you could probably educate me some!

After 9 years at this game, I am sure you and I could swap stories.
Regards, John

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!John.Lynch
Internet: John.Lynch@f1000.n261.z1.fidonet.org




------



Subject: Transportation
From: John.Lynch@f1000.n261.z1.fidonet.org (John Lynch)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

 TA>     I'm looking into purchasing a van and there are
 TA> somethings I want advice on. I need to know which
 TA> would be better, lowering the floor or putting on a
 TA> higher roof. Which van would be best a Chevy or a
 TA> Ford. And where would the lift on the van best work
 TA> on the side or in the back.

Well, if you want to drop the floor, the Ford is the only van you
can that to, so I am told(folks, if I am wrong, jump in).  And I
thing that the 1992 ford has been redesigned so that may be a
problem.  I also read that wit the 92's ford requires conversion
companies to get permision from Ford to chop the roof and add
raised tops(to insure support in a roll over, so I am told).

But I like the looks of the new Ford.  Go with a side lift,
especially if you have to parallel park.  This allows you to still
have a back seat.  If a wide parking space isn't provided, make one
by angle parking so your lift doesn't get blocked.

BTW, I also have been told that a lower floor is expensive,
compared to a raised roof, but I may be wrong on that.

Good luck,
Regards, John

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!John.Lynch
Internet: John.Lynch@f1000.n261.z1.fidonet.org




------



Subject: Re: Wanted - Van with Chair lift
From: Kevin.Robinson@f15.n280.z1.fidonet.org (Kevin Robinson)
Organization: FidoNet node 1:280/15 - Writers' Block BBS, Raytown MO


[This is from the Spinal Injury Conference]

If it's still available, Bill, I looked at a '77 Dodge lift van w/raised
doors, lock downs, air, new paint job and tires, and 41,000 original
miles.  I was looking for a friend in Orlando, but he has apparently
found another deal.  The owner was asking $7000 O.B.O., and the
customized (inside carpet, captain's chairs, & bench seats/bed) van was
in GREAT shape.  Unfortunately, it's in Loveland, CO.  If interested,
call Gilbert Orneles at (313)669-1682.  Good luck....
   Yours etc.,

--
Uucp: ..!uunet!bunker!hcap!hnews!280!15!Kevin.Robinson
Internet: Kevin.Robinson@f15.n280.z1.fidonet.org




------



Subject: Re: Transportation
From: Tim.Syfert@f15.n114.z1.fidonet.org (Tim Syfert)
Organization: FidoNet node 1:114/15 - St Joes Hospital, Phoenix AZ


[This is from the Spinal Injury Conference]

 TA>     I'm looking into purchasing a van and there are somethings
 TA>  I want advice on. I need to know which would be better,
 TA>  lowering the floor or putting on a higher roof. Which van
 TA>  would be best a Chevy or a Ford. And where would the lift on
 TA>  the van best work on the side or in the back. ###

Tony,

    I've heard that Fords are best when it comes to lowering the floor.
Anyone else....?

                                  Tim

--
Uucp: ..!uunet!bunker!hcap!hnews!114!15!Tim.Syfert
Internet: Tim.Syfert@f15.n114.z1.fidonet.org




------



Subject: Oh No! He'S Back.....
From: Ed.Stahl@f140.n150.z1.fidonet.org (Ed Stahl)
Organization: FidoNet node 1:150/140 - Black Bag BBS, Newark DE


[This is from the Spinal Injury Conference]

Hello all!

I am now home and confined to my own bed rather than a hospital bed.
I have a visiting nurse come in once a day (for about 15 minutes) and
an aide three times a week. Other than that I am alone from about 7:30am
to 5:30pm, but things seem to be working out. Every nurse that sees my
flap site comments on how good it looks, I had my staples removed two
days ago and half or the sutures will be removed Monday with the remaining
sutures removed five days after that. So I'm guessing about three weeks
until I can be back up on the "Million $ Butt" Iv'e missed a lot of messages
so I hope you all understand if you haven't received replies.

I also see that there seems to be some renewed interest in
Electroejaculation. I had posted a rather long message on this several
months ago regarding my own experiences, but I don't think I stil have a
copy around. (I'll try and answer any questions if I can)

Well as usual it's great to be back!!

                                Ed

... OFFLINE 1.36 * IT'S NEVER TO LATE TO HAVE A HAPPY CHILDHOOD!

--
Uucp: ..!uunet!bunker!hcap!hnews!150!140!Ed.Stahl
Internet: Ed.Stahl@f140.n150.z1.fidonet.org




------



Subject: Fried Death !!!
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <16 Aug 92 13:46> Karen Tackett wrote:

 KT> Thanks for mentioning this. I keep taking my daughter off her
 KT> recommended maintenance dosage. She's been healthier than ever. I
 KT> just make sure she gets plenty of liquids, and some cranberry
 KT> juice and alfalfa every so often. The docs give me grief, but
 KT> their just trying to cover their tail ends in case she gets a UTI.

Your daughtr has a long life ahead of her and any treatment should
be undertaken with the long range effects in mind.  I run a
constant low level bladder infection which seldom causes any side
effects.  However, every once in a while it combines with another
bug, causing a flare up which causes me to run a fever.  At this
pooint it gets treated.

I could get rid of the entire infection by taking a drug which
might cause blindness.  Just what I need.  A blind quad in an
electric wheelchair!

PARAPLEGIA will have a detail write up of the aging study in the
September issue.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




------



Subject: Hand Controls
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <15 Aug 92 06:41> Karen Tackett wrote:

 KT> As a matter of fact, no. They just recently had a call for people
 KT> to step forward and work with a government task force on
 KT> disabilities. A columnist would be a great idea.

     It might even pay.

 KT> There is enough going on in this area to have a column. For one
 KT> thing, the ADA issue has opened an area of concern for business.
 KT> They're asking questions on how to meet the requirements.
 KT> Also, housing is kinda weird here in Olympia. It seems that the
 KT> way they wrote the law left some confusion on the part of
 KT> builders... something like that. This apartment manager explained
 KT> it to me when we were looking for housing.

     Sound like you have enough going ons for a 400-800 word weekly column.

     Check out the following ideas for ...

Wheelers                Ambulatory        Blind/Deaf        Elderly

1.  Aging w/ a disability
2.  Wheelchair to independence - lark
3.  DAST - a riders story
4.  DAST - a dispatchers story
5.  DAST - the purpose
6.  staying fit
7.  Travel - airline, cruise, train
8.  Camp Fairlee, Manito, etc
9.  employment - homebased
10.  employment - getting
11.  education
12.  Library of the Blind and Physically Handicapped
13.  Dodging traffic
14.  Sports
15.  finding an apartment
16.  finding an attendent
17.  specially equipped vans
18.  driving with hand controls
19.  getting a driver license
20.  sp. ed. schooling

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




------



Subject: Athlete Joints....
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <21 Aug 92 06:17> Sheila Fava wrote:

 SF> Where do I find a copy of NEW MOBILITY?  I get PARAPLEGIA already.

NEW MOBILITY is the new title for the old SPINAL NETWORK magazine.
Their address is

               New Mobility
               P. O. Box 4162
               Boulder, CO  80306

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




------



Subject: post nasal drip
From: Allison.Cozzi@f3216.n161.z1.fidonet.org (Allison Cozzi)
Organization: FidoNet node 1:161/3216 - Computer Communicat, Concord Ca


[This is from the Spinal Injury Conference]

-> Did anyone else develop a clogged sinus/post nasal drip condition aft

     You set some bells ringing for me, Alan. So I thought I would offer
this up for your thought.
     Last year, I had several  rips in the dura surrounding the spinal
cord. As you know, the dura surrounds the entire spinal cord and the
brain so it remains a "closed system", as it were. In my case, when I
had the tears to deal with, I dripped spinal fluid for three weeks.
Because the path of least resistance was out the new incision midline on
my back, that's where it dripped out...right out the incision and down
the small of my back. HOWEVER (You knew I was going somewhere with this,
didn't you?) after I had the surgery to repair the tears in the dura, I
was put in a room at UC San Francisco with a woman who had been leaking
spinal fluid VERY SLIGHTLY since she had had some kind of brain surgery
the year before (I think it was a tumor but that doesn't matter to the
story here.) She said the reason it had taken her so long to mention it
to her doctor (a year) was that she thought she had a chronic post nasal
drip  becasuer it just dripped down the back of her throat and,
sometimes would drip from her nose.
     Is it possible that this may be related to what you are
experiencing?
                                                    Allison

--
Uucp: ..!uunet!bunker!hcap!hnews!161!3216!Allison.Cozzi
Internet: Allison.Cozzi@f3216.n161.z1.fidonet.org




------






                                ******

                  End of Issue # 2926 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU