X-Mailer: ELM [version 2.3 PL11]
Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Tue, 12 Jan 1993 15:10:22 EST
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 3097

                             THE HANDICAP DIGEST

                                 Issue # 3097

                          Tuesday, January 12, 1993

Today's Topics:


                                ******


                                  Backache
                                   Lament
                                   CANCER
                         UVa. Electronic Text Center
                                 information
                              Diabetes And Sci
                                  Armrests
                                   Jackets
                                  BACK PAIN
                           Re: Anybody Out There?


                                ******


To subscribe to the Handicap Digest mailing list or have your
thoughts in the next issue, please send electronic mail to
Bill McGarry at any of the following addresses:


UUCP:       uunet!bunker!wtm
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Fidonet:    The Handicap News BBS (141/420)   1-203-337-1607
            (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064

                              Bill McGarry (Moderator)
                              (203) 337-1518



------



Subject: Backache
From: Bob.Paddock@f1000.n261.z1.fidonet.org (Bob Paddock)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Chronic Pain Conference]

[Note from Bill McGarry -- I will attempt to get a copy of
 this software for the handicap archives.]

This is Karen Shettler.

Bob gave me a shareware program called "bkache56.lzh".  This program
basically talks about your spine and backaches.  It also gives quite a
few tips on how to lessen backaches.  I haven't read though all of the
topics, but the ones that I have read though seem like they would fit in
on this echo.

Here is a list of topics that "bkache56.lzh" discusses:

Let's Begin...(is basically instructions on how to use the program)
Print Order Form/Registration Form
Backache: The Silent Epidemic
Back and Spinal Anatomy Part One
Back and Spinal Anatomy Part Two
Back Pain: A Variety of Causes
Posture, Fatigue, Spinal Curvature
Chronic or Severe Trauma and Pain
Slipped Disc: Rupture of the Deep
Arthritis & Systemic Diseases
Aging, Tumors and Infections
Pregnancy and Birth Defects
A Visit to the Doctor's Office
Basic Exercises for Back Pain
Advanced Exercises for Back Pain
Other Home Remedies for Back Pain
Surgery, Medications, Chiropractic
About the Author of This Software

You can get a copy of this shareware by calling Bob's BBS at
1-814-437-5647.  It is in the HEALTH directory.

[ Since I'm still trying to figure out all of this FrontDoor stuff,
  to get my own BBS onto this echo, I uploaded bkache56.zip to:

                410-655-4708

-- Bob]

If you do not have the archiver that unpacks .lzh files you
can find it in the ARC directory under the name lha213.exe.  Lha213.exe
is a self-extracting archive.

Please feel free to make an upload here if you feel that you have
something that would be useful to other people.

Hope this helps somebody!

Karen

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!Bob.Paddock
Internet: Bob.Paddock@f1000.n261.z1.fidonet.org




------



Subject: Lament
From: Stefan.Welch@p0.f33.n125.z1.fidonet.org (Stefan Welch)
Organization: FidoNet node 1:125/33.0 - BODY DHARMA ONLINE, Oakland CA


[This is from the Chronic Pain Conference]

 Hello all.  Yes, you, and you, and you.  And you there, over in the
 back.

 I've been thinking and hesitating to broach this subject.  Now it's
 time to boost the battery charging circuts.  This is a lament close
 to my heart.  I'd like to hear from you.

 I've taken a turn for the worse this week.  Hope the pain increase is
 temporary--though, when illness is chronic, any downturn can make the
 black wave close overhead.  I'm running out of air.  I think about
 suicide more often, not seriously, but I think about it.  The
 ultimate out.  When I focus on something, the grey cells go on
 strike: I feel like oatmeal for brains.  I'm also feeling a deep and
 abiding sense of loneliness for female companionship.  In the past,
 I've been blessed with 6 and 8 year relationships.  I live alone now
 (with help from friends and family) and feel a hole in my heart of
 lacking--oh woe--company and intimacy.  I miss the conversations with
 slippery puns; and the purple tongues from eating blueberry muffins
 together; and the walking on the beach; and the curling up spooning
 sleep.  I'm not sure how I'd get there.  With the limits that
 challenge me, I don't imagine how I'd manage if I did. (Hmm.  Some
 interesting twists in that.)

 I fare best when I don't move much--as in I can stand for a few
 minutes at a time several times a day.  No sitting.  When I hurt a
 lot, I get crabby (and probably not fun to be around); and my
 attention span would make a hyper-active kid appear to concentrate.
 From this vantage, I don't imagine being attractive or interesting,
 or if someone were to get interested, I imagine she would have
 underestimated what she was in for and then leave.  I have a
 distorted, dire picture of what I have to offer.  (You can see: my
 self-image appears and disappears as a mirage flitting in the dry
 desert heat.)  I make good use of phone lines, BBSs, and libraries.
 With these I can generate contacts and a limited amount of work that
 keeps me connected and distracted.

 This is heartache though.  I just want to feel loved.  I'd even like
 to feel loved from myself.  I don't find or recognize what myself is
 anymore.  Chronic pain mists up the visibility.  Hmm.  Defogger?
 windshield wipers?

 Some of you are single and may share these pains.  Or you may have
 worked your way around them.  Or balanced in some way.  Some of you
 are partnered and may feel that you drag down the relationship.  Or
 you may be a caregiver who sees beyond the PwD.  I'd be interested to
 hear from anyone in any position.  Perhaps your thoughts and
 experience can help me to unkink the distorsions and see myself as
 more valuable and interesting than I do.

                                      All you who sleep tonight
                                      Far from teh ones you love,
                                      No hand to left or right
                                      And emptiness above--

                                      Know that you aren't alone.
                                      The whole world shares your tears,
                                      Some for two mights or one,
                                      Some for all their years.

                                                   - Vikram Seth
Thanks,

Stefan

... RAM DISK is NOT an installation procedure!

--
Uucp: ..!uunet!bunker!hcap!hnews!125!33.0!Stefan.Welch
Internet: Stefan.Welch@p0.f33.n125.z1.fidonet.org




------



Subject: CANCER
From: Mike.Silver@f190.n322.z1.fidonet.org (Mike Silver)
Organization: FidoNet node 1:322/190 - Middlesex News, Framingham MA


[This is from the Chronic Pain Conference]

  Greetings.

      I don't know if this topic is ok for this conference, but it seems
the best place to post it.  A female aquaintence of mine recently
  had a tragic occurance take place in her life.  Last year she had been
  diagnosed with breast cancer, but with surgery and chemo treatments
  she was able to overcome it.  Actually this was 2 years ago.  Since
  then she has been going every three months for an exam, mamography,
  etc.. to the  (leahy?) clinic.  Supposedly  a great place for helping
  cancer patients.  So this cancer specialist she was seeing there
  informed her that the lumps she was feeling recently over the past
  six months were just glandular? in nature.  (i'm not sure what that
  means.)  But she was very worried, so she insisted on a blood test on
  her last visit, and sure enough they found a load of cancer.  She
  has new cancer growing in the breast and lymph? nodes.  I can't say
  i'm impressed with this cancer doctor she was seeing, but now she's in
  major trouble with all this cancer.  She really is thinking that her
  life is over now, though everyone is trying to cheer her up.  So now
  she has to go for more chemo-therapy and radiation, and whatever else
  they do.  I dont know a great deal about cancer , except that it just
  eats away at the body.  Does it inflict a lot of chronic type pain?
  Anyone had a similar experience?

* Mike *

--
Uucp: ..!uunet!bunker!hcap!hnews!322!190!Mike.Silver
Internet: Mike.Silver@f190.n322.z1.fidonet.org




------



Subject: UVa. Electronic Text Center
From: dms8f@minerva.acc.Virginia.EDU (David Michael Seaman)

[Forwarded from the PACS-L mailing list by Patt Bromberger]

----------------------------Original message----------------------------
David Seaman                        Phone: 804-924-3230
Electronic Text Center              Fax:   804-924-1431
Alderman Library                    email: etext@virginia.edu
University of Virginia              NeXTmail: dms8f@etext.lib.virginia.edu
Charlottesville, Virginia 22903

*******************************************************************

                     The Electronic Text Center
                                &
                On-line Archive of Electronic Texts
              Alderman Library, University of Virginia

     As part of an ongoing commitment to the use of computers in education
and research, the University of Virginia Library has established an
Electronic Text Center and an on-line collection of machine-readable texts.
The initial set of on-line texts includes the new Oxford English Dictionary;
the entire corpus of Old English writings; selected Library of America
titles; several versions of Shakespeare's complete works; hundreds of other
literary, social, historical, philosophical, and political materials in
various languages (chiefly from the Oxford and the Cambridge Text Archives);
and the currently released parts of two massive databases from Chadwyck-
Healey: J-P. Migne's Patrologia Latina, and the English Poetry Full-Text
Database, comprised of the complete works of 1,350 English poets from
AD 600 to 1900.  Because of contractual obligations, access to these texts
and searching tools is restricted to University of Virginia students, faculty
and staff.

     A principal aim of the Electronic Text Center is to help create a new
broad-based user community within the humanities at Virginia. We work daily
with individual users to introduce them to new working methods, new teaching
possibilities, and new types of equipment, and we aid John Price-Wilkin, our
library's Information Management Coordinator, to run regular training
sessions for the on-line data and search tools.  The Library was adamant from
the earliest stages of this enterprise that these new services had to be
introduced and taught through ongoing workshops and demonstrations, in order
to become a mainstream part of the teaching and research resources on which
our faculty and students draw.  New users need to see for themselves that
they can sit at a large color monitor and simultaneously search multiple on-
line databases (say, the Oxford English Dictionary and the English Poetry
database) while manipulating color images of manuscript pages (which they may
have just created in the Center), and then can open another window to e-mail
a colleague about the results, or to log into another library's catalog
before using our on-line document delivery service to order a book through
Inter-Library Loan. Such a hands-on demonstration typically overcomes any
initial trepidation a new user may feel.

     Our on-line texts are all SGML encoded.  Some of these we are tagging
ourselves, with the aid of volunteers from various library departments, under
a Staff Sharing program for cross-training.  The on-line texts are searched
using Pat, a program developed initially for the Oxford English Dictionary.
Users in the Library and elsewhere on campus with access to a machine running
X Windows can search and view these databases through a graphical interface
to Pat that shows texts in a form very close to the appearance of the printed
page; users dialing in from desktop machines will typically use a VT100
search and display front-end to Pat (called Patty), which the Library is
developing in conjunction with UVa.'s Academic Computing Department.

     Having the majority of our electronic texts available on-line affords
significant advantages: it eases the pressure of use on the Center, gives
much more flexible and convenient access to our users, and allows us to
provide the same search and display "front-end" for all our collections.
Having been taught to use one database, a user has the knowledge necessary
to search all current and future databases, thereby overcoming the
frustrations often involved with using CD-ROM products, each of which may
have a different interface.

     In addition to building the on-line collection, the Electronic Text
Center both provides a place in which to use those few texts not available
on-line and also houses hardware and software that allows the computerized
analysis of text.  At present we have MS-DOS machines, a NeXT, and an
IBM RS6000, all with large color monitors (a Macintosh is on order); two
scanners that turn printed text into computer-readable forms and that
generate high-resolution color images; and laser printers and CD-ROM drives.
These tools allow scholars to use software that can generate indices,
concordances, word-lists, and statistical analyses (Micro-OCP, Tact, MTAS,
and LitStats), create hypertexts (Guide), and perform collations and
cumulative sum analysis. We use "xv", an X Windows image viewer, extensively
on the RS6000, the PCs, and the NeXT for viewing, cropping, and enlarging
digital images alongside the searchable databases. The Center's NeXT also
gives us the capacity to record digital sound.

       Our first semester of operation has necessarily been a time of
experiment and fine-tuning; nonetheless, there have been significant research
and teaching projects using the services of the Center and the on-line texts
throughout the fall:

*    A large undergraduate survey course used our holdings in the 19th
     century novel and added an 18th century Canadian novel to the collection

*    scholars have searched the Hebrew bible, the Talmud, and several hundred
     books of rabbinical responsa on the Taklit-Shoot  cd-rom

*    a Shakespeare survey course created a teaching tool using text, images,
     and digitized sound from different productions of The Merchant of Venice,
     to run alongside the on-line collections of Shakespeare's works.

*    a graduate student has studied ship-naming conventions and metaphors in
     Anglo-Saxon writings, using the Old English Corpus

*    A composition class used our services to gather and search
     Bush/Clinton articles

*    a French professor has set up a language tutorial program for his
     medieval French course

*    bibliography students have used collating software, image scanning, and
     digitized sound while preparing and presenting research projects for a
     graduate textual editing course

*    a medievalist has scanned in manuscripts, using the ability to enlarge
     and re-color portions of a scanned image as he transcribes them.

In addition, the first two Fellows of the University's Institute for Advanced
Technology in the Humanities have entered text and images for a hypermedia
edition of Dante Gabriel Rossetti, and have scanned in maps, engravings,
census data, and texts for a major research project on two Civil War
communities (one Northern and one Southern).  In the course of all this
activity, the E-Text Center staff have given impromptu and formal training
sessions to hundreds of faculty, students, and visitors.

     The Center and on-line archive provide a potential model for other
institutions as they plan similar endeavors.  We hope that the strong
partnership we have forged with our local academic computing community will
also provide an example of how to create an "information technology
community" at the college level by unifying the creative energy and expertise
of technical and non-technical departments.

     The Electronic Text Center, located on the third floor of Alderman
Library, is open Monday-Thursday 9am-10pm, Friday 9am-6pm, and Sunday
1pm-10pm, and is staffed by David Seaman (coordinator), Peter Byrnes, David
Gants, Peter Kastor, Jamie Spriggs, and Kelly Tetterton. For more
information, e-mail us at etext@virginia.edu or phone 804-924-3230.





------



Subject: information
From: FULLMER@WVURTC.WVNET.EDU (Steve Fullmer)


The West Virginia Research and Training Center is developing a resource
manual for on line resources in the areas of disability and special
education. Resources include BBSs, conferences, services (Compuserve,
Prodidy), sources of downloadable files, etc. Basically we want to
list anything useful to a person with an interest in disabilities and
a modem.

If you know of a resource which should be included in this manual,
please pass this message along to the person who can best respond.

The manual will use 8-1/2 x 11" pages and we will include appropriate
descriptions of resources. To be "appropriate" the description will
need to fit on one page. We would greatly prefer to have these
submitted as text or Word Perfect files so that they will be included
in the electronic and braille versions of the manual.

A good description might include: a paragraph or two on the resource--
why should the reader want to use it, communications settings, phone
number, and any other information that will be useful to potential
users of the resource.

These manuals will be distributed at the California State University
Northridge (CSUN) Conference on Technology and People with
Disabilities, the National Conference on Rehabilitation Education, the
Rehabilitation Technology Association's Symposium, and similar events.

You may send these to: 1:279/14 (fidonet), fullmer@wvurtc.wvnet.edu
(internet/bitnet), upload a file to or leave a message on Project
Enable at (304) 766-7842, or mail to Steve Fullmer, WV Research and
Training Center, 806 Allen Hall, West Virginia University, Morgantown,
WV 26506. You may contact me at (304) 293-5313 (voice) or (304) 293-
6661 (FAX).

Thank you.

Steve Fullmer




------



Subject: Diabetes And Sci
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to All <08 Dec 92 11:41> Linda Lindsey wrote:

 LL> Our clinical care nurse supervisor is wanting information on how
 LL> an individual with SCI that is a diabetic manages their bowel and
 LL> bladder program.  The individual is restricted on their fluid
 LL> intake and this causes problems with bowel and bladder
 LL> management.  Does anyone have any information on this?

I have a mild form of diabetes which only requires insulin shots
when I get really sick.

Restricting fluid intake is not the answer.  Establish a baseline
fluid intake level that will result in a good bowel and bladder
program.  Then adjust the insulin.  SCI and its long term effects
are the priority and the diabetes must be treated as a secondary
problem.

This is the advice I was given 12 years ago by a primary SCI
physician treating me for both problems.  It does require close and
constant monitoring, but then that is one of the little tasks of
the problem.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




------



Subject: Armrests
From: John.Rougeau@p4.f184.n132.z1.fidonet.org (John Rougeau)
Organization: FidoNet node 1:132/184.4 - The Bulldog BBS !, Hudson NH


[This is from the Spinal Injury Conference]

In a message of <Dec 10 17:00>, Joe Chamberlain (1:150/175.1) writes vaguely:

 >     Yea, mine too.  I think this is just an irreversible pattern of old
 >age for the quad.  We have no muscle mass in the back and abdomen to
 >control the collaspe.  Consequently, kyphosis and the scoliosis becomes
 >rapid after 20 years or more.

Say, do you use lateral supports on your chair?  Maybe there's just
no practical way to fight Newton's Law...... :-/

-John

--
Uucp: ..!uunet!bunker!hcap!hnews!132!184.4!John.Rougeau
Internet: John.Rougeau@p4.f184.n132.z1.fidonet.org




------



Subject: Jackets
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Derek Juntunen <11 Dec 92 02:39> Ed Dobie wrote:

 ED>   I just heard about this reading this echo.  Have you ever
 ED> heard anything about this?  If you think about it, ask what your
 ED> PT thinks about it.  See if she can give you a run down on it.  I
 ED> have no idea what your situation is, but Jill is starting to "C"
 ED> a bit.  The U isn't terribly agressive in most areas, but I would
 ED> like to attack this problem as soon as possible.

The 'Wilmington Jacket' was developed by the orthopaedic department
at the A. I. DuPont Institute.  The Institute is a children's
orthpaedic hospital funded by the will of the late Alfred I.
DuPont.  Complete details on the jacket can be obtained by writing
to Dr. Richard Bowen, Medical Director, A. I. DuPont Institute, P.
O. Box 269, Wilmington, DE 19899

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




------



Subject: BACK PAIN
From: Linda.Cummings@f34.n375.z1.fidonet.org (Linda Cummings)
Organization: FidoNet node 1:375/34 - Batteries Included, Montgomery AL


[This is from the Spinal Injury Conference]

In a message to Wes Dunlap:

 >> Seeing a chiropracter is safer, less expensive, less pain, less
 >> time, easier, it's better & more efficient.
 >> Just see a chiropracter for any neck, back, any other pain or
 >> injury.

 > Are you a chiropractor??

Sounds like it, doesn't it?  I must admit that I did see a
chiropractor for awhile, and he was THE one who helped me get my
disability started. But, even he admitted (after the insurance ran
out) that he couldn't help me.

IMHO, A chiropractor is not the first doctor I'd pick with a neck
or back injury, though.

Happy Holidays!
Linda

--
Uucp: ..!uunet!bunker!hcap!hnews!375!34!Linda.Cummings
Internet: Linda.Cummings@f34.n375.z1.fidonet.org




------



Subject: Re: Anybody Out There?
From: Kevin.Robinson@p0.f15.n280.z1.fidonet.org (Kevin Robinson)
Organization: FidoNet node 1:280/15.0 - Writers' Block BBS, Raytown MO


[This is from the Spinal Injury Conference]

Hi Greg,
  Being a student IS interesting AND important!  Quads take SO many
years of rehab to get control of living again, they sometimes lose
sight of life.  IMHO, "living" is about physical survival, and for
quads (and lots of other severe disabilities) that's a task in and of
itself.  To get past that, and to get another crack at "life," that's
the trick.  "Life" is all about finding your individual "thing" and
doing it...adding something to the human experience going on in the
world around you.  That's almost impossible to do when most of your
enery needs to be focused on survival functions, and being focused on
survival function can make us look inward TOO much.  Going to school,
searching for your "life" is the most important step an individual can
take in getting back "outside."
 Good luck with your search!
 Thanks for asking about my mysteries.  The first is called SPLIT
SECONDS, and the new one is called MALL RATS.  The protagonist is
Nicholas "Stick" Foster, and he's just started back into "life" after
a SCI as a newspaper reporter.  His next adventure is called EQUAL
ACCESS, and should come out late next summer.  There are only two
current mystery writers using wheelchair sleuths: William Love in his
wonderful "Bishop Regan/Davey Goldman" series (THE CHARTREUSE CLUE,
FUNDIMENTALS OF MURDER, and BLOODY TEN) and me.  Only one of us
actually lives in a chair, so Bill Love "uses" many of us as he
diligently researches the Bishop Regan charactor. (A paraplegic with a
220 IQ!)  My books are still in hardback, and your local bookseller
either has them or can order them from their wholesale distributors.
If a local bookstore doesn't seem inclined to help you (as has
happened to a number of folks), you can order the books from any
mystery bookstore (like The Rue Morgue in Boulder 1-800-356-5586), or
by calling the publisher at 1-800-AT-WALKER.  Have a happy holiday
season!
    Yours etc.,

--
Uucp: ..!uunet!bunker!hcap!hnews!280!15.0!Kevin.Robinson
Internet: Kevin.Robinson@p0.f15.n280.z1.fidonet.org




------






                                ******

                  End of Issue # 3097 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU