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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Tue, 12 Jan 1993 11:11:17 EST
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 3094

                             THE HANDICAP DIGEST

                                 Issue # 3094

                          Tuesday, January 12, 1993

Today's Topics:


                                ******


                              ICCDC Newsletter
                               More Than ABLE
                               More Than ABLE
                               More Than ABLE
                               Brailler Repair
                            Galloping Euphemisms
                              Re: Chiropractors
                             Re: Water Exercises
                             Re: Water Exercises


                                ******


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                              Bill McGarry (Moderator)
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Subject: ICCDC Newsletter
From: Earl.Appleby@f4.n262.z1.fidonet.org (Earl Appleby)
Organization: FidoNet node 1:262/4 - <CURE Mail Node, Berkeley Springs WV


[This is from the AbleNews Conference]

ABLEnews Resource
                   Island County Coalition of Disabled Citizens
                           December 1992 Newsletter

features:

Crimes Against People With Disabilities

   "The reason violent crimes against people of disability are not
   identified as 'hate crimes'is because we are not perceived as being a
   viable separate group in society."

Recently Seen

   "In describing a broken car being robbed, "a car with disability" was
   the terminology used. Next, let's try it with people!"

Beach Bunnies in a Wheelchair!

   "Inventor Mike Hensler has built 70 "Surf" chairs for beaches in
   seven states. No more excuses, ladies!"

The Telethon Controversy

   "These 'professionals' of the disability world have created an
   industry in which we are the Capitol Stock--but we cannot influence
   the use of the mountain of funds collected in our names, but not in
   our behalf."

Wheelchairs Being Banned

   "'Mobility impaired' but not 'sick' individuals are bing told by
   managers of some retirement villages that they may pay their money to
   rent an apartment--but they will not be able to use the main dining
   room unless they leave their wheelchairs outside and walk in!"

Elections

   President: Dale Flannery
   Vice President: Ana Unum
   Secretary: Joy Carson
   Co-Treasurers: Marsh Buford, Jeannette Flannery

Say What?!

   "We should be wary of people's meaning in referring to 'meaningful
   life.'...If we do not know our history, we are doomed to repeat it!"

Activities and Accomplishments

   of the Island County Coalition of Disabled Citizens.

To read more, write: Island County Coalition of Disabled Citizens
                        P.O. Box 387
                        Freeland, WA 98249

...For further information, contact CURE, 812 Stephen Street, Berkeley
Springs, West Virginia 254511 (304-258-LIFE/5433).

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Subject: More Than ABLE
From: Mike.Adams@f10.n19.z1.fidonet.org (Mike Adams)
Organization: FidoNet node 1:19/10 - Majik Shoppe BBS, Altus OK


[This is from the AbleNews Conference]

Earl, I suppose I'm marching to the tune of a different drummer, but I
cannot see any significant difference in the following:

Disabled physician
Physician with a disability

Other than the obvious requirement to make the usage of our language more
cumbersome and unweildy to appease those who enjoy playing with our minds,
these two phrases convey exactly the same message.

 * A-R 0019 V2.00 *

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Subject: More Than ABLE
From: Tim.Maxwell@f136.n267.z1.fidonet.org (Tim Maxwell)
Organization: FidoNet node 1:267/136 - Access BBS, Ballston Spa NY


[This is from the AbleNews Conference]

MA> Earl, I suppose I'm marching to the tune of a different drummer, but I
MA> cannot see any significant difference in the following:
MA>
MA> Disabled physician
MA> Physician with a disability
MA>
MA> Other than the obvious requirement to make the usage of our language more
MA> cumbersome and unweildy to appease those who enjoy playing with our minds,
MA> these two phrases convey exactly the same message.

A well accepted fact of life:
   First Impressions influence people, and those impressions are the
strongest in people who don't know you.
  "Physician with, or Person with- a disABILITY" places PEOPLE FIRST, and
when shortened, as is common with usage, just maybe the PERSON will
remain, not the inpression of disABILITY. (Maybe that will just fade
away, as it should.)
  We are who we think we are, but often we are limited by other peoples
limited vision of who we can be. Anything that can help instill the best
impression can't hurt, and just may help.
___
 X JABBER v1.01 X If you don't speak out now...."THEY" will speak for you!

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Internet: Tim.Maxwell@f136.n267.z1.fidonet.org




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Subject: More Than ABLE
From: Mike.Adams@f10.n19.z1.fidonet.org (Mike Adams)
Organization: FidoNet node 1:19/10 - Majik Shoppe BBS, Altus OK


[This is from the AbleNews Conference]

TM>A well accepted fact of life:
TM>   First Impressions influence people, and those impressions
TM>are the strongest in people who don't know you.

It's also well-accepted that first impressions are often deceiving.
The sort of people who rely upon first impressions as their sole
source of judgement aren't usually the sort to pay attention to
the subtle rearrangement of words in the "people-first" philosophy.

TM>  "Physician with, or Person with- a disABILITY" places
TM>PEOPLE FIRST, and when shortened, as is common with usage,
TM>just maybe the PERSON will remain, not the inpression of
TM>disABILITY. (Maybe that will just fade away, as it should.)

I agree that it would be wonderful if people wouldn't focus
in on the disability as opposed to the person, but as far as
I'm concerned this process merely draws attention to the
the disability.

If you'll recall the movie "Roxanne" with Steve Martin (a Cyrano
DeBergerac parody), the new fireman comes to the station, and he's
immediately warned not to mention the Steve Martin character's
large nose.  On the surface, that sounds easy enough --- until he
sees the nose.  Then that's ALL he sees.

Nice for a joke, but it simply points out an essential part of
human nature as far as I'm concerned.  This push to play games with
people's minds will inevitably backfire in my opinion.

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Internet: Mike.Adams@f10.n19.z1.fidonet.org




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Subject: Brailler Repair
From: Warren.Figueiredo@f6.n3800.z1.fidonet.org (Warren Figueiredo)
Organization: FidoNet node 1:3800/6 - CompuChurch (tm) IH, Baton Rouge LA


Walter
Howe Press has had training sessions for those who repair braillers
because it has not been able to handle the volume of repair. It really
has never been able to handle the volume of sales either. Many people
have had to wait months even years to buy a new machine. I just
encountered someone who had to send a new brailler back to Howe Press
twice and it still has not been fixed to the customer's satisfaction. If
it is returned defective again, the customer has decided to ask for his
money in lieu of the new brailler.

Of couse I say this wil quite a bit of respect for the Perkins Brailler.
It is a great machine and has served many braille users well. Literally
thousands of sheets has passed through the rollers of my own Perkins and
it still works like a charm.

By the way, there is a brailler repair program for Louisiana's schools
that I'm proud of. We take any state or parish brailler and repair
tme for the school system. LSVI absorbs the cost. Too many teachers
and students out in the local schools were having to give up braillers
for months and that simply is not necessary. There is very little
administrivia attached to this program.

Happy holidays to you and your family (and the same to all others
reading this on the net)
Warren

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Subject: Galloping Euphemisms
From: Eric.Bohlman@p3.f89.n129.z1.fidonet.org (Eric Bohlman)
Organization: FidoNet node 1:129/89.3 - BlinkLink, Pittsburgh PA


 CD> tagging for sightless persons wasn't as easy as it is with Wc or even

Is something going around?  A few days ago, someone was using the word
"unsighted" in this echo, and now we have "sightless!"  Do we really have to
invite the NFB-types over here to point out that "blind" is not a word that
demands replacement by euphemisms?  I'm a wink, but if my peepers were ever to
take early retirement, I wouldn't go around using awkward terms whose main
effect is to call attention to the spade that they're trying to rechristen as
a "delving instrument!"

(Kenneth Hudson's DICTIONARY OF EVEN MORE DISEASED ENGLISH has a number of
humorous (actually humourous, since he's British) commentaries on the use of
euphemisms for perfectly respectable things, particularly the business world's
avoidance of the obscene f-word, namely "factory.")

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Subject: Re: Chiropractors
From: John.Polhemus@p909.f70.n109.z1.fidonet.org (John Polhemus)
Organization: FidoNet node 1:109/70.909 - No Montgomery Co Na, Rockville MD


[This is from the Chronic Pain Conference]

I have received a number of replys to my question on this and would
like to thank each of you for your help and time.

This area has proven to be encouraging and a refreshing difference
to what I've been experiencing in the 'real' world.

I recently got to the point that I qualified for handicaped plates
for my car. I still can do my job, albeit with dificulty, I just
can't walk far or stand very long. The reaction I get from my
workmates though was not what I expected, you'd think I was some
kind of criminal. Talk about a guilt trip, I guess until you walk
in someone elses shoes you can't believe or understand what they're
going through.

Thanks again for the advice and understanding!

Later, JP

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Subject: Re: Water Exercises
From: Keith.Jones@p13.f15.n114.z1.fidonet.org (Keith Jones)
Organization: FidoNet node 1:114/15.13 - <Stat Gateway Servi, Scottsdale AZ


[This is from the Chronic Pain Conference]

 LC> Sounds like the tens on your foot helps sometimes, though.
 LC>  Have you thought about asking your doctor about the
 LC> implanted SCS?  And, one more question...have you given up on the pump?

 The TENS still helps alleviate the pain in my foot. I believe I posted
 my trial for the SCS last year at about this time prior to going to
 LA to see the hypnotist. They injected several drugs epidurally to see
 if I could tell when pain subsided. Well, one of the drugs they
 injected took the pain away. At that point I was told I was a candidate
 for the SCS and that it would probably help me. However, I mentioned
 that in previous epidural tests, I was told that there was no way they
 EVER alleviated the pain. He decided to do something similar to a
 spinal (though it was not a spinal) which completely eliminated my
 spasticity and also all sensation in my lower extremities. He even
 stuck pins into my feet to the point where he left bloody puncture
 holes in both of them to be sure he got the desired result from the
 spinal(?). Problem was with no sensation and no spasticity, I still had
 intense foot pain. At this point, he said that he was wrong about the
 SCS, it would not help because obviously the pain signal had come from
 above the area where he did the spinal(?). Why the narcotic he injected
 into me epidurally worked at all is a complete mystery to me. But it
 eliminated the pain. And shortly afterwards, when he injected a
 narcotic antagonist, the pain came back. Then he did the so called
 spinal. Maybe Arthur or somebody else can tell me why the epidural
 narcotic worked and yet a complete block of all sensation in my lower
 body did not help?

 I have not given up on the pump for my spasms. I was tested and found
 to be a candidate for the Baclofen pump. They have had great success
 with the pump and have now declared that they have the solution to
 debilitating spasticity. However, they have not, IMHO, done enough of
 them. It is a surgery, albeit minor. Yet so was my initial surgery and
 it led to my present condition. It is my ace in the hole. Right now I
 can swim daily and somewhat manage (if that is at all possible) the
 spasms. If I ever get to the point where I can no longer swim, I will
 have to get the pump. I just spent the last two days (Christmas and
 Christmas Eve) with no swimming. I was spastic, legs were on fire and I
 could not sleep from the spasms despite using extra Valium, Miltown and
 marijuana. The question is not will I get the pump, but when. I am
 putting it off as long as possible. That way, also, they will have more
 time to implant more and work some of the bugs out of them (they have
 had problems with the catheters crimping, infection, pump failure,
 etc.). TTYL.
 that

-Keith-

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Subject: Re: Water Exercises
From: Keith.Jones@p13.f15.n114.z1.fidonet.org (Keith Jones)
Organization: FidoNet node 1:114/15.13 - <Stat Gateway Servi, Scottsdale AZ


[This is from the Chronic Pain Conference]

 KM>  [KJ] > It has not been bad since I started swimming everyday and
 KM>  [KJ] > manually moving my legs in a bicycle motion while underwater.

 KM> When I do pool therepy, I wear a special flotation vest
 KM> that keeps me upright while I "walk" in the water.  It's
 KM> really great for conditioning.  It's the only time I feel
 KM> no pain.  I know you can buy these vests, but they're not
 KM> cheap ($100.)  Maybe you should look into one.

 Thanks, but I can use one any time I want. They are provided free of
 charge at ASU. I am a quadriplegic and find it more beneficial to swim
 laps for cardiovascular exercise and to manually stretch my leg muscles
 underwater. These vests are used by alot of other people and they seem
 to benefit them. I'm glad it helps you also.

-Keith-

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                                ******

                  End of Issue # 3094 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU