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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Thu, 17 Dec 1992 17:16:56 EST
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 3069

                             THE HANDICAP DIGEST

                                 Issue # 3069

                         Thursday, December 17, 1992

Today's Topics:


                                ******


                        Re: New Amputee - New status
                          New Amputee - New status
                               Electronic Mags
                               Chits 'n' chats
                                  CSFAC BBS
                             SYNCOPY HYPOTENTION
                             SYNCOPY HYPOTENTION
                                Bell's Palsey
                                  Armrests
                                    Synex


                                ******


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                              Bill McGarry (Moderator)
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Subject: Re: New Amputee - New status
From: John.Hargrove@f68.n382.z1.fidonet.org (John Hargrove)
Organization: FidoNet node 1:382/68 - Diabetes Discussion, Austin TX


[This is from the Amputee Conference]

In a message to Walt Mateja <12-04-92 17:52> Bill Scrivner wrote:

BS> Had an appointment with the prosthestist yesterday (thursday). He
BS> took a
BS> cast of my stump and promised me a new leg by the middle of next
BS> week.
BS> He seems to think that I might even be able to walk a few steps
BS> totally
BS> unassisted by Christmas. Wouldn't that be a KICK!! I certainly aim to
BS> do
BS> my best toward that goal.

Hey...that's GREAT.  I know when I got my first one I was a bet
surprise at how fast the turn around was.  Cast was on a Monday and
I had it by Friday of the same week.  Had to take it a bit easy
when first walking.  Had to let my sitches heal up a bit more.
Maybe two weeks longer.  But I was on my own a month after I got
the leg.  Course that was just me.  Each one of us is different.

John

--
Uucp: ..!uunet!bunker!hcap!hnews!382!68!John.Hargrove
Internet: John.Hargrove@f68.n382.z1.fidonet.org




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Subject: New Amputee - New status
From: Walt.Mateja@p0.f420.n150.z1.fidonet.org (Walt Mateja)
Organization: FidoNet node 1:150/420.0 - The "us" Project, Wilmington DE


[This is from the Amputee Conference]

BS>Don't be sorry for joining in - I need and VERY MUCH appreciate all
 BS>thecontact I can get.
 Hi Bill:
         From your previous post:

 BS>Maybe I WAS trying too hard to be what I thought she wanted. I hadn't
 BS>thought about it that way. I just thought I was doing my best to be a
 BS>"good" husband. I found myself doing more and more to try to make
 BS>life easier for her. Over the past four years I had started fixing
 BS>nearly all the meals (including packing her lunch), doing nearly all
 BS>the laundry, handling the checkbook (that had always been her job
 BS>before), and even starting to do things like (shudderrrrr) house
 BS>cleaning. As I look back at it now I see that I was trying too hard to
 BS>make it easy for her and all it really accomplished was to make her
 BS>feel less valuable - to the
 BS>point she felt unappreciated. My intent was to let her know how much
 BS>I cared for her by helping out but it backfired - BIG TIME!!!

         Is it possible that she quit working at your relationship earlier
 than you really thought ?

 BS>Things have been better(?) for me this week. I even made it through
 BS>some days without crying. One morning I woke up to feel a 'moment of
 BS>acceptance' - I realized she was never coming back and it didn't
 BS>matter.
 BS>That was a good feeling even though it only lasted for 30 minutes
 BS>(2:30 till 3:00 am).

         Well I think that it'll matter for a long time, but it doesn't
 keep you from giving or dtract from your worth to others. Just to her.

 BS>I had a talk with my daughter (she'll be 23 in January and is living
 BS>with me till she is married May 22) and asked her what she would
 BS>think if I were to take a lady to dinner some night. She said that IF I
 BS>felt I was ready then it was fine with her. We went ahead and got into
 BSthe subjects of commitment (avoid for now) and sexual relations
 BS>(liekwise)

         As soon as you think that you won't be drawing comparisons ...
 that's a great attitude.

 BS>and I gained further respect for her - Kids CAN be wonderful!!

         It's hard to realize how fast they grow up, and what I found after
 a short period of time is that MOST of my family and Friends were only
 surprised that it took as long as it did for our relationship to end. They
 ALL saw problems long before and much more in detail than I did. I was
 really blind to how unhappy we both were, and the more that I tried to do,
 the worse I felt that I must be to wind up being rejected.

 BS>Anyway, I asked a lady I had met last spring and had spoken with her a
 BS>few times since to dinner and later we came back here to talk. When my
 BS>daughter and her fiancee came in I introduced them to Sherryl. Later on
 BS>the kids each told me they thought she was 'very personable'. From them
 BS>that is a real compliment. I was even able to sleep better that night -
 BS>about double what I have been getting. There have been hard times since
 BS>but overall I think I'm gaining on that situation.

         Unfortunately, it won't be a straight line experience, but it will
 continually get better.

 BS>Had an appointment with the prosthestist yesterday (thursday). He
 BS>took a cast of my stump and promised me a new leg by the middle of next
 BS>week.
 BS>He seems to think that I might even be able to walk a few steps
 BS>totally unassisted by Christmas. Wouldn't that be a KICK!! I certainly
 BS>aim to do my best toward that goal.

         I really wish you well with that. I'm not an amputee, and I can
 only imagine the feeling from the few times that I've had a broken arm or
 leg. So now a question for you. It seems to me that I've heard that when
 a person loses a limb, they have almost a grieving period for it, and that
 they get ghost sensations where the limb used to be. Is this true ?

   (@)1992, "us"
                                     *  Walt Mateja  *

 ---
    WinQwk 2.0b#267   I believe in Death after Life !
    SFMail Qwk v3.0

--
Uucp: ..!uunet!bunker!hcap!hnews!150!420.0!Walt.Mateja
Internet: Walt.Mateja@p0.f420.n150.z1.fidonet.org




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Subject: Electronic Mags
From: Stanley.Sykes@f74.n254.z2.fidonet.org (Stanley Sykes)
Organization: FidoNet node 2:254/74


[This is from the AbleNews Conference]

I am trying to compile a list of Electronic Journals/Mags etc on
any disability related issue, I would appriciate it if anyone
could pass on to me the Name of the mag, Its Main Subject area
and where it origionates from or a reliable source, and the
frequence that it is out + the format of the Name/Compression.

I already know about JADA and pick this up monthly.

I also know of RAG but not where it comes from or if it has a standard name.

CFS-News but again no origin or name standard.

Would most appricate any that I have not included especially
Heart Related subjects.

I am trying to compile the list so that they are available for
local groups in the UK, even if it means printing for people
with no computer, as at the moment I feel that there is a lot
less communication going on in the UK than there is in USA.

Thanks in anticipation,
Regards Stan.

PS.. This was copied from ADASYOP, I have now included "Of Note"
in my list"

--
Uucp: ..!uunet!bunker!hcap!hnews!2!254!74!Stanley.Sykes
Internet: Stanley.Sykes@f74.n254.z2.fidonet.org




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Subject: Chits 'n' chats
From: Sheila.Fava@f24.n3602.z1.fidonet.org (Sheila Fava)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


[This is from the Abled Athlete Conference]

The conversation of Carlos Costa is quoted below:

CC -> Why don't you have a coach? I have been coached praticially all my
CC -> life!

Luck-eee you!  Since I am the only disABLED athlete, competing on
an International scale, in the -whole- State of Nevada (That can be
thought of as you being the only disABLED athlete in your entire
Province.) there is not this great rush to coach one person.  Coach
a -minimum- of three people?  Yes, a coach, perhaps.  Sure, there
is an adaptive basketball -team- that is coached in Las Vegas...all
men <Sigh.> and they are coached.

Also, you live in a large city where there are several colleges
(one of which) teaches Adaptive Recreation.  I live in a small town
and the college, teaching adaptive recreation, is forty miles down
the pike. And, so, do you get the idea?  There is a High School
Swim Team here and I use the expertise of that coach....but she
will not coach one disABLED swimmer.

-> I think that the Canadian Nationals will problaby be held in the
-> Canadian west area. Like either Calgary or Edmonton. I'm not sure
-> because It has not been said yet..Well, I hope that you get your pick
-> of where to go!

    CALGARY!  EDMONTON!  WoW!  I hope so...I have friends in Calgary!

My timezup, Carlos.  I will finish this post soonish.

                    ---Sheila

                    *** HOST(ess) ADA-Athlete Conference ***
===
 * QNet3 *  Pick's Place * v32/v32bis * HST/16800 * 2017650164 * 24 hrs *

 # Origin: ADAnet(tm) NetHub Birmingham, Alabama (205)854-9074  (94:94/1)

--
Uucp: ..!uunet!bunker!hcap!hnews!3602!24!Sheila.Fava
Internet: Sheila.Fava@f24.n3602.z1.fidonet.org




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Subject: CSFAC BBS
From: Susan.Duncan@f403.n163.z1.fidonet.org (Susan Duncan)
Organization: FidoNet node 1:163/403 - Akasha's Bubble Bat, Ottawa ON


[This is from the Abled Athlete Conference]

Currently the Canadian Sport & Fitness Administration Centre BBS isn't
hooked up to Fido, but I am <grin>.  I'll be trying to pass along info
as I get it.  I'm sure that CFSOD (sports organization for the disabled)
has some kind of newsletter.  I know I helped produce the program for
olympics (I wrote a database program for them).  I'll check with the
various organizations within the building and see what kind of stuff
they produce.

I've been trying to convince the admin types at the office that a link
to Fido and possibly internet would be a good thing.. but so far all
I've got is "it's still in a pilot phase".  We're working on it though.

I know we produce a SKED (sport schedule) which lists all the events
(disabled and otherwise) during the coming months.

.

--
Uucp: ..!uunet!bunker!hcap!hnews!163!403!Susan.Duncan
Internet: Susan.Duncan@f403.n163.z1.fidonet.org




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Subject: SYNCOPY HYPOTENTION
From: Shelley.Crawford@f106.n372.z1.fidonet.org (Shelley Crawford)
Organization: FidoNet node 1:372/106 - The Medical Forum, Goose Creek SC


[This is from the Rare Disorders Conference]

* In a message originally to All, Don Knowlton said:

DK>Looking for any information on syncopy hypotension
DK>thank you

Not sure I understand.  Depending on an individuals tolerance, many
varying degrees of hypotension could possibly cause syncope
("fainting").  Could you please be more specific with your
question?

--
Uucp: ..!uunet!bunker!hcap!hnews!372!106!Shelley.Crawford
Internet: Shelley.Crawford@f106.n372.z1.fidonet.org




------



Subject: SYNCOPY HYPOTENTION
From: Gordon.Gillesby@f1007.n282.z1.fidonet.org (Gordon Gillesby)
Organization: FidoNet node 1:282/1007 - DRAG-Net, Andover MN


[This is from the Rare Disorders Conference]

DK*>Looking for any information on syncopy hypotension
DK*>thank you

   I'm not a doctor - but I have some very good medical reference works
available.  Near as I can tell, the term Syncope relates to the lose of
consciousness (fainting) while the term Hypotension refers to low blood
pressure.  Therefore, it seems reasonable to assume that the name
applies to the condition of fainting because of low blood pressure.

   Of course, the cause of the fainting is lack of blood flow to the
brain.  The cause of the lack of blood flow is the low blood pressue.
But the cause of the low blood pressure?  That could be many, many
different and unrelated things including (but not limited to) other
cardiac (heart) related symptoms, medications, insufficient exercise,
food allergies, etc. etc. etc.

   In any case, your doctor should be able to help you isolate the
cause.  Assuming, of course, that I've managed to scope things out
correctly.....

   Hope this was of some help....

                                - glg -

 * QMPro 1.0 41-9039 * Got Kleptomania?  Take something for it!

--
Uucp: ..!uunet!bunker!hcap!hnews!282!1007!Gordon.Gillesby
Internet: Gordon.Gillesby@f1007.n282.z1.fidonet.org




------



Subject: Bell's Palsey
From: Alan.Kennedy@f37.n105.z1.fidonet.org (Alan Kennedy)
Organization: FidoNet node 1:105/37


[This is from the Rare Disorders Conference]

Not sure if that is spelled right.  When I was young, I had Bell's
Palsey.  It went away, I guess.  I only have partial symptoms from
time to time. Mostly in times of high stress.  Where would I go to
get more information on Bell's Palsey?

Alan

--
Uucp: ..!uunet!bunker!hcap!hnews!105!37!Alan.Kennedy
Internet: Alan.Kennedy@f37.n105.z1.fidonet.org




------



Subject: Armrests
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Keith Jones <01 Dec 92 17:52> Alan Hess wrote:

 AH> opinion.  My back is getting worse because I have more trouble
 AH> reaching things.  Just what I needed.  And I still haven't found
 AH> a scoliosis reducing brace.  Life sucks.  I have this intense
 AH> desire to run over the bare feet of doctors with my chair.  *adh*

What did they say about the "Wilmington Jacket?"  It 'will' reduce
your scoliosis while you're wearing it, but as soon as you take it
off the spine collapes to its orginial curve.  Wearing one can also
cause some skin problems.

The "Wilmington Jacket" is designed to control and stabilize the
progress of scoliosis in a growing spine.  It is best used for
curves in the thorasic area.  The Rx is usually for the brace to be
work 23/24 hours each day over a period of years.  Any good
orthopod schould be able to supply full details.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Synex
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to All <04 Dec 92 19:15> Alan Hess wrote:

 AH> Dennis Byrd of the New York Jets, who broke his neck at C-5 last
 AH> Sunday, was operated on the other day (a fusion, I suppose -
 AH> whatever it was, it took seven hours.)  He also was given a drug
 AH> called Synex that is supposed to help heal the spinal cord.  It
 AH> isn't approved for use in this country.  Has anyone ever heard of
 AH> it?  What's the scoop on it?  *adh*

Never heard of it, unless it is of the GM-1 family.  The effects
that were expected are the same.  I just heard today that he has
definite movement, but this may just be for the media hype.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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                                ******

                  End of Issue # 3069 of the Handicap Digest

                                ******
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