From: Bob.Dunlap@p0.f360.n226.z1.fidonet.org (Bob Dunlap)
Newsgroups: misc.handicap
Subject: Re: Need info on Cerebral Palsy
Date: 6 Oct 92 21:01:08 GMT
Reply-To: Bob.Dunlap@p0.f360.n226.z1.fidonet.org
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Index Number: 24646

MK>     1.  My daughters pediatrician SUCKS!!!.  Somehow he has managed
MK>     to miss all of my daughters symptoms for the last 2+ years.  He

well, i was never diagnosed with cerebral palsy until 1977. before that
they called it "spastic dyplesia" (grossly misspelled, but anyway it is
ironically a symptom of cp and not a disease by itself). heck, they put
me in orthopedic shoes for 3 years.

MK>     scheduled a month, or more, from when we ask for it.  Does anyone
MK>     know of a good pediatricain in the Dayton area?  I'm not looking
MK>     for anybody in a "volume" practice.  I'm hoping to find somebody
MK>     who has experience with cerebral palsy patients and who gives
MK>     more of a personal touch and act as a coordinator with all of the
MK>     required specialists.

i don't know anybody in dayton, but if you are willing to make a trip
over to columbus, i would recommend Dr. Simon at OSU hospitals as a first
step. what you really need to find is a good combination of orthopedic and
neuro doctors. dr simon is an excellent orthopedic surgeon. while he does
see a lot of patients, he can possibly refer you to what you are looking
for. also he is experienced with cp. i do not know if he is still practicing
in cleveland, but Dr. Peter Scholls (sp?) is an excellent orthopedic
surgeon. he deals mainly with children and cp. in fact he is the one who
told my mom that i had cp. minor problem with him, is at the time i was
under his care, he tended to be an "old world" surgeon and his thing was
fix now, worry later. perhaps now he is more into preventative care.

but i would recomment contacting Dr.Simon. like i said, if he isn't what
you want, then he might be able to refer you.

MK> I would also appreciate it if somebody could send me any information
MK> regarding cerebral palsy and what expectations should I have for my
MK> daughters rehabilitation and her prospects for leading a normal/happy
MK> life. Please respond with any information you have.  Much thanks in
MK> advance.

i'm 20 and i lead a fairly normal and happy life. :) so it is possible.
what is important is that she recieves treatment NOW before things
(possibly) get worse.

i would recomment that you take her to a physical therapist and arrange
for weekly therapy. while it might be a long trip, i would suggest
bringing her to the Easter Seals center here in columbus next to Children's
Hospital. here she could recieve excellent treamtment and you could get
all the information you need. it would also help to hook you into the
network of ortho & neurosurgeons that practice in this area.

my mother has a great deal of info on doctors & such that she has recorded
during our experience. i will see if she can photocopy it and mail it
to you. i will also see if i can find any of the information that we
have from when i had a selective posterior rhizotomy. it's a procedure
that if done early enough can hault the developement of cp. if we have any
of that left, i will copy it and mail it to you.

i am not sure what else to say, other than yes she can be helped and yes
you can lead a very normal life with cp.

bob

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