From: John.Kossowan@f140.n150.z1.fidonet.org (John Kossowan)
Newsgroups: misc.handicap
Subject: Chronic Fatigue Syndr. Message # 1
Date: 3 Sep 92 12:54:48 GMT
Reply-To: John.Kossowan@f140.n150.z1.fidonet.org
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE
X-Fidonet: Rare Disorder Conference

Index Number: 24301

[This is from the Rare Disorders Conference]

August 1992

Message # 1 (of 4)
Help for those with Chronic Fatigue Syndrome.
>From the USA CFS/CFIDS BBS, 207-623-8486, noon to midnight, E.S.T.
On daily, operated by Dr.John F.Kossowan,dentist, with CFS since 1985,
located in Augusta, Maine, USA.

Attention patients and physicians:

This is NOT medical advice !!!
I do NOT give out medical advice !!

This is the opinion of a CFS patient, a dentist with medical
knowledge, who has read the research, and who has the illness since
1985. So, you have Chronic Fatigue Syndrome, or you think you do,
and your doctor has no idea what to do for you. Here is what I
suggest:

Get medical tests done on your immune system. You may not "look
sick" but you ARE sick, with a low grade encephalitis, and CFS is
involved with the immune system, and as a result, it causes
tiredness, joint pain, and fribromyalgia types of pain,
feverishness and insomnia. The immune system is hyper-active, and
even new allergies start up from CFS. If your present physician is
NOT empathetic, and kind to you, then seek the help of a physician
who has understanding of the immune system. (Even try a "holistic"
doctor, who understands allergies.)

Medical labs recommend, which have "CFS Panels":

The Immunosciences Lab , in Los Angeles ,CAlif., will perform the
blood tests found to be abnormal in CFIDS patients by Dr.Jay Levy,
world renown virologist who works with CFIDS patients in San
Francisco, Calif., at the Univ. of Calif., at San Francisco. The
tests are the CD-38, the CD-11B and the HLADR test. There is also
the "CFS Panel II" which tests the immune system of the CFIDS
patient, as well as the Natural Killer Cell Activity test which is
VERY important for CFS patients to have done.

Immunosciences LAb, Inc.
1801 La Cienega Boulevard, Suite 302
Los Angeles, Calif.  90035
Phone # : 213-287-1884

Call the lab for instructions on mailing your blood overnight to them.
- - - - -
"Microbiology Reference Laboratory" in Cypress, Calif.
800-445-4032.
The blood can be sent via your local Smith - Kline lab, or Metpath.
- - - - -
Both labs will perform the following immune tests that MUST be done:
The tests include : Human Herpes Virus # 6 (usually ELEVATED,not the cause)
	    Natural Killer Cell Activity Test
	    Enterovirus Antibody Assays
	    Lymphocyte Stimulation Tests
	    T - Cell Subset Quantitation i.e.,CD-2,CD-4,CD-8
	    CD8, CD11B, CD38, & HLA-DR
- - - - -
A NEW TEST for CFIDS: The 2'-5' A synthetase L pathway test
Performed by:
Oncore Analtyics Inc.
Houston, Texas
Phone #: 800-662-6738

This lab is performing the 2'-5' A Synthetase L pathway test
for CFIDS patients.
- - - - -
End of Message # 1 - CFS Help
Info from the USA CFS/CFSIDS BBS, 207-623-8486, noon to midnight daily
The oldest running BBS totally dedicated to CFS patients since 1987.

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