HDTenEightyP/NetNews huggingface dataset:
From: Betty.Mcbroom@f27.n3615.z1.fidonet.org (Betty Mcbroom)
Newsgroups: misc.handicap
Subject: Bell and Deaf Culture
Date: 17 Apr 92 19:48:41 GMT
Reply-To: Betty.Mcbroom@f27.n3615.z1.fidonet.org
Organization: FidoNet node 1:3615/27 - TN Deafness I N BBS, Knoxville TN

Index Number: 21235

[This is from the Silent Talk Conference]

JW>INTENDED AUDIENCE: RESEARCHERS WHO ASKED FOR INFORMATION ON PAST TREATMENT O
JW>DEAF PEOPLE.

JW>     Bell believed that deaf people more than any other group tends to marry
JW>each other.  He feared that somewhere along the line, generation of
JW>generation of deaf families would create a Deaf Race. He advocated
JW>establishing laws to prohibit deaf people from marrying each other.

        I also heard Bell advocated sterilization of deaf people --
        didn't believe it until I found an old old Volta Review and read
        his article and words myself.

        Statistics show that 90%  or 95% of deaf people have hearing
        parents -- so the sterilization of deaf people wouldn't have
        stopped but 5 or 10% of the deaf population.
                                         b
 ~ SLMR 2.1a ~ Marriages are made in Heaven - but lived on earth.

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Internet: Betty.Mcbroom@f27.n3615.z1.fidonet.org
From: Brenda.Mueller@f1055.n261.z1.fidonet.org (Brenda Mueller)
Newsgroups: misc.handicap
Subject: Anybody who is deaf-blind
Date: 11 Apr 92 12:47:04 GMT
Reply-To: Brenda.Mueller@f1055.n261.z1.fidonet.org
Organization: FidoNet node 1:261/1055 - The Keeping Room, Baltimore MD

Index Number: 20983

[This is from the Blink Talk Conference]

Yes, Bill, you are quite right.  My association with the deaf-blind
has been with those who have lost their hearing at a later age, and
therefore, my knowledge of people born deaf-blind is limited as my
question obviously demonstrated.  If the person in question doesn't
know the alphabet then why he can't use a computer is rather
obvious.  Also based on what you describe, he hasn't really
mastered language as such.  I am verry much aware of the importance
hearing and sight play in the acquisition of language, particularly
hearing, since I speak a foreign language with some degree of
fluency.  I am not deaf but blind, and I know that hearing played a
major role in the learning of that language, especially when I was
in that country hearing the language twenty-four hours a day and
interacting with the people.  I was wondering, though, oral aspects
aside, if all people deaf-blind from birth are as restricted in
their use of communication systems as the individual you mentioned,
or does it depend on several factors such as the time at which
training starts, the duration of it, etc.  Obviously, for such a
person to have the possibility of acquiring communication skills,
the training would have to be highly individualized, intensive, and
start at an early age, say two or three.  The next question would
be how well the education system was set up to provide this training.o
How well it was set up would be governed by the attitudes of the people
providing the education oh, and let's not forget,the funds
available for such a project.  What have you found to be true in
this kind of situation?

Sounds as if you were in an interesting field.  Computers seem to
change so quickly, I guess you reps had to study and learn new
things all of the time.  Never a dull moment, eh?

Thanks for taking the time to answer my questions.  They really are
questions and not intended to be argumentative at all.  Have a good
day.  Brenda

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Internet: Brenda.Mueller@f1055.n261.z1.fidonet.org
From: Bill.Smith@f24.n3602.z1.fidonet.org (Bill Smith)
Newsgroups: misc.handicap
Subject: Sickle cell anemia
Date: 13 Apr 92 20:47:48 GMT
Reply-To: Bill.Smith@f24.n3602.z1.fidonet.org
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL

Index Number: 21022

[This is from the Rare Disorders Conference]

HI My Name is Bill Smith and I have a 15 yr old daughter who is a
Freshman in Hi School and her class has assigned her to write a report
onn the subject of Sicle Cell Anemia.. We would like to know if there is
someone who could give us some insight into this Rare Disease that my
daughter could use to write a report on this Disease..  Many thanks in
advance.. Bill Smith  Sysop of Motherboard BBS  Victorville, ca.
619-243-9642  300/1200/2400
 * QNet3 * ADAnet * WPGS * Adelanto, CA * (619) 246-5166

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Internet: Bill.Smith@f24.n3602.z1.fidonet.org
From: The.Ranger@p0.f477.n104.z1.fidonet.org (The Ranger)
Newsgroups: misc.handicap
Subject: Re: Head High Tackles
Date: 13 Apr 92 21:04:04 GMT
Reply-To: The.Ranger@p0.f477.n104.z1.fidonet.org
Organization: FidoNet node 1:104/477.0 - Jaguar's Networking, Denver CO

Index Number: 21072

[This is from the Spinal Injury Conference]

        I agree with parts of your message but "makeing rules" usealy
doesn't cut it.  If someone get's a reputation for (in rugby high hit's)
most teams will learn of it fast and that player will get knocked out fairly
eazy.  Do this a few timers and word tends to get round that it's not a safe
way to go.  (BTW Not all of us Yanks are ignorant of rugby, kinda like a
cross between soccer and our football without the padding.)
        Oh and if something can be prevented it's no longer a accident.
Most accidents are caused buy doing something you've done before and got
away with it, untill that one time...  Then there are the freak accidents
like slideing down one step, hitting your tailbone and becomeing a instant
para.  Spinal cords are strange critters, so strong and yet so weak.

Terry

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Internet: The.Ranger@p0.f477.n104.z1.fidonet.org
From: Mike.Freeman@f126.n105.z1.fidonet.org (Mike Freeman)
Newsgroups: misc.handicap
Subject: Re: Electric Cars And Th
Date: 14 Apr 92 18:29:20 GMT
Reply-To: Mike.Freeman@f126.n105.z1.fidonet.org
Organization: FidoNet node 1:105/126 - Lawson & Reay, Vancouver WA

Index Number: 21157

[This is from the Blink Talk Conference]

If your scheme of bells/whistles/warnings in cars and on canes/dog
harnesses were fully implemented, neither the blind person nor the
driver of cars so equipped would have any time to pay attention to the
road or other events; they'd be paying too much attention to all the
beeps/gurgles/grunts/screeches from all those warning devices.  It's
akin to fighter pilots who turn all their warning systems off in order
to have enough sanity left to fly their aircraft and engage the enemy.

As an extension to your scheme, why not have special identifying gear on
blind men and sighted and/or blind women and vice versa so thay can be
forewarned (whether for good or ill) of the approach of the opposite sex
before he/she/it gets in perfume range?

In other words, none of this is needed; a little common sense and
heads-up traveling goes a long way.

-Mike-
... *The National Federation of the Blind is changing what it means to be blind.*
___
 * CRR QWK 1.40 *

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Internet: Mike.Freeman@f126.n105.z1.fidonet.org
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Newsgroups: misc.handicap
Subject: Birmingham Pain Clinic Visit #4
Date: 7 Apr 92 17:52:08 GMT
Reply-To: Alan.Hess@f1000.n261.z1.fidonet.org
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD

Index Number: 20835

[This is from the Chronic Pain Conference]

In a missive of <Mar 25 21:02> Linda Cummings (1:375/34@FidoNet)
writes to All:

 LC> Chronic pain people who are taking narcotics are in danger of becoming
 LC> addicted.  They (the pain clinic) try to get you off medication by the
 LC> time the course is completed.  The body will produce more and more
 LC> pain to get more and more narcotics until the person winds up in
 LC> de-tox.  He intends to teach us different ways to decrease the pain
 LC> (hopefully) so we won't have to rely on narcotics.  Sometimes the
 LC> doctors will give their patients methadone along with the pain
 LC> medication instead of a stronger medication because of the addition
 LC> possibility.

A.  The above re chronic pain people and addiction is bullcaca.
Studies prove people will use only enough medication to control
their pain, and won't go for a high.  B.  Methadone is addictive.
*adh*

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Internet: Alan.Hess@f1000.n261.z1.fidonet.org
From: Steve.Matzura@f203.n2603.z1.fidonet.org (Steve Matzura)
Newsgroups: misc.handicap
Subject: Survey
Date: 10 Apr 92 04:35:00 GMT
Reply-To: Steve.Matzura@f203.n2603.z1.fidonet.org
Organization: FidoNet node 1:2603/203 - The Shop Mail Only, Flushing NY

Index Number: 20946

[This is from the Blink Talk Conference]

 > Admittedly, I'm taking a wild stab here, but could the reason for
 > this
 > be that curricula are designed by winks who have only a limited idea
 > of
 > what blinks can and cannot do?

Not only what we can and cannot do, but what we want to or don't
want to do!  I had a rehab home teacher back in the '70's who could
teach me nothing of what I wanted to learn, but insisted I had to
learn how to make cake batter, muffins, pancakes, the perfect pie
crust, etc.  Man does not live by dessert alone, and it wasn't
until I moved out on my own eleven years ago that I burnt my first
chicken, nearly killed myself by eating my first undercooked cut of
beef, and learned that if you don't stir hot cereal, you get
wallpaper paste!  Now why couldn't my home teacher in the '70's
have taught me that?  Simple enough:  Most of her clientele were
girls aspiring to be perfect housewives, and she knew very little
of what a bachelor-to-be would need to know, it seemed.

The coupla good things I learned for this woman I still use
today--how to properly scrub a good clean floor, the proper way to
handle laundry fresh from the washer so it doesn't get wrinkled up
even if you use an anti-wrinkle/anti-static sheet in your drier,
and various things like that there.  These skills now stand me in
good stead--my girlfriend and I have a wonderful agreement:  She
cooks, I clean!!!

Steve Matzura

Via: FrontDoor 2.02

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Internet: Steve.Matzura@f203.n2603.z1.fidonet.org
From: Ann.Parsons@f207.n260.z1.fidonet.org (Ann Parsons)
Newsgroups: misc.handicap
Subject: Re: help with communicating
Date: 17 Apr 92 18:49:20 GMT
Reply-To: Ann.Parsons@f207.n260.z1.fidonet.org
Organization: FidoNet node 1:260/207 - The Recovery Room, Rochester NY

Index Number: 21216

Hi Jim,

How about a picture board with an alphabet, nice large letters?  How about a
speech board with the pictures pressible so the words are spoken?  How about
exploring possibilities with the hospital's speech therapist?

                                        Ann P.

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Internet: Ann.Parsons@f207.n260.z1.fidonet.org
From: n9141932@henson.cc.wwu.edu (Doug Auerbach)
Newsgroups: misc.handicap
Subject: Ankle Fused?
Date: 6 Apr 92 21:24:54 GMT
Reply-To: n9141932@henson.cc.wwu.edu (Doug Auerbach)
Organization: Western Washington University

Index Number: 20816

I'm posting this for my housemate, who does not have Net access.  Please
direct any responses to me.  Thanks so much in advance.

---------
Did you have your ankle fused?  If so, would you tell me about your personal
experience with this?  I am going to have my ankle fused, but I am very
worried about the consequences: the pain afterward, the ability to walk, and
how it will affect my other joints.  Any information would be very helpful.
--
=============================================================================
 Doug Auerbach   Western Washington University  : "If you don't like the
 Student Representative, Computer Policy Board  |  games people play,
 n9141932@henson.cc.wwu.edu                     :  make up your own games."
From: Dan.Kysor@f11.n203.z1.fidonet.org (Dan Kysor)
Newsgroups: misc.handicap
Subject: Re: DOG GUIDE RULES
Date: 14 Apr 92 16:10:20 GMT
Reply-To: Dan.Kysor@f11.n203.z1.fidonet.org
Organization: FidoNet node 1:203/11 - The Broken Rose BBS, Sacramento CA

Index Number: 21123

[This is from the Blink Talk Conference]

well your tune will probably change after class but if it dosn't, a
big good luck!

it's very important with your first dog to learn the foundations
of  training and to stick with it.  it's like learning an
instrument, if you teach yourself, most likely you'll pick up bad
habbits so seriously as a veteran guide dog user on my 4th pooch,
please understand that the experience which will be imparted to you
is based on seeing eye's combined years of experience.  look at it
this way, if you fudge on obedience in the beginning, what else
will you fudge on so what happens, an do i know this, is that the
dog becomes sloppy and you become a sloppy dog handler.

i am not saying obedience is necessary every day for the full life
of the dog but for the first year or 2 and especially if this is
your first dog, it's very important.

one thing i used to do is to not expect my dog to take me to the
corner down curb thinking i go a certain way every day and i am
just turning left anyway but what happens is when you wish to
eventually go to that down curb, the dog won't!!  that's one
example on fudging on the basics.

just some free advice and hope i don't sound condasending or
lecturing but i know you've haven't had a guide dog before so
really, soak in the info you get at the eye.

say hi to them for me btw.  great bunch of folks there... dan
i feel more like now than i did a while ago

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Internet: Dan.Kysor@f11.n203.z1.fidonet.org
From: Walter.Siren@p18.f5.n396.z1.fidonet.org (Walter Siren)
Newsgroups: misc.handicap
Subject: New JAWS Release
Date: 7 Apr 92 21:03:03 GMT
Reply-To: Walter.Siren@p18.f5.n396.z1.fidonet.org
Organization: FidoNet node 1:396/5.18 - Pontchippi, New Orleans LA

Index Number: 20907

[This is from the Blink Talk Conference]

 DT>         Yes, the new Jaws release looks considerably better.  The new
 DT> install procedure for installing the software is much nicer,

David, for a new user the install program is nice, but for
experienced users, I don't like it.  With the old way, I could copy
whe files I wanted to off the new discs.  All of the files are not
usually necessary.  Also with the install program, if for some
reason I loose a configuration file, or maybe part of the manual,
the only way to get it is to run the whole install program.  The
old way, I could just go to the original discs, and copy what I
wanted off of them.  The one thing that I like about the new
install program is that now you get all of the drivers for all of
the synthesizers that it supports, instead of just one
synthesizer.

 DT>it is nice to see that Jaws finally
 DT> has a auto loading feature for loading the correct macro files etc. for the
 DT> software that you are using and reloading the Jaws default macro set when
 DT> you return to the DOS prompt.

Only one problem there, if you do need to use the j_load to load a
file, it turns off the autoload, and you have to manually turn it
back on, if you wish to use the autoload feature.

Otherwise, I think that jaws is coming along fine, and it has great
potential.

               Walter

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Internet: Walter.Siren@p18.f5.n396.z1.fidonet.org
From: Dan.Dalby@f712.n250.z1.fidonet.org (Dan Dalby)
Newsgroups: misc.handicap
Subject: Migraines
Date: 13 Apr 92 20:53:13 GMT
Reply-To: Dan.Dalby@f712.n250.z1.fidonet.org
Organization: FidoNet node 1:250/712 - Softor Systems, Scarborough ON

Index Number: 21039

[This is from the Chronic Pain Conference]

Imitrex is a fairly new drug on the market, its been out for just a
couple of months.  I was going to a neurologist in TO, who was
doing part of the study on this drug last year, but as my attacks
are so frequent, I was rejected.  I guess I would have screwed up
their stats.

This IS a miracle drug, from what I have heard from other
sufferers.  I am getting limited relief, but that's better than
none.  Others tell me that it eliminates the current attack, and
cuts down on intensity and frequency of others.  From what the
doctors tell me, it is targetted directly at the blood vessels in
the head, and forces them to shrink, thus eliminating the
PULSATING. I know there must be a lot more to it, as I have tried
other drugs that were supposed to that, but this one actually
works!

If you have a drug plan, I would suggest that you go directly to
you family doctor.  He could either prescribe the pills, or the
needles.  As mine are so severe, and frequent, it was suggested
that I try the needles.  If they didn't work, the pills certainly
wouldn't.  I say, "if you have a drug plan" because the pills are
about $16 a tablet, and the needles are about $36 a piece.  As you
are allowed to take 3 pills a day, or 2 needles, this could get
rather expensive.

I am not trying to be a drug pusher here!  Talk with your doctor,
as he is the only one who can get you the stuff.  PS. I dont work
for GALAXO, the manufacturer of this drug.

L8R...

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Internet: Dan.Dalby@f712.n250.z1.fidonet.org
From: Barbara.Akin@p0.f15.n114.z1.fidonet.org (Barbara Akin)
Newsgroups: misc.handicap
Subject: Shopping
Date: 14 Apr 92 18:33:55 GMT
Reply-To: Barbara.Akin@p0.f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15.0 - St Joes Hospital, Phoenix AZ

Index Number: 21179

[This is from the Blink Talk Conference]

Hi Nancy. I hope I can be of help here.
Sometime back, I made a 60 minute cassette tape on shopping
independantly.
I have been doing it since junior high.
I am now a mother with two girls ages 6, and 10, and I am shopping all
the time!!!
The tape was compiled by myself interviewing other blind women who
shopped independantly and from my own experiences and techniques.
The tape covers grocery shopping, mall shopping, and discount store
shopping.
If you'd like a copy you can request it by writing to me at
Insight International Inc.
3106 North 42 St.
Phoenix Az.
85018
Or you can call me at 602-468-9852 and leave a message on my business
line.
I hope this helps,.

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Internet: Barbara.Akin@p0.f15.n114.z1.fidonet.org
From: Linda.Cummings@f34.n375.z1.fidonet.org (Linda Cummings)
Newsgroups: misc.handicap
Subject: Pain
Date: 7 Apr 92 17:56:06 GMT
Reply-To: Linda.Cummings@f34.n375.z1.fidonet.org
Organization: FidoNet node 1:375/34 - Batteries Included , Montgomery AL

Index Number: 20846

[This is from the Chronic Pain Conference]

 > We can tell you the pathways these
 > stimuli travel through the peripheral nervous system, into the
 > spinal cord, then into the brain, and the paths within the brain
 > where these messages are distributed, but we can't tell you how it
 > becomes painful for you.  The exact same stimulus applied to
 > someone else may not be appreciated as painful due to the
 > subjective nature of pain.

Amen!  At least now (in Birmingham, anyway) the people who work in
the Pain Clinic are taking a different attitude about pain now.
They are now say, "We know you are in pain and it's not in your
head."  But, they also further state that it *is* in your mind and
then tell you why. They also explain that pain is different for
everyone and there is no way of telling the level of pain from one
person to the next.  Someone with a very high tolerance for pain
(like me) can stand the pain better than someone with a low
tolerance (maybe like you).

It's very interesting to go to these "groups" and get peoples' reactions.  I'm rather enjoying it, even if it means having an increase in pain while I'm sitting there on my pillow! [grin]

Linda

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Internet: Linda.Cummings@f34.n375.z1.fidonet.org
From: Ann.Lemke@f9.n381.z1.fidonet.org (Ann Lemke)
Newsgroups: misc.handicap
Subject: Re: New Technology
Date: 7 Apr 92 20:57:09 GMT
Reply-To: Ann.Lemke@f9.n381.z1.fidonet.org
Organization: FidoNet node 1:381/9 - Sky's The Limit BBS, El Paso TX

Index Number: 20888

[This is from the Blink Talk Conference]

As I'm sure you'll also hear this from others, the absolutely greatest
need is access to graphics-based programs/operating systems.
Ann

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Internet: Ann.Lemke@f9.n381.z1.fidonet.org
From: William.Wilson@f89.n129.z1.fidonet.org (William Wilson)
Newsgroups: misc.handicap
Subject: Re: New Braille computer dis
Date: 14 Apr 92 16:10:55 GMT
Reply-To: William.Wilson@f89.n129.z1.fidonet.org
Organization: FidoNet node 1:129/89 - BlinkLink, Pittsburgh PA

Index Number: 21126

[This is from the Blink Talk Conference]

 MF> It sounds from your description that since dots represent
 MF> pixels, your display would be essentially a raised-line drawing
 MF> and text would be in raised print rather than Braille.  If my
 MF> assumption is correct, I wonder how useful such a system would
 MF> be for many blind readers.

Mike,
    AHA, a realist!

     Yes, I too wondered how realistic a proposition this was!
     For lack of a better anology, I have to aliken this to my
experience with people trying to read dymo-print labels.  Yes, I've met
blind people that seem to be able to read these things, but not only are
they a rare bird, they can hardly be seen as being able to translate the
information at a rate that is usable by most of our standards!

     For what it's worth, I share your doubts that a raised pixels
display of a computer screen could be of much value, and frankly,
although I am sure that the braille displays now offered are far from
perfect, they must offer a much more realistic alternative!  Although I
am far from a fair subject to use in an experiment, a tactile display of
a computer screen would need to be so large before I could gain valuable
information from it, it would be virtually unusable, and even if such a
thing were presented to me, how practicle would it be as compared to a
braille display of the same screen?

     Call me a pessimist if you wish, but I honestly believe that
tactile representation of a computer screen, particularly at the pixel
level, would be meaningless or at least practically unusable by a blind
person.  If this wern't the case, I'd be able to read the labels made by
a normal dymo-tape machine, and I wouldn't have to use that darn braille
label maker ever again!
                                                        Willie

... If you're looking for blind people you came to the right place!

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