From: John.Kossowan@f140.n150.z1.fidonet.org (John Kossowan)
Newsgroups: misc.handicap
Subject: Chronic Fatigue Syndr. Message # 3
Date: 3 Sep 92 12:55:07 GMT
Reply-To: John.Kossowan@f140.n150.z1.fidonet.org
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE
X-Fidonet: Rare Disorder Conference

Index Number: 24303

[This is from the Rare Disorders Conference]

August 1992
Message # 3 (# 3 of 4)
Help for CFS

This is NOT medical advice, but information taken from discussions
with experts on Chronic Fatigue Syndrome, and medical journal
articles. Any information here must be discussed with your
physician.
This message is # 3, from the USA CFS/CFIDS BBS, 207-623-8486
on daily from noon to midnight, Eastern Standard Time.
Location: Augusta, Maine.
The oldest running BBS totally dedicated to CFS patients.
Operated by Dr.John F.Kossowan,dentist, a CFS patient.

Medications to help one sleep with C.F.S. :

DO NOT TAKE TRI-CYCLICS for CFS insomnia !!!

Tri-Cyclics, such as amitriptyline or doxepin, have a stimulant
effect and can cause SEIZURES in patients with chronic
encephalitis, as in C.F.S. The recommended medication to help with
sleep is a benzodiazepine, such as Xanax or Klonopin, anti-seizure
meds. Tri-cyclics have been known to cause mini-seizures in CFS
patients.

- - - - - -
IF YOU ARE ON TRI-CYCLICS, GO OFF THEM GRADUALLY !!
CONSULT WITH A PHYSICIAN BEFORE GOING OFF ANY MEDICATIONS !!
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

Nutritional supplements that boost the immune system:
Primrose oil, PROVEN to work with CFS patients by world renown
neurologist Dr.Behan,of Glasgow SCotland, with journal published reports.

The Primrose Oil treatment for CFIDS patients

This treatment for CFIDS/CFS/ME patients was discovered by world
renown CFIDS/CFS/ME researcher of Glasgo, Scotland, Dr.Behan.
Dr.Behan has lectured around the world on his work. He is one of
the best funded researchers now working on this disease.

FIRST: THE ONLY BRAND OF PRIMROSE OIL TO TAKE IS "NATURE'S WAY" AT
YOUR LOCAL HEALTH FOOD STORE. Consult with your PHYSICIAN befroe
taking THIS !!

EFAMOL - should be taken with food - preferably low fat food
DO NOT - take EFAMOL at bedtime - You will find yourself up and not
  able to sleep.
WOMEN : You must go through one month and a menstruation cycle before
 you will begin to feel anything happening.
MEN : You should start to feel more energy approximately at the 3
week point.

PLEASE REMEMBER THAT THESE ARE GUILDELINES ONLY.
SOME PEOPLE TAKE LONGER.

DOSAGE : The recommended minimum dosage is :
   8 EFAMOL a day and 2 COLD LIVER OIL.
   Note : Please check the label on the cod lover oil.
   THE CONTENT SHOULD BE :    VITAMIN A - 1250 I.U.
		       AND    VITAMIN D - 100 I.U.

DO NOT SUBSTITUTE COD LIVER OIL WITH HALIBUT OIL

HOW AND WHEN :  4 in the morning - 1 cod liver oil
  >>>>   E.P.A. IS BETTER THAN THE COD LIVER OIL,SOME SAY
	 4 in the evening - 1 cod liver oil
Some people initially experience cramps and loose stools. If this
happens :
Start off with 2 EFAMOL in the morning
2 EFAMOL in the evening ( 1 cod liver oil)

3 days later, build up to 3 EFAMOL in the morning
3 EFAMOL in the evening ( 1 cod liver oil)

3 days later, 4 EFAMOL in the morning - 1 cod liver oil

       4 EFAMOL in the evening - 1 cod liver oil

. . . . . . . . . . . .   PLEASE REMEMBER !!!! . . . . . . . . . . .
EFAMOL IS NOT A CURE !! EFAMOL IS NOT A CURE ! EFAMOL IS NOT A CURE !!
HOWEVER, IT HAS BEEN DOUBLE-BLIND RESEARCH STUDY, PUBLISHED (BEHAN)
SPECIFIC TO THE DISEASE ACALLED CHRONIC FATIGUE SYNDROME, ALSO CALLED
M.E., OR MYALGIC ENCEPHALOMYELITIS.

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