HDTenEightyP/NetNews huggingface dataset:
From: weave@apache.dtcc.edu (Ken Weaverling)
Newsgroups: misc.handicap
Subject: Are spasms *dangerous*?
Date: 26 Jan 93 15:30:12 GMT
Reply-To: weave@apache.dtcc.edu (Ken Weaverling)
Organization: Delaware Technical & Community College
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26402

My friend has been having wicked pain, mainly back pain, for about
two months now. She has been a quad for seven years now.  She has
gone to the hospital a few times for tests and they still haven't
reached any conclusions yet nor have they done anything to treat
this yet.

About three months ago, her catheter tubing started to get
discoloured quite quickly (a few days after it was changed). We
thought it was blood at first, but a home test indicated it
wasn't.

At first they thought it was kidney problems, but a kidney
specialist said that her urine contained muscle tissue (myoglobin I
think?!). Anyway, they think her muscles are breaking down from the
spasms she gets.

I asked the doctor why, all of a sudden, this has started now. He
was brief, but indicated that sometimes this breakdown takes years
to start.

She has always had mild spasms before, but it never affected her
like this.  Also, she has always had excellent muscle tone in her
legs. ie, it looks like she could get up and walk off any second.

So, my questions to other quads, etc, is "Is this normal?"  Will
her muscles start to atrophy now?  Will she have to live with this
pain for the rest of her life now?  Is there any way to stop it?

I know, none of you are probably doctors, and every person is
different, but I was just wondering what others have found in this
area.

BTW, I read this group via the internet newsgroup misc.handicap,
but haven't gotten any traffic for about a week now. Am not sure if
it is a feed problem.  I would appreciate it any replies are also
sent to me via mail -- just in case. Thanks!

--
Weave's 10/90 recipe for insanity: Take one programmer, divide into portions:
10% programming consisting of equal parts in systems and applications plus
admin duties broken down into 20% for Unix, 5% PRIMOS, 10% hardware & network,
35% DOS/Windows, 10% news, 5% postmaster, and 5% babysitting IRC kiddies.
From: Bill.Burgess@p0.f401.n229.z1.fidonet.org (Bill Burgess)
Newsgroups: misc.handicap
Subject: Wedding Bells
Date: 20 Jan 93 22:20:43 GMT
Reply-To: Bill.Burgess@p0.f401.n229.z1.fidonet.org
Organization: FidoNet node 1:229/401.0 - The Connection HST!, Oshawa ON
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26378

[This is from the Blink Talk Conference]

There has been some discussion here thus far about the singles scene,
and the prospects of those in this capacity seeking partners by way of
the echos.  I personally find this exciting.  While I cannot say that
matches are here and waiting, I do think those singles could benefit by
addressing their interests and needs here.  Should a match occur, then
what about the wedding.  We had Cindy Hallenbeck on the echo who was an
organist, and there may be others who could take that role.  But is
William Wilson reverent enough to conduct the service alone, or would
Gary Petraccaro assist?  Stu Turk can take charge of the photographers,
Ann Stalnaker will see that Willie gets to the church on time, Bonnie
Snyder will school the bridal party as to the correct procedures to
follow, Karen Winnett will be a soloist, and Isaac Obie will be the
technical co-ordinator.  The bridal line-up will consist of Barbara
Akin, Linda Iverson, Carol Ashland and Donna Siren for starters, each
supporting the bride of that occasion.  Hey, maybe they will all go
together.  Since Walter Siren may have the opportunity to give away his
daughter, Tandy Way would have to take the role of ceremonial master for
the banquet, and what a feast it will be.  Hey folks, this is a new
year, and a year full of hope.  Lets wish all the singles our best for
finding that somebody so special to them.  TTYL
Bill
P.S. - Stu Turk will also serve as father to the brides when and where
required, Wally Brown will play the pan pipes, Lynn Rosenberg will play
the piano for the singalong after the banquet, And for special touches,
we add the following.  First, the harness and handle for Sony and Barb's
dog (sorry, forgot its name) will be adorned with red flowers, the canes
of Linda and Donna will be trimmed with identical red flowers, roses
being my choice, Bad Bad Leroy Lab will have his harness trimmed with
black and white flowers in keeping with Willie's sincerity, Toby will
also have his harness and handle trimmed with flowers, and all others
involved will have flowers to wear in a place deemed most suitable for
the person.
After seeing  that Willie is at the front of the church, Ann will stand
at the rear to signal to each in the procession when they are to start
down the aisle.  I will be at the front to signal her and to quietly
give the commands of left, right and halt to each so that they do not
have to worry about counting paces.  My camera will be ready and working
at all times as well.  Gosh, talk about a long post script.  Lets go for
it!

... Sorry, the Dog ate my Blue Wave packet.

--
Uucp: ..!uunet!bunker!hcap!hnews!229!401.0!Bill.Burgess
Internet: Bill.Burgess@p0.f401.n229.z1.fidonet.org
From: garritano@UTKUX.UTCC.UTK.EDU (Tom Garritano)
Newsgroups: misc.handicap
Subject: Need vision help for my father
Summary: My father's legally blind, wants a powerful magnifier to read
Keywords: blind, vision, reading
Date: 26 Jan 93 15:34:28 GMT
Reply-To: garritano@UTKUX.UTCC.UTK.EDU (Tom Garritano)
Organization: University of Tennessee
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26404

My father is legally blind due to diabetes-induced macular
degeneration, and until recently he had been using a small,
hand-held magnifier (w/ light) to read the newspaper.
Unfortunately, this magnifier is no longer sufficient, so he is
looking for something more powerful.

Could any of you please help direct me to either a specific product
that you recommend, or else to a helpful, reliable dealer of such
products?  He is 81 and has no computer, so what is probably
required is a very powerful magnifier with a strong light
attached.  Thank you very much for any references.  I don't often
get on UseNet or misc.handicap, so please respond by e-mail to
GARRITAN@UTKVX.UTK.EDU.

            Tom Garritano
            University of Tennessee
            garritan@utkvx.utk.edu
From: Darrell.Shandrow@f59.n114.z1.fidonet.org (Darrell Shandrow)
Newsgroups: misc.handicap
Subject: Re: Shame On Telix
Date: 20 Jan 93 22:20:07 GMT
Reply-To: Darrell.Shandrow@f59.n114.z1.fidonet.org
Organization: FidoNet node 1:114/59 - Bob's Place BBS Nod, Mesa AZ
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26374

[This is from the Blink Talk Conference]

Sounds great to me.  Perhaps, we need a strong group of blind users
whose only concern is information access.  After all, if a program is
coded properly, they should be able to have the fancy graphics while
leaving as much of the program as possible accessible.  They just need
to put some options in the configuration sections.

... then the computer asks you are you sure, ponder a moment
___ Blue Wave/QWK v2.12

--
Uucp: ..!uunet!bunker!hcap!hnews!114!59!Darrell.Shandrow
Internet: Darrell.Shandrow@f59.n114.z1.fidonet.org
From: Mark.Rejhon@f255.n163.z1.fidonet.org (Mark Rejhon)
Newsgroups: misc.handicap
Subject: Tdd/ascii modems
Date: 20 Jan 93 17:24:24 GMT
Reply-To: Mark.Rejhon@f255.n163.z1.fidonet.org
Organization: FidoNet node 1:163/255 - ViddiBBS, Ottawa ON
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26322

[This is from the Silent Talk Conference]

 > There is also a modem made in California by a company called
 > Krown Research. It is a 110/300 baud ASCII and 45.5/50 baud TDD
I heard that modem isn't hayes compatible.  Which means it will
work excellently with a proprietary terminal made for it.  For
those who wish to get Hayes Compatibility, the following modem
can do 110/300baud ASCII, 45.5/50 baudot TDD:

        Ultratec InteleDModem:      Ultratec
        ($329 US)                   6442 Normandy Lane
                                    Madison, Wisc 53719
                                    (608) 273D0707 (Voice/TDD)

This was Captured out of the README file in FUTUR110, the price is
now $329 due to a phone call that I made yesterday to them by TDD.

Mark Rejhon

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Uucp: ..!uunet!bunker!hcap!hnews!163!255!Mark.Rejhon
Internet: Mark.Rejhon@f255.n163.z1.fidonet.org
From: cg620@cleveland.Freenet.Edu (Greg Smith)
Newsgroups: misc.handicap
Subject: Fibromyalgia
Date: 20 Jan 93 16:06:21 GMT
Reply-To: cg620@cleveland.Freenet.Edu (Greg Smith)
Organization: Case Western Reserve University, Cleveland, Ohio (USA)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 27465

Hi

Does anyone know of a good source of information
on Fibromyalgia?

Greg Smith
Smithg@uwgb.edu
From: Ted.Filteau@p0.f460.n101.z1.fidonet.org (Ted Filteau)
Newsgroups: misc.handicap
Subject: Re: BNS Questions
Date: 20 Jan 93 21:55:59 GMT
Reply-To: Ted.Filteau@p0.f460.n101.z1.fidonet.org
Organization: FidoNet node 1:101/460.0 - VI/BUG, Holbrook MA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26351

[This is from the Blink Talk Conference]

 NF> I mark a block and use GH-Chord it says "Copied."  It goes into
 NF> the Clipboard, as far as I understand things. Then, when I try
 NF> ING-Chord it says "Paste what?"  That is not the response the

Hi Nancy,
You will probably get a ton of replies to this one, but here's mine.
The dots 346 chord has been changed to accomodate the calendar features,
(I think.)  When the bns says, "paste what", to get it to work as you
are you are used too, use the letter c for clipboard.  It does add an
extra keystroke.  In my December 1 revision of the bns 640, the delete
paragraph does not copy both "CR-LF" to the clipboard.  Deleting to mark
is a good work around.

 NF> Also, does anyone have any good and useful BNS macros that they
 NF> would recommend for use by others?  Send 'em along.  It would
 NF> be much appreciated.

I'm afraid I am not a macro king, like say Tim cumings, or others, but I
do like the overwrite macro.  This is an overwrite (o w chord) a space,
a next character, and then the calling of the same macro over again to
make a loop.  It will work until a z chord aborts it.
While on this subject, I have archived the blazie stuff from their
distribution disk, and they are available on the Vibug bbs, as
Blazmans.zip which are the manuals for various Blazie Engineering
products, and bns-misc.zip, which is various files on interfacing the
bns with other devices.  I wanted to have the files in one place,
because I have found that when they come out with a given piece of info,
if you don't have that particular device, you don't care, until you get
one.  Then you wonder where the heck that info on how to make the bns do
whatever you want it to do can be found.  <grin>

Now, that the macro.sys file can be transferred, perhaps people can
begin to share their macro files for others to try out.

Ted

--
Uucp: ..!uunet!bunker!hcap!hnews!101!460.0!Ted.Filteau
Internet: Ted.Filteau@p0.f460.n101.z1.fidonet.org
From: Ann.Sab@hnews.fidonet.org (Ann Sab)
Newsgroups: misc.handicap
Subject: HELLO
Date: 20 Jan 93 17:24:50 GMT
Reply-To: Ann.Sab@hnews.fidonet.org
Organization: The Handicap News, Shelton CT (203) 337-1607
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26324

[This is from the Silent Talk Conference]

i just found out something. my telebraille unit, which looks like
versabraille minus the tape compartment'-it uses rom, not external
software, can be interfaced to an ibm pc, which i dont have but my
nephew offered to build. the tb must be connected to an ibm and then you
use special software to getbothuni6s talking and make the 300 baumodem
work on bbs's! so thats thestory. however, anthis angers me, the
softwarepackge would cost $1000 from telesensory systems in ca and of
course i dont have thq. so we are stuck! buti refuse to giveup and i
encourage my friend to continue helpiog me. so we have to find funding.
wouldnt it be neat if i coulduse the telebraille to  acce/s software
from bbs's! i sure am faced with a challenge but i knew i must do it--my
vb itself is ge>ting unreliable--i broke 4 times since sept.

--
Uucp: ..!uunet!bunker!hcap!hnews!Ann.Sab
Internet: Ann.Sab@hnews.fidonet.org
From: Charles.Crawford@p0.f460.n101.z1.fidonet.org (Charles Crawford)
Newsgroups: misc.handicap
Subject: Re: Shame On Telix
Date: 20 Jan 93 21:54:46 GMT
Reply-To: Charles.Crawford@p0.f460.n101.z1.fidonet.org
Organization: FidoNet node 1:101/460.0 - VI/BUG, Holbrook MA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26341

[This is from the Blink Talk Conference]

  A couple of years ago I spoke with the developer of a major
bulletin board system and he advised me that keeping customers
satisfied is the name of the game and they want graphics. Now old
Don Barrett tells us about Telix. Say, I think something might be
happening hear.

  I think it may be time to form a national organization that would
issue report cards on accessible and non-accessible software. Seems
like the issue is not fully treated by groups who have a broad
spectrum of interests or who have to attend to baseline issues
before ever getting to information access.

 What do you think?

--
Uucp: ..!uunet!bunker!hcap!hnews!101!460.0!Charles.Crawford
Internet: Charles.Crawford@p0.f460.n101.z1.fidonet.org
From: Nancy.Feldman@f101.n502.z45.fidonet.org (Nancy Feldman)
Newsgroups: misc.handicap
Subject: BNS Questions
Date: 20 Jan 93 21:54:22 GMT
Reply-To: Nancy.Feldman@f101.n502.z45.fidonet.org
Organization: FidoNet node 45:502/101
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26338

[This is from the Blink Talk Conference]

OK, I have the April 16, 1992 version of the BNS 640, and a problem
has arisen.  I can't seem to cut and paste right.  When I mark a
block and use GH-Chord it says "Copied."  It goes into the
Clipboard, as far as I understand things.  Then, when I try
ING-Chord it says "Paste what?"  That is not the response the
manual says I should get.  Help!!!

Also, does anyone have any good and useful BNS macros that they
would recommend for use by others?  Send 'em along.  It would be
much appreciated.

Thanks in advance.

--
Uucp: ..!uunet!bunker!hcap!hnews!45!502!101!Nancy.Feldman
Internet: Nancy.Feldman@f101.n502.z45.fidonet.org
From: LCSOUZA%BRLNCC.BITNET@pucc.Princeton.EDU (Luiz Carlos Souza)
Newsgroups: misc.handicap
Subject: information on II Latin American Congress
Date: 26 Jan 93 15:35:29 GMT
Reply-To: LCSOUZA%BRLNCC.BITNET@pucc.Princeton.EDU (Luiz Carlos Souza)
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26406

Dear friends,
My name is Luiz Carlos SOUZA (Mr.). I am a post-graduate student at the
Federal University of Rio de Janeiro (Linguistics). I study Language and
Deafness.  I have been studying this topic for 10 years. I would like to
inform you about the "II Latin American Congress on Bilingualism (Sign
Language - Oral Language) for the Deaf".
September 12 to 17 , 1993.
Place: Federal University of Rio de Janeiro - Faculty of Letters
(Department of Linguistics and Filology) - Rio de Janeiro - RJ
President of the organizing committee: Prof. Dr. Lucinda FERREIRA BRITO
(Mrs.)
Call for papers: for more information please contact me: LCSOUZA@BRLNCC
(Luiz Carlos SOUZA (Mr.) - Address: Caixa Postal 16.285 - Largo do Machado -
CEP 22.222-970 - Rio de Janeiro - RJ - Brazil.

                                   Yours sincerely,
                               Luiz Carlos SOUZA - LCSOUZA@BRLNCC
From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: Prosthesis Cost
Date: 20 Jan 93 17:20:56 GMT
Reply-To: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX
X-Fidonet: Amputee Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26299

[This is from the Amputee Conference]

Found out that cost of exo-sketal dis disarticulation prostrhesis with
spring assist on forearm, open acryclic frames, hook plus mech. hand,
without prosethetic glove, with quick disconnet wrist is about $7,200.
Prosetics glove range from $500 up.
E

--
Uucp: ..!uunet!bunker!hcap!hnews!124!5109.0!Wayne.Briggs
Internet: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org
From: Marilyn.Johnson@f1.n3608.z1.fidonet.org (Marilyn Johnson)
Newsgroups: misc.handicap
Subject: Ablenews Welcome
Date: 20 Jan 93 17:21:33 GMT
Reply-To: Marilyn.Johnson@f1.n3608.z1.fidonet.org
Organization: FidoNet node 1:3608/1 - 221B Baker St, Panama City FL
X-Fidonet: Able News Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26303

[This is from the AbleNews Conference]

RS>Thanks for the info.  Will try to find a copy.  The form of MD my wife has i
RS>Charcot-Marie-Tooth.  Both her father and brother have it as well as an uncl
RS>We have been unable to find any females who have this except my wife.
RS>Does anyone know of any females who have Charcot-Marie-Tooth form of
RS>MD?

HI!
Quite a few women have Charco-Marie Tooth.  I believe it was first
classified in a woman! MDA covers this form of ataxia because there is
often muscle atrophy in the later stages.  There is another
organization that has lots of information on this, the National Ataxia
Foundation, 750 Twelve Oaks Center, 15500 Wayzata Blvd, Wayzata, MN
55391. (612) 473-7666  This year's annual meeting will be in Houston,
TX, March 12-14. Another organization is National Organization for Rare
Disorders, but I have little information on that.

  Other places of information include the Index Medicus which lists
medical journal articles.  They can be found in libraries of colleges
with nursing schools (Gulf Coast Comm. Coll. at least used to have it)
and of course medical schools, but it is a *slow* process.  (The jour
als indexed that you want are never there--but there is always
inter-library loan. You may have to pay for copying).  You can order
computer searches at medical schools, but need to know the proper key
words to get any information. The National Library of Medicine in
Washington, D.C., is terrific--you can run your own computer searches of
books and journals on their "in-house" computers. They also have a way
those with modems can access their files, but I didn't have a modem when
there and haven't got such a system set up yet.

  Had a very good chat with you wife (we are in the same area!), but
have decided to post this anyway in case others are interested.

  Let me know about the new paper.
  TTYL, Marilyn

--
Uucp: ..!uunet!bunker!hcap!hnews!3608!1!Marilyn.Johnson
Internet: Marilyn.Johnson@f1.n3608.z1.fidonet.org
From: Fran.O'gorman@p0.f2.n272.z1.fidonet.org (Fran O'gorman)
Newsgroups: misc.handicap
Subject: Sign Friends for the mac
Date: 20 Jan 93 17:25:04 GMT
Reply-To: Fran.O'gorman@p0.f2.n272.z1.fidonet.org
Organization: FidoNet node 1:272/2.0 - SENY NEC, Monroe NY
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26325

[This is from the Silent Talk Conference]

Hello again Phil,

I believe it was you who expressed interest in a mac version of my
Sign Friends program.

Well I went to order the quickbasic for the mac when I learned that
I need a mac plus with 1 meg of RAM or better. The machine I
was hoping to borrow from school is a 512k and so unless I can get
my hands on a better machine I'll have to table the thought for
now.

Just thought I'd let you know.

--Fran

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Uucp: ..!uunet!bunker!hcap!hnews!272!2.0!Fran.O'gorman
Internet: Fran.O'gorman@p0.f2.n272.z1.fidonet.org
From: Phil.Montella@p4.f131.n132.z1.fidonet.org (Phil Montella)
Newsgroups: misc.handicap
Subject: Re: computer to TTY
Date: 20 Jan 93 17:23:33 GMT
Reply-To: Phil.Montella@p4.f131.n132.z1.fidonet.org
Organization: FidoNet node 1:132/131.4 - Easy Does It, Bow NH
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26315

[This is from the Silent Talk Conference]

  MM> Hi Russell: the Technology Assessment Program (TAP) at Gallaudet
  MM> offers a freeware program for use with standard modem that lets you
  MM> communicate with ASCII TDD devices. You can download ASCII-TDD11.ZIP
  MM> (16347k) from TAP's BBS at 202-544-3623 or receive the program on-disk
  MM> by sending $ 3 for postage and handling to Technology Assessment
  MM> Program, 800 Florida Ave. N.E., MSSD-200, WASHINGTON, DC 20002. I've
  MM> just received it.

HI Mauro!

Do you know if they have a Mac-compatible file for the same purpose?

--
Uucp: ..!uunet!bunker!hcap!hnews!132!131.4!Phil.Montella
Internet: Phil.Montella@p4.f131.n132.z1.fidonet.org
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Newsgroups: misc.handicap
Subject: TV show
Date: 20 Jan 93 21:52:49 GMT
Reply-To: Alan.Hess@f1000.n261.z1.fidonet.org
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26331

[This is from the Spinal Injury Conference]

Today's "Montel Williams Show" dealt with SCI, and some of the
drugs being used experimentally on acute SCI (of course, we
chronically injured slobs remain SOL).  Unfortunately, I missed
most of the show.  I did see enough to note that one of my former
doctors (Dr. Fred Geisler) was a guest.  He's now working in
Chicago somewhere.  He was at University of Maryland Hospital when
I first met him.  *adh*

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Uucp: ..!uunet!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.org
From: Bob.Humbert@f99.n215.z1.fidonet.org (Bob Humbert)
Newsgroups: misc.handicap
Subject: residencial schools
Date: 20 Jan 93 22:17:03 GMT
Reply-To: Bob.Humbert@f99.n215.z1.fidonet.org
Organization: FidoNet node 1:215/99 - Blink Connection, San Leandro CA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26356

[This is from the Blink Talk Conference]

First, let me say that I am not trying to change your opinion of
residential schools, especially for yourself.  I would, however,
like you to consider the fact that a national residential school
for the blind with an enrollment of 250 would need only five
students from each of the fifty states.  Please excuse me for
saying so, but it appears as if you are basing your beliefs about
residential schools entirely on the basis of what would be good for
a child like we were.  That's just not taking into consideration
the fact that we all have different needs.  Five blind children
from each state going to a residential school that caters to blind
children with high scholastic abilities who may not have an
environment in his or her own, perhaps, very small town which would
enable him or her to excel would not harm the state residential
schools for the multi handicapped blind child, nor would it harm
the main streaming concept in the least.  It would just give one
more option to best meet the needs of a small number of capable
blind children unable to cope because of home or other
environmental disabilities that you and I do not have.  Please
expand your thinking to include the needs of others not quite as
lucky as we are.  Gaining total acceptance can only be achieved by
totally accepting others.

--
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Internet: Bob.Humbert@f99.n215.z1.fidonet.org