HDTenEightyP/NetNews huggingface dataset:
From: CETH@zodiac.rutgers.edu
Newsgroups: misc.handicap
Subject: About CETH
Date: 1 Sep 92 15:12:38 GMT
Reply-To: CETH@zodiac.rutgers.edu

Index Number: 24123

[Forwarded by Patt Bromberger <patt@squid.tram.com>]

The Center for Electronic Texts in the Humanities was established
in October 1991 by Rutgers and Princeton Universities with
external support from the Mellon Foundation and the National
Endowment for the Humanities.  It is intended to become a
national focus of interest in the U.S. for those who are involved
in the creation, dissemination and use of electronic texts in the
humanities, and it will act as a national node on an
international network of centers and projects which are actively
involved in the handling of electronic texts.  Developed from the
international inventory of machine-readable texts, which was
begun at Rutgers in 1983 and is held on RLIN (the Information
Network of the Research Libraries Group), the Center is now
reviewing the records in the inventory and continues to catalog
new texts.  The acquisition and dissemination of text files to
the community will be another important activity, concentrating
on a selection of good quality texts which can be made available
over Internet with suitable retrieval software and with
appropriate copyright permission.  The Center also acts as a
clearinghouse on information related to electronic texts,
directing enquirers to other sources of information.

Center for Electronic Texts 		phone:	  (908) 932-1384
in the Humanities			fax:	  (908) 932-1386
169 College Avenue			bitnet:	  ceth@zodiac
New Brunswick, NJ 08903			internet: ceth@zodiac.rutgers.edu
From: Mike.Freeman@f126.n105.z1.fidonet.org (Mike Freeman)
Newsgroups: misc.handicap
Subject: Acb/Nfb Feud
Date: 1 Sep 92 17:41:49 GMT
Reply-To: Mike.Freeman@f126.n105.z1.fidonet.org
Organization: FidoNet node 1:105/126 - Lawson & Reay, Vancouver WA
X-Fidonet: Blink Talk Conference

Index Number: 24184

[This is from the Blink Talk Conference]

In a message to Isaac Obie <05 Aug 92 13:01> Chris Bazzie wrote:

 CB> I would think that the government or
 CB> other agencies would supply
 CB> equipment like that free of charge, or
 CB> at least as cheaply as possible.
 CB> Everyone deserves an opportunity to
 CB> communicate in any way they want to
 CB> or can.

Hi, Chris.

Why does a blind person deserve that opportunity any more than a sighted
person?  That is, why should a blind person get any special breaks re
computer access?  There are many sighted persons who are impoverished
enough that they can't afford computers any more than can many blind
people.  If blind persons, in your eyes, should get special help re
computers and access devices, shouldn't the impoverished sighted
computer hackers get a similar breaks?

Remember, in this vale of tears, one never gets something for nothing!

Cordially,

Mike Freeman
___ CRR QWK 1.40

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From: spgreg@mars.lerc.nasa.gov (Greg Macrae)
Newsgroups: misc.handicap
Subject: Charcot Marie Tooth
Date: 1 Sep 92 15:07:50 GMT
Reply-To: spgreg@mars.lerc.nasa.gov (Greg Macrae)
Organization: NASA Lewis Research Center
X-Fidonet: Rare Disorder Conference

Index Number: 24117

In article <24003@handicap.news>, Mark.Dawson@f24.n3602.z1.fidonet.org
writes...
>Index Number: 24003
>
>I am writing (typing) from the Easter Seal building in Toronto, and
>have just finished speaking to a parent of a child with Charcotte
>Merrytooth Disease.  ANYONE who can provide some information about

I assume you are referring to Charcot Marie Tooth disease.  I saw
two posts directing you to information sources in Canada.  You should
also contact the Muscular Dystrophy Association.  CMT is a form of
muscular dystrophy, and there is a great deal of research funded by
the MDA conducted in Canada, USA and Europe.

I hope this helps.  Because I can seldom mail directly to fidonet accounts,
I am also posting this response to usenet.
--------------------------------------------------------------------
     MacRae                  |       Darting dragonfly...
                             | Pull off its shiny wings and look...
  spgreg@mars.lerc.nasa.gov  |      Bright red pepper pod!
                             |                      -Kikaku
--------------------------------------------------------------------
From: David.Tanner@f168.n129.z1.fidonet.org (David Tanner)
Newsgroups: misc.handicap
Subject: Re: Braille N Speak Compl
Date: 1 Sep 92 17:34:58 GMT
Reply-To: David.Tanner@f168.n129.z1.fidonet.org
Organization: FidoNet node 1:129/168 - Braille Bank BBS, Pittsburgh PA
X-Fidonet: Blink Talk Conference

Index Number: 24167

[This is from the Blink Talk Conference]

Gary, comparing the Eurica to a Braille 'N Speak is not a fair
compairison.  Most of the people I know who own or have owned
Euricas feeel that they got taken to the cleaners.  Yet, I think
you will find it tough to find many Braille 'N Speak owners that
don't like their Braille 'N Speak.

The people selling the Eurica plainly lied about some of its
capabilities, and it was far too expensive.  The Blazie people
never made any of the kinds of claims about Braille 'N Speak that
were made for Eurica.

        D. T.

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From: Tim.Syfert@f15.n114.z1.fidonet.org (Tim Syfert)
Newsgroups: misc.handicap
Subject: Re: Transportation
Date: 3 Sep 92 12:59:06 GMT
Reply-To: Tim.Syfert@f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference

Index Number: 24331

[This is from the Spinal Injury Conference]

 GP>         I bought my van from Braun as a used demo, gotta great
 GP>         deal. Anyway, if I had the option, I would *not* get
 GP>         the raised top. A few reasons. They are a pain in
 GP>         parking garages, car washes are out, and the extra
 GP>         interior cubic feet strains the A/C. The lowered floor
 GP>         is the way to go for another *important* reason, you
 GP>         can see out the windows like normal passengers.....
 GP>         Get's pretty boring & tiresome constantly ducking to
 GP>         peak out the window or starring at the roof.

Pick,

Couldn't agree with you more. NO raised roof on my next van. My current
van has that real high raised roof on it and its been through a few
scrapes etc. Have had the roof vent rrrrripppped off a couple times.
What a PAIN. My plans are to go with a Ford with a lowered floor. Just
hope I fit in it with out having to go with a raised roof.

                                           Tim

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From: Ruthie.Hoffman@f223.n260.z1.fidonet.org (Ruthie Hoffman)
Newsgroups: misc.handicap
Subject: more pain
Date: 28 Aug 92 16:08:37 GMT
Reply-To: Ruthie.Hoffman@f223.n260.z1.fidonet.org
Organization: FidoNet node 1:260/223 - Interstellar System, Vine Valley NY

Index Number: 24009

[This is from the Chronic Pain Conference]

 > Has anyone used one of those electrical stimulators for managing
 > chronic pain?  I met a woman who used one, but would like more

Hiya Kathleen....  If you mean a TENS unit, which is an electrical
nerve stimulator, used for pain relief, then I can vouch for it.  I
have one  and it helps ALOT.  It's not a cure but it sure made life
alot easier pain-wise.  They don't work for everyone, but you can
"try before you buy" in almost all cases.  A doctor has to
prescribe it and my insurance paid for the unit and for the
electrodes.  I have four electrodes, two on each channel, that I
use.  I place them on "trigger" points and get some great relief!!
It is very small, the size of a pocket pager, and runs on a 9v
transistor battery.  I've tried alot of different electrodes,
etc..  If you have more questions, please ask!!!  I'm in a bit of a
hurry today as I have to head out soon for an appointment, so I
probably forgot something.

CUL, Ruthie

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From: 34AEJ7D@cmuvm.csv.cmich.edu (Bill Gorman)
Newsgroups: misc.handicap
Subject: Medical marijuana - list of organizations
Date: 27 Aug 92 14:17:10 GMT
Reply-To: 34AEJ7D@cmuvm.csv.cmich.edu (Bill Gorman)

Index Number: 23972

The following is a *very* incomplete listing of groups and
organizations that support the legalization of cannabis FOR MEDICAL
PRUPOSES. This information may be of interest to L-HCAP subscribers
in light of the recent thread discussing medical/therapeutic uses
of cannabis/hemp (aka marijuana).

I have no connection, financial or otherwise (pun intended) with
any of these groups.

W. K. (Bill) Gorman <bj496@Cleveland.Freenet.Edu>

------------------------------ATTACHMENT--------------------------------

Alliance for Cannabis Therapeutics
PO Box 21210
Kalorama Station
Washington, DC 20009
USA
Phone:  (202) 483 8595

American Civil Liberties Union
132 West 43rd St.
New York, NY 10036
USA
Phone: (212) 944 9800

American Medical Marijuana Movement
(San Francisco Headquarters)
3745 Seventeenth Street
San Francisco, CA 94114
USA
Phone: (415) 864 1961

Drug Policy Foundation
4801 Massachusetts Ave. NW
Ste. 400
Washington, DC 20016
USA
Phone: (202) 895 1634
Fax:   (202) 537 3007
Compuserve:  76546,215
Usenet: 76546.215@compuserve.com

Libertarian Party
1528 Pennsylvania Ave. SE
Washington, DC 20003
USA
Phone: (202) 543 1988
US Toll Free: (800) 682 1776 - call for local branch info

Medical Marijuana Restoration Association
3745 17th St.
San Francisco, CA 94114
USA
Phone: (415) 864 1961
(Dennis Peron)

Therapeutic & Ecological Applications of Cannabis Hemp (TEACH)
2833 Frankford Ave.
Panama City, FL 32405
USA
Phone: (904) 763 6812
Hemp Hotline: (213) 288 4152
From: Joyce.Lyons@f210.n232.z1.fidonet.org (Joyce Lyons)
Newsgroups: misc.handicap
Subject: RSDS
Date: 28 Aug 92 16:09:25 GMT
Reply-To: Joyce.Lyons@f210.n232.z1.fidonet.org
Organization: FidoNet node 1:232/210 - The Lyons Den, Pekin IL

Index Number: 24012

[This is from the Chronic Pain Conference]

Hello, my name is Joyce and my husband has Reflex Sympathetic
Dystrophy Syndrome.  It is a disabling disease dealing with
nerves.  The pain has been estimated to be 3-Times worse than child
birth.  Some symptoms:  burning pains, at the same time feeling
cold, swelling of the afected limbs, discoloration ranging from
bright red to black, shrinkage of the limbs, complete loss of use
of the affected area.  Anyone having symptoms of this nature is
advised to seek IMMEDIATE PROFESSIONAL help with an RSD specialist,
NOT a neurologist.  Treatment must be done as soon as possible for
any hopes of any recovery.

We are interested in starting a support group in the area.  Anyone
wishing to join, ask questions, or need information are more than
welcome.  We are in the Central Illinois area.  To contact us,
leave a message here or leave a message in the public message area
on The Lyons Den at (309)347-7567.

                                Bye for now,
                                Joyce.

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From: Shelby.Sherman@f67.n123.z1.fidonet.org (Shelby Sherman)
Newsgroups: misc.handicap
Subject: General Interest
Date: 28 Aug 92 16:20:26 GMT
Reply-To: Shelby.Sherman@f67.n123.z1.fidonet.org
Organization: FidoNet node 1:123/67 - Shelby's Swamp, Bartlett TN

Index Number: 24046

[This is from the Chronic Pain Conference]

 > That sounds like really good advice.  Another thing that I did
 > was to change medications after my body had adjusted to the
 > level the level of dosage I was taking.  I would first increase
 > the dose for a week and then switch to another pain killer.
 > That seemed to work for me.

Hmmmmm.  Well, if it works, I sure cannot criticize but....it is
generally not a good idea to switch around due to possible
cross-tolerance between opiods.  A good technique is to stick with
one opiod ( controlled-released morphine is the best ) and titrate
the dose as needed.

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From: Ruthie.Hoffman@f223.n260.z1.fidonet.org (Ruthie Hoffman)
Newsgroups: misc.handicap
Subject: more pain
Date: 28 Aug 92 16:15:00 GMT
Reply-To: Ruthie.Hoffman@f223.n260.z1.fidonet.org
Organization: FidoNet node 1:260/223 - Interstellar System, Vine Valley NY

Index Number: 24027

[This is from the Chronic Pain Conference]

 > Yes, a TENS is what I mean!  Thanks for the reply.  How long can
 > you use it at a time?  What kind of pain do you use yours for.
 > I have a lot of pain from pelvic adhesions that bothers me all
 > the time.

You can use it for as long as you want.  I started out though,
turning it off after 45 minutes to see how long I could get relief
after it was shut off.  Nowadays when I'm wearing it I usually
leave it on continously for a long period and then shut it off for
awhile and/or change the type of stimulation (there are various
settings).  Changing the settings and/or turning it off for awhile
help because then your body doesn't...  adjust (looking for right
word here) to the stimulation.  I use mine for pain in the lower
lumbar region of my back and pain down my legs, mostly the left
leg.  This is from disk injuries at L4-L5 and L5-S1.  Ask your
doctor if you can try out a TENS unit and see if it helps you any.
If you get one to try, give it time and try the electrodes in
different places.  What works for one person doesn't work for
others.  Lotsa trial and error.

Good luck!!!

CULater, Ruthie

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From: Leti.Labell@f421.n109.z1.fidonet.org (Leti Labell)
Newsgroups: misc.handicap
Subject: Re: BRS: INVASION OF PRIVACY
Date: 1 Sep 92 04:04:54 GMT
Reply-To: Leti.Labell@f421.n109.z1.fidonet.org
Organization: FidoNet node 1:109/421 - Twilight Clone Mac, Rockville MD
X-Fidonet: Silent Talk Conference

Index Number: 24111

[This is from the Silent Talk Conference]

I DO have a little more input on the monitoring of phone calls.  In
the case of operator assisted calls, ALL operators are monitored on
an occasional basis, to make sure they are giving the proper
service.  True, the types of calls that are being monitored are not
personal information like you would have on a relay call.  However,
there is a precedence for the monitoring of operators.

All operators are covered under strict confidentiality rules, and
at least at the company I work for (Bell Atlantic), operators would
be fired if they break that confidentiality.  It doesn't happen
often, but when it does, everyone knows about it (the firing, I
mean.)

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From: Paul.Nobrega@p0.f266.n163.z1.fidonet.org (Paul Nobrega)
Newsgroups: misc.handicap
Subject: from the president of syntha-voice 1 of 4
Date: 1 Sep 92 17:31:56 GMT
Reply-To: Paul.Nobrega@p0.f266.n163.z1.fidonet.org
Organization: FidoNet node 1:163/266.0 - Vision, Ottawa ON
X-Fidonet: Blink Talk Conference

Index Number: 24156

[This is from the Blink Talk Conference]

Message for Blinktalk
Date: Mon Aug 10 07:05:38 MDT 1992
As the President of Syntha-voice, and being totally blind myself,
I have been monitoring this conference with great interest.  I
would like to take this opportunity to rectify some of the
situations that have been portrayed about our company, and our
products.
I have read several notes about our lack of a Demo Disk.  We are
being quoted as saying that the reason for not having such a disk
is that we say that a blind  user won't have Windows; so what is
the point of a demo.
As the person who takes these enquiries, and gives out the
information, I can clearly state that this is not what is being
said.  Yes, we certainly realize that more and more systems are
coming with Windows on board.
Without a Mouse, WINDOW BRIDGE cannot be installed fully on your
system.  That is, although you may not use the Mouse once the
system is installed, it is used by Windows during the Installation
process to install a Mouse Driver.  This driver creates a Mouse
Pointer.  The Mouse Pointer is used to locate ICONS, and to varying
extents on applications to select options on the screen.  We allow
the Mouse Pointer to be navigated and controlled by the keyboard,
but this is only possible if the Mouse Pointer is present on the
screen.
Yes, we are concerned about a flood of calls on our Toll Free Lines
by Demo Users asking questions about Windows, or Windows
Applications.  Lets be realistic, this is going to happen.
Although Microsoft, and independent Applications Manufacturers have
Customer Support lines for their products, the responsability will
fall to the Adaptive Technology Manufacturer to answer all of the
questions.

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From: Russell.Hunt@p0.f243.n620.z3.fidonet.org (Russell Hunt)
Newsgroups: misc.handicap
Subject: Re: Air Travel Booklet
Date: 1 Sep 92 03:52:45 GMT
Reply-To: Russell.Hunt@p0.f243.n620.z3.fidonet.org
Organization: FidoNet node 3:620/243.0

Index Number: 24102

G'day Mary  MS> The booklet "New Horizons for the Air Traveler with a
 MS> Disability"
 MS> is available from the US Department of Transportation.  This
 MS> booklet details how recent legislation (the Air Carrier
 MS> Access Act
 MS> of 1986 and the Americans with Disabilities Act) affects air
 MS> travel.
 MS> Copies are available from the Office of the Secretary, US
 MS> Department of Transportation, 400 7th Street, S.W.,
 MS> Washington, DC
 MS> 20590.  Telephone 202/366-4220 or FAX 202/366-7618.  No
 MS> charge.

Do you think they would send this across the waters to Australia?

Your descriptions of experiences when travelling really sounded
familiar to me. I've done more than 20 overseas trips out of
Australia on my own. Most of these when using a chair. Living down
here, all our trips are looong. I regard 8 hours as a short hop.
There really is no substitute for experience and it is a BIG
advantage if you can keep your chair onboard. The book sounds good
and there certainly seems to be big improvements since ADA. I was
using Air Canada recently and their service to passenger using
wheelchairs was outstanding. Times are changing!

Regards .............. Russell   Canberra, Australia

                  ----------------------------------------

TNT XL/v8.2 * The buck doesn't even slow down here!

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From: Steve.Matzura@f203.n2603.z1.fidonet.org (Steve Matzura)
Newsgroups: misc.handicap
Subject: Spanish
Date: 1 Sep 92 21:06:17 GMT
Reply-To: Steve.Matzura@f203.n2603.z1.fidonet.org
Organization: FidoNet node 1:2603/203 - The Shop Mail Only, Flushing NY
X-Fidonet: Blink Talk Conference

Index Number: 24204

[This is from the Blink Talk Conference]

 > You asked about Spanish contracted Braille.  Iused to know it
 > reasonably well.

Do you know where I could get a cheat-sheet for the Spanish
contractions, and do you know if there are still any magazines from
South America being produced in Spanish contracted Braille?  I used
to read one years and years ago from Argentina called "Eterna
Sabiduria" just to keep up with my now rusted-out Spanish
contracted-Braille skills.

 If a farmer fills his barn with grain, he gets mice; if he
 leaves it empty, he gets actors.  Bill Vaughan

... Via FrontDoor 2.02/NC

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From: Arlette.Lefebvre@f24.n3602.z1.fidonet.org (Arlette Lefebvre)
Newsgroups: misc.handicap
Subject: Stephen hawking
Date: 31 Aug 92 12:25:18 GMT
Reply-To: Arlette.Lefebvre@f24.n3602.z1.fidonet.org
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL

Index Number: 24062

      DISABLED PHYSICIST BOOK SETS BESTESSELLER RECORD:
  _______________________________________________________

London, England, July 2.

British Physicist Stepen Hawking, who has Lou Gehrig's disease,
entered the Guinness Book of World Records when his book, "A Brief
History of Time", outlasted any other book on the British
Bestseller List.

Hawking's explanation of black holes and the Big Bang theory has
been a bestseller for 184 weeks- more than 3 1/2 years- and it is
still selling more than 1000 copies a week.

       SOURCE: CBC News wire, Associated Press.

               A bientot, I hope...?

                                               Docteur Froggie.
===
 * DeLuxe/386 1.12 #3276 * If you don't start, it's certain you won't arrive
 * QNet3 * ADANET:41/62/19:Ability OnLine - Toronto Canada - 416/650-5411

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From: Michael.Rooney@f737.n106.z1.fidonet.org (Michael Rooney)
Newsgroups: misc.handicap
Subject: TENS
Date: 28 Aug 92 16:17:06 GMT
Reply-To: Michael.Rooney@f737.n106.z1.fidonet.org
Organization: FidoNet node 1:106/737 - AirBoat OnLine, Houston TX

Index Number: 24033

[This is from the Chronic Pain Conference]

WB>I've used a TENS on/off since about 1985.I was allergic to all but the
WB>deposite pads with flesh colored tape arrached. LOCATION OF PADS IS
WB>CRITICAL!  Suggest to talk with MD pain management spedialist or PT on
WB>placement. It helped someon thee timw, which was100% better thannone of
WB>the time. Goof luvk!

They tried several plcements of the pads and no go. Except for when
it gets real bad (usually bad weather or as it moves lower down the
spine) I can stand it. Two weeks ago I had a real bad attack and a
steroid burst starting with 30 mg. of prednisone the first day and
tapering off by 5 mg. a day for seven days  calmed it down to a
reasonable level. When it started up again last week he put me on
Medrol one every other day and that seems to have had some effect.
It has almost reached the base of the spine and once it does it will
burn itself out and just leave the damage behind. It has caused some
hip damage though and was told last year that I will need hip
replacements when the hip damage becomes more severe but thats
probably 1-3 years off and hopefully longer.

To be quite honest, after over 30 years of this I probably wouldn't
know what to do if I were pain free.<G> At least I can still walk
although movement is quite restricted. As long as the doctors can keep
it somewhat regulated I'm happy. Please don't take any of this a
complaining becaues it is not. In many ways I have been truly blessed.
I have five great kids and two wonderful grandchildren and up until
a few years ago was always able to work full time. I now do part time
computer consulting for a few companies and do work for friends just to
keep busy. Don't make a lot of money but it keeps me out of trouble and
helps pay for my toys. There are many people out there with a lot worse
problems, some of them life threatening, that make mine look minor. I
just try to remember to thank GOD each day for what I have. I believe
that a strong belief in a Higher Power goes a long way in accepting
graciously both the good and the bad that happens in our lives. I base
this not on what people have told me but from my own personal experience.

This reply turned out a litle longer than planned but sometimes I get
a little wound up. Take care, Mike...

 * SLMR 2.1a * All computers are greedy money eliminators.

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