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Date:         Wed, 2 Sep 1992 12:25:26 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2921
X-To:         LHCAP <l-hcap@VM1.NODAK.EDU>

                             THE HANDICAP DIGEST

                                 Issue # 2921

                        Wednesday, September 02, 1992

Today's Topics:


                                ******


                              sexual adjustment
                               Fried Death !!!
                             Greyhound Views....
                                     Hi
                             Electroejaculation
                               Transportation
                      Re: Airline Wheelchair Practices
                              Radiation Damage
             Re: WANTED: Advice re: airline wheelchair practices


                                ******


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Subject: sexual adjustment
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

     Two more books on sexual adjustment:

TITLE:  Sexual rehabilitation of the spinal-cord-injured patient
           / edited by Jose Florante J. Leyson.

TITLE:  Human sexuality and rehabilitation medicine : sexual
        functioning following spinal cord injury
           / edited by Ami Sha`ked.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Fried Death !!!
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <12 Aug 92 19:30> Curtis Oglesby wrote:

 CO> True.  I've always been concerned about those very issues.  Guess
 CO> I need to check with Sheppard Spinal Center in Atlanta for the
 CO> latest routine.  And an eval.  Until the past year, my local uro
 CO> has kept me in good shape for many years.  Maybe it's time for a change.

I take massive doses of Vitimin C (2000 mg/day) every other week.
Four time a year I take a 30 day course of a of broad spectrum
antibiotic.  My doc feels that this way I avoid building up a
tolerance for any particular drug.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Greyhound Views....
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Greg Pickering <13 Aug 92 21:25> Sheila Fava wrote:

 SF> Why is it that doctors try to scare the bejeebers outta you with
 SF> their tech medical talk?  They did a number to me about my
 SF> shoulder and they're at it again.  This time, since I was sitting

There is a great feature section on aging and the disabled in the
summer issue of NEW MOBILITY magazine.  PARAPLEGIA is doing a
section on the topic in September.  Both will devote some space to
the disable athlete and the joint problems we all experience.

The bottom line is that we got to use it to stay healthy, but if we
use it too much we pay for it later.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Hi
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to James Lubin <14 Aug 92 15:42> Greg Wick wrote:

 GW> I've been looking for a new live-in aide. I think I found one.
 GW> Not a lot to pick from though. Not many callers and out of not
 GW> many, only 1/3 showed up for the interview. A two week ad got 5

This is a constant problem.  Securing a good live-in aide takes a
lot of work.  DeGraft has a book called HOME HEALTH AIDES which
covers just about everything.  Available from Accent Publications.
[I have no affilation with Accent.  They won't even published my
stuff without chopping it down.]

I have made a list of all the churches in the area.  I call the
pastor or outreach worker and explain what I need and what I
offer.  I figure a person attending church is a step above some of
the clowns I get from a newspaper ad.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Electroejaculation
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Allison Cozzi <16 Aug 92 00:38> Mark Munson wrote:

 MM>    I have been down for a while, but you guys scare me, just the look
 MM>    of the word scares me!  Could you give me some info on where I can
 MM>    obtain the article?  Damn, sounds like birth control for Terminator

        FYI......

        Fathering children is no longer out of question for the
spinal cord injured person.  Through the use of a procedure
called electro-ejaculation, many individuals with SCI are now
fathering children.

        Under the direction of a reproductive urologist this
specialized procedure can be performed on an outpatient basis.
Contact a urologist attached to an SCI center for further
details.

        This guy might at Hines VA might have info on the
above too.

        Electricity could get you off bladder control drugs.
Phyiologist James Walter at the Hines (Ill.) VA needs
volunteers for a clinical trial of electrical stimulation to
control bladder hyperreflexia.  The ideal subject is a male
who is trying to get off of anticholinergic drugs.

        The procedure requires attaching electrodes to your
penis with what looks like a Band-aid.  Current passes from
a pocket unit and stimulates the nerve just under the skin.
The electrical change is suppose to override unwanted
signals which cause leakage.  When the bladder is full, the
subject turns off the stimulator and voids in his usual way.

        Walker has gotten good results in the lab and is now
working on an at-home version.  For information on the eight
week study, contact Pat Sibley, RN, 708-343-7200 ext. 5034.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Transportation
From: Greg.Wick@f45.n343.z1.fidonet.org (Greg Wick)
Organization: FidoNet node 1:343/45 - The French Connecti, Edmonds Wa


[This is from the Spinal Injury Conference]

I like lowering the floor, a roof extention can make a van top
heavy, plus looks bad I think. A mini van would be the best I
think. I think I heard Crysler was the only mini van that can have
the floor lowered, but that was the dealer too.

Put the ramp on the side. That way you can get out on the sidewalk,
not the road. There is a new ramp I want when I get a new van. it
lowers the side of the van itself, then the ramp comes out and you
drive up. Rather then it lifting you up. No hidrolics or chains.
Faster, cleaner looks, easier, less of a chance of falling off the
end or getting stuck.

===
 * SLMR 2.1 * Be alert, the world needs more lerts......

--
Uucp: ..!uunet!bunker!hcap!hnews!343!45!Greg.Wick
Internet: Greg.Wick@f45.n343.z1.fidonet.org




------



Subject: Re: Airline Wheelchair Practices
From: dlc@ais.org (David Claytor)
Organization: UMCC

In article <24240@handicap.news> Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
writes:
>Index Number: 24240
>
> DC> Any advice/warning/recommendations would be greatly appreciated!
> DC> The flight is on United: Detroit<-->Denver.  My experience with
> DC> United and my old E&J was terrific and worry-free, but I'm worried
> DC> about my Quickie.
>
>One sure way of ensuring that your chair travels in the cabin with
>you, is to arrive, panting and apologic, for boarding 10 minutes
>before departure. Using this technique, I have even on two
>occassions gotten first class seats with a coach ticket.


Actually, Joe, the same thing happened to me three times due to late
connecting flights.  United bumped me to first class Detroit ==> Chicago
and Seattle <==> Fairbanks (both ways!)  Apparently the ticket agent at
the gate has the prerogative, depending on the time and available crew.
As you say, a friendly smile and cooperative attitude makes all the
difference -- and I've always sent a note of appreciation to United
headquarters, noting flights and names.  What goes around comes around
and, who knows, it might help the next disabled flyer.

BTW, my chair went to the pit, in any case, but it traveled beautifully.

--Dave





------



Subject: Radiation Damage
From: rmoore@cudnvr.denver.colorado.edu (Robert Moore)

This is a new post from a new person..

I am interested in contacting someone who has a similar
handicap as mine.  I am losing the use of my right leg
as a result of radiation damage to the nerves at the
L4 vertabre.  If you know of someone who is/has experienced
a similar condition I would appreciate talking
to them via the net.

Thanks from:

Robert Moore
University of Colorado at Denver




------



Subject: Re: WANTED: Advice re: airline wheelchair practices
From: spgreg@mars.lerc.nasa.gov (Greg Macrae)
Organization: NASA Lewis Research Center

In a message of <Aug 11 15:30>, David Claytor (1:141/420) writes:

>Subject line says it all.  On earlier experiences, I have
>transferred to a boarding chair at the gate and my E&J was
>collapsed and taken to the hold.  Now, however, I'm using a rigid
>frame Quickie.
>
>Any advice/warning/recommendations would be greatly appreciated!
>The flight is on United: Detroit<-->Denver.  My experience with
>United and my old E&J was terrific and worry-free, but I'm worried
>about my Quickie.

I recently made a trip with four other wheelchair users.  Three had
rigid wheelchairs.  There was no problem stowing them in the forward
baggage.  A good point was made by someone else, remove everything that
isn't rigidly attached.  Remember, it is not paranoia if they really are
out to get you...

MacRae
--------------------------------------------------------------------
     MacRae                  |      In what windy land
                             |   Wanders now my dear little
  spgreg@mars.lerc.nasa.gov  |       Dragonfly hunter?
                             |                      -Chiyo-ni
--------------------------------------------------------------------




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                                ******

                  End of Issue # 2921 of the Handicap Digest

                                ******
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