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Date:         Thu, 3 Sep 1992 16:45:06 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2925

                             THE HANDICAP DIGEST

                                 Issue # 2925

                        Thursday, September 03, 1992

Today's Topics:


                                ******


                          Re: purpose of this echo
                             Re: On Signing....
                  Hardly Used Reclining Wheelchair for Sale
                      Re: Airline Wheelchair Practices
                        Virtual Reality / Disability
                               Writer's block
                     Chronic Fatigue Syndr. Message # 1
                     Chronic Fatigue Syndr. Message # 2
                     Chronic Fatigue Syndr. Message # 3


                                ******


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Subject: Re: purpose of this echo
From: Charles.Cafarelli@f104.n2240.z1.fidonet.org (Charles Cafarelli)
Organization: FidoNet node 1:2240/104 - FoxFire, Flint MI


[This is from the Silent Talk Conference]

 JO> Why should the hearing aid industry change, even then?
 JO> They've got a good racket going.  Taking about $20 worth of
 JO> electronic components - packaging them compactly - and selling
 JO> them for more than the price of pure gold!  Quite a racket,
 JO> as long as us "suckers" don't wise up ;-)

     I have been wearing an aid for 32 years and wised up long ago, 5
     to 8 hundred $ for something that breaks 3 days after the
     warrenty is up and funny thing is it can't be fixed, it's to old.

     Finally after much searching I found a hearing aid company that
     cares and has some of the best dealers I've ever met.  Been running
     a good 5 years an aid, coupla overhals with a 1 yr warrenty in
     between, just replace when they get something move powerful and
     they tell me it will help. I live in MI and was working in OH and
     my aid went out, went to one of the dealers down there for help.
     Well he tried to get me going and couldn't, ended up giving me a
     loaner and told me to have my dealer in MI send it back to him when
     I got back.

     I won't say the companys name because I'm new here, just started
     reciving this echo yesterday and don't want to break any rules just
     yet. :)

... Click ... click ... click ... damn, out of taglines!
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Subject: Re: On Signing....
From: Charles.Cafarelli@f104.n2240.z1.fidonet.org (Charles Cafarelli)
Organization: FidoNet node 1:2240/104 - FoxFire, Flint MI


[This is from the Silent Talk Conference]

AS> Caren, it is not so much that I believe this - it is absolutely true that
AS> many deaf people who only use ASL do NOT comprehend the English language
AS> and thus write in ASL.  I've seen it happen and I see it still happening
AS> today.  I have chatted with many of them on the TT as well as on the
AS> CPU and they type like they are conversing in ASL.

I fully understand what your saying.  Took ASL-1 and English 101 as a first
year college student, quite an experince to say the least.  Most of the
deaf students have one heck of a time getting through the English classes,
and after taking ASL I can understand why.  I was lucky I didn't start
losing my hearing until after High school, still going back to school at 52
even using a Phonic-Ear, English is not one of the easier subjects.  The
deaf do need a lot more help in their younger years.

Chuck

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Subject: Hardly Used Reclining Wheelchair for Sale
From: vivian@starlite.convergent.com (Vivian Tseng)
Organization: UNISYS Unix Systems Group, San Jose, Ca.


Features:
	.Reclining back (adjustable) from straight up to flat.
	.Removable head support
	.Adjustable foot/leg support
	.Easy assemble and disassemble for carrying in a car.

Original cost was about $1000. last October.  It's only used once for
about 10 minutes rolling in a church isle about 6 months ago.  It's
just like a new one and may be still under manufacture's warrenty.

Will sale for $500 or best offer.

Please call Vivian at (408)456-5656






------



Subject: Re: Airline Wheelchair Practices
From: knyal@ils.nwu.edu (Jarrett Knyal)
Organization: Institute for the Learning Sciences

In article <24260@handicap.news> dlc@ais.org (David Claytor) writes:
>Index Number: 24260
>
>In article <24240@handicap.news> Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
>writes:
>>Index Number: 24240
>>
>> DC> Any advice/warning/recommendations would be greatly appreciated!
>> DC> The flight is on United: Detroit<-->Denver.  My experience with
>> DC> United and my old E&J was terrific and worry-free, but I'm worried
>> DC> about my Quickie.

Acouple of years ago I flew to Hawaii on American.  I flew in first class so
transferring to the seat wasn't that big of a deal.  The flight there was
pretty eneventful but on the way home to Chicago, they lost my wheelchair!

     I'm sitting there waiting in that crappy chair they put you in to get you
off the plane because the aisles aren't wide enough for a wheelchair, when
someone comes up to me and says, "Your wheelchair went to Atlanta."  They
didn't even apologize.  When I asked them if I could take home an airport
chair, they said no.  I could have made a bigger stink about it I guess but
that was just the last thing that happened on a whole vacation of bad things.
Moral of the story: Drive instead.
>>






------



Subject: Virtual Reality / Disability
From: patt@squid.tram.com (Patt Bromberger)

            Virtual Reality and Disability (VR&D)
                Electronic Information Center

              VR Application in Disability Field

At Hines Rehabilitation and R&D Center, Hines, IL, John Trimble
and Ted Morris are working with Sense8 and Intel technologies to
create a software application that will help architects design
accessible spaces such as buildings and transportation systems, by
allowing wheelchair users to navigate through proposed designs
and provide critical input to help ensure the architect has created
a barrier-free design.  With the help of a glove lined with sensors
that detect motion, the virtual reality system lets the person with a
physical disability experience the space, examine the reach and
dimensionality of the design, and test the spacing of cupboards,
tables or other objects.

Source:  Sense8, 1001 Bridgeway, #477, Sausalito, CA 94965, Phone:
(415) 331 6318; FAX (415) 331 9148 and John Trimble and Ted Morris,
Hines Rehabilitation and R&D Center, Box 20, Hines, IL 60141.

                           Submitted by:

Dr. Harry Murphy, California State University, Northridge (CSUN),
18111 Nordhoff St. - DVSS, Northridge, CA 91330 (818) 885 2578;
FAX (818) 885 4929, EMAIL: HMURPHY@VAX.CSUN.EDU

                        Conference Information

Call for Papers Available Now for Eighth Annual, International
Conference, "Technology and Persons with Disabilities," March 17-20,
1993, LAX Marriott Hotel.

Calendar Item:  Virtual Reality and Disability Meeting, Westin Hotel
SFO Airport, June 17-18, 1993.







------



Subject: Writer's block
From: Natacha.Hall@f24.n3602.z1.fidonet.org (Natacha Hall)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


[This is from the Rare Disorders Conference]

 Hi peoples!!! It's me again... I need some help... You see, I'm writing
 this book on my disease, Scleroderma, and I'm having a major case of
 writer's block!!! Does anyone have any ideas of what I should write
 about now???  HELP ME POR FAVOR!!!  Wait a minute.This will be seen in
 the USA as well , won't it??? OK Just in case there are Spanish
 speaking, or French speaking people, here we go...
                                                  Thanks!!!

Espanol
   HOLA!!!  Nesecito ayudar... Escribo un libro, y no se que mas
   escribir!!! Estoy muy enferma con SCLERODERMA, y me gustaria escribir
   un libro... tienen ideas??? Ayuda por favor!!!...

                                        Gracias!!!

Francais
        Bonjour!!! SECOURS!!!....J'ecris un livre de mon
        maladie,SCLERODERMA,et je ne sais pas que je veux ecrire!!!
        Avez-vous suggestions???

                                  Merci !!!

    Your bud, Su amiga, ton amie,

         Natacha
                 Hall

===
 * OLX 2.1 TD * All wisdom is found on T-shirts.
 * QNet3 * ADAnet: Ability OnLine - Toronto Canada - 416/650-5411

 # Origin: ADAnet(tm) NetHub Birmingham, Alabama (205)854-9074  (94:94/1)

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------



Subject: Chronic Fatigue Syndr. Message # 1
From: John.Kossowan@f140.n150.z1.fidonet.org (John Kossowan)
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE


[This is from the Rare Disorders Conference]

August 1992

Message # 1 (of 4)
Help for those with Chronic Fatigue Syndrome.
>From the USA CFS/CFIDS BBS, 207-623-8486, noon to midnight, E.S.T.
On daily, operated by Dr.John F.Kossowan,dentist, with CFS since 1985,
located in Augusta, Maine, USA.

Attention patients and physicians:

This is NOT medical advice !!!
I do NOT give out medical advice !!

This is the opinion of a CFS patient, a dentist with medical
knowledge, who has read the research, and who has the illness since
1985. So, you have Chronic Fatigue Syndrome, or you think you do,
and your doctor has no idea what to do for you. Here is what I
suggest:

Get medical tests done on your immune system. You may not "look
sick" but you ARE sick, with a low grade encephalitis, and CFS is
involved with the immune system, and as a result, it causes
tiredness, joint pain, and fribromyalgia types of pain,
feverishness and insomnia. The immune system is hyper-active, and
even new allergies start up from CFS. If your present physician is
NOT empathetic, and kind to you, then seek the help of a physician
who has understanding of the immune system. (Even try a "holistic"
doctor, who understands allergies.)

Medical labs recommend, which have "CFS Panels":

The Immunosciences Lab , in Los Angeles ,CAlif., will perform the
blood tests found to be abnormal in CFIDS patients by Dr.Jay Levy,
world renown virologist who works with CFIDS patients in San
Francisco, Calif., at the Univ. of Calif., at San Francisco. The
tests are the CD-38, the CD-11B and the HLADR test. There is also
the "CFS Panel II" which tests the immune system of the CFIDS
patient, as well as the Natural Killer Cell Activity test which is
VERY important for CFS patients to have done.

Immunosciences LAb, Inc.
1801 La Cienega Boulevard, Suite 302
Los Angeles, Calif.  90035
Phone # : 213-287-1884

Call the lab for instructions on mailing your blood overnight to them.
- - - - -
"Microbiology Reference Laboratory" in Cypress, Calif.
800-445-4032.
The blood can be sent via your local Smith - Kline lab, or Metpath.
- - - - -
Both labs will perform the following immune tests that MUST be done:
The tests include : Human Herpes Virus # 6 (usually ELEVATED,not the cause)
	    Natural Killer Cell Activity Test
	    Enterovirus Antibody Assays
	    Lymphocyte Stimulation Tests
	    T - Cell Subset Quantitation i.e.,CD-2,CD-4,CD-8
	    CD8, CD11B, CD38, & HLA-DR
- - - - -
A NEW TEST for CFIDS: The 2'-5' A synthetase L pathway test
Performed by:
Oncore Analtyics Inc.
Houston, Texas
Phone #: 800-662-6738

This lab is performing the 2'-5' A Synthetase L pathway test
for CFIDS patients.
- - - - -
End of Message # 1 - CFS Help
Info from the USA CFS/CFSIDS BBS, 207-623-8486, noon to midnight daily
The oldest running BBS totally dedicated to CFS patients since 1987.

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------



Subject: Chronic Fatigue Syndr. Message # 2
From: John.Kossowan@f140.n150.z1.fidonet.org (John Kossowan)
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE


[This is from the Rare Disorders Conference]

August 1992
Message # 2 (# 2 of 4)
Help for CFS Patients
>From the USA CFS/CFIDS BBS, 207-623-8486, noon to midnight,E.S.T.,
on daily; located in Augusta, Maine, USA.

- - - - - - - - - - -

Pertinent information from Dr.Paul Cheney (MD, PhD)

Diplomate American Board of Internal Medicine
Specializing in Cytokine Immunology, Chronic Fatigue Syndrome and
General Internal Medicine

LYMPHOCYTE PHENOTYPE ABNORMALITIES ASSOCIATED
WITH CHRONIC FATIGUE SYNDROME

Patients who meet criteria for Chronic Fatigue Syndrome are
found to have multiple abnormalities in laboratory markers
associated with cellular function (but exceptions are not uncommon).
They are as follows :

1. The most consistent abnormality is an elevated number of Natural
Killer Cells (NK cells) defined by reactivity with monoclonal antibodies
NKH-1(CD56). This is often paradoxically associated with decreased
function.

2. There is an increase in the percentage of suppressor / cytotoxic
T lymphocytes  (CD8) and this appears to be largely due to an expansion
of the CD8 cytotoxic subpopulation.

3. There is an increase in the number of CD3 and CD8 positive
T lymphocytes which express the HLA-DR activation marker.

4. There is an increase in CD38 positive T cells.

5. There is an significant decrease in the CD8/CD11b positive cell
population, a subset of T suppressor/cytotoxic cells. This decrease
has been reported by Dr.Jay Levy (UCSF) at a recent Chronic Fatigue
Syndrome Conference (Charlotte, November 17-18, 1990).

6. There is a decrease in the inducer/suppressor subset (CD45R/CD4)
cells, which previously has been reported in MS patients.

7. There is rarely an increase in the B cell population
(CD20 and CD20/CD5 positive cells.) If seen, we recommend that Kappa
Lambda Clonal Excess Analysis (Specialty Labs, San Diego) be performed.

8. There are occasional (<15%) instances when the T-Helper
subset (CD4) is decreased. We recommend HIV-1 testing in this situation.

From:

Paul R.Cheney, MD, PhD
10620 Park Road, Suite 234
Mercy Medical Park
Charlotte, NC   28210
704-542-7444
Fax 704-542-0720
(CFIDS/CFS Expert since 1984)
- - - End of Message # 2  - - -

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Subject: Chronic Fatigue Syndr. Message # 3
From: John.Kossowan@f140.n150.z1.fidonet.org (John Kossowan)
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE


[This is from the Rare Disorders Conference]

August 1992
Message # 3 (# 3 of 4)
Help for CFS

This is NOT medical advice, but information taken from discussions
with experts on Chronic Fatigue Syndrome, and medical journal
articles. Any information here must be discussed with your
physician.
This message is # 3, from the USA CFS/CFIDS BBS, 207-623-8486
on daily from noon to midnight, Eastern Standard Time.
Location: Augusta, Maine.
The oldest running BBS totally dedicated to CFS patients.
Operated by Dr.John F.Kossowan,dentist, a CFS patient.

Medications to help one sleep with C.F.S. :

DO NOT TAKE TRI-CYCLICS for CFS insomnia !!!

Tri-Cyclics, such as amitriptyline or doxepin, have a stimulant
effect and can cause SEIZURES in patients with chronic
encephalitis, as in C.F.S. The recommended medication to help with
sleep is a benzodiazepine, such as Xanax or Klonopin, anti-seizure
meds. Tri-cyclics have been known to cause mini-seizures in CFS
patients.

- - - - - -
IF YOU ARE ON TRI-CYCLICS, GO OFF THEM GRADUALLY !!
CONSULT WITH A PHYSICIAN BEFORE GOING OFF ANY MEDICATIONS !!
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

Nutritional supplements that boost the immune system:
Primrose oil, PROVEN to work with CFS patients by world renown
neurologist Dr.Behan,of Glasgow SCotland, with journal published reports.

The Primrose Oil treatment for CFIDS patients

This treatment for CFIDS/CFS/ME patients was discovered by world
renown CFIDS/CFS/ME researcher of Glasgo, Scotland, Dr.Behan.
Dr.Behan has lectured around the world on his work. He is one of
the best funded researchers now working on this disease.

FIRST: THE ONLY BRAND OF PRIMROSE OIL TO TAKE IS "NATURE'S WAY" AT
YOUR LOCAL HEALTH FOOD STORE. Consult with your PHYSICIAN befroe
taking THIS !!

EFAMOL - should be taken with food - preferably low fat food
DO NOT - take EFAMOL at bedtime - You will find yourself up and not
  able to sleep.
WOMEN : You must go through one month and a menstruation cycle before
 you will begin to feel anything happening.
MEN : You should start to feel more energy approximately at the 3
week point.

PLEASE REMEMBER THAT THESE ARE GUILDELINES ONLY.
SOME PEOPLE TAKE LONGER.

DOSAGE : The recommended minimum dosage is :
   8 EFAMOL a day and 2 COLD LIVER OIL.
   Note : Please check the label on the cod lover oil.
   THE CONTENT SHOULD BE :    VITAMIN A - 1250 I.U.
		       AND    VITAMIN D - 100 I.U.

DO NOT SUBSTITUTE COD LIVER OIL WITH HALIBUT OIL

HOW AND WHEN :  4 in the morning - 1 cod liver oil
  >>>>   E.P.A. IS BETTER THAN THE COD LIVER OIL,SOME SAY
	 4 in the evening - 1 cod liver oil
Some people initially experience cramps and loose stools. If this
happens :
Start off with 2 EFAMOL in the morning
2 EFAMOL in the evening ( 1 cod liver oil)

3 days later, build up to 3 EFAMOL in the morning
3 EFAMOL in the evening ( 1 cod liver oil)

3 days later, 4 EFAMOL in the morning - 1 cod liver oil

       4 EFAMOL in the evening - 1 cod liver oil

. . . . . . . . . . . .   PLEASE REMEMBER !!!! . . . . . . . . . . .
EFAMOL IS NOT A CURE !! EFAMOL IS NOT A CURE ! EFAMOL IS NOT A CURE !!
HOWEVER, IT HAS BEEN DOUBLE-BLIND RESEARCH STUDY, PUBLISHED (BEHAN)
SPECIFIC TO THE DISEASE ACALLED CHRONIC FATIGUE SYNDROME, ALSO CALLED
M.E., OR MYALGIC ENCEPHALOMYELITIS.

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                  End of Issue # 2925 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU