HDTenEightyP/NetNews huggingface dataset:
From: Rich.Veraa@f907.n135.z1.fidonet.org (Rich Veraa)
Newsgroups: misc.handicap
Subject: MIAMI PROJECT
Date: 9 Oct 92 20:55:54 GMT
Reply-To: Rich.Veraa@f907.n135.z1.fidonet.org
Organization: FidoNet node 1:135/907 - <Birdsoft Online, N Miami FL
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24791

[This is from the Spinal Injury Conference]

A message from Keith Jones to Derek Juntunen was released into the
bitstream 12 Sep 92  18:53.

 KJ> I'll bet they already have a cure and they will never let it out because
 KJ> there are too many damn people making money on us (medical supply
 KJ> stores, doctors, drug companies to name a few). Sad, outrageous but
 KJ> probably true.

Git real, Floyd. It's sick to even joke about that conspiracy crap
-- and it does a disservice to biomedical scientists everywhere. It
happens to be a damn difficult problem. A half century ago, this
wasn't appreciated, and it was thought that if spinal cord tissue
was put together precisely enough, the nerve connections would be
re-established.

Well, by about thirty years ago, we'd established that it wasn't
that simple. Instead of just repairing the tissue, millions of
individual _cells_ would have to be repaired -- and that was
considered impossible. More recently, we've discovered a lot about
the way individual cells... and the idea of repairing them doesn't
seem so impossible. But it's still a huge task and we don't have
any practical idea how to do it. Dick Bunge's work has enormous
importance in demonstrating the possibility of repairing neural
structures on the cellular level. But, no -- it's doesn't represent
a cure for human paralysis. Even if he's wildly successful in
repairing DRG axons, it will only demonstrate that an SCI cure is
_possible_.

Then it'll still take maybe 50 years to figure out _how_ to do it.

In other words, it _ain't_ easy. I personally think -- as do many
investigators who've devoted their professional lives to this
question -- that eventually a cure for human paralysis _will_ be
found. It won't be in time to affect any paraplegics living today,
but we who've gone through this and know what a bitch it is, owe it
to generations yet unborn to support this research that will
prevent them from suffering as we have.

     Cheers,
        Rich

 KJ> I can surely understand your hope and optimism as I felt the same way
 KJ> during my first few years after my injury. They were supposedly on the
 KJ> brink of some breakthrough then. I guess the best suggestion I can
 KJ> give you is to go on with your life as best you can. Don't expect a cure.
 KJ> If it happens, great. If not, you won't be let down.

 KJ>                       -Keith-

 KJ> --- EZPoint V2.1
 KJ> * Origin: Keith's EZPoint.......Reality is this moment....... (1:114/15.13)

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Internet: Rich.Veraa@f907.n135.z1.fidonet.org
From: Walter.Siren@p18.f5.n396.z1.fidonet.org (Walter Siren)
Newsgroups: misc.handicap
Subject: Video talking
Date: 13 Oct 92 18:16:57 GMT
Reply-To: Walter.Siren@p18.f5.n396.z1.fidonet.org
Organization: FidoNet node 1:396/5.18 - Pontchippi, New Orleans LA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24896

[This is from the Blink Talk Conference]

 NA> I'm looking for a piece of hardware that I had heard of a few years ago
 NA> that would make the lcd display on your video speak.  I'm planing to buy a
 NA> video and want to be able to set the time taping feature to record when I'm
 NA> not home.
 NA> If anyone has any details on where and how much r eany other details on
 NA> this piece of hardware can you please write me a message.

Hi, Nick.  I have never heard of that.  The only thing that I have
heard of is two companies who make vcr's put out talking vcr's, one
was panosonic, and the other one was sharp.  Neither one is making
them any more.  Irti in California still has a few of the sharp
talking vcr's left.  That is the only thing that I know about.

Walter

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Internet: Walter.Siren@p18.f5.n396.z1.fidonet.org
From: opac!dave%TBABS.osl.or.gov@CS.ORST.EDU
Newsgroups: misc.handicap
Subject: Re: VERSABRAILLE
Date: 14 Oct 92 04:42:51 GMT
Reply-To: opac!dave%TBABS.osl.or.gov@CS.ORST.EDU
Organization: Olivetti AFD
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24936

This device is prety much outdated.  at national conventions, i
have worked with deaf=blind people using a variety of devices,
including a braille n speak, connected to an 80 character braille
display.  ig vonrvyrv vottrvyly, the buffer on the display, or for
that matter, on a telletouch or similar device can store
information, allowing the deaf-blind individual to read it at their
own speed.  further, with the use of computers, or other devices,
the person can store information, and read it back at their
liesure.  the process works well, except where real time
interaction is necessary.
From: VFOAO073@VAX.CSUN.EDU (Harry Murphy)
Newsgroups: misc.handicap
Subject: Close of Call for Papers
Date: 13 Oct 92 04:02:33 GMT
Reply-To: VFOAO073@VAX.CSUN.EDU (Harry Murphy)
Organization: Olivetti AFD
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24859

The closing date for the CALL FOR PAPERS for CSUN's mini-conference
on Virtual Reality and Disability is October 15.  The conference
itself will be held in Los Angeles, March 17-20, 1993.  Last year's
conference was keynoted by Jaron Lanier of VPL and a conference
Proceedings of a dozen papers was published (one copy free for
the asking via email).

Anyone with an interest in presenting a paper should give their
fax number.

                          CONFERENCE INFORMATION

CSUN's Eighth Annual, International Conference, "Technology and
Persons with Disabilities," March 17-20, 1993, Los Angeles Airport
Marriott Hotel.  Features special sessions on Virtual Reality, and
Speech Recognition.

For information:  Dr. Harry Murphy, California State University, Northridge,
18111 Nordhoff Street - DVSS, Northridge, CA 91330, Phone: 818 885 2578;
FAX: 818 885 4929.  EMAIL: VR@VAX.CSUN.EDU
From: Linda.Cummings@f34.n375.z1.fidonet.org (Linda Cummings)
Newsgroups: misc.handicap
Subject: Meds
Date: 9 Oct 92 20:56:02 GMT
Reply-To: Linda.Cummings@f34.n375.z1.fidonet.org
Organization: FidoNet node 1:375/34
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24792

[This is from the Spinal Injury Conference]

Well, the Vicodin started to seem less effective, so when I called
my doctor's office to ask if he could phone me in a prescription, I
asked if he would change over to Tylenol #4 this time, and he did.
It seems to be much more effective for helping the chronic pain.
Seems like if I start tolerating a particular drug, if I can change
over to a different brand, it helps.  I know I'll start getting
used to the Tylenol #4 in a few months, and then, hopefully, we'll
switch back over to Vicodin for awhile.  As long as I can do this,
I can at least get some pain relief from these prescriptions.

Anyone else been able to do this?

Linda

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Internet: Linda.Cummings@f34.n375.z1.fidonet.org
From: Greg.Wick@f45.n343.z1.fidonet.org (Greg Wick)
Newsgroups: misc.handicap
Subject: Relocation to paradise??
Date: 14 Oct 92 15:52:27 GMT
Reply-To: Greg.Wick@f45.n343.z1.fidonet.org
Organization: FidoNet node 1:343/45 - The French Connecti, Edmonds Wa
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25015

[This is from the Spinal Injury Conference]

JR>I'm a C5-6 Quad who wants to hear of an ideal part of the Continental US
JR>of A to move to! I'm sick of NE Winters! Please be honest (and
JR>convincing!)... :-)

Well The Seattle area is GREAT in the summer, but it only lasts for
2 months. Florida sounds great but it's to muggy, that wet feeling
would be just as bad as cold. Arizona sounds the best to me DRY AND
HOT. Getting to hot can really bother me to, but I'd just get a air
conditioner. I'd rather try and cool off, then be cold. Being cold
makes me spasm, tighten up, stiff, sore, shake, and just feel
terrible. Being hot just makes me tierd. Plus I'd ratter drink a
cold Coke and eat ice cream than wrap up in a blanket and drink hot
coco. If it wasn't for the moving cost and that all my family lives
here in the Seattle area, I would REALLY REALLY think hard about
it.

===
 * SLMR 2.1 * "OUCH" I just my floppy caught in my unzipper!

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Internet: Greg.Wick@f45.n343.z1.fidonet.org
From: Kevin.Robinson@f15.n280.z1.fidonet.org (Kevin Robinson)
Newsgroups: misc.handicap
Subject: Re: Spouse/nursing care
Date: 9 Oct 92 20:59:12 GMT
Reply-To: Kevin.Robinson@f15.n280.z1.fidonet.org
Organization: FidoNet node 1:280/15 - Writers' Block BBS, Raytown MO
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24813

[This is from the Spinal Injury Conference]

One of the blessing/curses of a workman's comp permanent total
disability case is nursing case...often a task offered the spouse.  The
injury party can no longer work, the spouse can no longer work outside
the home, and the insurance carrier pays only a small percentage of what
they would have to pay a professional service...with no health or
retirement benefits, including no social security.  The arrangement
quickly becomes a trap, in that the newly traumatized family now depends
of that income, and the only way to break out is to find employment
income to offset the nursing care payments...something that is often
difficult or impossible for the quad and/or the spouse because the
day-to-day nursing duties cannot be turned over to someone else without
going cold turkey on the paychecks.  When I broke my neck in 1975, no
one counceled us about the long-term effect this arrangement would have,
but today, nearly every rehab center will suggest other options because
being a spouse/lover/caregiver is a gargantuan task...one that very few
people can juggle indefinately.
   Yours etc.,

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Internet: Kevin.Robinson@f15.n280.z1.fidonet.org
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Survey
Date: 14 Oct 92 15:51:23 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25007

[This is from the Spinal Injury Conference]

In a message to All <02 Oct 92 17:41> Derek Juntunen wrote:

 DJ> Do you feel you are less emotional now
 DJ> than the first year follow the injury?

     Yes

 DJ> Do you feel you have noticed that your emotional excitability has
 DJ> decreased since your injury?

     No, I love, hate, cry, and laugh with just as much gusto now as I did before my injury.

 DJ> What has benifitted you since your injury?

     education

 DJ> What is your injury level?

     C5-6

 DJ> What was the date on which your injury occured?

     7/4/59

 DJ> What is your age?

     51

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From: Walter.Siren@p18.f5.n396.z1.fidonet.org (Walter Siren)
Newsgroups: misc.handicap
Subject: votalker
Date: 14 Oct 92 15:28:04 GMT
Reply-To: Walter.Siren@p18.f5.n396.z1.fidonet.org
Organization: FidoNet node 1:396/5.18 - Pontchippi, New Orleans LA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24957

[This is from the Blink Talk Conference]

 TW> walter instead of holding on  to that outdated synthesizer the vo talker
 TW> why not dump it and if you like the accent get another one to replace the
 TW> vo talker and your problems are solved.

Not really Tandy.  While jaws does not work well with the votalker,
tinytalk works fine with the votalker, and not to good with the
accent.  Just exactly opposite.  Besides the votalker will not get
much use, because that is the one that Lola is going to use, and
she is use to the votalker.  I can remember when Donna, did not
want to use the accent.  She wanted to keep her votalker, but since
it would not run on the 286 she got, she had to get use to the
accent since she could not find another one she liked.    Now, she
is use to the accent.

Walter

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Internet: Walter.Siren@p18.f5.n396.z1.fidonet.org
From: dashiell@nadc.nadc.navy.mil (Jude DaShiell)
Newsgroups: misc.handicap
Subject: Re: hardware and software
Date: 7 Oct 92 13:46:24 GMT
Reply-To: dashiell@nadc.nadc.navy.mil (Jude DaShiell)
Organization: Olivetti AFD
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24685

Understand that the hardware and software that's available will
require some adjustment to be useful from the user.  Specifically
speech synthesizers can be used if set up properly but require that
the user give up 8 weeks just to accustom themselves to the speech
and working with the software since there are also new commands to
learn.

It's best that the user play text adventure games for those 8 weeks
so they can do things with the computer and still do them safely.
The next problem will come about if the speech synthesizers don't
support the software the user was using before the user lost their
sight.  If that happens it's because proper investigation of
packages wasn't done in the beginning and the company will loose
about $1,000 having purchased a wasted product.  Best thing for you
to do is to find out what software the user was using before all of
this happened and send a list of it by reply mail to this list.

This way those of us on the list can tell you what packages work
and what don't work and possible substitutes.  Speech synthesizers
are getting better than they were but some software requires a bit
of set up by an already existing expert for a novice user and not
all companies will do this for the user or support the new user
once they've bought their package.

If you don't like giving up 8 weeks the user could get braille
display software and give up a year to learn how to use that.  Your
choice.  I will help where possible.

Jude <dashiell@nadc.nadc.navy.mil>
From: Eric.Bohlman@p3.f89.n129.z1.fidonet.org (Eric Bohlman)
Newsgroups: misc.handicap
Subject: Re: tiny talk clarification needed
Date: 7 Oct 92 15:42:53 GMT
Reply-To: Eric.Bohlman@p3.f89.n129.z1.fidonet.org
Organization: FidoNet node 1:129/89.3 - BlinkLink, Pittsburgh PA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24711

[This is from the Blink Talk Conference]

 JD> From: dashiell@nadc.nadc.navy.mil (Jude DaShiell)
 JD> Index Number: 23985
 JD> Is tiny talk meant to be a replacement software package
 JD> or a supplement package?

It replaces whatever you're using as a screen reader, which in your case
would be Artic BusinessVision.  You'll still need Sonix and TTS, because they
perform the text-to-speech translation for the synthesizer (the Artic boards
are "dumb" synthesizers, which means that they only speak phonetics and rely
on the computer itself to translate text to phonetics.  "Smart" synthesizers
have their own processors to do the translation; some internal boards
(Doubletalk, Accent PC, etc.) are smart, as are all external units).

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Internet: Eric.Bohlman@p3.f89.n129.z1.fidonet.org
From: Becky.Goldberg@f220.n260.z1.fidonet.org (Becky Goldberg)
Newsgroups: misc.handicap
Subject: Parents' Guilt
Date: 15 Oct 92 16:20:37 GMT
Reply-To: Becky.Goldberg@f220.n260.z1.fidonet.org
Organization: FidoNet node 1:260/220 - Exit 47, LeRoy NY
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25032

[This is from the Silent Talk Conference]

-> disability is more so.  These parents most often don't know anyone wi
-> disability and truly don't know what their children are capable of
-> accomplishing.  Even before a child is born, the parents have hopes a
-> dreams for that child.  The disability shatters those dreams.  Many p
-> don't know how to redirect those dreams.

Hi Linda,

   It is very common for parents to have hopes and dreams for their
children. I guess that most parents are usually not educated about
disablities like my mother did. Fortuntealy, my grandma went to
Gallaudet Unveristy a year before I was born to learn about deaf people.
She was librarian and was very good friend with my first teacher who
is my good friend and found what she did, she went out and learned it.
My teacher never knew what triggered grandma's interest in deaf ed. When
I was born, and was found that I am deaf. my grandma knew what to do and
educated my mom about it. It think knowing about deaf helped prevent
me and my two sisters going to residental schools.

Maybe most parents never thought it would happen to them. It is
important to be educated about disabitlies. I've worked with children
with disablities and know about them. It is worth it so i can help the
new parents and for myself. One thing is that the feeling about it, that
I don't know till i have a child with disablity.

As for pregnacy, it is important that the person with disablity is
phyicially able to be pregnant. Naturally they have doubts. I think it
is important to belive in them to succeed regardless to disablity. I
have heard that Down's Syndrome people are prevented for dating,
marriage, having children etc... I have seen some kids are pretty
smart and know they can do like others depends on the severtiy of
their learning ablitles.

I may go off the track but that how I am! Keep in touch and enjoy ur
kid. Teenage kid can be very alien like my sister Maggie is now!

Becky

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Internet: Becky.Goldberg@f220.n260.z1.fidonet.org
From: Jack.O'keeffe@f26.n129.z1.fidonet.org (Jack O'keeffe)
Newsgroups: misc.handicap
Subject: Re: How to get on other bbs
Date: 13 Oct 92 04:23:27 GMT
Reply-To: Jack.O'keeffe@f26.n129.z1.fidonet.org
Organization: FidoNet node 1:129/26 - SoundingBoard, Pittsburgh PA
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24881

[This is from the Silent Talk Conference]

 BH> I am wondering how much the technology in hearing aids has
 BH> changed in that time period?  Maybe if we are persistent
 BH> someone with more current technology will offer some ideas.

>From the user's standpoint, there has been little if any practical
change in technology.  There's been an obscene lot of technobabble
from the advertising flaks, some of it quite misleading.

Nicolet attempted to market a true digital body aid about three years
ago, but few dealers were willing to invest in the specialized equipment
required to program it.  Earlier this month (9\92) GN Danavox announced
a true digital BTE aid.  I hope it gets a warmer reception than the
Nicolet Phoenix did.

IMHO, our problem is that hearing aid manufacturers do not perceive
hearing aid users as their market.  The manufacturers sell to the
hearing aid dealers, so that is the bunch they cater to - not us.
The dealers are interested in a simple product they can sell quickly for
a huge markup, one that does not require they invest in expensive
fitting equipment.  Until the marketing situation changes, I doubt we
can expect significant technological progress.

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Internet: Jack.O'keeffe@f26.n129.z1.fidonet.org
From: Steve.Brother@p1.f11.n369.z1.fidonet.org (Steve Brother)
Newsgroups: misc.handicap
Subject: Sign References
Date: 13 Oct 92 04:24:08 GMT
Reply-To: Steve.Brother@p1.f11.n369.z1.fidonet.org
Organization: FidoNet node 1:369/11.1 - The Branch Office, Pompano Beach FL
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24886

[This is from the Silent Talk Conference]

JK> you might like to Try the
JK> The Joy Of Signing
JK>By Lottie L. Riekehof
JK> The ISBN# 0-88243-518-3
JK>  Sorry I don't recalled the Price i think it around 20.00
JK>  you can call you local book store I know waldan Books carrie it.
JK>  ( if the have any left.)

There's alot of sign language books out there, but the question is, Do
you want to learn sign or do you want to learn ASL (American Sign
Language) that the Deaf use?

I found the BEST books are:

A Basic Course in American Sign Language
by Tom Humpries and Carol Padden

American Sign Language (four books 3 are student versions, one teacher)
by Dennis Cokely and Charlotte Baker

The "ABC in ASL" book tends to be more on vocabulary but it give the
basics to ASL. "American Sign Language" focuses more on the language
than on the vocabulary. Both are published thru T.J. Publishers, Inc.

 * OLX 2.1 * Hello, I am part number ||#||||#||#||#||

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Internet: Steve.Brother@p1.f11.n369.z1.fidonet.org
From: Becky.Goldberg@f220.n260.z1.fidonet.org (Becky Goldberg)
Newsgroups: misc.handicap
Subject: Parents' Guilt
Date: 15 Oct 92 16:20:45 GMT
Reply-To: Becky.Goldberg@f220.n260.z1.fidonet.org
Organization: FidoNet node 1:260/220 - Exit 47, LeRoy NY
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25033

[This is from the Silent Talk Conference]

-> Hmm, this almost sounds like a thread that would fit real nice in the
-> echo. :)   I'm sure they would tell you that all parents are guilty a
-> something that they feel they didn't do right, and every parent will
-> a different perceived downfall -- your parents may just have the
-> communication idea as their "failure figure".

Even my grandmother told my mom about deaf people a year before I was
born. When she found out that I was deaf, she went to Grandma and ask
for help. She learned alot about it and what to do to help. After what
she learned, she still felt guilty even though it is not her fault since
our deafness is part of heredity. I guess parents may know these stuff
(some of them) but not prepared how they feel.

Becky

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From: mikef@pacifier.rain.com (Mike Freeman)
Newsgroups: misc.handicap
Subject: Re: Braille printer etc.
Date: 7 Oct 92 13:49:44 GMT
Reply-To: mikef@pacifier.rain.com (Mike Freeman)
Organization: Pacifier BBS
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24688

In article <24592@handicap.news> zras0100@nfhsg2.rus.uni-stuttgart.de
(Winfried Specht) writes:
>Index Number: 24592
>
>in the german magazine "Horus" I read an article about the CSUN
>Conference in los angeles.
>
>The author describes in a short way a braille printer produced
>by BLAZIE ENGINEERING. Is there anybody who can send me the address of
>this company. Also I'm interessed of addresses of companies producing
>speach synthezisers and software for working on an PC.
>

Hello.

The address of Blazie Engineering is as follows:

Blazie Engineering
105 East Jarretsville Road
Forest Hill, MD 21250
Telephone (410)893-9333
BBS (410)893-8944
Fax (410)836-5040

The printer is called the BrailleBlazer.

As for speech package lists, try contacting David Andrews via NetMail at
NFBNET BBS, (410)752-5011, Fidonet address 1.261/1125.

Hope this helps.

--
Mike Freeman <K7UIJ>    |       Internet: mikef@pacifier.rain.com
301 N.E. 107th Street   |         or freeman@watsun.cc.columbia.edu
Vancouver, WA 98685 USA |       GEnie: M.FREEMAN11
Telephone (206)574-8221 |       Loose bits sink chips!