HDTenEightyP/NetNews huggingface dataset:
From: dsfs_jpm@LEWIS.UMT.EDU (Jim Marks)
Newsgroups: misc.handicap
Subject: Re: Retinitis pigmentosa
Date: 30 Dec 92 15:31:20 GMT
Reply-To: dsfs_jpm@LEWIS.UMT.EDU (Jim Marks)
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26932

[Note from Bill McGarry - forwarded from the Blind-L mailing list]

In reply to questions about treatment of retinitis
pigmentosa:

Hello,

I have retinitis pigmentosa as do two out of eight
of my siblings.  We have the recessive form of the
disease.  One of my brothers has been involved in a
study of a drug which retards the progress of the
degeneration.  He has been involved in the program
since the mid 1980's.  It seems to be working
because he is still driving and I am a cane
traveler, yet we are only one year apart in age.
The place administering the study is in Boston, Ma,
at the Boston Eye and Ear Infirmary.  The results
of the study have not yet been released, but will
be soon.  My brother does not even know what it is
he has been taking all these years.  In addition to
the drug study the Infirmary has been identifying
the genes which cause RP.  It is likely that they
have identified, for the first time, a recessive
gene evidenced by members of my family.  This
information will lead to further treatments.  It is
my understanding that some identification and
treatment for dominant strains of RP have already
begun.  I am not sure what is entailed.

Now I would like to conclude with a question of my
own.  I haveID heard that RP does cause greater
incidents of cataracts.  Does anyone know if this
is true?

Jim Marks
(406) 243-2243 (Voice/Text)
InterNet DSFS_JPM@LEWIS.UMT.EDU
From: 34AEJ7D@cmuvm.csv.cmich.edu (Bill Gorman)
Newsgroups: misc.handicap
Subject: Medical Marijuana: Is There Light at the End of Bush?
Date: 22 Dec 92 16:46:18 GMT
Reply-To: 34AEJ7D@cmuvm.csv.cmich.edu (Bill Gorman)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26878

Below are two items which may be of interest to anyone dealing with any
of the several medical problems for which cannibis (marijuana) is said
to be effective.

W. K. (Bill) Gorman <34aej7d@cmuvm.csv.cmich.edu>

------------------------------

|subject: Surgeon Gen Backs Med MJ
|Date: 20 Dec 92 16:51:00 GMT
|Nf-From: cdp.UUCP!insthemp    Dec 20 08:51:00 1992
|
|
|
|****FLASH********FLASH*********FLASH********
|
|
|****  NEW SURGEON GENERAL BACKS  ****
|****     MEDICAL MARIJUANA       ****
|
|DEC 20,1992
|
|
|CNN Headline News reported today that Clinton's Surgeon General appointee
|has stated that she will back the use of marijuana as a medicine.
|
|In a televised quote the New S.G. stated that marijuana was benifical to
|thse who suffer from glaucoma, aids, and Cancer treatments.
|
|-------------------------------------------------------
|
|subject: Medicinal marijuana?
|Date: 20 Dec 92 21:21:36 GMT
|Sender: session@seq.uncwil.edu (Zack C. Sessions)
|
|
|By Next Surgeon General
|
|Masijuana and condoms backed [talk about your misleading headlines!]
|
|Little Rock, Ark. -- President-elect Clinton's choice for U.S. surgeon
|general said Saturday shw will advocate the medicinal use of marijuana,
|and will support distributing condoms from high-school based health
|clinics around the country.
|
|If physicians feel marijuana "would be beneficial for use by the patient ...
|it should be available," said Dr. Joycelyn Elders, director of the
|Arkansas Health Department.
|
|Federal law bars the use of marijuana as medicine.
|
|Dr. Elders, 59, a Little Rock pediatrician, has battle conservative groups
|in Arkansas by promoting the distribution of contraceptives at school-based
|health clinics to combat AIDS and teen-aged pregnancy.
|
|[Sunday Star News, Wilmington, NC, Sunday, December 20, 1992]
|
|Reproduced without commercial intent
|under the "fair use" provisions
|of copyright law.
|
|
|- --
|Zack Sessions
|sessions@seq.uncwil.edu
|University of North Carolina at Wilmington (Alumnus)
|"Good health is merely the slowest form of dying."
|
From: rdietz@nyx.cs.du.edu (Randy Dietz)
Newsgroups: misc.handicap
Subject: hearing aid feedback squelch?
Date: 30 Dec 92 15:28:49 GMT
Reply-To: rdietz@nyx.cs.du.edu (Randy Dietz)
Organization: Nyx, Public Access Unix @ U. of Denver Math/CS dept.
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26918

Hello All, I'm trying to find out if there are any hearing aids
that don't screech when the ear is bumped.  My 10 year old Starkey
in-ear model is a pain when trying to talk to someone while laying
down.  Please email or post any info.

Regards, Randy
From: cyanosis@igc.apc.org (Bill Scarborough)
Newsgroups: misc.handicap
Subject: Re: Disabled Homeless
Date: 30 Dec 92 15:28:40 GMT
Reply-To: cyanosis@igc.apc.org (Bill Scarborough)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26917

     For those who want e-mail addresses:
     Send responses in care of me (Jo Ann's computer is temporarily
down.)
     CompuServe: 71621,3206
     GEnie: SCARBOROUGH
     Prodigy: KDBT81A
     FidoNet: c/o The River City Mailbox B B S, 1:382/4
     Internet: cyanosis@igc.org
From: patth@panix.com (Patt Bromberger)
Newsgroups: misc.handicap
Subject: Re: Talking Books, Electronic Text Books, etc.
Keywords: Study Aids
Date: 30 Dec 92 15:29:48 GMT
Reply-To: patth@panix.com (Patt Bromberger)
Organization: PANIX Public Access Unix & Internet, NYC
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26924

In article <1992Dec27.215124.20616@nmsu.edu> nmcb@dante.nmsu.edu
(Yolanda Thompson) writes:
>In article <1992Dec27.160129.8905@panix.com> patth@panix.com
(Patt Bromberger) writes:
>>Just wondering, for those who are attending classes, which textbooks
>>you are using, how do you get them translated into braille or
>>electronic text (scanner?) or do you use a human reader instead.
>>
>>Is anyone using a closed circuit television set to magnify text in
>>regular text books?
>>
>>Does anyone have any experience ordering textbooks from Recording For
>>The Blind in Princeton, New Jersey or any of their other offices?
>>
>> [deleted]
>
>  Well, being a rehabilitation counselor, I can answer yes to all of
>the questions...I have students using CCTV's, students using RFB, and
>students using readers...Here's a little we've discovered about each..
>
[remainder of quote deleted]
>  Hope this helps...

Yolanda, thanks for answering almost all of my questions.  I wonder
what the general reaction would be to electronic text books - books
you can actually read online or have a voice synthesizer read for
your, as a blind student, or even a physically challenged student who
can't turn pages very well, etc.

Publishers would already have the books in electronic text form,
wouldn't they - they have to be transmitted to the printer, after all,
so why not make the e-text versions available for those who need them?

Especially with the funding cut backs for libraries, it seems to me
that computerized books and their availability might be another source
for delivery of study material so necessary for students who need
alternate means of accessing information.

Any thoughts and opinions appreciated.

--
Patricia Ann Bromberger                            patth@panix.com
This quote borrowed from: Gary.Petraccaro@f12.n2610.z1.fidonet.org
... "It matters not so much what you sing, but why..." J.S. Bach
From: Karol.Fabian@UAKOM.CS (Karol Fabian)
Newsgroups: misc.handicap
Subject: Retinitis pigmentosa
Date: 30 Dec 92 15:29:21 GMT
Reply-To: Karol.Fabian@UAKOM.CS (Karol Fabian)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26921

[Forwarded from the Blind-L mailing list]

Hi,
does anybody know something new with treatment of
retinitis pigmentosa. Please let me know on my e-mail
adress :
fabianova@uakom.cs

Eleonora Fabianova M.D.
Banska Bystrica
Czechoslovakia
From: 34AEJ7D@cmuvm.csv.cmich.edu (Bill Gorman)
Newsgroups: misc.handicap
Subject: DOT attacks ADA
Date: 30 Dec 92 15:32:00 GMT
Reply-To: 34AEJ7D@cmuvm.csv.cmich.edu (Bill Gorman)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26936

The US Dept. of Tramsportation (DOT) appears to be proposing rules
which would deny the use of bus/van lifts to many disABLED persons
under the guise of "safety". I don't have a scanner available
and I'm not going to type in four pages of info, but the gist of it
seems to be that only WHEELCHAIRS are to be allowed on these lifts.
No walkers, no scooters, no ambulatory mobility impaired, nothing.

THE COMMENT PERIOD ENDS JAN. 19, 1993 according to my information.

If this is of concern to you, I suggest you message the DOT and your
congresscritters Real Soon Now.

W. K. (Bill) Gorman <34AEJ7D@CMUVM.CSV.CMICH.EDU>
From: patrick.lirou@irit.fr (Patrick Lirou)
Newsgroups: misc.handicap
Subject: french speech with SoundBlaster card
Date: 22 Dec 92 16:46:43 GMT
Reply-To: patrick.lirou@irit.fr (Patrick Lirou)
Organization: IRIT-UPS, Toulouse France
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26879

I'm using SmooothTalker, a text to speech driver manufactured by
First Byte, with a SoundBlaster card.

I'm looking for a version producing french speech or an equivalent
product.

Who can help?

--
Patrick LIROU               UUCP: lirou@irit (...!mcsun!inria!irit!lirou)
INTERNET: lirou@irit.fr
From: rhgattis@uccs.edu (Master Bob)
Newsgroups: misc.handicap
Subject: Call for Interest in Software Field Evaluation
Date: 22 Dec 92 16:23:50 GMT
Reply-To: rhgattis@uccs.edu (Master Bob)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26876

[Forwarded from the EASI mailing list]

Call for Interest:

Meeting the Challenge, Inc. is interested in hearing from persons
and institutions who would be willing to participate in a field
evaluation of software developed for an NSF-sponsored project. The
evaluation would be in the Fall of 1993, from about August 93
through Nov 1993.

The evaluation would involve hosting a beta version of our software
on a 386 class PC, running Windows, and using the system to
identify appropriate accommodations for students with
disabilities.  While the evaluation plan is not designed yet, we
expect to gather information from the participants on the value of
the system in identifying appropriate accommodations in a variety
of situations.

We are most interested in gathering a diverse group of evaluators
from a wide spectrum of educational institutions.  For example, in
the current project, we are working with a 2 year community college
and a four year state university in our local area.  What we are
seeking is to expand the evaluation group to include:

- persons who are very familiar (expert !?) in determining the
needs of students with disabilities and identifying appropriate
accommodations (both assistive technology and other forms of
accommodations).

- persons who are unfamiliar with determining the needs of students
with disabilities and identifying accommodations, but end up doing
it anyway.

- educational institutions with a strong science and engineering
curriculum who deal with issues of providing computer access to
students with disabilities.

We are contacting some institutions directly, ones that we know fit
these criteria to some extent.  If you are interested in becoming a
test site or simply would like more information about this project,
please send email to me at the following address:

rhgattis@uccs.colorado.edu
From: sbill@informix.com (Bill Stackhouse)
Newsgroups: misc.handicap
Subject: Re: Prostheses
Date: 30 Dec 92 15:29:13 GMT
Reply-To: sbill@informix.com (Bill Stackhouse)
Organization: Informix Software, Inc.
X-Fidonet: Amputee Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26920

One of the biggest prosthetic facilities in the US is Sabolich
(sp?) Prosthetics in Oklahoma City. They have a research facility
and often define the state of the art in prosthetics. Give them a
call and ask for their video tape which covers examples of what
they have done and has many intervies with people that they work
with.

Bill
From: NRCGSH@ritvax.isc.rit.edu (Norm Coombs)
Newsgroups: misc.handicap
Subject: EDUCOM93 Call for papers
Date: 22 Dec 92 16:13:53 GMT
Reply-To: NRCGSH@ritvax.isc.rit.edu (Norm Coombs)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26873

Again I want to encourage our members to dream up proposals for EDUCOM93.
Below is the beginning of the official call for proposals.  If you want the
entire document, sent email to
listserv@bitnic and leave the subject line blank.  The message should be one
line:
get educom93 cfp
and you'll get the whole thing returned to you.

      If you are thinking of submitting a proposal, please keep in touch with
me so we can coordinate and maximize our efforts.  The call specifically
mentioned adaptive aids and disabled students!
Norman Coombs
nrcgsh@ritvax.isc.rit.edu

Call for Proposals

EDUCOM'93
CRAFTING NEW COMMUNITIES

* What constitutes a community?
* How is information technology redefining our traditional notions of
community?
* How will these new tools help us cope with an increasingly complex
society?

This year, the EDUCOM conference focuses on the communities of
tomorrow -- from both social and technological perspectives. As
leaders in higher education, we have both an opportunity and a
responsibility to create new definitions of community that can take
best advantage of leading-edge technologies and bring new levels of
access and new capabilities to individuals. Networks and adaptive
technologies make it possible for people to communicate without
geographic, physical, or temporal restrictions. High-speed processors
create opportunities for visualization of scientific phenomena in ways
not previously possible. Large-scale databases and retrieval
mechanisms enable comparative work in language and literature, in
humanities and business, in the social sciences. And all of these
technologies are changing the way we teach, learn, and communicate
-- changing the communities in which we live and work together.

We invite you to participate actively in the year's most important
conference on information technology in higher education. Between
now and January 15, 1993, we are soliciting proposals for
presentations, discussions, panels, debates, and demonstrations,
especially those concerned with how the notion of community is
changing as a result of technology, the impact of these changes, and
about the specific innovative technologies that are accelerating these
changes. We have defined the following three major thematic areas:
* Encompassing Larger Communities
* Anticipating Change
* Organizing Support
From: patt@SQUID.TRAM.COM (Patt Bromberger)
Newsgroups: misc.handicap
Subject: no more sheltered workshops
Date: 30 Dec 92 15:31:35 GMT
Reply-To: patt@SQUID.TRAM.COM (Patt Bromberger)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26933

Reposted from can.general

--- Forwarded mail from Tom Gray <ci!panix.com!patth>

subject: No More Sheltered Work Shops
Date: 23 Dec 92 14:54:26 GMT
organization: Mitel. Kanata (Ontario). Canada.

The Ontario (NDP) government has announced that it intends to close
all sheltered work shops for the developmentally handicapped (the latest
euphemism for the group which was previously called the mentally
retarded). The government intend to close the work shops in favour
of "community" solutions.

So far the government's actions have been to delete five million from the
budget for work shops and provide two million for "community" services.
The government does not have or intends to provide a defintition of
a "community" service. Instead it expects the "community" to come up with
services which it will fund.

Rumour has it that the NDP government intends to implement the same policy
with the psychiatrically impaired although no such policy has been announced.

Essentially, the policy is to remove the government from services to these
groups and the institution of a new policy of politically correct rhetoric.

--- End of forwarded message from Tom Gray <ci!panix.com!patth>
From: thurlow@convex.com (Robert Thurlow)
Newsgroups: misc.handicap
Subject: Disabled skiing - want info on programs and events
Date: 22 Dec 92 16:16:02 GMT
Reply-To: thurlow@convex.com (Robert Thurlow)
Organization: Engineering, CONVEX Computer Corp., Richardson, Tx., USA
X-Fidonet: Abled Athlete Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26874

I publish a newsletter for the North Texas Amputee Support Group in
Dallas, and this seems a good time of the year to start collecting
information for an article about disabled skiing programs and events
going on throughout North America.  If any of you has any information
about disabled ski programs in your area, or if you are aware of any
disabled skiing events that are planned for this season, I'd love to
hear about it.  If you know of any newsletters or flyers published on
this topic, I'd love to hear that, too.  Anyone sending me material is
welcome to a copy of the article when it's complete.  Thanks in
advance!

Rob T, expatriate Canadian and former disabled skiing instructor.
--
Rob Thurlow, thurlow@convex.com
"Sometimes it feels like the sun just comes up out of habit,
 And goes down as quick as it can,
 These days, you just have to grab it as it goes by."
From: fak9957@RITVAX.ISC.RIT.EDU (Frank Kruppenbacher)
Newsgroups: misc.handicap
Subject: Deaf and Gay Conference
Date: 22 Dec 92 17:01:36 GMT
Reply-To: fak9957@RITVAX.ISC.RIT.EDU (Frank Kruppenbacher)
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26881

[Note from Bill McGarry - forwarded from the DEAF-L mailing list]

                      Learn about being Deaf and Gay

"Deaf,Gay and Lesbian Conference," a weeklong series of activities
sponsored by the Deaprtment of Human Development, Department of
Residence Life and the Liberal Arts Support Department at the
National Technical Institute for the Deaf, one of eight colleges at
the Rochester Institute of Technology will be held January 11-16,
1993.

All presentations will be accessible to deaf and hearing audiences.

Philip Rubin, director of the Deaf Gay and Lesbian Center in San
Francisco and Mr. Deaf International Leather, will be a featured
presentor.

Rubin will present, "Deaf and Gay Cultures...Supported or
Oppressed?" from 7 to 9 p.m. Monday January 11 in RIT's College of
Liberal Arts Building 6 Room A205, and again from 7 to 9 p.m. on
Tuesday January 12, in the Robert F. Panara Theatre in the Lyndon
Baines Johnson building at NTID.

"Gay and Lesbian Cultures: Personal Stories" a panel discussion,
will be held from 4 to 5:30 p.m. on Tuesday January 12 in the
Panara Theatre at NTID.

"Why...Gay?" an NTID Deaf Culture Speaker Series presentation, will
be held from 4 to 5 p.m. on Wednesday January 13 in the Mark
Ellingson Hall dormitory first-floor lounge.

"Coming Out: Gay and Lesbian Empowerment" will be presented from 9
to 11 a.m.  on Thursday January 14 in the Skalny Room of RIT's
Kilian J. and Caroline F.  Schmitt Interfaith Center.  Later the
same day in the same room, Philip Rubin will present, "Deaf Gay and
Lesbians: Discrimination, Empowerment, and Political Action" from
noon to 2:00 p.m..

Rubin will also present "Sensitivity in the Workplace" from 2 to 4
p.m. on Friday January 15 in the Lyndon Baines Johnson Building
room 3635.

For more information, contact Sherlea Dony, (716) 475-6200
voice/text telephone, electronic mail SADDHD@RITVAX.RIT.ISC.EDU, or
by mail at Department of Human Development, National Technical
Institute for the Deaf, Rochester Institute of Technology, One Lomb
Memorial Drive, P.O. Box 9887, Rochester, New York 14623.

fakitv
From: robertj@tekgen.bv.tek.com (Robert Jaquiss)
Newsgroups: misc.handicap
Subject: Re: ADA and technology
Date: 22 Dec 92 16:10:37 GMT
Reply-To: robertj@tekgen.bv.tek.com (Robert Jaquiss)
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26871

[Forwarded from the Blind-L mailing list]

Hello:
     I am responsible for the CD-ROM server used by out corporate library.
Currently we have University Microfilm Inc. ABI/Inform and Dialog eedisc.
I am blind and use an Alva 80 column braille display to do my work.  These
CD-ROMs work well with a braille display.  Hopefully a solution to the MS
Windows problem will come soon.

        Robert Jaquiss

Internet: robertj@tekgen.bv.tek.com
From: mschnitg@magic.prime.com (Monica Schnitger)
Newsgroups: misc.handicap
Subject: Prostheses
Date: 23 Dec 92 20:11:11 GMT
Reply-To: mschnitg@magic.prime.com (Monica Schnitger)
Organization: Computervision, A Prime Computer Company, Bedford, MA, USA
X-Fidonet: Amputee Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26891

Hello out there!

I'm hoping that one of you folks can help: A friend of mine lost
one lower leg (from the knee on down) to cancer last week.  He is
now hunting for a prosthesis that will enable him to return to as
active a life as possible.  He is 24 years old and is very much
afraid that technology has not advanced far enough to enable him to
resume running, basketball and some of the other activities he
enjoys.

We are having a hard time getting information about prosthesis
laboratories who cater to athletes - or even who understand the
problem.  Does anyone out there have information about prosthetic
devices for athletes or know of an athlete who could be contacted
for advice and a referral?

Any help would be appreciated - thank you so much!

		Monica Schnitger
                Computervision Corp.
                201 Burlington Road
                Bedford MA 01740
                (617) 275-1800
From: RBANKS@UWSTOUT.EDU (Dick Banks)
Newsgroups: misc.handicap
Subject: Information Please...
Date: 30 Dec 92 15:26:14 GMT
Reply-To: RBANKS@UWSTOUT.EDU (Dick Banks)
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 26906

Hello Everyone

First, I would like to wish all of you a blessed
holiday season.

I would like some help from you.  I have taken an assistantship
with a professor Voc Rehab here at Stout.  The purpose of the
position is to develop a computer assisted, self-paced ADA
course for undergraduates.

I have a great deal of information about the law and
regulations.  I need help in the area of case law.  The who,
what, where and when of how the law has been tested would be
essential to such a course.

I don't know that other here would be interested in this query,
so you could write me personally at the addresses above or post
here.

Thank you all in advance.

Dick Banks
_________________________________________________________________

Dick Banks                                 A          TTTTTTTTT
Adaptive Technologist                     A A             T
Library Learning Center                  A   A            T
University of Wisconsin-Stout           AAAAAAA           T
INTERNET  rbanks@uwstout.edu           A       A          T
BITNET    rbanks@uwstout              A         A         T

Dedicated to the empowerment of the specail needs
population through the use of Adaptive Technology.
_________________________________________________________________