Newsgroups: bit.listserv.cfs.newsletter
Date:         Tue, 29 Dec 1992 19:58:27 EST
              <CFS-NEWS@NIHLIST.BITNET>
From:         CFS-NEWS Electronic Newsletter <BFU@NIHCU.BITNET>
Subject:      #11 INDEX OF CFS-NEWS ARTICLES FOR 1992

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            Chronic Fatigue Syndrome Electronic Newsletter

 --------------------------------------------------------------------
 No. 11                   December 29, 1992             Washington DC
 --------------------------------------------------------------------

                       CFS-NEWS INDEX FOR 1992

        CONTENTS

 >>>1.  Index of CFS-NEWS articles for 1992
 >>>2.  Where to find the latest edition, & back issues, of CFS-NEWS
 >>>3.  Summary of other resources for CFS & electronic networks

The "network access" section of the CFS Resource file has undergone a
major revision.  Instructions on how to access the file, and a
summary of the new information, appear in article >3 below.

Contributions of news items and suggestions for CFS-NEWS are welcome
and may be sent to the editor, Roger Burns, 2800 Quebec St. NW #1242,
Washington DC 20008.  Mr. Burns can be reached by telephone at 1-202-
966-8738.  Also, electronic addresses where the editor can be reached
are described below in the standard end-message.

------------------------------------

 >>>1.  Index of CFS-NEWS articles for 1992

 #1  August 22, 1992
    >1.  Purpose of newsletter
    >2.  News update  [Nightingale medical textbook; CFS clinical &
         research conferences at Albany NY, Oct. 2-4]

 #2  August 23, 1992
    >1.  Summary of program of October conference.

 #3  August 31, 1992
    >1.  CFS/ME Medical Journal to be published
    >2.  Drug tested in New South Wales
    >3.  Drug tested in Alberta
    >4.  Medical publications summary
    >5.  Media: CNN report on CFS in September

 #4  September 5, 1992
    >1.  CFS/ME Medical Encyclopedia is published
    >2.  USA Report:  U.S. Gov't seizes Primrose Oil

 #5  October 7, 1992
    >1.  Summaries of Albany conference
    >2.  Publications update  [Sept. CFIDS Chronicle; Newsweek ICL
         story appeared Sept. 7]

 #6  October 18, 1992
    >1.  Reports from British Assoc. for the Advancement of Science
    >2.  Medical publications update
    >3.  CFIDS Chronicle:  September issue

 #7  October 20, 1992
    >1.  Book: "Review of Mainstream CFIDS Research in the USA
                  1990 through June 1992"
    >2.  New publication by and for patients  ["The Link"]
    >3.  CFS-NEWS seeking link to USENET

 #8  October 30, 1992
    >1.  Booklet for physicians from Nightingale Foundation
    >2.  CFS discussion and information on GEnie computer service
    >3.  Another printing of "CFIDS: An Owner's Manual"
    >4.  CFS-NEWS linked to a USENET newsgroup

 #9  November 7, 1992
    >1.  Ampligen study takes next step  [FDA approves further trials
         in USA]
    >2.  Promote the textbook; price discount for patients
         [Nightingale medical textbook]
    >3.  Publication policy updates  [Nightingale pamphlet at lower
         cost]

 #10  December 10, 1992
    >1.  Ampligen in Canada  [limited distribution for severe CFS/ME
         cases; also, research trials in Canada approved]
    >2.  Health policy talks with Clinton transition team  [by
         representatives of CFIDS Association ]
    >3.  Delay in Alberta drug study
    >4.  Medical publications update

 #11  December 30, 1992
    >1.  Index of CFS-NEWS articles for 1992
    >2.  Where to find the latest edition, & back issues, of CFS-NEWS
         [on Internet, Fidonet, various BBSs and commercial networks]
    >3.  Summary of other resources for CFS & electronic networks
         [the CFS-RES.TXT resource file; access to Fidonet and
         Internet]


 -=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-

 >>>2.  Where to find the latest edition, & back issues, of CFS-NEWS

People copy CFS-NEWS to many BBSs and other computer systems;
however, to obtain CFS-NEWS in the speediest fashion you may note
that the editor personally transmits the newsletter by 4 means:

  1) Internet e-mail, by subscription.  If you have Internet access
(available through gov't, research & university offices) type in the
command SUB CFS-NEWS <your> <name>, where your name replaces <your>
<name>, and e-mail it to the Internet address LISTSERV@LIST.NIH.GOV
or to LISTSERV@NIHLIST.BITNET .  If you're seeking Internet access
(it may be expensive) read article >>>3 below.

  2) it is posted as a message to the CFS "echo" (i.e., electronic
discussion group) available on Fidonet BBSs.  To find a Fidonet BBS
that currently carries the CFS echo, call the Project ENABLE BBS at
tel. 1-304-766-7842 and download the file CFS-BBS.TXT.  The current
CFS echo list is also contained within the CFS-RES.TXT file (on
Internet the filename is RESOURCE) which is described in the next
article.  The file also contains advice on finding Fidonet BBSs near
to you so that you may request that they carry the CFS echo.

  3) it is uploaded to the USA CFIDS/CFS BBS at tel. 1-207-623-8486
in file area H.  (Back issues in that same file area.)

  4) it is posted to USENET newsgroup bit.listserv.cfs.newsletter.
Newsgroups are available on many BBSs and mainframe computers.

For back issues, note the following:

  - on Internet, back issues are grouped by month.  Type the command
GET CFS-NEWS LOG* (where * represents a particular month in YYMM
format, e.g., 1992 August would be LOG9208) and send it to
LISTSERV@LIST.NIH.GOV or to LISTSERV@NIHLIST.BITNET .

  - on the USA CFIDS/CFS BBS in file area H, as is the latest issue.

  - on the CFS echo or USENET newsgroup, check previous messages.

  - back issues can be found on Compuserve in forums GOODHEALTH,
MEDSIG and DISABILITIES.  Also on GEnie on page 970, Category 18,
file area 11.  And on the Tucson CFS BBS at tel. 1-602-790-7420.


 -=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-

 >>>3.  Summary of other resources for CFS & electronic networks

A. The CFS Resource file (CFS-RES.TXT).  This file contains basic
references to many kinds of CFS information.  There are sections on:
CFS -- Information and Networking; What is Chronic Fatigue Syndrome?;
Support Groups; Periodicals and Books; Sources of Electronic
Information; BBSs which carry the CFS Conference; Access to Internet,
USENET and Fidonet.

Obtain the file as filename CFS-RES.TXT from the USA CFIDS/CFS BBS at
tel. 1-207-623-8486 in file area H.  On the Internet the file is
retrievable as filename RESOURCE.  It is on the NIH file server,
which operates differently than the LISTSERV described earlier.  To
obtain the file, type the command GET FTP CFS.RESOURCE in the Subject
heading of an e-mail message (note: the message text is ignored).
Send the e-mail to the Internet address SERVER@CU.NIH.GOV or to
SERVER@NIHCU.BITNET .  Internet users may also use anonymous FTP to
cu.nih.gov or 128.231.64.7, password=guest, directory=CFS,
filename=RESOURCE .

B. Fidonet access.  If you don't have a nearby BBS which carries the
CFS "echo" but would like to have local access, ask Fidonet BBSs near
to you to please carry the "echo".  If you don't know of Fidonet BBSs
nearby to you, consider one of the following alternatives: 1) Get a
copy of the Handicap BBS file and find the Fidonet BBS nearest to
you.  In the file, the Fidonet BBSs will be those which are
accompanied by designations like (123/456).  The file can be found on
the Handicap News BBS at 1-203-337-1607, filename HCAPBBS.LST or
*.ZIP.  On the Internet, send an email message with the subject GET
FTP CFS.HANDICAP.BBS-LIST to the address server@cu.nih.gov .

Alternatively, for access outside of North America obtain the
Resource file (CFS-RES.TXT) described above, dial up one of the
Fidonet coordinators listed there in section 7, and leave a message
for "SYSOP" requesting a list of the Fidonet BBSs nearest you
(mention your city and state/province).  Within North America you may
contact one of Fidonet's regional coordinators as follows: Tustin, CA
1-714-838-6539; Columbus, OH 1-614-841-0355; Windsor, ON 1-519-250-
8414; Fairfax, VA 1-703-323-7654; Joplin MO 1-417-673-2283; Phoenix,
AZ 1-602-894-8762; Danbury, CT 1-203-791-8532; Surrey, BC  1-604-584-
9811; Titusville, FL 1-407-383-1372; Houston, TX 1-713-496-6319.

C. Internet access.  Several commercial services offer e-mail access
to the Internet.  They include: CompuServe (to join in North America
call 1-800-848-8199, overseas call 1-614-457-0802 at Ohio, USA or
call toll-free in Australia 008025240, New Zealand 0800446113, U.K.
0800289378, or Germany 01303732; GENIE computer service (call
1-800-638-9636); AMERICA ON-LINE (tel. 1-800-827-6364); MCI-MAIL (in
USA call 1-800-444-6245, elsewhere call 1-202-833-8484 in Washington,
DC or in the UK call 44-71-9281232 or in Germany call 49-89-4313071.

UNIX NODES offer connectivity to USENET newsgroups, and some give
access to Internet.  Most charge user fees.  There are too many
access nodes to describe here; the PDIAL file gives descriptions and
cost comparisons; the NIXPUB file has many more items but doesn't
show costs.  Get the PDIAL file from the Project ENABLE BBS at
1-304-776-7842 as filename PDIAL.TXT.  On Internet, send email with
the subject "Send PDIAL" to the address info-deli-server@netcom.com .
The NIXPUB file comes in 2 versions, long and short (1-line
descriptions).  They are available from the UNIX DEPOT BBS (7 bits,
even parity) at 1-215-348-9727; login as nuucp, enter the BBS
service, filenames /usr/spool/uucppublic/nixpub and *.short .  On the
Internet, send mail with the message text containing "get PUB nixpub"
or "get PUB nixpub.short" to mail-server@bts.com.


 ===================================================================
   CFS-NEWS (ISSN 1066-8152) is an independent newsletter edited
   by Roger Burns in Washington D.C. and is distributed on the
   Fidonet CFS echo, on Internet, and through the USENET Newsgroup
   bit.listserv.cfs.newsletter.  Back issues are on file on the
   CFIDS/CFS BBS in Maine USA at telephone 1-207-623-8486 in file
   area H.  Suggestions and contributions of news may be sent via
   Internet to CFS-NEWS@LIST.NIH.GOV, or via Fido NetMail to
   CFS-NEWS at 1:109/432, or post a message to the CFS echo or to
   newsgroup alt.med.cfs.  Patients should read the resource file
   CFS-RES.TXT available on the BBS mentioned above and elsewhere.
   Copyright (c) 1992 by Roger Burns.  Permission is granted to
   excerpt this document if the source (CFS-NEWS) is cited.
   Permission is also granted to reproduce the entirety of this
   document unaltered.  This notice does not diminish the rights
   of others whose copyrighted material as so noted may be quoted
   herein.  Note that Fido and Fidonet are registered marks of Tom
   Jennings and Fido Software.
 ===================================================================

INTERNET users are encouraged to obtain the RESOURCE file and other
CFS files at the NIH file server.  To obtain the resource file, send
Internet e-mail to the address SERVER@CU.NIH.GOV with the subject
line GET FTP CFS.RESOURCE (the message text is ignored).  Or log in
via anonymous ftp to cu.nih.gov or 128.134.64.7 with password=guest,
directory=CFS, filename=RESOURCE.  Distribution of CFS-NEWS on the
Internet is sponsored by the NIH Computing Utility; however, this
independent newsletter does not represent the views of the National
Institutes of Health.  To subscribe, send the command SUB CFS-NEWS
<your> <name> to the address LISTSERV@NIHLIST.BITNET or @LIST.NIH.GOV
For back issues send the command INDEX CFS-NEWS to the LISTSERV
address above and thereafter use the command GET <filename> to
retrieve one of the monthly logs.
=====================================================================
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU