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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Tue, 13 Oct 1992 02:00:04 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2967

                             THE HANDICAP DIGEST

                                 Issue # 2967

                          Tuesday, October 13, 1992

Today's Topics:


                                ******


                                  Roll-Aid
                                  Re: HELLO
                                  Re: HELLO
                               New Wheelchair
                                  Re: Meds
                                   Survey
                            Re: wheelchair lifts
                                   spasms
                           HEARING AIDS & WHATEVER
                             Re: On Signing....


                                ******


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Subject: Roll-Aid
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

In a missive of <Sep 29 19:04> John Lynch (1:261/1000)
writes to All:

 JL> Any one have or know about a product called Roll-Aid what allows
 JL> you to add a tempory motor unit under your chair, and remove it
 JL> in 10 sec.  Vidio sounds great, but Stand-Aid of Iowa only sells
 JL> direct and the people who have them in the Baltimore area will
 JL> not contact me.  All info greatly appreciated.

Call Chesapeake Rehab (number's 410-298-4555, located in Woodlawn)
and ask if they know anything about it. *adh*

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.org




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Subject: Re: HELLO
From: Frank.Whitney@f1000.n261.z1.fidonet.org (Frank Whitney)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

JL>She did have some strange ideas.  Didn't she say that
JL>breaking her neck was a gift from God, or something of the

Well, as I said she has some rather strange ideas!

JL>sort.  The girl really has faith way above mine.  I believe
JL>in God, but not paraplegic as a agift.  I do get frustrated
JL>at times and ask Him what he wants of me if I am to be a
JL>paraplegic.

I believe that we all do as you do.  I know that I do.  I would never
look on my being a quadriplegic as a gift and I don't believe that many
other quadriplegic or any other diseased person would say that in 99% of
the time.

JL>Didn't I read that she has a child or two.

Yes, I believe that she does have children.  I don't really follow her
that much so I'm not really much of an authority on her.  I do know that
she apparently got quite a large settlement from where she sustain
d her injury.  Also with some of the things that she has done
such as her movie I believe that Billy Graham industries was
behind her. Now I have nothing against Billy Graham, in fact, I
believe that he is probably one of the few people that I believe
honestly is legit.
Frank.
___
 X SLMR 2.1a X This message was produced using speech technology

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Internet: Frank.Whitney@f1000.n261.z1.fidonet.org




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Subject: Re: HELLO
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

In a missive of <Sep 30 18:19> Frank Whitney (1:261/1000)
writes to John Lynch:

JL>>sort.  The girl really has faith way above mine.  I believe
JL>>in God, but not paraplegic as a agift.  I do get frustrated
JL>>at times and ask Him what he wants of me if I am to be a
JL>>paraplegic.

 FW> I believe that we all do as you do.  I know that I do.  I would
 FW> never look on my being a quadriplegic as a gift and I don't
 FW> believe that many other quadriplegic or any other diseased
 FW> person would say that in 99% of the time.

Read "When Bad Things Happen To Good People".  Even a non-religious
person like me found it interesting.  Someone with more faith than
me who questions why their God would inflict such trouble on them
may derive comfort from the theories of the author (a rabbi, but I
don't recall whether he was Orthodox).  *adh*

P.S.  Quadriplegia is no gift.  Quadriplegia with pain is hell on
earth.  Dependence and discomfort - what a combination!

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.org




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Subject: New Wheelchair
From: Adrienne.Barhydt@p15.f48.n105.z1.fidonet.org (Adrienne Barhydt)
Organization: FidoNet node 1:105/48.15 - Jim Long's Computer, Portland OR


[This is from the Spinal Injury Conference]

As of yesterday I am the proud owner of a Quickie P300!  It was
kind of intimidating at first, but I'm getting along better with it
today <grin>.  This afternoon Whitebread and Pepper, our cats, both
jumped up on my lap (not at the same time!) so if they think the
chair's okay, then it is.  I got a Jay cushion and back and still
need to see my PT to see if they need any of those wedge gizmos
stuck on but so far I'm pretty comfortable.

It's interesting.  I feel like the way I move in it is a lot more
natural than with the scooter, for small things like turning a
little to face someone I'm talking with.  Also, I like not having
all that hardware in front of me.  I feel more like *I* am moving
rather than driving a vehicle.  Has anyone else experienced this?
All in all, I'm pretty pleased.

Adrienne

--
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Internet: Adrienne.Barhydt@p15.f48.n105.z1.fidonet.org




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Subject: Re: Meds
From: Adrienne.Barhydt@p15.f48.n105.z1.fidonet.org (Adrienne Barhydt)
Organization: FidoNet node 1:105/48.15 - Jim Long's Computer, Portland OR


[This is from the Spinal Injury Conference]

On Sun, Sep 27 Allison Cozzi (1:161/3216) wrote the following to Keith Jones:

->  Narcotics are great and work very well for ACUTE pains but are
->  considered taboo nowadays by most of the up-to-date medical
->  establishment for people with CHRONIC pain for the reason you just
->  mentioned.

 AC>      I'm afraid that we disagree on this subject. The field of
 AC>chronic
 AC>pain management has changed drastically in the past twenty years
 AC>and
 AC>there are varying schools of thought within the field. I am also

Thanks for the good post.  I read an article that made the same points a few
years ago and it had a strong impression on me.  I don't have pain but I am
aware of the possibilities of marijuana for spasticity and established
effectiveness for other serious conditions.  This "war on drugs" has turned
into a lot of b*llsh*t when it prevents people from getting the treatment they
need to make life worth living.

Adrienne

--
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Internet: Adrienne.Barhydt@p15.f48.n105.z1.fidonet.org




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Subject: Survey
From: Derek.Juntunen@f950.n139.z1.fidonet.org (Derek Juntunen)
Organization: FidoNet node 1:139/950 - Amiga BitSwap Centr, Houghton MI


[This is from the Spinal Injury Conference]

My sister is doing a paper for college on people with spinal
injuries.  I know you probrably hate these kind of questions (I do)
but please take the time to answer them.  Thanks alot!!

Do you feel you are less emotional now than the first year follow
the injury?

Do you feel you have noticed that your emotional excitability has
decreased since your injury?

What has benifitted you since your injury?

What is your injury level?

What was the date on which your injury occured?

What is your age?

THANK YOU SO MUCH!!!

--
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Internet: Derek.Juntunen@f950.n139.z1.fidonet.org




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Subject: Re: wheelchair lifts
From: Jeffrey.Vandyke@f14.n279.z1.fidonet.org (Jeffrey Vandyke)
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV


[This is from the Spinal Injury Conference]

KJ> JV>  Ricon also has had a new line out now that I like A LOT. It's their
KJ> JV> steel hydraulic line, and if I ever get a new one, it'll be that one.

KJ> prefer the Ricon I had on my last van. Lighter and also sits flat on
KJ> the ground. Brauns are heavier and have a big lip up to get on. Was
KJ> told Braun has a faster cycle. Goes up faster but in much slower. For
KJ> speed, they're about equal. Funny thing is I had all kinds of problems
KJ> with a leaking hydraulic system in my Braun. Guess there are problems
KJ> with all. Curious about the Ricon you mention.

  Keith, the Brauns I have been on were at least twice as fast going
up and down, but did have a problem getting started going up with
a big load. Don't remember if they ever had a problem with the
hydraulics, though. The speed IS nice when its pouring rain!
  You're right about the aluminum Ricons. Easier to get on them
in the winter when there's no bump up. Their hydraulic units DO
have a bump, though. I don't know how to describe the units, except
to say to call them and ask for a brochure. There is (if I recall
correctly) a 2000 series for regular vans, and a 1000 series for
buses. They look REAL nice.
                      -- Jeff

 * SLMR 2.1a * My other wheelchair is a Sherman tank >>>>>>>>

--
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Internet: Jeffrey.Vandyke@f14.n279.z1.fidonet.org




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Subject: spasms
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

Life sucks these days (more than usual).  Not only do I have my
%$#@^ pains  and posture problems to deal with (making using my
arms difficult), I also am occasionally having spasms in my abdomen
and back.  I'm tight as a drum, and the docs have no idea what
medication to give me to either relieve my pain, loosen my muscles,
or both.  I know that marijuana works in the muscle-relaxing
department, but I'm not getting any of that despite extreme
doctor-nagging on my part.  I'm getting awfully tired of all this
crap.  *adh*

P.S.  Anything new on the drug GM1-ganglioside in treating acute
and chronic SCI?

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.org




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Subject: HEARING AIDS & WHATEVER
From: FELIX.GAME@f125.n163.z1.fidonet.org (FELIX GAME)
Organization: FidoNet node 1:163/125 - FedNet Public Acces, Ottawa ON


[This is from the Silent Talk Conference]

 On 09-04-92 VIXEN wrote...
Hello Vixen,

 V >  A question; are there not some companies who do make hearing aids
 V >  that are more sound and speech selective these past couple of years?
        From my most recent eperience (last six months) I would have
        to say NO. The only innovation I became privy to, was a
        SMALLER aid by Widex. The other innovation was a computer
        program that the audiologist followed with a vengenace. If I
        wanted to be very cynical, I'd say it is reminiscent of the
        game "submarine". You pick a coordinate and fire. Here the
        audiologist "plots" the desired graph of the new aid. From
        then pon the graph becomes the Holy Grail. My problem is, that
        I have worked for 25 years with computers and have been the
        "boss" of some 40 analysts and programmers. So my first
        question is "how do you know that those coordinates are
        correct?" To which the innocent, and very lovely young
        audiologist replies, that "the program wants it that way". You
        can imagine the level of confidence that left me with. The
        point is that in fact the aid was less effective after it had
        been put through this "programmed" customization. I went home,
        got out my tiny screw driver, my personal graph, and the
        brochure I was given with the new aid, and I fixed it so it
        did me the most good.

 V >  Also, in the meantime, have you considered using something like my
 V >  TELEX remote FM system to help you with selective speech and sound
 V >  problems? I have found it useful in helping me to cope with
 V >  situations that would otherwise be impossible for me.

        No, I have not tried TELEX. For some reason, it is a closely
        guarded secret here. This is the first time I 'hear' of it.
        However, in my present situation (early reiteriment) I have no
        real neeed for it. I f you want me to shock you, I will
        confess to having developed a certain HoH assertiveness. I no
        longer feel obligated to listen to everything people have to
        say. I have been known to deliberately, and obviously pull my
        hearing aid OUT while someone was rambling on, and on about
        something only of interest to him/her.

 V >  As it applies to your feelings and what you want to say and what
 V >  you would like to discuss...never.

        Thanks for that. As ong as there is one area for misbehaving
        <g> I can hack the rest of the discipline.

 V >  Of course, one must realize that there are things that SilentTalk is
 V >  not. It is not a physician. It is not a political or external
 V >  activist body or organization. It is not a place where all questions
 V >  are guaranteed an exact or correct answer (If there is an answer at
 V >  all.) It is not an advisory board and it is not a place where we can
 V >  expect to find solutions to all problems, whether hearing related or
 V >  otherwise. Still, considering the above paragraph, SilentTalk is
 V >  quite a gem.

        This is the best answer anyone could have given me. It also
        put the finger right on the pulse; I am afraid I was beeing
        too demanding of the echo. I sort of wanted it to be
        everything. This sure straightened me out on that. Thanks for
        keeping me honest in this regard. It does beg a question
        though, where would we go if in need of a political activist
        body? It is not really my style, but in this arena, I could
        almost see myself playing a role. (The arena being the HoH
        people [consumers] v/s the service industry consisting of one
        segment of the medical profession, plus the groupies that want
        to have a slice of the pie at our expense).

<felix>

... OFFLINE 1.32
 * SLQWiK 1.02.d #UNREGISTERED

--
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Internet: FELIX.GAME@f125.n163.z1.fidonet.org




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Subject: Re: On Signing....
From: Ann.Stalnaker@f2120.n124.z1.fidonet.org (Ann Stalnaker)
Organization: FidoNet node 1:124/2120 - Fingers Talk, Irving TX


[This is from the Silent Talk Conference]

 CC> I fully understand what your saying.  Took ASL-1 and
 CC> English 101 as a first year college student, quite an experince
 CC> to say the least.  Most of the deaf students have one heck of a
 CC> time getting through the English classes, and after taking ASL
 CC> I can understand why.  I was lucky I didn't start losing my
 CC> hearing until after High school, still going back to school at
 CC> 52 even using a Phonic-Ear, English is not one of the easier
 CC> subjects.  The deaf do need a lot more help in their younger
 CC> years.

I agree English is a very difficult language but I've always enjoyed
it.  Even though I was born profoundly deaf, I've never needed to
use ASL/SEE/PSE as I've always been able to communicate orally.

I think the younger the deaf children are, the easier it is for
them to learn English.  Many of the public schools nowadays are
starting classes for deaf pre-schoolers in hopes of them learning
English before they go into the 1st grade.  I do feel they should
be given a first shot at oralism and go with SEE/PSE if needed.

--
Uucp: ..!uunet!bunker!hcap!hnews!124!2120!Ann.Stalnaker
Internet: Ann.Stalnaker@f2120.n124.z1.fidonet.org




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                  End of Issue # 2967 of the Handicap Digest

                                ******
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