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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Thu, 17 Dec 1992 17:17:43 EST
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 3071

                             THE HANDICAP DIGEST

                                 Issue # 3071

                         Thursday, December 17, 1992

Today's Topics:


                                ******


                              Re: Sweet cheeks
                               Christmas Need
                                Re: armrests
                                   Stories
                                  Comebacks
                               Little Big Horn
                                Re: armrests
                        Re: Voice activated telephone
                              Need Information
                              Whitmores Disease


                                ******


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                              Bill McGarry (Moderator)
                              (203) 337-1518



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Subject: Re: Sweet cheeks
From: Patti.Bader@p0.f323.n202.z1.fidonet.org (Patti Bader)
Organization: FidoNet node 1:202/323.0 - SHENK'S EXPRESS, La Mesa


 -=> Quoting Alan Hess to Tim Syfert <=-

Hi Alan!

 AH> In a missive of <Nov 27 16:31> Tim Syfert (1:114/119)
 AH> writes to Alan Hess:

 AH> Both sores were caused by air mattress failures - I sleep on my back,
 AH> and have no problems when the mattress works.  When it leaks, or the
 AH> pump dies, I get a sore.  *adh*

I just got another sore, from the exact same thing as you...air
mattress failure! This is the 4th time in 2 years that my pump has
failed. They replaced the 1st one, after 2 repairs, now I'm up to 2
repairs on the second one...of course the warranty is up now! I
don't quite understand why the darn thing keeps breaking and it's
always the same thing, it stops cycling. I use a Gamer Pillow Pump
and have been told that failure is pretty common.

Patti

... MONEY TALKS ...   but all mine ever says is GOODBYE!

--
Uucp: ..!uunet!bunker!hcap!hnews!202!323.0!Patti.Bader
Internet: Patti.Bader@p0.f323.n202.z1.fidonet.org




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Subject: Christmas Need
From: Kevin.Robinson@p0.f15.n280.z1.fidonet.org (Kevin Robinson)
Organization: FidoNet node 1:280/15.0 - Writers' Block BBS, Raytown MO


[This is from the Spinal Injury Conference]

Hi gang.  Just a note about a long time friend who's recently
double-dipped into the disability ice cream tub.  Phil Errion is a
polo survivor who, by age 50, has been experiencing the effects of
post polio syndrome; that is, what few leg muscles he had left began
to fail.  Phil has been a world class wheelchair athlete, and has
represented the U.S. abroad, and he was accepting his move toward
permanant use of his wheelchair with grace and wit.  When I was
business manager of the Orlando Orange Wheels wheelchair basketball
team in the late 70's, Phil was one of the top scorers in the S.E.
Conference, and let Orlando to a conference championship.  Last June
my family and I were able to fly down for his surprise 50th birthday
bash.  Several months later, a hit and run driver hit him from behind
and drove his car into a concrete wall on I-4  in Orlando.  Now, on
top of his increasing problems with post polio, Phil is a C6
quadriplegic...with no insurance to cover more than the most basic
medical expences.  His wife, Cathy, has to physically lift him in and
out of their car because they have no means of purchasing even a used
lift van.  The small Orlando church where they are members has just
begun a fund raising drive in an effort to buy Phil & Cathy a lift van
equipted so Phil can drive.
  Please consider making a small donation if you are able this holiday
season.  If Cathy is injured, you can imagine how devasting it would
be to an already traumatized family.  You can send tax deductable
contributions to:
Orlando R.P. Church
Atten: Deacon Board
324 E. Livingston St.
Orlando, FL 32803

Thanks!  Happy Holidays....

     Yours etc.,

--
Uucp: ..!uunet!bunker!hcap!hnews!280!15.0!Kevin.Robinson
Internet: Kevin.Robinson@p0.f15.n280.z1.fidonet.org




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Subject: Re: armrests
From: Jeffrey.Vandyke@f14.n279.z1.fidonet.org (Jeffrey Vandyke)
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV


[This is from the Spinal Injury Conference]

AH>Don't ask me - apparently swing-away armrests aren't made for actual
AH>electric wheelchairs, only manuals.  Stupid, in my opinion.  My
AH>back is getting worse because I have more trouble reaching
AH>things.  Just what I needed.  And I still haven't found a
AH>scoliosis reducing brace.  Life sucks.  I have this intense
AH>desire to run over the bare feet of doctors with my chair.  *adh*

  Are you talking about armrests that swing out to the side, or
are you including ones that swing up and back? There a zillion
now that swing up and back on electrics. I've had it on mine for
years.

Jeff

 * SLMR 2.1a * Take two green M&Ms, and call me in the morning.

--
Uucp: ..!uunet!bunker!hcap!hnews!279!14!Jeffrey.Vandyke
Internet: Jeffrey.Vandyke@f14.n279.z1.fidonet.org




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Subject: Stories
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <26 Nov 92 21:56> Keith Jones wrote:

 > JC>      Am I happy.  No, but I am satisfied.  I consider
 > JC> myself retired.  This allows me the freedom not to be
 > JC> driven to perfection.  I do a little bit of private
 > JC> counseling.  I do lots of reading.  I write.  I have a weekly lover.

 KJ> Maybe I need a weekly lover. Since the ex-fiance three years ago, I
 KJ> have not been intimate with anyone. I thought about visiting the ranch

Our local paper has a section for personal ads.  I just advertised
for a friend for companionship and possibly more.  Even with the
word 'disabled' inserted in the ad, I got about 40 responses and
interviewed about ten.  We both are about the same age, have lots
of interests in common, and enjoy the weird sex of a quad.  If we
get tired of each other, I'll place another ad.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Comebacks
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <26 Nov 92 22:41> Keith Jones wrote:

 KJ> I read For Whom the Bell Tolls in high school. May have been a bit over
 KJ> my head then. I found it rather dry and pointless. I do remember that
 KJ> he was impotent and maybe I should read it now just to see how he dealt
 KJ> with it. I don't find much time to read now.

He received a severe leg wound in that war which left him with a
limp.  He was in love with a nurse, but it is speculated that he
never really consumated that love.  The big point of the book was a
political statement on the war.

You can get talking books from the Library for the Blind and
Physically Disable just by calling their toll free 800 number and
telling them you're a quad.  You could listed to the book while in
your standing table or on the john.  I do most of my pleasure
reading this way.  They have all the old classics and the most
modern best sellers.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Little Big Horn
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <27 Nov 92 16:26> Tim Syfert wrote:

 TS> Did you ever have problems with pressure sores sitting up that long?

Not then.  Back then I had great skin and seldom got a sore.  If I
got any abrasion, it healed almost overnight.  Now, if I sit more
than an hour I can be in trouble.  Now, I got old skin.  My skin no
longer produces the healing oils that it did when I was young.
This is a chronic problem of the elderly, only with me it is
hitting at 50.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Re: armrests
From: Patti.Bader@p0.f323.n202.z1.fidonet.org (Patti Bader)
Organization: FidoNet node 1:202/323.0 - SHENK'S EXPRESS, La Mesa


[This is from the Spinal Injury Conference]

 -=> Quoting Alan Hess to Keith Jones <=-

Hi Alan!

 AH> what I needed.  And I still haven't found a scoliosis reducing brace.
 AH> Life sucks.  I have this intense desire to run over the bare feet of
 AH> doctors with my chair.  *adh*

I'm not sure if this is what you're looking for but, I was using a full, upper
body brace, called a Kydex Jacket. I was developing scoliosis and this was
supposed to prevent it from getting worse. It did help a great deal with my
posture and allowed me to sit for longer periods of time. Unfortunately, after
I had a colostomy, last year, I'm unable to use it anymore. One of the Orthodic
companies, here in San Diego, made one for me. The only support I use now is a
Jay Active Back and that seems to help a little, but I don't know if it's going
to help prevent the scoliosis from getting worse.

Patti

... confidence is the feeling you had before you knew better

--
Uucp: ..!uunet!bunker!hcap!hnews!202!323.0!Patti.Bader
Internet: Patti.Bader@p0.f323.n202.z1.fidonet.org




------



Subject: Re: Voice activated telephone
From: Patti.Bader@p0.f323.n202.z1.fidonet.org (Patti Bader)
Organization: FidoNet node 1:202/323.0 - SHENK'S EXPRESS, La Mesa


[This is from the Spinal Injury Conference]

 -=> Quoting Greg Wick to Joe Chamberlain <=-

Hi Greg!

JC>VOICE DIALER TELEPHONE

 GW> Thanks, I'm going to call them. Do you know if you need to hit a
 GW> button in order to get it to be voice acrivated? all the ones I've
 GW> seen you do... Thanks ===

I have a telephone that Pacific Bell's Disabled Services gave me. It's called
"Ameriphone Model RC-3000". I use a remote control button that I can push to
either answer the phone or call out on. All I have to do is push one button
(they can set it up for light touch) and a operator comes on and dials the
number that I ask for. When the phone rings, I again push the button and can
talk via a speaker phone. A headset also comes with it, when I don't want to
use the speaker phone aspect of it. I wear the remote around my neck, for when
I'm transferring and no one else is home. If I fall, then I can at least call
the operator and ask for help.

Let me know if you would want the address, etc. for this. You might also want
to call WA's disabled services. When we lived in Bremerton (in 1980), they had
made up a sip & puff deal that I could use to call and answer the phone with.
I think it was done by the Pioneer Club, who are retired phone company workers.

Patti

... If I can't take it with me...I ain't going!

--
Uucp: ..!uunet!bunker!hcap!hnews!202!323.0!Patti.Bader
Internet: Patti.Bader@p0.f323.n202.z1.fidonet.org




------



Subject: Need Information
From: Cindy.Venuto@p0.f433.n102.z1.fidonet.org (Cindy Venuto)
Organization: FidoNet node 1:102/433.0 - Helping Hands, Santa Fe Sprngs CA


[This is from the Rare Disorders Conference]

Hi all I need information
I have a 6 1/2 year old daughter and she was orginally diagnosed as primarily
as having semi-lobar Holoprosencephaly.  The doctors are now changing her
reports to read primary diagnosis is Facio-Auricular-Vertebral sequence (FAV)
including Grade III microtia and left facial hypoplasia. I would appreciate in
layman terms what FAV is especially.  I did my homework on Holoprosencephaly
and now since she is doing extremly well for a child with this diagnosis the
doctors want to change her primary to FAV.  Its all ridiculous to me It wont
change who she is!  Anyway labels gets us services that assist her.  The doc's
would like to do an MRI to see if she realy has Holoprosencephaly, now that is
funny we had 3 Neurologist from 3 different hospitals look at a her CAT scan.
Oh well here goes more research!!!!! I would appreciate the assistance.
Cindy Venuto

"Success is not the victory, the victory is the hard work it takes
to get there."

--
Uucp: ..!uunet!bunker!hcap!hnews!102!433.0!Cindy.Venuto
Internet: Cindy.Venuto@p0.f433.n102.z1.fidonet.org




------



Subject: Whitmores Disease
From: Kevin.Giguere@f106.n372.z1.fidonet.org (Kevin Giguere)
Organization: FidoNet node 1:372/106 - The Medical Forum, Goose Creek SC


[This is from the Rare Disorders Conference]

First have you ever heard of this? And second if you have can you
tell me where I might find any info pertaining to this subject.

I've heard that some of the men in Vietnam came back with this but
the govt. has said there where only a few cases reported to the
major military hospital in Maryland.  /s

--
Uucp: ..!uunet!bunker!hcap!hnews!372!106!Kevin.Giguere
Internet: Kevin.Giguere@f106.n372.z1.fidonet.org




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                                ******

                  End of Issue # 3071 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU