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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Mon, 31 Aug 1992 17:00:17 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2901
X-To:         LHCAP <l-hcap@VM1.NODAK.EDU>

                             THE HANDICAP DIGEST

                                 Issue # 2901

                           Monday, August 31, 1992

Today's Topics:


                                ******


                          Self-help & mental health
                             Kickin' the dragon
                              Congratulations!
                          Re: Text Scan/read For V
                             Carlos Costa's Swim
                          amusement parks & wheels
                            discussing Marijuana
                               Re: Hello There
                                  just you
                               MS/HELP/Fatigue
                               transportation


                                ******


To subscribe to the Handicap Digest mailing list or have your
thoughts in the next issue, please send electronic mail to
Bill McGarry at any of the following addresses:


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	    (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064

                              Bill McGarry (Moderator)
                              (203) 337-1518



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Subject: Self-help & mental health
From: Arlette.Lefebvre@f24.n3602.z1.fidonet.org (Arlette Lefebvre)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


I just found that reference to a  new self-help manual for
psychiatric patients, posted on Socionet in january of this year...
NO IDEA if it's ANY GOOD..but here it is, anyways:

Title:
 Self-help and Mental Health: Beyond Psychiatry

Authors:
 Nere St Amand and Huguette Clavette

Price WAS $15.00 before Feb 15th, $20.00 thereafter.

Description:

"Persons grappling with mental health problems often have little
choice: some remain dependent on their family, while others become
increasingly reliant upon a psychiatric system that progressively
undermines their independence. Are there any other options? This
book explores new practices that focus on self-help and mutual aid
networks. The author present extracts of interviews and statements
by people who have experienced institutional care and are
attempting to remake their lives independently of such a system.

These extracts illustrate the vitality, creativity and
resourcefulness of persons who are reorganizing their lives by
making selective use of family and institutional resources. It is
in this context that self-help networks take on their full meaning
and become the preferred means of access to independence.

Order from:

  CCSD Publications,
  55 Parkdale Avenue,
  Ottawa, ONT K1Y 4G1
  Tel: (613) 728-1865
  Fax: (613) 728-9387.

---------------------------------------------------------------------

 The above is a Canadian publication.
 I have not come accross any similar American texts, but I DO
 have a brand new American book on Quality Assurance in Mental
 Health (our systems analyst, falah, has borrowed it for
 inspiration in setting up our intake database).

               A bientot, I hope...?

                                               Docteur Froggie.
===
 * DeLuxe/386 1.12 #3276 * Do what you can with what you have where you are
 * QNet3 * ADANET:41/62/19:Ability OnLine - Toronto Canada - 416/650-5411

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Subject: Kickin' the dragon
From: Ambrose.Moore@f24.n3602.z1.fidonet.org (Ambrose Moore)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


Hello Joe!

JC> AA> ;-) How much is "pricey" in dollars and cents? If you have
JC> AA> one,would you like a job? Otherwise I guess I will be doing some
JC> AA> typing.;-) Unless I could find enough jobs like this one to make
JC> AA> it worth while to buy one for myself.

JC>     Frank Whitney is a regular user of Dragon Dictate and from the
JC>prices I have seen quoted it runs about $8-10,000.

'Cuse me for butting in here, but have you guys heard of the
"brother" to the Dragon Dictate, known as "VoiceType?" This product
is also made by IBM, has the same features as the Dragon, but at
the significantly lower cost of about $4,000.  I've had VoiceType
for about 3 months now, and it is an excellent product, (IMHO).

If you need additional information about VoiceType, leave a message here.

>From the Golf, Whiskey, November,

Ambrose Moore

--Voice console, Go to sleep--
===
 * SLMR 2.0 *  162  He who walks in anothers track leaves no footprint
 * QNet3 * <ADANET> Canada Remote Systems - Toronto, Ontario - (416)798-4713

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Subject: Congratulations!
From: Don.Purvis@p2.f58.n343.z1.fidonet.org (Don Purvis)
Organization: FidoNet node 1:343/58.2 - Silver Lake, Everett WA


...Congratulations are in order for the store manager of the Sears
Store in Everett, Washington!

As most of you know, wheelchair access to a store or a mall can be a
difficult thing unless the managers are aware of the problem. In
Everett we have a nice shopping mall. In my opinion it is far better
than some found in the Seattle area. The problem I had was access,
unless I had someone with me. The curb cut was approx. 2" above the
street, which made it seem 10 ft. tall when I hit it with the chair.

I tried discussing the problem with the Mall management people but
they were not understanding. I finally went to the Sears store manager
with my problem. He not only understood, he got it fixed (it was near
his entrance). He then went one step further and had a "handi-capped"
door put in so I, and others, could get in without a problem.

Yes, I did thank him personally. I just wanted to let others know
that, at least in Everett, the Sears people do care about us.

Don Purvis
Everett, WA

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Subject: Re: Text Scan/read For V
From: Frank.Whitney@f1000.n261.z1.fidonet.org (Frank Whitney)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


DB>I use a system from Arkenstone and it incorporates a HP Scan Jet Plus, and a
DB>card that I think comes from Calera.  Arkenstone writes the software and
DB>markets the product through nationwide delers and what you can do is call
DB>Arkenstone to locate a deler.  Call (west coast time) 1-800-444-4443.  This

I'm putting together a system for a show piece of alternate input and
output devices. Do you know of a way I can interface a HP ScanJet IIP
and the Arkenstone model S reader WITHOUT using windows?
Frank.
___
 X SLMR 2.1a X This message was produced using speech technology

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Subject: Carlos Costa's Swim
From: Bill.Burgess@p0.f401.n229.z1.fidonet.org (Bill Burgess)
Organization: FidoNet node 1:229/401.0 - The Connection HST!, Oshawa ON


I regret to inform you that for reasons of personal safety, Carlos Costa
had to be pulled from the water after swimming most of the distance
across Lake Ontario.  A severe electrical storm, combined with tornados
and choppy waves of 5 feet in height forced the termination of the swim.
I watched the continuous lightning strikes over the lake for an hour and
a half and feared not only for Carlos but also for those in the
accompanying boats, as I have never seen so much lightning in many
years.  But Carlos would like to try again.  He set a very strong pace
and was doing remarkably well up to this point, and can feel proud of
what he has done up to now.  I have the newspaper coverage of the event
and will be forwarding it to Linda Cummings.  I am sure that Carlos will
tell us more after he rests up.  Carlos, you did very well and all are
proud of you.  TTYL
Bill

... Silver Xpress? Its tracks were washed out by a Blue Wave!

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Subject: amusement parks & wheels
From: ANDY.ANDERSON@p11.f116.n138.z1.fidonet.org (ANDY ANDERSON)
Organization: FidoNet node 1:138/116.11 - Group Medical BBS, Tacoma WA


Hello Bob!

Monday August 10 1992 11:52, Bob Dunlap wrote to All:

 BD> the lines were impossible to navigate, so i would leave my wheelchair
 BD> by the strollers and stand in line.

Be thankful you can still leave your chair.

 BD> has anyone else experienced similar difficulties?

And too many others to mention,I (personally) have come to the
conclusion that in order for everything to be "completely"
accessible,the cost of everything would be so high as to be out of
reach of most people.Myself,if I find a place that is un
accessible,I don't go back there again.

ANDY

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Subject: discussing Marijuana
From: Bill.Koppelmann@p0.f809.n104.z1.fidonet.org (Bill Koppelmann)
Organization: FidoNet node 1:104/809.0 - Fantasy Mountain, Golden CO


>>My question about this article is this:
>>Is maryjuana used by many disable people as a "treatment?" Regardless of what
>>the FDA says, other people in the real world will witness to its medicinal
>>qualities.

I'm glad you brought this up as I understand that in November we'll be
voting on whether marijuana should be legalized for medicinal use.  I
intend to vote for it.  I also expect that it will be thrown out, but
you never know do you.  Of course my feeling is that all drugs should
be legalized.

                        Bolder Bill

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Subject: Re: Hello There
From: Joe.Nicholson@f123.n202.z1.fidonet.org (Joe Nicholson)
Organization: FidoNet node 1:202/123 - The General Alarm, La Mesa


*** Quoting Thomas Sallaway to Helen Peagram ***

TS> next week is my soc. sec court hearing and will be glad when it
TS> is over with.

Wishing you the very best of luck with that hearing.  I had mine
last November and received the POSITIVE decision in January.
Nineteen months from date of first application to receiving that
court decision, and about three more weeks for them to figure
out the retroactive payments and send the first check.

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Subject: just you
From: Jim.Stewart@p3.f44.n272.z1.fidonet.org (Jim Stewart)
Organization: FidoNet node 1:272/44.3 - FudRuckers!! BBS, Poughkeepsie NY


-> I was really glad to hear from you.  If you don't mind me asking, cou
-> tell me more about your "disease".  I have never actually talked to a
-> that was like myself.  My form of MD has been called so many things.
-> it was called Amyatoniacongenita (i'm sure I slaughtered the spelling
-> Then they changed the name to (they probably couldn't spell it either
-> Werdnig Hoffman's.  Could you tell me more about yourself?
->
-> My husband has a 386dx.  I haven't used it because the keyboard has s
-> large span that I can't reach all of the keys.  I'd be interested to
-> what programs you are using.
->
Well, they had always thought I had Polio.  Then, 4 years ago, at the
age of 35, they changed my diagnosis to Spinal Muscular Atrophy -
Intermediate.  The MDA neurologist I saw explained it to me as a very
gradual "dying off" of the nerves around the spinal cord.  They don't
know why they're dying, they just are.  They can see it happening
under a microscope but they can't stop it.

I'll be 40 next month.  I'm a student at Marist College studying
Computer Information Systems.  I'll be graduating in May.  I have a
GPA of 3.7.  I have a girlfriend.  We'd like to get married once I get
a good job.  I've been looking for a job for the past 3 years.  I hope
I can find something soon.  I want to do something with computers,
whether it be programming, word-processing, data entry, graphics or
whatever.  I'm also the editor of the Taconic Resources for
Independence newsletter... the independent living center in
Poughkeepsie, New York.  I'm also on their board of directors.

I use a program called AccessDOS from IBM which has many features for
persons with disabilities including key-latching for the control,
alt, and shift keys and MOUSEKEYS which allows you to use the arrow
keys as a mouse.  IBM will send a free copy of this program to
anyone who needs it.  I make my own mouthsticks from dowel sticks and
the nipples from baby pacifiers.  They work out great.  I can get up
to 35 wpm when I get going good.

                  Jim "Unicorn Tamer" Stewart

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Subject: MS/HELP/Fatigue
From: Adrienne.Barhydt@p15.f48.n105.z1.fidonet.org (Adrienne Barhydt)
Organization: FidoNet node 1:105/48.15 - Jim Long's Computer, Portland OR


On Sun, Aug 09 Aaron Feldman (1:260/207) wrote the following to Help:ms:

 AF>Shalom to everyone, Missed everyone from this BBS..things have
 AF>been slow. I am hoping if someone could give me some suggestions
 AF>on this one: FINALLY- got a new job that is starting soon . It is
 AF>in computers, 48 hrs/week and pay is MUCH better than now.

Congratulations on the new job!

 AF>PROBLEM: How do I get enough rest so I can handle it. The hours
 AF>are from 7 am-4 pm. How much sleep does someone with MS require?

YOU need as much as YOU need and I need as much as I need.  There
is no general rule here.  I sleep 7-9 hrs. at night, nap for 1 hr.
during the day and spend MUCH  of the rest of the day resting.
More sleep at night will do nothing for my fatigue during the next
day.  I must rest when I get tired and rest for me does not always
mean sleep.  In fact, if I do sleep more, I end up with insomia the
next night and end up worse off.

 AF>I seem to be chronically tired to the point where I feel
 AF>intensely irriated. As
 AF>it is now, I dont start work until noon- so I get up at 10am and
 AF>dress and then rest form an hour over lunch andf then fgo into
 AF>work. How do I do this at 6am?? I hope someone can give me some
 AF>suggestions becos I have been waiting for a chance at a REAL job
 AF>for over 3 years now and I want to at least to be able to give it
 AF>a good try. Thank you as always, Aaron

The only way to get in some rest time between getting up and
starting work is to get up early enough to allow that and the only
way to get a full night's sleep is to go to bed earlier.  It's an
ambitious undertaking.  I used to go to bed by 9:30 to get up at
5:30 to be at work by 7:30.  To get to bed at 9:30 meant starting
to get ready for bed at 8:30.

Apart from actual sleep time I think you need to take some energy
conservation steps and get real adept at pacing yourself.  Here are
some hints that I hope will get you started.

Put things where it takes a minimum of energy to use them.  Have
the things you use constantly ON your desk.  The less frequently
you use something the farther away it can be.

Set up to do whatever you do efficiently.  F'rinstance, if I'm
gonna shell peas I get out everything I need.  I set up at a table
that's the right height, not a counter that I have to reach up to.
Position unshelled peas, bowl for shelled peas, spot for empty pods
for efficient work flow.  My husband can reach across the table to
pick up the next one and reach somwhere else for a bowl and reach
under the table to toss the empty pod.  I can do that to about two
peas and then I'm too tired to continue.  With everything
positioned at my right hand I can work long enough to have peas for
dinner!

Be aware of when your high and low energy times occur and schedule
your work to fit them.  I do my most important and demanding tasks
between 9 and 11:30 AM.  I'm useless much of the afternoon and
revive considerably in the evening.  Depending on the nature of
your job this may or may not be easy to do.  It might be useful to
know how ADA affects your employer to ask for some reasonable
accomodations in scheduling.

You need to evaluate everything you do, first to see if it's
necessary at all, and if it is, to find the easiest (least energy
consuming) way to do it.  You need to be aware of your own energy
ups and downs and fit your work into them.  If you are looking for
easier ways to do specific tasks, ask here.  Someone will very
likely be able to give you ideas.

I hope this will help and things go well for you on your new job.
Whatever you do, be kind to yourself.

Adrienne

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Subject: transportation
From: Robert.Schoenfeld@f3.n2603.z1.fidonet.org (Robert Schoenfeld)
Organization: FidoNet node 1:2603/3 - Net2603 Echomail Co, Bay Ridge NY


I am interested in hearing from people about the transportation
systems where they live, how accessable are they now, how much
input they put into the public hearings for the accessability plans
that had to be filed with the DOT and how did the authorities take
care of complaints. I would also appreciate addresses and telephone
numbers to contact the various authorities to get copies of their
plans to put into my data base. I already have the plans for lower
NY NJ and connecticut for the railroads, subways and light rail and
also for Boston. Also the buses in downstate NY and NJ. Would like
to set up a transportation forum on DEN to coordinate the info
perhaps

                                             BOB

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                                ******

                  End of Issue # 2901 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU