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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
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Date:         Tue, 7 Apr 1992 17:15:57 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2563
X-To:         LHCAP <l-hcap@VM1.NODAK.EDU>

                          THE HANDICAP DIGEST

                               Issue # 2563

                           Tuesday, April 07, 1992

Today's Topics:


                                ******


                     Re: Birmingham Pain Clinic Visit #4
                                  Adhesions
                         RHINOCEREBRAL MUCORMYCOSIS
                            fibromyalgia support
                          Re: Deafness & Education
                       Re: Anybody who are deaf-blind?
                                Re: Blue Hope
                          Re: Deafness & Education
                               Re: lipreading
                              Re: DEAF CULTURE


                                ******


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                              Bill McGarry (Moderator)
                              (203) 337-1518



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Subject: Re: Birmingham Pain Clinic Visit #4
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Chronic Pain Conference]

In a missive of <Mar 30 20:53> Arthur Saus (1:376/72.160)
writes to Alan Hess:
 AS>
 AS> No it's not "bullcaca"!!!!  The problem of addiction to narcotics in
 AS> people with chronic pain is very real.  The studies you are
 AS> referencing deal with ACUTE PAIN, not chronic pain; this is the basis

I am not disputing that narcotics are addictive.  However, several
physicians with which I have dealt have told me that it is better
to be addicted to a narcotic and be able to function than to not
take narcotics and suffer.  The studies they mentioned show that
chronic pain patients will only take enough medication to allow
them to function, since that is all they want.  It is absolute
foolishness to deny effective pain-control treatment to people just
because their condition isn't terminal, due to fear of addiction.
Any drug that the body develops a tolerance to can be called
addicitve, since the person must be weaned off and can't stop cold
turkey without withdrawal problems.  I just spent over a month
weaning off baclofen.  Would you deny baclofen to a person who
needs it, because tolerance develops?  Then why deny narcotics to
folks who need them?  Addictions can be handled just as any other
tolerance can be.  *adh*

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.org




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Subject: Adhesions
From: Linda.Cummings@f34.n375.z1.fidonet.org (Linda Cummings)
Organization: FidoNet node 1:375/34 - Batteries Included , Montgomery AL


[This is from the Chronic Pain Conference]

 > I will be out working in the yard, the next day I'll be in bed
 > curled in a ball.  People just don't understand this.  I don't
 > know if you go through this, but if I have a couple of almost good
 > days, I get to where I am afraid to eat or move, since I don't
 > know for sure what aggrivates my condition.

When I went through my colitis attacks, I felt the same way.  Did
you know banana seeds hurt?  They sure did with me.  When I was in
the hospital with colitis, they gave me a half of a sweet potato.
Before I even finished half of it, I was in the bathroom.  When the
colitis flares up, I might as well eat sitting on the toilet.

I sort of know what you're going through if it's anything like
those colitis attacks I used to have all of the time.

Linda

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!375!34!Linda.Cummings
Internet: Linda.Cummings@f34.n375.z1.fidonet.org




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Subject: RHINOCEREBRAL MUCORMYCOSIS
From: Adam.Summers@f485.n100.z1.fidonet.org (Adam Summers)
Organization: FidoNet node 1:100/485 - IN-MED BBS, St. Louis MO


[This is from the Rare Disorders Conference]

>From the IN-MED Database:

Rhinocerebral mucormycosis is a rare fungal infection that occurs
almost exclusively in patients with diabetes mellitus, particularly
when poorly controlled or with ketoacidosis.  Occassional cases
have been described in patients with hematologic neoplasms, renal
insufficiency, and in infants with severe diarrhea.  The disease is
characterized by black necrotic lesions of the palate or nasal
mucous membranes that rapidly involve the paranasal sinuses with
extension into the brain.  The organism has a particular
predispostition to invade vascular structures.

Lehrer RI, et al: Mucormycosis.  Ann Intern Med 93:93-108, 1980.

--
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Internet: Adam.Summers@f485.n100.z1.fidonet.org




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Subject: fibromyalgia support
From: Ed.Madara@f12.n266.z1.fidonet.org (Ed Madara)
Organization: FidoNet node 1:266/12 - Maple Shade Opus, Maple Shade NJ


[This is from the Rare Disorders Conference]

Just today in the mail, I received information on the Fibromyalgia
Network, a patient-run national resource center that provides
information on FM Syndrome, physician referrals, and local
self-help groups across the country. While the Network evolved from
the work of several FMS self-help groups in the Los Angeles area,
the 40 plus groups to which they currently refer are independent of
the Network, i.e., the Network is not a national association of
these groups.

The Network publishes a quarterly newsletter, available for a
$15.00 subscription. They indicate they strive to provide
information on research, new medications used for treatment, and
suggestions on how to cope with the symptoms of this "chronic,
painful and energy zapping condition." They are also looking into
research that might indicate any possible connection between FMS
and CFS (Chronic Fatigue Syndrome).

For a free "FMS Patient's Guide" brochure, and other information on
the Network, send a stamped self-addressed envelope to:

Fibromyalgia Network
5700 Stockdale Hwy., Suite 100
Bakersfield, CA  93309
or phone (805)631-1950 (9AM to 12 noon, Pacific time).

Hope this is helpful.   - Ed at the Self-Help Clearinghouse

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!266!12!Ed.Madara
Internet: Ed.Madara@f12.n266.z1.fidonet.org




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Subject: Re: Deafness & Education
From: Ann.Stalnaker@p0.f2120.n124.z1.fidonet.org (Ann Stalnaker)
Organization: FidoNet node 1:124/2120.0 - Fingers Talk, Irving TX


[This is from the Silent Talk Conference]

 >  JW> <Body Text>Lesson: Though efforts are made to educate
 >  JW> deaf children to be like hearing children, they still
 >  JW> grow up to be deaf adults.
 >
 > Amen, James.  Well stated.
 >

What is it with you two regarding the above statement?  We are
PEOPLE first, not DEAF people first.  We just happen to be
individuals who are deaf or hard of hearing.

I think the above statement is what is wrong with the Deaf
Community and why they are often slighted in getting accepted.

Sorry if my comment offends you but that rubbed me the wrong
way.  I grew up in the hearing world and I'm damn proud of it.
I wouldn't want to be isolated by sticking to the Deaf Community.

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!124!2120.0!Ann.Stalnaker
Internet: Ann.Stalnaker@p0.f2120.n124.z1.fidonet.org




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Subject: Re: Anybody who are deaf-blind?
From: Ann.Stalnaker@p0.f2120.n124.z1.fidonet.org (Ann Stalnaker)
Organization: FidoNet node 1:124/2120.0 - Fingers Talk, Irving TX


[This is from the Silent Talk Conference]

 >   I am deaf / low vision also.

Stu, did you know that the March/April issue of SHHH Journal is
dedicated to the deaf/blind?  There are some really interesting
articles and information.

The director of SHHH, Rocky Stone, has vision problems even
though he didn't state the exact nature of his visual problems.

I believe SHHH is opening the field to include more deaf/blind
individuals which is great.  I can't praise SHHH enough - it
is such a wonderful organization.

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!124!2120.0!Ann.Stalnaker
Internet: Ann.Stalnaker@p0.f2120.n124.z1.fidonet.org




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Subject: Re: Blue Hope
From: Ann.Stalnaker@p0.f2120.n124.z1.fidonet.org (Ann Stalnaker)
Organization: FidoNet node 1:124/2120.0 - Fingers Talk, Irving TX


[This is from the Silent Talk Conference]

 >  If it weren't for my father telling me about other people
 > talking in foreign languages, I would have missed that fact.
 > Just one of those things that deafness affects.....

Apparently you don't noticed that those who speak with an
accent or are talking in foreign languages seem to roll their
tongues a bit differently.  Perhaps I notice it more since
I've lived in so many countries and have been exposed to
various languages.

One incident comes to mind though...a very close friend of
mine introduced me to one of her close southern friends who
came to visit in Oklahoma.  Her friend was from South Carolina
and it was very noticeable to me that she had a deep southern
drawl right from the first.  We really had a great time laughing
about all of this - however, I do have a southern accent myself.
:-)

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!124!2120.0!Ann.Stalnaker
Internet: Ann.Stalnaker@p0.f2120.n124.z1.fidonet.org




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Subject: Re: Deafness & Education
From: Betty.Mcbroom@f27.n3615.z1.fidonet.org (Betty Mcbroom)
Organization: FidoNet node 1:3615/27 - TN Deafness I N BBS, Knoxville TN


[This is from the Silent Talk Conference]

Ann-

AS> >  JW> <Body Text>Lesson: Though efforts are made to educate
AS> >  JW> deaf children to be like hearing children, they still
AS> >  JW> grow up to be deaf adults.
AS> >
AS> > Amen, James.  Well stated.

AS>What is it with you two regarding the above statement?  We are
AS>PEOPLE first, not DEAF people first.  We just happen to be
AS>individuals who are deaf or hard of hearing.

        Then we should shut down this SilentTalk conference and join
        All Other People over at other conferences.

AS>I think the above statement is what is wrong with the Deaf
AS>Community and why they are often slighted in getting accepted.

        Getting accepted by whom?  The hard-of-hearing? Hearing
        people accept us.  The only rejection of Deaf people I've ever
        seen has been on here.

AS>Sorry if my comment offends you but that rubbed me the wrong
AS>way.  I grew up in the hearing world and I'm damn proud of it.

        I was born profoundly deaf and grew up in a 100% hearing world
        until age 22. Nothing to brag about.

AS>I wouldn't want to be isolated by sticking to the Deaf Community.

        This is the second or third time at least that I've seen you
        mention the "Isolation" of the Deaf Community.  Isolated from
        what???  Isolated from whom???  From the hearing world?  No,
        Ann.  No way.  We work with hearing people. We have hearing
        parents, hearing children. We have hearing neighbors,
        friends and relatives.  We go out to eat and mingle with
        <gasp!> hearing people.  We go to meetings, to church,
        to weddings and baby showers.  Hearing people come to our
        parties and are welcome.

        Sorry, Ann, but the Deaf Community does not sit in a deep dark
        cave or on a desert island.  Nor do we reject a person just
        because he or she has a perfect audiogram.  Audiograms aren't
        important to us.  It's not how much of a pathological "loss" a
        person has that makes him or her acceptable. If any rejection is
        done, it is because that person projects such an uncomfortable
        attitude (patronizing, oppressiveness, critical, whatever) that
        the other people don't want to be around.

        Is it at all possible in this conference for more than one group
        to co-exist and respect each other's differences?  Just because
        one group is different does not make it *Bad*.  I have seen in
        this conference many put-downs of the Deaf community and
        degradations of NAD.  All the evils and woes of deaf ed. has
        been blamed on ASL.

        I teach my students to be proud of who they are.  We stress
        daily that they CAN!  When one girl asked me if I'm sorry I'm
        deaf, I looked at her straight in the eye and said "No. I like
        myself for who I am."  Her eyes widened. I could see her brain
        gears start to grind.  I want her to accept herself for who she
        is. She (as well as several other children I see daily) came
        from a mainstreamed environment with a low self-esteem. She is
        blooming now.  She is not isolated any more.

        If you do not want Deaf people here, perhaps you should revise
        and repost the rules of the conference and stress that only
        people with certain dB audiograms or members of certain
        organizations are allowed here.  I feel you have put down my
        people, my language, my culture.

        I've saved this message for two days in the hopes that I can
        cool off -- if it is a Flame message, then I apologize for not
        toning it down.  If you wish me to leave, then I will.  But I
        cannot sit back and read only messages with my hands
        tied down. (They were tied for 22+ years.  No more.)  (But I'm
        glad I didn't leave last time, otherwise I'd have never known
        Kimberly's Little Sister is going to the same conference I am.)

                                             B. McB.
 ~ SLMR 2.1a ~ E-Mail: your window on the world

--
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Internet: Betty.Mcbroom@f27.n3615.z1.fidonet.org




------



Subject: Re: lipreading
From: Jane.Dygas@f5.n355.z1.fidonet.org (Jane Dygas)
Organization: FidoNet node 1:355/5 - The Mailman, Anchorage AK


[This is from the Silent Talk Conference]

 KK> When lipreading, the face is taken into account for cues, not
 KK> just the lips. I've found that something is lost when someone
 KK> puts on sunglasses and then talks to me.
             Hi Karen....
I know exactly what you mean..expression is VERY important..there are a
lot of people that can't or don't use expression in their
communications. I, on the other hand, sometimes feel like I'm making a
fool of myself...<G>...just comes naturally I guess.

 KK> It is said that only 40 percent of the sounds can be read on
 KK> the lips.  The other differences are sound differences only and
 KK> aren't visual.
 KK> Hope this helps a little.  Practicing in front of a mirror can
 KK> show you how they look, but the best thing is to have someone
 KK> talk to you silently.
 KK> TV is not really a good source to practice on, because of the
 KK> maddening camera angles and the constant changes with the
 KK> conversation sill going while the person talking is no longer
 KK> on screen!

I noticed that I began to depend on my ability to read lips at my work
after I took the sign courses....I worked in a very noisey place
(machine shop) and I almost got to the point that I was asking people to
look directly at me so I could "hear" what they said.
I can imagine the WORK it takes to sucessfully read lips...I can do a
little (with people who speak clearly and look directly at me, but BOY!
do I miss a lot!) My friend used to (as he called it) "turn off his
voice" for me and it really helped. Thanks for the information I really
appreciate it! Are there special names to the classes in which this is
taught?
                    take care====Jane======

... A tagline! A tagline! My kingdom for a tagline!

--
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Internet: Jane.Dygas@f5.n355.z1.fidonet.org




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Subject: Re: DEAF CULTURE
From: Wayne.Silsbee@p1.f222.n105.z1.fidonet.org (Wayne Silsbee)
Organization: FidoNet node 1:105/222.1 - N.W. Family History, Oregon City OR


[This is from the Silent Talk Conference]

> I disagree.  Our auditory functions are certainly able of
> discerning many different messages at once.  The same spoken
> sentence can have many different meanings just by putting
> verbal emphasis on one word or another.

Umm, I think I'll stick with the idea of spoken language being
linear. Because although there is some variations in intonation
that can add to the listener's understanding, I don't think there
is a way to show two parallel lines of thought in speech without
changing from one track to the other and back again.

TTYL

Wayne

--
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                                ******

             End of Issue # 2563 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU