HDTenEightyP/NetNews huggingface dataset:
From: Christopher.Hill@p233.f4115.n124.z1.fidonet.org (Christopher Hill)
Newsgroups: misc.handicap
Subject: Re: nfb bbs censorship??
Date: 1 Sep 92 17:31:05 GMT
Reply-To: Christopher.Hill@p233.f4115.n124.z1.fidonet.org
Organization: FidoNet node 1:124/4115.233 - Southern Crossroads, Grapevine TX
X-Fidonet: Blink Talk Conference

Index Number: 24153

[This is from the Blink Talk Conference]

You made some good points about NFB andpolicy, and change etc.  I'm
not sure if people are willing to try to change NFB, at least if
they are, there success is never seen from the outside.

I've got a question on an unrelated matter, well sort of, that I'd
be interested in knowing the answer to.  Is the president of NFB
payed a salary?

I ask this because, in my opinion, this could cause problems.  It
would seem to encourage a more radical type of leadership becuase a
cautious person wouldn't be willing to give up their regular job to
take a position which they may or   may not be able to keep.  I
would have to think long and hard about joining such an
organization.  Chris

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Internet: Christopher.Hill@p233.f4115.n124.z1.fidonet.org
From: Paul.Nobrega@p0.f266.n163.z1.fidonet.org (Paul Nobrega)
Newsgroups: misc.handicap
Subject: message from david kostyshn
Date: 1 Sep 92 21:09:25 GMT
Reply-To: Paul.Nobrega@p0.f266.n163.z1.fidonet.org
Organization: FidoNet node 1:163/266.0 - Vision, Ottawa ON
X-Fidonet: Blink Talk Conference

Index Number: 24220

[This is from the Blink Talk Conference]

Hi David;
As I had posted in a note earlier from Paul
we are working on the Demo as fast as we can.
Understand that Window Bridge started shipping about
3 weeks ago.  Therefore; we have focused all of our
attention on getting rid of the back log.
Had we waited for the Demo to be completed and
run through Beta Testing before announcing the availability
of the product; we would not have been
ready for the Conventions in June and July.
As previously stated; we hope for the Demo to be
available in the early fall.
 As for the point regarding the ACB Convention;
many, many people got ample chances to use the product.
The *only* time that this was not possible
was when there were several people all trying to get access simultaneously.
In this instance; our staff used the keyboard and mouse to answer
the many questions by giving practical demonstrations.
Someone claiming that they were not given access may not be aware that
others were already standing there at the same time.
A few individuals never asked for access to the keyboard; but
it is my understanding having talked to those in attendance that
if you asked for access, and there were not already others at the booth asking
 forquestions to be answered; you had the opportunity to try
it out for yourself.

Imagine if you were in the middle of asking the demonstrator how
a concept is handled, and right in the middle of an explanation;
the keyboard was passed to someone else, and you were then left hanging.
There is no perfect solution for handling *every* request.
We did the best that we could.
However; I want to make it clear that
we did not deny access because we were hiding something from you.
IBM staff came over *every* morning; and were given
access to the product.
The Trace Center came over, as did many individuals;
and were given access.
I was not there myself; but if someone did not get access to the system;
I apologize.
I hope that this straightens these points out for you.

  David Kostyshyn

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Internet: Paul.Nobrega@p0.f266.n163.z1.fidonet.org
From: Jeff.Oberlee@f500.n159.z1.fidonet.org (Jeff Oberlee)
Newsgroups: misc.handicap
Subject: Article: "Reminiscing"
Date: 4 Sep 92 20:29:38 GMT
Reply-To: Jeff.Oberlee@f500.n159.z1.fidonet.org
Organization: FidoNet node 1:159/500 - Charlie's Foxhole, Lansing MI

Index Number: 24394

Here it is, Helen!  Fortunately, I found the actual text file, so I
didn't hafra re-type any of it.  :)   I hope ya like it!

			  Reminiscing

			by Jeff Oberlee

 After stumbling out of bed this morning and summoning the energy
to do something other than sleep, I climbed onto my stationary bike
to get some exercise. (I say 'climbed' because I'm physically
handicapped and have to be careful...)  The noise created by the
heavy wheel rubbing against hard rubber clamps was enough to ruin any
pleasant imagery that might crop up in my head.  But I definitely
needed the exercise, so I tried to make the best of it.
 After a few moments, my mind began to wander back to my
care-free, early-teen days -- to the days of city-wide bicycle hide
'n' seek and bike tag -- which weren't so long ago . . .

 I bound out of the house, grab my beloved ten speed and head out.
Why?  Because I love to ride my bike.  Where to?  Probably nowhere in
particular.
 I give no thought to "needing exercise."  I ride so much and so
often that exercise is only occasionally used as an excuse to get out
of the house, away from the hustle and bustle of everyday life.  It's
1983, I'm fourteen and at that point in my life where I feel a need
for some extra space, some freedom and independence.
 I round a corner, pedaling effortlessly, in total control despite
gravity and the fact that I'm riding no-handed.  The street I
turned onto was just paved last year and is very smooth.  The gentle
Spring breeze feels so good as I cut the air with ease and grace.
 These aimless (and to some, pointless) bike rides always serve
their hidden purpose:  I feel a distinct connection to nature, an
at-one-ment with my surroundings, an almost inexplicable sense of
peace and well-being--

 But my dream of yesterday was abruptly dashed when my left knee
slammed against the awkwardly placed metal panel housing an
inaccurate speedometer, a broken timer, and the tension knob.  Now I
know why they say, "Keep your knees apart!"  Otherwise, it can be a
slander-provoking, mood-wrecking experience -- not to mention
downright painful.
 No, there's nothing peaceful about riding my noisy, stationary
bike; no wind in my face, no fresh, fragrant air, no motion or sense
of control, no great outdoors, and no at-one-ment with nature.  All
of that is gone . . . (forever?)
 Today, after attempting to enjoy the closest thing to a real bike
that I can physically handle, I'm left with nothing but aching
muscles and a sore knee . . . and my memory of yesterday.

					   -- April '91

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Internet: Jeff.Oberlee@f500.n159.z1.fidonet.org
From: Michael.Rooney@f737.n106.z1.fidonet.org (Michael Rooney)
Newsgroups: misc.handicap
Subject: Re: RSD Medline Search
Date: 28 Aug 92 16:09:51 GMT
Reply-To: Michael.Rooney@f737.n106.z1.fidonet.org
Organization: FidoNet node 1:106/737 - AirBoat OnLine, Houston TX

Index Number: 24014

[This is from the Chronic Pain Conference]

PL>hi michael...well, the dr. tried many meds. on me..the latest being
PL>'toradol' which my tummy couldn't tolerate ...it helped the pain, but it
PL>made me sooooooooo nauseated,i ate nothing.
PL> so i use a 't.e.n.s.' unit most of the time...plus get in spa often for
PL>water therapy...i can take 'soma compound' during day.
PL> tell me more about yourself,
PL>take care...
PL>paige

I also tried a TENS and it was useless. I am fortunate in that I
have been able to tolerate any medication that I have tried.
Currently lortab and meclomin with an occasional valium if I get
to tense and once in a while a steroid burst. Like most of us I
have my good and bad days and lately there have been more bad
than good. The upside is I know the better days are coming.<g>
Take care, Mike...

 * SLMR 2.1a * --T-A+G-L-I+N-E--+M-E-A+S-U-R+I-N-G+--G-A+U-G-E--

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Internet: Michael.Rooney@f737.n106.z1.fidonet.org
From: Shelby.Sherman@f67.n123.z1.fidonet.org (Shelby Sherman)
Newsgroups: misc.handicap
Subject: cancer
Date: 28 Aug 92 16:18:48 GMT
Reply-To: Shelby.Sherman@f67.n123.z1.fidonet.org
Organization: FidoNet node 1:123/67 - Shelby's Swamp, Bartlett TN

Index Number: 24040

[This is from the Chronic Pain Conference]

 > Hi.I joined this echo in hopes of getting info and possibly
 > support.I'm on the other side of the situation.My mother has
 > lieukemia and she has about 2 years to live.She's on cytoxin
 > right now,they've got her on it for life.Just recently they took
 > her off the meds that take away the pain.I couldn't bear with
 > it.There's got to be something else she can get for the
 > pain.It's really hard watching your own mother die.I remember
 > how I felt when my husbands mother died.It keeps getting
 > worse.The hardest part is I have to be her strength and take
 > care of her,who takes care of me?Well at least I'm strong in
 > front of her.
 >    There is a BBS # I need to find.It's for the National Library
 > of Medicine.

I find this very hard to understand.  Is your mother still in pain?
If she is, and if they have taken away the pain medicine then you
and your mother (if she is able) must very assertively demand that
the pain relief medications be reinstated.  This is a tragedy that
is so unnecessay in this day and time.  You must be very strong to
help your mother and to insure that she remains as comfortable as
possible. I am here to support you in any way that I can.  I am
very knowledgeable in the area of pain control and will be more
than glad to answer any questions or just chat if you wish.

Good luck!

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Internet: Shelby.Sherman@f67.n123.z1.fidonet.org
From: Mark.Munson@p0.f14.n279.z1.fidonet.org (Mark Munson)
Newsgroups: misc.handicap
Subject: Lightning
Date: 28 Aug 92 16:12:26 GMT
Reply-To: Mark.Munson@p0.f14.n279.z1.fidonet.org
Organization: FidoNet node 1:279/14.0 - Project Enable, Dunbar WV

Index Number: 24021

[This is from the Chronic Pain Conference]

RK>I am looking for answers, my husband was struck by lightning in the
RK>head, and it exited his right foot. He has been going downhill
RK>ever since. the list complaints are to numberous tolist, but
RK>the most severe ones are pain, fron the neck downward, double
RK>vision, hearing lost and ringing in the ears, vertigo, memory
RK>lost, unable to retain new learn information, and so. When I
RK>ask the doctors that have treated him in the past a question,
RK>the only response they seem to have is 1). Mind over matter 2).
RK>No direct causes due to the lightning and so on. which is now
RK>driving me crazy. If there is anyone out there with some
RK>information on this, or knows someone I could go to for answers,
RK>I would be greatly appreicated......Thanks

Rosemary,
   A lot of times doctors depending who you go to will either go in
   depth to find the problem or brush it off knowing you will go to
   another.  Just some advice I have experinced.

   I am NOT a doctor but do have this to say.. Your husband was struck
   in the head, the head is the main conductor for the rest of the
   body..  If the STRIKE traveled through his spinal cord he would have
   symptons like you say..  If so, there is a cooling off period that he
   would most likely go through..

   This is usually due to the swelling or (Spinal Shock)  This means
   that the Peripheral nerves that are connected to the spinal cord
   could have been affected.  (NOT PERMANENTLY), but it takes a while
   for things to settle down, ie: swelling etc... There are drugs than
   can be given to reduce swelling of the spinal cord (IF THIS IS THE
   CASE, ONLY A DOCTOR CAN TELL YOU),  If not, time will tell, my guess
   is that he will get better, and PLEASE, get a second opinion from a
   Neurologist (spelling)?

Let me know what goes on.

Mark

 * SLMR 2.1a * Never lose hope!

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Internet: Mark.Munson@p0.f14.n279.z1.fidonet.org
From: Sheila.Fava@f68.n382.z1.fidonet.org (Sheila Fava)
Newsgroups: misc.handicap
Subject: Re: GREY MARE CONGRATS....
Date: 3 Sep 92 18:18:08 GMT
Reply-To: Sheila.Fava@f68.n382.z1.fidonet.org
Organization: FidoNet node 1:382/68 - Diabetes Discussion, Austin TX
X-Fidonet: Amputee Conference

Index Number: 24344

[This is from the Amputee Conference]

In a message to Sheila Fava <08-27-92 10:20> Shari Messner wrote:

SM> SF> Thanks for the Congrats, Shari.  The 'Grey Mare Yank' is
SM> SF> keepin' on keepin' on......

SM> That's the ole spirit.

    There is an important meet comming up in October; it is a TAB World Cup
    Games held in St. George, Utah.  For the last three years I have competed
    there.  At first it was a 'Statement'....."If I can do it, there must be
    other disABLED -potential- athletes out there who can also participate in
    these Games."  Sure enough, last year there were two other disABLED
    athletes there:  A Canadian amp and a post-polio person.  This meet is ad-
    vertised world-wide and upward to 3,000 athletes make the trek to Utah.
    The sponsors never expected any disABLED athletes and had not made
    arrangements for special rooms, diets or athletic rules.  WHEEee!  They
    have -now-......

                    ---Sheila

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Internet: Sheila.Fava@f68.n382.z1.fidonet.org
From: David.Tanner@f168.n129.z1.fidonet.org (David Tanner)
Newsgroups: misc.handicap
Subject: Re: Synthavoice Another Opinion
Date: 1 Sep 92 21:08:51 GMT
Reply-To: David.Tanner@f168.n129.z1.fidonet.org
Organization: FidoNet node 1:129/168 - Braille Bank BBS, Pittsburgh PA
X-Fidonet: Blink Talk Conference

Index Number: 24217

[This is from the Blink Talk Conference]

I'm not going to attempt to quote your message to Gary.  Let it
suffice it to  say you were stating that you had had bad
experiences with Syntha-Voice in the past.

I also was blasted by a couple of people here who did not think I
had any right to say anything about Syntha-Voice.  I think that it
is quite clear at times that it is fine for certain people to
rehash certain topics as many times as they wish, but for those who
are not the particular favored few or whatever it is best they not
cross paths with the favored few.

No, I have never owned Syntha-Voice products of my own, but I have
worked in the access technology field for 8 years and have used
their products and have had plenty of experience talking with
clients who have been burned by the company in question.  Frankly,
I don't give a damm if some guy setting on the sidelines tries to
tell me to shut up.  I'll wait and see what really happens and not
be swayed into believing that I can trust a company until they
prove they are trustworthy.  Far too many people both in Canada and
the U. S. have plenty of bad experiences to tell of about the
company to believe that all this happened five years ago.

If we are to believe that Syntha-Voice is so great then I wish
those same people would quit criticizing TSI and Artic.  But, I am
sure I could find plenty of critical remarks from those same people
who don't want to hear criticism of Syntha-voice regarding their
feelings about TSI or Artic or both.

        D. T.

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Internet: David.Tanner@f168.n129.z1.fidonet.org
From: nff2355@dsacg2.dsac.dla.mil (Dale Pennington)
Newsgroups: misc.handicap
Subject: Re: GUIDE DOG BLUES
Date: 27 Aug 92 15:19:27 GMT
Reply-To: nff2355@dsacg2.dsac.dla.mil (Dale Pennington)
Organization: Defense Logistics Agency Systems Automation Center, Columbus
X-Fidonet: Blink Talk Conference

Index Number: 23991

From article <23784@handicap.news>,
by Kristopher.Roberts@f11.n203.z1.fidonet.org (Kristopher Roberts):
> Index Number: 23784
>
> ...  Yes, I am pissed!  Imagine if a couple were celebrating their
> 50th wedding aniversary and wanted to live it up in a nice
> oceanfront motel on Cape Cod. ... BUT, they were deprived of enjoying
> such a simple celebration because one of them had a guide dog. ....

Perhaps you should write to the Cape Cod Chamber of Commerce, your
congressman and, if they are different, the congressmen of the Cape
Cod area.

My wife has a guide dog.  Once when we attempted to enter a local
deli we were told it was illegal to bring the dog.  After some
discussion we simply offered to call the police and let them deside
if it was against the law for a guide dog to be in a deli.  The deli
person backed down immediately and let my wife come in with her dog.

Dale Pennington
Internet:  dpennington@dsac.dla.mil
From: Gary.Petraccaro@f12.n2610.z1.fidonet.org (Gary Petraccaro)
Newsgroups: misc.handicap
Subject: Re: braille literacy
Date: 4 Sep 92 20:31:21 GMT
Reply-To: Gary.Petraccaro@f12.n2610.z1.fidonet.org
Organization: FidoNet node 1:2610/12 - Post Road Inn, Greensburg PA
X-Fidonet: Blink Talk Conference

Index Number: 24399

[This is from the Blink Talk Conference]

 JD> From: dashiell@nadc.nadc.navy.mil (Jude DaShiell)

 JD> Base line literacy reading rate in braille is 100 words per minute.
 JD> Base line literacy writing rate in braille is 30 words per
 JD> minute with perkins and 20 words per minute with slate and stylus.
 JD> These are the standards that Arkansas Enterprises for the blind uses.
 JD> Good reading rate for braille is 150 words per minute or above.

     Were did you get these figures?  Btw, thank you.

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Internet: Gary.Petraccaro@f12.n2610.z1.fidonet.org
From: Jim.Stewart@p3.f44.n272.z1.fidonet.org (Jim Stewart)
Newsgroups: misc.handicap
Subject: just you
Date: 31 Aug 92 12:24:15 GMT
Reply-To: Jim.Stewart@p3.f44.n272.z1.fidonet.org
Organization: FidoNet node 1:272/44.3 - FudRuckers!! BBS, Poughkeepsie NY

Index Number: 24057

-> I was really glad to hear from you.  If you don't mind me asking, cou
-> tell me more about your "disease".  I have never actually talked to a
-> that was like myself.  My form of MD has been called so many things.
-> it was called Amyatoniacongenita (i'm sure I slaughtered the spelling
-> Then they changed the name to (they probably couldn't spell it either
-> Werdnig Hoffman's.  Could you tell me more about yourself?
->
-> My husband has a 386dx.  I haven't used it because the keyboard has s
-> large span that I can't reach all of the keys.  I'd be interested to
-> what programs you are using.
->
Well, they had always thought I had Polio.  Then, 4 years ago, at the
age of 35, they changed my diagnosis to Spinal Muscular Atrophy -
Intermediate.  The MDA neurologist I saw explained it to me as a very
gradual "dying off" of the nerves around the spinal cord.  They don't
know why they're dying, they just are.  They can see it happening
under a microscope but they can't stop it.

I'll be 40 next month.  I'm a student at Marist College studying
Computer Information Systems.  I'll be graduating in May.  I have a
GPA of 3.7.  I have a girlfriend.  We'd like to get married once I get
a good job.  I've been looking for a job for the past 3 years.  I hope
I can find something soon.  I want to do something with computers,
whether it be programming, word-processing, data entry, graphics or
whatever.  I'm also the editor of the Taconic Resources for
Independence newsletter... the independent living center in
Poughkeepsie, New York.  I'm also on their board of directors.

I use a program called AccessDOS from IBM which has many features for
persons with disabilities including key-latching for the control,
alt, and shift keys and MOUSEKEYS which allows you to use the arrow
keys as a mouse.  IBM will send a free copy of this program to
anyone who needs it.  I make my own mouthsticks from dowel sticks and
the nipples from baby pacifiers.  They work out great.  I can get up
to 35 wpm when I get going good.

                  Jim "Unicorn Tamer" Stewart

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Internet: Jim.Stewart@p3.f44.n272.z1.fidonet.org
From: Tim.Syfert@f15.n114.z1.fidonet.org (Tim Syfert)
Newsgroups: misc.handicap
Subject: Re: fast chairs
Date: 3 Sep 92 12:59:23 GMT
Reply-To: Tim.Syfert@f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference

Index Number: 24333

[This is from the Spinal Injury Conference]

 AH> How fast do the fastest wheelchairs go?  *adh*

How steep is the hill ????????

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Internet: Tim.Syfert@f15.n114.z1.fidonet.org
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Sweating
Date: 3 Sep 92 12:58:09 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Spinal Injury Conference

Index Number: 24324

[This is from the Spinal Injury Conference]

In a message to All <20 Aug 92 10:39> Greg Wick wrote:

 GW> Any Quads (I'm a C-5) have a problem with sweating at night? It
 GW> use to be just every now and then, but now it's almost every
 GW> night. I wake up after a couple hours just sweating. My leg jumps
 GW> if I take a deep breth. I get turned and I'm fine for the rest of

A full bladder will often cause that.  I know that was usually my
problem when I had the night sweats.

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Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
From: Walter.Siren@p18.f5.n396.z1.fidonet.org (Walter Siren)
Newsgroups: misc.handicap
Subject: Jaws Macros
Date: 1 Sep 92 21:08:02 GMT
Reply-To: Walter.Siren@p18.f5.n396.z1.fidonet.org
Organization: FidoNet node 1:396/5.18 - Pontchippi, New Orleans LA
X-Fidonet: Blink Talk Conference

Index Number: 24212

[This is from the Blink Talk Conference]

 SR> me.  But, in all honesty, if I ever abandon Flipper I imagine I'll
 SR> choose Vocal-Eyes, since Doug Geoffray's program is smaller and faster
 SR> than Jaws, yet as powerful as any screen reader around--except that it
 SR> doesn't use macros, of course.

Well, to me that does cut down on its power.  I have to aggree that
doug has a fine program as far as it goes.  Now, if he would only
add indexing to it, and tive a provision for the use of macros for
those of us who want to use them, and I don't mean with an outside
macro generator, then he would have maybe the best program out
there for now.

Walter

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