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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Mon, 31 Aug 1992 17:00:40 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2902
X-To:         LHCAP <l-hcap@VM1.NODAK.EDU>

                             THE HANDICAP DIGEST

                                 Issue # 2902

                           Monday, August 31, 1992

Today's Topics:


                                ******


                               MS/HELP/Fatigue
                               Re: Hello There
                               Stephen hawking
                             Re: canada calling
                          Austin, TX - ADAPT Action
                            Knowing where to look
                            Employment equity law
                                 Re: greets!
                               MS/HELP/Fatigue
                            Wheelchair Tow Truck


                                ******


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Subject: MS/HELP/Fatigue
From: Bruce.Couper@f401.n229.z1.fidonet.org (Bruce Couper)
Organization: FidoNet node 1:229/401 - The Connection HST!, Oshawa ON


AF>PROBLEM: How do I get enough rest so I can handle it.

Hi Aaron; good to see you again.  I'm pleased to hear about your new
job.

Your question has no simple answer, Aaron.  For some with MS, getting
enough rest means napping, for some it means just getting a good night's
sleep and resting as needed.  Some of us would describe fatigue as the
most disabling aspect of the disease; others seem much less bothered by
fatigue though they may have significant physical disability.

So?

So, you have to find what works best for you Aaron, and that may change
with time.  It took me years to learn to nap in the daytime; I still
must be quite exhausted before I can but even a 15 minute nap can make a
big difference.

Often, just a short, quiet rest can help, Aaron.  Try grabbing a short
rest whenever you can and learn to make it "quality" rest (get past the
feeling you're wasting time etc).  Try napping and see if that helps.
Try to conserve your energy; perhaps moving more physically tiring tasks
to after-work hours can help as can other little strategies we learn.  I
can remember when I would use all my energy to walk somewhere, leaving
me too tired to care about _being_ there and unable to function.  When I
got a little less stubborn, I learned to rest on the way, use a cane
etc.

Not much help I guess, Aaron; perhaps others have more to offer.

Peace

--
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Internet: Bruce.Couper@f401.n229.z1.fidonet.org




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Subject: Re: Hello There
From: Janet.Vibert@f6.n3615.z1.fidonet.org (Janet Vibert)
Organization: FidoNet node 1:3615/6 - The Hitchin' Post, Knoxville TN


JN>Wishing you the very best of luck with that hearing.  I had mine
JN>last November and received the POSITIVE decision in January.
JN>Nineteen months from date of first application to receiving that
JN>court decision, and about three more weeks for them to figure
JN>out the retroactive payments and send the first check.

Can I ask what your argument was?  When I applied for SS benefits after
my husband's accident of course it seemed to take forever.  They sent me
the figures and I was shocked, no, APPALLED, at the final figure after
they "adjusted" for the WC benefits.  He ended up getting a 10th of what
he was "entitled" to.  And or son got nothing even though he was
"entitled" to a around $300.  As spouse who is home with our son, they
wouldn't even figure it... guess they knew what it was going to be. $0
I heard so many horror stories there was NO WAY I was going to argue
with them!  I was terrified they would take the rest of it away.

Janet

 * OLX 2.1 TD * We all live in a yellow subroutine.

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Subject: Stephen hawking
From: Arlette.Lefebvre@f24.n3602.z1.fidonet.org (Arlette Lefebvre)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


      DISABLED PHYSICIST BOOK SETS BESTESSELLER RECORD:
  _______________________________________________________

London, England, July 2.

British Physicist Stepen Hawking, who has Lou Gehrig's disease,
entered the Guinness Book of World Records when his book, "A Brief
History of Time", outlasted any other book on the British
Bestseller List.

Hawking's explanation of black holes and the Big Bang theory has
been a bestseller for 184 weeks- more than 3 1/2 years- and it is
still selling more than 1000 copies a week.

       SOURCE: CBC News wire, Associated Press.

               A bientot, I hope...?

                                               Docteur Froggie.
===
 * DeLuxe/386 1.12 #3276 * If you don't start, it's certain you won't arrive
 * QNet3 * ADANET:41/62/19:Ability OnLine - Toronto Canada - 416/650-5411

--
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Subject: Re: canada calling
From: Ambrose.Moore@f24.n3602.z1.fidonet.org (Ambrose Moore)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


                --From the Voice of Ambrose Moore--

 WILLIAM BRACKENRIDGE

does get around.  This BBS is in Brisbane, the State capital of
Queensland.  I hope to hear from year again some time.

			      Bye,
			      William

 Hello William!

My name is Ambrose Moore, I'm a C/4-5 quadriplegic living in
Hamilton, Ontario, Canada.  I belong to a committee which deals
with issues concerning the upgrading of proper accessibility for
the disabled in our community.  What I'm trying to do is establish
links with other organizations/committess/departments who deal with
these issues.  Not only in Canada, but also on a global basis.

Can you perhaps tell me how accessible, [in general], Brisbane is
to the disabled?  Or, what kind of legislation\laws etc. had to be
implemented to improve, (if any), the accessibility. Do you know of
any advocacy groups who I can get further info. from?

I didn't purposely mean to dump this on you, but you're the only
person I've seen on this network from "Down Under".

Any info. that you may have will *gratefully* be appreciated.

Regards,
>From the Golf, Whiskey, November,

Ambrose Moore

--Voice Console, Go to sleep--
===
 * ACCESS/MAIL 1.00 #0307 * Can. DOS Prompt-"Like, Bad Command,eh?"
 * QNet3 * <ADANET> Canada Remote Systems - Toronto, Ontario - (416)798-4713

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Subject: Austin, TX - ADAPT Action
From: Bill.Scarborough@p0.f4.n382.z1.fidonet.org (Bill Scarborough)
Organization: FidoNet node 1:382/4.0 - River City MailBox, Austin TX


                  ADAPT ACTION IN AUSTIN, TEXAS
                         AUGUST 14, 1992

Sixteen ADAPT protestors were arrested Friday afternoon, August 14,
1992, at the office of the Texas Health Care  Association (the
nursing home lobby) at 4214 Medical Parkway in  Austin, Texas.
This was concurrent with similar ADAPT actions in  Chicago,
Illinois; Denver, Colorado; Philadelphia, Pennsylvania;  and
Lansing, Michigan.

--
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Internet: Bill.Scarborough@p0.f4.n382.z1.fidonet.org




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Subject: Knowing where to look
From: Arlette.Lefebvre@f24.n3602.z1.fidonet.org (Arlette Lefebvre)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


Bonsoir, my friends!

I have just finished the first draft of a paper for the new Ability
Network magazine, this afternoon, and would really appreciate
everybody's feedback about it...particularly on whether or not it
is way too simplistic or too general and hypothetical to be of
interest to the disabled consumers and health service providers of
this new Canadian publication. (Fasten your bbs-belts, this is a
very rough, first outline!)

             ---------------------------------------

What is the single biggest challenge facing health professionals,
educators and parents looking after disabled and chronically ill
children today?

My bet would be.. Keeping up with a rapidly changing field of
treatment options, educational resources and specialized services
mushrooming all over this country and continent, from day to day.

Mastering this challenge of increasing complexity is not unique to
disabled consumers or their providers/caretakers: every single
sector of the business world, be it industrial or service field,
every subspecialty of science, from medicine to the cosmetic
industry, is facing the same struggle of having to keep up with
rampant technological change, increasing technological complexity
and unprecedented information overload, just to stay "ahead of the
service game" or "abreast of scientific developments", as the case
may be.

What is unique about disabled individuals and their caregivers is
that they have to keep up with all of the above, simultaneously,
with often less time, energy, financial resources and mobility to
access the information resources which hold the key to optimal
quality of care, education, employment and leisure in a rapidly
changing world.

You will tell me that there are hundreds of parent education
courses, workshops, seminars and symposia offered to parents,
teachers and therapists of special needs children, from coast to
coast, every year. True enough; but attending these seminars often
requires taking time off work, arranging for a baby-sitter,
travelling sometimes long-distances and investing in
ever-escalating registration fees and course materials, when time,
money and baby-sitters are already often scarce.

There are also thousands of support groups and advocacy networks
whose sole 'raison d'etre' or mission is to represent the needs of
disabled people and, conversely, collect and distribute information
about resources and services which might be of interest to their
membership. I applaud and believe in this advocacy movement with
all my heart and past experience of 20 years of working and living
with disabled children. However, it has been my experience that
different groups have different skills and strengths.  * Some excel
in collecting information , such as books, audio and videotapes,
pamphlets, training manuals and medical references, having refined
into a fine art the delicate interpretation of medical
terminology,  educational protocoal and technical jargon (such as
computer hardware/software)  into accessible,layman' language.  *
Others specialize in fund-raising and public awareness campaigns,
heightening public sensitivity to the needs of their constituency,
supporting medical research and making it possible to build or
improve first class hospitals, rehabilitation centres and
specialized recreation facilities.
* Yet other support groups specialize in people-to-people
networking, ie the crucial bridging of experience, information and
encouragement that can only happen between pateients or relatives
who have shared a common experience or illness.

We need all three kinds of support networks: the Information
Collectors, the Social Advocates and the Person-to-Person
Go-betweens. However rarely has the odd industrious and
particularly lucky family had the opportunity to cross paths with
all three types of networks and information brokers by the time
their child enters school, or ailing parent require nursing home or
chronic care. So, with preciously little leisure time available to
spend on the phone or scavenge libraries, most caregivers of
disabled individuals end up relying on the specialized expertise
and limited information resources of their primary care-giver or
educator to guide them through the maze of "The System" out there,
feeling overwhelmed and helpless to access this system on their
own, in most cases.
      (Continued in next message)

               A bientot, I hope...?

                                               Docteur Froggie.
===
 * DeLuxe/386 1.12 #3276 * Don't wait for inspiration:go after it with a club
 * QNet3 * ADANET:41/62/19:Ability OnLine - Toronto Canada - 416/650-5411

--
Uucp: ..!uunet!bunker!hcap!hnews!3602!24!Arlette.Lefebvre
Internet: Arlette.Lefebvre@f24.n3602.z1.fidonet.org




------



Subject: Employment equity law
From: Tom.Williams@p7.f120.n129.z1.fidonet.org (Tom Williams)
Organization: FidoNet node 1:129/120.7 - Mac For The Mind, Pittsburgh PA


On 8/5/92, Arlette Lefebvre said to All...

  AL> Toronto,June 24.
  AL>
  AL> Eric Schryer, co-ordinator of Disabled People for Employment Equity,
  AL> says Ontario's proposed Employment Equity Legislation is needed to
  AL> tackle an unemployment and underemployment rate that is as high as 85%
  AL> among people with disabilities.
  AL>
  AL> He said that any firm with fewer than 6% disabled employees should be
  AL> heavily fined. He added that, following the model nowused in Germany,
  AL> the fines could be used to pay for making the workplace more
  AL> accessible.
  AL>
  AL> SOURCE: Globe and Mail, reporter Christina Mungan,p. A7 CONTACT:
  AL> Disabled People for Employment Equity, (416) 975-8340.

I couldn't help butting in on this one. As much as I believe that
disabled people should be hired and not discriminated against, I do
not believe in quotas.  I believe that quotas are as wrong as
discrimination. No one should be hired because he or she is in the
right percentile. A person, any person, should be hired because he
or she meets the qualifications. Personally, I don't think I would
even take a job if I knew that the only reason I was hired was
because I was filling some sort of mandatory limit.  IMHO, defining
quotas is a lazy way out for governments to stop discrimination.

Tom Williams

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Subject: Re: greets!
From: Christopher.Baker@f14.n374.z1.fidonet.org (Christopher Baker)
Organization: FidoNet node 1:374/14 - Rights On!, Titusville FL


[cross-posted from AMPUTEE Echo]

> Hey if you wish you can call my bbs....Diabetes Discussion...in Austin
> Tx.  It  is PC pursuitable and as you know I carry the echo.  Be gald to
> have you.  Number is 512-451-9737.

speaking of diabetes, Raya Systems [medical software and video game
developer] under license from Nintendo has created a SuperNES game
called "Captain Nolovin" that is designed as an educational tool.
it is intended to teach people with diabetes how to control the
disease thru diet and medication.

10,000 free copies are being distributed to healthcare
institutions. the rest will be marketed thru pharmacies and
diabetes supply companies and educators throughout North America.

i have no info on Raya Systems. the notice appears in this month's
issue of "Game Players Nintendo Guide," magazine [Vol. 5, No. 9,
Sep 1992].

i've left inquiries at Walgreens and Rite Aid here in Titusville.
if i get more info, i'll let you know.

TTFN.
Chris

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Subject: MS/HELP/Fatigue
From: Eric.Bohlman@p3.f89.n129.z1.fidonet.org (Eric Bohlman)
Organization: FidoNet node 1:129/89.3 - BlinkLink, Pittsburgh PA


 AF> the best policy. Now I dont know. Also I need a physical for the job
 AF> can they fire you on the grounds of what they find from it? My hardest

Assuming the employer is subject to the employment provisions of the ADA (i.e.
25 or more employees, not a religious organization, etc.) they could do so
only if the examination results specifically indicated that you were truly
unable to perform the job (fair enough).  This determination specifically
CANNOT be made on the basis of stereotype judgment (e.g. "nobody with MS can
do this job"); it has to be made on an individual basis.

They would NOT be able to fire you simply because you had MS, or because you
didn't tell them about (you can't be compelled to provide information about a
disability before being hired).  On the other hand, if you need accomodations,
the ADA specifies that it's your responsibility to ask for them, which may
involve explaining more about your disability.  Because it's your
responsibility, the ADA protects you from retaliation resulting from your
exercising this responsibility.

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Subject: Wheelchair Tow Truck
From: Bill.Burgess@p0.f401.n229.z1.fidonet.org (Bill Burgess)
Organization: FidoNet node 1:229/401.0 - The Connection HST!, Oshawa ON


An article appeared in Monday's edition of the Oshawa Times, and not the
Toronto Star as was indicated to Helen Peagrim, under the above heading.
It reads as follows:

Hamilton (CP) - A disabled man who spent hours pleading for help after
his wheelchair broke down has developed a service to rescue others.
"It's scary, believe me," said Charles Smith, 61, who helplessly
struggled to flag down motorists after his electric wheelchair conked
out.  "I just had to sit there."  Smith has started up a bus service in
which volunteer drivers will pick up people whose wheelchairs have
broken down, take them home and even get their chairs repaired.  People
in broken wheelchairs simply have to hand the service's phone number to
a passerby and ask the person to call it. End

I have always wondered how often this dilemna occurs and what recourse
you have.  This man took action.  Hopefully, others will, too.  TTYL
Bill

... Back up my hard disk? I can't find the reverse switch!

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                                ******

                  End of Issue # 2902 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU