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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Mon, 13 Apr 1992 17:18:33 EDT
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2580
X-To:         LHCAP <l-hcap@VM1.NODAK.EDU>

                          THE HANDICAP DIGEST

                               Issue # 2580

                           Monday, April 13, 1992

Today's Topics:


                                ******


                               Re: alt.autism
                   transtracheal oxygenation for emphysema
                             Sickle cell anemia
                            Ramana Ward Syndrome
                          Re: Phantom pain research
                          Re: phantom pain research
                           Re: Scientific American
                          Re: Phantom pain research
                          My daughter and special o
                          Congratulations in order


                                ******


To subscribe to the Handicap Digest mailing list or have your
thoughts in the next issue, please send electronic mail to
Bill McGarry at any of the following addresses:


UUCP:       {oliveb, isc-br, decvax}!bunker!wtm
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BITNET:     l-hcap@ndsuvm1.bitnet
Fidonet:    The Handicap News BBS (141/420)   1-203-337-1607
	    (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064

                              Bill McGarry (Moderator)
                              (203) 337-1518



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Subject: Re: alt.autism
From: wtm@bunker.shel.isc-br.com (Bill McGarry)

Altan Yazici (axy01%albnydh2.BITNET@vm1.nodak.edu) writes:

> It is fine, but there may be some people who cannot get access to
> newsgroups.  Myself, for example.  Is anyone interested starting a
> list on a listserv similar to l-hcap?

My suggestion would be to have a listserv mailing list that is gatewayed
to the newsgroup.  The objective is to get the maximum number of
people networked together.

This is basically how the Handicap Digest (L-HCAP) works -- it
is gatewayed with the misc.handicap newsgroup on Usenet.  In the
case of "alt.autism", you would NOT want either the mailing list
or the newsgroup to be moderated so an article submitted to the
mailing list would automatically be be submitted to the newsgroup
and vice-versa.

I notice that you are on a bitnet site so you may be able to get
the listserv list set up right there.  If not, I have one or two
places that would probably be willing to support a new list.  I
can also help in getting the gateway set up.

Another area that should not be overlooked is the Fidonet side.
Currently, there is not autism conference as far as I know but
I would be willing to start one up here on my Fidonet bulletin board
and get it distributed to on the Fidonet side.

                                Bill McGarry
                                (203) 337-1518

UUCP:       {oliveb, philabs, decvax, yale}!bunker!wtm
INTERNET:   wtm@bunker.shel.isc-br.com
BITNET:     l-hcap@ndsuvm1.bitnet
fidonet:    The Handicap News BBS (141/420)   1-203-337-1607
            (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064




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Subject: transtracheal oxygenation for emphysema
From: ori499391817@emunix.emich.edu (Karen B)

[Note from Bill McGarry: Is there anyone out there who can help Karen
 or give her some idea of where to go to?]

Bill McGarry,
	I belong to the C+Health discussion list and I am a new user of the
Internet.  I was interested in the subject of transtracheal oxygenation.
In particular, if anyone knows someone who is or has been using this
kind of oxygen support for emphysema. If so, I am interested in knowing
what the clients think of the treatment and how they are doing with it.
I sent this message to the list above and they gave me your address to
subscribe to the Handicap Digest mailing list.  I hope that this is the
appropiate list to subscribe to.  I would like to subscribe if it is.
Thank you for your time.

Karen B.  internet address (ori499391817@EMUNIX.EMICH.EDU)




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Subject: Sickle cell anemia
From: Bill.Smith@f24.n3602.z1.fidonet.org (Bill Smith)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


[This is from the Rare Disorders Conference]

HI My Name is Bill Smith and I have a 15 yr old daughter who is a
Freshman in Hi School and her class has assigned her to write a report
onn the subject of Sicle Cell Anemia.. We would like to know if there is
someone who could give us some insight into this Rare Disease that my
daughter could use to write a report on this Disease..  Many thanks in
advance.. Bill Smith  Sysop of Motherboard BBS  Victorville, ca.
619-243-9642  300/1200/2400
 * QNet3 * ADAnet * WPGS * Adelanto, CA * (619) 246-5166

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!3602!24!Bill.Smith
Internet: Bill.Smith@f24.n3602.z1.fidonet.org




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Subject: Ramana Ward Syndrome
From: James.Ellis@p0.f645.n105.z1.fidonet.org (James Ellis)
Organization: FidoNet node 1:105/645.0 - Rob's Wreck Room, Longview WA


[This is from the Rare Disorders Conference]

Can anyone either give me, or tell me where I could find, information on
Ramana Ward Syndrome (sp?) ?  I would like some rather detailed info, if
possible. Thanks.

... My Kharma ran over my Dogma..

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!105!645.0!James.Ellis
Internet: James.Ellis@p0.f645.n105.z1.fidonet.org




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Subject: Re: Phantom pain research
From: Robert.Thurlow@f5109.n124.z1.fidonet.org (Robert Thurlow)
Organization: FidoNet node 1:124/5109 - National Amputee Co, Dallas TX


[This is from the Amputee Conference]

>> CB>it also suggests that this 'neurosignature' is genetically encoded in
>>>the brain since those born without limbs or losing them in
>>>early childhood experience the same phantoms the later amputees do.
#>
>> The statement above is totally false.
#>
#>how do you mean that? you mean i have falsely related what the
#>article sez or that the article is false?

What I understand to be true is that congenital amputees do not have any
form of phantom sensation or pain; I have never seen a study that implied
otherwise, and I am inclined to want to ask some serious questions to
any "expert" who states otherwise.  Children born without limbs won't
typically draw the missing part when they draw pictures of themselves,
since their body image has never incorporated that limb.  It is a large
(and often futile) fight to get a child acustomed enough to thinking of
a prosthesis as part of himself to get "proper" use out of it, which is
one of the factors that lead the preponderance of children to reject
upper-extremity prostheses.  Some prosthetists would like to counter
this by hanging a prosthesis on a child at an extremely early age so
that the child will in future feel "naked" without it; that kind of
attitude is often associated with a willingness to fleece the parents
of a great deal of money.

One more comment, Christopher; Jim Jones expressed his displeasure at
the article because he felt it didn't allow enough room for physiological
causes or triggers for phantom limb pain.  Pain is interpreted by the
brain, but the impulses come from an often badly-treated set of nerve
endings, and any exclusively psychological analysis of phantom limb is
a step back in time twenty years, as I read the literature.  If you
feel that the article is a step forward, great, but please leave the
door open for other responses.

Rob T

--
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Internet: Robert.Thurlow@f5109.n124.z1.fidonet.org




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Subject: Re: phantom pain research
From: Bill.Baughn@f20.n112.z1.fidonet.org (Bill Baughn)
Organization: FidoNet node 1:112/20 - Medical Information, Jacksonville Fl


[This is from the Amputee Conference]

CB>how do you mean that? you mean i have falsely related what the article
  >sez or that the article is false?

Chris,

You got the quote right but the statement made in the article is,
like most articles about amputees, based on conjecture and
antidotal stories.  I am presently in contact with more congenital
amputees than the author of this article has ever seen.  None have
ever experienced phantom sensation.  Some tell me that as children
they have tried to imagine what it would feel like if the limb were
present.  I suspect that this was the case in the example he
cited.

My wife Joyce, lost her hands when she was almost seven years old.
She has never experienced phantom pain or sensation.

You will notice that the author offered no footnote and in the
sidebar entitled "suggested reading" he lists articles that he
authored.  If this is science I am a Chinese Brain Surgeon and I
don't even speak the language.

CB>your participles are dangling. [grin]

Criticism of this kind is something up with which I will not put. }:->

Bill B

 * SLMR 2.1a * ...2 HOURS to bury a cat??  Well it wasn't dead!

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!112!20!Bill.Baughn
Internet: Bill.Baughn@f20.n112.z1.fidonet.org




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Subject: Re: Scientific American
From: Christopher.Baker@f14.n374.z1.fidonet.org (Christopher Baker)
Organization: FidoNet node 1:374/14 - Rights On!, Titusville FL


[This is from the Amputee Conference]

> offers any new research. It is interesting and I do believe

you've heard that neurological patterning theory before?

> To me phantom pain is not psychological, it is more physical. I guess

all pain is psychological and neurological. it may have physical
stimulus but ultimately, pain is a product of the brain. [grin]

> himself has written, and all come from a neurological position.

that's where most pain research properly belongs, IMHO.

> This article presents only one side of that picture.

it covered the old theories, as well, if that is what you mean by
the 'historical' value.

i'd sure be happy to give mine to somebody else, though. [grin]

TTFN.
Chris

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!374!14!Christopher.Baker
Internet: Christopher.Baker@f14.n374.z1.fidonet.org




------



Subject: Re: Phantom pain research
From: Christopher.Baker@f14.n374.z1.fidonet.org (Christopher Baker)
Organization: FidoNet node 1:374/14 - Rights On!, Titusville FL


[This is from the Amputee Conference]

>>> The statement above is totally false.

>>how do you mean that? you mean i have falsely related what the
>>article sez or that the article is false?
>>your participles are dangling. [grin]

> I wish CB could talk to Joyce. He feels everyone experiences the same
> type of phantom pain and probably to the same degree.

when or where did i even imply such a thing? what do you mean by
same type? do mean degree or sensation source? i've had mine for 16
years with little change or abatement despite specific therapy and
surgery for same.

i don't understand where you are coming from in your condemnation
of the SA article, that's all. [grin]

TTFN.
Chris

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!374!14!Christopher.Baker
Internet: Christopher.Baker@f14.n374.z1.fidonet.org




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Subject: My daughter and special o
From: Sheila.Fava@f24.n3602.z1.fidonet.org (Sheila Fava)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


[This is from the Abled Athlete Conference]

If your daughter, Jessica, has Cerebral Palsy and is not mentally
impaired she would be elligible for the JUNIOR age group of the
U.S.Cerebral Palsy Athletic Association.  Here is the address:

U.S. Cerebral Palsy Athletic Association
Attention:  Mike Mushette
34518 Warren Road #264
Westland, Michigan 48185
Phone:  (313)425-8961

Since you live in Dallas, there -will_be- a competition held at the HAWS
Sports Center (I think it is at TCU) for Senior athletes (over 18) and
Junior athletes (over 10).  I would suggest you contact Dr. Claudine
Sherill, Professor of Adaptive Recreation (and I probably have her title
all messed up) and ask her advice as to how you can get Jessica involved
in adaptive sports.  If you have any further questions, do not hesitate
to ask.  Next time I will be prepared!

                    ---Sheila

                    *** HOST(ess) ADA - Athlete Conference ***
 * QNet3 * * Pick's Place * Green Village, NJ * 201-765-0164 * HST/v32 *

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!3602!24!Sheila.Fava
Internet: Sheila.Fava@f24.n3602.z1.fidonet.org




------



Subject: Congratulations in order
From: Sheila.Fava@f24.n3602.z1.fidonet.org (Sheila Fava)
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL


[This is from the Abled Athlete Conference]

             CONGRATULATIONS ARE IN ORDER

    Juan Dixon, a long time elite-level power lifter,
    is the United States Cerebral Palsy Athletic As-
    sociation's male athlete  of  the  year.  The 27
    year old  has  been lifting competitively at the
    national and international  level  for  the last
    twelve  years.  His recognized world record lift
    of  137.5 kg  (302.5 pounds)  was established at
    the 1990 World Championships in Assen Holland.

    Juan graduated from Roger L.  Putmnam  Vo-Tech High
    School in Springfield, Massachusetts.  He is a 1990
    graduate of Springfield Technical community College
    with a degree in  Computer  Maintenance Technology.

    Juan is an outstanding role model  and spends  much
    of  his spare time working with young athletes.  He
    is  on  the  Board  of Directors of United Cerebral
    Palsy  of  Western  Massachusetts as well as the US
    Cerebral Palsy Athletic Association Board of Direc-
    tors.  Juan's hobbies include COMPUTERS model rail-
    roads and reading.

    Re-Posted from UPDATE -- The Newsletter of USCPAA.
    Winter 1992  Vol. 5   Number 2

                    ---Sheila.

                    ** HOST(ess) ADA-ATHLETE Conference **
 * QNet3 * * Pick's Place * Green Village, NJ * 201-765-0164 * HST/v32 *

--
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Internet: Sheila.Fava@f24.n3602.z1.fidonet.org




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                                ******

             End of Issue # 2580 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU