HDTenEightyP/NetNews huggingface dataset:
From: roe@crosfield.co.uk (malcolm roe)
Newsgroups: alt.support.cancer
Subject: Fludarabine to treat chronic lymphocytic leukaemia.
Date: 21 Jan 93 18:23:34 GMT
Organization: Crosfield Electronics, Hemel Hempstead, United Kingdom.

A year ago my mother (73) was diagnosed as having chronic
lymphocytic leukaemia.  The standard treatment has not been
successful in controlling the condition and she has become
increasingly sickly.  Recently it was suggested that she start
treatment with a new experimental drug.  She has agreed.  ("I have
nothing to loose.")

The drug is Fludarabine.  Not surprisingly, there are possible side
effects including nausea, vomiting, rashes, greater susceptibility
to infections and, in some cases, damage to vision or hearing.  It
is normal to administer it in conjunction with an oral antibiotic
and Allopurinol.  The latter is prescribed for kidney problems;
whether as a consequence of the illness or the drug I don't know.

I gather that so far it has been given to about 2000 people in the
US and about 20 in the UK with promising results.  Has anyone on
the net had any experience of Fludarabine?  If so I would be
interested to hear your comments.

-- 
Malcolm Roe                            Phone  :  +44 442 230000 ext 4104
Crosfield Electronics Ltd              Fax    :  +44 442 232301
Hemel Hempstead, Herts. HP2 7RH, UK    E-mail :  roe@crosfield.co.uk 
------------------------------------------------------------------------
From: jito@netcom.com (Joichi Ito)
Newsgroups: alt.support.cancer
Subject: new breast cancer treatment?
Date: 26 Jan 93 13:51:20 GMT
Organization: Netcom - Online Communication Services  (408 241-9760 guest)

Hi. I am writing here on behalf of my mother who was diagnnosed with acute
breast cancer about twenty years ago. Since then, she has been treated
successfully with surgery and radiation therapy. It has been recurring in 
the bone in her spine and her hip, but with combinations of surgery and 
radiation we seem to get it to remiss. Recently she underwent surgery
and radiation in the third vertebrae after the cancer had deteriorated
the spine and impacted the nerve cells until she was paralized from her
neck down. Luckily, since the surgery, she has slowly recovered most of
her sensation and can stand for short periods.

Anyway, it's back. Since they've radiated the area so much, they can't
do it any more and are going to put her on chemo. I overheard some people
talking about a new breast cancer treatment that consisted of an injection
of a specially radiated chemical that attached itself only to the cancer
cells. Since her breast cancer cells are treated well with radiation
it sounded good to me. Her doctors at Stanford tell us that we shouldn't
try new drugs until there is no other choice.

I am sorry about my ignorance of the proper terminology, etc. I am just 
now getting acquainted with this area as I begin a struggle that I think
you are all facing. I just feel so useless in ignorant and I don't want
to miss anything that could help my mother. If anyone has any information
on new breast cancer treatments, I would appreciate it greatly.

TIA,

 - Joi
Newsgroups: alt.support.cancer
From: ekman@netcom.com (Crossly the Glad-Eyed Bear)
Subject: Re: Prostate Cancer--it's now in the bone  :-(
Organization: Home for the Terminally Infirm
Date: Wed, 27 Jan 1993 19:57:07 GMT

In article <1993Jan27.153129.375@ultb.isc.rit.edu> jnynge@ritvax.isc.rit.edu writes:
>Bill Bixby is alive and trying some experimental treatment.  I wish I could
>remember where I read this.  

Yes, so I've been told.  I was wrong.  :-)  Ok, that's two of us who are
still alive.

>I hope, Crossly the Glad-Eyed Bear, that you feel less pain soon!

Thanks.  The pain is already less.  Morphine sulphate is terrific.  The
hope is that the radiation will knock back the mets, and that will give
pain relief without the drugs.

-- 
Crossly the Glad-Eyed Bear              ekman@netcom.com
Home for the Terminally Infirm, Redwood City, California
From: azumier@ksg1.harvard.edu (ERIC AZUMI)
Newsgroups: alt.support.cancer
Subject: Anyone there?
Date: 21 Jan 93 13:35:13 GMT
Organization: Kennedy School of Government

I haven't seen any postings to this group.  Is there anyone in it?

Eric
From: eleea48@rosie.uh.edu (Thomas, Thomas)
Newsgroups: alt.support.cancer
Subject: CEA Test Levels
Date: 21 Jan 1993 11:14 CST
Organization: University of Houston
Distribution: world
NNTP-Posting-Host: rosie.uh.edu
News-Software: VAX/VMS VNEWS 1.41    

My mother was detected as having colon cancer two years ago.
The CEA level was 38, before she underwent the gamut of
surgery, radiotherapy and chemotherapy.
After all this, the CEA level went down, however recent 
CEA examinations, show the level to be increasing again.
Could anyone tell me,what could be the cause, and what else
could be done?
Thanks,

Thomas.
From: KATTAN@UHUPVM1.UH.EDU (Mike Kattan)
Newsgroups: alt.support.cancer
Subject: Re: Prostate Cancer--it's now in the bone  :-(
Date: 27 Jan 93 13:03:07 GMT
Organization: University of Houston
NNTP-Posting-Host: uhupvm1.uh.edu

In article <1993Jan27.030456.26233@netcom.com>
ekman@netcom.com (Crossly the Glad-Eyed Bear) writes:
 
>
>In article <1k10hfINNoi@menudo.uh.edu> KATTAN@UHUPVM1.UH.EDU (Mike Kattan) writes:
>>In article <1993Jan23.043330.2599@netcom.com>
>>ekman@netcom.com (Crossly the Glad-Eyed Bear) writes:
>>
>>>I had the bone scan today.  It showed two spots on the spine: one in the
>>
>>I hope not.  I had three bone spots and never really felt any of them.
>>Your case sounds like Bill Bixby's.  They said he was on Sumarin, or
>>something like that.  Maybe that's another option.
>
>I don't know too much about Bixby's case, except that I think he's dead,
>and I'm not--yet.  Anyway, mets are confirmed, but I'm assured that more
 
No, Bixby was interviewed on TV a couple nights ago.  I think he said he
was being treated at UCLA.  The sumarin seemed to be helping, and he was
able to go back to work as director of the show "Blossom."  He said his
vertebrae were black on the xray when they should have been white.
--
Mike Kattan  / Decision and Information Sciences  / University of Houston
Houston, TX 77204-6282 / 713-743-4734 / Fax x4693 / kattan@uhupvm1.uh.edu
==
From: ara@zurich.ai.mit.edu (Allan Adler)
Newsgroups: alt.support.cancer
Subject: Non-Hodgkins Lymphoma
Date: 26 Jan 93 14:40:46 GMT
Distribution: alt
Organization: M.I.T. Artificial Intelligence Lab.


I am posting this for my friend Joe Seif. Please address replies to him
at SEIFF@PACEVM.BITNET. NB: His last name has only one F but his userid
for some reason has two of them.

=============================================================================


Last year (December 1991) I was  diagnosed with Hodgkin's
disease, lymphocyte predominant. I had some enlarged lymph
nodes (below the diaphragm) and an enlarged spleen. The
diagnosis was made from the biopsy of a lymph node in the
groin. The pathology was verified by two other pathologists
at other reputable hospitals.

I was treated with 6 cycles of ABVD from January to July
1992.

There was some remission in that CT scans showed reduction
of size of some lymph nodes while others remained unchanged.
As the nodes were only marginally enlarged in the first
place, it was not not clear if they represented continued
disease. After more CT scans there seemed to be enlargement
is some more nodes. Another node was biopsied and now the
diagnosis was non-Hodgkin's lymphoma, diffuse mixed cell of
the T-lymphocytes. The pathologist, the same as the one who
made the first dignosis, says the first dignosis was in
error and the disease was non-Hodgkin's all along. All the
doctors I have talked to claim that such an error in
diagnosis is not surprising or uncommon. I am now getting CHOP
treatments in preparation for an autologous bone marrow transplant.

I would like to know if anyone else has had experience with
such an error, and how was it dealt with.

P.S. I get the postings of this note through an intermediary
so I would appreciate direct responses to

SEIFF@PACEVM.BITNET

Also does any one know if I can subscribe to this group
directly from my BITNET address? We do not have ftp or telnet
at this site, just email.

Joe Seif, Pace University, NY
SEIFF@PACEVM.BITNET
Newsgroups: alt.support.cancer
From: jsolomo@casbah.acns.nwu.edu (jessica solomon)
Subject: osteosarcoma
Organization: Northwestern University, Evanston Illinois.
Date: Wed, 27 Jan 1993 23:43:13 GMT

Hi!  I've been monitoring this newsgroup for about a month now, but I didn't
learn how to post until last night.  SO here goes...

I was diagnosed with osteogenic sarcoma in June 1988.  I underwent 4 rounds of
chemo (cisplatin and adriamyacin).  I had limb salvage surgery on my left
humerous.  After the surgery I had an additional 2 rounds of chemo.  In Sept.
1989 I had a recurrence in my lung.  I had a thoracotomy (sp?) to remove the
nodule.  Following this I had ten rounds of chemo (Iphosphomide and VP-16). 
My body didn't handle the chemo well at all.  Every month I was in the
hospital with infections.  I took daily shots of GMC-SF to stimulate white
cell growth.  I can't count the number of transfusions I had.  After 10 rounds
of chemo my doctors decided I couldn't handle any more.  I went to MD Anderson
for an experimental immunotherapy treatment called MTP-PE even though I was
clean.  I continued getting MTP-PE back at home in Washington, DC.  I'm now a
sophomore in college and have been clean since the nodule was removed in '89. 
I just had my last bone scan over winter break (it was fine, knock on wood)
and I'll probably have my last CT scan ever in the summer.

I haven't met anyone my age who's had osteosarcoma--everyone I've come in
contact with has seemed a lot younger.  I'm curious to know if there are any
cancer surviviors on this group who are about my age.  It's weird but at times
I've felt like I "knew" so much more about life than a lot of my friends did. 
A lot of their actions seem so childish.  I'd like to hear about others'
experiences with situations like these.  Thanks

			--Jessica Solomon
From: flatau@cs.utexas.edu (Arthur Flatau)
Newsgroups: alt.support.cancer
Subject: Re: remission in leukemia
Date: 21 Jan 1993 10:20:31 -0600
Organization: CS Dept, University of Texas at Austin
NNTP-Posting-Host: im4u.cs.utexas.edu


Well I talked to the doctor a little while ago and he confirmed that
the leukemia had returned.  It looks like we will do some more chemo
and then probably a bone marrow transplant.  Sounds like fun, huh?

Art
From: KATTAN@UHUPVM1.UH.EDU (Mike Kattan)
Newsgroups: alt.support.cancer
Subject: Re: Fludarabine to treat chronic lymphocytic leukaemia.
Date: Fri, 22 Jan 93 08:05:25 CDT
Organization: University of Houston
NNTP-Posting-Host: uhupvm1.uh.edu

Another way to find people who might have experience with Fludarabine is
to call the Anderson Network.  This is a network of M.D. Anderson Cancer
Center patients, and the phone number is (713) 792-2553 (I think :-)).
I believe it's the largest organization of cancer patients in the U.S.
Good luck.  Mike.
Newsgroups: alt.support.cancer
From: bkrumsee@magnus.acs.ohio-state.edu (Barb Krumsee)
Subject: Bone Marrow Transplants
Organization: The Ohio State University
Date: Fri, 22 Jan 1993 15:23:52 GMT


In article <93021.125353ICJPS@ASUACAD.BITNET> <ICJPS@ASUACAD.BITNET> writes:

I had a bone marrow transplant two years ago for ALL. If anyone has any 
questions, I'd be glad to assist. (I found my donor from the National Donor 
Registry).

Barb
-- 
*******************************************************************************
Barbara A. Krumsee, Systems Analyst        Email:  Barb.Krumsee@osu.edu
College of Education Computer Support      Phone: (614)292-5183
The Ohio State University                  FAX:   (614)292-5280
From: ekman@netcom.com (Crossly the Glad-Eyed Bear)
Newsgroups: alt.support.cancer
Subject: Re: Prostate Cancer--it's now in the bone  :-(
Date: 27 Jan 93 03:04:56 GMT
Organization: Home for the Terminally Infirm

In article <1k10hfINNoi@menudo.uh.edu> KATTAN@UHUPVM1.UH.EDU (Mike Kattan) writes:
>In article <1993Jan23.043330.2599@netcom.com>
>ekman@netcom.com (Crossly the Glad-Eyed Bear) writes:
> 
>>I had the bone scan today.  It showed two spots on the spine: one in the
>>thoracic area, and one at hip level.  The nuclear medicine specialist
>>hasn't seen it yet, to confirm that it's cancer, but I have little
>>doubt.  The back pains have been fierce.  If this is what a small spot
>>feels like, I hate to think what it's going to be like when it spreads.
> 
>I hope not.  I had three bone spots and never really felt any of them.
>Your case sounds like Bill Bixby's.  They said he was on Sumarin, or
>something like that.  Maybe that's another option.

I don't know too much about Bixby's case, except that I think he's dead,
and I'm not--yet.  Anyway, mets are confirmed, but I'm assured that more
radiation will knock them back and relieve the pain.  Meanwhile,
morphine sulphate will at least let me sleep.	Could be worse.  :-)
-- 
Crossly the Glad-Eyed Bear              ekman@netcom.com
Home for the Terminally Infirm, Redwood City, California
Newsgroups: alt.support
From: pooder@rchland.vnet.ibm.com (Don Fearn)
Subject: Missing subject header
Date: Tue, 26 Jan 1993 17:45:50 GMT
Disclaimer: This posting represents the poster's views, not necessarily those of IBM
Organization: IBM Rochester

Compared with everything else going on in my life, this seems kind of
trivial, but I've been thinking about it a lot lately (maybe to keep
myself on a lighter plane), so here goes .  .  .  .

How important is physical attraction in a relationship?  Why I wonder 
is, lately I find myself comparing Deborah to other women and some
times wishing she were more attractive.

She _is_ good looking -- my mom even said "elegant" when she first saw
Deborah' s picture, but I don't find her as physically attractive as
some women.

I especially compare her with Bonnie (my fiancee who was killed in a
traffic accident 1-1/2 years ago) and long to have Bonnie back.

My first attraction to Bonnie _was_ physical, and when I found an
intelligent, articulate, compassionate, confident personality to go
with her physical beauty, I knew I could love her for life.

With Deborah, it was the other way 'round.  I was first attracted by her
compassion.  I then found an intelligent articulate, confident
personality to go with the compassion.  In many ways Deborah and I
have more compatible personalities than Bonnie and I had.  We're a
good match.  And I do find her attractive.  She's a good looking woman,
and she takes good care of herself and always tries to look her best.

But there isn't the physical "charge" that I felt with Bonnie and feel
when I look at some other women.

I'm committed to Deborah, and I'm sure she and I will continue our lives
together, but it bothers me that I feel this way.

I haven't talked to her about it, except to tell her that it was her
compassion that attracted me first and the rest came as I got to know
her better.  I didn't lie to her, either (like I did to my ex-wife;
telling her how wonderful she was, how lucky I was to have married
her, blah, blah, blah, when I didn't mean any of it).

Well, that's what's on my mind, and any comments would be appreciated.

Thanks,

Don

-- 

   Pooder  -  Rochester, MN  
 ------------------------------------------------------------------------
  "What Do *You* Care What Other People Think?" -- Richard Feynman 
 ------------------------------------------------------------------------
From: vctr@engin.umich.edu (Michel Victor)
Newsgroups: alt.support
Subject: Some advice please
Date: 22 Jan 1993 11:21:41 GMT
Organization: University of Michigan Engineering, Ann Arbor
Distribution: world
NNTP-Posting-Host: howlingwolf.engin.umich.edu

I didn't know where to go. I was wondering if I could have someone's advice.
Late last spring, I met Mike and things went well. He was, at that time, 
withdrawn and sensitive to how others percieved him. He was also very kind and
giving. 
 You see, about three days ago was my birthday. He had been working in the lab
the night before my birthday, and I went to see him, for a break, and during
the conversation, somewhere --I don't know where-- the mood changed. The next
day, he completely ignored my birthday - no card, no hug, no nuthin'!
He later told me that something I had said to him the night before had offend-
ed him and this this indifference was a sort of revenge.
(He has since told me that he regrets that this happened, but has done nothing
to change it.)
 He tells me I'm paranoid, but I am genuinely hurt. 
 If I should try to forget that he did that (HARD!!), how should I do it?
---
There are a couple of things you should know:
   1) Out of financial circumstances, we live together.
   2) I plan to to move to the east coast soon, ah, but him....
   3) I don't know where to go.
Can anyone help me ??
  nena.
Newsgroups: alt.support,soc.motss
From: hutch@ibeam.intel.com (Steve Hutchison)
Subject: Re: One hell of a wake-up call.
Organization: Intel Corp., Hillsboro, Oregon
Date: Thu, 21 Jan 1993 03:02:40 GMT

bcapps@agora.rain.com (Brent Capps) writes:

>dyer@spdcc.com (Steve Dyer) writes:

>>In article <C0xDLy.8xp@agora.rain.com> bcapps@agora.rain.com (Brent Capps) writes:

>>If this guy died from the chemicals, it's news to me.  I believed he used
>>psoralens, drugs which are used to enhance tanning and treat vitiligo.
>>This sounds like an urban legend.

>I double checked my facts.  "Black Like Me" (1964) is the true story of
>John Howard Griffin, a reporter who had himself chemically altered to
>pass as black.  According to the blurb on the back of the video box,
>Griffin's premature death was attributable to long-term side effects of
>the pigment-altering chemicals he used.

Griffin died of melanoma contracted, they believed, as a side effect of the
exposure to UV rays.  In the book he described recieving injections of both
a sensitizing drug and of some form of melanin.  He got his initial tan in
a tanning table used for therapy - one of the old UVA models that has since
been shown to greatly increase risk of melanoma - and then spent two weeks
on the beach in Jamaica while injecting himself with the drugs, or taking
them orally.  After he darkened up to a fairly dark black, he continued to
take the melanin pills and possibly the psoralen as well, until he ran out.

After a few months as a black man in the South he started to "fade" and he
resorted to the old standby, walnut-stain skin dye, available as a treatment
for the skin condition where pigmentation is unevenly deposited.

All this from the book itself - the death by melanoma was described in an
afterword and on the dust jacket of the book in the library in Medford, OR
where I most recently read it.

Hutch
Newsgroups: alt.support
From: angelai@wam.umd.edu (Angela I.)
Subject: Re: Some advice please
Organization: University of Maryland, College Park
Date: Fri, 22 Jan 1993 19:29:32 GMT

In article <1jolc5INN7bt@srvr1.engin.umich.edu> vctr@engin.umich.edu (Michel Victor) writes:
> You see, about three days ago was my birthday. He had been working in the lab
>the night before my birthday, and I went to see him, for a break, and during
>the conversation, somewhere --I don't know where-- the mood changed. The next
>day, he completely ignored my birthday - no card, no hug, no nuthin'!
>He later told me that something I had said to him the night before had offend-
>ed him and this this indifference was a sort of revenge.
>(He has since told me that he regrets that this happened, but has done nothing
>to change it.)
> He tells me I'm paranoid, but I am genuinely hurt. 
> If I should try to forget that he did that (HARD!!), how should I do it?

I've been working on not doing less advising, and more listening, but
I could mention some things that I've been hearing lately (take them
for what they cost you)...

You don't have to tolerate being mistreated.  If you offended him, he
can either discuss it with you, so that hopefully it won't happen again
(or maybe he just misunderstood you), or he can distance himself from
you, which will, of course, hurt both of you.  But you have a right to
not be mistreated.  If someone hurts you, they can't fix it unless you
let them know what they did that hurt you - if they choose to make
amends they will, but don't count on it.  If there is something you want
or need from them, ask for it.  (Only be prepared: it may turn out that
what you _really_ want is something less tangible, and they may not
be able to provide that...)  The other thing is that you can't change
the way a person is.  Maybe this was just one incident, but if it is
really a string of incidents, it may be that this relationship (friendship
or whatever) is destructive, and time apart will help you each gain a
different perspective on it.

Please don't think of this as advice, just one way of looking at
the situation.  Good luck, and feel free to email me if you want to
talk further.  (I can't promise I'll reply immediately, but as soon
as reasonably possible.)

Angela

-- 
**************************  angelai@wam.umd.edu  ****************************
From: brooksp@hpcc01.corp.hp.com (Peter Brooks)
Date: Mon, 25 Jan 1993 20:38:46 GMT
Subject: Re: Yahoo!
Organization: the HP Corporate notes server
Newsgroups: alt.support.diet

/ hpcc01:alt.support.diet / npm@dale.cts.com (Nancy Milligan) /  9:41 am  Jan 21, 1993 /
>feeble hobble at the end of the walk.  Months later, my feet (my heels) STILL 
>hurt a little if I walk around barefoot too much, and when I first
>get up in the morning the first couple of steps hurt a lot.  :(


'Congratulations', he said with heavy irony.  You are now shoing the main
symptoms of plantar fasciitis; an inflammation of the connective tissue
supporting your arch.  I'd recommend a trip to a doctor, preferably a
podiatrist, though a good GP might be able to help.  You'd like to get
rid of the pain before bone spurs make the situation more painful.  My
PF is the thing that's making me an avid bicyclist; I literally cannot walk
> 5 miles per day for many days on end, due to the pain.

Pete Brooks
----------
From: shagan@gandalf.rutgers.edu (Susan R. Hagan)
Newsgroups: alt.support.diet
Subject: Re: Importance of water when dieting
Date: 22 Jan 93 20:58:31 GMT
Distribution: usa
Organization: Rutgers Univ., New Brunswick, N.J.

dyer@spdcc.com (Steve Dyer) writes:

Just curious, Steve.  Are you a doctor, nurse, or otherwise involve in
the medical profession.  I'm just wondering if your strong opinions about
water consumption are professional or a product of reading done out of
personal interest.

Not a flame - just interested.

-- 
Susan R. Hagan (shagan@gandalf.rutgers.edu) 
Publications Coordinator - User Services
Rutgers University Computing Services
Newsgroups: alt.support.diet