HDTenEightyP/NetNews huggingface dataset:
From: Natacha.Hall@f24.n3602.z1.fidonet.org (Natacha Hall)
Newsgroups: misc.handicap
Subject: Writer's block
Date: 3 Sep 92 12:54:39 GMT
Reply-To: Natacha.Hall@f24.n3602.z1.fidonet.org
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL
X-Fidonet: Rare Disorder Conference

Index Number: 24300

[This is from the Rare Disorders Conference]

 Hi peoples!!! It's me again... I need some help... You see, I'm writing
 this book on my disease, Scleroderma, and I'm having a major case of
 writer's block!!! Does anyone have any ideas of what I should write
 about now???  HELP ME POR FAVOR!!!  Wait a minute.This will be seen in
 the USA as well , won't it??? OK Just in case there are Spanish
 speaking, or French speaking people, here we go...
                                                  Thanks!!!

Espanol
   HOLA!!!  Nesecito ayudar... Escribo un libro, y no se que mas
   escribir!!! Estoy muy enferma con SCLERODERMA, y me gustaria escribir
   un libro... tienen ideas??? Ayuda por favor!!!...

                                        Gracias!!!

Francais
        Bonjour!!! SECOURS!!!....J'ecris un livre de mon
        maladie,SCLERODERMA,et je ne sais pas que je veux ecrire!!!
        Avez-vous suggestions???

                                  Merci !!!

    Your bud, Su amiga, ton amie,

         Natacha
                 Hall

===
 * OLX 2.1 TD * All wisdom is found on T-shirts.
 * QNet3 * ADAnet: Ability OnLine - Toronto Canada - 416/650-5411

 # Origin: ADAnet(tm) NetHub Birmingham, Alabama (205)854-9074  (94:94/1)

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Internet: Natacha.Hall@f24.n3602.z1.fidonet.org
From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: Re: LIGHTNING
Date: 28 Aug 92 16:19:40 GMT
Reply-To: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX

Index Number: 24043

[This is from the Chronic Pain Conference]

You may wantt o consider a whole (?) new approach - NEUROPSYCHOLOGY.
Suggest a neuro-psy exam ASAP with a qualified person. MOST STATE LIC.
LAWS ALLOW ANY psychologisat to call themselve a neuropsychologist.I
would want a competent person who Ph.D. is in "neuropsychology." For a
name, calll Dr, Samuel Brinkman Ph.D. 915/5590 day time hours CST.

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Internet: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org
From: janina@netcom.com (Janina Sajka)
Newsgroups: misc.handicap
Subject: Jerry's Orphans Needs You!
Date: 27 Aug 92 15:27:01 GMT
Reply-To: janina@netcom.com (Janina Sajka)
Organization: Netcom - Online Communication Services  (408 241-9760 guest)

Index Number: 23995

Tired of the Telethon?

...the annual pity party that parades people with neuromuscular
diseases across the stage for money, led by a national
spokesperson who built a career out of imitating people with
disabilities????

...the message that people with disabilities are nothing more
than charity cases incapable of doing anything for themselves????

So are we!

Boycott 7-11!!  Please shop elsewhere!

7-11 is a corporate sponsor of the Telethon.  We've asked them to
change.  But they ignore our request.  Since 7-11 thinks we're so
worthless, let's spend our money at places we are welcome as
valued consumers!!

For more information about a movement against the image of people
with disabilities portrayed by Jerry Lewis and the Thon, or where
to write 7-11, contact:  Jerry's Orphans, P. O. Box 388246,
Chicago, IL  60638.  (312) 477-3120 or 1172.
From: Felix.Game@f125.n163.z1.fidonet.org (Felix Game)
Newsgroups: misc.handicap
Subject: Purpose of this Echo
Date: 2 Sep 92 16:29:34 GMT
Reply-To: Felix.Game@f125.n163.z1.fidonet.org
Organization: FidoNet node 1:163/125 - FedNet Public Acces, Ottawa ON
X-Fidonet: Silent Talk Conference

Index Number: 24291

[This is from the Silent Talk Conference]

 On 08-25-92 ANN STALNAKER wrote...

 AS> Hi Felix and may I welcome you to SilentTalk!
        Thank you for the welcome.

 AS> Have you thought about perhaps it is OUR place to educate others
 AS> about hearing impairment?  Instead of cutting the medical profession
 AS> down, why not take a little time and talk to some of them about
 AS> yourself?  Of course, no two people are alike but I've found that
 AS> many physicians are actually interested and usually take the time
 AS> to listen to one when they tell them about their hearing loss.

        I was not aware that I had "cut down" the medical profession.
        I may have said that the ones I had to deal with did not want
        to listen to what I had to say. Those specific specialists I
        will cut down, for they failed in an important test of
        professionalism. If I was guilty of any generalization at all
        it would have been that I resent being prevented from
        dealing with the manufacturers of hearing aids directly. I
        resent this the same way I resent being prevented from
        dealing with a dental lab directly. The professions forcing
        themselves between me and the suppliers simply to ensure their
        continued livelihood at my expense will always be an irritant
        for me. I do not consider it necessary to have someone else
        confirm for me that I can hear better with a specific aid. I
        can try one out all by myself, and keep down the cost.

 AS> the medical profession is often under the impression that a lot
 AS> of assistive devices work for everyone.  This is not the case!

        So, does this mean that we are "in good hands"?

... OFFLINE 1.32
 * SLQWiK 1.02.d #UNREGISTERED

... via DeltaMail v2.30 (#1328)
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From: Allison.Cozzi@f3216.n161.z1.fidonet.org (Allison Cozzi)
Newsgroups: misc.handicap
Subject: aides
Date: 3 Sep 92 12:56:56 GMT
Reply-To: Allison.Cozzi@f3216.n161.z1.fidonet.org
Organization: FidoNet node 1:161/3216 - Computer Communicat, Concord Ca
X-Fidonet: Spinal Injury Conference

Index Number: 24315

[This is from the Spinal Injury Conference]

-> for "peanuts" at $16.25/hr. He thought that he should be paid more be

     Whew! Is this typical pay for an aide??? I don't require one so I
am one of the uninformed on the going pay for an aide.

                                                           Allison

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From: Earl.Appleby@p4.f429.n275.z1.fidonet.org (Earl Appleby)
Newsgroups: misc.handicap
Subject: Free At Last
Date: 4 Sep 92 20:27:48 GMT
Reply-To: Earl.Appleby@p4.f429.n275.z1.fidonet.org
Organization: FidoNet node 1:275/429.4 - HandiNet B B S, Virginia Beach VA
X-Fidonet: Able News Conference

Index Number: 24386

[This is from the AbleNews Conference]

ABLEnews

                        Free At Last

A judge has ordered the release of Adolfo Gonzales from the Oregon State
Hospital in Salem, ruling the Mexican migrant worker had been wrongly
diagnosed as paranoid schiziophrenic "for speaking in tongues."

The "tongues" in question were not a charismatic or Pentecostal
phenomena, but Gonzales's native Indian dialect of Trique.

Fortunately, a Catholic priest, Father David Zegar deciphered the speech
of the young man, believed to be in his 20s.

Unfortunately, the frail 5-foot-4 grape-picker had been a sedated inmate
of the mental hospital for two years at that point.

Hospital staffers ruled Gonzales, who spoke neither English nor Spanish,
"uncommunicative" and said the Indian made "peculiar gestures" such as
standing on one leg and squatting while eating.

"They thought he was mentally ill," said Rebecca Hillyer, the lawyer who
handled Gonzales's case. "He didn't understand why he was in prison and
why they were giving him medication. He was very sad. He hadn't spoke to
his family....They thought he was dead."

...For further information, contact CURE, 812 Stephen Street, Berkeley
Springs, West Virginia 254511 (304-258-LIFE/5433).

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From: Jack.O'keeffe@f26.n129.z1.fidonet.org (Jack O'keeffe)
Newsgroups: misc.handicap
Subject: Re: PURPOSE OF THIS ECHO
Date: 2 Sep 92 16:27:22 GMT
Reply-To: Jack.O'keeffe@f26.n129.z1.fidonet.org
Organization: FidoNet node 1:129/26 - SoundingBoard, Pittsburgh PA
X-Fidonet: Silent Talk Conference

Index Number: 24281

[This is from the Silent Talk Conference]

 FG>    I was going out of my mind trying to function in a
 FG>    boardroom environment where people were addressing me
 FG>    with mumbled questions from ten feet away and all I
 FG>    could hear was the air conditioner. It also happens every
 FG>    time I am in a restaurant; my aid picks up everything
 FG>    except the person across the table.

Conference rooms and restaurants are two of the most difficult
settings for hearing aids, Felix.  Aids alone are generally not
capable of extracting the sounds you want to hear from all the
background noise pollution.

Have you tried ALDs (Assistive Listening Devices)?  There are at
least four technologies available to get the sound-of-interest
from the source to your ear (or hearing aid) with relative
immunity from extraneous noise pollution.

 FG>    I really, truly believe that technology today is able
 FG>    to do better.

I certainly agree with you there.  The technology exists NOW.
Hearing aids are the only remaining fragment of the audio
amplification industry that stubbornly clings to obsolete
analog systems.  Everything else has long since gone DIGITAL.

The one serious attempt to market a true DSP hearing aid
(Nicolet's "Phoenix") was defeated IMHO by the audiologists
and hearing aid dealers who were unwilling to invest a few
of THEIR $$ in the equipment necessary to fit it.

 FG>    Perhaps we have to wait till the next generation, one
 FG>    that is deliberately ruining their hearing with
 FG>    ghetto-blasters etc, become "the market"

Why should the hearing aid industry change, even then?
They've got a good racket going.  Taking about $20 worth of
electronic components - packaging them compactly - and selling
them for more than the price of pure gold!  Quite a racket,
as long as us "suckers" don't wise up ;-)

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From: Bruce.Couper@f401.n229.z1.fidonet.org (Bruce Couper)
Newsgroups: misc.handicap
Subject: Wheelchair Tow Truck
Date: 31 Aug 92 12:27:47 GMT
Reply-To: Bruce.Couper@f401.n229.z1.fidonet.org
Organization: FidoNet node 1:229/401 - The Connection HST!, Oshawa ON

Index Number: 24076

BB>out.  "I just had to sit there."  Smith has started up a bus
  >service in which volunteer drivers will pick up people whose
  >wheelchairs have broken down, take them home and even get their
  >chairs repaired.  People in broken wheelchairs simply have to hand
  >the service's phone number to a passerby and ask the person to call
  >it. End

BB>I have always wondered how often this dilemna occurs and what
  >recourse you have.  This man took action.  Hopefully, others will,
  >too.  TTYL

I've had my scooter's batteries die suddenly (internal short) in
downtown Calgary a few years back.  Calgary Handibus would give priority
to sending a bus and driver to rescue someone in such a case and in
fact, they were there quickly and the driver was able to push me and the
scooter.

If I had a breakdown while I was out such that it would be difficult or
impossible for Handibus to manage a rescue (a wheel fell off?), I would
have called the medical supply company who supplied the wheelchair; they
were all pretty good about that sort of thing.

I'd be a bit more worried, here.

I've been stuck twice since moving back to Oshawa.  Once, I misjudged
where the curb ramp was and dropped my front wheel over, getting the
chassis hung up; the second, I got bogged down in loose sand where a
sidewalk was torn up.  Both times I waited literally only moments before
strangers gave me a hand.

I think a volunteer-based rescue service such as you reported would be a
very good idea.  Affordable cellular phones would help, too.

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From: Robert.Schoenfeld@f3.n2603.z1.fidonet.org (Robert Schoenfeld)
Newsgroups: misc.handicap
Subject: transportation
Date: 31 Aug 92 12:24:40 GMT
Reply-To: Robert.Schoenfeld@f3.n2603.z1.fidonet.org
Organization: FidoNet node 1:2603/3 - Net2603 Echomail Co, Bay Ridge NY

Index Number: 24059

I am interested in hearing from people about the transportation
systems where they live, how accessable are they now, how much
input they put into the public hearings for the accessability plans
that had to be filed with the DOT and how did the authorities take
care of complaints. I would also appreciate addresses and telephone
numbers to contact the various authorities to get copies of their
plans to put into my data base. I already have the plans for lower
NY NJ and connecticut for the railroads, subways and light rail and
also for Boston. Also the buses in downstate NY and NJ. Would like
to set up a transportation forum on DEN to coordinate the info
perhaps

                                             BOB

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From: fstruwe@unlinfo.unl.edu (Jacque Virts)
Newsgroups: misc.handicap
Subject: Re: GUIDE DOG BLUES
Date: 27 Aug 92 15:11:08 GMT
Reply-To: fstruwe@unlinfo.unl.edu (Jacque Virts)
Organization: University of Nebraska - Lincoln
X-Fidonet: Blink Talk Conference

Index Number: 23989

Have you tried enlisting the help of the organization from which you
obtained your guide dog?  It's my understanding that Seeing Eye, for
example, will "go to bat for you" in cases such as this.  Just a
thought.

My husband and I just walk right in to places without hesitation and
really don't give anyone the chance to say "no" to us, but I supposed
we've been lucky so far.  I have learned over the years to never give
people advance knowledge about things which they could use against me,
and this is just one more example!

Best wishes in your battle with these hotels.  They should be taken to
court for discrimination!

Jacque Virts
Thank you F. John for letting me use your computer!
From: Ann.Stalnaker@f2120.n124.z1.fidonet.org (Ann Stalnaker)
Newsgroups: misc.handicap
Subject: On Signing....
Date: 2 Sep 92 16:28:28 GMT
Reply-To: Ann.Stalnaker@f2120.n124.z1.fidonet.org
Organization: FidoNet node 1:124/2120 - Fingers Talk, Irving TX
X-Fidonet: Silent Talk Conference

Index Number: 24286

[This is from the Silent Talk Conference]

 CP> you know, for some reason, i was just thinking that the european hearing
 CP> community has no trouble learning the local "official" language first
 CP> (whatever that might be, from romanian to polish to french to italian to
 CP> welsh to danish, etc), and a VERY high percentage of that population write
 CP> and speak fluent english as a second language, learning
 CP> it in our equivalent
 CP> of grade and high school...

 CP> odd that you believe american deaf cannot do the same...

Caren, it is not so much that I believe this - it is absolutely true that
many deaf people who only use ASL do NOT comprehend the English language
and thus write in ASL.  I've seen it happen and I see it still happening
today.  I have chatted with many of them on the TT as well as on the
CPU and they type like they are conversing in ASL.

Having lived in Europe for a number of years, I'm aware of how well
the Europeans read, write and speak English.  It is the International
Language, however, the Europeans start learning English at a very
young age and it continues onto higher education.

Perhaps we should put the blame on deaf education in the US - on
the teachers who are not fully qualified - there seems to be more
of them who are not qualified than there are qualified teaching
Deaf Education.  I'm not too flavorable of Deaf Education as
I feel mainstreaming works better and the more deaf children
are around their hearing counterparts, the more they learn and
vice versa.  In several states certain schools are devoting
more time to mainstreaming, doing away with Deaf Education
and setting aside an hour a day for specialized training such
as speech therapy and speechreading.  Many of the deaf children
are starting these classes at pre-school age, i.e. 3 years of age,
and these programs are very successful.  There are several of such
schools in Texas (here in DFW) as well as in Louisiana and several
other states.  Somewhere, English has to become the primary language
so that deaf children can become proficient at reading and writing
English.  It is really needed when they become grown and go out
to live independent lives.  Let's face it, the hearing world
is NOT going to learn ASL, sure there will be a few but the
overall general consensus is not going to do it.

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Internet: Ann.Stalnaker@f2120.n124.z1.fidonet.org
From: Jim.Brown@f98.n374.z1.fidonet.org (Jim Brown)
Newsgroups: misc.handicap
Subject: On Signing....
Date: 1 Sep 92 04:05:08 GMT
Reply-To: Jim.Brown@f98.n374.z1.fidonet.org
Organization: FidoNet node 1:374/98 - The SCAM, Rockledge FL
X-Fidonet: Silent Talk Conference

Index Number: 24112

[This is from the Silent Talk Conference]

HB>JB>I am learning to sign, and I don't know why.  I only know it is
HB>JB>important that I learn.  Perhaps some day God will tell me why.

HB>How about the mystery side of it?

Hughes,
Signing is not a "mystery" to me.  I do indeed have a limited sign
vocabulary, only a couple hundre words,  but it is not mysterious.
I guess I didn't make myself clear,  I am learning sign because
inside something is telling me it is important that I sign.  I do
not have a reason, a family member, or a co-worker or even just a
friend who is deaf.  I just know it's important to learn.

JB>"I have surpised myself on a couple of occasions because I was REALLY
JB>able to communicate in sign! I want to sign, not to set myself apart,

HB>The mystery comes out that he is SURPRISED that he can REALLY
communicate.

Again, I guess I did not make myself clear.  I have been learning sign
for almost a year now.  I am continuously frustrated because my  sign
vocabulary does not match my English vocabulary.  What I was trying to
say here was I am surprised that I have learned enough signs to actually
talk to someone.  It's not that I am surprised this is a language, it's
that I have learned enough of it to get someone to understand me.  I was
surprised, in exactally the same way, when I was able to get the people
of Paris to understand me with my minimal-no miniscule- knowledge of
French.  Do you see the difference?

You are right, Hughes, there is only one family of man with only one
Father.

With much appreciation,
Jim

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From: Jim.Thatcher@f49.n272.z1.fidonet.org (Jim Thatcher)
Newsgroups: misc.handicap
Subject: window bridge and syntha-voice
Date: 1 Sep 92 17:35:32 GMT
Reply-To: Jim.Thatcher@f49.n272.z1.fidonet.org
Organization: FidoNet node 1:272/49 - Calliope's Den, Garrison NY
X-Fidonet: Blink Talk Conference

Index Number: 24169

[This is from the Blink Talk Conference]

As another Screen Reader/2 bigot (and developer) I have tried to
restrain myself, but I could not resist Paul's question.  Absolutely,
they would be willing to risk their reputation.  I know that for
positive with one of my friend Joe Lazarro's articles in Byte.  They
get paid for articles, not truth.

Jim Thatcher  (thatch at watson.ibm.com)

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From: Mike.Freeman@f126.n105.z1.fidonet.org (Mike Freeman)
Newsgroups: misc.handicap
Subject: Re: Nls And Nfb
Date: 1 Sep 92 17:39:51 GMT
Reply-To: Mike.Freeman@f126.n105.z1.fidonet.org
Organization: FidoNet node 1:105/126 - Lawson & Reay, Vancouver WA
X-Fidonet: Blink Talk Conference

Index Number: 24179

[This is from the Blink Talk Conference]

In a message to Warren Figueiredo <30 Jul 92 19:38> Dan Kysor wrote:

 DK> i would like to see more books that
 DK> are present in books stores and not
 DK> those titles present on old dusty shelves.

Hi, Dan.

On the contrary, I would like to see *less* stuff from bookstores
recorded/Brailled and **more** stuff from old dusty bookshelves.  While
I admit there are a number of fascinating titles coming out at Walden
Books or the other stores (and one can wander for years thru the
catacombs of Powell's Bookstore in Portland, oregon, the largest
bookstore in the world), it is my opinion that most of the stuff
currently written (and recorded/Brailled, for that matter) is sheer
crap.

Oh, well!  Guess we make NLS's life difficult, if interesting {grin}.

Cheers!

Mike Freeman
___ CRR QWK 1.40

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From: CC38%SDSUMUS.BITNET@VM1.NoDak.EDU (Larry Peterson)
Newsgroups: misc.handicap
Subject: Problems with the VA?
Date: 28 Aug 92 14:01:02 GMT
Reply-To: CC38%SDSUMUS.BITNET@VM1.NoDak.EDU (Larry Peterson)

Index Number: 23997

I am new to this list and I have a question for you out there?

My disability is currenly listed as Labyrinthitis, which is a
disfunction of the balance network in the middle ear.  My disability
is the result of a SURGEON in a VETERAN's ADMINITSTRATION hospital.

Is there anyone out there that is also having a great time with the
VA and is having difficulties dealing with them?

I would be pleased in communicating with someone who either has
had dealings with the VA and or has Labyrinthitis.

I am looking down the road and what I want to see as positive, is not
necessarily positive.
From: ANDY.ANDERSON@p11.f116.n138.z1.fidonet.org (ANDY ANDERSON)
Newsgroups: misc.handicap
Subject: amusement parks & wheels
Date: 31 Aug 92 12:23:33 GMT
Reply-To: ANDY.ANDERSON@p11.f116.n138.z1.fidonet.org
Organization: FidoNet node 1:138/116.11 - Group Medical BBS, Tacoma WA

Index Number: 24054

Hello Bob!

Monday August 10 1992 11:52, Bob Dunlap wrote to All:

 BD> the lines were impossible to navigate, so i would leave my wheelchair
 BD> by the strollers and stand in line.

Be thankful you can still leave your chair.

 BD> has anyone else experienced similar difficulties?

And too many others to mention,I (personally) have come to the
conclusion that in order for everything to be "completely"
accessible,the cost of everything would be so high as to be out of
reach of most people.Myself,if I find a place that is un
accessible,I don't go back there again.

ANDY

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From: dashiell@nadc.nadc.navy.mil (Jude DaShiell)
Newsgroups: misc.handicap
Subject: Re: medical insurance
Date: 28 Aug 92 14:18:17 GMT
Reply-To: dashiell@nadc.nadc.navy.mil (Jude DaShiell)

Index Number: 23998

What ever you do, make sure you don't become incontinent to the
point where it's a heavy flow condition and all the hospitals and
those are teaching hospitals can tell you is that you'll have to
wear $150 per set diapers for the duration since the medicines
don't work.  A friend of mine who went to the same school I did got
unlucky enough to acquire this condition and his medical insurance
won't cover any of this!  If medical insurance is going to work
like a screen door in a submarine after the torpedoe has hit we'd
be just as well off without it!

It is true that people with incontinence are abused as much by the
insurance industry as anywhere else in society.  Any of you who
read this list who have had experience with it as I have and very
probably will again because of genetic inheritance will know it's
as much a handicap and less talked about than child sexual abuse in
this country as any other handicap.

<dashiell@nadc.navy.navy.mil>