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Date:         Thu, 13 Aug 1992 08:03:51 EDT
              <AUTISM@SJUVM.BITNET>
From:         Anne Pemberton <apembert@VDOE386.VAK12ED.EDU>
Subject:      Re: losing speech
X-To:         AUTISM%SJUVM.BitNet@pucc.princeton.edu
              "LNCJB@cc.newcastle.edu.au" at Aug 13, 92 2:40 pm

As Ray says, the statistics indicate that a handicapped child is
frequently a stressor that pushes marriages "over the edge".
Most
of my students are in single parent families, but those in
intact
families are often the ones with enough self-confidence to
conquer the odds and become "success" stories.

Deborah Good: I've tried printing materials for my LD students
on colored paper. Some kids like it better, but there was no
noticeable difference in grades. One student VASTLY improved
his reading by putting a blue overlay over the page; for the
rest it made no difference, or made it difficult to read. One
time, when I printed a test on goldenrod (deep yellow) paper,
one student had such a difficult time with it, that I gave
him the white paper original to read from, and he used the
goldenrod to mark the answers on.

The overlay films that are sold to schools for this purpose are
VERY expensive (one of the other special ed teachers' mother
sent us the blue ones; I don't have any other colors to try),
so if anyone knows where to get a small supply of a variety of
colors, it may be helpful to share the information. Seems they
should be available in office supply places, but I haven't
found them yet.

             Anne
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Date:         Wed, 12 Aug 1992 16:11:55 -0400
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: supportive networks

Dear Jim,
        I think most of us would agree to do anything we could
in order to keep you on the list.I agree with Serge,DELETE...!!!
Stay with us Jim,you certainly have made this list very enjoyable,
and very informative.I for one have appreciated your perspective
immensely.



Rosanne
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Date:         Sun, 16 Aug 1992 08:16:20 EDT
              <AUTISM@SJUVM.BITNET>
From:         DRZ@SJUVM.BITNET
Subject:      Re: No time for a long message...

Dan,

Congrats on the news.  I hope you have a wonderful life.  Mazel Tov.

Bob
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Date:         Sun, 16 Aug 1992 22:28:16 -0400
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: losing speech

Carolyn,
       No, Eric's hand writing,although not terrific,is better
than Steven's.He's the one who's style resembles yours'.Whenever I
expressed concern over this ,as early as the 2 nd & 3rd Grade,his
teachers would laugh and say"he'll make a great doctor".
I tried to get him to practice at home,but ,to no avail.
He's extremely nearsighted,and wears contact lenses.Neither
my husband nor I wear glasses( yet ).
   Where Steven's concerned,I thank God for computers etc.
Rosanne
P.S. both boys have very good fine motor,so it never made
much sense.
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Date:         Sun, 16 Aug 1992 11:04:00 +1000
              <AUTISM@SJUVM.BITNET>
From:         LNCJB@CC.NEWCASTLE.EDU.AU
Subject:      Re: losing speech
X-To:         AUTISM%SJUVM.BITNET@pucc.Princeton.EDU

Rosanne,

I KNEW I had the problem as far back as I can remember, but nobody believed
me and kept telling me it was all in my imagination. Everyone except my
mother even denied that I suffered from 'frequent headaches'. I had an EEG,
brain scan, etc. done to find the cause of the headaches, but the only
abnormal result was the level of alpha wave output, which they regarded as
only 'slightly abnormal'. In the end all the doctors and optometrists told me
that my headaches were psychosomatic and that I needed psychiatric counselling.
Even after the psychiatrist told me that I was the most 'un-uptight' person
he had ever met, the headaches still continued.....so I just learnt to grin
and bear it. I developed strategies that allowed me some extension of
the time I could read before my eyes gave out on me. I only read for 5 minutes
then rest my eyes (invariably falling asleep during this phase) in a darkened
room....sometimes I used a blue lightbulb for illumination although mostly
I chose 25W incandescent lightbulbs for nightime reading and then would sit as
far away from it as I could get. After I started doing this of course, every
one blamed 'poor light' for my headaches. It was out of sheer pigheadedness
that I survived my education - it was only because my father was so adamant
that an education was a waste of time for a girl that I persevered, but it
helped to have my mother in the background, handing out the headaches tablets
and the TLC, while telling me "There's nothing you can't do, if you put your
mind to it".

There has been a lot of criticism of Dr. Robinson's work by 'uninformed'
experts. Whenever I hear that he is involved in another hassle, I go back to
see him and give him a pep talk. I, also, make sure I attend those functions
where he is liable to meet his critics - he never asks me to, but he always
is happy to see me there. He's my friend for life. I love anyone who eases my
pain - the same reason I belong to this list.

Carolyn
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Date:         Thu, 13 Aug 1992 08:56:51 EDT
              <AUTISM@SJUVM.BITNET>
From:         "Dan M." <D6M@CORNELLA.BITNET>
Subject:      Re: test test
              8 Aug 1992 11:36:00 +1000 from <LNCJB@CC.NEWCASTLE.EDU.AU>

Congratulations on finding Dr. Fenelon. He sounds great.  It is such a relief a
nd comfort to work with professionals you feel you can trust.  We've worked wit
h those we could and could not trust and it makes all the world of difference.

Dan M.
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Date:         Sun, 16 Aug 1992 20:21:59 -0400
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: No time for a long message...

Dear Dan and Lauren,
                       CONGRATULATIONS !!!!!!
                       Mazel Tov ....La Chaim
                       XOXOXOXOXOXOXOXOXOXOXO
                                                        Rosanne
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Date:         Fri, 14 Aug 1992 11:34:00 +1000
              <AUTISM@SJUVM.BITNET>
From:         LNCJB@CC.NEWCASTLE.EDU.AU
Subject:      Re: losing speech
X-To:         AUTISM%SJUVM.BITNET@pucc.Princeton.EDU

Anne,

There are two groups of children who may be helped by using overlays - those
who are photophobic and those who have the condition described as 'scotopic
sensitivity' (I am both photophobic and scotopic sensitive) and I believe
that both of these conditions are directly connected to HFA. With photophobia
glare reduction may be all that is necessary...turning off artificial lights
or allowing the child to wear 'glare' glasses.....blue overlays help this
group as well by reducing the contrast between the print and the page and
preventing light reflection by white paper. Scotopic sensitivity, on the
other hand, is sensitivity to particular wavelengths of light which can
occur in any part of the spectrum. I prefer to use blue overlays or blue
paper......I find the blue paper best....no matter how clear the overlay there
is always some degree of distortion.

Perhaps rather than trying to handle the cost of overlays yourself, you should
seek help from the parents of the children you suspect of having either of
these conditions to see if they are willing to provide their children with
these aids. I believe the majority of parents (even the single ones) will go
out of their way to help you help their child. Three of my family wear Irlen
lenses and I have never regreted their expense.....I couldn't use this
computer at all if I didn't have them.  Both Tony and Helen have also been
helped enormously by wearing them. Tony grades immediately showed a marked
improvement...he wouldn't have reached Year 12 without them (how he survived
8 years of schooling without being able to read anything written on the
blackboard, really amazes me) and I doubt Helen could have attained her
high reading level without them either.....I have never had to insist that she
wear them....she chooses when she wants to wear them herself. Her teachers
told me that she has been wearing them in the classroom most of the time lately
(I suspect that because it is winter here, they are using the fluorescent
lights more often during class, whereas in summer the indirect sunlight does
not cause her too much trouble, so she often leaves her glasses off).

What is the lighting situation like in your classroom? Is there any way you
could make it more subdued? That may be all that is necessary to help these
children.

Carolyn
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Date:         Mon, 17 Aug 1992 22:52:45 PDT
              <AUTISM@SJUVM.BITNET>
From:         lexier@SFU.CA
Subject:      Re: Thanks for the congrats...
X-To:         AUTISM%SJUVM.BITNET@uga.cc.uga.edu
              17, 92 8:45 pm

Hello Speed Bump,

No, I love to go out to restaurants.  I would only not care to go much to fancy
 restaurants only because it is for the rich only in my opinion.  Also, I lack
embarrassment, so it doesn't bother me if the company I am with thinks of me as
 a nice fellow or a geek, nerd, retard, faggot, oddball, wierdo, pig, etc.  My
 favorite food is ethnic (especially Chinese), pizza, and seafood.  I do not
 really care for just n
orth american food.  Talk to you later,
   Lyle
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Date:         Thu, 13 Aug 1992 03:27:00 EST
              <AUTISM@SJUVM.BITNET>
From:         Speed Bump <DNWIEBE@OWUCOMCN.BITNET>
Subject:      Re: supportive networks

Don writes:
>I noticed that Dan and Lauren  have quit this list,  as well as Jim.
>What's really needed in order for there to be a supportive network
>among autistic individuals?

        Neither Lauren nor I have quit the list.
        Lauren is not autistic.
        The reason I haven't posted anything recently is threefold.  First,
I've been on vacation for a week.  Secondly, I have very little medical or
special-education background, and many of the posts on the list are
technical enough that it's difficult for me to get enough of a handle on
them to participate in the discussion.  (I'm not implying that that's
bad; I'm just not likely to take part in such discussions.)  Finally, Dr.
Bob mentioned some time ago that some of the posts on the list were of too
limited interest to waste bandwidth on (for example, I suspect, the one I
posted during the allergy discussion about haying on a farm), so I've been
trying not to do that anymore.
        That's why I've been silent.

Shalom,
Dan
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Date:         Sun, 16 Aug 1992 09:53:47 PDT
              <AUTISM@SJUVM.BITNET>
From:         Lyle Lexier <lexier@SFU.CA>
Subject:      Congratulations Dan and Lauren!
X-To:         AUTISM%SJUVM.BITNET@uga.cc.uga.edu
              "DOC%VTVM1.BITNET@uga.cc.uga.edu" at Aug 16, 92 12:29 pm

CONGRATULATIONS GO OUT TO DAN & LAUREN!
I am pleased to hear that you are getting married after all.  I hope that
the rabbi gives you a good ceremony under the chupah.  May you have lots of
Shalom and peace.

MAZEL TOV,
      Lyle Lexier

               o
  o  o  o  o   |   o  o  o  o
   \  \  \  \  |  /  /  /  /
     \  \  \  \|/  /  /  /
      -------------------
               ^
             /   \


               *
             *   *
   *************************
     *   *           *   *
       *               *
     *   *           *   *
   *************************
           *       *
             *   *
               *
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Date:         Thu, 13 Aug 1992 14:40:00 +1000
              <AUTISM@SJUVM.BITNET>
From:         LNCJB@CC.NEWCASTLE.EDU.AU
Subject:      Re: losing speech
X-To:         AUTISM%SJUVM.BITNET@pucc.Princeton.EDU

Deb,

I'm no expert in this field, but you're son certainly sounds HFA to me.
I don't suppose it really matters how he is diagnosed (which label is
attached) so long as he receives appropriate treatment and correct information
about his condition is available to you and his teachers.

Light sensitivity is often hard to diagnose until the child is a lot older and
often is not properly understood by opthalmologists or optometrists.....my
optometrist reckoned that my Irlen lenses were a waste of money. I'd like her
to be able to look through my eyes just for half a day and then tell me the
same thing. I was surprised though that you mentioned that certain people
working with LD children were using yellow paper - for me that's worse than
white paper......blue paper is my preferred writing material.

Carolyn
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Date:         Fri, 14 Aug 1992 09:21:33 EDT
              <AUTISM@SJUVM.BITNET>
From:         RJKOPP@SUVM.BITNET
Subject:      Recent happenings

Now that Bob has taken action I just wanted to say I am 100% in agreement
with him in this.

I think that this was necessary and I hope people see that flames such as
went on will not be tollerated.  There are other lists where flame wars and
name calling have gone on and they have been tolerated or because they
were unmoderated lists no action was ever taken.  I see no value to a flame
war at all and I am not going to let one go on as far as this one got
again.  The next time I will push for action alot sooner.  There were
things that went on behind the scenes that I did not know or have specifics
on and I did not feel comfortable doing anything before I had specific
instances.  Maybe this was a mistake on my part and I'm sorry if that is
the case.  I feel issues such as harassment etc in private are legal matters
and should be dealt with as such if the offended parties decide that route.

I would just like to point out one more thing.  I was in favor of making
rules that people would receive when they first logged on as a result of
this and I still might, but in the mean time I would like for everyone
to keep in mind what I wanted the goal of this list to be, that's an
open forum for discussing experiences, techniques and requests for information.
If you differ in what someone is saying please do so responsibly.  Even I
myself have perhaps at times broken this rule when things really got at the
heart.  But I think we have to stand back and think before posting.  The
idea of dissenting opinions is fine, but I would hope to see reasons and
no cutting remarks against the original poster.

Also when people find they are not getting what they expected out of being
on this list, post a notice saying what your complaints are.  If you don't
get responses, maybe now is just a bad time or others don't consider it
applicable to them.  Suggestions at this point also would be received much
better than a complaint with no suggestions.  There are times when we
would like to discuss something, but people who might be associated with
a similar situation just don't have time to post or aren't following the
list at that time.  And if this list isn't going the direction you want
go ahead and look to starting something on your own.  It is not as hard
as you might think, and if the topic is interesting enough to others it
will take off.  Although certainly post your concern before leaving the
list.

Finally in closing, this list has taught me alot that helps me everyday.
I'm sure it has done that with others.  Most of the traffic has been
right in line with what I had hoped for and I think many as well as myself
have enjoyed it.  Please keep the posts coming and lets get going again.
And thanks to all who participate on this list, that make it so interesting.

Thanks,
Ray Kopp
Syracuse, New York
Internet:rjkopp@mailbox.syr.edu
Bitnet:RJKOPP@SUVM.BITNET
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Date:         Thu, 13 Aug 1992 13:17:26 EDT
              <AUTISM@SJUVM.BITNET>
From:         DRZ@SJUVM.BITNET
Subject:      Changes to the List

The latest posts in the Flame Wars, coupled with messages from members
of the List, and, most importantly, postal mail from responsible
individuals from Autism advocate agencies have led to the following
steps by Ray Kopp and myself.

1) I have removed Don Walk from the List.  This was based on messages
from members who complained of harassment and letters from Susan Moreno
(of MAAP) and Patricia Amos (from Philadelphia Autism Society) who
warned of his previous history.

2) Subscription to the List is no longer automatic, but must be explicitly
initiated by the list owners on request of the potential subscriber.

3) The archives of the List are no longer open to anyone who is not a member
of the List.

We have not taken the final drastic step of using a moderated form for the
List in which the listowners would have to approve every message.  This
would take the spontaneity from the List and we hope that future events
will not make this a necessity.

We regret having to take these steps, but the safety and peace of mind of
our subscribers must come first.

Bob Zenhausern, Ph.D.        Internet: drz@sjuvm.stjohns.edu
St. John's University        Bitnet: drz@sjuvm.bitnet
SB 15 Marillac               Phone:  718-990-6447
Jamaica, NY 11439            Fax:    718-990-6705
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Date:         Sun, 16 Aug 1992 20:14:36 -0400
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: losing speech

P.S.
    Carolyn,
            Has it affected your hand writing in any way?
Rosanne
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Date:         Fri, 14 Aug 1992 12:38:33 -0400
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: Recent happenings

Ditto and Cheers!!!!
              Rosanne
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Date:         Tue, 18 Aug 1992 09:36:40 PDT
              <AUTISM@SJUVM.BITNET>
From:         Craig Cholar <3432P@NAVPGS.BITNET>
Subject:      Laureate Software

Does anyone have any opinion on the software sold by a company called
Laureate?  Their catalog caters to children with special needs and
developmental delays.  I think my autistic 5 year old son might
benefit from using a touch-screen device that Laureate sells, and I'm
considering buying some of their software.  Since they are targeting
a niche market, their prices are on the high side ranging from $75
to almost $300 for each software package.

I'll have to upgrade my tired old AT clone from EGA to VGA graphics
in order to use their software.  Add in about $300 for a touch
screen, and several hundred dollars for software, and you can see I'll
be making a substantial investment.

If anyone has anything to say about Laureate or their products
I'd greatly appreciate hearing from you.  Addresses or phone
numbers of other software/hardware vendors that cater to special
needs children are welcome, too.
Thanks

   Craig Cholar                                3432P@NAVPGS.BITNET
                                               3432P@CC.NPS.NAVY.MIL
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Date:         Tue, 18 Aug 1992 10:56:00 EST
              <AUTISM@SJUVM.BITNET>
From:         "V70A::DOMINGUERR" <DOMINGUERR%V70A.decnet@NPT.NUSC.NAVY.MIL>
Subject:      RE: RE:F/C (Can he read?)
X-To:         AUTISM <AUTISM%SJUVM.BITNET@CUNYVM.CUNY.EDU>

Bob I just wanted to clarify this a little more. In a nut shell if you show
David an object he can type (F/C) the word but if you show him the typed
word he can't or has trouble identifying the object. Could ther be a visual
processing problem with the typed word?
Bob D.
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Date:         Sun, 16 Aug 1992 21:51:00 EST
              <AUTISM@SJUVM.BITNET>
From:         "Lauren H. Arango" <LHARANGO@OWUCOMCN.BITNET>
Subject:      Re: Congratulations Dan and Lauren!

Thanks, all, for your congratulations!  We're *happy*, and looking forward
to a wonderful life together.
                                        Lauren
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Date:         Wed, 19 Aug 1992 12:28:00 +1000
              <AUTISM@SJUVM.BITNET>
From:         LNCJB@CC.NEWCASTLE.EDU.AU
Subject:      Whoops!
X-To:         AUTISM%SJUVM.BITNET@pucc.Princeton.EDU

Dan,

It just occurred to me that by relating MY bad matrimonial experience, you
might get the impression that I am 'anti-marriage', which would make a lie
of the congratulations that I offered to you and Lauren......not the case.
Marriage is a great institution.......If you marry because you WANT to and not
in my case, because others said I HAD to. I'm going to marry Kevin one day
(he's already asked me and I said YES) but not before the boys have left home
and there is no longer any good reason why we should get married, except
because we want to.

Carolyn
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