HDTenEightyP/NetNews huggingface dataset:
From: Hugues.Blanchet@p0.f136.n167.z1.fidonet.org (Hugues Blanchet)
Newsgroups: misc.handicap
Subject: Re: Education
Date: 18 Nov 92 21:24:49 GMT
Reply-To: Hugues.Blanchet@p0.f136.n167.z1.fidonet.org
Organization: FidoNet node 1:167/136.0 - Ab.'s Place, Montreal PQ
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25721

[This is from the Silent Talk Conference]

 -=> Quoting Jennifer Satterwhite to Hugues Blanchet <=-

 JS> Sorry, Hugues, I got you confused will "All".   <grin>

Or Alphonzo? <G>

Hello Jennie!!!

 JS> Good point.  So, are you saying that oralism is the route the schools
 JS> should take?

The very first one, YES!

 JS> There is a deaf community (whether it is a 'popular'
 JS> thing or not is another issue), so shouldn't the deaf children be
 JS> exposed to both "cultures"?

Sure there is a deaf community Jennifer.  There are also communities
for the fat people, the skinny people, the dark skin people
and so on....  I'm sure you get the drift...<G>  I just don't believe
in such *communities* because in reality, these aren't communities but
simply regroupments of people who label themselves (see message to Margie)
as being apart of the society.

I wouldn't say "culture" but "language".   Yes, there is nothing
wrong with being exposed to a second language as long as it remains as
it is, a second language.  My mother tongue is french but I also have
been exposed to the english language and it enables me
to communicate with more people.  I'd be very sad if I
only knew french because I wouldn't be able to write to anybody
here....:-(

What I think is that we should all have the same language as the
majority we are living with.  We should NOT set ourselves APART of the
majority with who we are living with.

 JS> I am just playing devil's advocate here,
 JS> I'm not trying to start a war. <Grin>

Come on Jennie!!!  I know you ain't trying to start anything!!!  I
just gave my two cents and you answered, that's all.  Besides, me
think you have a nice sense of humor to...<G>

 JS> Whatcha think?

Well... as a tol' ya, a jis' don' think we both can hav' a wa'! A
believ'z ya too much of a nice lady (Now don' be jealous Annie
an' Karen!!!  <GGGGG>)  A really 'preciate bright wimen ya see?

 JS> BTW, you said that you are totally deaf now.  Do you think that you
 JS> could've succeeded in oralism if you were preligually deaf?  Just
 JS> curious...

No doubt about it.  My parents and family are all hearing people.
Even though I am deaf, they all consider me as their brother(son)
and they would have considered only one option the moment they would
have known I was deaf; Oralism.  It would have been the only way
for me to fully integrate the society and they wouldn't have settled
for less.

Take care Jennie!

Cheerio from Montreal (where the thermometer is actually at 30
degrees Farenheit...brrrrrrrrrrrrrrr!!!!)

Hugues

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Internet: Hugues.Blanchet@p0.f136.n167.z1.fidonet.org
From: Margaret.Overath@f14.n279.z1.fidonet.org (Margaret Overath)
Newsgroups: misc.handicap
Subject: Wow!
Date: 18 Nov 92 21:27:02 GMT
Reply-To: Margaret.Overath@f14.n279.z1.fidonet.org
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25736

[This is from the Silent Talk Conference]

Hughues,

You certianly have right to express your opinion. I congratulate you for
having me think some more on this issue.  Ok let me ask this, what is
"normal"?  By psychological definition is a set of behaviors that is
considered to be acceptable by others.  Ok America and Canada maybe the
other countries too, have their set of typical behaviors that is
acceptable -- take for example being "FAT" - the American TV is
shamelessly showing all those skinny minnies out at the so call true
american dream.  I have two sisters both overweight, and I don't hate
them because of that "physical" characteristic, I love them sure we
have our usual sibiling spats from time to time.

I guess I am trying to say, I like your attitude, I wish their are more
of that out there, society seems to been on excluding the "undesirables"
whatever that may be.

Now my opinion has not changed completely, I still consider myself Deaf
as part of my cultural idenity, its more of a physical charactersitic
attribute.

I am curious my Canadian Neighbor, is it snowing up there? It's a wonder
its cold!  The West Virginia weather is unpredicatable as usual, its
been cold until yesterday it warmed up!  I never know what kind of
clothes to wear, at least you know you have to dress up warmly! ;)

Looking forward to more of your interesting views!

Sincerely Margie O!

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Internet: Margaret.Overath@f14.n279.z1.fidonet.org
From: amy@vineland.pubs.stratus.com (Amy McNulty)
Newsgroups: misc.handicap
Subject: Re: Fibromyalgia
Date: 16 Nov 92 22:16:01 GMT
Reply-To: amy@vineland.pubs.stratus.com (Amy McNulty)
Organization: Stratus Computer Inc, Marlboro MA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25624

In article <25572@handicap.news> Will.Mackenzie@f15.n229.z1.fidonet.org
(Will Mackenzie) writes:
> Index Number: 25572
>
>
> Hello everyone.  I am fairly new to this conference, and am writing
on
> behalf of my wife who was recently (2 or 3 months ago) diagnosed as
having
> fibromyalgia.  This is in addition to osteoarthritis.  She has also
had
> surgery for a ruptured disk in her lower back ... and also has some
degree
> of bursitis.
> Needless to say, she suffers from chronic pain.
> Are there any others here with Fibromyalgia?
> If so, she would like to hear from you.
> Many thanks!

Sorry for the waste of bandwidth; my mail bounced....

There's a fibromyalgia mailing list. Send mail to
DAVIDSON@vmd.cso.uiuc.edu to be added to the list (and ask him how
to get access to the old mailings). We've only been in operation for a
couple of weeks, but have already gone from 7 people (the original
list) to 20, so we're growing fast!

______________________________________________________________
amy_mcnulty@vos.stratus.com  or  amy@vineland.pubs.stratus.com
Amy McNulty -- Stratus Computer, Marlboro, MA
Stratus pays me to write, but not to write this!
From: Daniel.Laflin@f98.n374.z1.fidonet.org (Daniel Laflin)
Newsgroups: misc.handicap
Subject: New Born Deafie
Date: 18 Nov 92 21:23:35 GMT
Reply-To: Daniel.Laflin@f98.n374.z1.fidonet.org
Organization: FidoNet node 1:374/98 - The SCAM, Rockledge FL
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25712

[This is from the Silent Talk Conference]

ST> SC> ALLOWED TO LIPREAD!!!! THE therapist covers his or her lips with

ST>Er, Sam, I believe that is a standard method of forcing the person to
ST>try to recognize what sounds they do get.  Once the recognization of
ST>sounds becomes automatic, the person would normally be expected to
ST>lipread in real life.  The theory is suppose to be that if you
ST>lipread during training you won't concentrate on the sounds as much.

Agreed... especially in cases of those who were deafened after learned
to hear, i lost it at 7, if i had a implant put in, They would have to
try to get me to recognize  as much as i could as i did BEFORE i learned
to Lipread.

No One I believe will hear all as thay did b4, but the point is to learn
to or relearn, some sounds, There is a difference with P B M words
hearing wise, not lipreading wise, being able to distingish some sounds
would enhance the lipreading ability.

The only reason I may be unable to have a implant is due to a batch of
colymicin based drugs that destroyed the nerve, ie: streptomycin and
related.

The damage could have also been at the hearing center of the brain, or
in the nerve path, so a implant is useless if the pathways are
compromised, in only the caes of the pathway being ok and the damage
being only in the Cochlear, I think is when a implant may help.

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Internet: Daniel.Laflin@f98.n374.z1.fidonet.org
From: Cindy.Barnes@f22.n375.z1.fidonet.org (Cindy Barnes)
Newsgroups: misc.handicap
Subject: Re: Hello
Date: 18 Nov 92 21:30:11 GMT
Reply-To: Cindy.Barnes@f22.n375.z1.fidonet.org
Organization: FidoNet node 1:375/22 - Ken's BBS, Montgomery AL
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25756

[This is from the Spinal Injury Conference]

Where Ruthie has had some bad luck with scar tissue after her surgery, so
far I have not. I had the disc removed at L4/L5 in June. I was in the
hospital for four days, during which time they did the mylogram and the
surgery. The doctor told me I have degenerative disc disease, which means my
problems aren't over, but the immediate problem has been worked on.

It has also come to light that I have spondylosis in my neck, which is
giving the herniated disc at C5/C6 a lot of pressure. The doctor has started
me on PT, which may or may not help. I had my first session of PT on Tuesday
and paid for it on Weds. I am sure that part of my pain was caused by the
weather, but a great deal of it was from the manipulation of my neck by the
therapist. I am hoing to put off surgery on my neck until it becomes
absolutely necessary, but who knows when that will be.

I work on my lower back with swimming sessions in an indoor pool. I have
lower back exercises I do while in the pool and then I swimm laps. This is
the only form of exercise I get outside of walking and bowling. I can see
your face, "Bowling?" Yep. I bowl in a league on Friday nights. I have been
bowling steadily since 1986, which is when my lower back started giving me
serious problems. I started the bowling to strengthen my back muscles. It
worked up until last Dec. I now bowl with a lighter ball (doctor's orders),
but I still bowl. So far, it hasn't had any adverse effects on my back.

Welcome to the echo and I hope to see ya here often....

Cindy

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Internet: Cindy.Barnes@f22.n375.z1.fidonet.org
From: John.Lynch@f1000.n261.z1.fidonet.org (John Lynch)
Newsgroups: misc.handicap
Subject: Small Planes with Hand Controls ?
Date: 18 Nov 92 21:31:22 GMT
Reply-To: John.Lynch@f1000.n261.z1.fidonet.org
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25761

[This is from the Spinal Injury Conference]

 MG> Does anyone know anything about learning to fly if you use a
 MG> wheelchair ?  I think I've read about people using hand controls in
 MG> small planes.  Has anyone here done it?  This is something I've
 MG> thought about doing, but the possible complications have always
 MG> stopped me.  Care to give me some encouragement ?

Sure, I know about it.  I am a paraplegic liscensed pilot.  I
usually fly a Piper Cheerkee, 4 passanger.  Hand controls were
built by Bill Blackwood of the California Wheelchair Pilots Ass.
Cost me about $350 about 17 years ago.  Also have a set that will
fit a Cessna 150, 172, and Carinal.

What you have to do is  call the FAA and get a doctor's name who
can give you a physical.  You will flunk it.  Don't worry.  You
appeal to the FAA chief doctor for a waiver of disabity.  Once you
get that by demonstrating to the FAA you can use the handcontrols
properly, you are in business for the future medicals.  No problem
unless you have major medical problems.

Some of you medications could cause problems./
But be straight with the FAA.

I origianally learned to fly in the Air Force and just need to
transition to handcontrols.  But I know a couple of guys who
started flying with handcontrols and had no problems.

Go for it.  It is expensive, but it might be worth a try if you
like flying.  Certinally different!

Regards, John
P.S.  Drop me a line with any questions.

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From: ndallen@r-node.gts.org (Nigel Allen)
Newsgroups: misc.handicap
Subject: APHA Denounces High Court's Refusal to Review Health Insurance Denial
Date: 23 Nov 92 20:12:44 GMT
Reply-To: ndallen@r-node.gts.org (Nigel Allen)
Organization: Echo Beach, Toronto
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25795

[Note from Bill McGarry - this is from the sci.med newsgroup]

Here is a press release from the American Public Health Association.

 APHA Denounces High Court's Refusal to Review Health Insurance
Denial Case
 To: National Desk, Health Care Writer
 Contact: American Public Health Association 120th Annual Meeting
          Press Office, Omni Shoreham Hotel, Washington, 202-387-3401

   WASHINGTON, Nov. 10   -- The American Public Health Association
(APHA) today denounced the Supreme Court's refusal to review a
lower court allowing H & H Music to cut off health insurance
benefits to an employee with AIDS.
   Calling the lower court ruling blatant discrimination against one
kind of disease, APHA urged the court to hear another case and
reverse these benefit denial decisions.
   "The court's decision demonstrates the failure of the private
insurance system," said APHA President Joyce Lashof, addressing a
Capitol Hill rally.  "In light of these benefit denial decisions, no
American can feel secure that private insurance will be there to
protect against a catastrophic illness.  This decision shows why we
need a comprehensive national health system."
   Pointing out that H & H Music decision is based on a particular
type of disability, the association urged that the issue be
reexamined in light of the Americans with Disabilities Act.
From: Carol.Ashland@p0.f319.n105.z1.fidonet.org (Carol Ashland)
Newsgroups: misc.handicap
Subject: Re: Editorial Feelings
Date: 23 Nov 92 21:51:26 GMT
Reply-To: Carol.Ashland@p0.f319.n105.z1.fidonet.org
Organization: FidoNet node 1:105/319.0 - Mostly Mail, Aloha OR
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25819

[This is from the Blink Talk Conference]

 DH> Me too.  I sometimes feel like I shouldn't be so picky, next to some
 DH> other  guide dog users who are not.

 Yeah, but then I see a dog that is misbehaving, jumping on people,
 barking in public, or not paying attention to his/her work, and I
 usually find that the owner also is very liberal about people in the
 public petting the dog.

DH> It's my experience that if people
 DH> pet my dog, even stare at her or talk to her, that she becomes
 DH> excited,even somewhat, and it makes more work for me.  Sometimes it

 I know what you mean.  Frosty, my last dog, was generally not shakable
 in that regard.  I was standing in the lobby at work once, and the fire
 alarm started.  Frosty was in my office down the hall, but was not on
 tie-down.  I called his name calmly, and loudly, over the stupid bell,
 and he came right to me and stuck his nose in my hand, right through
 the people and everything.  Now if I tried that with sony! ... he might
 come to me, or he might take the opportunity to say hello to everyone
 in the room.

 DH> above average.  Seems to me that we have a real boundary problem in
 DH> our culture.  People pat strange dogs in a way that I believe is risky
 DH> and downright stupid.  They never know what will happen if they pet
 DH> any strange dog; and it is even more invasive to pat a guide dog.  Do
 DH> people go up and invasively touch all strange people?  Usually not.
 DH> Sometimes they do it more with people who are blind or otherwise
 DH> disabled, and it is invasive to us.  Oh yes, they mean well and

 Yes, it is invasive to be pawed by strangers.  Once I was hurrying down
 the walk in front of a little shopping center when I heard a woman
 running like mad behind me, calling "wait!"  I was the only one around,
 but I really didn't want to be bothered, so I just hurried on.  But she
 ran up and stopped me anyway.  I turned reluctantly to her, and she
 said "Can we talk to your animal?"  I said "no" somewhat tersely, and
 went on my way.

 DH> right to our anger at times.

 I agree, we do have a right to our anger at times.

 DH> I have a sign on my dog's harness that says "Do not pet me, I'm a
 DH> working guide dog."

 Where did you get that sign?  I want one!!

 Carol

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Internet: Carol.Ashland@p0.f319.n105.z1.fidonet.org
From: Linda.Cummings@f34.n375.z1.fidonet.org (Linda Cummings)
Newsgroups: misc.handicap
Subject: sympathectomy part 1 of 3
Date: 23 Nov 92 22:13:54 GMT
Reply-To: Linda.Cummings@f34.n375.z1.fidonet.org
Organization: FidoNet node 1:375/34 - Batteries Included, Montgomery AL
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25850

[This is from the Chronic Pain Conference]

In a message to Wayne Briggs:

 > He too suggested a compromise.  He suggested that I try a dorsal
 > column stimulator on a temporary (ie external) basis to see if it
 > might work.
 > I wasn't aware that this was possible, so my stubbornness about
 > amputation softened a little.

Well, this could prove successful, Jim.  Remember, I've got the
Mercedes version (implanted completely inside my body).  But, the
stimulation DOES go down both my legs!  This could work for you and
it is certainly worth a try.  If you'd like to read up on the SCS
(Spinal Cord Stimulator) before you go for it, then simply freq
"SCS-LC.zip" from our system through a front-end mailer only.  (We
don't have users.)

Linda

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Internet: Linda.Cummings@f34.n375.z1.fidonet.org
From: Linda.Cummings@f34.n375.z1.fidonet.org (Linda Cummings)
Newsgroups: misc.handicap
Subject: Realization
Date: 18 Nov 92 21:33:46 GMT
Reply-To: Linda.Cummings@f34.n375.z1.fidonet.org
Organization: FidoNet node 1:375/34 - Batteries Included, Montgomery AL
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25777

[This is from the Spinal Injury Conference]

 > I think a brochure wouldn't be enough. Not sure what would.
 > Open communication with my wife only communicates a little. I
 > think complete understanding can come for someone only when
 > you've truly experienced the real thing.

And the well spouses haven't experienced the real thing.  The only
thing that has come close for Eddie was a bursitis attack in his
shoulder.  He said it was very painful.  It was all I could do to
keep from saying, "And, now imagine that pain in the lower back,
tailbone, and all the way down both legs."  It would have sounded
like complaining, and I try not to do that.  Sometimes, I just
can't help telling how I really feel, though.

 >   No, I think _most_ people would understand why you would want
 > one. Maybe you can hobble a few steps, but where does that get
 > you? Not far, plus a _lot_ of pain!

(Note:  What we're talking about here folks [for those reading over
our shoulders] is the fact that I've asked my neurosurgeon about
the possibility of getting myself a wheelchair.  There are times
when I can't go shopping, to the mall, on an outing, because there
is no wheelchair available.  I thought maybe you guys might think I
was nuts for even suggesting this to my neuro because a lot of you
would give anything NOT to be in a wheelchair.  Jeffrey and I have
discussed this in detail in the Abled echo before we brought it
here.

 >   Consider it switched. I didn't know what conferences you got,
 > after that message you sent me the other day!

Besides a lot of the Adanet echo's, I mainly stay in Abled, Chronic
Pain, and Spinal Injury.

Linda

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From: Carol.Ashland@p0.f319.n105.z1.fidonet.org (Carol Ashland)
Newsgroups: misc.handicap
Subject: Re: Fans Of Pern
Date: 23 Nov 92 21:51:40 GMT
Reply-To: Carol.Ashland@p0.f319.n105.z1.fidonet.org
Organization: FidoNet node 1:105/319.0 - Mostly Mail, Aloha OR
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25821

[This is from the Blink Talk Conference]

 NF> Ron, most of their zines are published quarterly, occasionally less
 NF> frequently.  But I'll look at a couple of them and make a
 NF> recommendation.

You're talking about companies that sell books on computer disk?  Which
companies?  the only company I knew of was the Reader Project, and I
think they went belly up.  Too bad, too.

I am not working for the Commission any more.  I am both looking for
work and anticipating possibly taking a year-long programming class.

Carol

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Internet: Carol.Ashland@p0.f319.n105.z1.fidonet.org
From: CXLNVD%RITVAX.BITNET@pucc.Princeton.EDU
Newsgroups: misc.handicap
Subject: Russian deaf/hoh penpals
Date: 18 Nov 92 21:01:38 GMT
Reply-To: CXLNVD%RITVAX.BITNET@pucc.Princeton.EDU
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25684

[This is from the DEAF-L mailing list]

Some Russian University students who are deaf and hard of hearing are
interested in finding American students (who are deaf and hard of hearing)
to write to.  If you are interested, please contact Allene Goforth
at Compuserve, her address is 71302.1075@compuserve.com.  (Mail it to
"71302.1075@compuserve.com" and remember the comma has been changed to a
period!)

These Russians are learning to be teachers of the deaf, school psychologists,
etc.  They're mostly in Moscow.

Thanks!
From: Jeffrey.Vandyke@f14.n279.z1.fidonet.org (Jeffrey Vandyke)
Newsgroups: misc.handicap
Subject: Chair list
Date: 18 Nov 92 21:32:18 GMT
Reply-To: Jeffrey.Vandyke@f14.n279.z1.fidonet.org
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25768

[This is from the Spinal Injury Conference]

PN> JV> I need to get these. I'll be uploading my (incomplete)
PN> JV> wheelchair list to the Handicap News BBS, and possible the
PN> JV> Project Enable board in a week or two (be warned!). <smile>
PN> JV> So far it's about 38k unzipped.
PN> JV>
PN> JV> -- Jeff

PN>      Sounds good Jeff, how did you set up your list. Does it have all the
PN> models of chairs each manufacturer makes ? Did you include descriptions and
PN> specs? Let me know when you u/l it and I'll FREQ it.
PN>                                    Pandora

  It's just set up in order of company name. It does not have all
models, nor all manufacturers. It does include the ones I could
find or remember. It's not just for current ones, but for past
ones, so a person buying a used one, or who couldn't remember who
made theirs, could look up the manufacturer's address and phone
number.

  Descriptions and specs?  Well, only the utmost basic stuff is
included. Comprehensive data here would be almost impossible. I
have listed only what seems most unusual, such as the fact that 2
scooter manufacturers have "cabooses" available (a seat set up as
a sort of trailer) so 2 people can be transported by the same
scooter. One scooter company has a 2 cu ft cooler on a tiny 1
wheel trailer. One wheelchair is hydraulic and uses real tractor
tires on the rear, and has a trailer hitch for towing farm
trailers, tractors, mowers, etc, and has a 5 hp gas engine on the
rear for running the thing off of while outdoors, and also to
charge the batteries. Duallies are available!

  BTW, there are sure a lot of FREQing file collectors around! <g>

-- Jeff

 * SLMR 2.1a * Member, Off-Road Wheelchair Association

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