HDTenEightyP/NetNews huggingface dataset:
From: Keith.Jones@p13.f15.n114.z1.fidonet.org (Keith Jones)
Newsgroups: misc.handicap
Subject: Re: Spouse/nursing care
Date: 9 Oct 92 20:59:29 GMT
Reply-To: Keith.Jones@p13.f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15.13 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24815

[This is from the Spinal Injury Conference]

 KR> One of the blessing/curses of a workman's comp permanent
 KR> total disability case is nursing case...often a task
 KR> offered the spouse.  The injury party can no longer work,
 KR> the spouse can no longer work outside the home, and the
 KR> insurance carrier pays only a small percentage of what
 KR> they would have to pay a professional service...with no
 KR> health or retirement benefits, including no social
 KR> security.  The arrangement quickly becomes a trap, in that
 KR> the newly traumatized family now depends of that income,
 KR> and the only way to break out is to find employment income
 KR> to offset the nursing care payments...something that is
 KR> often difficult or impossible for the quad and/or the
 KR> spouse because the day-to-day nursing duties cannot be
 KR> turned over to someone else without going cold turkey on
 KR> the paychecks.  When I broke my neck in 1975, no one
 KR> counceled us about the long-term effect this arrangement
 KR> would have, but today, nearly every rehab center will
 KR> suggest other options because being a
 KR> spouse/lover/caregiver is a gargantuan task...one that
 KR> very few people can juggle indefinately.
 KR>    Yours etc.,

 I have worker's comp permanent disability and even though I got
 married, I have always had a nursing/housekeeping service that is fully
 paid for. Even with those tasks being taken care of, my ex-wife STILL
 had her hands full. Today I live alone with a housekeeper coming in 3X
 a week. It is still being paid for by workers comp (though they tried
 to eliminaate this 3 years ago).

-Keith-

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Internet: Keith.Jones@p13.f15.n114.z1.fidonet.org
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Aging....
Date: 14 Oct 92 15:53:15 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25021

[This is from the Spinal Injury Conference]

In a message to Keith Jones <01 Oct 92 10:46> Patti Bader wrote:

 PB> yourself to the shower?  I use a board
 PB> transfer and have a difficult time by
 PB> myself, what with sticking to the board,

I use a teflon coated board for the shower.  I found that a wet
towel on the board would slide or atbest prevent the sticking.

--
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Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
From: David.Tanner@f168.n129.z1.fidonet.org (David Tanner)
Newsgroups: misc.handicap
Subject: Re: Vocal-eyes
Date: 14 Oct 92 15:29:44 GMT
Reply-To: David.Tanner@f168.n129.z1.fidonet.org
Organization: FidoNet node 1:129/168 - Braille Bank BBS, Pittsburgh PA
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24969

[This is from the Blink Talk Conference]

In a message of <26 Sep 92  10:37:00>, Rick Alfaro (1:369/8) writes:
 > JM> screen reader manufacturers that offer them.  One thing I have
 > JM> noticed about Vocal-eyes 2.1 when I try it with my Accent
 > JM> internal card is that it really slows the CPU right down.  I
 > JM> used to be able to run Vocal-eyes with my PC/KPR and the
 > JM> scanner could be scanning the next page whilst still speaking
 > JM> the one it had just scanned. Thus I had continuous reading.
 > JM> Now, I am only able to start the scanning just before the end
 > JM> of the last page.  This is a step backwards for Vocal-eyes in
 > JM> my view.  Anyone else noticed this?

I noticed the same slowdown when I first got my Accent SA.  I
talked to Doug Geoffray and it comes out that the problem is the
need to change the default dip switch setting on your Accent from 7
to 8 databits.  If you are using an external the last switch on the
left that is down needs to be clicked up.  Then turn off the Accent
and turn it back on and retry it that way.  It solved my problem.

        D. T.

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Internet: David.Tanner@f168.n129.z1.fidonet.org
From: Jim.Jones@p0.f7014.n124.z1.fidonet.org (Jim Jones)
Newsgroups: misc.handicap
Subject: Re: Reasonable Accommodat
Date: 7 Oct 92 16:43:58 GMT
Reply-To: Jim.Jones@p0.f7014.n124.z1.fidonet.org
Organization: FidoNet node 1:124/7014.0 - The Soft-Ware Haven, Rowlett TX
X-Fidonet: Able News Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24752

[This is from the AbleNews Conference]

 -=> Quoting Joe Chamberlain to Jim Jones <=-

 JC> Do we want employers giving the same 'resonable
 JC> accomodations' drug addicts and child molesters as do do to
 JC> paraplegics and the blind.

Joe,
You need to look at the EEOC Booklet titled "The Americans With Disabilities
Act, Your Responsibilities as an Employer" This booklet states, "Anyone who
is currently using drugs illegally is not protected by the ADA and may be
denied employment or fired on the basis of such use".

Title I of the ADA protects qualified individuals with disabilities from
employment discrimination. Under the ADA, a person has a disability if he
has a physical or mental impariment that Substantially limits a major life
activity like "hearing, seeing, speaking, breathing, performing manual tasks,
walking, caring for oneself. Title I does not interfere with the right to hire
the best qualified applicant; it simply prohibits you from discriminating
against a "qualified applicant or employee because of their disability".
Most employers would not hire known drug addicts or child molesters, and if
they did, I feel the ADA would not protect them.

... ===yes, as a matter of fact, I am handicapped===

--
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Internet: Jim.Jones@p0.f7014.n124.z1.fidonet.org
From: SHEILA.FAVA@f740.n209.z1.fidonet.org (SHEILA FAVA)
Newsgroups: misc.handicap
Subject: SHHH NEWS....
Date: 16 Oct 92 04:01:25 GMT
Reply-To: SHEILA.FAVA@f740.n209.z1.fidonet.org
Organization: FidoNet node 1:209/740 - Desert Dreams, Las Vegas NV
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25047

AMTRAK  has  a  Special  Services Department which can offer
assistance to  disABLED  travelers.   If  you  need  special
services,  call  at  least  seventy-two hours in advance and
arrangements will be made.

To reach AMTRAK call:  1-800-523-6590 (TDD)
                       1-800-872-7245 (Voice)

------------------------------------------------------------
THE  DEPARTMENT  OF VETERANS AFFAIRS has installed a nation-
wide toll-free TDD line for veterans with  a  hearing  loss.
Veterans  still  able  to use voice lines should continue to
call their local VA Regional Offices.

The TDD number is:  1-800-829-4833 (TDD Only)

------------------------------------------------------------
THE BALTIMORE/WASHINGTON INTERNATIONAL AIRPORT has  begun  a
visual   paging   service  for  Deaf  and  Hard  of  Hearing
travelers.  Persons wishing to give a message  to  a  person
with a hearing loss at the airport should call:

Baltimore - Washington International Communication Center
(301)859-7227 (TDD and Voice).  Your message will be  given
through a public address system AND a VISUAL paging system.

For  further  information  about  the  services available to
travelers with disABILITIES, please write:

Marketing and Development Office
BWI Airport
PO Bix 8766
Baltimore, MD 21240-0766
------------------------------------------------------------
The 1992 RTID RESOURCES CATALOG of educational products  for
people  with  a  hearing loss is available from the National
Technical Institute for the Deaf.   This  publication  lists
print   and   non-print   (computer,  multimedia,  video  or
workshop) materials in a variety of fields.

To request a catalog, please write:

RIT/NTID Division of Public Affairs
Lyndon Baines Johnson Building
PO Box 9887
Rochester, NY 14623-0887
   (716)475-6853 (TDD and Voice)
-----------------------------------------------------------
Uploaded from the SHHH _Journal_ (Sept./Oct. 1992)
                    ---Sheila

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Internet: SHEILA.FAVA@f740.n209.z1.fidonet.org
From: Nadine.Thomas@f10.n300.z1.fidonet.org (Nadine Thomas)
Newsgroups: misc.handicap
Subject: Pain
Date: 7 Oct 92 14:29:23 GMT
Reply-To: Nadine.Thomas@f10.n300.z1.fidonet.org
Organization: FidoNet node 1:300/10 - Aztec Maximus, Tucson Az
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24708

[This is from the Chronic Pain Conference]

 MR> I believe I have seen you in the AA conf. Even when I was drinking
 MR> I would refuse pain medicine because I disliked drugs and druggies.
 MR> After a surgery I refused it and just put up with the pain. After
 MR> I sobered up a sponsor told me I was crazy. He said to be careful
 MR> and follow the doctors orders to the "T" but to suffer needlessly
 MR> wasn't sane. Since I see a doctor quite often and he monitors me
 MR> through blood tests and also the amount I take and I feel fairly
 MR> secure in taking what I do. He is also aware I am in recovery and
 MR> except for extreme pain over a very short period he avoids
 MR> anything that might cause a problem. Even then he will try steroid
 MR> bursts before anything else. Each time I require a little more for
 MR> it to be effective but it still works on a short term basis with
 MR> some relief.

Hi again.... sorry for the delay in answering but I just got home
from 3 weeks in the hospital again... actually it was 9 days in one
hospital and then 12 days in a physical rehab unit.

I too am on steroids and I will say to be very careful with them.
I am currently on SEVENTY mg. a day (40 in the AM and 30 in the
afternoon) - I have been on steroids for 12 years and have put on
ONE HUNDRED AND TWENTY POUNDS.  My heart is working for TWO bodies,
I have diabetes from it, my blood pressure is bordering stroke
city, and I have had bouts of LIFE THREATENING INFECTIONS
(including a severe infection in my BLOOD) which have caused me to
have several surgeries.  I have been admitted to the hospital FIVE
times this year alone and each time they increase my prednisone
making it harder and harder to get off of.  The doctor told me that
100 out of 100 people on prednisone will have the nasty side
affects - which can include loss of eyesight, loss of kidney
function etc.

Am I trying to scare you? Yes.  I am trying to help you avoid what
I am suffering through for a couple of weeks or months of relief.
Be very careful.  It is like taking an addictive drug - for the
moment it feels good but down the road (and the prednisone road is
VERY SHORT) we pay the consequences of that short time of relief.
Please, post back to me - I can use the contact right now.  Today I
only took 2 doses of pain meds and I feel really good about that.
I know I will have to take one more but it feels good to know that
I can cut back like this and KNOW that it is okay and that I DO
recognize that I don't NEED the meds like I did before I went into
the hospital.

Take care of yourself.

Nadine

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Internet: Nadine.Thomas@f10.n300.z1.fidonet.org
From: Steve.Richards@f101.n277.z1.fidonet.org (Steve Richards)
Newsgroups: misc.handicap
Subject: Blind/Deaf Schools
Date: 7 Oct 92 15:43:45 GMT
Reply-To: Steve.Richards@f101.n277.z1.fidonet.org
Organization: FidoNet node 1:277/101 - House Of Pancakes, Morgantown WV
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24716

[This is from the Blink Talk Conference]

 CB> and can't speak.  It sounds hard, to say the least!  I learned to
 CB> fingerspell awhile back in Cub Scouts, and it took me forever to
 CB> spell out or to read a sentence, if I had to feel each finger and
 CB> hand position I imagine it would have been more difficult by an
 CB> order of magnitude.

I found that once I acquired a little skill at it I could interpret
signs without moving my hands to examine each finger, etc.  I merely let
my hands rest passively and used both palms and fingers to detect
changes.  And things also went a lot faster once I learned the symbols
for whole words.

 CB> electronic implication a bit- a wonder what would happen between
 CB> blind and deaf students if the schools ran BBSs, and each kid had
 CB> access to a terminal of some sort....Electronic communications are
 CB> great equalizers.

You may have hit upon a darn good idea, Chris.  Not that it's likely to
ever happen.  The cost of implementing it, don't you know.

 CB> (grin) So the O&M training was how you had a good idea of where
 CB> you were when we went to Mario's that time.  I had kinda wondered
 CB> about how you found the apartment building's door after I left- If
 CB> I had thought I would have taken you to it.

No need.  Since buildings and their doorways don't get up and move to
new locations they are dependable guideposts.  Training mostly teaches
one how to cope in unfamiliar surroundings where the "guideposts" are
not yet known.  Experience and memorization are the tools most used, and
these are honed by getting out there and using them routinely.  If a
blind person steps out of a car and walks up to a building he may on
occasion be uncertain whether the door he wants is to left or right, but
a few steps in one direction or the other to locate some cue will get
him oriented.  This is *not* an indication that he is lost.  He is
merely getting his bearings.

Only two things ever bother me much: snow deep enough to obliterate the
sidewalk entirely, curbs and all; and heavy rain which obscures traffic
sounds.

Steve R.

... A quarter-ounce of chocolate = four pounds of fat.

--
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Internet: Steve.Richards@f101.n277.z1.fidonet.org
From: Michael.Salonka@f49.n134.z1.fidonet.org (Michael Salonka)
Newsgroups: misc.handicap
Subject: User groups
Date: 13 Oct 92 18:18:12 GMT
Reply-To: Michael.Salonka@f49.n134.z1.fidonet.org
Organization: FidoNet node 1:134/49 - The Student Exchang, Calgary Alta
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24904

[This is from the Blink Talk Conference]

WW> It is my firm belief that one of the reasons VIPACE has been so
WW> successful here in Pittsburgh despite the fact we too have strong NFB
WW> and ACB advocates as members is because we intentionally keep the
WW> politics out of the computer user's group!

Willy, I fully agree with you.  I feel politics so often ruins a good idea or
effort someone is making in order to assist people.  I formed the Blind
Professional Computer Programmers group just because we could not find anyone
with the knowledge of linking PC's with speech packages to a mainframe
environment.

I was wondering if you have run into the same problems that I have when it
comes to social agencies.  I find that they don't want to even sometimes
admit that a self-help group exists.  It seems like they are afraid that you
will take away their clients or something.  Well at least they don't
acknowledge your existance.

I certainly find Blinktalk quite informative and maybe it would be a good
avenue to use for various groups to keep in touch.

WW> I honestly believe that the more informed a consumer
WW> is, the better the chances they are supplied the PROPER equipment, something
WW> the typical dispenser of the goods often overlooks!

Right on Willy!

Michael

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Internet: Michael.Salonka@f49.n134.z1.fidonet.org
From: Les.Kriegler@f207.n260.z1.fidonet.org (Les Kriegler)
Newsgroups: misc.handicap
Subject: Re: Oscar 3.0
Date: 13 Oct 92 18:22:33 GMT
Reply-To: Les.Kriegler@f207.n260.z1.fidonet.org
Organization: FidoNet node 1:260/207 - The Recovery Room, Rochester NY
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24930

[This is from the Blink Talk Conference]

 DS> I don't know about the auto contrast detect.
 DS> I think you have to use the new
 DS> HP ScanJet 2p.
 DS> At least, that is true for Arkenstone.

A quick update on this.  I spoke with Jim Fructerman,
President of Arkenstone who states that in fact, the ScanJet
Plus will support autocontrast detection, but we apparently
will need an interface card from HP.  Either way, additional
hardware will be necessary for this to work.  Arkenstone will
be coming out with upgrade options later this year, according
to Mr. Fructerman.  Regards, Les

--
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Internet: Les.Kriegler@f207.n260.z1.fidonet.org
From: knyal@ils.nwu.edu (Jarrett Knyal)
Newsgroups: misc.handicap
Subject: Re: Uti's
Date: 13 Oct 92 04:03:59 GMT
Reply-To: knyal@ils.nwu.edu (Jarrett Knyal)
Organization: Institute for the Learning Sciences
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24863

In article <24802@handicap.news> Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
(Joe Chamberlain) writes:
>Index Number: 24802
>
>In a message to Joe Chamberlain <15 Sep 92 22:27> Karen Tackett wrote:
>
> KT> We finally got the urologist's A.O.K. to keep her off the
> KT> maintenance dose (which I had been doing anyway). Now if the
> KT> little stinker will drink her fluids, we're in pretty good shape.
>
>A high fluid intake helps keep the bugs down.  I try for at least
>two liters or more a day.  Most of the time I'm pushing better than
>a gallon on an average day and more in the summer.

I've also noticed a HUGE difference when I drink things like milk,
pop, alcoholic beverages.  These things usually give me uti's if I
drink enough of them.  Sometimes with milk it just takes one glass
IF I don't flush out the milk with some water afterwards.

Basically, I've learned that when you've got a SCI you shouldn't
eat or drink too much of any one thing.  I once got a uti from
eating too much Jello even.  Salty foods should be avoided too.  I
agree with the above though that pushing WATER (not pop) is the
best way to minimize uti's.
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Hello
Date: 9 Oct 92 20:57:36 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24803

[This is from the Spinal Injury Conference]

In a message to Keith Jones <17 Sep 92 17:14> Derek Juntunen wrote:

 DJ> Hey, have you ever read "Joni".  Its an autobiography about Joni
 DJ> Eareekson, a quad.  Its really good.
 DJ> You should read it, if you haven't...

Joni was a very good book.  Another book about a woman quadriplegic
is The Other Side of the Mountain.

--
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Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
From: Karen.Keil@f2120.n124.z1.fidonet.org (Karen Keil)
Newsgroups: misc.handicap
Subject: New Born Deafie
Date: 15 Oct 92 16:20:14 GMT
Reply-To: Karen.Keil@f2120.n124.z1.fidonet.org
Organization: FidoNet node 1:124/2120 - Fingers Talk, Irving TX
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25030

[This is from the Silent Talk Conference]

 TB> A dear friend and co-worker just told me her newest grand-
 TB> daughter was born deaf.  2 months old and parents still not
 TB> gone to counselling for their shock/grief/dismay.

I marvel that the parents found out so soon that their daughter was
born deaf.  Maybe they were watching for it (hereditary) and knew
what to look for.  My parents did not get confirmation that I was
severely hearing-impaired until I was already 3 years old.  My
parents did go through 'grief' in order to accept the news, but
they did not go through counselling.  I don't think they needed
any, anyway.  Besides, my parents had professionals who took action
and found room for me in a school so I could get language training
as soon as possible.

TB> I told her, 2 months old is not too early to sign to baby.
TB> By now, the baby can start to focus her eyes and now is the
TB> time to start with "Mommy", "Daddy", "food", and her name-sign.

Why just sign?  Why not speech and lipreading?  At this point, 2
months is still too young to determine just how much hearing or
what other abilities the baby has at this point.  The parents
should use EVERY method, not just sign!  The more tools in the
toolbox, the better off the child will be!

TB> I hope they come to reality and start now to accept and
TB> integrate.  No sense in waiting and starting their stumbling
TB> later.  Time to begin is now and realize this is her real life.

What is 'her real life'?  Life as part of the Deaf
Culture/Community?  I was born deaf, but that did not make me a
member of the Deaf Culture automatically.  How did the baby become
part of the Deaf community at the very young age of 2 months?  The
baby is just learning what it's like to be alive and breathing in
the outside world.

TB> Any thoughts regarding deaf infants to hearing families,
TB> who find they are now part of deaf culture?   -TB

Who are now part of deaf culture---the deaf infants or the hearing
families?  It's not clear here.  As I mentioned above, being born
deaf does NOT make one a part of Deaf Culture.  It has to be
learned!  Culture is not something you are born with.  I'm of
mostly German and Norwegian ancestry, but having that does not make
me have German or Norwegian Culture as part of my life--what I have
of it was taught by my family or learned from books and other
resources.

Ethnic cultures are not inborn, period.  If Culture is inborn, then
why am I not part of the Deaf Community, then?

These are my thoughts.

Karen

--
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Internet: Karen.Keil@f2120.n124.z1.fidonet.org
From: mikef@pacifier.rain.com (Mike Freeman)
Newsgroups: misc.handicap
Subject: Re: Everest Announcement
Date: 16 Oct 92 03:38:31 GMT
Reply-To: mikef@pacifier.rain.com (Mike Freeman)
Organization: Pacifier BBS
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25038

In article <24900@handicap.news> Robert.Gilchrist@f715.n153.z1.fidonet.org
writes:
>Index Number: 24900
>
>NOW RELEASED
>Everest, affordable interpoint!
>

Hmmmm!  That's funny.  David Andrews of the International Braille and
Technology Center for the Blind (NFB) said on NFBNET the other day that
NFB was supposed already to have gotten their Everest; it hasn't
arrived and he doesn't think NFB will see it until the first of the
year, I think he said.  Apparently, Telesensory is having Braille
quality problems with the Everest.  Tisc, tisc!

--
Mike Freeman <K7UIJ>    |       Internet: mikef@pacifier.rain.com
301 N.E. 107th Street   |         or m2xenix!pacifier!mikef@uunet.UU.NET
Vancouver, WA 98685 USA |       GEnie: M.FREEMAN11
Telephone (206)574-8221 |       Man's best friend is his dogma!