HDTenEightyP/NetNews huggingface dataset:
From: Patti.Bader@p0.f323.n202.z1.fidonet.org (Patti Bader)
Newsgroups: misc.handicap
Subject: Re: Chronic pain
Date: 21 Jul 92 16:14:47 GMT
Reply-To: Patti.Bader@p0.f323.n202.z1.fidonet.org
Organization: FidoNet node 1:202/323.0 - SHENK'S EXPRESS, La Mesa
X-Fidonet: Spinal Injury Conference

Index Number: 23218

[This is from the Spinal Injury Conference]

 -=> Quoting Keith Jones to Patti Bader <=-

 KJ> I am truly sorry to hear this but know that this is much more common
 KJ> of a symptom of rhizotomies than they would have you believe. I had a
 KJ> doctor who was willing to do a rhizotomy for me and despite the pain,
 KJ> I turned it down in lieu of what I read. What the MDs have told you
 KJ> about being locked into your head makes perfect sense to me for
 KJ> something that makes absolutely no sense if that makes any sense at
 KJ> all.

Keith, thanks for your thoughts on the above.  I WISH I had been an informed
patient.  At the time I was heavily medicated with Valium and other anti-
spasmotics and the docs could have very well told me about the pain that the
rhizotomy would bring, I just don't know.  My husband says that nothing was
ever said, at least when he was with me.  I'm very glad the spasticity is gone
but at what expense?  Now, when someone mentions a rhizotomy, I tell them to
read everything they can get their hands on.  It's funny, but the neurosurgeon
who did the surgery won't even discuss the pain aspect, except to refer me for
more surgery, but I guess that's his job, huh?

 PB> I'm going to discuss the above with my MD.  I've not been
 PB> on Clonopin since
 PB> 1987, and it wasn't used for pain at that time.

 KJ> I also was not on Clonopin for pain, I was on it for spasticity. I am
 KJ> now wondering if if did not foul up something in my brain chemistry
 KJ> that caused the pains I have had since I quit it. It is an
 KJ> anticonvulsant and even the doctors don't understand why it works for
 KJ> some people. Whoever said medicine was an exact science . I am
 KJ> starting to believe that if any relief can be obtained ffrom drugs it
 KJ> is by a doctor using a recipe like your grandmother's for spaghetti
 KJ> from scratch. No precise measures, just a little bit of this and that
 KJ> until it comes out right (and hopefully with few side effects or long
 KJ> term problems.

I think you're absolutely correct!  Besides Clonopin, they also tried me on
Tegretol and Dilantin (both anticonvulsants) for the spasticity also.

 PB> I feel this pain is much more disabling that my MS or paralysis is.

 KJ> I couldn't agree or empathise with you more. I wish you luck. It is
 KJ> always sad to hear stories like yours. But at the same time it is
 KJ> encouraging that you are able to hang in there with problems that make
 KJ> mine look minor in comparison.

I have no choice but to hang in there, well I guess I do, but the alternative
is sorta final...not my cuppa tea.

Patti

... ** Confidence is the feeling you had before you knew better. **

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From: David.Andrews@p0.f89.n129.z1.fidonet.org (David Andrews)
Newsgroups: misc.handicap
Subject: Re: Vendor Favoritism
Date: 28 Jul 92 16:55:32 GMT
Reply-To: David.Andrews@p0.f89.n129.z1.fidonet.org
Organization: FidoNet node 1:129/89.0 - BlinkLink, Pittsburgh PA
X-Fidonet: Blink Talk Conference

Index Number: 23380

[This is from the Blink Talk Conference]

 -=> Quoting Walter Siren to David Andrews <=-

 DA> Well Steve, if I am not mistaken, Deane Blazie went to ACB this year,

 WS> Well, you are mistaken.  He did not come to ACB, he sent David
 WS> Goldfield.

His company was there, so split hairs why don't you.  He left NFB early,
obviously to go somewhere, where I don't know.  The important thing to me seems
to be that the company was adequately represented at your convention.
David Andrews

... Mary had a little RAM -- only about a MEG or so.

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From: Carla.Campbell@p0.f89.n129.z1.fidonet.org (Carla Campbell)
Newsgroups: misc.handicap
Subject: Re: nfb bbs censorship??
Date: 28 Jul 92 17:10:49 GMT
Reply-To: Carla.Campbell@p0.f89.n129.z1.fidonet.org
Organization: FidoNet node 1:129/89.0 - BlinkLink, Pittsburgh PA
X-Fidonet: Blink Talk Conference

Index Number: 23420

[This is from the Blink Talk Conference]

Hi and thanks for your thoughts.  I appreciated what you had to say and
that you took the time to say it.  Naturally, I disagree with some of
your points (no, I don't enjoy discent for its own sake, but I do like
rapid-fire exchange of ideas for its use as a brain-stirring device...
;-) )  But you wrote very articulately and gave me food for thought.
That, I can always appreciate.  I've got hungry thoughts.

 JM> The politics of blindness is really no different than any other
 JM> politics.  There are people willing to join a political party
 JM> and "get their hands dirty" trying to express their opinions
 JM> and bring others around to believing what they believe.  Then
 JM> there are those who are waiting for some magical organization
 JM> to come into existence that reflects their beliefs

Then there are those of us who do not believe that the individual is
powerless and pursue our beliefs as individuals.  We still hope, some
day, to find people of a like mind on these issues with whom to pool our
energy, but we do not feel that we should commit ourselves to upholding
a dozen philosophies in which we do not beleive for the sake of
promoting one in which we do.  Think of us as special interest
lobbiests.

I do not hope for the mythical, magical organization made up of people
who think just as I do on every subject.  I merely hope to find, some
day, that one of the organizations has a majority with whom I agree more
than about 15% of the time, or who are willing to accept my input of
energy on only those issues which I feel are important and on the
policies which I feel are correct.  My mind has been changed on many an
issue in the past, as well, when those with whom I disagreed treated me
with respect and *convinced* me of the correctness of their perspective.
I am not unwilling to be shown flaws in my reasoning or, better yet, to
listen to aspects of an issue which I had never considered.  I don't
feel that I want to compromise my basic beleifs, or that I am actually
"wrong" 80% of the time, however.

Meanwhile, I do not remain "politically inactive" any more than do those
special interest lobbiest who write letters to Congresspeople, promote
their causes in public and do their best to empower those around them
whom they do feel represent their interests or who need their support as
individuals.

(more on other matters in next message)
                                                 --Carla

... Read what I mean, not what I write!

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From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Hand Controls
Date: 21 Jul 92 16:06:47 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Spinal Injury Conference

Index Number: 23214

[This is from the Spinal Injury Conference]

 To: rocker@desire.wright.edu (Ronnie)

 Ro> I'm looking for something that I could push forward for brack and
 Ro> pull back (not down) for gas.

Call Gresham Driving Aids and they will refer you.  800-521-8930.
I think the manufacturer you want is Kopecke.

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Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
From: John.Hargrove@f68.n382.z1.fidonet.org (John Hargrove)
Newsgroups: misc.handicap
Subject: Re: HELLO
Date: 24 Jul 92 13:41:19 GMT
Reply-To: John.Hargrove@f68.n382.z1.fidonet.org
Organization: FidoNet node 1:382/68 - Diabetes Discussion, Austin TX
X-Fidonet: Amputee Conference

Index Number: 23287

[This is from the Amputee Conference]

In a message to All <07-17-92 15:38> Daniel Santos wrote:

DS> I just logged onto this echo today and wanted to introduce myself.  I

Welcome to the echo. You'll find a real nice group here.  Since I been on I
 have gotten a lot of good info from this bunch.  My name is John Hargrove and
 I am a BK of the right leg.  Lost it due to tomany years of diabetes.  Doc
 found clots forming in my foot and about 4 inches below my knee.  Docs did
 everything they could to try to save the leg but by the time they decided it
 needed to go I was begging them to take it.  Been a BK for 3 years coming this
 Augs.

Am with an amputee group that has form and where fixing to go into our 3rd
year.  We have a combination of speakers and rap sessions.

John

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From: Jamal.Mazrui@p0.f460.n101.z1.fidonet.org (Jamal Mazrui)
Newsgroups: misc.handicap
Subject: Re: Acb/nfb Feud
Date: 21 Jul 92 15:50:11 GMT
Reply-To: Jamal.Mazrui@p0.f460.n101.z1.fidonet.org
Organization: FidoNet node 1:101/460.0 - VI/BUG, Holbrook MA
X-Fidonet: Blink Talk Conference

Index Number: 23198

[This is from the Blink Talk Conference]

Mike Freeman castigates you for criticizing the NFB's
undemocratic nature without having investigated it personally yourself.
 Of course, you may do that if you wish and have the time.  However, I
don't think he can discount all of the people who report what the NFB
is like to you.  Is it pure coincidence that NFB has this large and
consistent reputation for undemocratic behavior?  Amy Cuningham, the
author of the "Blind Loyalty" article, apparently felt that there must
be something to it.  That is why she began a three month investigatory
article after originally beginning what was to be a friendly feature
story about a national blindness organization that has its headquarters
in the city of focus of Baltimore Magazine.  My understanding is that
after visiting and being impressed with Jernigan and NFB headquarters,
she felt, as an act of responsible journalism, she should solicit some
viewpoints about the NFB from blind people who were not staff or
committed members.  She discovered a veretable Pandora's Box of
heavy-handed history--a pattern of autocratic rule and and oppression
of differing views that contradicts the spirit of American culture and
process--one that is reminiscent of the communist regimes we have proudly
distinguished ourselves from in this nation.

Bill, I can tell you from my own unfortunate personal experience as one
who tried to think for himself as a dedicated member of the NFB that
the two charastics (free thinking and decication) are internally
contradictory in the NFB and will eventually lead to reprisal if one is
perceived by the adminstration to represent any kind of competent
threat to their hold on the policies and priorities of the
organization.  If one wants inspiration or a felling of security, the
NFB may be the way to go.  But if a blind person wants to participate
in a democratically representative organization of blind people, then
it is surely not.

Regards,

Jamal

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From: Al.Smith@f281.n351.z1.fidonet.org (Al Smith)
Newsgroups: misc.handicap
Subject: epilepsy(surgery)
Date: 28 Jul 92 16:52:52 GMT
Reply-To: Al.Smith@f281.n351.z1.fidonet.org
Organization: FidoNet node 1:351/281 - <Second Chance, Nanaimo BC

Index Number: 23373

 >     Yes, my wife is doing better, she's had a couple
 > of episodes with
 > seizures since the switch over to tegritol, but they
 > have increased the dosage
 > which seems to have {so far} quelled further episodes.
 >     What type of surgery did they perform which
 > resulted in no more seizures?

Hi Rick, The type of brain surgery that I had was called "Anterior
temporal lobectomy". It is a nine hour surgery procedure in which
the damaged area is removed.In my case the removed HALF my brain,
and get this I am (according to the doctors) 10 times brighter,
smarter, faster, and every other way that they could think of. It's
great to be alive. It really shows you how much of our brain that
we use. From what i've been told, this operation will only benifit
100,000 epileptics out of about 2,000,000. But check it out(nothing
ventured , nothing gained) Also in time ,who knows? Anythings
possible. I'm not quite sure exactly how much information you want.
If there's anything else. let me know.You know Rick it's almost
ironic that my wife (Jan) is in the process of switching completely
over to tegretol as well.Catch you later, Al

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From: Delia.Stark@f218.n260.z1.fidonet.org (Delia Stark)
Newsgroups: misc.handicap
Subject: 'bye for awhile
Date: 21 Jul 92 16:02:51 GMT
Reply-To: Delia.Stark@f218.n260.z1.fidonet.org
Organization: FidoNet node 1:260/218 - <NF2G and N2PHA, Rochester NY

Index Number: 23209

[This is from the Chronic Pain Conference]

Well, everyone, I wanted to say a big thanks for all the
encouragement, and I'll be back on the echo as soon as I can after
surgery.  I'll still be reading through the weekend, but probably
won't get any messages sent to me after that....

I'm admitted on the 21, surgery on the 22.  For those of you who
knew I was a little nervous about the start time, the surgeon
changed his cases so that I'm first start Wednesday (I told him I'd
get down on my knees and say thank you but I didn't think I'd get
back up :-)

The only hitch in the whole thing is that he is thinking now he
might have to do another fusion... depending on what he finds once
I'm open.  YUK.  That would mean considerably longer rehab, but if
it works then it'll be worth it.

I'll be back as soon as I can.......
      D.

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From: Wayne.Briggs@p3.f26.n392.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: Using a computer without much muscle control
Date: 24 Jul 92 03:14:34 GMT
Reply-To: Wayne.Briggs@p3.f26.n392.z1.fidonet.org
Organization: FidoNet node 1:392/26.3 - Star Express, Abilene Tx

Index Number: 23257

Contact Apple Computer Company. Their LC II won't type by voice but
you can give it voivr commands with Voice Navigator. Keys are
adjustable as to how much force or duration of depression it takes
to activate.

I have nothing to do with computer or relates sales - I use a
computer as a replacement for my right arm.

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Internet: Wayne.Briggs@p3.f26.n392.z1.fidonet.org
From: dashiell@nadc.nadc.navy.mil (Jude DaShiell)
Newsgroups: misc.handicap
Subject: Re: a slip of the word
Date: 24 Jul 92 20:21:07 GMT
Reply-To: dashiell@nadc.nadc.navy.mil (Jude DaShiell)
X-Fidonet: Blink Talk Conference

Index Number: 23356

I believe jamil's word should be antidote not
anecdote though anecdote reveals something interesting,
maybe for the public more of this story should be gotten out.
That adventure game comes up again.  Imagine how formerly sighted
people would react once they had to face some of our
unemployment situations in the game.  That in itself would be a serious
education and probably do more than any story in any
magazine to get the point across.

jude <dashiell@nadc.nadc.navy.mil>
From: Joan.Wolschleger@f3.n157.z1.fidonet.org (Joan Wolschleger)
Newsgroups: misc.handicap
Subject: Cancer sufferer in financ
Date: 31 Jul 92 04:31:59 GMT
Reply-To: Joan.Wolschleger@f3.n157.z1.fidonet.org
Organization: FidoNet node 1:157/3 - Nerd's Nook, Rocky River OH

Index Number: 23448

PK>Now we come to find that in 2 weeks, all of Mariane's disability
PK>payments will be ceased.  They had decided, that based on one
PK>doctors opinion, she doesn't deserve any money from them.  This is
PK>re: the back injury - I don't believe they even know about the
PK>cancer diagnosis.  This is really immaterial since, in two weeks
PK>the money is gone.  An appeal apparently takes several months on
PK>average.  In the meantime Mariane will be on the street - since the

If she was a citizen of Ohio, an appeal has an option of continuing
the disputed assistance until the appeal is resolved.  The drawback
is that if they rule against you, you have to pay back the amount
paid during the appeals process, and the state would have to be
overwhelmed with evidence to prevent it from ruling against you.
Mariane's state might have a similar procedure, but time is of the
essence in these situations.  If the assistance is allowed to
lapse, it seems to indicate she didn't really need it in the first
place (or so the theory goes).

 * OLX 2.2 * Laughter........the BEST medicine!!!

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From: Wayne.Briggs@p3.f26.n392.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: Myoelectric Arm Exchange ?
Date: 24 Jul 92 13:39:44 GMT
Reply-To: Wayne.Briggs@p3.f26.n392.z1.fidonet.org
Organization: FidoNet node 1:392/26.3 - Star Express, Abilene Tx
X-Fidonet: Amputee Conference

Index Number: 23282

[This is from the Amputee Conference]

Does anyone know of a service where a person can make provision to
donate a myoelectric arm after ther death so the exprensive
compoents can be used by someone withouth health insurance coverage ?

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From: 34AEJ7D%CMUVM.BITNET@VM1.nodak.edu (Bill Gorman)
Newsgroups: misc.handicap
Subject: Companion Dogs and epileptic seizures
Date: 21 Jul 92 20:35:25 GMT
Reply-To: 34AEJ7D%CMUVM.BITNET@VM1.nodak.edu (Bill Gorman)

Index Number: 23221

Here's a note about this from my CANINE-L discussion list. I thought
someone here might find it of interest.

Sez me,

W. K. (Bill) Gorman
----------------------------Original message----------------------------
>On dogs pridicting epileptic seizures:   I have heard of them being
>used.  Studies have proven that during a certain time period before a
>seizure, people who have epilepsy perform particulat behaviors that
>they might not be able to recognize.  The dogs can sense these
>behaviors and are taught to warn the victim before the seizure at
>which point the victim would take precautions to prevent the seizure
>eg.  take medicine, sit and relax, or whatever the doctor recommended.
From: Jeff.Dubois@p0.f266.n163.z1.fidonet.org (Jeff Dubois)
Newsgroups: misc.handicap
Subject: Stigma attached?
Date: 21 Jul 92 15:32:20 GMT
Reply-To: Jeff.Dubois@p0.f266.n163.z1.fidonet.org
Organization: FidoNet node 1:163/266.0 - Vision, Ottawa ON
X-Fidonet: Blink Talk Conference

Index Number: 23180

[This is from the Blink Talk Conference]

This is probably one of the most bizarre inquiries I've made in this
echo.
Of course, as most of you know, I'm majoring in law at Carleton
University here in Ottawa.
Now we've discussed jailhouse blinks as a matter of interest, and
I'm currently at the point of deciding what my thesis should consist
of.

Now, here's the rub.
I have just finished reading an interesting article by Elizabeth Maules,
a feminist, who argues that women are treated gentler in the criminal
justice system as a result of lack of understanding of the female
persona and the patriarchal nature of the agents of the justice system.

Could the same be true for blind persons as well?
I would suspect that it would hold true, however, I've done some searches
through the literature and have been unable to find alot of material
that deals with blindness and the justice system.

If anyone has read any material that may even come remotely close
to this vein, I would appreciate either a quick note or something
via netmail.

For me this is an interesting concept.
Tnx.
Jeff

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From: Tandy.Way@f6.n377.z1.fidonet.org (Tandy Way)
Newsgroups: misc.handicap
Subject: B n s and grade 2
Date: 21 Jul 92 15:35:15 GMT
Reply-To: Tandy.Way@f6.n377.z1.fidonet.org
Organization: FidoNet node 1:377/6 - T.A.B.B., Tampa Fl
X-Fidonet: Blink Talk Conference

Index Number: 23183

[This is from the Blink Talk Conference]

a bunch of you on here told me what I believed to be the case that
braille and speak was not capable of producing grade 2 braille
output. now I don't know much about b n s yet and I don't plan to
learn any more than I have to in order to create and move around in
a file.  however either most of you don't know the capability of
your own machine or someone has accidently stumbled on something
that is the best kept secret. I saw a girl at work create a file
today. she turned the translator on and when she outputted it to
the blazie it came out in grade 2 braille. she said when she
creates the file she turns the tranlator on and brailles in grade
two. then when she prints it she does I think she said a cord b and
a cord t and the paper product comes out in grade 2.  so you all
figure this one out. tandy

Pilots are just PLANE people
=== Via Silver Xpress V3.00B09

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From: Wayne.Briggs@p3.f26.n392.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: wanted: motivation information for brain injured relative
Date: 24 Jul 92 03:14:19 GMT
Reply-To: Wayne.Briggs@p3.f26.n392.z1.fidonet.org
Organization: FidoNet node 1:392/26.3 - Star Express, Abilene Tx

Index Number: 23256

A moderate to severe open or closed head injury can cause major
problems with memory & processing information. If this was a
relative or patient of mine, I wouldwant them to be evaluated by a
"neuro-psychologist" who actually has a Ph.D. with a major in
neuro-psychology as opposed to clinical or ccounsreling or other
field in psychology.

If you call Dr. Sam Brinkmaan's secretary in Abilene, Texas &
inform them what majoer city you are in or near, perhaps Dr.
Brinkman would suggest someone and give information on the National
Head Injury Foundation.

In my experience, it takesa separate support groups for the injured
folks and for familyfriends.

A good head trauma rehabilitAtion program with prfessionals very
competent in the rehabilitation sub-speciality of head trauma is
important.

Unfortunately, not everyone can benefit or benefit as much from
this specific rehabilitation.Progress is often measures over months
& years.

Good luck. God bless.

P.S. I'm a clinical socialworker & famility therapist with about 7
years experience counseling  head injury survivors & their
families. The neuropschologist and the occupational therapist are
the major folks in such rehab programs.

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From: Jonathan.Guidry@p3.f7.n3803.z1.fidonet.org (Jonathan Guidry)
Newsgroups: misc.handicap
Subject: Speech synthesizer
Date: 21 Jul 92 15:42:07 GMT
Reply-To: Jonathan.Guidry@p3.f7.n3803.z1.fidonet.org
Organization: FidoNet node 1:3803/7.3 - Circle of Support, New Iberia LA
X-Fidonet: Blink Talk Conference

Index Number: 23194

[This is from the Blink Talk Conference]

To All:
Does anybody know of a good speech terminal program that works with a
Symphonix speech board?  I'm trying to locate one for my friend.  If
you have a bbs number where one can be found that would also be
appreciated.
Thanks,
Jonathan D. Guidry

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