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Approved-By:  Bill McGarry <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Thu, 19 Nov 1992 02:00:07 EST
Reply-To:     Bill McGarry <wtm@sheldev.shel.isc-br.com>
From:         Bill McGarry <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 3021

                             THE HANDICAP DIGEST

                                 Issue # 3021

                         Thursday, November 19, 1992

Today's Topics:


                                ******


                    "egocentric" or self-directed signing
                         Independent Living Centers
                                  Re: Sugar
                        Re: New Amputee - Intro letr
                                  FOLLOW-UP
                                Organizations
                                Organizations
                         Re: Weather with the stump
                             Rehabilitation act.
                                 Ultralites
                                    Hello
                                Here goes...


                                ******


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thoughts in the next issue, please send electronic mail to
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Compuserve: 73170,1064

                              Bill McGarry (Moderator)
                              (203) 337-1518



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Subject: "egocentric" or self-directed signing
From: ALUCKETT%UTOROISE.BITNET@VM1.NoDak.EDU (Arleigh Luckett)

I am an early interventionist who works with young children facing
a wide variety a barriers to normal development.  I am also a
graduate student.  I have been studying Vygotsky's theory that the
self-directed (or "egocentric") speech that is often observed in
young children -- up to age 8 or 9 is actually the precursor of
verbal thought or inner speech.  THe suggestion here is that the
development of language has important implications for the
development of intellectual abilities.

In early intervention we are often concerned with helping children
who do not talk at the usual age develop some form of social
communication.  It seems it may also be important to consider how
they might use such a form for self directed communication too.  I
would like to know if children who learn sign language as their
first language have been observed to engage in self directed
signing.  Or for that matter do children who are deaf but are being
trained in oral methods ever engage in "egocentric" speech?

Self directed speech tends to occur more often in the presence of
another person with whom the child communicates.  At first, the
other person may mistakenly think the speech is directed at
him/herself but clues such as lack of eye contact and omitted words
indicate egocentric speech.

I would appreciate any anecdotes or references to research or
accounts of self-directed signing in children age 2 to 9 years.

Arleigh Luckett
aluckett@utoroise
Ontario Institute for Studies in Education




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Subject: Independent Living Centers
Organization: North Dakota Higher Education Computer Network
From: person@plains.nodak.edu (Brett Person )


I am on the board of advisors for a local independent living center.
I've been on the board for one year and I'm still confused about what we
are doing. We are not the board of directors, just a body of advisors to
help them get their programs up and running. It sucks because we don't
have any direction from the board of directors. These people have almost
no programs set up, and I'm  one of five people who bother to
occasionally show up for the meetings. I *want* an IL center in my town,
I'd like advice from people who are involved with other independent
living centers around the country.  How do you people use your advisory
boards? Do you have advisory boards?Send me email for more details













Brett Person nu079509@ndsuvm1 || nu079509@vm1



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Subject: Re: Sugar
From: largeman@aol.com (Beefta LargeMan)
Organization: HeadGuy Software


| DJ>Does anyone here have any insight on using sugar on pressure sores?  I
| DJ>am facing surgery which I REALLY don't want to have.  It would
| DJ>make my life much less stressful if I could heal without an
| DJ>operation.  Thanx.
|
| I never heard of that. It doesn't sound good to me. Any time you
| put something on a open sore you may have a problom. Ask your Doc.
| I only had 1 and they had me stay off it and keep it very dry. We
| even put a sun lamp on it... Well aimed a sun lamp at it. Not to
| close, you don't want it to get hot, just dry.

Powdered Sugar was used in the pre-antibiotic era to help control bed
sores.
It was sprinkled on the sheets.




------



Subject: Re: New Amputee - Intro letr
From: infmx!sbill@uunet.UU.NET (Bill Stackhouse)
Organization: Informix Software, Inc.

Regarding wheelchairs for amputees - for a single leg amputee it
depends on the persons ability to balance on crutches. I would
strongly urge anyone to give crutches a fair chance before buying
a wheelchair or giving up on crutches. I know there are amputees
that put their leg on when they get out of bed and never take it
off until they get back in bed but most of my amputee friends
and I are at the other end of the sprectrum. I use my leg when
it makes life easier for me like going to the grocery store but if
all I am doing is going to the movies, I am on my crutches. Loading
and unloading a wheelchair just to run into a store would be a drag.
also getting around in a crowd in a chair seems like it would be much harder
and getting things off a high shelf in the store likewise. These are
things that full time wheelchair users seem to complain about. My
advice is to get a good pair of metal underarm crutches and learn how
to use them. I say underarm crutches because you can actually get
around with them with your hands free to carry things, espacially
for very short distances. I can carry 2 drinks around in my place
while on my crutches. A lady I know can carry 2 full bags of groceries
while on crutches. I sometimes feel "disabled" around her. My only
problem with crutches is a long flight of stairs when I sometimes feel
unbalanced. Of course stairs and wheelchairs don't mix well. And last
but not least, that middle of the night need to get up is a lot easier
if all you do is grab your crutches. Oh, don't forget that hopping is
also a quick way to move around like in the kitchen.
Bill, AK amputee





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Subject: FOLLOW-UP
Subject: Organizations
Subject: Organizations
From: Mike.Rollo@p0.f5109.n124.z1.fidonet.org (Mike Rollo) Mike Rollo
From:    Mike Rollo
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX


[This is from the Amputee Conference]


To:      Sheila Fava


I wanted to follow up on our earlier communications:

First, the A.A.A. no longer exists.  Those interested in Amputee competition
should contact:

   National Handicapped Sports
   Brian Williams
   (719) 574-4136

He referred me to Bob Gailey at the University of Miami (305) 284-4535.
Apparently, Mr. Gailey is the Athletic Trainer/Physical Therapist who
coordinates medical coverage for competitive events.

Schedules for competition for next Spring is not yet set.  I will get back to
you when I get more information.

Thanks for all of your help.

--
Uucp: ..!uunet!bunker!hcap!hnews!124!5109.0!Mike.Rollo
Internet: Mike.Rollo@p0.f5109.n124.z1.fidonet.org



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Subject: Re: Weather with the stump
From: John.Hargrove@f68.n382.z1.fidonet.org (John Hargrove)
Organization: FidoNet node 1:382/68 - Diabetes Discussion, Austin TX


[This is from the Amputee Conference]

In a message to John Hargrove <11-11-92 21:44> Shari Messner wrote:

SM> I find this interesting.  Sorry you have to suffer with it but it is
SM> kind of neat that you are able to find a cause for the pain and
SM> identify
SM> the weather.

It is interesting.  Weather and stump have been acting funny the last few
 days.  We've just went through several days of balmy wet weather.  The stump
 did not know what to do.  It would hurt one day and not the next. This went on
 for 3 to 4 days.  Then this front we had just hit started moving and the stump
 started doing its thing.  It's not any pain of anytype.  It's just the feeling
 of my foot and all the bone popping needing to be done and I can't do it.
 It's just plain wierd.  Trying to scratch or pop the other foot does nothing
 for it at all.  Me and my funny nerves...grin.

SM> Fairly well.  He had his prothesis taken away from him for about
SM> three
SM> days because they didn't want him to cheat and put it on.  They are
SM> trying to get his stump to heal as it has been bruised from the
SM> prothesis and is very sore.  They gave it back to him and he is using
SM> it
SM> again so I guess they are trying to see if it works better or causes
SM> it
SM> to bruise again.  So unfortunately he has been in a lot of REAL pain.

Funny how different groups work.  I did not get my prosthesises until my stump
 was healed.  Some of the others in the support group I go to got theirs within
 2 to 3 days after surgery.  In my case I had a plaster cast on for a months
 and a half.  Will keep you out of a leg for a bit.  Then I was in stump
 schrinkers (sp) for another month and a half walking with cructhers.  So for 3
 months I was on cructhes and then when I got my leg I was still on the sticks
 for another month. Guess your friend just work to hard walking on the leg.
 Had one member of the group whos doc took her leg away for a week or two for
 about the same reason.  She was working to hard trying to get back up and
 walking.

SM> fuzzies coming your way

and coming back to you tooooo.

John

--
Uucp: ..!uunet!bunker!hcap!hnews!382!68!John.Hargrove
Internet: John.Hargrove@f68.n382.z1.fidonet.org



------



Subject: Rehabilitation act.
From: Thomas.Martin@f14.n279.z1.fidonet.org (Thomas Martin)
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV


[This is from the Amputee Conference]

I encouage all amputee support groups and active amputee advocates to
become fully aquianted with the newly reauthorized Rehabiliation Act as
passed by the Congress in Washington in the last days of its session
prior to adjounment.  It is Public Law 102-569; and more information is
available in Congressional Conference Report 102-973.
You can obtain copies by requesting these two documents from your own
United States Representative or Senator:
    The Honorable _________________
    United States House of Representatives
    Washington, D. C. 20515
                                        OR
    The Honorable ___________________
    United States Senate
    Washington, D. C. 20510
                                         OR
    202/224-3121

The House Document Room, Annex 2 B18, United States House of
Representatives, Washington, D. C. 20515,  202/225-3456
will accept requests for copies of these documents in writting or by
telephone.    The Senate Document Room, United States Senate, SH-B04,
Washington, D. C. 20510 will only accept requests in writting; its
telephone number is 202/224-7860.

GO FOR IT !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

--
Uucp: ..!uunet!bunker!hcap!hnews!279!14!Thomas.Martin
Internet: Thomas.Martin@f14.n279.z1.fidonet.org



------



Subject: Ultralites
From: Carlos.Steffens@f160.n109.z1.fidonet.org (Carlos Steffens)
Organization: FidoNet node 1:109/160 - Baron Carlos's Cast, Washington DC


[This is from the Abled Athlete Conference]

     Hi Sheila, how are you?  How was the swim meet?

This message may very well be in the wrong conference as I do not
know if flying ultralites qualifies as a sport.  Anyway, I was
reading one of the latest Sports n' Spokes when I saw an
announcement for a wheelchair sports and recreation camp.  One of
the featured activities was ultralite flying.  I wrote them a
letter asking for info on adaptability of such crafts for the use
of quads, whether there were any associations or clubs relating to
ultralite flying, etc.  About a month letter I received a brochure
from them and no mention of my inquiry.  Maybe you have some info
or idea as to how I can get involved in this activity.  Hope you
can help.  Thanks,

         CarloS

--
Uucp: ..!uunet!bunker!hcap!hnews!109!160!Carlos.Steffens
Internet: Carlos.Steffens@f160.n109.z1.fidonet.org



------



Subject: Hello
From: Michael.Rooney@f737.n106.z1.fidonet.org (Michael Rooney)
Organization: FidoNet node 1:106/737 - AirBoat OnLine, Houston TX


[This is from the Chronic Pain Conference]

WB>Did you read the posting I sent concerning details of applying for Social
WB>Security Disability ?

WB>isn't over. I was down to working 3 hours twice a week. I was scared to stop
WB>even after the doctor ordered me to. However, after I did, there was a
WB>surprising relief. I no longer felt a burden to keep trying to do what I
WB>could not do. I knew I had ethically made a good decision for my clients.
WB>They needed to see someone whose health made it possible to recieve the
WB>services they needed, when they needed them and as often as they needed them

WB>I have also been very worried after my health insurance was cancelled  & no
WB>one would insure me. What would happen if I got another MSRA infection or a
WB>new problem such as cancer or a heart problem ?  Well because I met criteria
WB>for Social Security Disability & it had been adequately medically documented
WB>a MEDICARE card came in the mail, it is to be effective February 1, 1993.

Have not said anything to you since I saw you were to get the arm amputated.
One of those situations where words were sort of hard to find. I hope
Cameron takes your advice on SSDI. It is very difficult to make the decision
to apply for it since, as you, it was hard to come to terms that I would not
work again on any regular basis. I do some computer consulting but it just
about pays for itself. But it does help mentally to know I can still do
something productive. I have had a job since I was 14 and miss the daily
grind and friendships.

Cameron and I both have the same disease and it does not get better, just
worse, although there are periods when you do feel almost normal (although
most people I know would dispute that <g>). You can fell great at 7 AM and
be barely able to get around at 10AM. One of the things going against
Cameron getting SSDI are their own regs. As I told him I could not even get
a lawyer to take my case but I won anyway. His biggest problem will be
getting a doctor who is very well versed in AS and who will stand behind
him in his quest to get it. That in my mind is what did it for me. Both
doctors I had used supplied me their complete records along with a letter
stating their opinion as to my condition and it's prognosis. It is, as you
know, a long process and the sooner he starts the better.

Hope this finds you doing better and in good spirits. You have been in my
prayers. Mike...
 ~ SLMR 2.1a ~ Then again, I could be completely wrong...     Nahhh!

--
Uucp: ..!uunet!bunker!hcap!hnews!106!737!Michael.Rooney
Internet: Michael.Rooney@f737.n106.z1.fidonet.org



------



Subject: Here goes...
From: Jim.Graham@p0.f5109.n124.z1.fidonet.org (Jim Graham)
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX


[This is from the Chronic Pain Conference]

It's Monday November 9, and the sympathectomy I received on November
3 still has produced no relief.  However, I think the major side-effect
is finally showing up.

When I stand or sit with the leg un-elevated, the entire leg and foot
turn a rosy-red and becomes warm and dry to the touch.  I guess I
can at least say that the surgeon removed the right nerves!

Yesterday I noticed one other minor side-effect.  There is an area
about 3 inches wide by 5 inches high, just above the coccyx, that
is completely numb.

I mailed a letter today, to the chief neuro-surgeon at the Community
Hospital Center for Pain Management, and a copy to the center's
psychologist.

The letter will either make me out to be a crazy fool, or it will
accomplish its intended purpose.

Monday of next week I will be having a "conference" with both of the
above M.D.'s, and I thought a letter 1 week in advance would save
us all a lot of time and rhetoric.

Essentially, I have informed the doctors that I will pursue below-
knee amputation, with or without their assistance.  I explained the
logic that I used to arrive at this drastic decision, and told them
in no uncertain terms that pain management is tantamount to "giving
up" as far as I'm concerned.

This isn't to say that I have anything against those that choose it,
because it serves a very important purpose when all other surgical
"options" have been exhausted.

I dread the conference, and I'll be "pumping" myself up to face whatever
opposition that they may present (then again, there may be none).

If they don't cooperate, then my "adventure" to find complete relief
truly begins.

Wish me luck....

Jim Graham
The Portal Dolmen BBS (812)334-0418

--
Uucp: ..!uunet!bunker!hcap!hnews!124!5109.0!Jim.Graham
Internet: Jim.Graham@p0.f5109.n124.z1.fidonet.org



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                                ******

                  End of Issue # 3021 of the Handicap Digest

                                ******
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