X-Mailer: ELM [version 2.3 PL11]
Approved-By:  "(Bill McGarry)" <wtm@SHELDEV.SHEL.ISC-BR.COM>
Newsgroups: bit.listserv.l-hcap
Date:         Tue, 6 Oct 1992 17:45:24 EDT
Reply-To:     "(Bill McGarry)" <wtm@sheldev.shel.isc-br.com>
From:         "(Bill McGarry)" <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2951

                             THE HANDICAP DIGEST

                                 Issue # 2951

                          Tuesday, October 06, 1992

Today's Topics:


                                ******


                           USA support groups info
                                Pilot project
                                ADA database
                              Re: ADA database
                        Another Hand Control Question
                                   bowling
                                Re: Permobil
                       Re: Jerry's Orphans Needs You!


                                ******


To subscribe to the Handicap Digest mailing list or have your
thoughts in the next issue, please send electronic mail to
Bill McGarry at any of the following addresses:


UUCP:       uunet!bunker!wtm
INTERNET:   wtm@bunker.shel.isc-br.com
BITNET:     l-hcap@ndsuvm1.bitnet
Fidonet:    The Handicap News BBS (141/420)   1-203-337-1607
	    (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064

                              Bill McGarry (Moderator)
                              (203) 337-1518



------




Subject: USA support groups info
From: BFU%NIHCU.BITNET@LIST.NIH.GOV (Roger Burns)

[This is from the "Chronic Fatigue Syndrome discussion CFIDS/ME"
 mailing list <CFS-L@NIHLIST.BITNET>]

[Originally from Trish Jamieson <tronsbox!trish@FDURT1.FDU.EDU>]

----------------------------------------------------

... [Please post] this one message for me.  I thought that it might
be of interest.
I received it with a packet of information from the National Chronic
Fatigue Syndrome Association in Kansas City, MO.  It helped me to
locate a local doctor so I thought maybe it might help someone else.
Thanks in advance.
_________________________________________________________________

The following information is from the National Chronic Fatigue
Syndrome Association in Kansas City, MO.

"We have been advised that the following person(s) may be able to
refer you to a local support group or physician."

ALABAMA
Cheryl Jones
(205)283-3324
Route 3, Box 93
Tallassee, AL 36078

ARIZONA
Larry Sakin
(602)298-8627
Arizona CFS Research Institute
P.O. Box 12345
Tucson, AZ 85732

CANADA
Ann Teehan
(416)841-1737
154 Timerberline Trail
Aurora, Ontario L4G 5Z5
Canada

D.C.
Mary Greenly
(202)966-3863
3001 Veazey Terrace,
NW #1125
Washington, DC 20008

DELAWARE
Judy Derr
(302)239-7848
Delaware Valley CFS/CFIDS
42 Quail Hollow Drive
Hockessin, DE 19707

IDAHO
Tanya Chesnut - PC
(208)773-0733
230 S. Rivercrest
Post Falls, ID
83854

ILLINOIS
Ruth Robin
(312)280-6987
CFS Society of Illinois
P.O. Box 10139
Chicago, IL 60610

INDIANA
Linda Commons
(317)252-9223
Indiana CFS Association
810 N. Bancroft
Indianapolis, IN 46201

IOWA
Lisa Vann
(319)396-3326
Iowa CFS/CFIDS Information Center
114 Sand Lane N/W
Cedar Rapids, IA 52405

MICHIGAN
Linda Frolick
(616)875-7608
11305 Taylor Street
West Olive, MI
49460

MINNESOTA
Judy Basso
(612)943-2769
CFS Association of Minnesota
P.O. Box 385036
Minneapolis, MN 55438

NEVADA
Bette McLean
(702)363-5259
CFS Las Vegas
8600 Starboard Dr., Bldg. 13, #1097
Las Vegas, NV 89117

NEW JERSEY
Bob Landau
(908)351-2012
CFS Association of New Jersey
801 N. Broad Street, 10-D
Elizabeth, NJ 07208

NORTH DAKOTA
Ron R. Zeller
(701)225-6619
403 2nd Street S/W
Dickinson, ND
58601

OHIO
Marilyn McGrath
(513)252-8549
Ohio CFS/CFIDS/CEBV/ME Association
1647 Northdale Rd.
Dayton, OH 45432

OKLAHOMA
Claudette Fiskin
(918)687-6461
Oklahoma CFS Association
1316 Foltz Lane
Muskogee, OK 74403

PUERTO RICO
Sylvia DePurcell
(703)783-2254
Calle Jardin AA-3
Garden Hills
Guaynabo, PR 00657

SOUTH DAKOTA
Kathy Rick
(605)582-2144
129 5th Ave.
Brandon, SD
57005

WEST VIRGINIA
Joan Wildpret
(304)277-1595
129 N. Ninth Street
Wheeling, WV
26003




------



Subject: Pilot project
From: patt@squid.tram.com (Patt Bromberger)

[Forwarded from the VOCNET - NCRVE UC Berkeley Voc Ed
 Practitioners' Discussion Group mailing list]

Hei VOCNETnetters,
regards from Finland.

We intend to start a pilot project for a couple of vocational
institutes about interpersonal contacts abroad, kind of a new
step about internationalization for schools which don't have very
much (or none) exprience about using telematic tools.

We selected different kind of institutes for the pilot. There's one
for blind people, called ArlaInstitute, one about social sciences like
health care, elderly care etc, one school for nursing, one institute
of economics, one round hotel and restaurant services.

We have had a couple of preliminary meetings. Now, next Monday,
the 28th of September, people visit the University for a wider view
about different modes of telematics beside of ordinary email.

We look after foreign contacts to the pilot and the participating
institutes. In the beginning I'll hope if you dear netters could send
me some welcome messages to show those people next Monday.
If you know some American vocational schools, institutes, high schools
etc. which work in the same area these Finnish do, please, tell me
addressis, contact names etc.

Our aim is to build a Freenet like network for Finnish K12 schools
and vocational schooling. It takes still some time. Since it's birth
I'd like to start such connection to the States we (and our partners) could get
some good experience already before we can enlargen the
field of schools' independent contacts by Internet abroad.

Thanks in advance

Heikki Korpinen
Helsinki University of Technology
Finland
Internet: hkorpine@vipunen.hut.fi

    Help Finland




------



Subject: ADA database
From: stevee@cybernet.cse.fau.edu (Steven Eichner)
Organization: Cybernet BBS, Boca Raton, Florida


Apparently, a FREE (well, you still got to pay phone charges) bbs that
talks about the ADA exists. IT's phone # is 202 514 6193. Hope you enjoy
it!

I'm working on a research paper on the ADA and Administrative laws and
procedures. If anyone has any good ideas, I'd be most interested in any
assistance!

Steve

Bitnet: Stevee@cybernet.cse.fau.edu
Internet: Eichner@acc.fau.edu
The mandatory quote: "What is essential is invisible to the Eye!"

                                ******
****





------



Subject: Re: ADA database
From: wtm@sheldev.shel.isc-br.com (Bill McGarry)
Organization: The Handicap News BBS

stevee@cybernet.cse.fau.edu (Steven Eichner) writes:
> Apparently, a FREE (well, you still got to pay phone charges) bbs that
> talks about the ADA exists. IT's phone # is 202 514 6193. Hope you enjoy
> it!

Actually, I have a few gripes with this BBS which is run by
the Department of Justice (or funded by the DOJ).

I have found that most of the files from the BBS are very poorly
formatted.  Some lines are several hundred characters long, there
are control characters embedded all over the place, and so on.

I have taken all of the files that are on the Department of Justice
BBS, re-formatted them, removed control characters and have these
files along with many others available via anonymous ftp from
"handicap.shel.isc-br.com" (login in as anonymous with your e-mail
address as a password, and cd to /pub/ada) or from the Handicap
News BBS (1-203-337-1607) available for download to first-time callers.

Here is a list of the files that are available right now.  I have
another 10 or 15 files that I am still going through and which should
be available within the next few days.

 File Name     Size   Date           Description

ADA726.ZIP     48810 07-05-92  ADA text as signed by President
 The next several files are braille format files
 related to ADA
ADABRF.ZIP     46956 07-05-92  ADA text in Braille format
DEADBRF.ZIP     1998 03-11-91  ADA deadlines in Braille format
FACTBRF.ZIP     2348 03-11-91  ADA fact sheet in Braille format
AGPRESS.ZIP     3537 07-05-92  Press release by Attorney General Thornburg
ADADOJ.ZIP      7426 07-05-92  Dept. of Justice info sheets on ADA
ADA-HLP.ZIP    48527 01-23-92  ADA tax info, reading list and more!
ADA-HLP2.ZIP   23864 02-28-92  More info on ADA
ADAPAMPH.ZIP    3575 07-05-92  ADA information in DOJ pamphlet
ADAQANDA.ZIP   12931 07-05-92  Questions and answers on ADA by Dept of Justice
ADAWHERE.ZIP    1631 07-05-92  Government addresses and phones for ADA
FACTSHEE.ZIP    2421 06-03-92  ADA information in factsheet form

	   Title I of the ADA (Employment Provisions)

ADAEEOC.ZIP    72662 07-05-92  Final rules on employment and disabled from
                        the EEOC as of July 15, 1991
EEOCTA.ZIP    147106 07-05-92  Technical assistance manual - section 1
EMPLYER.ZIP    10699 07-12-92  EEOC booklet on ADA employer responsibilities
 The OFCCP is the Office of Federal Contract Compliance
 Programs.  This is Chapter 6 which explains complaint
 investigations.
FCCM_CH6.ZIP   33725 07-05-92  OFCCP complaint investigation (WP format)
FCCMCH6A.ZIP   30522 07-05-92  OFCCP complaint investigation (Ascii)
INDIVWTH.ZIP    7376 07-05-92  EEOC booklet on ADA rights as an individual
INFECT.ZIP      5044 07-05-92  Comments and final list of diseases transmitted
                       handling food, as per Sec. 103(d) of ADA
 RESEARCH is a call for comments from the Architectural
 and Transportation Barriers compliance Board on the
 ADA research agenda for technical assistance and research
 plan for fiscal years 1993 through 1997.  Comments should
 be received by June 26, 1992
RESEARCH.ZIP    9547 06-09-92  Call for comments on research through 1997
STATDATE.ZIP    2048 06-03-92  Statutory deadlines in ADA


       Title II of the ADA (State and Local Government Services)

IIHILITE.ZIP    6828 07-05-92  Highlights of Title 2 regulations
TAMANII.ZIP    50018 07-05-92  Technical assistance manual - section 2
T2ANALYS.ZIP   58008 07-05-92  Analysis of Title 2 of ADA
T2REG.ZIP      16997 07-05-92  Regulations for Title 2 of ADA


   Title III of the ADA (Public Accomodations and Commercial Facilities)

ADA301A.ZIP   340311 05-24-92  Hypertext guide to Title III of the ADA
                               (ADAGUIDE)
ATBCB.ZIP      72701 07-05-92  Guidelines (Appendix to ADA regulations)
   ATBCBATM is a proposal to amend the reach requirements
   for ATM (Automatic Teller Machines).  Comments were due by
   June 5, 1992 but any received after that date will still
   be considered.  NOTE:  This did not even reach the Dept.
   of Justice's own BBS until June 3!
ATBCBATM.ZIP    9457 06-09-92  Proposal to amend ATM reach requirements
ATBFIG.ZIP      7988 05-29-92  Description of graphics/tables in guidelines
IIIHILIT.ZIP    9618 07-05-92  Highlights of Title 3 regulations
TAMANIII.ZIP   75633 07-05-92  Technical assistance manual - section 3
T3ANALYS.ZIP  124183 07-05-92  Analysis of Title 3 of ADA
T3REG.ZIP      29480 07-05-92  Regulations for Title 3 of ADA


  Public Transportation Information (Titles II and III of ADA)

DOTADA.ZIP     43999 06-24-92  Department of Transportation's final rule for
                               ADA
DOTAPD.ZIP     78926 06-24-92  Appendix D for DOT final rules (similar to
                   Technical Assistance manuals)

ADACMTA1.ZIP   16389 05-05-92  ADA Transit plan - Austin Texas area


      Other Miscellaneous File Concerning the ADA

ADA-FCC.ZIP     4356 07-04-92  Suit against the FCC regarding code and ADA
ADAHINS.ZIP     2018 05-27-92  Will ADA ban health insurance discrimination?


               Old Out Of Date Files

 Some out of date notices of hearings, proposed rulemaking, etc
 These are included here just for references sake.
 DOJ0222 is notice of hearings on proposed rulemaking
 to conform with Title II of ADA which prohibits
 discrimination in public (state and local) establishments.
DOJ0222.ZIP   105823 03-11-91  Notice of ADA hearings: local/state
 DOJ0228 is notice of hearings on proposed rulemaking
 to conform with Title III of ADA which prohibits discrimination
 in privately owned establishments.
DOJ0228.ZIP    47257 03-11-91  Notice of ADA hearings:Private/commercial
 EEOC0228 is a notice of proposed rulemaking by the
 Equal Employment Opportunity Commission to conform with
 the employment issue in Title I of ADA
EEOC0228.ZIP   71699 03-11-91  EEOC: Nondiscrimination in Employment (ADA)
36CFR.ZIP      63196 07-29-92  Proposed rulemaking on access to public/private
                               buildings
36CFRNFO.ZIP  286712 07-29-92  Hypertext version of above proposed rulemaking

                                Bill McGarry
                                (203) 337-1518

UUCP:       {oliveb, philabs, decvax, yale}!bunker!wtm
INTERNET:   wtm@bunker.shel.isc-br.com
BITNET:     l-hcap@ndsuvm1.bitnet
fidonet:    The Handicap News BBS (141/420)   1-203-337-1607
            (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064




------



Subject: Another Hand Control Question
From: jhs@druhi.ATT.COM (Jeffrey Shore)



in article <24545@handicap.news>, dnmiller@magnus.acs.ohio-state.edu
(David Neal Miller) says:
>
> Index Number: 24545
>
> My wife would welcome any suggestions for automobile hand controls.
>
> She's currently using a sturdy but clunky twist-to-accellerate,
> push-to-brake hand control by Wells-Engberg which has served her
> well over the years. It's rugged and uncomplicated, both positives.
> ...
> Has anyone a hand control which he or she would especially
> recommend? or a brand to avoid?  ...

A follow-up to that for related advice needed:

I currently have a Bronco II with manual shift and clutch. My
difficulty is that my left leg (the clutch foot) is getting weaker,
fatigues very easily, and I have a hard time controlling
lateral/rotational movement of my foot notwithstanding the leg
brace I wear for "drop foot syndrome" (all a result of MS). It
continues to get worse and I have almost nailed other vehicles or
pedestrians when my foot slips off the clutch.

These days, when I come to a stop for more than 15 sec., I shift to
neutral to preclude accidents and to let my leg rest a bit. Friends
and medicos alike have said I should get a vehicle with automatic.
Reasonable but not practical. My Bronco is paid off and I just
bought a house with a monster monthly payment so I really can't
afford to buy something else right now. Since I have a
chronic-progressive form of MS, it ain't likely that it'll will get
better in this lifetime.

I thought that I could get a single hand control just for the
clutch that could be mounted on the gear shift, perhaps a
servo-controlled clutch, but have been told that no one makes one
(!?!).  I've also wondered about a straight mechanical linkage I
could use my left hand with, but (a) I haven't been clever enough
to figure one out, and (b) my hand and arm are weaker now as well
so that might only be an interim solution anyway.

Suggestions? E-mail or a posting would be swell (others might be
interested, too). I'll post any pertinent e-mail I get. And I'll
pass on any good advice to my support group and 2 MS centers in
this area (Denver).

Thanx group(s).

Jeff Shore




------



Subject: bowling
From: Jean-Pierre.Beland@f41.n243.z1.fidonet.org (Jean-Pierre Beland)
Organization: FidoNet node 1:243/41 - The SugarBush, Gloucester ON


Hi! Bill,

 > In that case, here's my question.  How in the world do you
 > bowl
 > sitting down?  That must be a bit of a challenge.

We use  a wooden ramp to roll the ball onto the alley.  I sometimes
"throw" the ball with my hand sitting down, but since my right arm
is weak it does not take long for it to be tired, so I use that
ramp.  I thought that it might be easy, but it is not as you must
position the ramp so that the ball will go to the right place.  You
still have to aim it.

 > it much, but in my school days I used to be a pin setter.  Do

I did pin setting a few times as there was no pin boy available but
I never did it as a job.  I don't think that I would have done it
because those pins sure can fly.  I liked it better when the
bowling lanes were not automatic.

Well, have a nice week-end,

cheers, J.P.

--
Uucp: ..!uunet!bunker!hcap!hnews!243!41!Jean-Pierre.Beland
Internet: Jean-Pierre.Beland@f41.n243.z1.fidonet.org




------



Subject: Re: Permobil
From: Pandora.Nigh@p0.f554.n157.z1.fidonet.org (Pandora Nigh)
Organization: FidoNet node 1:157/554.0 - Analytical Engine B, Willoughby OH


 -=> Quoting Noel Harper to Pandora Nigh <=-

 NH> Hello, I was scaning through the message base and spoted the word
 NH> "Permobile." Since I am looking into getting one of these chairs I had
 NH> to drop you a note. How do you like it?  I'm a C-5C-6 quad and fed up
 NH> with whats been offered me in the chair market.  The Permobile looks
 NH> like the ticket.  If you don't mind me asking, what options did you
 NH> get on your chair and how would you rate them?

  Hi Noel, First I'll give you the config for my chair;

I have the Max 90, with standing frame, lateral supports, lumbar
supports, light package,18"arms, a headrest and a shorter seat
length. With this config the chair presently runs $24,000. Now, I
hate to put a damper on your enthusiasm, but getting this chair
has been a real headache. It took me a year and a half. Part of the
delay was the fault of the dealer, but Permobil was also responsible
for some. I was told by Permobil it would be 3-4 months
to get my chair, it took them 6. When my chair arraived it was not
configured correctly, they also forgot the battery jumper cable, a
wrong seat cushion and instead of going the 4 miles per hour it was
supposed to run, mine did a whopping 1 mph.  My guy popped the
cover and found that for a new chair I had old and damaged computer
boards. Some of the parts were date coded 1986. I sent the chair
back.  It took another 3 weeks to get it back. 2 weeks later the
footrest plate broke.  They sent me another one within 2 weeks plus
the missing screws for the back wheels. Instead of 4 screws in each
wheel I had 3 on one and only one on the other. Now this was all
last May and early June. I still haven't gotten the
proper sized seat cushion.

Rating the individual functions; the standing frame works great as
does the seat lift. Even if the cushion was the proper size it
still leaves a lot to be desired. I have MD and can feel things and
this is a very hard jarring uncomfortable seat. I make sure that I
stand on and off durring the day because this cushion is sure to
set me up for decubiti if I don't. So plan on a 3rd.  party cushion
like the Jay cushion if you get a Permobil.On the lateral Lateral
supports they have padded and cushioned the inside, but left the
outside exposed. This has some nice rough screws and metal stays
that stick out just where your arms come against them at your
sides. I had to have a friend fix something to cover and pad them.
Left as originaly sent to me they tore up my arms and were really
uncomfortable. The chair handles terrains and sharper inclines than
it was rated and I expected. I find the joystick easy to use, but
if you have used a joystick in the past this may through you for a
loop since it is configured differently. Straight up is forward and
straight down is backwards like a standard stick but you have to
push an X pattern to turn instead of straight right or left.

As for support from Permobil, it's sporadic.  Your letter came at a
real freaky time. The Permobil is selfdiagnostic and they give you
a little chart on what the diagnostic light sequences mean when you
get and error. Well 2 days ago My chair just died on me. It
wouldn't even respond to the overide for the magnetically locking
breaks so that we could move it. It kept giving me an error message
that wasn't even listed. After sitting stuck for 1 hour with the
chair turned off it finally started to operate again. It did it
once more that day. It now seems to be running fine. I called
Permobil and couldn't get through to their repair service and I'm
still waiting on their call back.  There are a lot of great things
about the chair, but I can't really recommend it to anyone in good
consience. No one needs to go through the frustration and hell that
I have had to just to get a wheelchair. Both the dealer and
Permobil treat you like needing a new chair is the same as wanting
new curtains for your windows on a whim.

                                          Pandora

9-12-92 Noel after I finished this message and before I could send
the packet out I had some real fun with my permobil. I was working
on my AT at the back of my room when my Permobil died. I turned of
the power, waited awhile and then hoped if it was a minor glitch in
the computer system, it would reset and then I would be able to
move. Well no such luck. It just decided to die when I was on my
way the the bathroom. I was home alone, my son was coming home from
school but was now locked out of the house. Unfortunatel I couldn't
even reach the phone. I was lucky enough to be able to kind of
squirm and get at the XT and move the keyboard to where I could use
it. I called a couple of boards and was lucky enough to finally
find someone on Nerd's Nook on another line that was available for
chat and they were kind enough to call my guy Ray for me and get
him to come help. He disinaged the chair breaks and with no little
effort was able to move me back and to tranfer into my old manual
chair. I had to wait 3hrs from the time the chair died to when Ray
got home. He popped the cover off the chair and found the problem.
They use the old Chevy type plastic electric connectors and they
had melted preventing the signal and power from going to the
wheel motors. This I consider one hell of a design flaw.

... Backup not found: (A)bort (R)etry (P)anic

--
Uucp: ..!uunet!bunker!hcap!hnews!157!554.0!Pandora.Nigh
Internet: Pandora.Nigh@p0.f554.n157.z1.fidonet.org




------



Subject: Re: Jerry's Orphans Needs You!
From: Pandora.Nigh@p0.f554.n157.z1.fidonet.org (Pandora Nigh)
Organization: FidoNet node 1:157/554.0 - Analytical Engine B, Willoughby OH


 -=> Quoting Gary Warren to Pandora Nigh <=-

     Hi Gary,

 GW> I believe the 3/4ths figure was from a consumer organization, and was
 GW> based on a national average.  Also, Lewis kept harping yesterday that
 GW> MDA spent 75 percent on services.  So, until we get actual figures

I don't know how acurate his figure was either but it probably
includes as services their research budget. The majority of their
money goes to research.  In some agencies the only client service
they basically do is research. JDF is one such agency. Almost all
of their client service money is into research.  MDA runs several
Medical Clinics across the country. While they do provide paitient
care their main purpose is still research. So seperating what we
would normally consider client services and the way agencies and
the government see it can be really different.

 GW> from the IRS or somewhere, who knows? Also, in the original WASHINGTON
 GW> JOURNALISM REVIEW, Nov. 91 article, from where I got my info for my
 GW> disABILITY NEWS-letter story, Piastro was trying to get figures for
 GW> administrative raises from the national MDA office.  As for why she
 GW> didn't go to the IRS, the WJR story didn't say.  Maybe the IRS didn't
 GW> have those figures, or wouldn't give them to her for some reason.

Well she went to the wrong place to begin with, MDA doesn't have to
personaly give her that. IRS does have that info. All 501.c3
organizations must file a yearly 990-PF form or they lose their
non-profit status. IRS will make them available to you if you pay
the fees for them.

GW> Perhaps one of us should call her (she's in CA) and ask her?
Thanks!

Well Gary, I'll let you call her and pay for the long distance phone call.
I can't see eating the cost to help her do her research for stuff she gets paid
for.
				      Pandora

... Answers: $1, Short: $5, Correct: $25, dumb looks are still free.

--
Uucp: ..!uunet!bunker!hcap!hnews!157!554.0!Pandora.Nigh
Internet: Pandora.Nigh@p0.f554.n157.z1.fidonet.org




------






                                ******

                  End of Issue # 2951 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU