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Date:         Thu, 7 Jan 1993 10:09:07 -0600
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From:         "Deborah V. Good" <dgood@UA.D.UMN.EDU>
Subject:      Re: Auditory Integration Training
              Jan 7, 93 8:37 am

Thanks a million, Lynda. Deb
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Date:         Mon, 4 Jan 1993 10:05:24 PST
              <AUTISM@SJUVM.BITNET>
From:         Edward Tam <etam@DELTA.TYMNET.COM>
Subject:      Re: Donna Williams tape chain

Lisa,

I would like to watch the Donna Williams's interview, please kindly add
my name to your tape distribution chain.

Thanks,

Edward Tam
#301-7300 Moffatt Road
Richmond, B.C.
V6Y 1X8  Canada
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Date:         Mon, 11 Jan 1993 08:39:24 -0600
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From:         "Lynda W. Huggins" <HUGGINS@MERLIN.NLU.EDU>
Subject:      Re: Birthday present for autistic child

One thing my son always enjoyed were the plastic games that you fill with
water.  Sorry, I don't know exactly what they are called.  But they come
in many topics, you fill with water, and the child "controls" the game by
pressing buttons which cause the water to move.  One I remember was a
basketball game and you made the player shoot balls through the goal by
pressing the buttons (I think one on each side).  It was one of those few
toys in which Jon really took an interest - not for long, but he kept
returning to it occasionally.  The games were inexpensive and I know I
have seen them in K&B Drugs, Wal-Mart, etc.

Lynda in Louisiana
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Date:         Thu, 7 Jan 1993 10:58:30 EST
              <AUTISM@SJUVM.BITNET>
From:         DOC@VTVM1.BITNET
Subject:      AIT practitioners in Virginia

Lynda, I feel like I am taking advantage of your kind nature, but if
you aren't sick of typing.... could you please send a list of AIT
certified practitioners in Virginia and North Carolina?  Or at least
Virginia...

Thanks VERY much!
MK
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Date:         Tue, 12 Jan 1993 09:42:29 EST
              <AUTISM@SJUVM.BITNET>
From:         Lisa S Lewis <LISAS@PUCC.BITNET>
Subject:      Re: AIT
              11 Jan 1993 16:50:39 EST from <yang@PACIFIC.MITRE.ORG>

On Mon, 11 Jan 1993 16:50:39 EST Jeffrey Yang said:
>
>I have a question regarding the AIT.  As I understand, a child will
>be tested for sound frequency sensitivity before the actual AIT.  The
>test is important because the training will setup based on the sound
>sensitivity frequency level of the test.  If a autistic child like
>Jon who can not answer YES or NO to a sound which he heard or not then
>the AIT will be a straight-training.

My understanding is (from what I've read and heard) that the tester watches
the child's face very closely. The assumption is that the child will grimmace
or make some other sign that a sound is painful to them.

>I'll be appreciated if anyone can give me a pointer or two that how
>this AIT can be done without a pre-test and how effective is this
>straight-training.  Thanks.
>
From everything I've read it is worth trying very hard to get some kind of
results from the pre-test.  I've also been told that you start training your
child months ahead to sit with headphones on.  They need to be the large type
that cover the whole ear, not Walkman type earphones.
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Date:         Fri, 8 Jan 1993 12:53:28 CST
              <AUTISM@SJUVM.BITNET>
From:         Jim Sinclair <GOLEM@UKANVM.BITNET>
Subject:      Re: Birthday present for autistic child

Pete,

I can think of some pretty obvious things.  How about one of those plastic
things with the different colors of sand inside, that you can turn on end
and watch the sand flow around by itself, or else turn from side to side
and make patterns with it?  I don't know what they're called; can you
recognize what I'm talking about?  There are also some neat paperweight
things with fluid and colored oil drops inside.  You can turn them upside-
down and the drops run down, or spiral, or do whatever the paperweight is
designed for them to do.  I've seen them at Woolworth's.

I hope he has a happy birthday.

JS
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Date:         Wed, 6 Jan 1993 22:17:45 -0500
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: Auditory Integration Training

Lynda,
     I would be interested in N.J. and N.Y.
                                             Thanks,Rosanne
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Date:         Tue, 12 Jan 1993 09:19:50 EST
              <AUTISM@SJUVM.BITNET>
From:         RJKOPP@SUVM.BITNET
Subject:      AIT

Please post the reply to Jeff Yang, this is something I have wondered
about also, my daughter might leave the head phones on for about 5 minutes
but I would be shocked for an entire 1/2 hour!  Since so many autistics
also are Tactily Defensive, it would be interesting to know how they get
around this, Maybe a sound booth?  Also like Jeff's question if you can't
get a definitive reply/reaction to the test, what does the training get
based on then, what is the straight method?

Thanks,
Ray Kopp
Syracuse, New York
Internet:rjkopp@mailbox.syr.edu
Bitnet:RJKOPP@SUVM.BITNET
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Date:         Mon, 4 Jan 1993 10:47:31 -0600
              <AUTISM@SJUVM.BITNET>
From:         "Lynda W. Huggins" <HUGGINS@MERLIN.NLU.EDU>
Subject:      RE: Donna Williams tape chain

Lisa,

Could you send me the name and address of the person I should contact
about a copy of the tape for my ASA chapter's "library"?

Lynda in Louisiana
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Date:         Mon, 11 Jan 1993 16:50:39 EST
              <AUTISM@SJUVM.BITNET>
From:         Jeffrey Yang <yang@PACIFIC.MITRE.ORG>
Subject:      AIT

My name is Jeffrey Yang and I have a 5 years old autistic boy named
Jonathan.  He is very sensitive to many different sound and always
covering his ears when someone is taking a shower, turning on a PC,
and etc.  We have scheduled him for the AIT in this coming April at
the Communication Competence Center in McLean, VA.

I have a question regarding the AIT.  As I understand, a child will
be tested for sound frequency sensitivity before the actual AIT.  The
test is important because the training will setup based on the sound
sensitivity frequency level of the test.  If a autistic child like
Jon who can not answer YES or NO to a sound which he heard or not then
the AIT will be a straight-training.

I'll be appreciated if anyone can give me a pointer or two that how
this AIT can be done without a pre-test and how effective is this
straight-training.  Thanks.

Jeffrey Yang
yang@cyclone.mitre.org
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Date:         Mon, 11 Jan 1993 14:36:49 -0600
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From:         "Deborah V. Good" <dgood@UA.D.UMN.EDU>
Subject:      AIT Resources
              Jan 11, 93 1:04 pm

Lynda, thanks again for the information.  I had heard someone from
Minnesota was training with Edelsen in Oregon, but the last time I
checked with the Adriana Society there was no listing of anyone
providing the therapy in Minnesota.  When I called Tamara Gebhart, *she*
was the person who had trained in Oregon!  I think James will be
training with her this summer.

Also thanks for the time in listing all of the resources.  I know of
many of them, but it was great to have a list especially to pass on to
others.
Deb
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Date:         Mon, 4 Jan 1993 13:58:55 -0600
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From:         "Deborah V. Good" <dgood@UA.D.UMN.EDU>
Subject:      Re: Tapes about to go out...last call
              93 12:04 pm

Lisa, I think I'm on your list for the tape chain.  But if not, please
add me.

Thanks a million.  Deb Good
From: lav@space.mit.edu
Newsgroups: bit.listserv.autism
Subject: What is Autism?
Date: 7 Jan 93 17:11:46 GMT
Reply-To: lav@space.mit.edu
Distribution: usa
Organization: MIT Center for Space Research
Originator: lav@leverrier

Dear Netters,
    I have recently found out that I have a nephew back
in California who has been diagnosed as autistic.  Could
some kind soul either post or email a description of what 
autism is and what can be done to help those who have it?
References to literature (e.g. books, articles) would also
be appreciated.

           Thanks in advance.
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Date:         Thu, 7 Jan 1993 08:52:58 -0600
              <AUTISM@SJUVM.BITNET>
From:         "Lynda W. Huggins" <HUGGINS@MERLIN.NLU.EDU>
Subject:      Re: Auditory Integration Training

Rosanne, the following is a list of persons in the states of New York
and New Jersey who are Berard Certified Auditory Training Practitioners
as of November 23, 1992:


NEW YORK:
--------

Mary E. Adasko, M.S., CCC/SLP; 1797 East 22nd Street, Brooklyn, NY 11229
        Tel: (718) 376-0947

Marie H. Beauchemin-Ventorola, M.A.; A Starting Place, 664 Orangeburg Road,
        Pearl River, NY 10965; Tel: (914) 735-3066

Ronni Blumenthal, M.S.; Greystone Programs Inc., P.O. Box 718, Pleasant
        Valley, NY 12569; Tel: (914) 635-1277

Catherine Dodge, A.A.S.; 127B Bedford Road, Katonah, NY 10536;
        Tel: (914) 232-3473

Jeffery Donner, Ph.D.; 371 W. Church Street, Elmira, NY 14905;
        Tel: (607) 732-5427

Shelley L. Francis, M.S., CCC/A; Hear Care, 1975 Hempstead Tpke., Suite 200,
        East Meadow, NY 11554; Tel: (516) 794-4216

Ann E. Gordon, M.A., CCC/SLP; 207 Hallock Road, Stony Brook, NY 11790
        Tel: (516) 751-3838

Jane R. Maddell, Ph.D.; L. I. College Hosp., Dept. of Commun. Disord.,
        340 Henry St., Brooklyn, NY 11201; Tel: (718) 780-1985

Kendra Marasco, M.S., CCC/A, SLP; Communication Center, 490 Cross Keys,
        Fairport, NY 14450; Tel: (716) 223-5090

Suzanne E. Malgeri, M.S., CCC/SLP; Ctr. for Developmental Disabilities,
        72 Southwoods Rd., Woodbury, NY 11797; Tel: (516) 921-7650

Lisa Fettinger Pezzolla, M.S., C.R.C.; N.E. Counseling & Consultation,
        148 Altamount Rd., Voorheesville, NY 12186; Tel: (518) 765-3095

Steven T. Pezzolla, M.A.; N.E. Counseling & Consultation,
        148 Altamount Rd., Voorheesville, NY 12186; Tel: (518) 765-3095

Teresa J. Shumway, M.A., CCC/A; Craig DDSO, Doty Building, 3 Park Street,
        Geneseo, NY 14454; Tel: (716) 243-6536


NEW JERSEY:
----------

Dorinne S. Davis, M.A., CCC/A; Hear You Are , Inc., 4 Musconetcong Ave.,
        Stanhope, NJ 07874; Tel: (201) 347-7662

Peter V. Noonan, M.A.; Ridgefield Public Schools, 555 Chestnut St.,
        Ridgefield, NJ 11797; Tel: (201) 945-9236

Mary Ellen Paradiso, M.A.; Ridgefield Public Schools, 555 Chestnut St.,
        Ridgefield, NJ 11797; Tel: (201) 945-9236

Marcia Van Der Beek, M.Ed., CCC/SLP; 500 Barnett Place, HoHoKus, NJ
        07423; Tel: (201) 445-4805

Heather Wilson, B.S., Ed/ST; Durand Academy, 230 N. Evergreen Avenue,
        Woodbury, NJ 08096; Tel: (609) 845-0666



Again, I hope I haven't transposed any numbers in my typing.  Let me know
if you have a problem with any address or number.

Lynda in Louisiana
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Date:         Tue, 5 Jan 1993 09:21:30 -0600
              <AUTISM@SJUVM.BITNET>
From:         "Lynda W. Huggins" <HUGGINS@MERLIN.NLU.EDU>
Subject:      RE: DMG, Vitamin B6 & Magnesium Treatment

Edward,

Dr. Rimland has both literature and a VCR tape available which would
provide you with additional information on vitamin therapy.  I was
very interested in this for my son about a year ago.  I shared Dr.
Rimland's information with my son's doctor, our neighborhood pharmacist,
and some friends at the university where I work.  No one discouraged
me from trying the therapy.  However, I then became interested in
Auditory Integration Training and decided to have Jon participate in
a research study being done by Dr. Steven Edelson in Oregon.  I decided
to delay any use of vitamin therapy as I wanted to see exactly what
changes resulted from AIT.

I have kept a log of changes in Jon's behaviors since receiving AIT
in October of 1991.  I did this with complete understanding that
such changes may have occurred with or without AIT.  However, so
many changes have been noted that I am convienced that many are a
direct result of AIT.  I am now in the process of arranging for an
AIT practitioner to come here and provide auditory training to several
people in this area.

The Oregon study was a blind study utilizing two types of AIT equipment,
the Berard device developed in France and the BCG device designed in
California.  After nine months, we were told that Jon's AIT was via
the BCG device.  My interest in AIT came from reading Annabel Stehli's
book "Sound of a Miracle", from hearing her and Dr. Edelson speak at a
national ASA conference about the Berard equipment, and from speaking
with other parents who had traveled to France for auditory training.
I simply will not be satisfied until Jon receives AIT via the Berard
equipment.  I have spoken with Dr. Edelson and he does not feel that
it would be harmful for Jon to have AIT a second time.  In fact, he
wants to conduct another research study on the effects of a second
auditory training.

I'm getting off topic here but just trying to explain why I have not
yet tried the vitamin therapy.  I have however, been in contact with
the parents of another young man who is 18 and who has been using the
vitamins since November.  They feel that they have observed significant
changes in their son and recommend the vitamin therapy highly.  They
are also planning to have their son receive Auditory Integration Training
here next month.

Everyone with whom I discussed the vitamin therapy did not feel that
it could be harmful.

Lynda in Louisiana
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Date:         Thu, 7 Jan 1993 16:40:27 -0500
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: Auditory Integration Training

Thanks for the list Lynda.I will forward it to parents who might
be interested. Rosanne
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Date:         Mon, 11 Jan 1993 09:56:44 MST
              <AUTISM@SJUVM.BITNET>
From:         Jean Jasinski <jean@HPFELA.FC.HP.COM>
Subject:      Birthday present
              "LNCJB@CC.NEWCASTLE.EDU.AU" at Jan 9, 93 9:43 pm

About those sand/oil/water turn-over "toys".  The local Sears was
selling them here.  They had oak frames, and the oil/water were blue
while the sand was white.  They had some about the size of a 5X7
picture and other longer/narrower ones as well.  Let me know if you
would like me to price them/pick one up for you.

Jean Jasinski
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Date:         Mon, 4 Jan 1993 11:35:04 PST
              <AUTISM@SJUVM.BITNET>
From:         Edward Tam <etam@DELTA.TYMNET.COM>
Subject:      DMG, Vitamin B6 & Magnesium Treatment

Hello everyone,

I have read some articles from Autism Research Institute from San Diego
regarding to the "Megavitamin Formula" therapy for autistic patients.
Does anyone out there has tried this type of therapy and what is your
experience in using this kind of megavitamin treatment. The physician
who diagnosed our son has warned us to be cautious on using any vitamin
or dietary therapy. She has indicated this type of therapy has not
approved or confirmed by any medical studies and the sucess of using
such therapy is still questionable.

Would appreciate your input on your experiences and comments.

Regards,

Edward Tam
From: GOLEM@UKANVM.BITNET (Jim Sinclair)
Newsgroups: bit.listserv.autism
Subject: Pain signals
Date: 12 Jan 93 19:05:25 GMT
              <AUTISM@SJUVM.BITNET>
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU

On Tue, 12 Jan 1993 13:25:58 EST Lisa S Lewis said:
>Good point.  I met the parents of a young woman who broke her arm when she
>was little.  They didn't realize it was broken until some time later, when
>it became hugely swollen.

I broke my foot when I was ten.  Even though I told people that my foot
hurt, and in fact I was MUCH more verbal in communicating this than I was
usually able to be at that time (I didn't really have communicative speech
until I was twelve), neither the people at school not my mother nor the
pediatrician believed me because I didn't look or act as if I was in pain,
and because I wiggled my toes, bent my ankle, and allowed the doctor to
move and prod the foot without complaining.  After being scolded by the
school secretary for making a big fuss over nothing just to get out of
gym class ("But I'll call your mother just in case."), yelled at by my
mother ("It's not even swollen!  But I'll call the doctor just in case."),
and patronized by the doctor ("There's nothing wrong with it.  But I'll
take an X-ray just in case."), I really thought I was doing something
wrong.  Even after the doctor came back into the room, looking very
surprised, and said there was a fracture, the damage was already done: I
thought he must have made a mistake reading the X-ray.

JS
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Date:         Thu, 7 Jan 1993 08:37:00 -0600
              <AUTISM@SJUVM.BITNET>
From:         "Lynda W. Huggins" <HUGGINS@MERLIN.NLU.EDU>
Subject:      Re: Auditory Integration Training

Deb,

I find one AIT practitioner listed for Minnesota:

Tamara Gebhardt, M.S., CCC/SLP; Mindful Inc., P.O. Box 19026, Minneapolis,
        MN 55419; Tel: (612) 824-9404

To contact Dr. Edelson:

        Stephen M. Edelson, Ph.D.
        Center for the Study of Autism
        2207B Portland Road
        Newberg, OR 97132
        (503) 538-9045



Lynda in Louisiana
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Date:         Tue, 12 Jan 1993 10:04:30 MST
              <AUTISM@SJUVM.BITNET>
From:         Jean Jasinski <jean@HPFELA.FC.HP.COM>
Subject:      Re: AIT and Nonverbal Children
              11, 93 4:50 pm

As Lisa Lewis indicated, a good screening for AIT will include non-verbal
clues.  Some children may remove the headphones in pain; others may
grimace, grind their teeth, or begin to tune out the sound.  It is also
fairly important that they check the same frequency several times because
the tuning out might not happen the first time--the child may go from
a grimace to no reaction whatsoever.  And the results are more reliable
if they are consistent.

We attempted to get my verbal almost four year old screened last summer,
but the screening was more of a traditional audiogram than an AIT
screening.  The audiologist saved the low threshold stuff for last, and
my son wouldn't cooperate any longer.  He placed a block in a bucket
every time he heard the sound.  He is set up for a screening/AIT evaluation
on Jan. 26 with a different practitioner so I'll let you know what they
do and any new information I get from the doctor.

Jean Jasinski
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Date:         Sat, 9 Jan 1993 21:43:43 +1100
              <AUTISM@SJUVM.BITNET>
From:         LNCJB@CC.NEWCASTLE.EDU.AU
Subject:      Forwarded message

I think Peter meant this to go to this list, rather than to just me, since
there is no sign of a list copy, so I am forwarding it for him.

------------------------------------------------------------------------
From:   IN%"phughes@apple.com"  "Peter Hughes"  9-JAN-1993 11:01:14.06
To:     IN%"LNCJB@cc.newcastle.edu.au"
CC:
Subj:   RE: Birthday present for autistic child

Return-path: <phughes@apple.com>
Received: from apple.com by cc.newcastle.edu.au (PMDF #2421 ) id
 <01GTB9FM5NV48WW1WP@cc.newcastle.edu.au>; Sat, 9 Jan 1993 11:01:08 +1100
Received: by apple.com (5.61/7-Aug-1992-eef) id AA28796; Fri,
 8 Jan 93 16:00:42 -0800 for LNCJB@CC.NEWCASTLE.EDU.AU
Date: 08 Jan 1993 16:00:42 -0800
From: Peter Hughes <phughes@apple.com>
Subject: RE: Birthday present for autistic child
To: LNCJB@cc.newcastle.edu.au
Message-id: <9301090000.AA28796@apple.com>
Content-transfer-encoding: 7BIT

        Thanks for all the suggestions!  Whatever we get him of course must
be relatively indestructable.  If there's a way to get the water or sand out
and pour it on the floor, he will.

>  How about one of those plastic
things with the different colors of sand inside, that you can turn on end
and watch the sand flow around by itself, or else turn from side to side
and make patterns with it?  I don't know what they're called; can you
recognize what I'm talking about?

        I think those are called "Magic Windows" and I'm not sure if they stil
make them.  I had one for about 15 years (until its untimely demise in the
Loma Prieta Earthquake) and once calculated that I had turned it over more than
 100,000 times.

        Enjoy life, my friends.

                                Pete
Newsgroups: bit.listserv.autism
Subject: Re: (no subject given)
From: jlykset@eis.calstate.edu (Jon D. Lyksett)
Date: Tue, 5 Jan 1993 17:34:33 GMT
Organization: Calif State Univ/Electronic Information Services

sounds like good 'ole aversive therapy to me.
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