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Date:         Sat, 10 Oct 1992 02:00:30 EDT
Reply-To:     "(Bill McGarry)" <wtm@sheldev.shel.isc-br.com>
From:         "(Bill McGarry)" <wtm@sheldev.shel.isc-br.com>
Subject:      Handicap Digest # 2965

                             THE HANDICAP DIGEST

                                 Issue # 2965

                         Saturday, October 10, 1992

Today's Topics:


                                ******


                               Spinal Centers
                                 Wheelchairs
                                    Uti's
                                    Hello
                             Re: transportation
                               Spinal Centers
                      New Nerve Regeneration Operation
                                Flakey gears
                             Spouse/nursing care
                                    Hello


                                ******


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Subject: Spinal Centers
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <16 Sep 92 20:48> Linda Cummings wrote:

 LC> Well, not exactly rehab, Joe, but at the pain clinic, they didn't
 LC> even touch on the subject of how to handle sexual situations.  I
 LC> think that should have been included since we were all adults.

The November 1991 issue of PAIN had some good hints on dealing with
chronic pain.  I didn't read the article, [it's on my to-do list],
but it might help.  Or, even the journal itseld.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Wheelchairs
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <16 Sep 92 20:49> Linda Cummings wrote:

 LC> Sure will, Joe.  Did you have a Medicare supplement?  Did they
 LC> pay the other 20%?

I was the medicare supplement.  Yes, I paid 20% of the 'approved
amount' and all of the unapproved remainder.

The 'approved amount' is never the same as the billed amount.
Check with your dealer as to what the 'approved amount' normally is
for the chair in your area.  He knows.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Uti's
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <15 Sep 92 22:27> Karen Tackett wrote:

 KT> We finally got the urologist's A.O.K. to keep her off the
 KT> maintenance dose (which I had been doing anyway). Now if the
 KT> little stinker will drink her fluids, we're in pretty good shape.

A high fluid intake helps keep the bugs down.  I try for at least
two liters or more a day.  Most of the time I'm pushing better than
a gallon on an average day and more in the summer.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Hello
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Keith Jones <17 Sep 92 17:14> Derek Juntunen wrote:

 DJ> Hey, have you ever read "Joni".  Its an autobiography about Joni
 DJ> Eareekson, a quad.  Its really good.
 DJ> You should read it, if you haven't...

Joni was a very good book.  Another book about a woman quadriplegic
is The Other Side of the Mountain.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Re: transportation
From: Jeffrey.Vandyke@f14.n279.z1.fidonet.org (Jeffrey Vandyke)
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV


[This is from the Spinal Injury Conference]

KB>In looking for a minivan for my son's chair, they claim a VW Eurovan is
KB>ok as is.  It was the only minivan I saw at a show that would take his
KB>chair without customization. (A tilt Quickie with a insert and headrest)
KB>The floor drops behind the driver's seat. As minivans go they are expensive
KB>but should not need any lowering of the floor or raising of the roof.

Maybe so, but, my god, ther is NO maneuvering room in "them thar
things". I like a long-wheelbase Ford, preferably an Econoline 250
so you can carry a little cargo when you go places. Right now, we
have a 1979 Ford Econoline 350 (1-ton van) with a 460 gas engine in
it with twin air conditioners, and the minimum 8500 pound GVWR.
Hauls just about anything we ever need on a vacation, and with the
monster engine and radiator, we can operate both air conditioners
at full blast idling in city traffic in 110 degree weather without
overheating (I have to have AC handy in the summer so my trach
doesn't dry out and send me into uncontrollable coughing fits).

One thing you woudn't like about the 460 engine on a 1-ton van, tho
-- spare parts are more expensive, the repair labor can be higher,
and the gas mileage is terrible (about 8 to 10 mpg depending on
load, wind, and hills).

 * SLMR 2.1a * Member, Off-Road Wheelchair Association

--
Uucp: ..!uunet!bunker!hcap!hnews!279!14!Jeffrey.Vandyke
Internet: Jeffrey.Vandyke@f14.n279.z1.fidonet.org




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Subject: Spinal Centers
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to Joe Chamberlain <18 Sep 92 07:51> John Lynch wrote:

 JL> Back in ot 1972 they didn't talk about sex.  I asked my VA ward
 JL> doctor about it, and his advise, go out and road test it.  I did and
 JL> I bought in!

     I just found the following books on the subject:

         TITLE:  Sexual concerns when illness or disability strikes

         TITLE:  Who cares? A handbook on sex education and counseling
               services for disabled people

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: New Nerve Regeneration Operation
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE


[This is from the Spinal Injury Conference]

In a message to All <18 Sep 92 14:39> John Lynch wrote:

 JL> Ok, just heard this yesterday, some doctor on the east coast is
 JL> going to operate on 6 ( I think) paraplegics and use a technique
 JL> that has show some nerve regeneration on
 JL> cats.  Is there hope yet?  Meow, Meow.

The surgery has been done.  They are now evaluating the results.
This is the Boston study.

--
Uucp: ..!uunet!bunker!hcap!hnews!150!175.1!Joe.Chamberlain
Internet: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org




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Subject: Flakey gears
From: Jeffrey.Vandyke@f14.n279.z1.fidonet.org (Jeffrey Vandyke)
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV


[This is from the Spinal Injury Conference]

JR>In a message of <Sep 08 14:01>, The Ranger (1:104/477) writes vaguely:
JR>Yeah, I flaked a gear or two in my day..... I'm giving up my 21st for an E&J
JR>Xcaliber as I was fitted VERY poorly for this chair!
  I've flaked a few myself on the 3P and its precursor. Right now
I have an E&J Lancer, but the gears are metal (at least I'm pretty
sure). I haven't checked what the Excalibur is yet. Is that their
conventional-layout chair (20" wheels in rear, casters in front) or
is it a power-base chair like the Lancer?
  Are the recent conventional-layout ones still using the plastic
gears? If so, I can't imagine why. When one of those started going out
15 years ago, and you had a mile or so to get home, you considered
yourself luck to make it before it stripped out all the way.
                -- Jeff

 * SLMR 2.1a * Member, Off-Road Wheelchair Association

--
Uucp: ..!uunet!bunker!hcap!hnews!279!14!Jeffrey.Vandyke
Internet: Jeffrey.Vandyke@f14.n279.z1.fidonet.org




------



Subject: Spouse/nursing care
From: Jeffrey.Vandyke@f14.n279.z1.fidonet.org (Jeffrey Vandyke)
Organization: FidoNet node 1:279/14 - Project Enable, Dunbar WV


[This is from the Spinal Injury Conference]

KR>I'm doing an article about the pitfalls of spousal nursing care, and if
KR>your spouse has been paid by an insurance company to care for you, or if
KR>you are paid to care for your spouse, I'd like to chat with you about
KR>your experiences...payment amount and timeliness, emotional and physical
KR>stresses and strains, and long-term effects on romance.  If you'd be
  Jeez... what I wouldn't give for my wife to get paid for what
she does for me! I had never heard of an insurance company paying
for this kind of thing. In fact, when my wife and I were first going
out together, and she moved in with me (she didn't do it for $, that's
for sure -- I had none at all), the local Social Security Office (I was
on SSI Disability, not SSDI) told me they were going to start counting
her income as mine, period! It didn't matter whether our finances were
actually separate or not.
                -- Jeff

 * SLMR 2.1a * Member, Off-Road Wheelchair Association

--
Uucp: ..!uunet!bunker!hcap!hnews!279!14!Jeffrey.Vandyke
Internet: Jeffrey.Vandyke@f14.n279.z1.fidonet.org




------



Subject: Hello
From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD


[This is from the Spinal Injury Conference]

In a missive of <Sep 20 19:50> Joe Chamberlain (1:150/175.1)
writes to Derek Juntunen:

 JC>      Joni was a very good book.  Another book about a woman
 JC> quadriplegic is The Other Side of the Mountain.

Too many of those books get too into religion for my taste.  I'm
glad the authors are helped by their religious faith, but it isn't
my cup of tea.  *adh*

--
Uucp: ..!uunet!bunker!hcap!hnews!261!1000!Alan.Hess
Internet: Alan.Hess@f1000.n261.z1.fidonet.org




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                                ******

                  End of Issue # 2965 of the Handicap Digest

                                ******
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU