HDTenEightyP/NetNews huggingface dataset:
Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 11:06:07 CST
              <AUTISM@SJUVM.BITNET>
From:         Jim Sinclair <GOLEM@UKANVM.BITNET>
Subject:      Re: Life Goes On

Lyle,

I like "Life Goes On" too.

Did you see the movie "Bonds of Love" on CBS last night?  It was the true
story of a mentally retarded man and a non-retarded woman who fell in love
and got married despite attempts by the man's family to keep them apart.
The Topeka station I watched it on had a news story later that night
interviewing a married couple in Topeka who are both retarded, and are
doing just fine with their marriage.

JS
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 12:08:01 EST
              <AUTISM@SJUVM.BITNET>
From:         LRUBLE@UCS.INDIANA.EDU
Subject:      RE: Case registers

I am responding to Stefano Palazzi's request about databases on autism.

I am a graduate student and work at the Indiana Resource Center for Autism.
Nancy Dalrymple, director, has established a database for Indiana.  She can
be contacted at:
       Indiana Resource Center for Autism
       Indiana University
       2853 East 10th Street
       Bloomington, IN 47401

The resource center also has a atabase on current articles, topic packets for
certain subjects, bibliographies addressing certain topics, etc.  They also
have booklets for parents.  The person to contact if you want information is
Cleta Bowman who is in charge of the resource room.  They have information
on autism that crosses the age span.

I hope this is helpful.

Lisa Ruble
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Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 11:10:02 CST
              <AUTISM@SJUVM.BITNET>
From:         Jim Sinclair <GOLEM@UKANVM.BITNET>
Subject:      Re: Autistic Variants.

On Fri, 22 Jan 1993 22:09:44 -0500 <FARBER_R@SPCVXA> said:
>That's always been a concern of mine should self stim. behavior
>always be eliminated ? Or is it a child's way of integrating
>his senses.Rosanne

I'd say if it's not hurting anything, leave it alone.  I've even seen an
article somewhere (don't ask me to find anything right now; I'm trying to
get ready to move) reporting on a study that found high-functioning
autistic people performed better on tasks when they were engaging in
self-stim than when they were suppressing it.

JS
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Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 15:10:29 EST
              <AUTISM@SJUVM.BITNET>
From:         IP15217@PORTLAND.BITNET
Subject:      Re: Autistic Variants.

Jim writes
>... Could it be that those behaviors are a form of self SI therapy?

According to most of the occupational therapists that I have talked
to, (and some of them are recognized experts) they are.



Curtis Maurnad      IP15217@Portland.bitnet
                    IP15217@portland.maine.edu    (internet)
  :-)
-------
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Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 11:20:04 CST
              <AUTISM@SJUVM.BITNET>
From:         Jim Sinclair <GOLEM@UKANVM.BITNET>
Subject:      Re: More Autistic Variants Stuff
              24 Jan 1993 01:27:00 GMT from <jsternbe@UTKVXN.UTK.EDU>

On Sun, 24 Jan 1993 01:27:00 GMT Sternberg, James said:
>I am looking forward to more.  One thing is still extremely unclear to me
>however.  What is the relationship between autisic-continuum disorders, SID,
>and PPD?  I beg that your response does not contain the word "vestibular" :).

It's PDD: Pervasive Developmental Disorder.  That's the category autism
is listed under in DSM-III-R (the Diagnostic and Statistical Manual of the
American Psychiatric Association).  Autism or Autistic Disorder is the most
extreme form of PDD.  SID is a symptom that is often (but not always)
present in people with pervasive developmental disorders, including autism,
but may also occur in people who don't have PDD.

JS
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 15:10:00 EST
              <AUTISM@SJUVM.BITNET>
From:         "Lauren H. Wiebe" <LHWIEBE@OWUCOMCN.BITNET>
Subject:      Re: A Little Help From My Friends

Daniel, do you have the address/telephone number for the Pacific Association?
We'd like to get a copy of Lyle's video, too!

                                        Lauren
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 08:19:33 EST
              <AUTISM@SJUVM.BITNET>
From:         IP15217@PORTLAND.BITNET
Subject:      Re: Case registers

Most of the epidemiological information is kept by individual states.
You might try contacting the individual state's departments of public health
or their departments of mental health.
You might also try contacting the Autism Society of America at:

                           Autism Society of America
                           8601 Georgia Avenue, Suite 503
                           Silver Spring, Maryland 20910
                                  USA

 Curtis Maurand IP15217@Portland.binet
                IP15217@Portland.maine.edu   <internet>
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Mailer: Elm [revision: 66.25]
Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 09:15:14 MST
              <AUTISM@SJUVM.BITNET>
From:         Jean Jasinski <jean@HPFELA.FC.HP.COM>
Subject:      Re: Autistic Variants.
              22, 93 2:45 pm

For more information about Sensory Integration, you may contact:

     Sensory Integration International
     1402 Cravens Ave.
     Torrance, CA  90501-2701
     (213) 533-8338

Non-profit organization that will provide general information about SI,
or provide information on a specific subject such as treatment efficacy.
Also maintains a listing of OT and PTs who have been certified in the
administration and interpretation of evaluation tools.

I think they can supply the Ayres book if you cannot obtain it locally.
They also have a "Sensory Motor Handbook" which was designed for classroom
related activities.  Many parents find it useful when working with their childre
 n
at home.  A trouble-shooting section provides practical tips to help
children who are having difficulty with specific activities such as
handwriting, using scissors, etc.  Also have a quarterly newsletter.

To find an occupational therapist:

The American Occupational Therapy Association
1383 Piccard Dr.
P.O. Box 1725
Rockville, MD  20850-0822
(30-1) 948-9626
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Organization: Duke University Medical Center, Durham NC, USA
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Newsgroups: bit.listserv.autism
Date:         Thu, 28 Jan 1993 09:25:28 -0500
              <AUTISM@SJUVM.BITNET>
From:         PLADN001@DUKEMC.BITNET
Subject: Re: Autistic Variants.

great - thanks
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 15:24:11 GMT
              <AUTISM@SJUVM.BITNET>
From:         lexier@SFU.CA
Subject:      Re: A Little Help From My Friends
              Jan 21, 93 3:10 pm

>
> Daniel, do you have the address/telephone number for the Pacific Association?
> We'd like to get a copy of Lyle's video, too!
>
>                                         Lauren

Pacific Association for Autistic Citizens
201-3277 Cambie Street
Vancouver, B.C.
Canada                      (604) 879-8888


Mr. Spock (Lyle Lexier)
From: jean@HPFELA.FC.HP.COM (Jean Jasinski)
Newsgroups: bit.listserv.autism
Subject: Re: Autistic Variants.
Date: 21 Jan 93 17:05:19 GMT
              <AUTISM@SJUVM.BITNET>
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU
Mailer: Elm [revision: 66.25]
              James" at Jan 20, 93 7:02 pm

Has anyone mentioned sensory integration dysfunction as another
disorder presenting autistic-like symptoms (without language involvement)?

There is a fairly good book written for parents by Jean Ayres, the SI
pioneer.  I **think** it is called "Sensory Integration and the Child"
but I have the book at home and can fully check the title.  Sensory
integration occupational therapy has been one of the single biggest
improvers for my son.

Jean Jasinski
Ft. Collins, CO
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 22:58:42 -0500
              <AUTISM@SJUVM.BITNET>
From:         FARBER_R@SPCVXA.BITNET
Subject:      Re: Toilet Training

Edward,I have worked with several autistic children who needed to
be trained.Their ability to learn this task seems to vary with
each child.We use a "modified" version of "Toilet Training in Less
than a Day",by Azrin and Fox. The children were ages 3,4,5 and 7.
All were successful except one 5 yr. old who was low fubctioning and
also diabetic.Have to run now ,keep in touch.
                                             Rosanne
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Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 09:22:06 EST
              <AUTISM@SJUVM.BITNET>
From:         Lisa S Lewis <LISAS@PUCC.BITNET>
Subject:      Re: More Autistic Variants Stuff
              24 Jan 1993 01:27:00 GMT from <jsternbe@UTKVXN.UTK.EDU>

On Sun, 24 Jan 1993 01:27:00 GMT Sternberg, James said:
>Hello there,
>
>        All of the information which you have given me on sensory integration
>disfunction, pervasive personality disorders(?) has been extremely helpful, and
>I am looking forward to more.  One thing is still extremely unclear to me
>however.  What is the relationship between autisic-continuum disorders, SID,
>and PPD?  I beg that your response does not contain the word "vestibular" :).
>                                        -James Sternberg

Don't complain.  At least I left out the stuff about "proprioception"!!!!

Lisa
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Newsgroups: bit.listserv.autism
Date:         Tue, 26 Jan 1993 14:40:03 PST
              <AUTISM@SJUVM.BITNET>
From:         lexier@SFU.CA
Subject:      Re: Bonds of Love
              26, 93 2:55 pm

From Jim Sinclair,

<<Lyle,

<<I like "Life Goes On" too.

<<Did you see the movie "Bonds of Love" on CBS last night?  It was the true
<<story of a mentally retarded man and a non-retarded woman who fell in love
<<and got married despite attempts by the man's family to keep them apart.
<<The Topeka station I watched it on had a news story later that night
<<interviewing a married couple in Topeka who are both retarded, and are
<<doing just fine with their marriage.

<<JS

No, I haven't seen Bonds of Love before.  Can I rent the movie from a local
video store?

Lyle
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Mailer: Elm [revision: 66.25]
Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 09:32:22 MST
              <AUTISM@SJUVM.BITNET>
From:         Jean Jasinski <jean@HPFELA.FC.HP.COM>
Subject:      Re: More Autistic Variants Stuff
              James" at Jan 24, 93 1:27 am

Sensory Integration Terms:

vestibular:  the sensory system that responds to the position of the
head in relation to gravity and accelerated or decelerated movement;
it integrates neck, eye, and body movements.

Prioprioception:  From the Lation word for "one's own."  Refers to the
perception of sensation fromt he muscles and joints.  Proprioceptive
input tells teh brain when and how muscles are contracting or stretching,
and when and how the joints are bending, entending, or being pulled or
compressed.  This information enables the brain to know where each part
of the body is and how it is moving.

Tactile defensiveness:  a sensory integrative dysfunction in which tactile
sensations create negative emotional reactions.  It is associated with
distractibility, restlessness, and behavior problems.

Praxis:  motor planning.  The ability of the brain to conceive of, organize,
and carry out a sequence of unfamiliar actions.


Sorry for the jargon.

Also seems that the area code (213) has been changed to 310 if you
are trying to call Sensory Integration International.

Jean Jasinski
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 14:40:45 EST
              <AUTISM@SJUVM.BITNET>
From:         Daniel Mont <D6M@CORNELLA.BITNET>
Subject:      Re: Toilet Training
              21 Jan 1993 10:44:09 PST from <etam@DELTA.TYMNET.COM>

We had a discussion about toilet training awhile back on the net (not
suprisingly) and found (also not surprisingly) that a lot of our autistic
children had difficulty with toilet training.  We found that Alex (our autistic
son) improved a lot while Simon (our non-autistic son) was toilet training. We
didn't think this was a "I want attention too" response. Rather I think all
the talk about it made him more aware and reminded him that this was
something to think about.  Similarly, he regressed at school the first
few weeks (but not at home) but the teacher helped make it part of
his routine (and reminded him about it) and that seemed to set him
on track.  It depends on how high functioning your child is (mine is
pretty high) but even things like telling him I was going, would
he like to try too, was helpful.
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Original-From: 55539-Duncan <ixcim!bill>
Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 21:35:42 CST
              <AUTISM@SJUVM.BITNET>
From:         bill@IXCIM.ATT.COM
Subject:      Re: Toilet Training

I have a 5.5 year old autistic son who's "time trained"
but hasn't gotten much further. Basically, if we take
him to the toilet at fairly regular intervals, he'll
make the attempt and wait in between. He's stopped
having bowel movements at night a long time ago, but he
still wets at night so he wears a diaper.

I think he's getting closer to being able to tell us
he has to go. What he's doing more now is getting in
our line of sight and acting very uncomfortable and
squirmy. This is much better than when he use to sneak
quiet corner of the house :-(

It is a very long process with alot of setbacks (at least
for us and Isaac) and it would take too long to write all
of it down. And we've got a long way to go. I could try
specific questions, though.

Be patient. Be innovative. Expect some regression at times.
Be prepared to spend small portions of your life inside a
bathroom :-)

Bill Duncan
From: LISAS@PUCC.BITNET (Lisa S Lewis)
Newsgroups: bit.listserv.autism
Subject: Re: Self-stimulation as self-therapy
Date: 26 Jan 93 17:12:30 GMT
              <AUTISM@SJUVM.BITNET>
Comments: Gated by NETNEWS@AUVM.AMERICAN.EDU

On Tue, 26 Jan 1993 11:25:34 EST <RJKOPP@SUVM> said:
>
>    I'm not so sure this is that much different that what you said, but
>I don't know if I might be as hard on it as you.  But then again I think
>my daughter is different in quite a few ways and different kids require
>different direction, so we do what we feel is appropriate with her and
>try to give her the opportunities to control some of her environment herself.

Ray makes the important point that every child (autistic or not) is different,
with different needs.  And what works for one child and/or parent may not be
very effective or helpful to another.

I'm certainly not attacking Ray or anyone else who has addressed this point.
I just think that there is another side to it, at least for some of the
children who have been discussed on this list.

And I also think that a lot also depends on the level of language a child has.
If "explaining" something, such as where and when a behavior is acceptable, is
beyond the comprehension of a given person, obviously there's no point in
attempting that anyway.  And since I am concerned (rightly or wrongly) with
how stigmatizing these behaviors may be with peers, this really only applies
to people who want to interact with their peers and who are able to, to some
degree.

As for giving a child opportunities to control some of their environment,
I agree that's very important.  But all parents have to make daily decisions
about which environmental aspects may appropriately be controlled by their
children. And different parents may have very different opinions about what
aspects they want their kids to control. (A good example is bedtime...I know
several parents who let their children decide when to go to bed, while others
set a specific time for lights out.)  Just because your child is autistic
doesn't mean that you give up your parental rights to decide what the kid
can or cannot control. [Ok, ok.  I never *said* I was a permissive mom by
nature!]

Lisa
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Newsgroups: bit.listserv.autism
Date:         Fri, 22 Jan 1993 14:45:40 CST
              <AUTISM@SJUVM.BITNET>
From:         Jim Sinclair <GOLEM@UKANVM.BITNET>
Subject:      Re: Autistic Variants.

On Fri, 22 Jan 1993 15:19:13 EST Lisa S Lewis said:
>Often children with SI problems have difficulty in motor planning. They may
>be tactilely defensive or crave deep pressure.  They may have trouble locating
>their own bodies in space. Their balance may be poor or their movements
>uncoordinated.  Or they may need to rock and spin.  SI kids usually LOVE to
>swing.

Sounds familiar--I will have to get this book.  Can anything be done for
adults?

>Oh, and by the way, SI therapy supposedly decreases
>self-stimulatory behaviors, but it hasn't for Sam.

Could it be that those behaviors ARE a form of do-it-yourself SI therapy?

JS
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Newsgroups: bit.listserv.autism
Date:         Mon, 25 Jan 1993 15:06:19 PST
              <AUTISM@SJUVM.BITNET>
From:         Edward Tam <etam@DELTA.TYMNET.COM>
Subject:      Thanks

>From: Beverley Pederson <pederson@WINGS.WATSON.IBM.COM>
>Subject: Thanks
>Disclose-Recipients: TRUE
>
>Edward -
>
>There us a good research/evaluation/education center in San Francisco,
>a bit of a trip from San Jose, but we have found its important to
>establish a relationship with a major center involved in autism
>research.  Once they have evaluated your child and know his needs,
>the research center is invaluable for referring you to the right
>professionals closer to home.  It's important to find a center
>with professionals whose judgement you trust and whose direction
>you agree with.
>
>I recommend you contact Dr. Bryna Siegel who is director of the
>PDD clinic at Langley Porter Psychiatric Inst., Box CAS, Univ. of
>California, 401 Parnasus Ave, San Francisco 94143.  She has
>given us good advice in the past.  In fact, she referred us to
>the Yale Child Study Center, which we now use for evals and
>referrals, because it was closer to our home.
>
>Good luck.
>
>Beverley Pederson

Beverley,

Thanks for your information. Do you happen to have Dr. Bryna Siegel's
phone number? If not, I guess I can always look it up in the phone
directory.

Thanks again for your valuable information.

Regards,

Edward Tam
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Newsgroups: bit.listserv.autism
Date:         Fri, 22 Jan 1993 13:49:47 CST
              <AUTISM@SJUVM.BITNET>
From:         Jim Sinclair <GOLEM@UKANVM.BITNET>
Subject:      Re: A Little Help From My Friends
              19 Jan 1993 16:36:51 -0600 from <dgood@UA.D.UMN.EDU>

On Tue, 19 Jan 1993 16:36:51 -0600 Deborah V. Good said:
>He almost always now shows that he likes
>to be with other kids (he didn't much at all when he was about 3 or 4),
>though there are times when his interaction is awkward (being real silly
>or bossy) or he'll wander away from the
>group.
>
>Anyway, when he has wandered away, we'll guide him back to the scene.
>We don't force him to interact, but we want him to be in the location of
>the kids.  For instance, if the kids are in the back yard, we require
>James to be in the back yard as well.  Sometimes he is resistive to our
>guiding him back, and I wanted to get Paul's thoughts on the subject.
>It's not especially pleasant to be dealing with a child going through a
>temper tantrum; his guests probably don't feel very welcome!

Why do you insist that he go back?  He might need some time out.

JS
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X-Acknowledge-To: <PALAZZS@IMIHSRA>
Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 11:58:17 GMT
              <AUTISM@SJUVM.BITNET>
From:         PALAZZS@IMIHSRA.BITNET
Subject:      Case registers

I would like to know whether there are case registers for autism in
the US and elsewhere. I mean geographically defined databases that are
used for epidemiological investigations. If I have the address of
the people in charge I will try to contact them to learn how they work.

Thanks.

Stefano Palazzi
Milan, Italy
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Newsgroups: bit.listserv.autism
Date:         Thu, 21 Jan 1993 13:44:03 PST
              <AUTISM@SJUVM.BITNET>
From:         Edward Tam <etam@DELTA.TYMNET.COM>
Subject:      Toilet Training

>From: Daniel Mont <D6M%CORNELLA.BITNET@pucc.Princeton.EDU>
>Subject: Re: Toilet Training
>Disclose-Recipients: TRUE
>
>We had a discussion about toilet training awhile back on the net (not
>suprisingly) and found (also not surprisingly) that a lot of our autistic
>children had difficulty with toilet training.  We found that Alex (our autistic
>son) improved a lot while Simon (our non-autistic son) was toilet training. We
>didn't think this was a "I want attention too" response. Rather I think all
>the talk about it made him more aware and reminded him that this was
>something to think about.  Similarly, he regressed at school the first
>few weeks (but not at home) but the teacher helped make it part of
>his routine (and reminded him about it) and that seemed to set him
>on track.  It depends on how high functioning your child is (mine is
>pretty high) but even things like telling him I was going, would
>he like to try too, was helpful.

Daniel, Thanks for your response. Do you mind tell me how old was
Alex  when  he was toilet-trained and as well as the age  of  his
brother (I presume Simon is younger than Alex?). Our second boy -
Fabian is non-autistic and he is around 15 months old now. We are
very eager to see what is the effect on Leon when we start toilet
train Fabian?

Regards,

Edward Tam
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Date:         Thu, 21 Jan 1993 18:55:37 EST
              <AUTISM@SJUVM.BITNET>
From:         Anne Pemberton <apembert@VDOE386.VAK12ED.EDU>
Subject:      Re: Autistic Variants.
              Jan 21, 93 10:05 am

Jean,
   Can you tell us more about the Sensory Integration therapy -
what are the behaviors and characteristics of children who
should receive the therapy, and the results of such therapy.
     Anne

--
* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *
*                                                                   *
*    Anne L. Pemberton              apembert@ncps.vak12ed.edu       *
*    Nottoway High School           apembert@vdoe386.vak12ed.edu    *
*    Nottoway VA                    notthigh@ruby.vcu.edu           *
*                                                                   *
*           *       *       *       *       *       *               *
*                                                                   *
*   "One of the most spectacular privileges of intellectuals is     *
*    that they are free to demonstrate scandalous stupidity with-   *
*    out ever jeopardizing their reputations"   ---   Eric Hoffer   *
*                                                                   *
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