HDTenEightyP/NetNews huggingface dataset:
From: Gary.Petraccaro@f12.n2610.z1.fidonet.org (Gary Petraccaro)
Newsgroups: misc.handicap
Subject: Re: comments from syntha-voice
Date: 1 Sep 92 21:05:37 GMT
Reply-To: Gary.Petraccaro@f12.n2610.z1.fidonet.org
Organization: FidoNet node 1:2610/12 - Post Road Inn, Greensburg PA
X-Fidonet: Blink Talk Conference

Index Number: 24201

[This is from the Blink Talk Conference]

 JD> Hi David,
 >         Another suggestion would be to make yourself available
 > for questins through BlinkTalk.
 JD> I made the very same suggestion to Syntha-Voice.
 JD> I am just a user of their product.  They have been
 JD> reasonable with me, and as a result have my business.
 JD>  If I find another product that can provide me with
 JD> better capabilities in large print and synthesis than
 JD> POWERAMA, I'll drop this company like a dead mackeral.
 JD>
 JD> Bottom line is, the consumer is right, er, um, I mean blind.
 JD> Yup, you're right on this one though, let's get them
 JD> Syntha-Voice folks on this echo.

I'm concerned about their treatment in this echo.  We have seen in
the past where tactless and incompetence have driven users away.
What was their problem? They worked for an adaptive equipment
company and were thrown lots of stuff on its products.  If someone
wants to use this echo as a resource, they should be able to do
that without the crap.  If I ever had a job with Henter-Joyce I
wouldn't field questions unless it was part of the job description
and I got paid for it.  I come here to relax and talk with
friends.

 JD> --- Opus-CBCS 1.14
 JD>  * Origin: Vision BBS - Ottawa, Ontario, Canada. (1:163/266.666)

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From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Aides
Date: 3 Sep 92 12:58:16 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Spinal Injury Conference

Index Number: 24325

[This is from the Spinal Injury Conference]

In a message to James Lubin <20 Aug 92 09:10> Allison Cozzi wrote:

 AC>     Whew! Is this typical pay for an aide??? I don't require one so I
 AC> am one of the uninformed on the going pay for an aide.

     Agency aides in Delaware get about $5.15 per hour.

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From: Mark.Munson@p0.f14.n279.z1.fidonet.org (Mark Munson)
Newsgroups: misc.handicap
Subject: Transportation
Date: 1 Sep 92 21:16:42 GMT
Reply-To: Mark.Munson@p0.f14.n279.z1.fidonet.org
Organization: FidoNet node 1:279/14.0 - Project Enable, Dunbar WV
X-Fidonet: Spinal Injury Conference

Index Number: 24251

[This is from the Spinal Injury Conference]

TA>    I'm looking into purchasing a van and there are somethings I want
TA>advice on. I need to know which would be better, lowering the
TA>floor or putting on a higher roof. Which van would be best a
TA>Chevy or a Ford. And where would the lift on the van best work
TA>on the side or in the back.

One, Are you a Para or a Quad?

Two, Reguardless of above, do you prefer driving from your wheelchair or
transferring and riding in a custom fit Captains chair?

Three, Don't quote me, but I think Ford puts a warranty on there lowered
(driver) seats for wheel chairs.  The Chevy body does not permit.. I
could be wrong, if so please... someone correct (except Chevy
dealers)..!

Basics are, if you can transfer, then do it! Use it or lose it.. the
role in driver position is usually for quads who can't make the transfer
easily enough or timely enough to make it functional or practical
(understand), not cutting you down either way, just saying what is
practical..  A captains chair with a normal seat belt (shoulder), or two
way harness is always more safer... a wheel chair mounted seat
(position) is not as solid.

Mark

 * SLMR 2.1a * Get back to me!

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From: Jerry.Snell@f635.n100.z1.fidonet.org (Jerry Snell)
Newsgroups: misc.handicap
Subject: Charcotte merrytooth dis.
Date: 28 Aug 92 15:35:25 GMT
Reply-To: Jerry.Snell@f635.n100.z1.fidonet.org
Organization: FidoNet node 1:100/635 - Travel Online, Lake St Louis MO
X-Fidonet: Rare Disorder Conference

Index Number: 24005

[This is from the Rare Disorders Conference]

 Mark Dawson wrote about CHARCOTTE MERRYTOOTH DIS. on 08-1192:

MD>I am writing (typing) from the Easter Seal building in Toronto, and
MD>have just finished speaking to a parent of a child with
MD>Charcotte Merrytooth Disease.  ANYONE who can provide some
MD>information about this very rare disease is asked to please
MD>leave me a short note about it, or perhaps some contacts that
MD>may be helpful to us.

Cardinal Glennon Hospital for Children, a division of Saint Louis
University Hospitals, in St. Louis, Missouri, USA, can provide you
with information about Charcot-Marie-Tooth disease.

   Jerry
===
 * DeLuxe/386 1.25 #7098 * Time flies like the wind-fruit flies like bananas.

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From: Joe.E..Dodson@f977.n106.z1.fidonet.org (Joe E. Dodson)
Newsgroups: misc.handicap
Subject: fast chairs
Date: 3 Sep 92 12:59:30 GMT
Reply-To: Joe.E..Dodson@f977.n106.z1.fidonet.org
Organization: FidoNet node 1:106/977 - A Place Called Joe', Tomball TX
X-Fidonet: Spinal Injury Conference

Index Number: 24334

[This is from the Spinal Injury Conference]

In a msg on <Aug 25 17:01>, Alan Hess of 1:261/1000 writes:

 AH> How fast do the fastest wheelchairs go?  *adh*

I clocked my uncle at 25 MPH. He said he still had some stick left.
                                        Joe

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From: John.Hargrove@f68.n382.z1.fidonet.org (John Hargrove)
Newsgroups: misc.handicap
Subject: Re: General Interest
Date: 1 Sep 92 21:10:42 GMT
Reply-To: John.Hargrove@f68.n382.z1.fidonet.org
Organization: FidoNet node 1:382/68 - Diabetes Discussion, Austin TX
X-Fidonet: Amputee Conference

Index Number: 24226

[This is from the Amputee Conference]

In a message to John Hargrove <08-09-92 20:52> Shari Messner wrote:

SM> I think he will do better if it will just lessen.  From what I have
SM> read, things *might* improve with the temp and later the permanent.
SM> They say the nerves tend to deaden.  I just hope so as he is such a

Interesting.  Now that you mentioned it my phatom has been more
active durin this hot weather.  Didn't have much trouble during the
cool weather of last winter.

I do not know about the nerves deadenning.  Mine are very active
and have been since the amputation.  Course I have diabetes
neuropathy to tend with also in the stump.

SM> neat
SM> guy.  At 80 things take longer I know.  But.......I can always
SM> hope!!!

Sounds like he is.  We have a few 80 year olds in our amputee support group.
 They're fun to be around.

SM> Thanks for the info on the Golf Assn.  It might be good for him to
SM> see
SM> others *really* do it and not just hear say.....

Anytime.  Hope you can get him hooked up.

John

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From: spgreg@mars.lerc.nasa.gov (Greg Macrae)
Newsgroups: misc.handicap
Subject: Re: Siggy's Perfect House
Date: 2 Sep 92 16:21:11 GMT
Reply-To: spgreg@mars.lerc.nasa.gov (Greg Macrae)
Organization: NASA Lewis Research Center
X-Fidonet: Spinal Injury Conference

Index Number: 24264

In article <24246@handicap.news>, Karen.Tackett@p2.f42.n352.z1.fidonet.org
writes...
>Index Number: 24246
>
>little bit about "accessibility" to little kids by changing Siggy
>to be a child in a wheelchair.
>
>So Siggy, perhaps alone, or with his parents, siblings, or friends
>is going to build his perfect house.

From a Tshirt I have:  At least one no step entrance.  All doorways
at least 32" wide, including bathrooms.  Basic Access to every new
house because you've got to visit friends and lovers.

-----------------------------------------------------------------
     MacRae                  |       Friend, that open mouth
                             |     Reveals your whole interior
  spgreg@mars.lerc.nasa.gov  |         Silly hollow frog!
                             |                      -Anon.
-----------------------------------------------------------------
From: Gary.Warren@f5.n382.z1.fidonet.org (Gary Warren)
Newsgroups: misc.handicap
Subject: Re: Jerry's Orphans Needs You!
Date: 4 Sep 92 20:29:25 GMT
Reply-To: Gary.Warren@f5.n382.z1.fidonet.org
Organization: FidoNet node 1:382/5 - Health-Link, Austin TX

Index Number: 24393

Robert, it is not the telethon per se or MDA which riles a lot of the
disabled (many of those with OR without MD), it is more or less the
"poor-little-cripple" schtick that pervades the program during its 21+
hours.  While such emphasis may have been the main reason MDA is able
to finance its research activities, special camps, etc. (and mind you,
no one denies these things are good), it doesn't make the routine any
more morally right.
Also, MDA doesn't pay for several things its more severely afflicted
clients may need, such as attendant/provider care and medications.
Finally and MOST importantly, it is now established that ANY charity,
no matter how holy or sincere the motives, only devotes 35-45 percent
of its gross contributions to its stated aims.  The rest goes right
toward overhead and administrative costs.  If you downloaded my Nov. 91
disABILITY NEWS-letter from Health Link (and Bruce said he would make
it available upon special request, right, Bruce?  :D  ), you would've
read my story, adapted from WASHINGTON JOURNALISM REVIEW, about Dianne
Piastro, a disabled (from MS, I think) syndicated journalist, and her
stonewalled efforts to get from the national MDA office administrative
salary figures, in spite of the fact that non-profit groups MUST make
available assets and liabilities as part of the public record.  So far,
as far as I know (::ahem::), she hasn't yet succeeeded.
glw, ye olde editor and publisher
disABILITY NEWS-letter

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From: Alan.Hess@f1000.n261.z1.fidonet.org (Alan Hess)
Newsgroups: misc.handicap
Subject: Post nasal drip
Date: 3 Sep 92 12:58:57 GMT
Reply-To: Alan.Hess@f1000.n261.z1.fidonet.org
Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD
X-Fidonet: Spinal Injury Conference

Index Number: 24330

[This is from the Spinal Injury Conference]

In a missive of <Aug 23 16:32> Greg Pickering (1:3602/24)
writes to Alan Hess:

 GP>         Also, New Jersey air isn't helping much either. What do you
 GP> do to combat the problem? Somedays it's so bad I can't eat because my
 GP> stomach feels so rotten......

I usually suck it up, and swallow it (not enough lung power to blow).  And it tastes terrible.  Nothing has worked to reduce the problem.  *adh*

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From: Greg.Pike@f49.n272.z1.fidonet.org (Greg Pike)
Newsgroups: misc.handicap
Subject: Re: Access to GUI's
Date: 1 Sep 92 17:36:04 GMT
Reply-To: Greg.Pike@f49.n272.z1.fidonet.org
Organization: FidoNet node 1:272/49 - Calliope's Den, Garrison NY
X-Fidonet: Blink Talk Conference

Index Number: 24171

[This is from the Blink Talk Conference]

Rick,

I certainly understand your concern about no demo version being
available for either Screen Reader/2 or Window-Bridge.  Personally,
I would have a hard time shelling out my own hard earned money for
something I had never had a chance to experiment with, or had only
used for a few minutes at a conference where everything is rushed
and there wasn't enough time to really get a feel for it.  The
conference demos are nice, but naturally the only applications that
get demonstrated are the ones that are known to work with the
system.  It's a different game when you get the software home and
try to use it with the applications you use every day.  That's why
I'm pushing a demo.

If you're wondering why I'm a little verbose in pointing out the
obvious above, you should know that BlinkTalk also filters into
IBM.  It apparently filters into SlimWare too, so this is a good
opportunity to get to some of the people in charge, and let them
know exactly why things should be.  <grin>

 RA> environment.  Because of this unique situation, I feel that a demo of
 RA> this type should have some other type of restriction other than a time
 RA> limit.  Perhaps disabling a few features on the demo would be better

Many thanks for the input, I can use all the ideas I can get!  I
understand what you're saying, and there's no question that it's
true.  There are problems going either route.  Any GUI will take a
while to get used to, so a demo with a time limit might be worse
than no demo at all.  On the other hand, disabling features can
also inhibit the learning curve, and doesn't fully demonstrate the
product.  It's a difficult issue to resolve.  I've got some ideas,
and we'll see what happens with them.

 RA> just my thoughts and I wanted to share them with you.  Please keep me
 RA> informed of any progress with respect to a Screen Reader demo...

Will do.  Thanks again for your ideas, and if you get any more,
please let me know.  Like I said, we need all the ideas we can
get.

/Greg

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From: Paul.Nobrega@p0.f266.n163.z1.fidonet.org (Paul Nobrega)
Newsgroups: misc.handicap
Subject: Re: window bridge and syntha-voice
Date: 1 Sep 92 17:38:45 GMT
Reply-To: Paul.Nobrega@p0.f266.n163.z1.fidonet.org
Organization: FidoNet node 1:163/266.0 - Vision, Ottawa ON
X-Fidonet: Blink Talk Conference

Index Number: 24177

[This is from the Blink Talk Conference]

interesting comment jim; as far as i am concern, wether a person is paid
or not, he still has a reputation to maintain for at one point, his
articles won't have any value and won't be read.  the best
recommendations still come from those using the product. let's wait and
see what kind of feedback window bridge users will generate. one must
rely on something and the beginning point i think, is to have an open
mind and not condem things automaticly. best regards,
paul

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From: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org (Wayne Briggs)
Newsgroups: misc.handicap
Subject: 8-27-92 US Sprint UPDATE
Date: 1 Sep 92 21:13:03 GMT
Reply-To: Wayne.Briggs@p0.f5109.n124.z1.fidonet.org
Organization: FidoNet node 1:124/5109.0 - National Amputee Co, Dallas TX
X-Fidonet: Amputee Conference

Index Number: 24237

[This is from the Amputee Conference]

US Spirt has a PC Disability Program that provides 90 hours a month of
LD computer phone time anyplace in US after 6 PM or weekends for just
30 dollars a month plus a 1 time 30 connect fee. Payment must be by
credit card or bank draft. You will need letter on drs' stationary
explaining your disability or Social Security Disability INSURANCE award
letter from within last six months. Phone Shan Blackwood with US Sprint
at 800-736-1130.
Would you please get this posted on other ECHOS and commerical on line
services ? If you let me know you have done that , I will try to track
to make sure this info reaches as many groups & people as possible.

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From: rmoore@cudnvr.denver.colorado.edu (Robert Moore)
Newsgroups: misc.handicap
Subject: Radiation Damage
Date: 2 Sep 92 04:26:16 GMT
Reply-To: rmoore@cudnvr.denver.colorado.edu (Robert Moore)

Index Number: 24262

This is a new post from a new person..

I am interested in contacting someone who has a similar
handicap as mine.  I am losing the use of my right leg
as a result of radiation damage to the nerves at the
L4 vertabre.  If you know of someone who is/has experienced
a similar condition I would appreciate talking
to them via the net.

Thanks from:

Robert Moore
University of Colorado at Denver
From: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org (Joe Chamberlain)
Newsgroups: misc.handicap
Subject: Reasonable Accommodation
Date: 4 Sep 92 20:26:31 GMT
Reply-To: Joe.Chamberlain@p1.f175.n150.z1.fidonet.org
Organization: FidoNet node 1:150/175.1 - Busted Flush BBS, New Castle DE
X-Fidonet: Able News Conference

Index Number: 24381

[This is from the AbleNews Conference]

In a message to Ann Thomas <23 Aug 92 08:31> Mike Adams wrote:

 >AT>  May I ask a question:
 >AT>          Is alcholism and drug addiction considered as disabilities under
 >AT>          ADA?  They are both in the DSM-IIIR.

 MA> That is part of my question as well.  I personally don't believe that

According to our expert in Delaware on ADA, alcholism and drug
addition are covered under the ADA in cases where where the
individual is undergoing treatment.  Document every accomodation.

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From: vivian@starlite.convergent.com (Vivian Tseng)
Newsgroups: misc.handicap
Subject: Hardly Used Reclining Wheelchair for Sale
Date: 3 Sep 92 02:41:18 GMT
Reply-To: vivian@starlite.convergent.com (Vivian Tseng)
Organization: UNISYS Unix Systems Group, San Jose, Ca.

Index Number: 24296

Features:
	.Reclining back (adjustable) from straight up to flat.
	.Removable head support
	.Adjustable foot/leg support
	.Easy assemble and disassemble for carrying in a car.

Original cost was about $1000. last October.  It's only used once for
about 10 minutes rolling in a church isle about 6 months ago.  It's
just like a new one and may be still under manufacture's warrenty.

Will sale for $500 or best offer.

Please call Vivian at (408)456-5656
From: Leti.Labell@f421.n109.z1.fidonet.org (Leti Labell)
Newsgroups: misc.handicap
Subject: Re: ON SIGNING....
Date: 2 Sep 92 16:28:00 GMT
Reply-To: Leti.Labell@f421.n109.z1.fidonet.org
Organization: FidoNet node 1:109/421 - Twilight Clone Mac, Rockville MD
X-Fidonet: Silent Talk Conference

Index Number: 24284

[This is from the Silent Talk Conference]

We often have interpreters at meetings at work.  Do sign
interpreters sign in SEE, or do they sign in ASL?

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From: Tim.Syfert@f15.n114.z1.fidonet.org (Tim Syfert)
Newsgroups: misc.handicap
Subject: Re: Sweating
Date: 3 Sep 92 12:57:35 GMT
Reply-To: Tim.Syfert@f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference

Index Number: 24320

[This is from the Spinal Injury Conference]

 GW> Any Quads (I'm a C-5) have a problem with sweating at night? It
 GW> use to be just every now and then, but now it's almost every
 GW> night. I wake up after a couple hours just sweating. My leg
 GW> jumps if I take a deep breth. I get turned and I'm fine for the
 GW> rest of the night. A couple times a week even if I get turned I
 GW> still sweat bad. It's not so bad if I stay flat on my back, but
 GW> then my legs kick up and eack turn a different direction and
 GW> that really makes me sweat. Anyone know what can be done about
 GW> that? Thanks ===  * SLMR 2.1 * "OUCH" I just my floppy caught
 GW> in my unzipper!

Greg,

I'm also a C-5er and have experienced the same thing a few times.
Fortunately it hasn't been chronic. Sorry to hear it's become a bad
problem with you. I sleep mostly on my left side (although most of my
back is on the bed), but for about a year or two I slept flat on my
back. When I did I used to put two stacked pillows under my knees
to put a bend in them (the bend helps keep the spasms down), then I
would have a blanket tucked in under the mattress REAL good on both
sides down by my legs to keep them put when they spasmed. I would
suggest trying that if you haven't already, PLUS, it would help your
back side to have a circulating air mattress if you don't have one
already. Hope this helps.

                                        Tim

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From: Debra.Devault@f11.n232.z1.fidonet.org (Debra Devault)
Newsgroups: misc.handicap
Subject: cancer
Date: 28 Aug 92 16:16:53 GMT
Reply-To: Debra.Devault@f11.n232.z1.fidonet.org
Organization: FidoNet node 1:232/11 - BearWhiz BBS, Peoria IL

Index Number: 24032

[This is from the Chronic Pain Conference]

Hi.I joined this echo in hopes of getting info and possibly support.I'm on
the other side of the situation.My mother has lieukemia and she has about 2
years to live.She's on cytoxin right now,they've got her on it for life.Just
recently they took her off the meds that take away the pain.I couldn't bear
with it.There's got to be something else she can get for the pain.It's
really hard watching your own mother die.I remember how I felt when my
husbands mother died.It keeps getting worse.The hardest part is I have to be
her strength and take care of her,who takes care of me?Well at least I'm
strong in front of her.
   There is a BBS # I need to find.It's for the National Library of
Medicine.

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From: Christopher.Hill@p233.f4115.n124.z1.fidonet.org (Christopher Hill)
Newsgroups: misc.handicap
Subject: Re: Braille N Speak Compl
Date: 1 Sep 92 17:31:23 GMT
Reply-To: Christopher.Hill@p233.f4115.n124.z1.fidonet.org
Organization: FidoNet node 1:124/4115.233 - Southern Crossroads, Grapevine TX
X-Fidonet: Blink Talk Conference

Index Number: 24154

[This is from the Blink Talk Conference]

In a msg on <Aug 08 21:49>, David Tanner of 1:129/168 writes:

 DT>         As I said to WIllie , I still would prefer the classic
 DT> BNS to the 640 for what I would usually use a BNS for.

I agree, and I doubt if I'll ever upgrade.

 DT>Your
 DT> comment about the insert mode is the one big problem I have
 DT> always seen with the BNS, and so far as I know it is still the
 DT> same.  Perhaps the worst thing is so far as I can remember there
 DT> is no way to check what you have typed in in insert mode without
 DT> exiting and then checking what you typed.

I sure don't know of any.  For me, I find it most useful for typing
in in mathematical stuff, which can't be really translated for the
pc, for printing in braille.  I've never been able to type in
grade2 on it, and get a good back translation because I use too
much of my own short hand.  Maybe some sort of acception table
concept would work, but I often invent the stuff on the fly.  I'd
rather take notes on my notebook as long as it isn't math.  That
way I can edit it.

Later..
 Chris

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