HDTenEightyP/NetNews huggingface dataset:
From: Jackie.Burtch@p19.f645.n105.z1.fidonet.org (Jackie Burtch)
Newsgroups: misc.handicap
Subject: Let's Get Started
Date: 7 Oct 92 15:46:17 GMT
Reply-To: Jackie.Burtch@p19.f645.n105.z1.fidonet.org
Organization: FidoNet node 1:105/645.19 - Rob's Wreck Room, Longview WA
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24733

[This is from the Chronic Pain Conference]

On (13 Sep 92) Arthur Saus wrote to Phyllis Cohen...

Hey Arthur?  When I broke my leg they gave me tylenol 4, that didn't work so
they gave me percodan.. then that didnt work so they gave me tylox...
I imagine they don't mind doing this because its a "short term lying down
type illness" visable and concrete.  For my husbands excruciating chronic
pain they do "nothing"  he "was taking 1200 mg of ibuprofen  6 times a day"
but that even does him no good.

anyway, both tylox and percodan
are oxycodone.. so what is the fundamental diffs?

and what are the differences between this and tylenol 4?  <straight codine>

hugz, smiles and thanks

Jackie

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Internet: Jackie.Burtch@p19.f645.n105.z1.fidonet.org
From: robbie@dretor.dciem.dnd.ca (Robert Arrabito)
Newsgroups: misc.handicap
Subject: Artic Transport: does anyone have one or has anyone demo'ed it?
Date: 13 Oct 92 04:03:16 GMT
Reply-To: robbie@dretor.dciem.dnd.ca (Robert Arrabito)
Organization: Defence and Civil Institute of Environmental Medicine
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24861

Does anyone out there have an Artic Transport or has anyone demo'ed it?
I'm interested in getting one. Larry from MicroTalk told me that
ASAP will support the Transport some time in the future.
Please give me your impressions.

Robert Arrabito
e-mail: robbie@dretor.dciem.dnd.ca
From: Karen.Keil@f2120.n124.z1.fidonet.org (Karen Keil)
Newsgroups: misc.handicap
Subject: Sign References
Date: 14 Oct 92 15:50:14 GMT
Reply-To: Karen.Keil@f2120.n124.z1.fidonet.org
Organization: FidoNet node 1:124/2120 - Fingers Talk, Irving TX
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24999

[This is from the Silent Talk Conference]

 pr> Does Gullaudet have a catalog of books and
 pr> materials?  Also, can anyone post the address for
 pr> me?

Here's the address:

Gallaudet University Bookstore
800 Florida Avenue, NE
Washington, DC 20002-3695

Just ask them to send you their current catalog.  I have the one for 1991-1992.

Karen

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Internet: Karen.Keil@f2120.n124.z1.fidonet.org
From: Mike.Lyons@f210.n232.z1.fidonet.org (Mike Lyons)
Newsgroups: misc.handicap
Subject: Re: RSD Group
Date: 7 Oct 92 14:27:33 GMT
Reply-To: Mike.Lyons@f210.n232.z1.fidonet.org
Organization: FidoNet node 1:232/210 - The Lyons Den, Pekin IL
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24694

[This is from the Chronic Pain Conference]

 JB>      Mike..  just a word of  caution..  seriously
 JB> question (interrogate) your
 JB> doctor if he  in any way  tries to order  steroids for
 JB> your  dads rsd..

I am not positive, but I don't beleive my dad is on any steroids.
I think that he might have taken them at one time, but the thing
that makes RSDS worse with my dad is that he is allergic to almost
all medicine.  It kinda limits the choices to give him for pain
relief.  He will be going to Cleveland OH. soon to see the best in
the nation.  Right now, his only alternatives seem to be an
morphine pump or a (its pronouced fent-a-nul) pump.  So we are
hoping that Cleveland will have some other alternatives, but from
all the information we have about it  we kinda doubt it.

 JB> He is now 40 with

My dad is 43 and has had it for three years.

 JB> one titanium hip.. while they wait for the other one to finish crumbeling
 JB> <they want him to suffer with it as long as possible <even months matter i
 JB> guess> due to his age and size <6 ft) they do not WANT

Who are you refering to when you say "they want him..."?

 JB> to do this until the
 JB> bitter end because he is so young.   With nothing for pain <they dont want
 JB> an addict after all> <rolling eyes>.  So the hell he has been through the
 JB> last 5 years is even worse then the rsd of the leg alone.  It caused his
 JB> massive heart attack last winter.

Are you seeing an RSDS specialist?  And if so, is he trying to get
treatment?  Was the heart attack caused by the medicine?  Well, I
need to get going.

                              Take it easy...  Mikey.

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Uucp: ..!uunet!bunker!hcap!hnews!232!210!Mike.Lyons
Internet: Mike.Lyons@f210.n232.z1.fidonet.org
From: Lynn.Rosenberg@f207.n260.z1.fidonet.org (Lynn Rosenberg)
Newsgroups: misc.handicap
Subject: Re: Vacation Spots For The Bd
Date: 14 Oct 92 15:30:21 GMT
Reply-To: Lynn.Rosenberg@f207.n260.z1.fidonet.org
Organization: FidoNet node 1:260/207 - The Recovery Room, Rochester NY
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24972

[This is from the Blink Talk Conference]

Well Carla, the whole facility covers, only 12 acres.  It is a one
level facility, and their are the usual handrails, if you need them,
however, I don't use them.  Everything is sort of interconnected, I
believed it is shaped like the figure h.  If I could rattle on for
15 minuets, which isn't possible, and if you saw the facility, Its
very easy to get around, and as I said before, it's a small
facility, only housing 96 vacationers at one time, that way you can
find you're friends, easier, incidently, I probably have more in
Canada than Rochester.  Thanks for you're questions.  Lynn

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Internet: Lynn.Rosenberg@f207.n260.z1.fidonet.org
From: Ed.Stahl@f140.n150.z1.fidonet.org (Ed Stahl)
Newsgroups: misc.handicap
Subject: Wheelchairs
Date: 9 Oct 92 16:20:48 GMT
Reply-To: Ed.Stahl@f140.n150.z1.fidonet.org
Organization: FidoNet node 1:150/140 - Black Bag BBS, Wilmington DE
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24775

[This is from the Spinal Injury Conference]

 On 09-12-92 Linda Cummings wrote to All...

 LC> Does anyone know the guidelines for requesting and getting
 LC> a wheelchair through Medicare?  About how much do they
 LC> cover?  Can something like a "Quickie" (very light) be
 LC> requested for someone like me and they'll cover it?  I
 LC> can't lift more than about 10 pounds, but I figure I can
 LC> get someone to help me with it in and out of the van.

        Linda, I'm not sure, but if you can get a Doctor to
        wrote you a prescription for the chair, being very
        specific as to it being a "lightweight" that will
        usually do the trick for most insurance co's. I have
        no experience with medicare.

                                Ed

... OFFLINE 1.36 * WHY STOP NOW, JUST WHEN I'M HATING IT?

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Internet: Ed.Stahl@f140.n150.z1.fidonet.org
From: wtm@sheldev.shel.isc-br.com (Bill McGarry)
Newsgroups: misc.handicap
Subject: Re: Newsgroups/newsletters for Survivors of Traumatic Brain Injury
Date: 9 Oct 92 20:43:01 GMT
Reply-To: wtm@sheldev.shel.isc-br.com (Bill McGarry)
Organization: Olivetti AFD
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24785

labyris@ucscb.UCSC.EDU (Amber) writes:

> Is anyone aware of any electronic newsgroups or newsletters for
> survivors of traumatic brain injury and/or family members?  I
> thought I had found one but it is defunk.  Thanks for anything
> anyone can dig up!!!!!

There is (was?) a mailing list called something like THI_CVA
which was gatewayed with the Fidonet conference by the
same name.  Try contacting David Dodell at

 ddodell@stjhmc.fidonet.org

who was doing the gatewaying and can add you to the list.

                                Bill McGarry
                                (203) 337-1518

UUCP:       {oliveb, philabs, decvax, yale}!bunker!wtm
INTERNET:   wtm@bunker.shel.isc-br.com
BITNET:     l-hcap@ndsuvm1.bitnet
            (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064
From: Steve.Brother@p1.f11.n369.z1.fidonet.org (Steve Brother)
Newsgroups: misc.handicap
Subject: re:S.i.g.n.s.
Date: 13 Oct 92 04:24:42 GMT
Reply-To: Steve.Brother@p1.f11.n369.z1.fidonet.org
Organization: FidoNet node 1:369/11.1 - The Branch Office, Pompano Beach FL
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24890

AS>. . . . . . There are many
AS>deaf/HoH folks who use PSE and SEE, so ASL is not the only
AS>sign language.

True, but remember all PSE and SEE is based upon ASL. ASL is the true
sign language. PSE and SEE techinally are not sign languages.

AS>--- Maximus 2.01wb
AS> * Origin: Fingers Talk BBS - *DFW USA* - (214)513-0861   (1:124/2120)

 * OLX 2.1 * ... SENILE.COM found . . . Out of Memory . . .

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Uucp: ..!uunet!bunker!hcap!hnews!369!11.1!Steve.Brother
Internet: Steve.Brother@p1.f11.n369.z1.fidonet.org
From: Keith.Jones@p13.f15.n114.z1.fidonet.org (Keith Jones)
Newsgroups: misc.handicap
Subject: Wrong!!!!!!
Date: 14 Oct 92 15:52:35 GMT
Reply-To: Keith.Jones@p13.f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15.13 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25016

[This is from the Spinal Injury Conference]

 AH> Too many of those books get too into religion for my taste.
 AH>  I'm glad the authors are helped by their religious faith,
 AH> but it isn't my cup of tea.  *adh*

 ES>         It seems many people overcome a traumatic experience
 ES>         like spinal injury or substance abuse by turning to
 ES>         religion. It sometimes seems like giving up one crutch
 ES>         for another. It is not my cup of tea either, but if it
 ES>         works for some I would not discourage it.

 Speaking for myself, having had a SCI and being a recovered alcoholic,
 I can tell you that MOST of the people recovering from alcoholism
 and/or substance abuse do not turn to religion. This is a very common
 misconception. I have begun to live my life according to spiritual
 principles. This is about as far from religion as you can get. Both
 talk about God but all similarities end there.

 Spiritual principles talk about what you should do. Every religion has
 main underlying principles about how one should treat their fellow
 man, for example. Religion, on the other hand, relies on doctrine which
 insists you MUST do this and more importantly, is always pointing out
 what you should not do. The best example of spiritual principles were
 the teachings of Jesus Christ. Unfortunately, it is organized religion
 which has either taken literally, out of context, twisted or added to
 his teachings to make them something they were and are not. Organized
 religion through churches, over time, has gotten so far away from
 anything resembling spirituality that I can't blame anybody for being
 turned off.

 Spirituality says just believe in something that has all power. Religion
 says you had better believe and here's how. I have also heard it said
 that spirituality is for people who have been through hell, whereas
 religion is for people who don't want to go there.

 I hope nobody is offended by my personal beliefs. I do not wish to
 argue with anybody. I will gladly answer any questions and can suggest
 several books which sorted the whole mess out for me. Hero with a
 Thousand Faces by Joseph Campbell (a man who studied myths around the
 world throughout his lifetime) and Sermon on the Mount by Emmitt Fox
 are two excellent ones that come to mind. Both are excellent spiritual
 books, neither is religious.

-Keith-

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Internet: Keith.Jones@p13.f15.n114.z1.fidonet.org
From: Luis.Garcia@f323.n135.z1.fidonet.org (Luis Garcia)
Newsgroups: misc.handicap
Subject: Presentation PT
Date: 14 Oct 92 15:51:32 GMT
Reply-To: Luis.Garcia@f323.n135.z1.fidonet.org
Organization: FidoNet node 1:135/323 - Latin Connection, Hialeah FL
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25008

[This is from the Spinal Injury Conference]

Hi, I'm Luis a Physical Terapist that arrived USA just a couples of
months ago. I'm working at the OUTPATIENT department in a
rehabilitation hospital here in Miami, if I can help in anyway just
leave me a msg. I belong to that Kind of people who torture the
patients in the rehab gims but I'm not dangerous by modem thanks
God !.

Hopfully I will join this conference for long time, I'm planning to
learn a lot from you, people I'd like to hear about your histories
and discuss wathever you like. I'm sorry about the mistakes that I
will write on this and  my future messages but I'm just learning
english.

Waiting...

...-Luis.

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Internet: Luis.Garcia@f323.n135.z1.fidonet.org
From: Keith.Jones@p13.f15.n114.z1.fidonet.org (Keith Jones)
Newsgroups: misc.handicap
Subject: Re: Spinal Centers
Date: 9 Oct 92 20:58:47 GMT
Reply-To: Keith.Jones@p13.f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15.13 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24810

[This is from the Spinal Injury Conference]

 JC>      A good question for everyone:  What didn't they tell
 JC> you in rehab?  If you were able to design an ducation
 JC> program for the newly injuried, what would you include?

 I wasn't told many things, but then again I was not rehabbed out of a
 hospital that dealt primarily with SCI. I was mixed in with amputees,
 MS, stroke, Guillian Baret's. and head injuries. They did the best they
 could. I don't believe I could have had better PT or OT and I met my
 ex-wife there. So I guess I was meant to be there.

 Of the many things I was not told, the one that really stands out is
 about the future. I was told to do everything I possibly could for
 myself. As an ex-jock and fitness nut, I did everything to the max. No
 pain, no gain. Now years later, I wish I had been told to take it easy
 on my back and shoulders. Then again even if told, I probably would
 have ignored such advice. I had always had the notion that these things
 happen to other people. My own spinal cord injury should have been
 enough to make me realize that I was not indestructable. Now since all
 these assorted aches and pains have come to pass in my life, I realize
 that realistically it may not get any better and unfortunately most
 likely will get worse. I had a doctor who was the eternal optimist.
 Maybe I sound like a pessimist. I like to think of myself as a realist.

 Also very important would have been to have a support group of SCI
 people like this one. I would have learned alot more much sooner
 without the grief and misery caused by my own trial and error methods.

 I think a good program is like the one at the Craig Hospital. Cover all
 the bases physically, mentally, and spiritually. After intensive rehab
 covering various situations, let the patient live in a halfway house or
 apartment setting for awhile until they are ready to return to their
 "new" world. I did not see anyone leave the Craig when I was there with
 a bad attitude.

-Keith-

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Internet: Keith.Jones@p13.f15.n114.z1.fidonet.org
From: Ann.Stalnaker@f2120.n124.z1.fidonet.org (Ann Stalnaker)
Newsgroups: misc.handicap
Subject: Relay Texas
Date: 13 Oct 92 04:24:32 GMT
Reply-To: Ann.Stalnaker@f2120.n124.z1.fidonet.org
Organization: FidoNet node 1:124/2120 - Fingers Talk, Irving TX
X-Fidonet: Silent Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24889

[This is from the Silent Talk Conference]

Relay Texas has implemented a new regulation that requires each
RA (Relay Agent) to identify whether they are female or male.

When the RA's take your call, they identify themselves using
their agent number with either a F or M beside the number.

I personally like this new regulation very much as I've always
wondered if the agent I was conversing with was a male or
female.  <Curious Anniewich as always! ;-)>

While this new regulation is an improvement, it is nice to
know the service is continuing to operate under the professional
standard that it should.

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Uucp: ..!uunet!bunker!hcap!hnews!124!2120!Ann.Stalnaker
Internet: Ann.Stalnaker@f2120.n124.z1.fidonet.org
From: Darrell.Shandrow@f204.n114.z1.fidonet.org (Darrell Shandrow)
Newsgroups: misc.handicap
Subject: 2 Meters
Date: 16 Oct 92 04:03:28 GMT
Reply-To: Darrell.Shandrow@f204.n114.z1.fidonet.org
Organization: FidoNet node 1:114/204
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25054

[This is from the Blink Talk Conference]

Hmm, thought that they mostly had optional speech synthesizers?  The
ht's are nonfriendly for the blind but the mobile units from the big 3
have speech boards.  I have a Yaesu ft270 which is a few years old but
has a speech synthesizer in it that is good.  Good luck.

... CQ CQ DX DE NU7I

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Internet: Darrell.Shandrow@f204.n114.z1.fidonet.org
From: David.Bond@p0.f810.n104.z1.fidonet.org (David Bond)
Newsgroups: misc.handicap
Subject: Re: Speech
Date: 16 Oct 92 04:03:13 GMT
Reply-To: David.Bond@p0.f810.n104.z1.fidonet.org
Organization: FidoNet node 1:104/810.0 - Electronic Library, Denver CO
X-Fidonet: Blink Talk Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25053

[This is from the Blink Talk Conference]

 AF>         Problem is - which one sounds best? I have A.L.S. which has
 AF>         paralyzed my speech so I need this for everyday speech. The
 AF>         speech must be intelligible to those who are not used to

The Decktalk board has a very good quality sound, but as for a unit that
will work with a notebook or portable, well.....

Hope you get the details worked out.

Dave

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Internet: David.Bond@p0.f810.n104.z1.fidonet.org
From: Ann.Lemke@f24.n3602.z1.fidonet.org (Ann Lemke)
Newsgroups: misc.handicap
Subject: Re: Rights of the disabled?
Date: 16 Oct 92 03:59:58 GMT
Reply-To: Ann.Lemke@f24.n3602.z1.fidonet.org
Organization: FidoNet node 1:3602/24 - ADAnet One (tm) Net, Pinson AL
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 25042

Hello Tim,

Without more specific information, it would be impossible to determine
whether you are being descriminated against.  You may want to contact
the nearest regional office of the Equal Employment Opportunity
Commission (Federal).  Also, your state may have a Human Rights
Commission to which you can appeal for information.  I have a question,
because this isn't clear from your post: Is your job productivity what
you would like it to be and at a level commensurate with your abilities,
or are there obstacles in your job situation preventing you from doing
your best?  If this is at all an issue, it is likely that have a
situation that requires further investigation.  You may also want to
contact your local Vocational Rehabilitation office fur guidance and
suggestions, even though as an employed person you may or may not
qualify officially for their assistance.
Good luck.

Ann

 # Origin: Sky's The Limit BBS = El Paso, TX = 915-594-0761 (1:381/9)

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Internet: Ann.Lemke@f24.n3602.z1.fidonet.org
From: Keith.Jones@p13.f15.n114.z1.fidonet.org (Keith Jones)
Newsgroups: misc.handicap
Subject: Liposuction consult
Date: 9 Oct 92 16:21:35 GMT
Reply-To: Keith.Jones@p13.f15.n114.z1.fidonet.org
Organization: FidoNet node 1:114/15.13 - St Joes Hospital, Phoenix AZ
X-Fidonet: Spinal Injury Conference
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24780

[This is from the Spinal Injury Conference]

Well, I saw a plastic surgeon concerning some moles I am going to
have taken off (hopefully not melanomas as I spend alot of time in
the sun swimming) and I asked the doctor about liposuction for
getting rid of that "pregnant" look.

This doctor I should point out is the doctor a paraplegic friend of
mine uses as his primary care physician. From what he told me, he
has dealt with quite a few quads and paras over his years in
practice.

He told me that he really didn't think it would help me because
there was no muscle to hold anything in place. He also said that
there was no guarantee it would not happen again. He then said that
I was in excellent shape compared to most people (even able-bodied)
that he sees.  I told him that I work out and swim daily and that I
just wanted to get rid of the gut. He said he could tighten me up a
little, but that it would not be that significant and would involve
deep surgery. He told me that as a plastic surgeon, he makes his
money on surgeries but that he would not recommend that I get
either surgery or liposuction. I told him I appreciated his
honesty.

Amazingly, I found a "good" doctor. I think that makes about 4 or 5
now out of the many, many I've seen.

Well I guess my vanity got the best of me and there's nothing I can
do about looking like I'm seven months pregnant. I guess I'll just
have to try and keep people's attention focused on me from the
nipple line up where I am beginning to look like Atlas (seriously,
I looked in the mirror at my back yesterday and realized that I now
have so much muscle definition, it looks gross. I really couldn't
believe it!).

To be totally honest, I really don't care what people think about
me. I know and God knows that I'm doing the best I can. In the long
run that is all that really matters.

                       -Keith-

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