From: Mike.Lyons@f210.n232.z1.fidonet.org (Mike Lyons)
Newsgroups: misc.handicap
Subject: RSD Group
Date: 7 Oct 92 14:29:15 GMT
Reply-To: Mike.Lyons@f210.n232.z1.fidonet.org
Organization: FidoNet node 1:232/210 - The Lyons Den, Pekin IL
Originator: wtm@sheldev.shel.isc-br.com

Index Number: 24707

[This is from the Chronic Pain Conference]

 AS> NO!!!  Sorry, but this is not correct!!!  This is not a
 AS> "normal" function of the Sympathetic Nervous System!

Yes, I admit I made a mistake.  With all of the reading and
watching the video and looking at information on disk, yes I
screwed up.  It is NOT the Sympathetic nerve.  I can not remember
off the top of my head which one it is.  It starts with an "A" if I
remember correctly and is something like anatomical nerve, is this
correct?  I can not look it up right now because the lawyer
currently has the book and video and ALL of our pamplets,
photocopies and disks on RSD.

 AS> Your attempted explanation of the process was
 AS> entertaining, and may have some truth in it, but it is
 AS> not based in fact!  It was pure conjecture, and I
 AS> suggest you should have stated that in your message
 AS> also.

I did make the mistake on which nervous system it was, but it is
not conjecture!  This is the laymans terms for RSD as I got it from
the specialist (in RSD) who is treating my father.  These "facts"
are what is currently accepted as medical fact by specialists in
RSD around the world.  Now, nothing says that they wont learn
something new that may contradict some of these facts, but these
are what the consesus says to be fact.  Dr. Edwards had another
meeting this June(I believe it was June) with about 36 specialists
in RSD from around the world so that he can keep up on all the new
facts.  He is my main source of information.

I had also made a comment about "education for doctors".  Our
disagreement on RSD here should be proof that there is a need for
research and education in the form of journals and seminars to
teach doctors what the symptoms are so that they can recognize the
POSSIBILITY that a patient might have RSD and get them to a
specialist to make the diagnosis.  Our disagreement is not
something minor, there are doctors out there having the same
disagreement.  There are even doctors who disagree on the existance
of RSD!  You and I are openminded enough to look at each others
facts and examine the possibility that one of us might be wrong,
but unfortunately some doctors are not that way.  My father has
been diagnosed with RSD and it has spread.  There are three
specialists who in there medical reports have stated that it has
spread.  Now, if it isn't RSD, then what is it and why have so many
doctors made the same diagnosis?  Yesterday the 29th, he had a test
that shows the body temperature in colors.  Normally, your body
will show red for warm, well from the waist down there was green,
blue and black.  This shows that the body temperature is real low.
When he first had the test done it was only his left leg that was
showing funny colors.  I realize that we both feel that we are
right and the other one is wrong, but if you really would like to
see some of the information, write me at

                PO Box 191
                Groveland, IL 61535

I can not give you copies of some of the information because of
copyright laws, but the info I can give you I will.  And, if you
are still skeptical that RSD spreads, I can even give you the phone
number for Dr. Edwards and you can talk to him or most likely his
secretary but you might be able to get info from them.

                                        Later...  Mikey.

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