Organization: CARE BEYOND DIAGNOSIS
Mission: CARE BEYOND DIAGNOSIS SUPPORTS PATIENTS, FAMILIES, AND COMMUNITIES AFTER A RARE DISORDER DIAGNOSIS THROUGH INNOVATIVE AND UNIQUE PROGRAMS. CARE BEYOND DIAGNOSIS (CBD) UNDERSTANDS THE ISSUES FACED BY PATIENTS AND FAMILIES BEYOND THEIR DIAGNOSIS AND MEDICAL TREATMENT. THROUGH TAILORED PROGRAMS THAT ASSIST IN FINANCIAL SUPPORT, LOGISTICS, EMPLOYMENT OPPORTUNITIES, AND GENERAL WELLBEING CBD HOPES TO UPLIFT AND EMPOWER THOSE DEALING WITH A RARE DISORDER IN THEIR LIFE.
Activities: TO DEVELOP INTERNATIONALLY RECOGNIZED CLINICAL GUIDELINES FOR RARE DISEASE IN EFFORTS TO BRING AWARENESS, FINANCIAL SUPPORT, TIMELY DIAGNOSIS, AND COMPREHENSIVE TREATMENT TO AFFLICTED INDIVIDUALS AND THEIR FAMILIES.
THE FACILITATION OF MEDICAL EDUCATION EVENTS IN DEVELOPING COUNTRIES TO TRAIN PHYSICIANS AND TREAT PATIENTS ONSITE. ONE EVENT WAS HELD IN MOROCCO, WITH 40 PHYSICIANS BEING TRAINED. ANOTHER EVENT WAS HELD IN PERU, WITH 10 PHYSICIANS BEING TRAINED.
TO PARTNER WITH EXISTING PATIENT ADVOCACY GROUPS TO PROMOTE EDUCATION, EMPOWERMENT, AND PROVIDE PATIENTS WITH NECESSARY MEDICAL EQUIPMENT. CARE BEYOND DIAGNOSIS (CBD) FUNDED TWO WHEELCHAIRS FOR A RARE DISEASE PATIENTS IN BOTSWANA AND PAKISTAN. CBD ALSO FUNDED THE START-UP OF A PATIENT ORGANIZATION CALLED RARE DISEASE AND DISABILITIES AFRICA.
NTEE category: International, Foreign Affairs & National Security
Secondary category: Voluntary Health Associations & Medical Disciplines