Organization: NATIONAL BRAIN TUMOR SOCIETY INC
Mission: NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS.
Activities: RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS.
PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY.
INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS.
NTEE category: Voluntary Health Associations & Medical Disciplines
Secondary category: Medical Research