Ethics approval was granted by the Royal Children's Hospital Ethics in Human Research Committee. Participation was voluntary, with written consent required. Participants provided informed consent to be interviewed, and for the interview to be taped. Participants were assured that they could stop the interview at any time, could choose not to answer any question if they didn't want to and that their responses would be confidential and transcripts anonymised. The interviewer did not have a dual relationship with the participants (i.e. she was neither a clinician nor provider of health services/care).