Borrison/hk-legicost huggingface dataset:
我知道政府提出任何修正案，也有一些指導原則，就是盡量別碰到"家庭"、"伴侶"等概念，因為每次觸及時也會引發一些爭議。
I know that in proposing any amendment the Government has a guiding principle of trying by all means not to touch on such concepts as family and partner because every time it does it will arouse controversy
有人認為我們故意在這項議題上鑽空子，意圖改變婚姻的定義，但我想指出，我今天這項修正案絕對沒有此意圖。
Some people think that we have deliberately exploited the leeway in this subject with the intention of changing the definition of marriage but I would like to point out that this amendment proposed by me definitely carries no such an intention at all
我當然希望政府會主動就同性婚姻提供一項機制，讓他們可以結合，辦理婚姻登記或註冊，使他們也享有基本權利，這是政府應該主動做的事情。
Of course I hope that the Government will proactively provide a mechanism for same - sex marriage so that they can get married register their marriage and enjoy the fundamental rights too . This is something the Government should take the initiative to do
可是，我們要求的是，即使沒有婚姻制度，也要有機制讓同性伴侶這只是其中一點取回骨灰，或像我剛才所說的情況，取回遺體。
However our request is that even if there is no such marriage institution there should be a mechanism allowing the same - sex partner―this is only one of the points―to collect the ashes or in the case mentioned by me just now the corpse
我想說，如果一對同性伴侶在外國註冊結婚，又或是香港有註冊制度讓他們結婚，其實他們不應該受到年期的限制，只要有這樣的身份，不管他們是新婚、已婚2年或4年，也應可取回骨灰。
Of course the Government has cited other ordinances as examples . My point is if a same - sex couple have registered their marriage in a foreign country or Hong Kong has a registration system allowing them to get married actually they should not be bound by any duration requirement . As long as they have such a capacity they should be allowed to collect the ashes regardless of whether they are newly - weds or have been married for two or four years
政府今次界定"相關人士"的定義時十分聰明，因為如果政府刻意為同性伴侶度身訂造以解決他們的問題，反應一定會十分大。
This time around the Government is very clever in setting the definition of related person because if it deliberately tailor - makes it for same - sex partners to resolve their problems the reaction will certainly be strong
不知道局長曾否研究現時香港的情況。
I wonder if the Secretary has looked into the current situation in Hong Kong
政府遭興訟，初審敗訴，裁決指它應該為公務員的同性伴侶提供同等福利。
The Government was engaged in a lawsuit and lost the trial at first instance . It was ruled that it should provide equal benefits to the same - sex partners of civil servants
其實現時香港有很多跨國集團的財金機構亦設有這些政策，雖然香港沒有任何同性婚姻的登記制度，但它們會讓員工自行申報，舉例而言，我知道滙豐銀行的員工只要與同伴已同住1年，並提供證明，例如生活照片、電話費單、稅單等，證明已經同住1年，便符合領取福利的資格。
As a matter of fact now many financial institutions of multinational groups have put such a policy in place . Despite the lack of any registration system for same - sex marriage in Hong Kong they allow their staff to make self - declaration . For example I know that in The Hongkong and Shanghai Banking Corporation Limited if an employee has lived with his partner for a year and can produce evidence such as photos of their daily life telephone bills tax demand notes etc
那些恐同或反同人士寸步不讓，認為任何法例、任何空間，只要今天踏出一小步， 明天便會上太空；只要讓他們入房上床，明天便會生小孩，既可以結婚，也可以領養、找代母產子等。
Those people who are homophobic or anti - homosexual refuse to budge an inch thinking that a tiny step taken forward in any law or anywhere today will readily shoot us into space tomorrow . If we let them onto the bed they will have children tomorrow . They will be able to get married adopt children find surrogate mothers to give birth to babies etc
在一般情況下，親人只會爭家產，甚少會爭奪遺體或骨灰。
Under the usual circumstances the relatives will only contend for the estate . They seldom contend for corpses or ashes
正正因為有爭議，所以便要為不同人士排列等級，如果真的發生問題，便交由法院處理。
It is exactly because there are disputes that we need to arrange the order of priority for different persons . Should a problem really arise it will be referred to the Court
我知道剛才有人問，死者的父母與曾和死者同住兩年的人比較，誰比較親近呢？
I know that just now someone asked whether the parents of the deceased or the person who has lived with the deceased for two years is closer
主席，我首先要就周浩鼎議員的說法稍作回應，他實在太看得起我們及這項條例草案。
Chairman first of all I have to give a brief response to Mr Holden CHOWs remarks . He has indeed thought too highly of us and this Bill
我的修正案只是把"相關人士"的優先次序改為與"親屬"同級。
My amendment simply seeks to revise the order of priority for related person to bring it on par with relative
他說我的修正案若獲得通過，會令一男一女的婚姻制度失守，嚴重衝擊家庭價值，似乎說得太嚴重了。
He said the passage of my amendment would lead to the breakdown of the marriage institution of one man and one woman and deal a serious blow to family values
主席，雖然我們今天並非辯論香港應否修改法例，接納同性婚姻，但我想告訴所有香港市民，大家剛才在聆聽梁美芬議員和周浩鼎議員的發言時，在香港對岸的台灣，大法官宣布台灣的成文法因為沒有保障同性婚姻，所以違憲，勒令立法機關在兩年內修訂法例，以保障同性婚姻。
What he said seems to be an overstatement . Chairman today we are not debating whether Hong Kong should amend the legislation to accept same - sex marriage but I wish to tell all the people of Hong Kong that while we were listening to the speeches of Dr Priscilla LEUNG and Mr Holden CHOW just now the Grand Justices in Taiwan across the Strait declared that Taiwans statute law was unconstitutional due to its lack of protection for same - sex marriage and they ordered the legislature to amend the law to protect same - sex marriage within two years
我在此衷心祝福台灣的朋友，亞洲終於首次有地區由大法官作出宣判，裁定法例須保障同性婚姻及同性伴侶關係。
Here I would like to extend my best wishes to the people of Taiwan . Finally Justices in an Asian jurisdiction ruled for the first time that the law must protect same - sex marriage and same - sex partnership
政府提出"相關人士"的概念，其意思是如果真的沒有人領取骨灰，或沒有較"相關人士"等級更高的人士爭奪骨灰，在兩個月後，這位"相關人士"便可以通過程序，有權領取骨灰。
The concept of related person proposed by the Government means that if no one claims the ashes or no one having a priority over the related person makes a competing claim for the ashes this related person will be entitled to collecting the ashes in accordance with the procedure two months later
但是，"相關人士"的概念甚為廣闊，而且其等級屬第三等。
However the concept of related person is very broad and he comes third in the order of priority
我很感謝梁美芬議員剛才說得如此坦白，她說現時政府放在他們面前的"相關人士"的修正案，有些建制派其實不太喜歡，不能夠接受。
I thank Dr Priscilla LEUNG for speaking so frankly just now . She said that actually some Members of the pro - establishment did not quite like the present amendment on related person tabled before them by the Government and they considered it unacceptable
我很希望連政府為"相關人士"所設的這道方便之門也不能接受的建制派人士會站起來，按下"要求發言"按鈕，向我們作出解釋。
I very much hope that those Members of the pro - establishment who cannot even accept this door of convenience put in place by the Government for related person will press the Request to speak button rise and give us an explanation
請他告訴大家知道。
Would he please tell us this
我在這一節想談談張超雄議員的修正案。
In this session I would like to talk about Dr Fernando CHEUNGs amendment
我的修正案完全沒有觸及"親屬"的定義，只把政府要求的"相關人士"的同住年數減少。
My amendment does not touch on the definition of relative at all . It has merely shortened the duration of living together with the related person required by the Government . Members may disagree with this point
所以，今次"相關人士"的修正案其實已避開這一點，我明白政府用心良苦，因為如果它再寫一句"如同夫妻者"，屆時又會有一番爭論，說這樣等於開了一道門，讓他們再走前一步。
Hence this time around the amendment for related person has actually evaded this point . I understand that the Government is well - intentioned because if it adds the expression as the husband or wife there will be another argument that it is tantamount to opening a door for them to take another step forward
我多次促請政府主動進行諮詢和研究，從而訂立一項註冊或登記制度。
I have repeatedly urged the Government to proactively conduct consultations and studies with a view to establishing a registration system
可是，有些人沒有錢到外國結婚，而香港又沒有任何機制讓他們結婚。
However some people do not have the money to get married overseas and there is not any mechanism which allows them to marry in Hong Kong
有錢到外國的人，他們當然可以在外國結婚，但這樣是否歧視了沒有錢到外國結婚的人呢？
People who have money to travel abroad can certainly get married overseas but is this discrimination against people who do not have the money to do so?
所以，"相關人士"的概念可填補張超雄議員的修正案的不足之處。
For this reason the concept of related person can make up for the inadequacy of Dr Fernando CHEUNGs amendment
當然，政府的修正案和張超雄議員的修正案並無衝突，所以即使局長的修正案獲得通過，張超雄議員的修正案仍然會付諸表決。
Of course the Governments amendment and that of Dr Fernando CHEUNG are not in conflict with each other . Therefore even if the Secretarys amendment is passed Dr Fernando CHEUNGs amendment will still be put to the vote
主席，我首先當然要回應周浩鼎議員剛才的發言。
Chairman first of all I certainly have to respond to Mr Holden CHOWs remarks earlier on
他說我扣他帽子，我並沒有扣他帽子。
He said that I had pinned a label on him . I did not pin any label on him
我剛才說的是，如有議員連政府就"相關人士"提出的修正案都不能接受，請他站起來發言，解釋理由。
What I said just now was that any Member who cannot even accept the amendments relating to related person proposed by the Government should rise to speak and explain his reasons
相反地，周議員剛才的發言有點兒混淆視聽。
On the contrary the remarks made by Mr CHOW just now were kind of a red herring
雖然4位議員提出的修正案有相類似的地方，但亦有很大的差異。
Although the amendments proposed by the four Members have similarities there are also major differences among them
我提出的修正案並無涉及任何外地、海外合法同性伴侶關係，又或要求香港政府承認任何同性關係。
My amendment does not involve foreign or overseas legal same - sex partnership; nor does my amendment call on the Hong Kong Government to recognize any type of same - sex relationships
我的修正案文本並沒有這樣的意思。
The texts of my amendments do not carry these meanings
很多建制派議員可能準備反對所有修正案，其實他們也不用反對，因為局長的修正案會先行付諸表決。
Many pro - establishment Members are perhaps prepared to vote against all the amendments . In fact they need not vote against them because the Secretarys amendments will be put to the vote before all of the others
我不會反對大家支持局長的修正案，我也擔心會四大皆空，所有修正案都無法通過，最後連"相關人士"這扇方便之門也無法打開。
I have no objection to Members supporting the Secretarys amendments . I am also worried that all of the amendments would come to naught and be ultimately negatived in which case even the convenience provided by the category of related person could not be made possible
因此，一些民主派議員問我："'慢咇'，我稍後應該如何投票？
In this connection some pro - democracy Members have asked me Slow Beat tell me how I should vote later
如果我支持政府的修正案，你便要撤回修正案，那豈不是說我不支持你？
If I support the Governments amendments you would have to withdraw yours and in that case does it not mean that I do not support you?
張超雄議員的修正案是可以進行表決的，我當然知道建制派會反對他的修正案，但我想告訴大家，我的修正案與張超雄議員的修正案有根本上的不同。
Dr Fernando CHEUNGs amendment can be put to the vote . I certainly know that the pro - establishment camp will vote against his amendment but I would like to tell Members that my amendments are fundamentally different from that of Dr Fernando CHEUNG
所以，你們反對的時候，請清楚指出是反對哪位議員提出的哪項修正案。
Therefore if you oppose the amendments please point out clearly which amendment proposed by which Member you are opposing
他說如果通過《條例草案》，變相承認外國的同性婚姻，教科書的內容怎麼辦？
He said that the Bill if passed would indirectly recognize same - sex marriage contracted overseas and in that case what should we do about the contents of the textbooks?
我真的不明白為何有小部分建制派議員會被這問題困擾這麼久。
I really do not understand why a small number of pro - establishment Members would be bothered by this question for so long
現實中，香港現時沒有同性婚姻的法例，但亦有一些同性的人士相親相愛，準備進入長久的關係。
In reality there is currently no legislation on same - sex marriage in Hong Kong but some people of the same sex are in love with each other and are prepared to enter into a long - term relationship
政府的社會政策便是要面對，我從來沒有要求政府立刻把同性婚姻合法化。
The Governments social policies should face it . I have never asked the Government to legalize same - sex marriage immediately
這些權益可以是狹窄的，例如取回骨灰、遺體；亦可以比較寬闊，例如申請公屋、合併報稅。
These rights and benefits can be narrow such as claiming the ashes and body of the deceased; or they can be broader such as applications for public rental housing joint assessment for tax and so on
現在的女人有否欺負男人？
Do women bully men now?
黑人有否取代白人？
Have the black people taken the place of the white?
周浩鼎議員把議題無限放大。
Mr Holden CHOW has infinitely expanded the scope of this issue
我想對大家說，我們今天不是討論是否支持同性婚姻。
I wish to tell Members that we are not here to discuss whether or not we support same - sex marriage
周議員說得更遠，他說到領養小朋友，不如再談論代母問題、可否"借種"、"借精"產子吧，那便可以令事情更加複雜。
Mr CHOW has gone even further by talking about adoption of children . He may as well talk about surrogacy or whether or not to allow the borrowing of genes or sperms for fertilization and that could make the whole issue more complicated
主席，我們今天討論的只是在《條例草案》之下，同性伴侶或張超雄議員提出的、已在外國訂立同性關係，包括婚姻、民事伴侶、民事結合的人，究竟可否享優先次序領取其伴侶的骨灰，只是這麼多而已。
Chairman today all we are discussing is whether same - sex partners or people of a same - sex relationship contracted overseas including marriage civil partnership and civil union as mentioned by Dr Fernando CHEUNG can have priority in claiming the ashes of their partner under the Bill and that is all
你們經常說這議題極富爭議性，很多人反對，說政府輸掉官司令全城譁然。
You always said that this issue is extremely controversial that many people are against it and that the Governments defeat in court has shocked the whole community
當然，周浩鼎議員的"城"與我們的"城"不同，我們的"城"是全城歡騰的。
Of course the community of Mr Holden CHOW is different from our community and our community has been hailing with joy
我想說說一些研究。
I would like to talk about some studies here
香港中文大學發表了一份研究報告，報告並不是關於同性婚姻，而是有關同志有權領取其伴侶的骨灰的電話調查結果。
The Chinese University of Hong Kong has published a report of a study . This report which is not about same - sex marriage is the results of a telephone survey on the right of same - sex partners to claim the ashes of their partner
這項調查訪問了超過1,000名香港市民，抽樣的誤差正負值大約是3%。
Over 1 000 citizens of Hong Kong were interviewed in this survey with a sampling error of about ± 3 %
最值得關注的是，即使有宗教信仰的受訪者也並不如你們想象中般保守，有超過一半同意同性伴侶可以領取伴侶的骨灰。
It is worth noting that respondents with religious beliefs are not as conservative as you imagine for over half 58.1 % of them agreed that same - sex couples could have the right to claim the ashes of their partner
另外，在政治立場相對保守的受 訪者當中，也有接近一半同意讓他們領取伴侶的骨灰；有子女的家長當中亦有超過一半同意他們可領取伴侶的骨灰。
Moreover among respondents with comparatively conservative political stances close to half 47.6 % agreed to their right to claim the ashes; over half 59.1 % of parents with children also agreed to their right to claim the ashes
這項調查顯示，大部分香港人容許同性伴侶在面對生死或這麼不幸地要面對骨灰安置所倒閉時，可以有一定的權利領取其伴侶的骨灰。
This survey shows that most Hongkongers agree that same - sex partners can have a certain right to claim the ashes of their partner when they face life and death moments or unfortunately the closure of a columbarium
很多議員說政府現時的修正案已經解決問題，但對不起，事實並非如此。
Many Members said that the amendments proposed by the Government now have already resolved the problem but sorry this is not true in reality
代理主席，我絕對不會用上15分鐘發言。
Deputy Chairman I absolutely will not use up 15 minutes to speak
代理主席，我發言反對議員提出的修正案，當中我特別針對張超雄議員和朱凱廸議員並非針對他們兩位提出有關"親 屬"和"相關人士"的定義，要求加入與死者在海外結婚的同性伴侶。
Deputy Chairman I speak against the amendments proposed by Members among which I am particularly opposed to Dr Fernando CHEUNG and Mr CHU Hoi - dick―not against them both personally―proposing to add the same - sex partner married to the deceased overseas in the definitions of relative and related person respectively
我數天前與梁美芬議員一同簽署聯署信，表明我對高等法院在2017年4月28日頒布的判決的態度，有關判決要求政府承認在外國登記同性婚姻的公務員同性伴侶為配偶。
A few days ago Dr Priscilla LEUNG and I jointly signed a letter declaring my position on the Judgment handed down by the High Court on 28 April 2017 which demanded that the Government recognize the same - sex partner of a civil servant who had entered into a same - sex marriage registered overseas as spouse
因此，我其實一直也希望政府盡快提出上訴，以釐清有關法律觀點。
For this reason actually I have long been hoping that the Government will expeditiously lodge an appeal for a clarification of such points of law
眾所周知，涉及同性婚姻的議題，在社會上有極大爭議。
As we all know issues relating to same - sex marriage are highly controversial in the community
在現行的婚姻制度下，"一男一女"、"一夫一妻"是港人長久而廣泛的共識，不應在今天審議《私營骨灰安置所條例草案》的平台上處理如此具重大爭議的問題。
Under the existing marriage institution monogamy between one man and one woman is a long - standing and broad consensus among people in Hong Kong . Such an immensely controversial issue should not be dealt with on this platform for considering the Private Columbaria Bill today
這其實是把《私營骨灰安置所條例草案》"擺上檯"，因為一旦兩位議員的修正案獲得通過，便會"牽一髮動全身"。
In fact this is an attempt to hijack the Private Columbaria Bill because the passage of the amendments proposed by both Members will have great implications
還有多少項包含"配偶"兩字的條例也要修改定義呢？
How many more ordinances with references to spouse will need to have their relevant definitions amended?
在一些教會門前，仍能看見有橫額寫着"一男一女，一夫一妻，一生一世"，但是為甚麼現在越來越少人說"一生一世"？
Banners saying monogamy between one man and one woman for a lifetime can still be seen at the entrances of some churches but why are there less and less people talking about a lifetime nowadays? . It is because of the high divorce rate in Hong Kong
我不會怪責田北辰議員沒有說這4個字，我反而尊重他面對社會的轉變。
I do not blame Mr Michael TIEN for not mentioning these words on the contrary I respect him for facing the changes in society
"約定俗成"這4字便是形容社會的轉變。
The word convention is precisely used to describe the changes in society
有些傳統不斷在改變，家庭和配偶的定義可能改變，對於同性婚姻、同性伴侶的理解可能改變。
Some traditions are constantly changing . The definitions of family and spouse may change so may the understanding of same - sex marriage and same - sex partner
代理主席，在今天的辯論中，大家不約而同地表示對《私營骨灰安置所條例草案》其實沒有異議，但對於骨灰處理過程中的"相關人士"和骨灰申索的優先權方面有所爭議。
Deputy Chairman in todays debate Members have all raised no objection to the Private Columbaria Bill the Bill itself but rather argued on the definition of related person and the priority of claim in the procedures of handling ashes
我支持張超雄議員提出的修正案，不過，剛才有很多議員表示，這項修正案屬"魔鬼在細節"，說修正案會帶來很大的後果和連鎖反應，假如認同了同性伴侶，即等於認同同性婚姻；認同同性婚姻，便會破壞現行的《婚姻條例》，甚至破壞"一夫一妻"制度、傳統文化，甚至道德風尚。
I support the Committee stage amendment CSA proposed by Dr Fernando CHEUNG in which many Members claimed the devil is in the details and that it will bring forth significant consequences and a knock - on effect . They claimed that recognizing same - sex partners is equivalent to recognizing same - sex marriage which will destroy the existing Marriage Ordinance undermine the monogamy system traditional culture and even social morality
文章是這樣說的："一見短袖子，立刻想到白臂膊，立刻想到全裸體，立刻想到生殖器，立刻想到性交，立刻想到雜交，立刻想到私生子。
In this he wrote The sight of womens short sleeves at once makes them think of bare arms of the naked body of the genitals of copulation of promiscuity and of bastards
正如陳志全議員說，大家抬舉了，這說法太嚴重了，現不是討論婚姻制度，而是誰可領取骨灰。
As Mr CHAN Chi - chuen said Members have overstated the severity of the matter . We are not discussing the marriage institution but the entitlement to claiming ashes
"同生共死"這4個字，大家可能也說過，連反對修正案的議員也可能說過，在愛情裏，大家可能會向伴侶許下承諾，希望可以與伴侶同生共死。
Everyone might have once said live and die together including Members who oppose CSA . In romantic relationships people may make commitment to their partner hoping to live and die together
如何讓同性戀伴侶能夠合理地、挺起胸膛地取回其愛人的骨灰？
How can we let homosexual partners rightfully claim the ashes of their beloved ones with dignity?
代理主席，我於5月17日出席了"國際不再恐同日"活動。
Deputy Chairman I attended an event of the International Day against Homophobia Transphobia and Biphobia on 17 May
為紀念這個日子，往後每年的5月17日均定為"國際不再恐同日"。
In commemoration of that day 17 May is recognized as the International Day against Homophobia Transphobia and Biphobia annually since then
愛情為大，愛情萬歲，愛情無分國界、無分階級、無分性別，愛一個人便是愛一個人，哪管他是甚麼人。
Love is above all and everlasting . There is no boundary no social status and no gender in love . To love a person is to love him regardless of who he is
"國際不再恐同日"至今仍得到很多人支持，不過在議會內卻非如此，剛才有很多反響，梁美芬議員甚至說：不知何謂"性別中立"，性別不是男性便是女姓，哪有中立呢？
The International Day against Homophobia Transphobia and Biphobia receives the support of many nowadays except that of the some Members in this Council who have expressed their views just now . Dr Priscilla LEUNG even said she did not understand the meaning of gender - neutral as for her gender is either male or female and there is no neutral
並非透過立法，亦非透過強制教育，處理恐懼的方法是接觸、溝通和相處。
Not through legislation not through compulsory education but through contact communication and getting along with each other
主席，醫院管理局現時採用實證為本的方針和依循藥物的安全性、療效和成本效益3大原則，評審藥物納入其藥物名冊的申請。
President the Hospital Authority currently adopts an evidence - based approach for and follows the three major principles of safety efficacy and cost - effectiveness of the drugs in evaluating applications for inclusion of drugs in its Drug Formulary
現時有不少治療不常見疾病的藥物尚未納入藥物名冊，因此病人需自費購買該等藥物。
At present as quite a number of drugs for treatment of uncommon disorders have not been included in the Drug Formulary patients have to purchase those drugs at their own expenses
近日，一名無法負擔高昂藥費的結節性硬化症女病人離世，引起社會關注。
Recently the passing away of a female patient with Tuberous Sclerosis Complex who was unable to afford the huge drug expenses has aroused public concern . In this connection will the Government inform this Council 1 as it is difficult to obtain clinical data to prove the efficacy of drugs for treatment of uncommon disorders due to the limited number of cases involving their usage and it is difficult for such drugs to conform with the principle of cost - effectiveness because of their high prices whether the authorities will by making reference to the practices of other countries or regions introduce separate clinical evidence requirements for drugs for treatment of uncommon disorders that are more lenient than those for commonly used drugs thereby lowering the threshold for the inclusion of such drugs in the Drug Formulary; if so of the details; if not the reasons for that; 2 as some patient groups have relayed that patients are currently required to pass a household - based means test in order to receive drug subsidies provided under the Community Care Fund CCF or the Samaritan Fund resulting in quite a number of middle - income families depleting their savings due to payment of millions of dollars a year for the drugs for members with uncommon disorders leading to a drastic drop in their living standards and discord between family members caused by financial pressure whether the authorities will consider waiving the requirement that means test must be conducted on a household basis and lowering the maximum contribution to drug expenses payable by patients; if so of the details; if not the reasons for that; and 3 as the Government has proposed in this years Policy Agenda to invite CCF to consider implementing a pilot scheme to provide drug subsidies for eligible patients with uncommon disorders whether the authorities will provide a definition for the term uncommon disorder to facilitate the provision of subsidies for patients with various types of uncommon disorders under the pilot scheme upon its implementation; if so of the details; if not the reasons for that?
就張超雄議員就不常見疾病及藥物名冊的提問，我回應如下。一 醫管局設有既定機制，由專家定期評估新藥物，以決定個別藥物是否適合納入藥物名冊。
My reply to the question raised by Dr Fernando CHEUNG on uncommon disorders and the Drug Formulary is as follows 1 HA has an established mechanism under which experts will evaluate new drugs regularly and determine whether a drug should be included in the Drug Formulary
局方會建基於循證醫學、公共資源的合理使用、目標補助和機會成本等原則，充分考慮藥物的安全性和療效、國際間的建議和做法，以及專業人士和病人團體的意見。
During the process it will base on principles such as evidence - based medical practice rational use of public resources targeted subsidy and opportunity cost . Due consideration will also be given to the safety and efficacy of drugs international recommendations and practices as well as the views of professionals and patient groups
醫管局明白由於不常見疾病的病人數目不多，與其病因相關的資料及可靠數據亦不容易掌握。
HA understands that due to the small number of patients with uncommon disorders it is not easy to get hold of reliable information and data on the causes of such diseases
局方知悉一般用於評估及引進新藥物的成本效益考慮有其不足及限制，國際間亦缺乏大規模的科研數據以證實治療不常見疾病藥物的長遠療效；加上部分不常見疾病的治療方法獲發現的時間尚短，個別患者對不同治療方案的反應亦並非一致。
It also knows the inadequacies and limitations of the cost - effectiveness considerations which are generally taken into account when evaluating and introducing new drugs . Added to these is the lack of large - scale scientific research data accepted on an international basis in support of the long - term efficacy of the drugs for treatment of these disorders . Given the relatively recent discovery of ways to treat some of these disorders the responses of individual patients to different treatment plans may vary
有見及此，相關委員會已在評審有關藥物時作出相應考慮。
The relevant committee has already taken these factors into account when evaluating these drugs for listing
醫管局亦會透過獨立的專家小組，按個別病人的臨床情況考慮療法對患者的療效和風險，以評估有關療法是否適合他們使用。
HA will monitor the clinical conditions of individual patients and examine the efficacy of the treatments and the risks involved through an independent expert panel to decide whether the treatments are suitable for them