Borrison/hk-legicost huggingface dataset:
代理主席，我感謝張超雄議員提出這項議員議案，讓我們在議會內有機會討論，以及讓公眾有機會關注罕見疾病病人的權益。
Deputy President I wish to thank Dr Fernando CHEUNG for moving this Members motion . It has given Members an opportunity to hold discussion in the legislature while also offering a chance for people to show concern for the rights and interests of rare disease patients
我希望這次真的可以令保障罕見疾病病人的立法程序走前一步，我亦會支持原議案和所有修正案。
I hope that this debate can truly achieve a step forward in the process of enacting legislation for protecting rare disease patients and I will support the original motion and all the amendments
代理主席，在罕見疾病的政策方面，香港比其他國家或城市落後，我認為這問題有時候不單見諸於罕見疾病上，香港凡事皆比其他國家落後，我發覺有很多原因是相同的。
Deputy President Hong Kong lags behind other countries or cities when it comes to the formulation of a rare disease policy . I think that sometimes this problem can be found not only in respect of rare diseases . I notice that Hong Kong lags behind other countries in all respects for the same reason
罕見疾病患者飽受痛苦，甚至感到絕望，政府其實有必然的責任，就罕見疾病患者面對的特別問題盡快制訂相關政策，確保他們的醫療權利受到保障。
Rare disease patients are under immense sufferings and they even feel hopeless . The Government is in fact obligated to expeditiously formulate a policy to address the particular problems faced by rare disease patients so as to ensure protection for their medical rights
政府本來應主動推動此事，積極負起責任，但我真的不明白，為何要由議員推動及草擬法案呢？
The Government should have taken forward this matter on its own initiative and proactively assumed responsibility . But I honestly fail to understand why Members should instead be responsible for taking forward this matter and drafting bills
張超雄議員的原議案第一點提出設立罕見疾病政策委員會，這實在有必要。
Point 1 of Dr Fernando CHEUNGs original motion proposes to set up a policy committee on rare diseases . This is indeed necessary
外國便設有專家委員會，只要歐洲聯盟認可新的罕見疾病，有關委員會便會自動啟動機制審視藥物，並納入醫療系統內。
In the case of overseas countries for example expert committees have been set up . As long as the European Union acknowledges a new rare disease the relevant committees will automatically activate their drug assessment mechanisms and include the relevant drugs into their health care systems
為何政府繼續躲在"官"字之後呢？
Why does the Government continue to hide behind the bureaucracy?
但是，原議案很快便筆鋒一轉，又推廣大 灣區。
The original motion however abruptly turns to promote the Greater Bay Area
更出奇的是，原議案建議舉辦"建築設計比賽"，好像議案動議人擔心有人不記得他是甚麼身份。
More surprisingly the original motion suggests holding architectural design competitions it seems that the motions mover is worried that people might have forgotten his occupation
甚至有修正案明確提出，以香港作為基地服務大灣區，以維持香港在大灣區的龍頭地位。
There is even an amendment expressly proposing to base in Hong Kong and serve the Greater Bay Area so as to maintain Hong Kongs leading position in the Greater Bay Area
我稍為錯愕，若有人以為香港在大灣區有龍頭地位，真是稍為天真。
I am quite surprised . If someone thinks think that Hong Kong has a leading position in the Greater Bay Area he is really too naive
老實說，談到大灣區，我一定會想起"林鄭"說過的話。
Frankly whenever we talk about the Greater Bay Area the words of Carrie LAM will pop into my head
她首先說，香港的青年應該好好把握國家提供的巨大機會，到內地發展事業。
She said that young people in Hong Kong should seize the great opportunity provided by the country and develop their career in the Mainland
她要青年人北上發展，但轉頭又說一句，香港進入了人口老化高峰期我以為120歲才是老年人，60歲只是中年人。
Yet while she asked our young people to go north for development she told us that Hong Kong would soon reach its peak of ageing population . I suppose a person is old only at the age of 120 and 60 is only the middle age
"林鄭"說，香港進入了人口老化高峰期，新移民的年紀較輕，教育水平也越來越高，可以增添香港的勞動人口。
According to Carrie LAM as Hong Kong is reaching its peak of ageing population new immigrants who are relatively young and have rising education levels can increase our workforce
我感覺她是一時間"鬼拍後尾枕"或佛洛伊德式說漏嘴，她是否要將香港的人口換血？
Her remark sounds like a Freudian slip to me . Does she suggest replacing Hong Kong people with new immigrants?
按照這個走勢，香港到2047年會變成怎樣？
If this trend persists what will happen to Hong Kong in 2047?
問題是在香港，這邊廂有人擔心有"洗腦"計劃，那邊廂不停有人談"生涯規劃"，這4個字讓人聽到也"打冷震"。
Now in Hong Kong when some people are worried about brainwashing some others keep saying life planning . The term life planning always makes me shudder
教育局局長太悠閒，每次來立法會便說"生涯規劃"。
The Secretary for Education does not seem to have much work to do and I think that is why he always talk about life planning when he comes to the Legislative Council
這說法可能有些誇張，但不可否認是令人想離開香港的其中一個原因。
This view might be a bit exaggerating but it cannot be denied that this is one of the reasons for people to leave Hong Kong
香港在政治、經濟、文化方面都在大陸化。
Mainlandization is taking place in the political economic and cultural arenas of Hong Kong
當然，廣東地區或大灣區也可以香港化，學習香港比較有優勢的東西，彼此"溝淡"。
Of course the Guangdong area or the Greater Bay Area can also go through Hongkongization to learn the strengths of Hong Kong . These processes will weaken the local characteristics of the two places
2008年，四川大地震，香港比較年輕的人充滿熱血，走上街頭捐款，愛國之情溢於言表，展現血濃於水的情懷。
In 2008 the earthquake in Sichuan brought many passionate young people in Hong Kong to the streets to solicit donations for the victims; their strong love for the country and our fellow countrymen was clearly seen
但是，2008年至去年2018年10年間發生了甚麼事？
Yet what happened in the decade between 2008 and 2018?
首先是反對"洗腦"國民教育，然後是反對政改，繼而出現雨傘運動。
First they opposed the brainwashing national education . Then they opposed the constitutional reform proposal giving rise to the Umbrella Movement
今時今日，大學生十有八九自覺是香港人，並非中國人。
Today most of the undergraduates identify themselves as Hongkongers than Chinese
這是誰一手造成的？
Who caused this to happen?
如當局真心幫青年人向上流，首先要給他們多些機會，不要動輒打壓。
If the Government truly wants to improve the upward mobility of young people it should give them opportunities instead of oppressing them at will
代理主席，香港作為一個已發展的地區，一項基建工程動輒過千億元，工程超支也動輒數百億元，現時又正在籌備萬億元填海，可見香港並不缺錢，但香港予人的感覺是，它對於這些極少數的罕見疾病患者卻增設重重關卡，盡量縮數。
A trillion - dollar reclamation project is in the pipeline . Hong Kong never lacks money . But in our impression Hong Kong has been very stingy with rare disease patients and has laid down many obstacles for this very small number of people
這個政府施政可說是"輕生命而重死物"，政策毫無人性可言。
The Government seems to value dead objects more than living beings . Its policies are not humanistic
討論到罕見疾病政策，很多人會問何謂罕見疾病、如何界定罕見疾病，因為政府至今沒有就罕見疾病制訂標準。
When it comes to the policy on rare diseases many people asks what rare diseases are and how to define a rare disease . So far the Government has not laid down a standard for rare diseases
其實，現時不少已發展國家已為罕見疾病作出定義，例如該疾病的患者佔人口很少比例或某一個比例，這種疾病便屬於罕見疾病。
In fact quite many developed countries have laid down a definition on rare diseases . If patients of a certain disease account for a small proportion or a certain proportion of the population the disease is regarded as a rare disease
在今次的議案中，張超雄議員將影響不多於一萬分之一的香港人口，並且可經臨床界定的疾病，定義為罕見疾病。
In the motion Dr Fernando CHEUNG defines a disease which affects no more than 1 in 10 000 individuals in Hong Kong and is clinically definable as a rare disease
我相信，立法會的同事都會認同這個定義。
I believe colleagues in this Council also agree with this definition
如果能夠為罕見疾病作出清晰定義，不單可以讓患者知道所患疾病是政府定義的罕見疾病，方便患者向政府和醫院管理局尋求協助，更重要的是，政府必須根據這個定義來評估罕見疾病患者的人數。
A clear definition on rare diseases will enable patients to know that their diseases fall within the definition of a rare disease by the Government and to seek help from the Government and the Hospital Authority HA . More importantly the Government must use this definition to assess the number of rare disease patients
如果以一萬分之一的香港人口來定義罕見疾病，其實大家心中有數，這個人數非常有限，政府和醫管局沒理由不制訂政策，全面資助他們的醫療費。
If the ratio of 1 in 10 000 individuals in Hong Kong is adopted we should more or less know that the number of rare disease patients is very limited . The Government and HA have no reasons not to formulate a policy to comprehensively subsidize their medical fees
對於政府現時的做法，我們不禁要問，政府和醫管局是否擔心作出定義後引發的責任？
Regarding the present approach of the Government we cannot help but ask whether the Government and HA are worried about the responsibility they have to take after laying down a definition
其實，政府不能夠不正視這些在定義下極少數罕見疾病患者的權益。
In fact the Government cannot disregard the rights and interests of rare disease patients despite their small number
政府至今沒有為罕見疾病下定義，它應該以病人的意願為依歸，全面資助罕見疾病患者的醫療費。
To date the Government has not provided any definition on rare diseases . It should comprehensively subsidize the medical fees of rare disease patients in their interests
現時政府決定是否資助罕見疾病患者使用新藥物或新療法時，往往由第三者判斷這些療法及新藥物是否符合成本效益。
At present the Government bases its decision of subsidizing rare disease patients to use a new drug or treatment on a third - party cost - effectiveness assessment of using the drug or treatment
所謂成本效益，就是醫管局在決定提供資助時，會考慮是否有大量充分的證據證明新藥物或新療法可以改善病情，從而延長病人的壽命。
The meaning of cost - effectiveness is that in deciding the provision of subsidizes HA will consider whether a sufficiently large quantity of evidence is available to prove that using the new drug or treatment can improve the health of and thus extend the life of the patient
但是，我們討論的是罕見疾病，罕見疾病的病情往往很複雜，而且醫治的方法亦日新月異，藥物不斷推陳出新。
However we are talking about rare diseases . Rare diseases are often complicated . New ways of treatment and new drugs are constantly available for rare diseases
最熟悉治療效用的，不是政府或醫管局，而是罕見疾病患者、其家人及照顧他的醫生。
Those who know best the cost - effectiveness of these treatments are the rare disease patients their families and their attending doctors not the Government nor HA
如果診治他們的醫生認為使用新藥物或新療程，有希望改善病患者的病情，政府和醫管局理應尊重醫生和罕見疾病患者的判斷，資助相關治療費用，而不是由其他人判斷這個療程是否具有成本效益。
If their attending doctors are of the view that using a certain new drug or new treatment can improve the health condition of the patients the Government and HA should respect the judgment of the doctors and rare disease patients and subsidize the treatment fees concerned rather than counting on a third party to decide whether the treatment is cost - effective
事實上，以成本效益來判斷是否資助罕見疾病患者使用新療法或新藥物，真是有點涼薄，甚至令人覺得很諷刺。
Actually it is a little heartless or even sarcastic to use cost - effectiveness to assess whether a rare disease patient should use a new treatment or new drug
政府經常口口聲聲說要按成本效益來決定是否提供資源，在資源有限的情況下，必須考慮成本效益。
The Government often says that the provision of resources is decided on the basis of cost - effectiveness; or that it must consider cost - effectiveness given the limited resources
我強調，我們現時所說的是人命，人命是否每次都以成本效益來計算呢？
I must stress that we are talking about human lives here . Must we assess a life by cost - effectiveness?
政府質疑新藥物及新療法是否符合成本效益，因而未必資助病人使用新藥物，這個往往是基於數據的問題。
When the Government questions the cost - effectiveness of a new treatment or new drug and thus refuses to subsidize a patient to use it it often bases its query on the data
罕見疾病的數目已經少，試新藥的人也少，所以得到的數據不足以證明具成本效益。
When the number of rare diseases is small people trying the new drugs will also be small and the data available will thus fail to adequately support that using the drugs are cost - effective
但是，為何政府興建港珠澳大橋、高鐵、填海時，卻不談成本效益？
But why did the Government not consider the cost - effectiveness when it took forward the Hong Kong - Zhuhai - Macao Bridge the high speed rail and the reclamation project?
它只會口口聲聲說，即使這些基建不一定有錢賺，但也有很多其他效益。
It only claimed that these infrastructures would generate other benefits even if they do not generate any economic returns
它這樣便可以倒錢落海。
It uses this excuse to pour money into the sea
政府說醫療資源有限，一定要顧及成本效益，但同時卻不惜建造萬億元的"大白象"工程，這個邏輯極為荒謬。
The Government says on the one hand that it must consider the cost - effectiveness because health care resources are limited but on the other hand it does not hesitate to take forward those white elephant projects costing thousand billion dollars . How ridiculous this logic is!
我只能夠告訴政府，一名罕見疾病患者的生命價值，或者他能夠多活一段時間的價值。
I can only tell the Government the value of the life of a rare disease patient or the value the patient who can live longer
你且去問一名香港市民，他寧願將錢給這些朋友，還是用作填海，還是興建港珠澳大橋，還是興建高鐵？
Just go and ask any Hong Kong citizens on the street . Would they prefer using the money on rare disease patients or using it on reclamation projects or constructing the Hong Kong - Zhuhai - Macao Bridge or high speed rail?
我相信很多市民都有不同看法。
I believe many citizens would choose differently than the Government did
但很可惜，現時政府重功績多於人命，重視這些冷冰冰的鋼鐵水泥，多於活生生有溫度的生命。
Regrettably the Government attaches greater importance to achieving results than saving human lives . It finds those icy - cold steel and cement structures dearer than the lives of living beings
這個就是特區政府的管治思維，令罕見疾病患者因為"成本效益"這4個字，而沒有錢買藥物醫治。
This is the administrative mindset of the SAR Government . Rare disease patients cannot afford to buy the drugs to treat their diseases because of the word cost - effectiveness
為確保現時罕見疾病的政策及資源分配政策真的以病人為本，並且與時並進，我提出制訂有關政策時必須由下而上，不是由上而下，經由龐大的行政架構制訂。
In order to ensure that the policy on rare diseases and the resources allocation are patient - oriented and abreast of the times I propose that the policy should be formulated using a bottom - up approach rather than top - down through an enormous administrative framework
原議案說得很好，張超雄議員建議成立罕見疾病政策委員會，就罕見疾病政策的策略性發展方向提供建議、監察政府部門及法定機構在推行罕見疾病政策方面的工作，以及就罕見疾病政策的推行作出報告等。
A good point in the original motion is that Dr Fernando CHEUNG proposes the establishment of a policy committee on rare diseases to advise on a strategic development direction for a policy on rare diseases monitor the implementation of the policy on rare diseases by government departments and statutory bodies report on the implementation of the policy on rare diseases etc
這是早應該做的政策，如果說得更具體一點，我心目中的罕見疾病政策委員會應由罕見疾病患者的醫生及病人家屬組成，他們應該有權參與。
Such a policy should long be established . More specifically the policy committee on rare diseases in my opinion should be made up of doctors and families of rare disease patients . They should have the right to be part of the committee
罕見疾病，顧名思義是罕見的，為數不會太多，在我們整個醫療系統中佔的百分比很低。
Rare diseases as the name suggests are small in number only accounting for a small percentage in the diseases in the entire health care system . Health care staff in Hong Kong are in dire straits
現時香港的醫護人員正處於水深火熱，工作爆煲，特區政府和醫管局卻找來藝人、名人拍片為他們加油打氣，我不希望局長對於罕見疾病患者，都用同樣的心態，找名人、紅星拍片，叫罕見疾病患者及家屬加油，為他們打氣。
Their workloads are extremely high . The SAR Government and HA on the other hand invited celebrities and famous people to show up in a video to boost their morale . I hope that the Secretary will not do the same to rare disease patients and ask famous people or pop stars to videotape their words of encouragement to rare disease patients and their families
可能有很多年輕人決定不留在香港，這的確會對香港的長遠經濟帶來一些不好的影響。
perhaps many young people will decide not to stay in Hong Kong and this will definitely have adverse effects on Hong Kongs long - term economic development
所以，大家要思考一下，究竟年輕人對香港的歸屬感有多強？
Therefore we must ponder how strong young peoples sense of belonging to Hong Kong is
他們會否選擇香港作為他們永遠的家，令香港的經濟得以平穩地發展？
Will they choose Hong Kong as their permanent home so that Hong Kongs economy can develop steadily?
他們對於中國人的身份認同持續偏低，亦不及作為香港人般高。
The identity index of being Chinese continues to remain low and it is not as high as the identity index of being Hongkongers
主席，現時已檢驗並經測試的鋼筋的不合格率已經超過三成。
President more than 30 % of the steel bars inspected and tested failed to meet the required standards
此外，關於年輕人的學額，如果大家有留意，大學資助學額長期維持在約14,000個，而我讀大學時是14,600個，現在則提升至15,000個，但對很多年輕人來說仍然不足夠。
In addition with regard to university places for young people if Honourable colleagues have paid attention the number of publicly - funded university places has remained at around 14 000 for a long time . There were 14 600 places when I was a university student and the number of places has only increased to 15 000 now; that is not enough for many young people
而且，很多年輕人經資產審查後，要負上很沉重的學債，動輒也要十多二十萬元，我相信很多同事的辦事處也有這類型的學生。
Moreover after being means - tested many young people have to bear heavy student loan debts amounting to 100,000 to 200,000 . I believe that there are such students in the offices of many Honourable colleagues
所以，我希望政府可以檢視學生償還學費貸款的方法，並扶助他們，令學生對前景有信心，並願意留在香港為香港市民服務。
Hence I hope that the Government will examine how students can repay their loans on tuition fee and provide them with assistance so that they will have confidence in their future and will be willing to stay in Hong Kong to serve Hong Kong people
主席，今天的議案題目是"創造機遇扶助中小型企業及促進青年人向上流動"。
President the title of todays motion is Creating opportunities to assist small and medium enterprises and promoting upward mobility of young people
我不知道大家是否記得雨傘運動時的一個畫面，當時有8個大字貼在"連儂牆"上，就是"就算失望，不能絕望"。
I wonder if Members still remember a scene during the Umbrella Movement where large - print Chinese characters meaning disappointment but not despair were posted on the Lennon Wall
那些年，人心鼎沸，每個香港人特別是青年人都想改變。
Back in those years there was a public uproar when everyone particularly young people was eager for a change
由於政制停滯不前、八三一"落閘"，於是大家也看不到希望。
Noting that the constitutional reform had remained stagnant and the Chinese authorities had shut the door through the 31 August Decision people could not see any hope
直至雨傘 運動爆發、79天的佔領，香港人捱過了警棍和催淚彈，亦曾與政府談判，但青年人換來了甚麼呢？
It was during the outbreak of the Umbrella Movement and the 79 - day Occupy movement that Hong Kong people were hit by police batons and tear gas canisters and had negotiated with the Government . But what did young people get in return?
就是"就算不能絕望，也見不到希望"。
Even if they do not feel despair they do not see hope either
現時問問青年人，甚麼叫"青年人向上流動"？
We may now ask young people What is meant by upward mobility of young people?
我們看不到普選，而民意代表特別是青年人的代表又被"DQ"取消資格，加上外來移民搶佔工作機會，試問青年人有何出路？
Not only is universal suffrage out of reach but representatives of public views especially representatives of young people had also been disqualified . Worse still immigrants have seized many job opportunities . May I ask if there is a way out for young people?
不把青年人趕進窮巷，我們已感恩萬分了。
We should feel very grateful that young people have not been driven into a blind alley
從事專業職能工作的人數全面下降，有近六成畢業生從事文員和服務銷售工作。
There was an overall decline in the number of people engaging in professional jobs with nearly 60 % of graduates taking up clerical service or sales jobs
青年人起步難，"上位"更難，他們的薪金多年不漲。
To young people it is difficult to get a job and even more difficult to get a promotion . Their salaries have not increased for years
樂施會剛發布了一份報告，指出去年全球最富有的26名富翁的資產總值，已等同全球最窮一半人口的財富總和。
According to a report recently published by Oxfam last year the total assets owned by the 26 richest people in the world equal to the total wealth of half of the worlds poorest population
香港只有67名億萬富翁，卻已坐擁3,347億美元的財富；可是本港的貧窮人口卻有1,377 000萬人。
While there are only 67 multi - billionaires in Hong Kong their wealth amounts to a total of US334.7 billion . In contrast 1.377 million Hong Kong people are living in poverty
香港以至全球的財富過度集中於一小撮富翁手上，普羅市民包括大家很關心的青年人卻彷彿永遠分享不到成果，任憑經濟發展有多強勁，大灣區被說成機遇處處，但錢也只落在老闆手上，而非落在小市民，也不是青年人手上。
In Hong Kong and the rest of the world wealth is unduly concentrated in a handful of billionaires . It seems that the general public including young people whom we are very concerned about can never share the fruits of economic growth . However robust our economic development is and however abundant opportunities are available in the Guangdong - Hong Kong - Macao Greater Bay Area as claimed money only goes into the pockets of the bosses but not the general public or young people
美國研究機構Demographia在星期二公布一年一度的國際樓價負擔能力報告，指出香港樓價進一步惡化，香港人要不吃不喝近21年才可以供滿一層樓。
According to the annual International Housing Affordability Survey released by the United States research institute Demographia on Tuesday Hong Kongs property prices have spiralled further . Hong Kong people have to go without food for nearly 21 years to pay off the mortgage for a flat
香港連續9年成為全球樓價最難負擔的城市。
For nine consecutive years Hong Kong has become the least affordable housing market in the world
我們的上一代擁有物業，可以靠"炒樓"和"炒股票"賺錢，但青年人要由低做起、由零開始。
While our previous generation owned properties and could make money from speculating on properties and stocks young people have to start from scratch by taking up junior positions
如果不是成功"靠父幹"，那莫說買樓，就是想看到未來也很艱難。
If not hinging on fathers deeds it would be very difficult for them to buy their own properties not to mention seeing hope in the future
不過，如果問我我的意見一向與大家不同我認為置業不應該成為青年人的人生目標，政府亦無須協助市民置業，單單解決住屋問題便已足夠。
However in my opinion which is always different from other people I do not think that young people should consider home ownership as a goal in life nor should the Government assist members of the public in home ownership . All it has to do is to resolve the housing problem
我們過去談跨代貧窮問題時，說窮學生與富學生之間，不單前者輸在起跑線，兩者隨着年齡增長，在社會、經濟和地位的差距亦會越拉越大。
In our previous discussions on inter - generational poverty we said that when compared with rich students poor students not only lose at the starting line but the gap between them in terms of social and economic standing will also be increasingly widened as they grow up
我今天也不談這些，因為現時並非向上流動機會減少的問 題，而是普遍市民充斥着絕望。
I am not going to discuss this today because the question is not about a decrease in opportunities for upward mobility . Rather it is the widespread feeling of despair among the general public
我們的政治沒有未來、經濟沒有未來、生活沒有未來。
There is no future for our politics our economy and our life
市民認為向上流動只是一種奢望，與自己無關。
Upward mobility has become an extravagant hope out of reach for the public
國際民意機構蓋洛普最新一份全球希望指數報告指出，香港在1年間便下跌了35點，由去年的+10分跌至-25分，成為全球第五大悲觀地區，直迫約旦和黎巴嫩等戰火之地。
According to the most recent Global Hope Index report published by international polling organization Gallup Hong Kongs score has dropped by 35 points to - 25 in just one year from last years 10 making it the fifth pessimist region in the world immediately after such war - torn countries as Jordon and Lebanon
其實，我也不很理解青年人。
In fact I do not quite understand young people
政府近年只顧覓地建屋，認為只要解決置業問題，就等於解決了社會問題、解決了青年人的問題，這種想法便未免過於簡單。
Focusing only on identifying sites for housing construction in recent years the Government is of the view that addressing the home ownership issue is the solution to various social problems and young peoples problems as well . This may be over simplistic
歸根結底，其實所有問題只在於"生活"，進一步便是要"生活得更好"。
After all all problems boil down to living and the next pursuit is a better way of living
不論是向上流動的問題、置業問題或就業問題，如果大家本末倒置，因為供樓而失去了生活，只剩下生存，每餐只吃麵包，那麼不管覓多少地、建多少樓，對青年人而言也意思不大。
Regardless of whether the problem is upward mobility home ownership or employment if we put the cart before the horse focusing on mortgage payment to the neglect of a decent living life is merely a matter of survival living on bread for every meal then no matter how many more sites are identified and how many more buildings are constructed they do not make any sense to young people
因此，我同意郭家麒議員的修正案，最低限度它是要使香港在"自由、民主及法治等原應在基本法保障下的港人權利"不會持續受損，令香港人有希望、令青年人有希望，這樣他們才會願意花時間和心機留在香港、建設香港。
Therefore I endorse Dr KWOK Ka - kis amendment which has at least ensured that the rights of Hong Kong people that should be protected under the Basic Law such as freedom democracy and rule of law will not be persistently undermined . By bringing hope to Hong Kong people and young people they will be more willing to spend time and effort to stay behind and develop Hong Kong
我希望特區政府好好深切反省。
I hope that the SAR Government will properly and deeply reflect on this
主席，我首先多謝謝偉銓議員動議"創造機遇扶助中小型企業及促進青年人向上流動"的議案。
President first of all I thank Mr Tony TSE for moving this motion on Creating opportunities to assist small and medium enterprises and promoting upward mobility of young people
有些人希望向上流，賺取很多的金錢，成為管理層或老闆，這是沒有問題的。
Some people want to move upward earn a lot of money and become managers or bosses . There is nothing wrong with these aspirations
主席，我發言代表民主黨，支持張超雄議員"立法保障罕見疾病的病人權益"的議案，以及支持李國麟議員的修正案。
President on behalf of the Democratic Party I speak in support of Dr Fernando CHEUNGs motion on Enacting legislation to protect the rights and interests of rare disease patients as well as Prof Joseph LEEs amendment
我們今天特別關心的是，有一些根本不知道自己患甚麼病的病人，可能這種疾病比較罕見，亦可能比較少醫生認識，所以可能花很長時間診斷也找不到患甚麼疾病，即使知道患某種病，也沒有足夠藥物治療。
Today we focus our attention specially on patients who do not know the disease they have contracted possibly because the disease is rare or not many doctors know about it . These patients may not be able to find out the disease despite the fact that they have spent a long time on the diagnosis . Even if they manage to obtain a diagnosis there are inadequate choices of drugs for treatment
所以，我們希望政府透過今天這項議案辯論，以及張超雄議員將會在衞生事務委員會提出的私人條例草案......
We thus hope that the Government can make use of this motion debate today as well as the private bill to be proposed by Dr Fernando CHEUNG in the Panel on Health Services We know that attempts by Members to introduce a private bill will meet strong resistance under the Basic Law