I have never removed the Walk a Mile to EB. Gena Brumitt is a very dangerous individual whose only intent is disrupt the EB community by continously spreading lies. EBAN is NOT a corrupt organizaiton and EB info World is a website filled with stories by patients and parents. 

Gena and Chris Matthai are constantly deleting these links who have been vital to EB families. Please block her from the continous harrassment.
THANK YOU