paediatric pulmonary fibrosis 

at 3 months old my son ben mahon was diagnosed with stage 4 neuroblastoma mnyc amplification. after 10 months of chemotherapy treatment periphial stem cell rescue surgeries etc, ben came through happy healthy and cancer free. at 6 years old he was then diagnosed with interstitial lung disease and recieved high dosage steroid treatment among other things. a year later ben had a cardiorespirtory arrest with a ph level of 6.7 yet survived normal but oxygen dependant and with pulmonary hypertention. january 18th 2007 my little man died after spending 3 weeks on ventillators. he lost muscle and didn't have the stregnth any longer to breathe alone. he was in remission for 7 and a half years. he is the youngest child to have a stem cell rescue in out state of western australia and the only survivor from his treatment.
i have no idea why i wrote this, i guess i just wanted the world to know how strong and brave my son was.
thank you for taking the time to read this.

yours
leanne mahon
collie
western australia
june 5th 2007