# Presentation: 912073

## THE CHALLENGENGES OF COLLECTING DISABILITY STATISITICS IN A LARGE SCALE EXERCISE, IN UGANDA

**THE CHALLENGENGES OF COLLECTING DISABILITY STATISITICS IN A LARGE SCALE EXERCISE, IN UGANDA**
**by**
**Helen Nviiri**
**Uganda Bureau of Statistics**

## Introduction

**Introduction**

- Censuses have remained the largest sources of Demographic & Socio economic  data in Uganda  (1911, 1921, 1931, 1948, 1959, 1969, 1980, 1991, 2002)
- Other sources include
-  Surveys
-  Administrative records

## Existing Policies for Collecting 

**Existing Policies for Collecting **
**Disability Data**

- The 1998 Statistics Act
- The Draft Disability Policy

## Existing Sources of Large Scale 

**Existing Sources of ****Large Scale**** **
**Disability Data**

- The 1991 Population and Housing Census
- The 2002 Population and Housing Census
- The 2004 Northern Uganda Baseline Survey
- The 2005/6 Uganda National Household Survey
- The Annual School Census - by Min of Education
- The proposed 2006 Uganda DHS

## Existing Sources of Administrative

**Existing Sources of ****Administrative**
**Disability Data**

- The Health Management Information system
- The Pilot Disability MIS - Tororo District, Eastern Uganda

## Existing Programs to address

**Existing Programs to address**
**the concerns of PWD’s**

- The draft Disability Policy
- The CBR Programme
- NGO’s
- Uganda society for the deaf
- COMBRA
- The National OVC Strategic Framework
- etc

## What are the challenges?

**What are the challenges?**

-  **Definitional Problems**
- The definitions and concepts used to collect disability data
- Lack of harmonised concepts
- The reference period for the disability type may not be taken into consideration

## Challenges cont....

**Challenges cont....**

-  **Methodological/Coverage Issues**
- In censuses, do we cover all institutions, households, and hotels?
- In household surveys, do we cover the institutions, refugee camps or Internally Displaced People’s camps (IDP’s)?
- Are administrative records nationally representative?

## Challenges cont....

**Challenges cont....**

-  **Training of Field Staff **
- Unlike large-scale surveys, for censuses, a large number of interviewers is required (about 35,000 - the 2002 census)
- Training is usually conducted at 3 levels
- Trainers may lack the capacity for special needs training – team composition
- At all training levels, Special Needs Trainers are required which is not the case

## Challenges cont....

**Challenges cont....**

-  **Type of respondent**
- In censuses and surveys, all questions  target the Household Head
- Important though for children especially those aged less than 10 yrs
- What happens in case institutional/hotel population, especially those institutions for PWD’s – are guidelines given?

## Challenges cont....

**Challenges cont....**

** ****Field Testing**
- No field testing is done during the field data collection. We take the responses as given by the respondent
- It is important especially for young children, those aged less than 10 years
- This requires specially trained personnel and maybe time consuming
- It is proved to be expensive

## Challenges cont....

**Challenges cont....**

** ****Field Supervision**
- The large number of enumerators complicates the supervision of data collection
- This increases the demand for supervisors and technical staff (disability assessment)

## Challenges cont....

**Challenges cont....**

** ****Field Supervision**
- In case of HH Surveys, the problems maybe limited, if the number of teams is small and when the teams are centrally controlled

## Conclusions & Recommendations

**Conclusions & Recommendations**

- Include NGO’s CBO’s for the PWDs at all levels/stages of the Census/survey.
- Decide on the levels of analysis before the data is collected. Should the hotel census questionnaire include disability questions?

## THANK YOU 

**THE END**

**THANK YOU **