# Presentation: 051176

## NHIN / HISPC / SLHIE Joint Conference

***NHIN / HISPC / SLHIE Joint Conference***
**Consumer Preferences & Permissions:**
**HISPC Consent 1 (Data Elements) Project**
***May 1, 2008***
*Dallas, TX*
**Victoria M. Prescott, J.D.**
**Diane L. Stone, M.B.A.**

## Agenda

- Background
- Problem
- Solution
- Methodology & timeline
- Alignment with other initiatives

## Background

- Prior HISPC work, 2006 and 2007
- Last fall’s organization of states into a multi-state collaborative groups
- Consent Data Elements Collaborative has  eleven participating states:
- 	IN, ME, MA, MN, NH, NY, OK, RI, UT, VT, WI

## Problem

- Understanding PHI disclosure requirements *(e.g., in what scenarios is patient consent required)* is a major challenge for interoperability. We see:
- Confusion among health care personnel in applying federal and state laws; e.g., what are legal requirements, for what settings, what types of information, what types of providers
- Some entities (e.g., health systems, RHIOs, health record banks) implement privacy policies that are more protective than state law
- No organized, detailed listing of what pieces of information (data elements) are needed in order to make a determination of whether to disclose; “entity preferences” count
- Operational need to accommodate data elements needed for disclosure of PHI between systems

## Solution

- Main deliverables/outcomes of this project:
- Create a Consent & Disclosure Analysis Tool (searchable database) that will serve as a central reference guide for disclosure requirements for states, RHIOs, & other entities
- Populate the tool with the disclosure requirements for the 11 states in this collaborative
- Create an information collection template that can be used by other states and entities to add their data to the tool
- Analyze disclosure requirement commonalities, differences and trends, laying the groundwork for policies
- Be cognizant of opportunities to automate the collection, storage, decision making ,and transmission of disclosure requirements for PHI to enable expedient exchange

## Methodology & Timeline

- Phase 1: Selection scenarios & design of template for collecting information
- Phase 2: Each state’s collection of information, based on developed collection tool
- Phase 3: Combining the information into a central consent and disclosure analysis tool (searchable database) to form basis of reference guide, conduct preliminary analysis
- Phase 4: Analyzing the information across states categorizing similarities and differences, making recommendations, providing lessons learned

***3 mo.***
***3 mo.***
***4 mo.***
***2 mo.***

## Alignment with other initiatives 

- Alignment with other initiatives

- Other HISPC multi-state collaborative groups:
- Harmonizing state privacy laws
- Inter-organizational agreements
- Consent 2 policy options
- Pritts Project (gathers information from 53 states/territories)
- HITSP
- NHIN
- State Alliance for eHealth new taskforce

## Q & A

- Victoria M. Prescott, J.D.
- Cell: (317) 402-0340
- _[vprescott@vprescott.com](mailto:vprescott@vprescott.com)_
- Diane L. Stone
- (781) 419-7812
- _[dstone@mahealthdata.org](mailto:dstone@mahealthdata.org)_