# Presentation: 525689

## Washington Group on Disability Statistics: extended sets

- Marijke W. de Kleijn – de Vrankrijker
- WHO-FIC Collaborating Centre
- The Netherlands

- WG 5 Rio September 2005 Marijke de Kleijn

## Outline

- Objectives of WG and task of group 3
- Purpose of short set and extended sets
- Content of extended set 1 and 2 related to short set
- Content of proposed set 1
- Testing questions related to proposed set 1
- Content of extended set 2

- WG 5 Rio September 2005 Marijke de Kleijn

## WG objectives

- Develop a small set/s of general disability measures
***Recommend extended set/s of items to measure disability as components of population surveys***
- Address methodological issues associated with disability measurement

- WG 5 Rio September 2005 Marijke de Kleijn

## Purpose short set 

- Purpose for international comparability of disability measures/data
- Highest priority given to assessing equalization of opportunities
- Partially fulfills purpose of monitoring limitations in functioning in the population

- WG 5 Rio September 2005 Marijke de Kleijn

## Purpose extended sets

- Should be same as short set
- International comparability
- Equalization of opportunities
- Monitoring functioning and disability in population
- This means inclusion of all ICF components
- Body function/structure, impairments
- Activity, limitations
- Participation, restrictions
- Environmental factors, barriers/facilitators

- WG 5 Rio September 2005 Marijke de Kleijn

## Short set

- 	_Response categories: No, some, a lot, cannot do at all _
- Do you have difficulty seeing even if wearing glasses?
- Do you have difficulty hearing even if using a hearing aid?
- Do you have difficulty walking or climbing steps?
- Do you have difficulty remembering or concentrating?
- Do you have difficulty with (self-care such as) washing all over or dressing?
- Because of a physical, mental, or emotional health condition, do you have difficulty communicating (for example understanding others or others understanding you?

- WG 5 Rio September 2005 Marijke de Kleijn

## Content of extended sets

- Bangkok meeting:
- Set 1:
- functions and basic activities
- related to current 6 domains of short set + additional functions and basic activities
- Set 2:
- other activities,
- participation and
- environment

- WG 5 Rio September 2005 Marijke de Kleijn

## Short sets vs extended sets

| ICF component | Short set | Extended set 1 | Extended set 2 | Short set 2? |  |
| --- | --- | --- | --- | --- | --- |
| Body function | + | + | - | - |  |
| Body structure | +? | +? | - | - |  |
| Activity | +/- | +/-
 | +/- | +/- |  |
| Partici-pation | - | - | + | + |  |
| Environmental factors | - | - | + | + |  |

- WG 5 Rio September 2005 Marijke de Kleijn

## Testing of short set

- Use of extended set(s)
- Recommended to use existing instruments = first extended set?

- WG 5 Rio September 2005 Marijke de Kleijn

## First extended set

- First proposal to group 3:
- WHS-8
- WHO-DAS-12

- WG 5 Rio September 2005 Marijke de Kleijn

## First extended set

- After comments from group members, proposal:
- WHS-17
- WHO-DAS-12
- Speech question
- Total 30 questions

- WG 5 Rio September 2005 Marijke de Kleijn

## WHS-17 items

- Sleep
- Feeling sad
- Anxiety
- Seeing/recognizing a person
- Seeing/recognizing  object, reading
- Hearing someone
- Hearing conversation
- Aches/pain
- Bodily discomfort

- WG 5 Rio September 2005 Marijke de Kleijn

## WHS-17 items (2)

- Shortness of breath at rest
- Shortness of breath mild exercise
- Coughing
- Appearance deformed
- Skin defects
- Defecation
- Urinating
- Using hands/fingers

- WG 5 Rio September 2005 Marijke de Kleijn

## WHO-DAS-12

- Concentrating doing
- Emotially affected
- Learning new tasks
- Standing
- Walking long distance
- Washing whole body

- WG 5 Rio September 2005 Marijke de Kleijn

## WHO-DAS-12 items (2)

- Getting dressed
- Household responsibilities
- Dealing with people
- Friendship
- Day-to-day activities (work/school)
- Community activities

- WG 5 Rio September 2005 Marijke de Kleijn

## UNESCAP pilot studies

- Pilot studies UNESCAP region
- We have to use the experiences from those pilots
- Questionnaire including:
- WG short set
- WHS-17
- WHO-DAS-36
- 4 questions on met/unmet needs for assistance

- WG 5 Rio September 2005 Marijke de Kleijn

## Testing short set

- Group 2 selected questions for testing the short set from:
- WHS
- WHO-DAS
- SF-36 mental component
- Total 27 questions

- WG 5 Rio September 2005 Marijke de Kleijn

## Items mapped to ICF

- Short set
- WHS-8
- WHS-17
- WHO-DAS-12
- Eurostat health module
- Test questions
- Mapped to ICF see matrix

- WG 5 Rio September 2005 Marijke de Kleijn

## Second extended set

- Based on analysis of existing national survey questionnaires
- Common questions/areas and missing areas compared to ICF
- Next presentation Margie Schneider and Marijke de Kleijn

- WG 5 Rio September 2005 Marijke de Kleijn

## Testing general set

- Testing general set 2005
- Including extended questions (which?)

- WG 5 Rio September 2005 Marijke de Kleijn

## Dank voor uw aandacht

- Marijke.de.kleijn@rivm.nl
- www.rivm.nl/who-fic

- WG 5 Rio September 2005 Marijke de Kleijn