# Presentation: 224085

## General Disability Measurement in Uganda

**Focusing on Improvement in Methodology and Concepts used**

**By Nabukhonzo Pamela**
- Uganda Bureau of Statistics

## Disability Measurement in Uganda

**Introduction **
**Population and Housing**
**Censuses**
**CBR Programme**
**Conclusion**

**Disability Measurement in Uganda**

## Introduction

**Population and Housing Censuses remain major source of nation wide Disability Statistics**
**Regional workshop on disability Statistics in Africa**
**Land mark in the area of disability measurement**

## Disability Measurement in Uganda

**Introduction **
**Population and Housing**
**Censuses**
**CBR Programme**
**Conclusion**

**Disability Measurement in Uganda**

## Methodology

| 1991 Census | 2002 Census |
| --- | --- |
| Two questionnaires
Only Households | One questionnaire
Complete coverage |

## Questions Asked 

- 1991 Census
- Is there anyone who was in the HH on the census night disabled?

- 2002 Census
- Does “NAME” have any difficulty in moving, seeing, hearing, speaking or learning, which has lasted or is expected to last 6 months or more?

## Definition of Disability

- 1991 Census

- Any condition, which prevents a person from living a normal social and working life.

## Definition of Disability

- 2002 Census

- A person who is limited in the kind of or amount of activities that he or she can do, because of on going difficulty(ies) due to a long-term physical condition or health problem that has lasted 6 months or more. This includes all those difficulties that are expected to last more than 6 months.

## Summary

**1991 Census**

- The term “disability” was used in the Global question.
- One disability
- Prevalence rate of 1.1%

## Summary

**2002 Census**

- Included information on rehabilitation measures
- The term “disability” was avoided in the global question
- Multiple disability(at most 2)
- Duration was taken care of.

## Disability Measurement in Uganda

**Introduction **
**Population and Housing**
**Censuses**
**CBR Programme**
**Conclusion**

**Disability Measurement in Uganda**

## Community Based Rehabilitation Programme

- Implemented under MGLSD

## Weaknesses related to Data collection

**Existing gaps in developing specific indicators**
**Lack of reliable data & information systems**
**Difficulty to collect comparable data**
**Assessment forms were too complicated**
**CBR staff hardly filled these forms**
**Data from some districts was not correlated and systematized**

## Data Collection Instruments

**Identification, registration & baseline information forms**
**Assessment, follow up & referral forms**
**Supervision & monitoring guidelines**
**Reporting guidelines**

## Definition of Disability

- CBR Programme

- Difficulties/restrictions in performing daily activities leading to failure to participate like other people.

## Question asked & Methodology

- Data collection is mainly be observation of the PWD

- Questions touch on:
- Severity
- Duration
- Cause
- All domains of well-being

## Environment and participation

**Home environment**
**Accessibility**
**Nutritional practices**
**Hygiene of PWD**
**Waste disposal**
**Source of water**
**Cultural beliefs/practices related to PWD**

## Mapping to ICF

**Most of the chapters are not touched at all**
**At least one component/chapter is touched**

## Disability Measurement in Uganda

**Introduction **
**Population and Housing**
**Censuses**
**CBR Programme**
**Conclusion**

**Disability Measurement in Uganda**

## Conclusion

- Nation wide data on disability in Uganda is from censuses
- Administrative data collection from CBR will be the only comprehensive source though not nation wide
- Issues under question matrix were to a great extent covered in both programmes
- (census excludes severity, CBR includes it

## Slide 21