# Presentation: 582616

## Fifth Annual Meeting of the WG: Objectives and Agenda

- Jennifer H. Madans
- U.S.A.

## Summary of work to date

**1****st**** meeting (Washington, DC, Feb 2002):** Agreed to develop short and long sets of internationally comparable disability measures using the ICF as a framework. Census questions priority.
**2****nd**** meeting (Ottawa, Canada, Jan 2003):** Established link between purpose and aspects of measurement via matrix.
**3****rd**** meeting (Brussels, Belgium, Feb 2004):** Equalization of opportunities selected as purpose of general measure.

## Summary of work to date

**4****th**** meeting (Bangkok, Thailand, Sept 2004)**
- Draft of general measure agreed upon conceptually; revisions and statement of rationale to be completed
- Workgroup formed to develop implementation protocols to test and field general measure
- General measure to be pre-tested in as many countries as possible
- Workshops planned to inform local countries about the WG general measure and the planned pre-testing

## Summary of work to date

- Two extended sets to be proposed
- Purpose: assessing equalization of opportunities
- Module that will go into existing national surveys
- Set 1: Additional questions to be developed in the area of basic activities
- Set 2: Will examine aspects of participation that are and are not covered in current surveys and how environmental factors are to be included
- A new workgroup on methodological issues formed to address full population coverage and other issues

## Major accomplishments since Bangkok

- Draft implementation protocols developed:
- Objectives and evaluation plan for testing
- Cognitive test plan
- Translation guidelines
- Enumerator training protocol
- Sample design issues
- Plan for tabulation, analysis and report writing
- Two regional workshops successfully implemented
- June 20-22, 2005 / Nairobi, Kenya
- September 19-20, 2005 / Rio de Janeiro, Brazil

## Major accomplishments since Bangkok

- 15 countries offered funding to conduct pre-tests
- $5000.00 for Kenya, Gambia, and Vietnam to conduct cognitive and field tests
- $1000.00 for India, Philippines, Seychelles, Lesotho, Malawi, Congo, Mauritius, Uganda, Egypt, South Africa, Palestine, and Tanzania to conduct cognitive portion of the pre-test
- 7 countries have submitted test plans
- South Africa can conduct the full pre-test without WG funding

## Plan for 5th meeting

- Each session has specific objectives
- Presentation of draft position papers will be followed by focused discussion that will address specific session objectives
- There will be products and a work plan following each session

## Meeting and session objectives

- _Workgroup on general measure_
- Present questions recommended for pre-testing, the accompanying rationale, and the Q by Q specifications
- Identify potential areas for revision
- Discuss potential use of the general measure as a screener

## Meeting and session objectives

- _Workgroup on implementation_
- Present the implementation protocols currently in use
- Discuss lessons learned from the workshops about the protocols
- Identify potential areas for revision

## Meeting and session objectives

- _Report on the regional workshops_
- Present proceedings and outcomes of the regional WG workshops in Africa and Brazil
- Present the results of the UNESCAP/WHO pre-tests
- Discuss plan for future pre-tests and workshops

## Meeting and session objectives

- _Conceptual issues related to disability measurement_
- To examine what it means to use the ICF as a framework for disability measurement
- To discuss the meaning of words that we use to describe and measure disability and identify areas where terminology lacks sufficient clarity / specificity
- To clarify how the proposed general measure captures basic activities and identifies a population at high risk of participation limitations

## Meeting and session objectives

- _Workgroup on extended measures_
- Present alternative proposals for 1st extended set
- Present proposal for 2nd extended set
- Discuss purpose of extended sets, data needs, and relationship to general measure
- Discuss timing of WG activities related to development of extended sets
- Develop priorities for work to be accomplished

## Meeting and session objectives

- _Workgroup on methodological issues_
- Discuss issues of proxy and non-response and mode of survey administration in relation to health questions
- Identify the impact of excluding the institutionalized population from disability surveys
- Discuss methods to estimate and control bias in disability statistics
- Discuss other methodological challenges related to collecting national data on disability

## Meeting and session objectives

- _UNSD report_
- Introduce international data and metadata on disability related to the Demographic Yearbook system and present available results of pre-testing
- Discuss how different approaches to measurement impact disability prevalence

## Meeting and session objectives

- _Strategic Issues_
- Review country reports for planning purposes
- Discuss other international efforts related to WG work
- Review use of WB DGF and plan for future funding
- Discuss WG governance issues
- _Next steps_