# Presentation: 007680

## NIH Public Trust Initiative COPR Update  October 26, 2007 

**NIH Public Trust Initiative COPR Update**** **** October 26, 2007**** **

***Initiative Co-Chairs***
**Dr. Patricia A. Grady**
**Director, National Institute of Nursing Research**
**Dr. Yvonne T. Maddox**
**Deputy Director, National Institute of Child Health & Human Development**

## NIH Public Trust Initiative

- Mission Statement
-    The mission of the NIH Public Trust Initiative (PTI) is to enable the public to understand and to have full confidence in the research that NIH conducts and supports across the country and throughout the world.

## NIH Public Trust Initiative:Steering Committee

- NIH Public Trust Initiative:Steering Committee

**Patricia Grady**
**Yvonne Maddox**
**Jeffrey Abrams **
**Barbara Alving **
**Nicole Johnson Baker**
**Alexis Bakos**
**John Burklow**
**Zeke Emanuel**
**Roger Glass**
**Lisa Kaeser**
**Raynard Kington**
**Alan Krensky**
**Cliff Lane**
**Amy Patterson**
**Cliff Poodry**
**Joan Schwartz**

**Co-Chair, Director, NINR**
**Co-Chair, Deputy Director, NICHD**
**Acting Assoc. Director, Div. Cancer Treatment, NCI**
**Director, NCRR **
**COPR Member**
**Program Director, NIH NINR**
**Assoc. Director for Comm., NIH OD**
**Chair, NIH Department of Bioethics**
**Director, FIC**
**Senior Program Analyst, NIH NICHD**
**Deputy Director, NIH**
**Director, Office of Portfolio Analysis and Strategic Initiatives**
**Clinical Director, NIAID**
**Director, Office of Biotechnology Activities, NIH OD**
**Director, Div. Minority Opp. & Res., NIH NIGMS**
**Asst. Director, OIR**

## Representatives from
Institutes
Centers
Offices of the Director

- Representatives from
- Institutes
- Centers
- Offices of the Director

- NIH Public Trust Initiative:Public Trust Liaison Group

## NIH Public Trust Initiative

- NIH Partners in Research Program (PIR)

## Partners in Research (PIR)

- Inspired by:
- COPR Workshop
- Inventory of NIH activities
- Feedback from across the country
- NIH Leadership

## Partners in Research (PIR)

- Develop research partnerships between community leaders and NIH-supported scientists
- Develop innovative research activities to:
- Study methods to engage and inform the public regarding health science
- Improve public understanding of the benefits  of publicly funded research** **
- Increase scientists’ understanding of and outreach to the public in their research efforts

## Partners in Research (PIR)

- Objectives:
- Communicate importance and value of public’s role in the research process
- Improve communication of health-related findings to communities
- Convey information about community needs to NIH investigators

## Partners in Research (PIR)

- Two phases:
- _Phase I_: Grant support for the proposed innovative activities of the Community Leader-Scientist partnership
- _Phase II_: NIH Partners Workshop

## Partners in Research (PIR)

- Notice of Intent to Publish – August 29, 2007
- RFA publication date – October 12, 2007
- RFA receipt date for applications – January 11, 2008
- Small Research Grant mechanism (R03)
- Approx 40 partner pairs
- $50,000 per grant for each of 2 years

## Partners in Research (PIR)

- Eligibility Requirements:
- Members of underrepresented groups are encouraged  to apply
- An institution may submit more than one application in response to this RFA** **provided each application is scientifically distinct.
- Foreign organizations are not eligible to apply for these grants.
- Applications must be submitted on behalf of at least two partner Investigators, representing a scientific/medical institution and a community institution.

## Partners in Research (PIR)

- Applicants should address:** **
- Purpose of the research activity/question to be addressed
- The significance of the project
- Design of innovative activities
- How it increases public understanding of biomedical and/or behavioral research

## Partners in Research (PIR)

- Application should include:
- A detailed plan developed by the two investigators highlighting how collaboration and information exchanges will occur

##  Workshop

- NIH Partners Workshop

-  Workshop

## Workshop

- Purpose of Workshop:
- Provide update on Partnerships' progress and experience
- Discuss “lessons learned” thus far
- Provide a mid-term evaluation of the PIR Program

## Workshop

- Workshop activities will also include:
- Update on NIH science activities
- Information on NIH Bench-to-Bedside translation and dissemination activities
- Interactive discussion sessions
- Visits to clinical center/labs of most interest to partner group
- Skill Building

## Workshop

- Approximately 80 participants
- All partners must attend
- Held in the Bethesda area at the completion of year one

## Examples of PIR Projects

- HIV/AIDS researchers collaborating with an AIDS advocacy partner to increase participation and adherence in an antiretroviral therapy clinical trial.
- Health communication researchers partnering with community service agencies to develop software that “translates” highly technical research results into findings that are more easily understood by the public.
- Behavioral researchers working with faith-based organization to test methods for disseminating obesity prevention messages.

## PIR Evaluation Plans

- Phase 1 Process Evaluation: Post Workshop** **
- Feedback from the participants in the           workshop
- Investigators’ presentation on the success/ challenges of individual projects
- Phase 2 Outcome Evaluation: Post Community-Based Activities** **
- A compilation and assessment of community-based activities
- Dissemination of the needs of the communities to NIH investigators
-    “Improvement in understanding the value of medical science based upon NIH-supported research”

## Public Trust Website