**CONSUMER HEALTH: A Selected Reading List**

NLM Associate Fellowship Program

November 2000

**NLM CONSUMER HEALTH OUTREACH DOCUMENTS**

NLM Press Release: *NLM Announces Plan to Increase Public Access to
Health Information on the Internet*

<http://www.nlm.nih.gov/news/press_releases/access.html>

NLM Press Release: *Public Library Initiative/New Consumer Health Site*

<http://www.nlm.nih.gov/news/press_releases/medplus.html>

NLM Press Release: *NLM \"Adopts\" D.C.\'s Woodrow Wilson Senior High
School*

<http://www.nlm.nih.gov/news/press_releases/wilsonpr00.html>

NLM Press Release: *National Library of Medicine Announces Initiative to
Help Public Use Online Health Information*, January 14, 2000

<http://www.nlm.nih.gov/news/press_releases/ehip.html>

*Health Information for the Public Projects Funded by the National
Library of Medicine, 2000*

<http://www.nlm.nih.gov/nno/hipprojects.html>

Stephenson J. *National Library of Medicine to Help Consumers Use Online
Health Data*. JAMA April 5, 2000; 283(13): 1675-6

<http://jama.ama-assn.org/issues/v283n13/fpdf/jmn0405.pdf>

*Regents Chart New Course Regarding Consumer Health Information*

<http://www.nlm.nih.gov/pubs/nlmnews/as99/as99_regentschart.html>

NLM Strategic Plan to Reduce Racial and Ethnic Health Disparities
2000-2005

<http://www.nlm.nih.gov/pubs/plan/nlmplanracialethnic.pdf>

NLM Long Range Plan, 2000-2005

<http://www.nlm.nih.gov/pubs/plan/long_range_plan_prepub.pdf>

**BOOKS**

Health and health care 2010: the forecast, the challenge. The Robert
Wood Johnson Foundation, 2000.
[http://www.rwjf.org/iftf/index.htm](http://www.rwjf.org/oftf/index.htm)

Nash DB, Manfredi MP, Bozarth B, Howell S. Connecting with the new
healthcare consumer: defining your strategy. McGraw-Hill, 2000.

Networking Health: Prescriptions for the Internet. Committee on
Enhancing the Internet for Health Applications: Technical Requirements
and Implementation Strategies, Computer Science and Telecommunications
Board, National Research Council, 2000

<http://www.nap.edu/catalog/9750.html>

Rees AM. Consumer health information sourcebook, 6^th^ ed. Oryx Press,
2000.

**BACKGROUND DOCUMENTS**

**Changing Practices: Computing Technology in the Shifting Landscape of
American Healthcare**

Dishman E, Sherry J

Intel Corporation, 1999

<http://www.intel.com/intel/e-health/index.htm>

**Consumer Health Information White Paper**

Patrick K, Koss S

Working Draft, 15 May 1995

<http://nii.nist.gov/pubs/chi.html>

**Consumer Health Information: Emerging Issues**

U.S. General Accounting Office GAO/AIMD-98-86, July 1996

[http://www.access.gpo.gov](http://www.access.gpo.gov/)

**Consumer Health Informatics and Patient Decision-Making**

AHCPR Research Report, Sep 1997

Agency for Health Care Policy and Research, Rockville, MD

<http://www.ahcpr.gov/research/rtisumm.htm>

**Criteria for Assessing the Quality of Health Information on the
Internet**

Mitretek Systems Health Information Technology Institute, Nov 1998

<http://hitiweb.mitretek.org/docs/policy.html>

**The Digital Divide and American Society**. The Gartner Group, October
2000

<http://www.gartner.com/public/static/techies/digital_d/dividehome.html>

**The Emergence of the E_HEALTH CONSUMER**

Deloitte Consulting, 1999

<http://www.dc.com/pdf/e-health.pdf>

**Ethics Survey of Consumer Attitudes about Health Web Sites**

CyberDialogue and the Institute for the Future, 2^nd^ ed., September
2000

California Healthcare Foundation

<http://ehealth.chcf.org/view.cfm?section=Consumer&itemID=1740>

**Falling Through the Net: Defining the Digital Divide**

**A Report on the Telecommunications Gap in America**

National Telecommunications and Information Administration, U.S.
Department of Commerce,

July 1999

<http://www.ntia.doc.gov/ntiahome/fttn99/contents.html>

**Health e-People: The Online Consumer Experience**

Mary M. Cain, Jane Sarsohn-Kahn, Jennifer C. Wayne of the Institute for
the Future, August 2000

California Healthcare Foundation

<http://ehealth.chcf.org/view.cfm?section=Forecasts&itemID=3313>

**Impacts of the Internet on the Doctor-Patient Relationship: the Rise
of the Internet Health Consumer**

Scott Reents, Cyber Dialogue, 1999

<http://www.cyberdialogue.com/pdfs/wp/wp-cch-1999-doctors.pdf>

**The Librarian\'s Role in the Provision of Consumer Health Information
and Patient Education**

CAPHIS, 1996

<http://caphis.njc.org/caphis_statement.html>

**Vice President Gore\'s Memorandum to Donna Shalala**

Subject: Proposed Agenda for Promoting Health Care Applications of the
National Information Infrastructure

8 March 1995

<http://aspe.os.dhhs.gov/datacncl/gore1.htm>

**Wired for Health and Well-Being: the Emergence of Interactive Health
Communication**

Eng TR, Gustafson DH, ed. Science Panel on Interactive Communication and
Health, ODPHP, DHHS, 1999

[http://www.scipich.org/pubs/report/wired-pb.pdf](http://www.scipich.org/pubs/report/wired-Pb.pdf)

**SELECTED JOURNAL ARTICLES\
**

Deering, M.J., & Harris, J. Consumer health information demand and
delivery: implications for libraries. Bull Med Libr Assoc. 1996 Apr;
84(2), 209-216.

Eysenbach G. Consumer health informatics. BMJ. 2000 Jun
24;320(7251):1713-6. Review

<http://www.bmj.com/cgi/reprint/320/7251/1713.pdf>

Humphreys, B. Electronic health record meets digital library: a new
environment for achieving an old goal. J. Am. Med. Inform. Assoc. 2000
7: 444-452.

<http://www.jamia.org/>

Humphries AW, Kochi JK. Providing consumer health information through
institutional collaboration. Bull Med Libr Assoc. 1994 Jan;82(1):52-6.

Lyon BJ. The National Library of Medicine and Health Information for the
Public. Public Libraries \[in press\]

Martin ER. Consumer health informatics: the medical librarian\'s role. J
AHIMA. 1998 Sep;69(8):38-40.

Martin ER, Lanier D. Networking consumer health information: bringing
the patient into the medical information loop. Bull Med Libr Assoc. 1996
Apr;84(2):240-6.

Miller N, Lacroix EM, Backus JE. MEDLINEplus: building and maintaining
the National Library of Medicine\'s consumer health Web service. Bull
Med Libr Assoc. 2000 Jan;88(1):11-7.

Morris TA, Guard JR, Marine SA, et al. Approaching Equity in Consumer
Health Information Delivery: Net Wellness. J Am. Med. Inform. Assoc.
1997 4: 6-13.

<http://www.jamia.org/>

Stead, WW. The Networked Health Enterprise: A Vision for 2008. J. Am.
Med. Inform. Assoc. 1998 5: 412-415.

<http://www.jamia.org/>

Tang PC and Newcomb C. Informing Patients: A Guide for Providing Patient
Health Information. J. Am. Med. Inform. Assoc. 1998 5: 563-570.

<http://www.jamia.org/>

Voge S. NOAH\--New York Online Access to Health: library collaboration
for bilingual consumer health information on the Internet. Bull Med Libr
Assoc. 1998 Jul;86(3):326-34.

Wood F, Lyon B, Schell MB et al. Public library consumer health
information pilot project: results of a National Library of Medicine
evaluation. Bull Med Libr Assoc 2000 Oct;88(4):314-22.

**WEB SITES**

**NLM Databases**

MEDLINEplus

[http://Medlineplus.gov](http://Medlineplus.gov/)

ClinicalTrials.gov

[http://clinicaltrials.gov](http://clinicaltrials.gov/)

DIRLINE

[http://dirline.nlm.nih.gov](http://dirline.nlm.nih.gov/)

LOCATORplus

<http://www.nlm.nih.gov/locatorplus/locatorplus.html>

NLM Gateway

[http://gateway.nlm.nih.gov](http://gateway.nlm.nih.gov/)

**Other Consumer Health Databases**

healthfinder®

<http://healthfinder.gov/>

NetWellness

[http://www.netwellness.org](http://www.netwellness.org/)

NOAH

[http://noah-health.org](http://noah-health.org/)

**Publications for Consumers**

National Library of Medicine Guide to Finding Health Information

<http://www.nlm.nih.gov/services/guide.html>

Finding Consumer Health Information

<http://www.nlm.nih.gov/services/faqpc.html>

**Publications for Librarians**

Consumer Health: An Online Manual

<http://www.nnlm.nlm.nih.gov/scr/conhlth/manualidx.htm>

HEALTHINFOQUEST

<http://www.nnlm.nlm.nih.gov/healthinfoquest/>

**Other Resources**

National Network of Libraries of Medicine

<http://www.nnlm.nlm.nih.gov/>

CAPHIS (Consumer and Patient Health Information Section of MLA)

[http://caphis.njc.org](http://caphis.njc.org/)