Results of Instrument Selection Survey

Population Sciences SIG

CDE/Metadata Working Group

Results as of June 12, 2007

Survey Link:
<http://cophin.uchsc.edu/EPHOCUS/pages/loginRespondent.asp?idSurvey=111>\
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Survey Instructions: **\
\
**The CDE/Metadata working group of the Population Sciences SIG is
attempting to identify data collection instruments commonly used by
members of the SIG. Once identified and prioritized, an effort will be
made to curate some of the CDEs taken from these instruments into the
caDSR.

Please list up to three instruments or surveys that you commonly use in
your research to collect data in the categories listed below. For your
reference, a listing of some common instruments has been posted on
GForge.

Questions:

1.  General Health

2.  Physical Disability and Handicap

3.  Physical Function

4.  Quality of Life

5.  Psychological Health

6.  Nutrition

7.  National Health Surveys

8.  Other Instruments or Comments

Total Responses: 6

Survey Closed: 6/15/2007

Summary results:

+-----------------------------------------------------------------------+
| **SF12 (Short Form - 12): 3**                                         |
|                                                                       |
| **SF25 (Short Form - 25): 4**                                         |
|                                                                       |
| SF36 Total Score, Subscale scores and completion date are in the      |
| caDSR                                                                 |
|                                                                       |
| **CES-D (Center for Epidemiological Studies -Depression Scale): 3**   |
|                                                                       |
| Total Score currently in the caDSR                                    |
|                                                                       |
| Beck Depression: 2                                                    |
|                                                                       |
| Total Score currently in the caDSR (Beck Depression II)               |
|                                                                       |
| **NHANES (National Health and Nutrition Examination Survey): 3**      |
|                                                                       |
| BRFSS (Behavioral Risk Factor Surveillance System): 2                 |
|                                                                       |
| NHIS (National Health Interview Survey): 2                            |
|                                                                       |
| CPS (Current Population Survey - Census): 2                           |
+-----------------------------------------------------------------------+

Top of Form

  ------------------------------- ------------------------------------- -------------------------------
  **[Instruments]{.underline}**   **[Category/Question]{.underline}**   **[Respondents]{.underline}**

  SF8                             **Gen Health**                        1

  [SF12]{.mark}                   **[Gen Health, QOL]{.mark}**          [3]{.mark}

  [SF36]{.mark}                   **[Gen Health, QOL, Phys Fx]{.mark}** [4]{.mark}

  Health Utilities Index (HUI)    **Gen Health**                        1

  Karnofsky Performance           **Physical Disability and Handicap**  1

  ADL                             **Physical Disability and Handicap**  1

  Quality of Well Being Scale     **Phys. Fx**                          1
  (QWB)                                                                 

  Functional Assessment of Cancer **Phys. Fx**                          1
  Therapy (FACT) and its                                                
  associated cancer-specific                                            
  instruments                                                           

  Godin Leisure-Time Exercise     **Phys. Fx**                          1
  Questionnaire                                                         

  Physical Activity Questions     **Phys. Fx**                          1
  from the Framingham Study                                             

  EORTC QLQ-30                    **QOL**                               1

  Functional Adjustment to Cancer **QOL**                               1
  Therapy                                                               

  [Center for Epi                 **[Psych]{.mark}**                    [3]{.mark}
  Studies-Depression                                                    
  (CES-D)]{.mark}                                                       

  PHQ9                            **Psych**                             1

  Symptom Checklist Inventory     **Psych**                             1

  [Beck Depression]{.mark}        **[Psych]{.mark}**                    [2]{.mark}

  Profile of Mood States (POMS)   **Psych**                             1

  Block Modified FFQ              **Nutrition**                         1

  Diet Hx Questionnaire (Amy      **Nutrition**                         1
  Subar)                                                                

  FHCRC FFQ 24 hour recalls       **Nutrition**                         1

  Multifactor Screener            **Nutrition**                         1

  Five-Factor Screener            **Nutrition**                         1

  Fruit and Vegetable Screener    **Nutrition**                         1

  Diet Screener                   **Nutrition**                         1

  Diet History Questionnaire      **Nutrition**                         1

  Block Dietary Assessment        **Nutrition**                         1

  Willett Dietary Assessment      **Nutrition**                         1

  [NHANES]{.mark}                 **[National]{.mark}**                 [3]{.mark}

  [BRFSS]{.mark}                  **[National]{.mark}**                 [2]{.mark}

  [NHIS]{.mark}                   **[National]{.mark}**                 [2]{.mark}

  OPENS (Observing Protein and    **National**                          1
  Energy Nutrition Study)                                               

  CSFII (Continuing Survey of     **National**                          1
  Food Intakes of Individuals)                                          

  EATS (Eating at America\'s      **National**                          1
  Table Study)                                                          

  CHIS (California Health         **National**                          1
  Interview Survey)                                                     

  Colorectal Cancer Screening     **National**                          1
  Physician Survey                                                      

  Health Plan Colorectal Cancer   **National**                          1
  Screening Survey                                                      

  HINTS (Health Information       **National**                          1
  National Trends Survey)                                               

  NSDUH (National Surveys on Drug **National**                          1
  Use and Health)                                                       

  NAIS (National Adult            **National**                          1
  Immunization Survey)                                                  

  PCP Cancer Screening Survey     **National**                          1

  HEAL (Health, Eating, Activity  **National**                          1
  and Lifestyle Study)                                                  

  CPS-TUS (Tobacco Use Supplement **National**                          1
  to CPS)                                                               

  [Current Population Survey      **[National]{.mark}**                 [2]{.mark}
  (CPS)]{.mark}                                                         

  Breast Cancer Surveillance      **Other**                             1
  Consortium Surveys                                                    

  Lifestyle (smoking, exercise,   **Other**                             1
  diet)                                                                 

  Social support Symptoms         **Other**                             1

  Sexual Functioning              **Other**                             1

  Coping questionnaires           **Other**                             1

                                                                        
  ------------------------------- ------------------------------------- -------------------------------

Comments

1.  We also do a lot of assessments of health care experiences of cancer
    patients and survivors, although that may be beyond the scope of
    this group. It would include surveys such as the Patient Care
    Assessment Survey (PCAS) and the Ambulatory Care Experiences Survey
    (ACES). Also came across a web site of possible interest to your
    work: www.healthmeasurement.org Thanks for doing this!

2.  Breast Cancer Surveillance Consortium Surveys. They are available on
    the BCSC site at
    <http://breastscreening.cancer.gov/data/elements.html>