UNITED STATES DEPARTMENT OF EDUCATION

OFFICE OF SPECIAL EDUCATION AND REHABILITATIVE SERVICES

REHABILITATION SERVICES ADMINISTRATION

WASHINGTON, DC 20202‑2741

> [INFORMATION MEMORANDUM]{.underline}
>
> RSA‑IM‑98-04
>
> RSM‑0501
>
> DATE: 11/20/97

**ADDRESSEES:** State Vocational Rehabilitation Agencies (General)

State Vocational Rehabilitation Agencies (Blind)

#######  Statewide Independent Living Councils

Centers for Independent Living

Client Assistance Programs

RSA Senior Management Team

**SUBJECT:** Section 704 Annual Performance Report Analysis of Fiscal
Year 1996 Narrative Sections

Attached is the Independent Living Branch analysis of the narrative
sections of the Fiscal Year (FY) 1996 704 Annual Performance Reports.
The analysis includes excerpts from the 704 Part I Reports submitted
jointly by the Designated State Units, the Statewide Independent Living
Councils, and the 704 Part II Reports submitted by each Center for
Independent Living. There were a total of 295 reports received. The
Independent Living Programs provided services to over 138,172
individuals with significant disabilities in FY 1996. In addition, the
Centers for Independent Living responded to over 339,747 requests for
information and referral services.

If you wish more information, please contact Merri Pearson, Phone/TDD
202‑205‑8484.

Fredric K. Schroeder, Ph.D.

Commissioner

Attachment

**704 ANNUAL PERFORMANCE REPORT**

**INDEPENDENT LIVING PROGRAMS**

**NARRATIVE HIGHLIGHTS**

This document presents a few of the many exciting endeavors of the
programs supported by Title VII, Chapter 1 of the Rehabilitation Act of
1973; as amended in 1978. The following is a compilation of activities,
practices, and projects that other Centers for Independent Living,
Statewide Independent Living Councils (SILCs) or Designated State
Vocational Rehabilitation Units (DSUs) may find of interest and helpful
in the operation of their own programs.

For the most part, the FY 1996 704 Reports reflect the SILCs growing
maturity and acceptance as respected partners with the DSUs in the
planning, development, and operation of independent living programs in
their States. The impact of the changes wrought by the Rehabilitation
Act Amendments of 1992 on the lives of and opportunities for independent
living by individuals with significant disabilities is becoming
increasingly noticeable during Fiscal Year 1996.

The 704, Part II Reports are exemplary examples of openness and candor.
The Centers deliberately take a hard look at themselves in their
required self‑evaluation because they are aware that to find areas of
non‑compliance and correct them or include corrective actions in their
work plans for the next year will not endanger their continuation
funding. Accuracy and responsible reporting are further encouraged by
awareness that the facts in the report are subject to verification in
the event of an on‑site compliance review. Timely filing is ensured by
RSA and the States using the Reports as applications for continued
funding.

In addition to the IL services required to be provided by a center, most
CILs are already, or are steadily moving towards becoming, a vital
element of their respective communities through:

>  Over 66 thousand consumers received assistance in recreational
> support, which includes facilitating the opportunity and ability to
> participate in recreational activities.
>
>  Nearly 18 thousand children and youth received support through the
> CILs. This included active involvement with schools to provide peer
> counseling, role modeling, and skills training for children and youth
> in transition.
>
>  Joint endeavors with local government and employers to open and
> facilitate employment opportunitiesCincluding opportunity and
> facilities for retraining and upgrading of job skills, and competitive
> employment.
>
>  Interaction with local, State, and national legislators who are
> finding CILs a valuable source of information and a forum to explore
> issues important to people with significant disabilities, and acting
> as advocates in the litigation and legislative process. Over 99
> thousand consumers received legal and advocacy services.

A table of contents is attached to assist in finding areas of interest.
For readers unfamiliar with the acronyms used, the glossary from the 704
reports is also included following the Index.

**TABLE OF CONTENTS**

**Glossary of Terms4**

**Narrative Information from 704 Reports7**

\(1\) DSU ACTIVITIES**7**

\(2\) MONITORING

\(3\) PLANNING AND ADMINISTRATION**7**

\(4\) RESOURCE DEVELOPMENT**7**

\(5\) INDIVIDUAL ADVOCACY**8**

\(A\) Nursing Home Related Advocacy**8**

\(6\) SYSTEMS ADVOCACY**8**

\(7\) ACCESS AND ADA**10**

\(8\) COLLABORATION/NETWORKING**10**

\(9\) OUTREACH**11**

\(10\) CHILDREN AND YOUTH**12**

\(11\) UNSERVED AND UNDER SERVED**13**

\(12\) DIRECT SERVICES**13**

\(13\) EMPLOYMENT**14**

\(14\) TECHNOLOGY**14**

\(15\) TRAINING**14**

\(16\) LEGISLATIVE**15**

\(17\) INNOVATIVE other**16**

##### Appendix A National Demographics of Centers for Independent Living

704 PART I Data **17**

Appendix B A List of Centers Cited in this Report**22**

Appendix CA Current List of Federally Funded Centers for Independent
Living**26**

### GLOSSARY OF TERMS

**Act** The Rehabilitation Act of 1973, as amended

**ADA** The Americans with Disabilities Act

**CIL** A ACenter for Independent Living@ meeting the definition in 702
of the Act, and the standards in 725 of the Act.

**CIL program** The ACenters for Independent Living program@ funded
under part C,

Chapter 1 (Ch. 1) of Title VII of the Act (part C).

**Consumer** Any individual with a significant disability who is
eligible for IL services

Under 34 CFR 364.40(a) and is currently receiving or has been provided

with any IL services under the program other than information and

referral.

**Core Services** IL services defined in 7(29) of the Act - information
and referral, IL skills

training, peer counseling (including cross‑disability peer counseling),
and

individual and systems advocacy.

**CSR** A AConsumer Service Record@ maintained for an eligible consumer

receiving IL services and meeting the requirements of 34 CFR 364.53.

Where IL services are provided to the parent or guardian of a consumer,

the CSR is established for the consumer and services provided are

reflected in that CSR.

**DSU** The ADesignated State Unit, or Units@ identified under 101(a)(1)
of the

Act, to jointly with the Statewide Independent Living Council, develop

and sign the State plan for Ch. 1 of Title VII under 704 of the Act. The

term includes a State agency solely designated under State law to
provide

IL services to individuals who are blind. In such State, the State
agency

for the Blind may administer the provisions in the attachments to the
State

plan providing for services to individuals who are blind. In a A723
State@,

the DSU administering the CIL program is always the general agency.

**Earmarked** Funds appropriated by the State and expressly or clearly
identified as State Funds expenditures in the relevant fiscal year for
the sole purpose of funding the general operation of CILs meeting the
requirements of 702 and 725 of the Act.

**722 State** A State where RSA issues grants under part C directly to
eligible agencies

(CILs).

**723 State** A State where the DSU issues grants or assistance
contracts under part C

to eligible entities for the planning, establishment, and operation of
CILs.

**ILP** An AIndependent Living Plan@ for the provision of IL services
mutually

agreed upon by an appropriate staff member of a service provider and an

individual with significant disabilities.

**Minority** Alaskan Natives, American Indians, Asian Americans, Black
(African Americans), Hispanic Americans, Native Hawaiians, and Pacific

Islanders.

**Reporting**

**Year** The most recent Federal fiscal project year completed ‑ October
1 to September 30.

**RSA** The ARehabilitation Services Administration@ in the Department
of

Education, Office of Special Education and Rehabilitative Services.

#### Service Provider‑‑ 

> \(i\) A DSU which directly provides IL services to consumers; or
>
> \(ii\) A CIL; or
>
> \(iii\) An entity which:
>
> \(A\) provides IL services under a grant or contract; and
>
> \(B\) is delegated responsibility for the determination of eligibility
> for IL services.

**SILCs** The AStatewide Independent Living Council@ established in each
State as required

by 704 and 705 of the Act.

**SILS** The AState Independent Living Services program@ funded under
part B, Ch. 1 of Title VII of the Act.

**SPIL** The AState Plan for Independent Living,@ which governs the
State IL Services and

Centers for Independent Living programs and describes the services to be

provided under the IL Services for Older Individuals who are Blind
program.

**State** Wherever the term AState@ is used, it refers to the State in
its sovereign sense. For

purposes of Title VII, the DSU(s) and the SILC jointly represent the
State, except where otherwise noted.

**704 REPORTS - FISCAL YEAR 1996**

**INDEPENDENT LIVING SERVICES AND CENTERS FOR INDEPENDENT LIVING**

**[DSU Activities]{.underline}**

  ---- -------- ----------------------------------------------------------
  AL   SILC     Implementation of a rural center in Andalusia

  AS   AILC     Began quarterly newsletter publication/posted with
                Secretary of State\'s Office

  AZ   SPIL     Assigned full time liaison to the SILC

  CA   DRAIL    Utilized mediation as a means for ADA technical assistance

  FL   SILC     Provided \$100,000 to people with disabilities affected by
                hurricane Opal

  ID   SILC     Collaborated with Sociology and Economics Sciences
                Research Center at Washington State University to conduct
                statewide telephone study

  IN            Successful in obtaining a fifth CIL in state
  ---- -------- ----------------------------------------------------------

[Monitoring]{.underline}

+---+-------+----------------------------------------------------------+
| R | SILC  | Redesigned an efficient and timely procedure for         |
| I |       | gathering information necessary                          |
|   |       |                                                          |
|   |       | to effectively monitor State Plan                        |
+---+-------+----------------------------------------------------------+
| K |       | DSU and members of SILC conducted on-site reviews at     |
| Y |       | each CIL and made                                        |
|   |       |                                                          |
|   |       | recommendations re: improvement                          |
+---+-------+----------------------------------------------------------+

Planning and Administration

+---+-------+----------------------------------------------------------+
| O | SILC  | Facilitated 6 focus groups to assess needs, current      |
| R |       | resources, and possible ideas                            |
|   |       |                                                          |
|   |       | for expansion                                            |
+---+-------+----------------------------------------------------------+
| M | SILC  | The Agency compiles and distributes monthly IL reports   |
| D |       | to managers                                              |
|   |       |                                                          |
|   |       | for monitoring and communication purposes                |
+---+-------+----------------------------------------------------------+
| T | SAILS | Each Wed is \"Down Day\" and includes staff meetings and |
| X |       | in service training                                      |
|   |       |                                                          |
|   |       | Each staff member earns min of 12 hours a year in        |
|   |       | service training                                         |
+---+-------+----------------------------------------------------------+

[Resource Development]{.underline}

+---+---+------+----------------------------------------------------------+---+
| C | O |      | Established endowment fund administered by a community   |   |
| A | a |      | foundation                                               |   |
|   | k |      |                                                          |   |
|   | l |      |                                                          |   |
|   | a |      |                                                          |   |
|   | n |      |                                                          |   |
|   | d |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| F | S |      | Applied for small grants with area businesses resulting  |   |
| L | C |      | in one year lease of lift van for consumer               |   |
|   | C |      | transportation                                           |   |
|   | I |      |                                                          |   |
|   | L |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| I | E |      | Received county grant to establish HIV/AIDS Educational  |   |
| A | C |      | Resource Library                                         |   |
|   | R |      |                                                          |   |
|   | R |      | targeting people with disabilities                       |   |
|   | C |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| I | R |      | Purchasing building to house CIL - moved in July 5th     |   |
| L | A |      | (its nearly paid for!)                                   |   |
|   | M |      |                                                          |   |
|   | P |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| M | I |      | Successful at advocacy for ongoing county grant - over   |   |
| D | N |      | 30 consumers attended                                    |   |
|   | , |      |                                                          |   |
|   | I |      | and four presented, incl. one who wants to move from     |   |
|   | n |      | nursing home                                             |   |
|   | c |      |                                                          |   |
|   | . |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| M | A |      | Raised private funding from the scuba industry to        |   |
| E | l |      | continue operations following the end of a 3-yr RSA      |   |
|   | p |      | Recreation grant                                         |   |
|   | h |      |                                                          |   |
|   | a |      |                                                          |   |
|   | O |      |                                                          |   |
|   | n |      |                                                          |   |
|   | e |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| M | M |      | Successful in developing consumer access to alternative  |   |
| E | I |      | resources, like recycling equipment -There was an        |   |
|   | L |      | estimated \$25-30,000 of equipment was recycled last     |   |
|   | S |      | year                                                     |   |
+---+---+------+----------------------------------------------------------+---+
| M | C |      | Tripled fee for service income within center - also      |   |
| N | I |      | obtaining a fee for service with local VR department.    |   |
|   | L |      |                                                          |   |
|   | M |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| M | S |      | Summit secured \$2,000 grant to enhance capacity to      |   |
| T | I |      | conduct ADA implementation activities including training |   |
|   | L |      | & equipment                                              |   |
|   | C |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| N | F |      | Offer Representative payeeships to a limited number of   |   |
| D | R |      | consumers                                                |   |
|   | C |      |                                                          |   |
|   | I |      |                                                          |   |
|   | L |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| N | A |      | Received over \$200,000 for Home Health Services (AIDE   |   |
| J | D |      | program), which is currently serving over 80 persons     |   |
|   | I |      |                                                          |   |
|   | A |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| O | O |      | Obtained funding from 13 successful proposals submitted  |   |
| K | I |      | to councils, foundations, and other agencies             |   |
|   | L |      |                                                          |   |
|   | R |      |                                                          |   |
|   | C |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| P | C |      | Obtained grant from General Electric Foundation forming  |   |
| A | R |      | a collaborative effort between GE and CIL to promote     |   |
|   | I |      | independent living movement                              |   |
+---+---+------+----------------------------------------------------------+---+
| T | M |      | Held golf tournament in July to increase program revenue |   |
| N | C |      |                                                          |   |
|   | I |      |                                                          |   |
|   | L |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| T | S |      | Offers Sign Language Instruction as part of fees for     |   |
| X | A |      | services to different groups in the community            |   |
|   | I |      |                                                          |   |
|   | L |      |                                                          |   |
|   | S |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| U | O |      | Worked with Statewide Vista program to ensure            |   |
| T | F |      | continuation of volunteers for                           |   |
|   | I |      |                                                          |   |
|   | L |      | all Centers, including Americorp VISTA, beginning in     |   |
|   |   |      | 1997                                                     |   |
+---+---+------+----------------------------------------------------------+---+
| V | V |      | Board voted to create \"Access Solutions\". a consumer   |   |
| T | C |      | directed for-profit subsidiary organization              |   |
|   | I |      |                                                          |   |
|   | L |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| V | V |      | Obtained a 3-yr \$375,000 field initiated research grant |   |
| T | C |      | to develop new technology for constructing modular       |   |
|   | I |      | access ramps from recycled plastic                       |   |
|   | L |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
|   |   |      | **[A. Nursing Home Related Advocacy]{.underline}**       |   |
+---+---+------+----------------------------------------------------------+---+
| C |   | IRCC | Assisted 3 people in moving out from institutions        |   |
| A |   |      |                                                          |   |
+---+---+------+----------------------------------------------------------+---+
| F |   | S    | Facilitated investigation that discovered 355 consumers  |   |
| L |   | FADA | were placed inappropriately                              |   |
|   |   |      |                                                          |   |
|   |   |      | in institutions                                          |   |
+---+---+------+----------------------------------------------------------+---+
| K |   | RCIL | Secured funding to assist at least 11 persons to move    |   |
| S |   |      | from institutional settings                              |   |
|   |   |      |                                                          |   |
|   |   |      | using loan programs to consumers                         |   |
+---+---+------+----------------------------------------------------------+---+
| M |   | NILP | Nine consumers were assisted in their move from          |   |
| A |   |      | institutions to more independent                         |   |
|   |   |      |                                                          |   |
|   |   |      | living situations                                        |   |
+---+---+------+----------------------------------------------------------+---+
| M |   | A    | Obtained Robert Wood Johnson (RWJ) Foundation approval   |   |
| E |   | lpha | and support to move                                      |   |
|   |   |      |                                                          |   |
|   |   | One  | 40 people out of nursing homes and into the community    |   |
+---+---+------+----------------------------------------------------------+---+
| M |   | LIFE | Empowered over 20 consumers to stay out of, or leave,    |   |
| S |   |      | nursing homes or other                                   |   |
|   |   |      |                                                          |   |
|   |   |      | institutional settings                                   |   |
+---+---+------+----------------------------------------------------------+---+
| N |   | DCIL | Assisted six individuals with disabilities to leave      |   |
| D |   |      | nursing homes and move into                              |   |
|   |   |      |                                                          |   |
|   |   |      | independent living situations                            |   |
+---+---+------+----------------------------------------------------------+---+
| N |   | C    | Assisted one man in purchasing home, and one to live in  |   |
| Y |   | DCIL | own apt., and successfully                               |   |
|   |   |      |                                                          |   |
|   |   |      | brought a man home to family from nursing home with      |   |
|   |   |      | community supports                                       |   |
+---+---+------+----------------------------------------------------------+---+
| O |   | AR   | Do weekly outreach to nursing homes, including rural     |   |
| K |   |      | institutions - assisted 9                                |   |
|   |   |      |                                                          |   |
|   |   |      | individuals in moving from nursing homes to community    |   |
+---+---+------+----------------------------------------------------------+---+
| P |   | CIL  | Host weekly support groups for people who moved from     |   |
| A |   | SWPA | nursing homes into the                                   |   |
|   |   |      |                                                          |   |
|   |   |      | community, who are preparing to move, and who are        |   |
|   |   |      | exploring a move - currently                             |   |
|   |   |      |                                                          |   |
|   |   |      | have thirty-one participants                             |   |
+---+---+------+----------------------------------------------------------+---+
| R |   | O    | Worked w/ 324 local public entities, businesses and      |   |
| I |   | SCIL | human service agencies                                   |   |
|   |   |      |                                                          |   |
|   |   |      | to assist consumers in leaving of nursing homes and      |   |
|   |   |      | moving toward community based                            |   |
|   |   |      |                                                          |   |
|   |   |      | living situations                                        |   |
+---+---+------+----------------------------------------------------------+---+
| R |   | PARI | Assisted 1 consumer to move from state institution to    |   |
| I |   |      | own apartment                                            |   |
+---+---+------+----------------------------------------------------------+---+
| T |   | MCIL | Assisted 5 consumers in moving out and to Colorado (TN   |   |
| N |   |      | does not offer PAS to its                                |   |
|   |   |      |                                                          |   |
|   |   |      | citizens) - 5 more are in preparation stages working     |   |
|   |   |      | w/IL specialist                                          |   |
+---+---+------+----------------------------------------------------------+---+
| T |   | T    | Provided IL services to 15 consumers in local county     |   |
| N |   | SRAC | nursing home, including the                              |   |
|   |   |      |                                                          |   |
|   |   |      | provision of wheel chair to move one resident out of     |   |
|   |   |      | nursing home                                             |   |
+---+---+------+----------------------------------------------------------+---+
| T |   | A    | Provided training to staff of 3 nursing homes on IL      |   |
| X |   | RSAT | Philosophy                                               |   |
+---+---+------+----------------------------------------------------------+---+
| T |   | HCIL | \"Nursing Home Busters\" advocacy team continued         |   |
| X |   |      | efforts, facilitating 2 consumers                        |   |
|   |   |      |                                                          |   |
|   |   |      | moving back to their communities and 5 others in         |   |
|   |   |      | preparation to leave                                     |   |
+---+---+------+----------------------------------------------------------+---+
| U |   | A    | Regular visits are made to the 6 local nursing homes to  |   |
| T |   | R-E  | see if IL services or assistive                          |   |
|   |   |      |                                                          |   |
|   |   |      | equipment are needed                                     |   |
+---+---+------+----------------------------------------------------------+---+
| U |   | UILC | Facilitated 24 consumers moving from care centers or     |   |
| T |   |      | other dependent situations into                          |   |
|   |   |      |                                                          |   |
|   |   |      | community living situations                              |   |
+---+---+------+----------------------------------------------------------+---+
| W |   | CI   | Contracted w/ 4 providers for personal care for 68       |   |
| I |   | LWWI | consumers in 28 different                                |   |
|   |   |      |                                                          |   |
|   |   |      | residences - and provides IL training to care attendants |   |
|   |   |      | and supervisors                                          |   |
+---+---+------+----------------------------------------------------------+---+
| W |   | IF   | Provided assistance to 40 consumers at risk of nursing   |   |
| I |   |      | home placement                                           |   |
|   |   |      |                                                          |   |
|   |   |      | when WI imposed Title XIX personal care caps             |   |
+---+---+------+----------------------------------------------------------+---+

Systems Advocacy

  ---- --------- -----------------------------------------------------------
  AK   SAIL      Established database of advocacy efforts

  AL   Mobile    Center staff member attends city meetings to provide
                 perspective of disabled

  AZ   ABLE      Employable Program is successful in obtaining competitive,
                 community based employment. This is facilitated using a
                 temporary employment Afoot in the door@ approach. People
                 are placed with companies as temporary employees, and then
                 supported with IL services. This opens the door to more
                 permanent situations

  CA   SJILC     DRAIL working with forestry to develop universally
                 accessible trails

  CO   Ft.       Collaborated and promoted implementation of audible traffic
       Collins   signals to provide accessibility to area

  KS   CFI       Will manage PD (physical disability) Waiver program,
                 supporting Medicaid Home and Community Based Services - to
                 insure consumer choice and control

  MA   CORD      Began using the MA Housing Registry and established
                 national network that successfully advocated for
                 \$50,000,000 in Section 8 vouchers

  MA   STAVR     MA Rehab Comm. made emergency housing funds avail to all
                 Centers, STAVR facilitates use and awareness of these funds

  MI   GRCIL     Established a grassroots advocacy network in the county
                 that has approx. 50 members, workshops and legislative
                 dialogue

  MT   LIFTT     Developed self advocacy program for people with
                 developmental disabilities, and made state presentation at
                 service providers mtg

  NC   PAL       Met with state Department of Social Services Director to
                 insure that financial support for personal assistance
                 budget would be provided. (This saved it from being cut and
                 increased amount of support!)

  WA   CCDKC     Sponsored a \"Representative Phone in Day\" in which 5
                 state reps, 3 county council members, 3 state senators and
                 the governor took calls about disability issues

  WI   ATI       Formed new grass roots coalition of consumers of the mental
                 health system
  ---- --------- -----------------------------------------------------------

[Access and ADA]{.underline}

  ---- -------- -------------------------------------------------------- --
  AK   ACCESS   Hosted a statewide telephone conference re: ADA with     
                over 120 participants                                    

  MA   CLW      Held 12 community focus groups to identify service needs 
                and available resources - along with identifying         
                barriers preventing full integration                     

  NY   TRCIL    Sponsored ADA Information booth at the Columbia Co Fair  
                for five days - more than 150 people obtained            
                information                                              

  TX   ARSAT    Provided training on ADA and accessibility to 47         
                organizations (no fees involved)                         

  WA   ILS      Supplied technical assistance to the City of Ellensberg  
                for the printing of tourist brochures that identify ADA  
                compliance or non-compliance of businesses.              
  ---- -------- -------------------------------------------------------- --

Collaboration and Networking

  ---- ------- ------------------------------------------------------------
  ID   EICI    Working w/ CHOICE (Creating Housing Opportunities,
               Integration and Community Empowerment) assisting 16
               consumers in purchasing homes

  MT   MILP    Participates in the Senior Companion program - Seven seniors
               have been matched with 18 consumers

  NC   PABIL   2- Day ADA training w/ Disability Business Technical
               Assistance Center - forming relationships with the
               Developmental Disabilities Council

  NJ   SILC    Supported the efforts of the Developmental Disabilities
               Council in its 1st statewide Disabilities Convention (over
               1,000 attended!)

  NJ   TLC     Participates in Developmental Disabilities Council (DDC)
               Monday Morning Project that identifies needed changes in
               human services throughout several counties

  NV   SILC    Facilitated conference \"Medicaid and Managed Care\" to
               prepare consumers and policy makers for upcoming state
               Legislative session

  SD   SILC    Facilitating statewide needs assessment w/ Governor\'s DDC,
               the Board of VR and the Board of Service to the Blind and
               Visually Impaired

  TN   ILCA    Conducted \"Futures Search\" Conference, resulting in
               statewide collaboration of CILs w/SILC to write letter of
               intent to Robert Wood Johnson Foundation

  TX   SILC    Worked with the Regional Rehabilitation Continuing Education
               Program to develop SILC training track at the Region VI
               Annual IL Conference in Dallas

  UT   OFIL    Coordinated with other UT CILS and obtained an
               AmeriCorps\*VISTA project
  ---- ------- ------------------------------------------------------------

[Outreach]{.underline}

  ---- ---------- --------------------------------------------------------
  CA   DMCD       Agency reps were interviewed on 7 radio or television
                  programs, including a segment on the \"Operah Winfery
                  Show\"

  CA   S. Rosa    CRI co-sponsored a drop in clinic for consumers who were
                  losing drug/alcohol benefits

  CA   TASCD      Center advocates for increased access at county jail
                  facilities for prisoners and visitors w/disabilities

  FL   CILCF      Employ Hispanic deaf woman who teaches class for foreign
                  deaf consumers

  FL   SWFIL      Obtained national toll free number to enable consumers
                  to reach center

  LA   NH         Conducted 15 half hour radio broadcasts on a local
                  station featuring a different aspect of independent
                  living at each broadcast

  LA   SLIC, Inc. Produce a monthly television show dealing with issues of
                  independent living

  MN   SILC       Contract between DSU and Metropolitan CIL to provide
                  statewide access to DIMENET and the toll free 800 phone
                  number

  NY   WCILC      Minority Outreach Integration Project served over 90
                  consumers - Benefits, VESID, Advocacy, I & R, Peer
                  Advice

  TX   DARE       \"On a Roll\" radio talk show about life with disability
                  that airs on a mainstream radio station KTSM on Sun
                  mornings 8:30-9:00

  TX   DARE       Peer counselors make weekly rounds to visit persons
                  recently disabled at 3 area hospitals

  VA   AIC        Community Coordinated writes weekly column for weekly
                  local newspapers in rural counties of service area

  VI   VIAIL      Working w/ University Affiliated Program to establish
                  and implement accessible programming via technology
  ---- ---------- --------------------------------------------------------

[Children and Youth]{.underline}

  ---- -------- --------- ------------------------------------------------------ --
  AR            SAILS     Visited all local junior and senior high schools re:   
                          disability education                                   

  AZ   DIRECT             Worked with Expanding Horizons to facilitate course at 
                          community college and sponsored a monthly teen dance   

  CA   Fresno             Center coordinated first Fresno Youth Leadership Forum 
                          for high school students with disabilities             

  FL   SCCIL              Obtained NASA grant for High School/High Tech program- 
                          resulted in outreach activities to youth in Brevard    
                          Co., incl. employment opportunities!                   

  MA   ILCS               Cross training activities with the Educational         
                          Consortium via the Educational Consortium              
                          Collaborative Project                                  

  MD   MCIL               Had a booth at University of MD Career Day and spoke   
                          at Towson State University to students studying        
                          Special Education Curricula                            

  MI   CIL-MM             Established Empowerment program with county high       
                          schools to promote IL philosophy in curriculum etc.    

  MI   GLCIL              CLADS (Comp. Leadership & Development Series)-summer   
                          work experience program with local corporations-21     
                          students benefitted this year                          

  MN   CMCCI              Provided 45 transition skill groups via cooperative    
                          agreements with schools and center\'s transition       
                          specialist                                             

  MN   SWCIL              Co-sponsors Camden CTIC Work Skills Day - an opp for   
                          youth with disabilities to fill out applications and   
                          do job interviews (65 participated)                    

  NJ   HIP                Serves as internship opportunity for students enrolled 
                          in Ramapo College\'s Social Work program               

  NJ   HIPHC              Worked with transition in education committee closely  
                          with students who were transitioning out of special    
                          education programs                                     

  NY   AIM                Held \"Looking Ahead\" conference attended by 200 high 
                          school students as a collaborative effort at Corning   
                          Community College                                      

  NY   NAILS              Provided liaison services between Seneca Daycare       
                          Program and Western New York Developmental             
                          Disabilities Services office                           

  OH   SIL, Inc           Through a Cleveland City Grant, SIL implemented a drug 
                          alcohol awareness module to 70 students with           
                          disabilities                                           

  OR   ILR                \"Take Charge\" program (collaborative effort w/ OHSU) 
                          pairs mentors with high school students that meet      
                          formally on a monthly basis                            

  SC   DAC                The Rock Hill Office developed a support group with    
                          Winthrop College for training re: IL Philosophy        

  TN   MCIL               Operates the \"PALS\" Partners Accessing Life program, 
                          which hosts many social and recreational activities -  
                          many consumers and staff facilitate these activities   

  TX   ARCIL              Received grant from Corp for National Service in       
                          Disability to promote inclusion of persons with        
                          disabilities in Americorp Service                      

  WV   MSCIL              An estimated 3,085 school children in 30 schools       
                          learned about disabilities and ADA through training    
                          and presentations                                      
  ---- -------- --------- ------------------------------------------------------ --

[Unserved and Underserved]{.underline}

  ---- -------- ---------------------------------------------------------
  MA   NILP     Wrote partnership grant with CentroPanamericano,
                Cambodian Mutual Assistance Association, and Elizabeth
                Seton Asian Center

  NC   SILC     Center hired two Native American Contractual Teachers
                hired to provide outreach to area tribes, one is also a
                RN

  NY   BILS     IL Coordinator spoke at Student Fair at NY School for the
                Deaf about IL Philosophy and handed out materials

  WA   CCD      Co-facilitated all day training for homeless shelter
                staff

  WY   WILR     Coordinated with Casper Area Foundation to provide
                services to over 40 Hard of Hearing and Deaf individuals
  ---- -------- ---------------------------------------------------------

[Direct Services]{.underline}

+---+--------+---------------------------------------------------------+
| C | Be     | Personal attendant services screens and places 90       |
| A | rkeley | attendants                                              |
+---+--------+---------------------------------------------------------+
| C | ILCSC  | Transition program/housing as a commitment to the       |
| A |        | consumer and family                                     |
+---+--------+---------------------------------------------------------+
| F | SRI    | First time home buyers program working with HOME        |
| L |        | Program to identify buyers, train consumers, and assist |
|   |        | with the loan process                                   |
+---+--------+---------------------------------------------------------+
| I | AI     | Facilitates Equipment Loan Program that assists people  |
| D |        | in obtaining assistive equipment that enables them to   |
|   |        | remain in their own home                                |
+---+--------+---------------------------------------------------------+
| I | DACNW  | DAC provides personal assistant management training on  |
| D |        | request                                                 |
+---+--------+---------------------------------------------------------+
| I | ECCIL  | Collaboration with mental health agency to form family  |
| N |        | peer support groups - about 25 families participated    |
+---+--------+---------------------------------------------------------+
| L | RIL    | Provided Emergency Home repair and modifications to 1st |
| A |        | time home buyers through a HOPE 3 Grant                 |
+---+--------+---------------------------------------------------------+
| M | Alpha  | This center won the first ever competitive three-yr     |
| E |        | contract to cont. administering the Home-based care     |
|   | One    | program                                                 |
+---+--------+---------------------------------------------------------+
| M | SILC   | Began a communications newsletter \"From the            |
| I |        | Director\'s Desk\" that provides info on council        |
|   |        | activities to members, ex-officios, and il partners     |
+---+--------+---------------------------------------------------------+
| N | CCILC  | Working w/city have obtained accessible and affordable  |
| J |        | housing for 35 consumers                                |
+---+--------+---------------------------------------------------------+
| N | ATI    | The Mental Health Peer Advocacy program provides IL     |
| Y |        | services to individuals and families affected by mental |
|   |        | health disabilities                                     |
+---+--------+---------------------------------------------------------+
| O | ILR    | Maintains an attendant registry - including criminal    |
| R |        | background checks                                       |
+---+--------+---------------------------------------------------------+
| P | C      | Maintains and updates a housing database listing        |
| A | ILSCPA | available and accessible housing in seven counties      |
+---+--------+---------------------------------------------------------+
| P | MAVI   | Created register of supportive services and agencies    |
| R |        | that assists consumers in coordinating services         |
+---+--------+---------------------------------------------------------+

[Employment]{.underline}

  ---- ---------- ---------------------------------------------------------
  FL   Suncoast   Provided opportunity for community work in cooperation
                  w/Salvation Army and Department of Justice

  KY   CAL        Eighty-seven persons were hired into competitive
                  employment, with a 40% increase in earnings after job
                  placement
  ---- ---------- ---------------------------------------------------------

[Technology]{.underline}

  ---- -------- ----------------------------------------------------------
  CA   CRS      Incorporating NexTalk and the Internet to provide
                accessible services to deaf and hard of hearing consumers

  CO   CI       Independence\'s Assistive Technology Resource Center
                allows people on the western slope of CO to access one
                location for assistive tech needs

  GA   LIFE     Implemented software (Creative Solutions) to assist in
                record keeping

  KY   IP       Coordinates with the University of KY Interdisciplinary
                Human Development Institute for technology and personnel
                (training too!)

  NH   GSILF    Initiated and maintained 1st disability related bulletin
                board in NH reaching over 1,300 users, operating 24 hrs a
                day - 7 days a week

  UT   UILC     2 Internet web sites are maintained, one to share about
                CIL and the other to share ADA information and other ADA
                links

  WA   CCD      Introduced IL services to a local Internet provider and
                was offered free Internet access for 1 year

  WA   CCDSC    Established home page for the Internet that has drawn over
                750 responses
  ---- -------- ----------------------------------------------------------

[Training]{.underline}

  ----- ---------- --------------------------------------------------------
  AR    N Horizons Weekly teleconference for training with staff was
                   established

  CO    Denver     Developed community resource file with timely topics for
                   consumers to access

  ID    LINC       \"Leadership for the 21st Century\" statewide conference
                   develop grassroots leadership, scholarships were
                   available

  MD    MCIL       Obtained Baltimore City money to start a housing
                   counseling program - currently are assisting over 20
                   consumers in various phases of home ownership

  MN    SMCIL      Video taped PAS training available to consumers

  NH    GSILF      Improved independence of 426 severely disabled people
                   through training in benefit acquisition for Medicaid,
                   Social Security, and VR

  NH    SILC       Conducts ongoing classes in American Sign Language, peer
                   support meetings, & serves as a demonstration site for
                   Granite State Empower and Light

  NJ    RIL        Developed continuing education course for police academy
                   dealing with disability related issues for county police

  NV    NNCIL      Provided technical assistance to 38 businesses and
                   agencies

  VT    VCIL       Ed Roberts Memorial Library dedicated - offers materials
                   in addition to accessible Internet access.
  ----- ---------- --------------------------------------------------------

[Legislative]{.underline}

  ----- --------- --------------------------------------------------------
  AK    SILC      Met w/AK Housing Finance Corp. & were successful at
                  getting AHFC to include questions on accessible housing
                  on statewide survey of rental units

  AL    BILC      Formed grassroots transit advocacy organization (CTC) -
                  a watchdog org.

  AR    ILRC      Successfully prevented medicaid PAS waiver from
                  abandonment - currently in process - and proposed
                  increase from 100- 200 consumer slots

  CO    Durango   Held 2 political forums w/ federal/state/local
                  representatives with southwest CO Mental Health

  IL    WGCIL     Filed lawsuit against developer (Fair Housing Amend
                  Act) - the 3rd case related to new construction in
                  nation, and 1st in the mid-west

  KS    SKIL      Advocated for the implementation of \"Lemon Law\" which
                  allows up to 1 yr refund for assistive technology
                  products and services that don\'t work

  MD    MCIL      Became part of a class action suit that successfully
                  forced MD Motor Vehicle Administration to drop the extra
                  fee for handicapped parking permits

  MO    DCAII     Relocated poll site to an accessible site so consumers
                  could participate in democratic process

  NJ    HIPHC     Worked with Community Health Law Project to bring about
                  a total of 200 additional accessible and adaptable
                  housing units being constructed

  NY    NRCIL     Held a letter writing day resulting in 1,200 letters
                  being mailed to the governor, state representatives,
                  chairs, and county legislators

  OH    SILC      Generated first draft of Ohio CASA Bill in late FFY 1996

  OK    PI        Participated in the passage of the Defective Assistive
                  Technology Law and the Refueling Act

  PA    LR        Filed lawsuit to ensures convenience store accessibility
                  in more than 100 stores throughout Philadelphia

  RI    OSCIL     OSCIL is a designated Voter Registration Agency and
                  assisted 40 individuals to become registered voters

  VA    ECNVA     Facilitated General Assembly joint resolution directing
                  state Medicaid agency to implement a consumer-directed
                  personal assistance services option for the 1st time in
                  the Commonwealth of VA

  VT    VCIL      Personal Assistance Task Force contributed to passage of
                  ACT 160, redirecting \$19,000,000 in Medicaid from
                  nursing homes to community based services over next 4
                  years

  VT    VCIL      Registered over 100 consumers as voters

  WA    CI        Facilitated and participated in a state-wide closed
                  circuit TV broadcast to address issues with state
                  legislators and one congressional staffer
  ----- --------- --------------------------------------------------------

Innovative/Other

  ----- -------- ---------------------------------------------------------
  IL    ALC      Received Joyce Foundation grant to plan consumer based
                 programming for people who become disabled due to gun
                 violence

  LA    BRC      Has internship programs established with Southern
                 University and Louisiana State University

  MA    ADLIB    Maintains a 24 hour a day - 7 days a week Drop in Center
                 \"Our Place\" staffed by 100% consumers

  MA    ILCS     Project \"Access to Health\", that assists consumers in
                 their efforts to maintain good health and prevent
                 secondary conditions

  ND    IRCIL    Has internship, volunteer, and internship opportunities
                 coordinated with U of ND

  NY    ARISE    Operate an Equipment Referral Service matching consumers
                 with available equipment

  NY    CIDNY    Developed program for identifying accessible mammography
                 facilities for women with physical and sensory
                 disabilities

  NY    HILC     Presented \"Women, Violence and Disability\" at the
                 National Conf for the Prevention of Violence against
                 women

  OH    ILCNCO   Forms cooperative agreements between agencies in
                 communities to promote outreach efforts

  OH    ILO      Development of Community Access Directory to be available
                 24-hr/day on United Way Info Help Line, and it is
                 available on disk

  OH    TILC     Staff attended school board meetings, resulting in
                 focused efforts on ADA/504 issues

  RI    OSCIL    Worked with fire dept to provide 47 smoke detectors for
                 homes with deaf and hard or hearing consumers

  RI    PARI     worked collaboratively with 25 other disability related
                 agencies to establish statewide adaptive equipment
                 recycling center

  VA    BRILC    VATSC grant recipient to allow the construction of
                 accessible house at home show, over 11,000 people
                 attended

  WI    AI       Provides paid internships for people with disabilities
                 through the Leadership Development Training Program
  ----- -------- ---------------------------------------------------------

**Appendix A**

National Demographics of CILS

Part I Summary Report

(Sub Parts I & II)

**[RESOURCES]{.underline}**

**A.Federal Funds**

**1.CH. 1, Part B, Title VII [\$27,817,659]{.underline}**

**2.CH. 1, Part C, Title VII (723 States) [\$44,951,537]{.underline}**

**3.CH. 2, Title VII [\$6,725,061]{.underline}**

**4.Other Federal Funds [\$ 31,382,123]{.underline}**

**B.Other Government Funds**

**5.State Government Funds [\$ 86,720,811]{.underline}**

**6.Local Government Funds [\$ 10,423,078]{.underline}**

**C.Private Resources**

**7.Foundation, Corporation, or Trust Grants [\$6,490,253]{.underline}**

**8.Donations from Individuals [\$3,286,074]{.underline}**

**9.Memberships [\$ 290,102]{.underline}**

**10.Investment Income, Endowment(s) [\$1,170,426]{.underline}**

**11.Fees for Service [\$40,109,055]{.underline}**

**12.Other Resources (in-kind items, etc.; fair market value)
[\$7,326,314]{.underline}**

**D.Total Resources (sum of lines 1-12) [\$289,126,254]{.underline}**

**E.Amount of Total Resources that Pass Through to Consumers
[\$67,127,510]{.underline}**

**F.Net Operating Resources (line \>D= minus line \>E=)
[\$184,494,457]{.underline}**

Independent Living Staff - States and Centers - FY 1996

  ---------------------- ------------ ----------------- -----------------
  **SILS/CIL PROGRAM**   **TOTAL      **PERSONS WITH    **NUMBER OF
                         FTE**        DISABILITIES**    PERSONS WHO ARE
                                                        MINORITY**

  \(a\) Decision Making  **1,152**    **790**           **202**
  Staff                                                 

  \(b\) Other Staff      **3,020**    **1,840**         **751**
  ---------------------- ------------ ----------------- -----------------

Consumer Achievements - CILs - FY 1996

  --------------------------------------------- ------------------- ------
  **Number of individuals to whom an offer was  **27,394**          
  made to develop an ILP but who waived the                         
  offer:**                                                          

  **Number of individuals with whom an ILP was  **54,589**          
  developed during the year:**                                      
  --------------------------------------------- ------------------- ------

**Consumer Goals and Objectives Established and Achieved**

  ----------------------- ----------------------- -----------------------
  **Objectives/Goals**    **Total Goals Set**     **Total Goals Met**

  \(a\) Self Care         62,248                  47,186

  \(b\) Communication     38,164                  25,443

  \(c\) Mobility          20,654                  13,983

  \(d\) Residential       29,691                  16,068

  \(e\) Educational       31,083                  24,447

  \(f\) Vocational        22,234                  13,112

  \(g\) Other             42,344                  25,746
  ----------------------- ----------------------- -----------------------

**Demographic Information**

  ----------------------------------- -----------------------------------
  **[VI - AGE]{.underline}**          

  \(A\) Under 6                       **1,589**

  \(B\) Age 6 - 17                    **6,392**

  \(C\) Age 18 - 22                   **10,041**

  \(D\) Age 23-54                     **75,217**

  \(E\) Age 55 & Over                 **37,629**

  **[VII - Gender]{.underline}**      

  \(A\) Female                        **69,325**

  \(B\) Male                          **63,686**

  **[VIII -                           
  Race/Ethnicity]{.underline}**       

  \(A\) White (non-Hispanic)          **85,672**

  \(B\) Black (non-Hispanic)          **23,805**

  \(C\) American Indian or Alaskan    **2,682**
  Native (Includes Native Hawaiian)   

  \(D\) Asian or Pacific Islander     **2,248**

  \(E\) Hispanic                      **13,991**
  ----------------------------------- -----------------------------------

  ----------------------------------- -----------------------------------
  **[IX - Disability]{.underline}**   

  \(A\) Cognitive                     **13,244**

  \(B\) Mental                        **12,388**

  \(C\) Physical                      **60,153**

  \(D\) Sensory                       **24,622**

  \(E\) Multiple Disability           **27,506**

  **[X - Living                       
  Arrangements]{.underline}**         

  \(A\) Institution                   **4,659**

  \(B\) Dependent w/Family or Friends **31,139**

  \(C\) Assisted Living               **10,511**

  \(D\) Independent Living            **48,671**

  \(E\) Other                         **10,324**

                                      
  ----------------------------------- -----------------------------------

**NUMBERS AND TYPES OF INDIVIDUALS WITH SIGNIFICANT DISABILITIES
RECEIVING INDEPENDENT LIVING SERVICES**

(Sub Part IB, II-F)

  --------------------------------------------- -------------------------
  **[I - Consumers Served During                
  Year]{.underline}**                           

  \(A\) CSRs Carried from Previous FY           **72,026**

  \(B\) CSRs started since Oct. 1 of Reporting  **65,317**
  Year                                          

  \(C\) Total Consumers Served                  **138,172**

  **[II - Consumers Inactive @ Sept.            
  30]{.underline}**                             

  \(A\) Moved                                   **2,350**

  \(B\) Withdrew                                **4,932**

  \(C\) Died                                    **1,348**

  \(D\) Inactive Because Goals Met              **23,522**

  \(E\) Total                                   **6,718**

  **[III - Consumers (CSRs) Active @ Sept.      
  30]{.underline}**                             

  ( (c) minus II (f))                           **90,877**

  **[IV - Time Consumer (CSR)                   
  Active]{.underline}**                         

  \(A\) Less than 12 months                     **52,608**

  \(B\) 12 months - 2 years                     **31,938**

  \(C\) 2 years - 5 years                       **24,242**

  \(D\) Over 5 years                            **9,635**

  \(E\) Total                                   **112,014**
  --------------------------------------------- -------------------------

**TYPES OF SERVICES PROVIDED AND THE NUMBER OF INDIVIDUALS WITH
SIGNIFICANT DISABILITIES RECEIVING EACH TYPE OF SERVICE**

(\'704 Report, Sub parts I-C, II-G)

**I - [Community Services (in hours)]{.underline}**

\(a\) Information and referral [256,705]{.underline}

\(b\) Community and systems advocacy [213,946]{.underline}

\(c\) Outreach [131,769]{.underline}

\(d\) Publications [88,295]{.underline}

\(e\) Community education [143,455]{.underline}

\(f\) Maintaining registries [239,713]{.underline}

\(g\) Other [231,681]{.underline}

**II- [Individual services (number of individuals receiving each
service)]{.underline}**

\(a\) Advocacy/legal services [99,609]{.underline}

\(b\) Community and systems advocacy [32,983]{.underline}

\(c\) Outreach [4,785]{.underline}

\(d\) Communication services [34,733]{.underline}

\(e\) Counseling and related services [24,213]{.underline}

\(f\) Family services [7,691]{.underline}

\(g\) Housing and shelter services [49,678]{.underline}

\(h\) Information and referral [339,747]{.underline}

\(i\) Independent living skills training and life skills training

and and services [54,143]{.underline}

\(j\) Mental restoration [1,213]{.underline}

\(k\) Mobility training [8,996]{.underline}

\(l\) Peer counseling (including

cross-disability peer counseling) [54,886]{.underline}

\(m\) Personal assistance services, including

attendant care and the training of

personnel providing such services [34,429]{.underline}

\(n\) Physical rehabilitation [3,042]{.underline}

\(o\) Preventative services [8,687]{.underline}

\(p\) Prostheses and other appliances [7,409]{.underline}

\(q\) Recreational services [61,703]{.underline}

\(r\) Rehabilitation technology [6,891]{.underline}

\(s\) Therapeutic treatment [2,722]{.underline}

\(t\) Transportation services [33,590]{.underline}

\(v\) Youth services [8,029]{.underline}

\(w\) Vocational services [14,863]{.underline}

\(x\) Other [68,386]{.underline}