been diagnosed with juvenile hd, she lives with me Question From Joy ( Aged 61) Dear Joy, it is extremely sad that your granddaughter has been diagnosed so young, and she will certainly need a lot of help. I suggest that you start with whoever made the diagnosis -- was it a paediatric neurologist, and was it in a children's hospital? If so you can ask if there is a social worker you could speak with, who could help you make a plan for your daughter's care. You could also contact the HD Association in your state and ask what services are available for you and your family. A children's hospital or HD service should be able to connect you with a team of professionals who can help at various stages, such as a speech pathologist, dietitian, physiotherapist and occupational therapist. Your granddaughter's neurologist should also be able to prescribe various medications that can help with some of the symptoms. You can also use the HD Australia forum -- www.hdaustralia.org - to learn from other families who have dealt with juvenile HD. There is also a website based in England that might provide some good information and support -- www.jhdfamilies.co.uk -- as you will certainly need support for yourself as a carer. But the most important thing is to find local professionals who have some knowledge of HD and juvenile HD who can get to know your family and support you along the way with whatever you may need. Please