good to see a genetic counsellor or social worker in your area who specialises in HD/predictive testing, for a discussion and counselling on this and other issues, before going ahead with the test. By the way your Mum was sort of correct when she said you can get your (unborn) child tested without being tested yourself. There is a technique, called PGD exclusion testing, which can be done using IVF and preimplantation genetic diagnosis (PGD) in which the embryos are created, then tested NOT for the HD gene, but for the chromosome 4 markers that can distinguish which side of the family (on your side) the chromosome 4 has come from. It would require a blood sample from (ideally) both of your parents, as well as you and your partner. Any embryos that have a chromosome 4 from your Mum's side of the family would be excluded ie not used to start a pregnancy, as there is a 50% chance that that chromosome has the HD gene. So that way you can be confident that the child will not have the HD gene, while not having to find out whether you have the HD gene. You can get more information about the PGD process from the website of Sydney IVF - www.sydneyivf.com I hope this information is helpful and I would encourage you to contact your local genetic counselling service for help to sort out your dilemma. Regards, Fiona Also sarah you may find it useful to talk to other