HD counsellor to help you offload a bit? There are no support groups in Ballarat but there is one in Melbourne called the HD Youth Alliance. You can contact Tony on 0434 015 089. They hold one day workshops with experts and people sharing their stories ( there is one coming up on November 24). They also have a public Facebook page and private facebook support groups and have informal catch ups too which may help. Remember that freaking out is really common and a lot of people have been where you are. The best thing you have done is reached out. Congratulations for that. Make sure you contact your GP, Lisette or Tony ASAP. I hope this helps. "My boyfriend's grandmother has HD and is symptomatic. His father tested gene positive with CAG 40 - he is not symptomatic. If he tests HD positive, will the onset of the HD occur later in life?" - Joanna (25) Hi Joanna, Thanks for your question. If your boyfriend was to be gene-positive he would most likely have a similiar CAG repeat length as his father, however this is not guaranteed. Rarely CAG repeat length will increase and in even rarer cases it will actually decrease. Also, while CAG repeat-length seems to contribute to the age of symptom onset, research has shown that this is only part of the picture. Other genes and environmental factors can also play a big role. Studies are suggesting that living a healthly active lifestyle and eating