the majority of people at risk choose not to be tested, mainly because they are worried about the emotional effects if the test result predicts that they will develop HD, and there is still no treatment to prevent it. It is a very personal decision and it is good to support whatever decision an at risk person makes with regard to testing. I assume that your boyfriend is still young so hopefully with all the research (including trialling treatments) that is going on worldwide an effective treatment will eventually be found. This will change most people's decision about not being tested, as it is a different matter if something can be done to prevent HD developing.  This will also make a difference to the situation regarding testing of children. At the moment, as there is no preventive treatment, there is a worldwide agreement not to test children at parent's request. As most adults decide not to be tested, it is also important to preserve the child's right to make his or her own decision about being tested, when they are old enough to comprehend the implications of this decision (usually 18 or older). In your situation another problem would be that if your child is tested and found to have the HD gene change, this would also be the result for your boyfriend, which he doesn't want to know. This would be an extremely difficult 'double whammy' situation to handle, so it is best to leave things as they are,