'She will find it progressively harder and harder to control her muscles and will slowly lose the ability to write, speak, walk, read and even to swallow food unaided. 'She will lose none of her intelligence but will instead have the frustration of not being able to do the things she once could.' At risk: Toby and Emily discovered they both carry a rare gene mutation which meant each of their three children had a one in four chance of developing Ataxia-Telangiectasia Mr Read, an insurance underwriter, and his wife Emily, 36, who runs an HR company from home and looks after their three children, have decided not to tell Evie about the difficult future she faces. 'Evie doesn't know about her condition. She is aware there is something different about her and we have talked to her about her wobbly legs that put her off balance,' Mr Read said. 'We are bracing ourselves for when she is old enough to ask questions because we want to protect her from this for as long as possible. 'This summer we're hoping to take her to the Paralympics to get her acclimatised to the idea of being in a wheelchair. We want to show her being physically disabled is not the end of the world.' Babies with A-T appear 'normal' when they are born but can show a lack of balance when they start to walk. However, the physical impact of the disease is offset during the first few years by the