Confidentiality Toolkit

This Toolkit is intended for staff at all levels of government who work within offices and agencies that promote the well-being of children and families and would like to know more about:

This includes information about the:

This toolkit also includes several samples of sharing agreements that offices and agencies can use in their own agreements.

We hope it will help offices and agencies that want to develop and expand responsible sharing activities, and dispel common misconceptions about confidentiality requirements that are often raised when trying to responsibly share records.

We would like to know about the individuals using this toolkit so we can further tailor our future work to you.  Please take a moment to send us an email telling us:

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PAPERWORK REDUCTION ACT OF 1995 (Pub. L. 104-13) STATEMENT OF PUBLIC BURDEN:  Through this information collection, ACF is gathering information to learn about the individuals using this toolkit so we can tailor our future work to better assist them.   Public reporting burden for this collection of information is estimated to average of 10 minutes per respondent, including the time for reviewing instructions, gathering and maintaining the data needed, and reviewing the collection of information.  This is a voluntary collection of information. agency may not conduct or sponsor, and a person is not required to respond to, a collection of information subject to the requirements of the Paperwork Reduction Act of 1995, unless it displays a currently valid OMB control number.  The OMB # is 0970-0401 and the expiration date is 06/30/2024.  If you have any comments on this collection of information, please contact Joshua.Williams@acf.hhs.gov

Individuals who receive human services and other assistance often receive those services from several independent programs.  Providing a case worker records from multiple programs can improve their understanding of a recipient and how to better serve them.  Providing a researcher records from multiple programs can improve their understanding of the overall system and how to improve services for all recipients.  However, sharing records with other offices and agencies often raises legitimate concerns, such as whether it (a) complies with applicable law, (b) meets individuals’ privacy expectations, and (c) creates a security risk.

This toolkit discusses how to share records collected by human services and related programs.  It summarizes the key federal requirements that determine when different records may be shared.  It explains how leaders and workgroups can help resolve challenges that arise when developing sharing plans.  It advises how offices and agencies might secure electronic records.  It also includes success stories, documents used to facilitate record sharing, and links to helpful online resources.

This toolkit will not replace the important practice of consulting legal counsel.  However, we hope it will give ideas on what is possible, help resolve concerns that arise, and generally aid and inspire responsible record sharing.

Developing processes to share records with other offices and agencies that balance the many competing priorities is complex but not insurmountable.  Human services and related programs are often governed by an overlapping web of requirements designed to protect the confidentiality of the individuals connected to those services.  Stakeholders often bring additional concerns and interests to the table.

There are many ways to help ensure a responsible record sharing initiative is successful.  These can include:

Building Trust: Stakeholders often approach all new record sharing initiatives with a range of legitimate and unfounded concerns; concerns, and especially unfounded concerns, often dissipate once stakeholders begin to trust the other parties and their intents.

Gabay, Mary et al. (2021). Confidentiality Toolkit, OPRE Report 2021-175, Washington, DC: Office of Planning, Research, and Evaluation, Admini

Tags: data, guidance, policy, real, time
Organization: U.S. Department of Health & Human Services