AndreaBozzo/ceres-open-data-index huggingface dataset:
Early Learning Mentor Coach Study (ELMC) 2011-2014

The ELMC Study collected data to describe the objectives, activities, approaches, strategies, and other aspects of the Early Learning Mentor Coach (ELMC) initiative from the perspectives of Head Start grantees, coaches, and staff. In October 2010, the funds to support the ELMC initiative were distributed to 130 Head Start grantees in 42 states and the District of Columbia for a seventeen month period. Grantees used the funds to hire coaches to provide on-the-job guidance, training, mentoring and technical assistance to Head Start staff. The grant recipients reflected the range of Head Start programs. Data was collected using a mixed-methods design (qualitative and quantitative) and the following data collection instruments: a grantee census survey; a coach census survey; coach telephone interviews; and staff telephone interviews with staff who received coaching. 

<b>Units of Response: </b>Head Start Grantees, Head Start Coaches, Head Start Staff

<b>Type of Data: </b>Survey

<b>Tribal Data: </b>No

<b>Periodicity: </b>One-time

<b>Demographic Indicators: </b>Ethnicity;Race

<b>SORN: </b>https://www.federalregister.gov/documents/2022/09/19/2022-20139/privacy-act-of-1974-system-of-records

<b>Data Use Agreement: </b>https://www.icpsr.umich.edu/rpxlogin

<b>Data Use Agreement Location: </b>https://www.childandfamilydataarchive.org/cfda/archives/cfda/studies/36852/datadocumentation

<b>Granularity: </b>Grant;Grantee;Individual

<b>Spatial: </b>United States

<b>Geocoding: </b>State

Tags: head-start
Organization: U.S. Department of Health & Human Services
Blog | Health Tech Sprint Aims at Improving Care Access and Experience

This blog post was posted by Kristen Honey, PhD, on November 5, 2018. It was written by Gil Alterovitz, PhD, Justin Koufopoulos, and Kristen Honey, PhD.

Tags: artificial-intelligence, blog, blogs, cancer-trials, cencer, drigs, lyme, lyme-dsease, open-data, open-innivation
Organization: U.S. Department of Health & Human Services
Blog | COVID-19 is Complex, as is COVID-19 Open Data

This blog post was posted by Kevin Duvall on December 7, 2020. It was written by By: Kristen Honey, Chief Data Scientist and Senior Advisor to Assistant Secretary for Health (ASH), HHS; Amy Gleason, Data Strategy and Execution Workgroup Lead, U.S. Digital Service; and Kevin Duvall, Deputy Chief Data Officer (CDO), Office of the CDO, HHS.

Tags: blog, covid-19
Organization: U.S. Department of Health & Human Services
American Indian and Alaska Native Head Start Family and Child Experiences Survey, 2015

The AIAN FACES 2015 study design, engagement with programs, and dissemination efforts reflect advice from members of the AIAN FACES Workgroup, comprising Region XI Head Start directors, researchers, and federal officials. The Head Start Family and Child Experiences Survey (FACES) is a major source of information on Head Start programs and the children and families they serve. Since 1997, FACES has conducted studies in a nationally representative sample of Head Start programs, but has historically not included Region XI (programs operated by federally-recognized tribes), whose programs are designed to serve predominantly American Indian and Alaska Native (AI/AN) children and families. 

<b>Units of Response: </b>Head Start Programs, Head Start Classroom/Teacher, Head Start Children, Head Start Families, Head Start Centers

<b>Type of Data: </b>Evaluation

<b>Tribal Data: </b>Yes

<b>Periodicity: </b>One-time

<b>Demographic Indicators: </b>Disability;Ethnicity;Household Income;Household Size;Housing Status;Indigenous Population;Race;Sex

<b>SORN: </b>https://www.federalregister.gov/documents/2015/04/02/2015-07440/privacy-act-of-1974-system-of-records-notice

<b>Data Use Agreement: </b>Yes

<b>Data Use Agreement Location: </b>https://www.icpsr.umich.edu/web/ICPSR/studies/36804/datadocumentation

<b>Granularity: </b>Classroom;Family;Individual;Program

<b>Spatial: </b>United States

<b>Geocoding: </b>Unavailable

Tags: head-start
Organization: U.S. Department of Health & Human Services
National Child Abuse and Neglect Data System (NCANDS) Child File: Findings from the National Child Abuse and Neglect Data System (NCANDS) - Data Tables (updated with FY 2015)

<p>The National Child Abuse and Neglect Data System (NCANDS) Child File data set consists of child-specific data of all reports of maltreatment to State child protective service agencies that received an investigation or assessment response. NCANDS is a Federally-sponsored national data collection effort created for the purpose of tracking the volume and nature of child maltreatment reporting each year within the United States. The Child File is the case-level component of the NCANDS. Child File data are collected annually through the voluntary participation of States. Participating States submit their data after going through a process in which the State's administrative system is mapped to the NCANDS data structure.  Data elements include the demographics of children and their perpetrators, types of maltreatment, investigation or assessment dispositions, risk factors, and services provided as a result of the investigation or assessment.</p>

Tags: child-abuse, child-maltreatment, child-safety, children, childrens-health, safety
Organization: U.S. Department of Health & Human Services
National Survey of Children in Nonparental Care

This survey provides nationally representative estimates on the characteristics, living arrangements, and service accessibility of noninstitutionalized children who were living apart from their parents (in foster care, grandparent care or other nonparental care) and who were aged 0 to 16 years in 2011-2012. Data on the well-being of the children and of their caregivers are also available. The children’s nonparental care status was identified in a previous SLAITS survey, the 2011-2012 National Survey of Children’s Health.

<b>Units of Response: </b>Caregiver

<b>Type of Data: </b>Survey

<b>Tribal Data: </b>No

<b>Periodicity: </b>One-time

<b>Demographic Indicators: </b>Disability;Ethnicity;Household Income;Household Size;Housing Status;Race;Sex

<b>SORN: </b>https://www.federalregister.gov/documents/2022/09/19/2022-20139/privacy-act-of-1974-system-of-records

<b>Data Use Agreement: </b>No

<b>Data Use Agreement Location: </b>Unavailable

<b>Granularity: </b>Household

<b>Spatial: </b>United States

<b>Geocoding: </b>Unavailable

Tags: foster-care-and-adoption
Organization: U.S. Department of Health & Human Services
Blog | NIH Makes Data Sharing Repositories Publicly Viewable on HealthData.gov

This blog post was posted by Elizabeth Kittrie on July 21, 2016 
It was written by Elizabeth Kittrie and Shubham Chattopadhyay.

Tags: bd2k, big-data-to-knowledge, biocaddie, biomedical-data, blog, datamed, increasing-access-to-the-results-of-federally-funded-scientific-research, nih-data
Organization: U.S. Department of Health & Human Services
National Child Abuse and Neglect Data System (NCANDS) Child File: Findings from the National Child Abuse and Neglect Data System (NCANDS) - File contents and definitions (from Child Maltreatment 2018)

<p>The National Child Abuse and Neglect Data System (NCANDS) Child File data set consists of child-specific data of all reports of maltreatment to State child protective service agencies that received an investigation or assessment response. NCANDS is a Federally-sponsored national data collection effort created for the purpose of tracking the volume and nature of child maltreatment reporting each year within the United States. The Child File is the case-level component of the NCANDS. Child File data are collected annually through the voluntary participation of States. Participating States submit their data after going through a process in which the State's administrative system is mapped to the NCANDS data structure.  Data elements include the demographics of children and their perpetrators, types of maltreatment, investigation or assessment dispositions, risk factors, and services provided as a result of the investigation or assessment.</p>

Tags: child-abuse, child-maltreatment, child-safety, children, childrens-health, safety
Organization: U.S. Department of Health & Human Services
TANF Financial Data

The TANF Financial Data tables compile Federal TANF and State MOE expenditures for reported by states by fiscal year.

<b>Units of Response: </b>States

<b>Type of Data: </b>Financial

<b>Tribal Data: </b>No

<b>Periodicity: </b>Annual

<b>Demographic Indicators: </b>Not Applicable

<b>SORN: </b>Not Applicable

<b>Data Use Agreement: </b>https://www.icpsr.umich.edu/rpxlogin

<b>Data Use Agreement Location: </b>Unavailable

<b>Granularity: </b>State

<b>Spatial: </b>United States

<b>Geocoding: </b>State

Tags: family-assistance
Organization: U.S. Department of Health & Human Services
Child Care Licensing Study, 2007

The purpose of the 2007 Child Care Licensing Study is to report four aspects of child care licensing from 2007 for all 50 states and the District of Columbia: (1) state child care licensing programs and policies, (2) child care center licensing regulations, (3) small family child care home licensing regulations, and (4) large/group family child care home licensing regulations. 

To collect information on states' licensing policies, including staffing, monitoring, and enforcement of licensing regulations, the National Association for Regulatory Administration (NARA) disseminated the 2007 NARA Child Care Licensing Program Survey to all state child care licensing agencies in July 2007. Responses were received from all states. The survey focused on the processes and policies in each state related to staffing for the licensing program, monitoring facilities, and enforcement of licensing regulations. 

<b>Units of Response: </b>State 

<b>Type of Data: </b>Survey 

<b>Tribal Data: </b>No 

<b>Periodicity: </b>One-time  

<b>Demographic Indicators: </b>Not Applicable

<b>SORN: </b> https://www.federalregister.gov/documents/2022/01/24/2022-01066/privacy-act-of-1974-system-of-records 

<b>Data Use Agreement: </b>Unavailable 

<b>Data Use Agreement Location: </b> Not Applicable 

<b>Granularity: </b>State 

<b>Spatial: </b>United States 

<b>Geocoding: </b>Unavailable

Tags: child-care
Organization: U.S. Department of Health & Human Services
COVID Hospital Data Reporting Guidance Post-PHE

This guidance update reflects changes made to the required data elements for reporting as well as the cadence with which these elements need to be reported to CDC’s National Healthcare Safety Network (NHSN) following the expiration of the federal COVID-19 public health emergency declaration. There are no significant changes or additions to the reporting questions as a result of this guidance update. Information on reporting to NHSN can be found here: <a href='https://www.cdc.gov/nhsn/covid19/hospital-reporting.html'>https://www.cdc.gov/nhsn/covid19/hospital-reporting.html</a>.

Tags: covid-19, hhs-covid-19
Organization: U.S. Department of Health & Human Services
National Survey of Child and Adolescent Well-Being (NSCAW)

The National Survey of Child and Adolescent Well-Being (NSCAW) is a nationally representative, longitudinal survey of children and families who have been the subjects of investigation by Child Protective Services. There are currently two cohorts of available data (NSCAW I and NSCAW II) drawn from first-hand reports from children, parents, and other caregivers, as well as reports from caseworkers, teachers, and data from administrative records. NSCAW examines child and family well-being outcomes in detail and seeks to relate those outcomes to experience with the child welfare system and to family characteristics, community environment, and other factors.

<b>Units of Response: </b>Children and Families in the Child Welfare System

<b>Type of Data: </b>Survey

<b>Tribal Data: </b>Unavailable

<b>Periodicity: </b>Irregular

<b>Demographic Indicators: </b>Disability;Ethnicity;Geographic Areas;Household Income;Household Size;Race

<b>SORN: </b>Not Applicable

<b>Data Use Agreement: </b>https://www.ndacan.acf.hhs.gov/datasets/order_forms/termsofuseagreement.pdf

<b>Data Use Agreement Location: </b>https://www.ndacan.acf.hhs.gov/datasets/pdfs_user_guides/IntroNSCAWWave1.pdf

<b>Granularity: </b>Individual

<b>Spatial: </b>United States

<b>Geocoding: </b>Unavailable

Tags: child-abuse-and-neglect, research-and-evaluation
Organization: U.S. Department of Health & Human Services
Blog | COVID-19 Open Data – Our Data is Your Data

This blog post was posted by Kevin Duvall on December 18, 2020. It was written by Heather Strosnider, Co-Lead, Integrated Surveillance, Centers for Disease Control and Prevention (CDC)/Joint Coordination Cell; Kelly Bennett, Co-Lead, Integrated Surveillance, Assistant Secretary for Preparedness and Response (ASPR)/Joint Coordination Cell; Amy Gleason, Data Strategy and Execution Workgroup Lead, US Digital Service/Joint Coordination Cell; Kristen Honey, Chief Data Scientist and Senior Advisor to Assistant Secretary for Health (ASH), HHS; and Kevin Duvall, Deputy Chief Data Officer (CDO), Office of the CDO, U.S. Department of Health & Human Services (HHS).

Tags: blog, covid-19
Organization: U.S. Department of Health & Human Services
Child Care Licensing Study, 2005

The purpose of the 2005 Child Care Licensing Study was to report two aspects of child care licensing from 2005 for all 50 states and the District of Columbia: (1) state child care licensing programs and policies, and (2) child care center licensing regulations. 

To collect information on states' licensing policies, including staffing, monitoring, and enforcement of licensing regulations, the National Association for Regulatory Administration (NARA) disseminated the 2005 NARA Child Care Licensing Program Survey to all state child care licensing agencies in February 2005. Responses were received from all states. The survey focuses on the processes and policies in each state related to staffing for the licensing program, monitoring facilities, and enforcement of licensing regulations. 

<b>Units of Response: </b>State  

<b>Type of Data: </b>Survey 

<b>Tribal Data: </b>No 

<b>Periodicity: </b>Irregular 

<b>Demographic Indicators: </b>Not Applicable

<b>SORN: </b> https://www.federalregister.gov/documents/2022/01/24/2022-01066/privacy-act-of-1974-system-of-records 

<b>Data Use Agreement: </b>Unavailable 

<b>Data Use Agreement Location: </b> Not Applicable 

<b>Granularity: </b>State 

<b>Spatial: </b>United States 

<b>Geocoding: </b>Unavailable

Tags: child-care
Organization: U.S. Department of Health & Human Services
Characteristics and Financial Circumstances of TANF Recipients

The Characteristics and Financial Circumstances of TANF Recipients tables provide demographic data on the age and race/ethnicity of adults and children in TANF and Separate State Program (SSP)-Maintenance-of-Effort (MOE) active families and closed cases, as well as data on the financial circumstances of TANF cash assistance recipients.

<b>Units of Response: </b>TANF Recipients, States

<b>Type of Data: </b>Administrative

<b>Tribal Data: </b>No

<b>Periodicity: </b>Annual

<b>Demographic Indicators: </b>Disability;Ethnicity;Household Size;Race

<b>SORN: </b>Not Applicable

<b>Data Use Agreement: </b>https://www.ndacan.acf.hhs.gov/datasets/order_forms/termsofuseagreement.pdf

<b>Data Use Agreement Location: </b>Unavailable

<b>Granularity: </b>State

<b>Spatial: </b>United States

<b>Geocoding: </b>State

Tags: family-assistance
Organization: U.S. Department of Health & Human Services
Adoption and Foster Care Analysis and Reporting System (AFCARS)

The Adoption and Foster Care Analysis and Reporting System (AFCARS) is a federally mandated data collection system intended to provide case specific information on all children covered by the protections of Title IV-B/E of the Social Security Act (Section 427). Under the Final 1993 AFCARS’ rule, states are required to collect and submit data on all children who are under the responsiblity of the title IV-B/IV-E agency for placement, care, or supervision.

<b>Units of Response: </b>Children in Foster Care

<b>Type of Data: </b>Administrative

<b>Tribal Data: </b>Unavailable

<b>Periodicity: </b>Semiannual

<b>Demographic Indicators: </b>Disability;Geographic Areas;Sex

<b>SORN: </b>https://www.federalregister.gov/documents/2016/12/14/2016-29366/adoption-and-foster-care-analysis-and-reporting-system

<b>Data Use Agreement: </b>https://www.ndacan.acf.hhs.gov/datasets/order_forms/termsofuseagreement.pdf

<b>Data Use Agreement Location: </b>https://www.ndacan.acf.hhs.gov/datasets/order_forms/termsofuseagreement.pdf

<b>Granularity: </b>Individual

<b>Spatial: </b>United States

<b>Geocoding: </b>FIPS Code

Tags: foster-care-and-adoption
Organization: U.S. Department of Health & Human Services
Child Care and Development Fund (CCDF) Statistics

The Child Care and Development Fund statistics are compiled through data reported by States and Territories on the ACF-800--Annual Aggregate Child Care Data Report and ACF-801—Monthly Child Care Data Report. 

<b>Units of Response: </b>CCDF Agencies 

<b>Type of Data: </b>Administrative 

<b>Tribal Data: </b>No 

<b>Periodicity: </b>Annual 

<b>Demographic Indicators: </b>Disability;Ethnicity;Housing Status;Race

<b>SORN: </b>Not Applicable 

<b>Data Use Agreement: </b>Unavailable 

<b>Data Use Agreement Location: </b>Unavailable 

<b>Granularity: </b>State;U.S. Territory 

<b>Spatial: </b>United States 

<b>Geocoding: </b>State

Tags: child-care, children-and-families, early-care-and-education
Organization: U.S. Department of Health & Human Services
National Child Abuse and Neglect Data System (NCANDS)

The NCANDS is a federally-sponsored national data collection effort created for the purpose of tracking the volume and nature of child maltreatment reporting each year within the United States.

<b>Units of Response: </b>Report-Child Combination

<b>Type of Data: </b>Administrative

<b>Tribal Data: </b>Unavailable

<b>Periodicity: </b>Annual

<b>Demographic Indicators: </b>Disability;Ethnicity;Housing Status;Military;Race;Sex

<b>SORN: </b>Not Applicable

<b>Data Use Agreement: </b>https://www.ndacan.acf.hhs.gov/datasets/request-restricted-data.cfm

<b>Data Use Agreement Location: </b>https://www.ndacan.acf.hhs.gov/datasets/order_forms/termsofuseagreement.pdf

<b>Granularity: </b>Individual;State

<b>Spatial: </b>United States

<b>Geocoding: </b>FIPS Code;State

Tags: child-abuse-and-neglect
Organization: U.S. Department of Health & Human Services
National Child Abuse and Neglect Data System (NCANDS) Child File: Findings from the National Child Abuse and Neglect Data System (NCANDS) – File Contents and Definitions for the Data Tables (updated with FY 2015)

<p>The National Child Abuse and Neglect Data System (NCANDS) Child File data set consists of child-specific data of all reports of maltreatment to State child protective service agencies that received an investigation or assessment response. NCANDS is a Federally-sponsored national data collection effort created for the purpose of tracking the volume and nature of child maltreatment reporting each year within the United States. The Child File is the case-level component of the NCANDS. Child File data are collected annually through the voluntary participation of States. Participating States submit their data after going through a process in which the State's administrative system is mapped to the NCANDS data structure.  Data elements include the demographics of children and their perpetrators, types of maltreatment, investigation or assessment dispositions, risk factors, and services provided as a result of the investigation or assessment.</p>

Tags: child-abuse, child-maltreatment, child-safety, children, childrens-health, safety
Organization: U.S. Department of Health & Human Services
National Youth in Transition Database - Served Populations

States report information from two reporting populations: (1) The Served Population which is information on all youth receiving at least one independent living services paid or provided by the Chafee Program agency, and (2) Youth completing the NYTD Survey.  States  survey youth regarding six outcomes: financial self-sufficiency, experience with homelessness, educational attainment, positive connections with adults, high-risk behaviors, and access to health insurance. States collect outcomes information by conducting a survey of youth in foster care on or around their 17th birthday, also referred to as the baseline population. States will track these youth as they age and conduct a new outcome survey on or around the youth's 19th birthday; and again on or around the youth's 21st birthday, also referred to as the follow-up population. States will collect outcomes information on these older youth at ages 19 or 21 regardless of their foster care status or whether they are still receiving independent living services from the State. Depending on the size of the State's foster care youth population, some States may conduct a random sample of the baseline population of the 17-year-olds that participate in the outcomes survey so that they can follow a smaller group of youth as they age. All States will collect and report outcome information on a new baseline population cohort every three years.

<b>Units of Response: </b>Current and former youth in foster care

<b>Type of Data: </b>Administrative

<b>Tribal Data: </b>No

<b>Periodicity: </b>Annual

<b>Demographic Indicators: </b>Ethnicity;Race;Sex

<b>SORN: </b>Not Applicable

<b>Data Use Agreement: </b>https://www.ndacan.acf.hhs.gov/datasets/request-dataset.cfm

<b>Data Use Agreement Location: </b>https://www.ndacan.acf.hhs.gov/datasets/order_forms/termsofuseagreement.pdf

<b>Granularity: </b>Individual

<b>Spatial: </b>United States

<b>Geocoding: </b>FIPS Code

Tags: foster-care-and-adoption
Organization: U.S. Department of Health & Human Services