Source document: https://docs-lawep.s3.us-east-2.amazonaws.com/1697634015556.pdf (Australia)
My story may be made public.

My name is and I am • My postal address is: • You can contact me on: years old.

About my journey I believe I acquired my Lyme-like illness either through in-vitro or from a tick bite.

I have two possibilities as my mother and my two siblings have also all tested positive.

I grew up in South Africa and have had multiple tick bites through the years.

I was sick for at least 12 years.


Looking back now, I only noticed this around the time when we were given compulsory vaccines while at high school.

I have positive blood tests from Igenex.

I have tested positive for Spotted Fever Rickettsia (I was even sent an infectious disease certificate from the health department and I am still unable to be treated) this was through Clinipath Patholody.

I have tested positive to Lyme through Western Blot testing through Igenex.
I have been clinically diagnosed for Babesia and Bartonella.

I have seen countless of doctors and medical practitioners in my journey.

My mother was the guinea pig of the family as she was very unwell being bed bound most of her days and after several years and thousands of dollars she finally had relief and was tested positive for Lyme.

Once this came back as positive we sent out bloods off to America.
My symptoms are; o headaches/migraines o pressure around head facial flushing o o stiff/sore neck jaw pain o floaters in eyes o o sensitivity to light o ringing/buzzing in ears o digestive issues o muscles cramps o bone/joint/muscles pains o night sweats o chest/arm stabbing pain o tingling in hands and feet o o dizziness o mood swings o anxiety o depression o memory loss o rashes light headedness Growing evidence of an emerging tick-borne disease that causes a Lyme like illness for many Australian patientsSubmission 552 Through the years as a child I would go through periods of illness and not be well.
I would go the doctors and nothing would come from it.

My mother, brother and sister have all been tested with positive results for a lyme-like disease.

We would all say how unwell we felt and just assumed it was normal as they had the same health problems and symptoms as I did.

I have had pharmacists, doctors, colleagues and acquaintances advise me how I have been misinformed and Australia doesn’t have lyme-like diseases.

Well that might be their opinion but I was not born in this country.
I have also travelled the world and find that statement offensive to anyone who has ever left this country.

A wake up call is needed.

The hardest part to fathom is trying to confide in support groups and being restricted to what we can say.

No mentioning doctors, no mentioning what you are taking or how to take it.

That’s the whole reason of peer support and it’s pointless because you just feel targeted.
I have been advised by Australian Red Cross Blood and Australian Organ Donor Services that I am unable to donate anymore once I advised them I had positive results.

I have been donating blood since I was 19.

We were being treated for our lyme-like disease and other than the extremely high cost of medications, it was progressing well.
Unfortunately, in early 2015 our doctor was strongly recommended by the medical board to cease treating all their lyme patients and we have since lost our life-line to our treatments.

I believe there is on-going letters checking up they are still not seeing patients.

We are currently seeking alternative natural therapies to help us.

We have an American doctor we liaise over skype.

The waiting lists for the two lyme literate doctors in WA were stated waiting periods between 12-18 months.
Without the financial help from my grandparents and my local chemist who subsidised our medications, I don’t know where we would be in terms of seeking help.

Growing evidence of an emerging tick-borne disease that causes a Lyme like illness for many Australian patientsSubmission 552